All the new stuff at Pitupi.se will be well worth the wait 🍄Read about production of these items and more in this week's blog post, link in bio! (+More sneak peek pics)
It's short sleeves and bonnet season! We have been loving the sunshine and warm weather today.
Last night was a looong night. Maeve cried and cried (extremely unlike her), which culminated in a 3am phone call to the Waikids team and me and Chris spending an hour trying to catch a sterile urine sample 🙄. Anything to avoid ED! Lucky she's so cute ❤
Today is a day of great celebration! Today is Izzy's 3 year Heartiversary!! Thanks to Facebook, I was able to read my thoughts from that day...a day I will never forget.
September 22, 2014...
Isabella went back for surgery at 8:03. They said the operation could take between 4-6 hrs. They will be calling me with updates throughout the morning.
Handing her over to the Dr was the hardest thing I've ever done. But I envisioned that it was Jesus' hands I placed her in. Thank you all for your support and prayers over the past 2 1/2 months. "I will lie down in peace, and sleep; for You alone, O Lord, make me dwell in safety." Psalm 4:8
10 hrs later....
I thought I had prepared myself for what I would see when I walked in Isabella's room, but I don't think any amount of preparation can make it an easy sight to see. Although her surgery went very well, she is struggling now. They are having difficulty keeping her sedated. She can't cry because of the breathing tube, but you can see the tears in her eyes. It is heartbreaking to say the least. Her blood pressure is high and she has a blood sugar of 358 and carbon dioxide levels are also high.
The doctors told me the next 24 hours will be critical. They are watching her very close and her nurse is in the room at all times.
3 years later and look at her!! She proved them all wrong then and she will continue to show the world that she is a warrior, a world changer and a blessing to ALL!! #LifeIsBetterWithYou#teamizzy#dsawareness#alopeciaawareness#heartwarrior#chd
We've loved being part of @alilsomethingextra321!! Quality of shirts are great and the designs are unique! Always a conversation starter when we wear them out! 💙💛 we would LOVE to be part of the team again! #alilsomethingextrarepsearch
WE'RE OFFERING OUR EDUCATIONAL
PSA FOR FREE!
Hello Changing the Face of Beauty Partners!
We wanted to let YOUR followers in on an amazing opportunity!
Changing the Face of Beauty is offering our Educational PSA Video and Program to schools around the country FOR FREE! Yes! We can not wait any longer to get this message to the future of advertising, and we need your help.
Helping is EASY! All you have to do is:
1.) Share our Educational PSA Program trailer below with all of your friends, family and followers.
2.) Ask them to request that their schools implement the program and educate their students on the importance of inclusion of individuals with disabilities in advertising!
3.) Have anyone who is interested email PSA@changingthefaceofbeauty.org, and request for the Educational PSA Program download link. We will send the link, and they can pass it on to their schools!
So, some of you already know that I have been pretty sick recently; for others I wanted to let you know what's been going on. I was diagnosed with gastroparesis at the beginning of summer and have been struggling with the debilitating symptoms it brings on. I have tried medications and now am looking for other treatment options, however, because the condition is so rare, the out of pocket cost is huge. I am not one to ask for handouts, but unfortunately, my situation is getting quite bad. Due to this, i have started a #GoFundMe to cover upcoming procedure costs. I hope you can spare a few moments to go on the page and read more about what has being going on in my life and maybe give anything you can- be it prayers, donation, or simply a kind word. Thanks for reading, the link is in my bio. ❤
You might be cool, but are you "hanging from a car grip handle, rockin' an extra chromosome, eatin' a homemade chicken taquito in the parking lot of your big bros football practice" cool?! 😎 #EmmettSlade is 😜 #extrachromosomesareextracool
This beauty needs her sleep and so do this beauty's parents. Last night was rough. I don't post often about the rough days for a few reasons. First, we don't have many of them. Second, I know many people would love a rough night if it meant having a baby in their arms. Lastly, because I don't like social media being used to complain. In that same breath I also don't like when things appear perfect on social media. So here I am not being perfect and that's just life. So..... about last night. She went to bed later than usual but fell asleep just fine. She woke up a few times in the night crying, I can't remember the last time that has happened. It seemed she was having a bad dream or something. She needed some cuddle and then back to bed. Even with her late bedtime and middle of the night wake ups, she still woke up at the exact same time this morning. The part that was actually hard for me was not her waking up but her alarm waking me up. Her alarm went off over 15 times last night and each time I would wake up to check on her, it would be back in the normal range. I never was able to see how far her oxygen was dipping or if the alarm was just malfunctioning. Each time I would check her cannula and her positioning and they would be fine. So I don't know why she was having so much trouble. It's actually been happening quite a bit this week. I've been frustrated and tired all week and wondering why my baby can't breathe. We have an appointment Monday and I hope we can get some answers. Even with such little sleep for her she was still as happy as could be today but she did fall asleep 3 hours early tonight. She is supposed to start CPAP soon but I am praying she grows out of her oxygen issues very soon. I am so ready to ditch all this equipment. I hear ringing in my head all day long. #imgoingtobednow#shesthebest#oxygenproblems#theluckyfew#ilovemygirl#upsyndrome
We had Ivy's last doctor appointment before the move and unfortunately we have added another doctor to the mix- a neurosurgeon. After looking at the MRI results from last month, it looks like Ivy will need surgery on her spinal cord after all. Definitely not the news we wanted but we are taking it in stride. Next step is to find a great neurosurgeon in Atlanta to take care of this sweetie pie in the next couple months. Thank you everyone for the prayers for our baby girl! #turnersyndrome#theyearofivy#ctfob#tetheredcord#modelbaby
Lila saw her cardiologist today and did great! There are no concerns right now and her murmur sounds like her small hole is getting smaller. 🙌🏻 His guess is she will never need a procedure on either hole! No echo today, just an EKG. We go back in 3 months and will maybe do an echo to check out her aorta. So happy! ❤️😄 Also, if you are planning on being one of Lila's Lucky Charms on 10/1 tomorrow is the last day registration is $5. It will be $10 after that! 💜🍀 #theluckyfew#LifeIsBetterWithYou#nothingdownabouther#dsdn#CTFOB