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A smile can change someone's entire day. 😊💛💙❤
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Top @denimandrufflesboutique 
Necklace @aubreysbeadcloset 
Hat & Boots @target .
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#minifashionblogger #ministyleicons #minimodelfeatures #bonnet #smile #teamizzy #dsawareness #alopeciaawareness #alopecia #fashionkidsworldwide #fashiondiaries #modernkidsmodel #ctfob #morealikethandifferent #overcomer #daretobedifferent #love #yellow #ladybug #butterfly
These boys mean serious business.  This was them plotting their next move today.  Their conversations :  mom we are going to cut the neighbors grass, we are going to make some boards, we are fixing your tires, we are picking the neighbors flowers 🌺 .  Um...Nooo don't do that lol.  #romannremy #hotmesses #boys #weekend #cutekids #livethelittlethings #cpfamily #instagood #myloves #mylife #ctfob #momlife
#😍
All the new stuff at Pitupi.se will be well worth the wait 🍄Read about production of these items and more in this week's blog post, link in bio! (+More sneak peek pics)
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#sustainable#childrenswear#pitupi
#😍 All the new stuff at Pitupi.se will be well worth the wait 🍄Read about production of these items and more in this week's blog post, link in bio! (+More sneak peek pics) • • #sustainable #childrenswear #pitupi 
Mason likes the beach,  until I slide this 38lbs off my back and into the sand. Not his favorite place to be.....so don't let that sweet smile deceive! #lillebaby #ctfob #toddlerwearing
Mason likes the beach, until I slide this 38lbs off my back and into the sand. Not his favorite place to be.....so don't let that sweet smile deceive! #lillebaby  #ctfob  #toddlerwearing 
Bean  Burrito Monster 😍 #rockorocks
It's short sleeves and bonnet season! We have been loving the sunshine and warm weather today.
Last night was a looong night. Maeve cried and cried (extremely unlike her), which culminated in a 3am phone call to the Waikids team and me and Chris spending an hour trying to catch a sterile urine sample 🙄. Anything to avoid ED! Lucky she's so cute ❤
#preciousmaeve #maeveisafighter
It's short sleeves and bonnet season! We have been loving the sunshine and warm weather today. Last night was a looong night. Maeve cried and cried (extremely unlike her), which culminated in a 3am phone call to the Waikids team and me and Chris spending an hour trying to catch a sterile urine sample 🙄. Anything to avoid ED! Lucky she's so cute ❤ #preciousmaeve  #maeveisafighter 
This made my day! Happy Friday friends! 🤗
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#Repost @amanda_booth (@get_repost)
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Thank you @renewlifeformulas for having guts to include our special boy in your campaign! #inclusionisthenewcool @mikerunt @lifewithmicah @mcguffinmgt #changingthefaceofbeauty #ctfob #speakup4ctfob #standup4ctfob
Friday feeling!! It's vacation time tomorrow☀☀ YAY☀
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#fridayfriyay #vacation #carpoolkaraoke #afterwork #abba #mammamia #ctfob #downrightperfect #t21momsarethebest @beautifulconditions #fredagskänsla #mymomrocks #downupright @alllifeisbeautiful #huellasdownvenezuela
Today is a day of great celebration! Today is Izzy's 3 year Heartiversary!! Thanks to Facebook, I was able to read my thoughts from that day...a day I will never forget. 
September 22, 2014...
Isabella went back for surgery at 8:03. They said the operation could take between 4-6 hrs. They will be calling me with updates throughout the morning.

Handing her over to the Dr was the hardest thing I've ever done. But I envisioned that it was Jesus' hands I placed her in. Thank you all for your support and prayers over the past 2 1/2 months. "I will lie down in peace, and sleep; for You alone, O Lord, make me dwell in safety." Psalm 4:8

10 hrs later....
I thought I had prepared myself for what I would see when I walked in Isabella's room, but I don't think any amount of preparation can make it an easy sight to see. Although her surgery went very well, she is struggling now. They are having difficulty keeping her sedated. She can't cry because of the breathing tube, but you can see the tears in her eyes. It is heartbreaking to say the least. Her blood pressure is high and she has a blood sugar of 358 and carbon dioxide levels are also high. 
The doctors told me the next 24 hours will be critical. They are watching her very close and her nurse is in the room at all times.

3 years later and look at her!! She proved them all wrong then and she will continue to show the world that she is a warrior, a world changer and a blessing to ALL!! #LifeIsBetterWithYou #teamizzy #dsawareness #alopeciaawareness  #heartwarrior #chd
Today is a day of great celebration! Today is Izzy's 3 year Heartiversary!! Thanks to Facebook, I was able to read my thoughts from that day...a day I will never forget. September 22, 2014... Isabella went back for surgery at 8:03. They said the operation could take between 4-6 hrs. They will be calling me with updates throughout the morning. Handing her over to the Dr was the hardest thing I've ever done. But I envisioned that it was Jesus' hands I placed her in. Thank you all for your support and prayers over the past 2 1/2 months. "I will lie down in peace, and sleep; for You alone, O Lord, make me dwell in safety." Psalm 4:8 10 hrs later.... I thought I had prepared myself for what I would see when I walked in Isabella's room, but I don't think any amount of preparation can make it an easy sight to see. Although her surgery went very well, she is struggling now. They are having difficulty keeping her sedated. She can't cry because of the breathing tube, but you can see the tears in her eyes. It is heartbreaking to say the least. Her blood pressure is high and she has a blood sugar of 358 and carbon dioxide levels are also high. The doctors told me the next 24 hours will be critical. They are watching her very close and her nurse is in the room at all times. 3 years later and look at her!! She proved them all wrong then and she will continue to show the world that she is a warrior, a world changer and a blessing to ALL!! #LifeIsBetterWithYou  #teamizzy  #dsawareness  #alopeciaawareness  #heartwarrior  #chd 
We've loved being part of @alilsomethingextra321!! Quality of shirts are great and the designs are unique! Always a conversation starter when we wear them out! 💙💛 we would LOVE to be part of the team again! #alilsomethingextrarepsearch
We've loved being part of @alilsomethingextra321!! Quality of shirts are great and the designs are unique! Always a conversation starter when we wear them out! 💙💛 we would LOVE to be part of the team again! #alilsomethingextrarepsearch 
WE'RE OFFERING OUR EDUCATIONAL
PSA FOR FREE! 
Hello Changing the Face of Beauty Partners! 
We wanted to let YOUR followers in on an amazing opportunity!

Changing the Face of Beauty is offering our Educational PSA Video and Program to schools around the country FOR FREE!  Yes!  We can not wait any longer to get this message to the future of advertising, and we need your help.

Helping is EASY! All you have to do is: 
1.) Share our Educational PSA Program trailer below with all of your friends, family and followers.

2.) Ask them to request that their schools implement the program and educate their students on the importance of inclusion of individuals with disabilities in advertising!

3.) Have anyone who is interested email PSA@changingthefaceofbeauty.org, and request for the Educational PSA Program download link. We will send the link, and they can pass it on to their schools!

That's it!
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#changingthefaceofbeauty #ctfob #speakup4ctfob #standup4ctfob #joinus
WE'RE OFFERING OUR EDUCATIONAL PSA FOR FREE! Hello Changing the Face of Beauty Partners! We wanted to let YOUR followers in on an amazing opportunity! Changing the Face of Beauty is offering our Educational PSA Video and Program to schools around the country FOR FREE! Yes! We can not wait any longer to get this message to the future of advertising, and we need your help. Helping is EASY! All you have to do is: 1.) Share our Educational PSA Program trailer below with all of your friends, family and followers. 2.) Ask them to request that their schools implement the program and educate their students on the importance of inclusion of individuals with disabilities in advertising! 3.) Have anyone who is interested email PSA@changingthefaceofbeauty.org, and request for the Educational PSA Program download link. We will send the link, and they can pass it on to their schools! That's it! . #changingthefaceofbeauty  #ctfob  #speakup4ctfob  #standup4ctfob  #joinus 
Igår var en succé. Jag fick träffa alla mina favoriter😀💟 Grym show!
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Last night was a blast. I got to meet all my favoties😀💟 Awsome show!
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Tack och kram @christerbostrom55 @kimsulocki
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#happylife #downsyndome #downtürkiye #downsyndromeacceptance #nothingdownaboutit #notspecialneedsjusthumanneeds #trizomi21 #diffrentlife #diffrentisbeautiful #sindromedalindeza #sindromededown #upsyndrome #downsendromu @globaldownsyndrome @orangesocks__ #dsdn #ds #ctfob @kimsulocki @sannanielsenofficial #robertgustavsson #oscarsrevyn #alittleextra
Igår var en succé. Jag fick träffa alla mina favoriter😀💟 Grym show! • Last night was a blast. I got to meet all my favoties😀💟 Awsome show! • Tack och kram @christerbostrom55 @kimsulocki ❤❤❤❤❤ #happylife  #downsyndome  #downtürkiye  #downsyndromeacceptance  #nothingdownaboutit  #notspecialneedsjusthumanneeds  #trizomi21  #diffrentlife  #diffrentisbeautiful  #sindromedalindeza  #sindromededown  #upsyndrome  #downsendromu  @globaldownsyndrome @orangesocks__ #dsdn  #ds  #ctfob  @kimsulocki @sannanielsenofficial #robertgustavsson  #oscarsrevyn  #alittleextra 
Why is a pig's tail like waking up at 4AM?
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It's TWIRLY!!! 🐷
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PLEASE LIKE and FOLLOW !!!
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #DownSyndromeAwareness #DSDN #UpSyndrome #MoreAlikeThanDifferent #DownSyndromeLove #LIFEisbetterwithyou
#ChangingTheFaceOfBeauty #DownSyndromeRocks
Who knew eating #goldfish could be such fun!! 🤣🐡 Thanks @pepperidgefarm for making such fun snacks!! .
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Tee @thebusybeebuzz 
Bloomers @lili.lane ISABELLA15
Bow @loveliesbylesa IZZY20 .
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#minifashionblogger #ministyleicons #minimodelfeatures #bonnet #smile #teamizzy #dsawareness #alopeciaawareness #alopecia #fashionkidsworldwide #fashiondiaries #modernkidsmodel #ctfob #morealikethandifferent #overcomer #daretobedifferent #love #yellow #ladybug #butterfly
Who knew eating #goldfish  could be such fun!! 🤣🐡 Thanks @pepperidgefarm for making such fun snacks!! . . . . Tee @thebusybeebuzz Bloomers @lili.lane ISABELLA15 Bow @loveliesbylesa IZZY20 . . . . #minifashionblogger  #ministyleicons  #minimodelfeatures  #bonnet  #smile  #teamizzy  #dsawareness  #alopeciaawareness  #alopecia  #fashionkidsworldwide  #fashiondiaries  #modernkidsmodel  #ctfob  #morealikethandifferent  #overcomer  #daretobedifferent  #love  #yellow  #ladybug  #butterfly 
Here's a picture from one of our headshot clinics!! Isn't she cute?
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Want to host a headshot clinic in your area? Email michele@changingthefaceofbeauty.org! .
#changingthefaceofbeauty #ctfob #speakup4ctfob #standup4ctfob #joinus
Infusion time🌟
So, some of you already know that I have been pretty sick recently; for others I wanted to let you know what's been going on. I was diagnosed with gastroparesis at the beginning of summer and have been struggling with the debilitating symptoms it brings on. I have tried medications and now am looking for other treatment options, however, because the condition is so rare, the out of pocket cost is huge. I am not one to ask for handouts, but unfortunately, my situation is getting quite bad. Due to this, i have started a #GoFundMe to cover upcoming procedure costs. I hope you can spare a few moments to go on the page and read more about what has being going on in my life and maybe give anything you can- be it prayers, donation, or simply a kind word. Thanks for reading, the link is in my bio. ❤
#sickgirlsclub #gastroparesis #ctfob #chronicloveclub
Infusion time🌟 So, some of you already know that I have been pretty sick recently; for others I wanted to let you know what's been going on. I was diagnosed with gastroparesis at the beginning of summer and have been struggling with the debilitating symptoms it brings on. I have tried medications and now am looking for other treatment options, however, because the condition is so rare, the out of pocket cost is huge. I am not one to ask for handouts, but unfortunately, my situation is getting quite bad. Due to this, i have started a #GoFundMe  to cover upcoming procedure costs. I hope you can spare a few moments to go on the page and read more about what has being going on in my life and maybe give anything you can- be it prayers, donation, or simply a kind word. Thanks for reading, the link is in my bio. ❤ #sickgirlsclub  #gastroparesis  #ctfob  #chronicloveclub 
Labels can only confine. Aspire to be undefinable. - Colin Wright 💛💙
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Tee @se7entees LIFEISBETTERWITHYOU
Bow @twolittleladies11 TLLFRIENDS 
Jeans @guess 
Shoes @converse .
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#minifashionblogger #ministyleicons #minimodelfeatures #bonnet #smile #teamizzy #dsawareness #alopeciaawareness #alopecia #fashionkidsworldwide #fashiondiaries #modernkidsmodel #ctfob #morealikethandifferent #overcomer #daretobedifferent #love #yellow #ladybug #butterfly
We love when our followers call out retailers!!!! 🎉.
@littlestprincecouture - big bro would like to help you with #changingthefaceofbeauty! I think this guys could help sell your bowties! ❤️ #wesleyboo #downsyndrome #changingthefaceofbeauty #ctfob #speakup4ctfob #standup4ctfob #joinus
BOSTON!!!! We're coming to you!!!!! Email:susiedtapley@gmail.com for more information! .
#changingthefaceofbeauty #ctfob #speakup4ctfob #standup4ctfob
Showing off my gummy smile because we hit 6000 followers 🤗. I just wanted to share our journey and show off the joy she brings and I never imagine so many would want to come along for the ride. All you followers have been incredible. Your support and love show me everything that is good in the world! We can't thank you enough! #swipeleft #uplifeofemmyjoy #upsyndrome #theluckyfew #changingthefaceofbeauty #dsdn #dsaoc #toothlessgrin #nothingdownaboutit
We love seeing pictures of you in our gear!!! Don't have any? Check our website our and click on shop!!!!.
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#Repost @lucky_fin_project (@get_repost)
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Showing some love for our friends at @changingthefaceofbeauty and their commitment to equal representation of people with disabilities in advertising & worldwide media. (bracelets: @lucky_fin_project, @loveisproject ) #speakup4ctfob #luckyfinproject #inclusion #represent #limbdifferenceawareness #symbrachydactyly #ctfob #luckyfinsrock #beYOUtiful #uniquelyunstoppable #changingthefaceofbeauty #ctfob #speakup4ctfob #standup4ctfob
We love seeing pictures of you in our gear!!! Don't have any? Check our website our and click on shop!!!!. . #Repost  @lucky_fin_project (@get_repost) ・・・ Showing some love for our friends at @changingthefaceofbeauty and their commitment to equal representation of people with disabilities in advertising & worldwide media. (bracelets: @lucky_fin_project, @loveisproject ) #speakup4ctfob  #luckyfinproject  #inclusion  #represent  #limbdifferenceawareness  #symbrachydactyly  #ctfob  #luckyfinsrock  #beYOUtiful  #uniquelyunstoppable  #changingthefaceofbeauty  #ctfob  #speakup4ctfob  #standup4ctfob 
Showing some love for our friends at @changingthefaceofbeauty and their commitment to equal representation of people with disabilities in advertising & worldwide media. (bracelets: @lucky_fin_project, @loveisproject ) #speakup4ctfob #luckyfinproject #inclusion #represent #limbdifferenceawareness #symbrachydactyly #ctfob #luckyfinsrock #beYOUtiful #uniquelyunstoppable
Y'all, Evie Love is SOOOOO close to crawling and being able to get around. I cannot WAIT to send her out to pick up Chinese. 🍜
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PLEASE LIKE and FOLLOW !!!
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #DownSyndromeAwareness #DSDN #UpSyndrome #MoreAlikeThanDifferent #DownSyndromeLove #LIFEisbetterwithyou
#ChangingTheFaceOfBeauty #DownSyndromeRocks
It's that heart of GOLD 💛 & Starbust soul that make you beautiful. - R.M. Broderick
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Tee @se7entees releasing FRIDAY
Bow @loveliesbylesa 
Leggings @target 
Necklace @aubreysbeadcloset
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#minifashionblogger #ministyleicons #minimodelfeatures #bonnet #smile #teamizzy #dsawareness #alopeciaawareness #alopecia #fashionkidsworldwide #fashiondiaries #modernkidsmodel #ctfob #morealikethandifferent #overcomer #daretobedifferent #love #yellow #ladybug #butterfly
It's that heart of GOLD 💛 & Starbust soul that make you beautiful. - R.M. Broderick . . . Tee @se7entees releasing FRIDAY Bow @loveliesbylesa Leggings @target Necklace @aubreysbeadcloset . . . . #minifashionblogger  #ministyleicons  #minimodelfeatures  #bonnet  #smile  #teamizzy  #dsawareness  #alopeciaawareness  #alopecia  #fashionkidsworldwide  #fashiondiaries  #modernkidsmodel  #ctfob  #morealikethandifferent  #overcomer  #daretobedifferent  #love  #yellow  #ladybug  #butterfly 
How contagious is Emily's smile? .
Please consider donating to CTFOB to help us continue doing what we are doing! All you have to do is head over to our website and click on donate! We appreciate your support! .
#changingthefaceofbeauty #ctfob #speakup4ctfob #standup4ctfob #helpus #donatetoctfob
You might be cool, but are you "hanging from a car grip handle, rockin' an extra chromosome, eatin' a homemade chicken taquito in the parking lot of your big bros football practice" cool?! 😎 #EmmettSlade is 😜 #extrachromosomesareextracool
You might be cool, but are you "hanging from a car grip handle, rockin' an extra chromosome, eatin' a homemade chicken taquito in the parking lot of your big bros football practice" cool?! 😎 #EmmettSlade  is 😜 #extrachromosomesareextracool 
We still have some spots left for our headshot clinic in Boston!!!
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Our founder and President Katie Driscoll will be there!!! .
#changingthefaceofbeauty #ctfob #speakup4ctfob #standup4ctfob #headshotclinic #boston
We love seeing you in our CTFOB gear! Go check out all our items on our website www.changingthefaceofbeauty.org and click shop. .
#changingthefaceofbeauty #standup4ctfob #speakup4ctfob #ctfob #representus
Simon had just as much fun in the water as playing in the sand!! I totally have a beach baby here! Can't wait until we can sneak away again! #simonsunshine #myjoy #LIFEisbetterwithyou #ctfob #changethefaceofbeauty #dsdn
Another company representing all people! Thank you @target ! Have you seen Sofia in the latest commercial yet? .
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#Repost @thesanchezsix (@get_repost)
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Look for this sassy girl in the latest @target commercials! ❤️🎯 #kmrdiversity #changingthefaceofbeauty #standup4ctfob #speakup4ctfob #ctfob #joinus
Maybe she doesn't have an extra chromosome. Maybe we're just all missing one of the good ones.
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PLEASE LIKE and FOLLOW !!!
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #DownSyndromeAwareness #DSDN #UpSyndrome #MoreAlikeThanDifferent #DownSyndromeLove #LIFEisbetterwithyou
#ChangingTheFaceOfBeauty #DownSyndromeRocks
Enjoying our last days of summer! .
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Bow @twolittleladies11 TLLFRIENDS 
Top @shopisaprincess 
Bloomers @everettavenue IZZY15 
Shoes @converse .
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#minifashionblogger #ministyleicons #minimodelfeatures #bonnet #smile #teamizzy #dsawareness #alopeciaawareness #alopecia #fashionkidsworldwide #fashiondiaries #modernkidsmodel #ctfob #morealikethandifferent #overcomer #daretobedifferent #love #yellow #ladybug #butterfly
This is so exciting to see!! Thank you @oshkoshkids !!! .
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#changingthefaceofbeauty #speakup4ctfob #standup4ctfob #ctfob #joinus
Today Izzy is off to a party to celebrate Mimi's 70th Birthday!! Hope you're enjoying your weekend. .
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Bow @loveliesbylesa IZZY20 
Dress @matildajaneclothing 
Necklace @aubreysbeadcloset .
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#minifashionblogger #ministyleicons #minimodelfeatures #bonnet #smile #teamizzy #dsawareness #alopeciaawareness #alopecia #fashionkidsworldwide #fashiondiaries #modernkidsmodel #ctfob #morealikethandifferent #overcomer #daretobedifferent #love #yellow #ladybug #butterfly
Today Izzy is off to a party to celebrate Mimi's 70th Birthday!! Hope you're enjoying your weekend. . . . Bow @loveliesbylesa IZZY20 Dress @matildajaneclothing Necklace @aubreysbeadcloset . . . . . #minifashionblogger  #ministyleicons  #minimodelfeatures  #bonnet  #smile  #teamizzy  #dsawareness  #alopeciaawareness  #alopecia  #fashionkidsworldwide  #fashiondiaries  #modernkidsmodel  #ctfob  #morealikethandifferent  #overcomer  #daretobedifferent  #love  #yellow  #ladybug  #butterfly 
#happysunday! Wearing my favorite @hm dress for a day out.
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#hm 
#model #ootd 
#modeling
#aspiringmodel
#specialneedsmodel
#teenmodel
#beautiful
#happy
#fashion
#followme #me 
#ctfob
Dags för en carpool karaoke. Eller vad tycker ni?😎
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Time for a carpool karaoke. What do you think?😎
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#carpoolkaraoke @j_corden #sindromededown #sindromedown #cromosoma #cromossodoamor #ctfob #cromosoma #downtürkiye #notspecialneedsjusthumanneeds #diffrentisbeautiful #diffrentisthenewnormal #alittleextra #amorsindromedown #lifeisbetterwithyou #extrachromosome #sindromedalindeza @downmagazine @orangesocks__ @globaldownsyndrome #dsdn #t21momsarethebest #homiewithanextrachromie
Dags för en carpool karaoke. Eller vad tycker ni?😎 • Time for a carpool karaoke. What do you think?😎 • #carpoolkaraoke  @j_corden #sindromededown  #sindromedown  #cromosoma  #cromossodoamor  #ctfob  #cromosoma  #downtürkiye  #notspecialneedsjusthumanneeds  #diffrentisbeautiful  #diffrentisthenewnormal  #alittleextra  #amorsindromedown  #lifeisbetterwithyou  #extrachromosome  #sindromedalindeza  @downmagazine @orangesocks__ @globaldownsyndrome #dsdn  #t21momsarethebest  #homiewithanextrachromie 
Guuurl, it ain't even naked crossfit season 🏋🏻‍♀️🤸🏻‍♂️
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PLEASE LIKE and FOLLOW !!!
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #DownSyndromeAwareness #DSDN #UpSyndrome #MoreAlikeThanDifferent #DownSyndromeLove #LIFEisbetterwithyou
#ChangingTheFaceOfBeauty #DownSyndromeRocks
This beauty needs her sleep and so do this beauty's parents. Last night was rough. I don't post often about the rough days for a few reasons. First, we don't have many of them. Second, I know many people would love a rough night if it meant having a baby in their arms. Lastly, because I don't like social media being used to complain. In that same breath I also don't like when things appear perfect on social media. So here I am not being perfect and that's just life. So..... about last night. She went to bed later than usual but fell asleep just fine. She woke up a few times in the night crying,  I can't remember the last time that has happened. It seemed she was having a bad dream or something. She needed some cuddle and then back to bed. Even with her late bedtime and middle of the night wake ups, she still woke up at the exact same time this morning. The part that was actually hard for me was not her waking up but her alarm waking me up. Her alarm went off over 15 times last night and each time I would wake up to check on her, it would be back in the normal range. I never was able to see how far her oxygen was dipping or if the alarm was just malfunctioning. Each time I would check her cannula and her positioning and they would be fine. So I don't know why she was having so much trouble. It's actually been happening quite a bit this week. I've been frustrated and tired all week and wondering why my baby can't breathe. We have an appointment Monday and I hope we can get some answers. Even with such little sleep for her she was still as happy as could be today but she did fall asleep 3 hours early tonight. She is supposed to start CPAP soon but I am praying she grows out of her oxygen issues very soon. I am so ready to ditch all this equipment. I hear ringing in my head all day long. #imgoingtobednow #shesthebest #oxygenproblems #theluckyfew #ilovemygirl #upsyndrome
This beauty needs her sleep and so do this beauty's parents. Last night was rough. I don't post often about the rough days for a few reasons. First, we don't have many of them. Second, I know many people would love a rough night if it meant having a baby in their arms. Lastly, because I don't like social media being used to complain. In that same breath I also don't like when things appear perfect on social media. So here I am not being perfect and that's just life. So..... about last night. She went to bed later than usual but fell asleep just fine. She woke up a few times in the night crying, I can't remember the last time that has happened. It seemed she was having a bad dream or something. She needed some cuddle and then back to bed. Even with her late bedtime and middle of the night wake ups, she still woke up at the exact same time this morning. The part that was actually hard for me was not her waking up but her alarm waking me up. Her alarm went off over 15 times last night and each time I would wake up to check on her, it would be back in the normal range. I never was able to see how far her oxygen was dipping or if the alarm was just malfunctioning. Each time I would check her cannula and her positioning and they would be fine. So I don't know why she was having so much trouble. It's actually been happening quite a bit this week. I've been frustrated and tired all week and wondering why my baby can't breathe. We have an appointment Monday and I hope we can get some answers. Even with such little sleep for her she was still as happy as could be today but she did fall asleep 3 hours early tonight. She is supposed to start CPAP soon but I am praying she grows out of her oxygen issues very soon. I am so ready to ditch all this equipment. I hear ringing in my head all day long. #imgoingtobednow  #shesthebest  #oxygenproblems  #theluckyfew  #ilovemygirl  #upsyndrome 
19th Annual Buddy Walk! Morgan, you are my world! I love you sweet girl ♥️ #downsyndrome #ds #nothingdownabouther #nothingdownaboutit #changingthefaceofbeauty #ctfob #buddywalk2017
How sweet is she!! Izzy isn't feeling very good today and running a fever. 😟 Yesterday our little trooper got 3 shots and isn't her chipper self but she sure is cute!!
A trip to #mcdonalds for some "fies" sure did help. 😉 Now it's naptime and praying for a little relief for our angel. .
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Bow @twolittleladies11 TLLFRIENDS 
Dress @matildajaneclthing
Necklace @aubreysbeadcloset .
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#minifashionblogger #ministyleicons #minimodelfeatures #bonnet #smile #teamizzy #dsawareness #alopeciaawareness #alopecia #fashionkidsworldwide #fashiondiaries #modernkidsmodel #ctfob #morealikethandifferent #overcomer #daretobedifferent #love #yellow #ladybug #butterfly
How sweet is she!! Izzy isn't feeling very good today and running a fever. 😟 Yesterday our little trooper got 3 shots and isn't her chipper self but she sure is cute!! A trip to #mcdonalds  for some "fies" sure did help. 😉 Now it's naptime and praying for a little relief for our angel. . . . Bow @twolittleladies11 TLLFRIENDS Dress @matildajaneclthing Necklace @aubreysbeadcloset . . . . #minifashionblogger  #ministyleicons  #minimodelfeatures  #bonnet  #smile  #teamizzy  #dsawareness  #alopeciaawareness  #alopecia  #fashionkidsworldwide  #fashiondiaries  #modernkidsmodel  #ctfob  #morealikethandifferent  #overcomer  #daretobedifferent  #love  #yellow  #ladybug  #butterfly 
🌿💚🖤🌳💚🖤🌿 #camo #army #roleplay #imagination #play #love #lp #ctfob #dwarfism #cutie
The best UNO partner ❤️ #rockorocks
💛 Love these 2 babes 💜 Shop these styles and more in our new Fall🍂 colors! 
Don't see what you're dreaming☁️ of? Message us! We love to be inspired by custom orders♥️♥️♥️ @desireedibuono @mdibuono777 @nothingdownaboutmyah .
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Link to shop in bio 💕
. @honeydewdesignco 👒
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#crochetbowhat #crochethat #babybeanie #babygirl #babylove #girlstyle #newbornphotoprops #toddlerfashion #toddlerwear #backtoschoolstyle #momlife #tweenfashion #mommytobe #mommyblogger #babyshower #daddyslittlegirl #dadtobe #likeforlike #makerlife #etsyseller #shopsmall #newbrand #ctfob #inclusion #beautyindiversity #grateful #honeydewdesignco
💛 Love these 2 babes 💜 Shop these styles and more in our new Fall🍂 colors! Don't see what you're dreaming☁️ of? Message us! We love to be inspired by custom orders♥️♥️♥️ @desireedibuono @mdibuono777 @nothingdownaboutmyah . . . Link to shop in bio 💕 . @honeydewdesignco 👒 . . #crochetbowhat  #crochethat  #babybeanie  #babygirl  #babylove  #girlstyle  #newbornphotoprops  #toddlerfashion  #toddlerwear  #backtoschoolstyle  #momlife  #tweenfashion  #mommytobe  #mommyblogger  #babyshower  #daddyslittlegirl  #dadtobe  #likeforlike  #makerlife  #etsyseller  #shopsmall  #newbrand  #ctfob  #inclusion  #beautyindiversity  #grateful  #honeydewdesignco 
We had Ivy's last doctor appointment before the move and unfortunately we have added another doctor to the mix- a neurosurgeon. After looking at the MRI results from last month, it looks like Ivy will need surgery on her spinal cord after all. Definitely not the news we wanted but we are taking it in stride. Next step is to find a great neurosurgeon in Atlanta to take care of this sweetie pie in the next couple months. Thank you everyone for the prayers for our baby girl! #turnersyndrome #theyearofivy #ctfob #tetheredcord #modelbaby
We had Ivy's last doctor appointment before the move and unfortunately we have added another doctor to the mix- a neurosurgeon. After looking at the MRI results from last month, it looks like Ivy will need surgery on her spinal cord after all. Definitely not the news we wanted but we are taking it in stride. Next step is to find a great neurosurgeon in Atlanta to take care of this sweetie pie in the next couple months. Thank you everyone for the prayers for our baby girl! #turnersyndrome  #theyearofivy  #ctfob  #tetheredcord  #modelbaby 
#tbt to a few weeks ago visiting grandpa and riding dirt bikes. ...
MBT had a hard time walking when he was small and an even harder time running but the first time he got on a #dirtbike I saw something click and it was beautiful. ...
I was able to see him when he realized that he was "naturally good" at something. He didn't need years of therapy to achieve the skills to move this machine, he just made it happen. ...
I love the #confidence that he has on his dirt bike and that fact that he doesn't let #cerebralpalsy define or limit him. 
#cpawareness #cerebralpalsyawareness #dirtbikerider #mbtracing #limitless #changingthefaceofbeauty #ctfob
#tbt  to a few weeks ago visiting grandpa and riding dirt bikes. ... MBT had a hard time walking when he was small and an even harder time running but the first time he got on a #dirtbike  I saw something click and it was beautiful. ... I was able to see him when he realized that he was "naturally good" at something. He didn't need years of therapy to achieve the skills to move this machine, he just made it happen. ... I love the #confidence  that he has on his dirt bike and that fact that he doesn't let #cerebralpalsy  define or limit him. #cpawareness  #cerebralpalsyawareness  #dirtbikerider  #mbtracing  #limitless  #changingthefaceofbeauty  #ctfob 
We are doing our first buddy walk this year 💙💛 We are Kadens biggest advocates, and advocates for every child and adult with Down syndrome.  @1perezz
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We want to raise some money for our Down Syndrome Association. We have set a goal of $400. Do you think you can please help our DS tribe? Every dollar counts. Our team name is " Nothing Down About It" (because there isn't 😉) . Our link is in the bio.
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#skiponthepumpkinlatte #helpus #dsa #upsyndrome #homiewithanextrachromie #LIFEisbetterwithyou  #downsyndromeawareness #nothingdownaboutit #downsyndrome
#t21 #theluckyfew #dsdn #ctfob #rockingthatextrachromosone #designergenes #itsjustanextrachromosone
We are doing our first buddy walk this year 💙💛 We are Kadens biggest advocates, and advocates for every child and adult with Down syndrome. @1perezz . . We want to raise some money for our Down Syndrome Association. We have set a goal of $400. Do you think you can please help our DS tribe? Every dollar counts. Our team name is " Nothing Down About It" (because there isn't 😉) . Our link is in the bio. . . #skiponthepumpkinlatte  #helpus  #dsa  #upsyndrome  #homiewithanextrachromie  #LIFEisbetterwithyou  #downsyndromeawareness  #nothingdownaboutit  #downsyndrome  #t21  #theluckyfew  #dsdn  #ctfob  #rockingthatextrachromosone  #designergenes  #itsjustanextrachromosone 
Lila saw her cardiologist today and did great! There are no concerns right now and her murmur sounds like her small hole is getting smaller. 🙌🏻 His guess is she will never need a procedure on either hole! No echo today, just an EKG. We go back in 3 months and will maybe do an echo to check out her aorta. So happy! ❤️😄 Also, if you are planning on being one of Lila's Lucky Charms on 10/1 tomorrow is the last day registration is $5. It will be $10 after that! 💜🍀 #theluckyfew #LifeIsBetterWithYou #nothingdownabouther #dsdn #CTFOB
Lila saw her cardiologist today and did great! There are no concerns right now and her murmur sounds like her small hole is getting smaller. 🙌🏻 His guess is she will never need a procedure on either hole! No echo today, just an EKG. We go back in 3 months and will maybe do an echo to check out her aorta. So happy! ❤️😄 Also, if you are planning on being one of Lila's Lucky Charms on 10/1 tomorrow is the last day registration is $5. It will be $10 after that! 💜🍀 #theluckyfew  #LifeIsBetterWithYou  #nothingdownabouther  #dsdn  #CTFOB