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#DSDN medias

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This is not the complete video as Instagram only likes to show 60 seconds and it comes in at 2 minutes and 30 seconds total. But if you go to the link in my profile and visit the blog today you can see the whole beautiful thing, third post down on the blog.

#downrightperfect #dsdn #changethefaceofbeauty #upsyndrome #homiewithanextrachromie #cutebaby #babiesofig #instababies #nothingdownaboutit #lifeisbetterwithyou #t21 #downsyndromeawareness
It makes me sad that he is having teeth problems. .... (but he says no pain) ...i feel for him every time I see that swollen face..... but he is always ready for the next selfie!
#downsyndromeawareness #dsdn #downsyndrome #mamabear #mybaby
We’re getting excited for Christmas around here! #changingthefaceofbeauty #thebackdropshop #carterskids #carters #dsdn
Not much going on today! 
Colton spit up a couple more times, but has been pretty happy playing, bouncing, & sticking his tongue out.

We made the decision to let Hayden spend the night with Grandma & Grandpa so he can have Thanksgiving dinner with them, while Matt & I spend the day together at the hospital with Colton. Unlike Christmas, Hayden doesn't get too excited about Thanksgiving just yet. In fact, he continues to ask when Christmas is ("Is it after Thanksgiving?") & took his Toys R Us catalog to gma's & gpa's when I dropped him off. I love his age & imagination right now!
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#ColtonStrong #tricuspidatresia #hypoplasticrightventricle #tetrologyoffallot #unbalancedavcanal #chd #heartwarrior #hearthero #hirschsprungsdisease  #downsyndrome #downsyndromeawareness #dsdn #trisomy21 #t21 #theluckyfew #downrightperfect #littlebrother #tubie #babieswithglasses #glasses #changingthefaceofbeauty #Thanksgiving #Christmas
Not much going on today! Colton spit up a couple more times, but has been pretty happy playing, bouncing, & sticking his tongue out. We made the decision to let Hayden spend the night with Grandma & Grandpa so he can have Thanksgiving dinner with them, while Matt & I spend the day together at the hospital with Colton. Unlike Christmas, Hayden doesn't get too excited about Thanksgiving just yet. In fact, he continues to ask when Christmas is ("Is it after Thanksgiving?") & took his Toys R Us catalog to gma's & gpa's when I dropped him off. I love his age & imagination right now! . . . . #ColtonStrong  #tricuspidatresia  #hypoplasticrightventricle  #tetrologyoffallot  #unbalancedavcanal  #chd  #heartwarrior  #hearthero  #hirschsprungsdisease   #downsyndrome  #downsyndromeawareness  #dsdn  #trisomy21  #t21  #theluckyfew  #downrightperfect  #littlebrother  #tubie  #babieswithglasses  #glasses  #changingthefaceofbeauty  #Thanksgiving  #Christmas 
Did you know that ALL ages can design a mug?! Harley designed an extra special mug for his grandma today. ❤️
Did you know that ALL ages can design a mug?! Harley designed an extra special mug for his grandma today. ❤️
I am so proud of this lil girl and her progress with walking. Just these couple of weeks we've gone from 4 steps to 6 steps to 20 steps before sitting down. She's such a superstar. .
#downsyndrome #downsyndromeawareness #trisomy21 #mystory #igtoddler #toddler #blueeyes #penelopestrong #progressnotperfection #morealikethandifferent #theluckyfew #lifewithdownsyndrome #dsastx #DSDN #downrightperfect #nothingdownaboutit #walking #practicemakesprogress #proudmom
I am so proud of this lil girl and her progress with walking. Just these couple of weeks we've gone from 4 steps to 6 steps to 20 steps before sitting down. She's such a superstar. . #downsyndrome  #downsyndromeawareness  #trisomy21  #mystory  #igtoddler  #toddler  #blueeyes  #penelopestrong  #progressnotperfection  #morealikethandifferent  #theluckyfew  #lifewithdownsyndrome  #dsastx  #DSDN  #downrightperfect  #nothingdownaboutit  #walking  #practicemakesprogress  #proudmom 
Though Thanksgiving isn't until tomorrow, I just wanted to take time to thank some special people in my life today. As I sit back and reflect on where I was a year ago today, I wouldn't believe it had I not lived it. I was nowhere near walking, shucks I was barely standing. Words were limited to sounds rather than actual words, thank goodness for sign language!! And any and all arts and crafts projects made me run the other way. But here we are a year later and I am humbled at how much has changed thanks to all the amazing therapists that have worked with me week after week, encouraging me to keep pushing myself. To my speech therapist, physical therapist, occupational therapist and horse therapists, thank you for getting me to where I am today so that I can succeed at anything and all I set my mind to. #thankful #blessed #grateful
Though Thanksgiving isn't until tomorrow, I just wanted to take time to thank some special people in my life today. As I sit back and reflect on where I was a year ago today, I wouldn't believe it had I not lived it. I was nowhere near walking, shucks I was barely standing. Words were limited to sounds rather than actual words, thank goodness for sign language!! And any and all arts and crafts projects made me run the other way. But here we are a year later and I am humbled at how much has changed thanks to all the amazing therapists that have worked with me week after week, encouraging me to keep pushing myself. To my speech therapist, physical therapist, occupational therapist and horse therapists, thank you for getting me to where I am today so that I can succeed at anything and all I set my mind to. #thankful  #blessed  #grateful 
"Life is like a game of chess. To win you have to make a move. Knowing which move to make comes with IN-SIGHT and knowledge, and by learning the lessons that are acculated along the way. We become each and every piece within the game called life." ~Allan Rufus
"Life is like a game of chess. To win you have to make a move. Knowing which move to make comes with IN-SIGHT and knowledge, and by learning the lessons that are acculated along the way. We become each and every piece within the game called life." ~Allan Rufus
G saw her cousin Gage kicking his soccer ball around, so she decided to copy him 😊. (We're working on potty-training, that's why she has no pants on 😂)
☆☆☆☆☆☆☆☆☆☆☆☆☆☆☆☆☆
#4 #ds #dsdn #downsyndrome #downsyndromerocks #downsyndromeawareness #littlesis #morealikethandifferent💙💛 #trisomy21 #acceptance #nothingdownaboutit #lovedoesntcountchromosomes #extrachromosomeextracute #21 #theluckyfew
#Repost @tenbazaars -  This outfit was made for this sweet boy Levi! He IS going to move mountains and is already moving hearts ❤ Such a gorgeous little guy and so so loved by his proud momma. We love having this opportunity to help spread awareness for Downsyndrome and embracing children like Levi for the beautiful, loving little people they are 💕 
This kid will definately move mountains!!! 😍
outfit by @tenbazaars ( #📷 @downrightbeautiful_levi )

#fashion #slogan #logo #babysofinsta #cute #outfit #goals #downsyndome #dsdn #downrightperfect #downsyndromeawareness #changingthefaceofbeauty #morealikethandifferent #LIFEisbetterwithyou #t21 #team21 #babyboy #proudmom #cutie #justbaby #sharegoodness #momtobe #mommyprince #brandrep #ootdbaby #candidchildhood #thehappynow #childhoodunplugged
#Repost  @tenbazaars - This outfit was made for this sweet boy Levi! He IS going to move mountains and is already moving hearts ❤ Such a gorgeous little guy and so so loved by his proud momma. We love having this opportunity to help spread awareness for Downsyndrome and embracing children like Levi for the beautiful, loving little people they are 💕 This kid will definately move mountains!!! 😍 outfit by @tenbazaars ( #📷 @downrightbeautiful_levi ) #fashion  #slogan  #logo  #babysofinsta  #cute  #outfit  #goals  #downsyndome  #dsdn  #downrightperfect  #downsyndromeawareness  #changingthefaceofbeauty  #morealikethandifferent  #LIFEisbetterwithyou  #t21  #team21  #babyboy  #proudmom  #cutie  #justbaby  #sharegoodness  #momtobe  #mommyprince  #brandrep  #ootdbaby  #candidchildhood  #thehappynow  #childhoodunplugged 
Oh my goodness..Thanksgiving crafts are my favorite!!
Oh my goodness..Thanksgiving crafts are my favorite!!
We will forever and always be thankful for Myah. Everything we do is for her, she has taught us so much and we wouldn't change her for the world no matter what we are given. Sometimes life gets hard I understand because life is by no means is easy for us. We get through day by day just like everyone else. No one is perfect, but in our eyes Myah is perfect for us down syndrome and all. .
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#321 #extrachromosomeextracute #trisomy21 #t21 #morealikethandifferent #trisomy21love #downsyndrome #downsyndromeawareness #downsyndromelove  #like  #twomommies #twomoms #2moms #downsyndromelove #downrightperfect #nothingdownaboutit #instababy #babiesofinstagram #babieswithstyle #myahnicoleflores #theluckyfew #dsdn #changingthefaceofbeauty #blogger #downmagazine #ctfob #brandrep #momlife #momarazzi
We will forever and always be thankful for Myah. Everything we do is for her, she has taught us so much and we wouldn't change her for the world no matter what we are given. Sometimes life gets hard I understand because life is by no means is easy for us. We get through day by day just like everyone else. No one is perfect, but in our eyes Myah is perfect for us down syndrome and all. . . . . . #321  #extrachromosomeextracute  #trisomy21  #t21  #morealikethandifferent  #trisomy21love  #downsyndrome  #downsyndromeawareness  #downsyndromelove  #like  #twomommies  #twomoms  #2moms  #downsyndromelove  #downrightperfect  #nothingdownaboutit  #instababy  #babiesofinstagram  #babieswithstyle  #myahnicoleflores  #theluckyfew  #dsdn  #changingthefaceofbeauty  #blogger  #downmagazine  #ctfob  #brandrep  #momlife  #momarazzi 
Happy Wednesday friends! 😘
Happy Wednesday friends! 😘
So so ticklish!
So so ticklish!
Super cute and strong 😍🙌🏻 she is leaning on the sofa but her favorite thing to do is push to stand. 💪🏻
Super cute and strong 😍🙌🏻 she is leaning on the sofa but her favorite thing to do is push to stand. 💪🏻
My little copy cat 😸 when I take my sunglasses off, Michael also takes his sunglasses off 😎
My little copy cat 😸 when I take my sunglasses off, Michael also takes his sunglasses off 😎
Still smiling.

Caleb has had a few short spells of being himself today.
Can't wait to have my happy boy back.

We are still in hospital. Caleb has improved but still needing a little oxygen. Fingers crossed for a good night and hopefully get home tomorrow.

#poorly #smileybaby #smileyboy #happyface #hospital #bronchiolitis #oxygen #getwellsoon #missthisface #dsdn #downsyndrome #dsblog #trisomy21 #ourjourney #caleb #bloggingmum #itsonlyanextrachromosome #theluckyfew #normal #nothingdownaboutit #theluckyfew #t21 #winterbug #realmum #clairemorethanjustmum #instablog #instafam #instamum
Still smiling. Caleb has had a few short spells of being himself today. Can't wait to have my happy boy back. We are still in hospital. Caleb has improved but still needing a little oxygen. Fingers crossed for a good night and hopefully get home tomorrow. #poorly  #smileybaby  #smileyboy  #happyface  #hospital  #bronchiolitis  #oxygen  #getwellsoon  #missthisface  #dsdn  #downsyndrome  #dsblog  #trisomy21  #ourjourney  #caleb  #bloggingmum  #itsonlyanextrachromosome  #theluckyfew  #normal  #nothingdownaboutit  #theluckyfew  #t21  #winterbug  #realmum  #clairemorethanjustmum  #instablog  #instafam  #instamum 
Feliz día para todos los psicólogos, en especial para mi mami la psicóloga mamá más intensa e inventora del mundo @marianaemanuel. Igualmente para mi psicóloga @karle24 de @centropsicologia quien felicita a mi mami por su intensidad😂😂😂😂😣 #psicologia #felizdia #pshycology #downsyndrome #sindromededown #t21#trisomy21#trisomia21#cromosomadeamor #t21#downeate#mosaicdownsyndrome #downsyndromeawareness #downsyndromerocks #downsyndromelove#UpWithDown #lawsyndrome #specialneeds #dsdn #changingthefaceofbeauty #downrightperfect #gordinchi
Feliz día para todos los psicólogos, en especial para mi mami la psicóloga mamá más intensa e inventora del mundo @marianaemanuel. Igualmente para mi psicóloga @karle24 de @centropsicologia quien felicita a mi mami por su intensidad😂😂😂😂😣 #psicologia  #felizdia  #pshycology  #downsyndrome  #sindromededown  #t21 #trisomy21 #trisomia21 #cromosomadeamor  #t21 #downeate #mosaicdownsyndrome  #downsyndromeawareness  #downsyndromerocks  #downsyndromelove #UpWithDown  #lawsyndrome  #specialneeds  #dsdn  #changingthefaceofbeauty  #downrightperfect  #gordinchi 
Never ceases to amaze. 
If you think I could get her to sit after the rush of standing without mom you’d be sorely mistaken. 
#standbyme #leanback #getupstandup 
#theluckyfew #downsyndrome #trisomy21 #dsdn
simple perfection ❤️
simple perfection ❤️
I mean can she be any cuter?? 😍🖤👶🏼 #nothingdownabouther #dsdn #downrightperfect #downwithadley #purehappiness
🎀 Shopping with this little doll is the best!  We end up having a giggle fest while dressing her in the cutest hat from the store! ✨💖✨#sweetbaby #prettygirl #luckyfew #downsyndrome #morealikethandifferent #trisomy21 #downsyndromeawareness #nothingdownaboutit #upwithdown #changingthefaceofbeauty #babiesofinstagram #dsdn #downsyndromelove #parenthood #momlife #kidsofinstagram #littlesister #momtogs #motherhood #filambaby #littlewarrior #dollface #happybaby #mylittleKaya #kayangKaya #meijer @meijerstores
🎀 Shopping with this little doll is the best! We end up having a giggle fest while dressing her in the cutest hat from the store! ✨💖✨#sweetbaby  #prettygirl  #luckyfew  #downsyndrome  #morealikethandifferent  #trisomy21  #downsyndromeawareness  #nothingdownaboutit  #upwithdown  #changingthefaceofbeauty  #babiesofinstagram  #dsdn  #downsyndromelove  #parenthood  #momlife  #kidsofinstagram  #littlesister  #momtogs  #motherhood  #filambaby  #littlewarrior  #dollface  #happybaby  #mylittleKaya  #kayangKaya  #meijer  @meijerstores
This is honestly one of my most favorite things my bean does. Daisy is so curious, and wants to know what is going on, in every moment and in every dimension 😂❤🌈 She talks to the baby in the mirror, and watches us from her mirror too. #dsdn #nothingdownaboutit #curiouslikeacat #mybean
This is honestly one of my most favorite things my bean does. Daisy is so curious, and wants to know what is going on, in every moment and in every dimension 😂❤🌈 She talks to the baby in the mirror, and watches us from her mirror too. #dsdn  #nothingdownaboutit  #curiouslikeacat  #mybean 
Be still my beating heart.  17 months old today.  Zane is enjoying his nap time like a big boy.  #boss #naptime #relaxing #toddlerlife #downsyndrome #dsdn #dreaming #downsyndromecutie @zanes__dad
Missing that nice fall weather we were having. Back in the 90s this week 😒#noahsbigadventure #bean #morealikethandifferent #brothers #lifeisbetterwithyou #downsyndromelove #t21 #dsdn #theluckyfew
Getting some writing done.. hopefully a new blog entry. Fingers crossed 🤞
#blogger 
#bloggermom
#dsdn
#happywriting
https://livelifelakshsize.blogspot.com/?m=1
It’s been one of those days... Taking Reagan out is almost like moving. She requires so much more than I was used to with Jack... I got her in the car finally, and yep. The car wouldn’t start. 🤦🏻‍♀️ Rea is screaming in the backseat and I’m reading the manual/on the phone with Wes trying to figure it out. Only to realize it’s more than likely the battery. We start to go back inside to wait for Nonna to pick us up, and I spilled her milk outside everywhere. By that point, I was fed up, and cried. Literally crying over spilled milk. All my fellow pumping moms can definitely relate. Now, we are on our way for Rea to get her blood drawn, which is always a horrible experience for her. We could use all the good vibes for a better afternoon. ❤️
It’s been one of those days... Taking Reagan out is almost like moving. She requires so much more than I was used to with Jack... I got her in the car finally, and yep. The car wouldn’t start. 🤦🏻‍♀️ Rea is screaming in the backseat and I’m reading the manual/on the phone with Wes trying to figure it out. Only to realize it’s more than likely the battery. We start to go back inside to wait for Nonna to pick us up, and I spilled her milk outside everywhere. By that point, I was fed up, and cried. Literally crying over spilled milk. All my fellow pumping moms can definitely relate. Now, we are on our way for Rea to get her blood drawn, which is always a horrible experience for her. We could use all the good vibes for a better afternoon. ❤️
First morning smile in a while! Ryder saw the Dr. yesterday. His strep test was negative but they still think that's what he has. Hopefully he will stay on the up and we don't have to miss Thanksgiving ❤. .
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#downsyndromeawareness #downrightadorable #nothingdownaboutit #t21 #downsyndromelove #upsyndrome #igbabies #instababy #t21rocksss #theluckyfew #morealikethandifferent  #prayforryder #myhero #downsyndromerocks #babiesofig #downsyndrome #babiesofinstagram  #kidsgetcancertoo #lifewithds #trisomy21 #dsdn #photooftheday #changingthefaceofbeauty #happy #ryderstrong  #rockinit #rockthet21
First morning smile in a while! Ryder saw the Dr. yesterday. His strep test was negative but they still think that's what he has. Hopefully he will stay on the up and we don't have to miss Thanksgiving ❤. . . . #downsyndromeawareness  #downrightadorable  #nothingdownaboutit  #t21  #downsyndromelove  #upsyndrome  #igbabies  #instababy  #t21rocksss  #theluckyfew  #morealikethandifferent   #prayforryder  #myhero  #downsyndromerocks  #babiesofig  #downsyndrome  #babiesofinstagram   #kidsgetcancertoo  #lifewithds  #trisomy21  #dsdn  #photooftheday  #changingthefaceofbeauty  #happy  #ryderstrong   #rockinit  #rockthet21 
Mom sent me back with the surgeons so they can "scope" out my lungs and airway. Hopefully after this we'll be done with procedures and appointments for a while. #1inamillieann #arewedoneyet? #dsawareness #theluckyfew #nothingdownaboutit #chdwarrior #eatef #dsdn #myheartkid
#Repost @alilsomethingextra321 (@get_repost)
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🎉33% off t-shirts🎉 33 days until Christmas and 33 just happens to be my lucky number❤️ To celebrate we are offering 33% off all t-shirts, today only! So hurry, because this may just be better than Black Friday! Use code: 33days (at checkout) Link in profile👆🏻📷 @ladypositive .
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#alilsomethingextra #ds #t21 #321 #downsyndrome  #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeiabetterwithyou #nothingdownaboutit #homiewithanextrachromies #t21awareness #rockthe21 #rockin #rockinit #shouttheirworth #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks
#downrightperfect #deal
#Repost  @alilsomethingextra321 (@get_repost) ・・・ 🎉33% off t-shirts🎉 33 days until Christmas and 33 just happens to be my lucky number❤️ To celebrate we are offering 33% off all t-shirts, today only! So hurry, because this may just be better than Black Friday! Use code: 33days (at checkout) Link in profile👆🏻📷 @ladypositive . . . #alilsomethingextra  #ds  #t21  #321  #downsyndrome  #upsyndrome  #theluckyfew  #morealikethandifferent  #changingthefaceofbeauty  #t21love  #lifeiabetterwithyou  #nothingdownaboutit  #homiewithanextrachromies  #t21awareness  #rockthe21  #rockin  #rockinit  #shouttheirworth  #photooftheday  #dsdn  #dsrocks  #downsyndromeawareness  #teamds  #downsyndromelove  #extrachromosome  #specialneeds  #downsyndromerocks  #downrightperfect  #deal 
Check out this sale going on @alilsomethingextra321 ! 
#Repost @alilsomethingextra321 (@get_repost)
・・・
🎉33% off t-shirts🎉 33 days until Christmas and 33 just happens to be my lucky number❤️ To celebrate we are offering 33% off all t-shirts, today only! So hurry, because this may just be better than Black Friday! Use code: 33days (at checkout) Link in profile👆🏻📷 @ladypositive .
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#alilsomethingextra #ds #t21 #321 #downsyndrome  #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeiabetterwithyou #nothingdownaboutit #homiewithanextrachromies #t21awareness #rockthe21 #rockin #rockinit #shouttheirworth #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks
#downrightperfect #deal
Check out this sale going on @alilsomethingextra321 ! #Repost  @alilsomethingextra321 (@get_repost) ・・・ 🎉33% off t-shirts🎉 33 days until Christmas and 33 just happens to be my lucky number❤️ To celebrate we are offering 33% off all t-shirts, today only! So hurry, because this may just be better than Black Friday! Use code: 33days (at checkout) Link in profile👆🏻📷 @ladypositive . . . #alilsomethingextra  #ds  #t21  #321  #downsyndrome  #upsyndrome  #theluckyfew  #morealikethandifferent  #changingthefaceofbeauty  #t21love  #lifeiabetterwithyou  #nothingdownaboutit  #homiewithanextrachromies  #t21awareness  #rockthe21  #rockin  #rockinit  #shouttheirworth  #photooftheday  #dsdn  #dsrocks  #downsyndromeawareness  #teamds  #downsyndromelove  #extrachromosome  #specialneeds  #downsyndromerocks  #downrightperfect  #deal 
🎉33% off t-shirts🎉 33 days until Christmas and 33 just happens to be my lucky number❤️ To celebrate we are offering 33% off all t-shirts, today only! So hurry, because this may just be better than Black Friday! Use code: 33days (at checkout) Link in profile👆🏻📷 @ladypositive .
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#alilsomethingextra #ds #t21 #321 #downsyndrome  #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeiabetterwithyou #nothingdownaboutit #homiewithanextrachromies #t21awareness #rockthe21 #rockin #rockinit #shouttheirworth #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks
#downrightperfect #deal
🎉33% off t-shirts🎉 33 days until Christmas and 33 just happens to be my lucky number❤️ To celebrate we are offering 33% off all t-shirts, today only! So hurry, because this may just be better than Black Friday! Use code: 33days (at checkout) Link in profile👆🏻📷 @ladypositive . . . #alilsomethingextra  #ds  #t21  #321  #downsyndrome  #upsyndrome  #theluckyfew  #morealikethandifferent  #changingthefaceofbeauty  #t21love  #lifeiabetterwithyou  #nothingdownaboutit  #homiewithanextrachromies  #t21awareness  #rockthe21  #rockin  #rockinit  #shouttheirworth  #photooftheday  #dsdn  #dsrocks  #downsyndromeawareness  #teamds  #downsyndromelove  #extrachromosome  #specialneeds  #downsyndromerocks  #downrightperfect  #deal 
I’m going to say he gets that “rhythm” from his father 😂
I’m going to say he gets that “rhythm” from his father 😂
Doctors appointments really take it out of this girl. She doesn’t particularly love being poked and prodded. We need her itty bitty ear canals to grow. As of now the right is about 2.5mm and the left is even smaller. The smallest tool for them to even look in her ear is 2.7mm and the smallest tubes they make are 3.1mm. They assume this is why she can’t pass her hearing tests. All we can do now is pray for growth and wait to recheck. 
#theluckyfew #nothingdownaboutit #lifeisbetterwithyou #lovedoesntcountchromosomes #t21 #trisomy21 #downsyndrome #downsyndromeawareness #dsdn #morealikethandifferent
Doctors appointments really take it out of this girl. She doesn’t particularly love being poked and prodded. We need her itty bitty ear canals to grow. As of now the right is about 2.5mm and the left is even smaller. The smallest tool for them to even look in her ear is 2.7mm and the smallest tubes they make are 3.1mm. They assume this is why she can’t pass her hearing tests. All we can do now is pray for growth and wait to recheck. #theluckyfew  #nothingdownaboutit  #lifeisbetterwithyou  #lovedoesntcountchromosomes  #t21  #trisomy21  #downsyndrome  #downsyndromeawareness  #dsdn  #morealikethandifferent 
We're at our cousin's house for Thanksgiving, and it looks like she found the cars! It's great that she's learning to play by herself 😙
☆☆☆☆☆☆☆☆☆☆☆☆☆☆☆☆☆
#4 #ds #dsdn #downsyndrome #downsyndromerocks #downsyndromeawareness #littlesis #morealikethandifferent💙💛 #trisomy21 #acceptance #nothingdownaboutit #lovedoesntcountchromosomes #extrachromosomeextracute #21 #theluckyfew #happythanksgiving
i can’t believe it! olivia rose turns #one today! gosh she sure has been through some serious trials and tribulations but as you can see, she has just grown up to be the absolute most perfect thing to ever have happen to us! 
olivia is incredibly interactive and loves to jump, scoot for toys, reaches and grabs anything and everything, goes from tummy to sitting up unassisted, can do splits for days like her sister, hates her car seat, but enjoys car rides, and is such a chatterbug. she loves her brother and sister and is excited to have them all week for their thanksgiving break! 
today, we celebrate you babygirl! 
and a serious thank you to @misssammyjane for capturing every cute moment that it was so hard to decide what to post.
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#firstbirthday #happybirthday #babygirl #missoliviarose #daughter #caketime #dsdn #t21 #downsyndrome #ds #trisomy21 #thelittlestwarrior #theluckyfew #aintnothingdownaboutit #upsyndrome #love #sweetestface #happybaby #gerberbaby #carterbaby #oshkoshkids
i can’t believe it! olivia rose turns #one  today! gosh she sure has been through some serious trials and tribulations but as you can see, she has just grown up to be the absolute most perfect thing to ever have happen to us! olivia is incredibly interactive and loves to jump, scoot for toys, reaches and grabs anything and everything, goes from tummy to sitting up unassisted, can do splits for days like her sister, hates her car seat, but enjoys car rides, and is such a chatterbug. she loves her brother and sister and is excited to have them all week for their thanksgiving break! today, we celebrate you babygirl! and a serious thank you to @misssammyjane for capturing every cute moment that it was so hard to decide what to post. • • • #firstbirthday  #happybirthday  #babygirl  #missoliviarose  #daughter  #caketime  #dsdn  #t21  #downsyndrome  #ds  #trisomy21  #thelittlestwarrior  #theluckyfew  #aintnothingdownaboutit  #upsyndrome  #love  #sweetestface  #happybaby  #gerberbaby  #carterbaby  #oshkoshkids 
oh, his sweet baby face.
oh, his sweet baby face.
I hope you’re getting you’re turkey all ready! Throwing it back to my boy’s last two Thanksgivings! Love looking at that little butterball! He’s really thinning out and looking much older lately, so bittersweet! .
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#simonsunshine #dsblessed #downsyndromecutie #dsdn #t21 #thankful #downsyndromemodel #goodenoughtoeat
It is with great regret and some sadness I must inform you, Evie Love has stopped sticking her tongue out at us on the reg. 😩 Despite our best efforts to keep up her wildly inappropriate and hilarious behavior, her speech therapist and teachers are just too good. Sadly... they lovingly encourage Evie to be “sweet”, instead. 🙄 It’s like they don’t even care about Evie’s social media game.
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PLEASE LIKE and FOLLOW !!!
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou
It is with great regret and some sadness I must inform you, Evie Love has stopped sticking her tongue out at us on the reg. 😩 Despite our best efforts to keep up her wildly inappropriate and hilarious behavior, her speech therapist and teachers are just too good. Sadly... they lovingly encourage Evie to be “sweet”, instead. 🙄 It’s like they don’t even care about Evie’s social media game. • PLEASE LIKE and FOLLOW !!! • #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou 
This song and dance parties👌 a few of our favorite things. #thankfulnovember
Otra persona que ha formado parte de mi desarrollo integral es @idalbadugarte luego de varios meses apoyando a mi madre en la distancia (ella está en Valencia) tuve la oportunidad de ir a visitarla. Gracias Idalia porque aún contribuyes en mi neurodesarrollo. Pueden contactarla ya que da consultas on line y es un ser humano maravilloso. #gracias.

#gratitud #nuerodesarrollo #downsyndrome #sindromededown #t21#trisomy21#trisomia21#cromosomadeamor #t21#downeate#mosaicdownsyndrome #downsyndromeawareness #downsyndromerocks #downsyndromelove#UpWithDown #lawsyndrome #specialneeds #dsdn #changingthefaceofbeauty
Otra persona que ha formado parte de mi desarrollo integral es @idalbadugarte luego de varios meses apoyando a mi madre en la distancia (ella está en Valencia) tuve la oportunidad de ir a visitarla. Gracias Idalia porque aún contribuyes en mi neurodesarrollo. Pueden contactarla ya que da consultas on line y es un ser humano maravilloso. #gracias . #gratitud  #nuerodesarrollo  #downsyndrome  #sindromededown  #t21 #trisomy21 #trisomia21 #cromosomadeamor  #t21 #downeate #mosaicdownsyndrome  #downsyndromeawareness  #downsyndromerocks  #downsyndromelove #UpWithDown  #lawsyndrome  #specialneeds  #dsdn  #changingthefaceofbeauty 
Wednesday morning means I have some time with this warrior. A moment of slow-living, joy, easy going. Enjoying small steps  which in fact are huge steps. And putting socks back on 10 times an hour. Thanks Victor Judah for choosing me as your dad 😁 #victorjudah #downsyndrome #nothingdownaboutit #enjoythelittlethings  #dsdn #dadlife #slowliving
So...I wrote a little letter to Beyoncé...😊
So...I wrote a little letter to Beyoncé...😊
Tank is helping with the echo... right?!? Today we were back up with our friends at CHLA for a cardio checkup, anti Xa (blood thinner) level and nutritionist appointment. He totally rocked them all!!! His anti Xa came back low, so we are waiting instructions with this. That was really the only low point. We have approval to fortify his feeds to 22 cal (he has been up to 27 before) to assist with the amount of volume. His echo came back pretty clean, with just some elevation in pressure on the right side. We have started to drop the amount of lasix to once a day, effective immediately. In about 3 weeks we can take them off completely... assuming we see no changes. Best part, no cardiologist appointment for 3 months!!!!!!!! How cool is that??? He is doing that well.  Oh and he weighed in at a whopping 15 lbs 2 oz! The day after all of the strokes occurred we were told we would be lucky to be home in time for Thanksgiving. I could never have guessed we would have made so much progress in such a short amount of time. We are forever grateful and thankful for the team at CHLA for getting him to this point.  #tankstrong #mysonhassuperpowers
Tank is helping with the echo... right?!? Today we were back up with our friends at CHLA for a cardio checkup, anti Xa (blood thinner) level and nutritionist appointment. He totally rocked them all!!! His anti Xa came back low, so we are waiting instructions with this. That was really the only low point. We have approval to fortify his feeds to 22 cal (he has been up to 27 before) to assist with the amount of volume. His echo came back pretty clean, with just some elevation in pressure on the right side. We have started to drop the amount of lasix to once a day, effective immediately. In about 3 weeks we can take them off completely... assuming we see no changes. Best part, no cardiologist appointment for 3 months!!!!!!!! How cool is that??? He is doing that well. Oh and he weighed in at a whopping 15 lbs 2 oz! The day after all of the strokes occurred we were told we would be lucky to be home in time for Thanksgiving. I could never have guessed we would have made so much progress in such a short amount of time. We are forever grateful and thankful for the team at CHLA for getting him to this point. #tankstrong  #mysonhassuperpowers 
Does your ice cream make you this happy?  Too bad milk is mean to his tummy and this all he can have. Video credit goes to @zanes__dad #creamistry #icecream #baby-boy #happy #downsyndromeawareness #dsdn #t21 #toddlerlife #delish
Weighing a whopping 14.8 pounds at her 18 month check up landed us a referral to a gastroenterologist. We will have to wait until January to see how that goes 🤞🏻. But besides the issue of no weight gain (again) she is a healthy, active toddler. Also a teething toddler at that, finally! She made it worth the wait too, by cutting three teeth at the same time 😳! #toddlerlife#mysweetgirl#alinamae#18months #mommieslittlegirl#everythingwillbealright #theluckyfew#downsyndromelove#dsdn #extrachromosomeextralove#t21
Weighing a whopping 14.8 pounds at her 18 month check up landed us a referral to a gastroenterologist. We will have to wait until January to see how that goes 🤞🏻. But besides the issue of no weight gain (again) she is a healthy, active toddler. Also a teething toddler at that, finally! She made it worth the wait too, by cutting three teeth at the same time 😳! #toddlerlife #mysweetgirl #alinamae #18months  #mommieslittlegirl #everythingwillbealright  #theluckyfew #downsyndromelove #dsdn  #extrachromosomeextralove #t21 
I told her Thanksgiving is this week. She’s pretty excited! #foodie #slomo #excited #dsdn #everlyrae
To think that for over a year we missed out on this special bath time.  Love these little moments. #alexstrong #dsdn #bathnight
To think that for over a year we missed out on this special bath time. Love these little moments. #alexstrong  #dsdn  #bathnight 
Psssst!!! Yeah, I’m talking to you...
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If you make purchases from Shutterfly (i.e. holiday cards) this holiday season, start using this link and 13% of your purchase price will go to @ndssorg .
Here’s the link: 
ndss.shutterflystorefront.com .
NDSS is the National Down Syndrome Society...THE human rights organization for folks with a Down Syndrome diagnosis.
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 #downsyndrome #DSDN #link #donate #shutterfly #holidaycard #ndss #321 #GetTheJobDone #over40runner #arkansas #littlerock #arkansasrunner #dogood #buddywalk #give #thanksgiving #gratitude
Psssst!!! Yeah, I’m talking to you... . If you make purchases from Shutterfly (i.e. holiday cards) this holiday season, start using this link and 13% of your purchase price will go to @ndssorg . Here’s the link: ndss.shutterflystorefront.com . NDSS is the National Down Syndrome Society...THE human rights organization for folks with a Down Syndrome diagnosis. . #downsyndrome  #DSDN  #link  #donate  #shutterfly  #holidaycard  #ndss  #321  #GetTheJobDone  #over40runner  #arkansas  #littlerock  #arkansasrunner  #dogood  #buddywalk  #give  #thanksgiving  #gratitude 
If your local Down syndrome organization provides resources to new parents, have you shared our FREE brochures with them? http://bit.ly/1FN7woy #dsdn #downsyndromeawareness #downsyndrome
Give it a couple minutes and she will have the blanket kicked off, be flipped around and on the other side of the crib... this girl is such a wiggle worm! Thanks @amandamedhus for the best little blanket. .
#downsyndrome #downrightperfect #theluckyfew #dsdn #homiewithanextrachromie #uniquelyperfect #nothingdownaboutit #beautifulconditions #ssparents #lifeisbetterwithyou #upsyndrome  #t21 #fearfullyandwonderfullymade
We started our yearly thanksgiving tradition which Vickie and I have done  together for the last 5 years. Now we get to take our gurls!! It’s a long long drive 10 hours!! Here is Rio at our pit stop last night! She loves books now and when you hand them to her she says “my book” so cute!! #downsyndrome #blindbaby #downsyndromeawareness #theluckyfew #dsdn #raisingrio #littlewarrior #t21 #t21rocks #changingthefaceofbeauty #babyrio #specialneeds #appliedbehavioranalysis #aba #behavioranalysis #visionimpaired #upsyndrome #nothingdownaboutit #samesexparents #twomoms #twomommies
We started our yearly thanksgiving tradition which Vickie and I have done together for the last 5 years. Now we get to take our gurls!! It’s a long long drive 10 hours!! Here is Rio at our pit stop last night! She loves books now and when you hand them to her she says “my book” so cute!! #downsyndrome  #blindbaby  #downsyndromeawareness  #theluckyfew  #dsdn  #raisingrio  #littlewarrior  #t21  #t21rocks  #changingthefaceofbeauty  #babyrio  #specialneeds  #appliedbehavioranalysis  #aba  #behavioranalysis  #visionimpaired  #upsyndrome  #nothingdownaboutit  #samesexparents  #twomoms  #twomommies 
No changes at rounds today! Still monitoring diuretics & electrolytes.

Today, we had a surgery consult. We've been trying desperately all year to heal his raw intestine & fissures with no luck. Hopefully they can give us new ideas soon.

We also discussed his upcoming sleep study for CPAP. We had hoped that it would be able to take place in Colton's room, but due to some complications, it can't at this time. They could call him down any day, but it will most likely take place after this weekend.

Colton also had a short occupational therapy session today. He now has a play mat in his room so we can get him on the floor more. 
I'd love to see him start rolling around. 😊 What a happy milestone that will be!! .
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#ColtonStrong #tricuspidatresia #hypoplasticrightventricle #tetrologyoffallot #unbalancedavcanal #chd #heartwarrior #hearthero #hirschsprungsdisease  #downsyndrome #downsyndromeawareness #dsdn #trisomy21 #t21 #theluckyfew #downrightperfect #littlebrother #tubie #babieswithglasses #glasses #changingthefaceofbeauty #bravegowns @bravegowns #skeleton
No changes at rounds today! Still monitoring diuretics & electrolytes. Today, we had a surgery consult. We've been trying desperately all year to heal his raw intestine & fissures with no luck. Hopefully they can give us new ideas soon. We also discussed his upcoming sleep study for CPAP. We had hoped that it would be able to take place in Colton's room, but due to some complications, it can't at this time. They could call him down any day, but it will most likely take place after this weekend. Colton also had a short occupational therapy session today. He now has a play mat in his room so we can get him on the floor more. I'd love to see him start rolling around. 😊 What a happy milestone that will be!! . . . . #ColtonStrong  #tricuspidatresia  #hypoplasticrightventricle  #tetrologyoffallot  #unbalancedavcanal  #chd  #heartwarrior  #hearthero  #hirschsprungsdisease   #downsyndrome  #downsyndromeawareness  #dsdn  #trisomy21  #t21  #theluckyfew  #downrightperfect  #littlebrother  #tubie  #babieswithglasses  #glasses  #changingthefaceofbeauty  #bravegowns  @bravegowns #skeleton 
I cannot get enough of this squish❤️❤️ #finning #thoseeyestho #mywholeheart