I reopened my eBay store and set a goal to sell 100 items this month. As of today I've met that goal plus some! Ryder loves to go to the post office with me. His favorite part is seeing himself in the window. I've never know someone who loved themself so much 😂😂😂. Side note, I've been hoarding those Batman converse since I was pregnant 😍😍 #shoeissue
Today Ruby had her first IFSP (Individual Family Service Plan) evaluation for early intervention services. The evaluation determines if and how often she will receive services such as occupational, physical, speech, and nutritional therapy. Well you guys, this girl is shouting her worth and breaking all those stereotypes! Ruby impressed the wonderful ladies that came to our home and as things currently stand, she's within the same ranges of typical children her age and no therapies are currently recommended for our family! This girl is already moving mountains and making her mommy and daddy oh so very proud! Even though we have no clue what the future holds for our girl, we can't help but feel proud and lucky of where she is right now. #gettindownwithruby#trisomy21#downsyndromeawareness#shouttheirworth
The little one on the right is my Fi. I had so much last week with @renaefrancesphotography doing a photo shoot for the shop with a bunch of my friends darling girls. The pictures came out great, but the best part was watching Fiona play with her friends. This is what life with a child with Down syndrome looks like. Yes, there are moments that look a little different, but this, this right here in this picture, a little girl running and laughing with her friends, it's real. Most of the time I don't think anything of our life with Fiona having Down syndrome. But that night last week, all the thoughts of how I once feared what this life would look like came flooding in, and I was choking back happy tears that that life I was afraid of is in reality this picture. This shop has a big heart for our friends who have an extra 21st chromosome and are part of a team fundraiser with @theBBtee I'd love for you to check out. Click on a few posts back to see the details. And don't miss out on the giveaway happening in the previous post! #downsyndrome#lifewithdownsyndrome#downsyndromeawareness#theluckyfew#LIFEisbetterwithyou#nothingdownaboutit
Renner's teacher texted me this afternoon that he seemed a little down today and he was signing for me "mom" more today than usual. So his teacher asked if he wanted to call me and he signed "please." I told her he was clingy before leaving for school and most likely tired as he woke up at 0530. She said he started to perk up and told him they would text a pic to me (attached). I share this with you, because I have had people say that children with Down syndrome are always happy and others have stated that it must be so easy with a child like mine, because they don't even care if they are apart from their parent, they are always happy. I post this proud AF, that my little man clearly misses me and although he is yet to talk in words, he can answer questions and respond in his own language, signing. #RockinRenner#downsyndrome#nodifferentthanyou#hehasfeelingstoo#hemissesme#proudmomma#downsyndromeawareness#signlanguage
First grade has not been without its challenges this year. All big transitions take this course for Audri Beth in the beginning. We introduce, reinforce, & reward her new routine. Calmly. Consistently. And with as few tears shed as possible. We repeat this. Over and over again. Until eventually, she gives up the fight and settles into her happy place groove of familiarity. The sweet spot. This babe always rises and oh how much easier we breathe when she flies.
At times, I struggle with my role as my daughter's advocate. I wrestle with special needs mama comparisons and there are days when I fear that we are not doing enough to help her succeed at school and with her peers. I believe in the power of inclusion. With all my heart. And yet, I also worry that Audri will not meet enough children who face similar hurdles at school & in life because of it. In addition to navigating this insane journey that all parents face in trying to inspire our precious littles to become all that they can be, I also feel the weight of convincing our society to see my daughter's value. To see her humanity. To feel her sameness.
Oh how I want you to feel her sameness.
I have come to a place in my mamahood where I have let go of that desperate, protective need to impact your perception of Audri. Instead, it has become my daily intention to let go of control, allow the uncertainty to live here, and to let this little girl lead. She always seems to know the way. ✨
To the ends of the earth, Bug. We got this.
This is Kaden aka KC aka Kado or as I love to call him Squishy, yes, like Finding Nemo because he is the most cuddly, warm, lovey, soft, squishy human ever! He is literally E-V-E-R-Y-T-H-I-N-G and as if that's not enough, I'm lucky that I get to call him my nephew. As most of you already know Kaden has #downsyndrome He has been faced with a ton of obstacles since birth and has over come all of them because he is such a strong #littlewarrior So, to show him some love, support and a pat on the back for all his hard work, I please ask that if you're in the #orangecounty area join team Kaden's Chromies in attending the #buddywalk on Sunday, October 29th to raise down syndrome awareness! If you are not able to attend I please ask that you CLICK the link in my BIO to Kaden's fundraising page and help in anyway that you can. My birthday is coming up and it would mean the world to me if you were planning on spending any money on me in anyway, for you to donate to support Kaden instead! Can't wait to see everyone there! // #WAEup#WordsActionsEnergy always ☝🏼 #theluckyfew#downsyndromeawareness#kadencameron#them2macs#family
Please tell me I'm not the only person who has awkwardly blurted out that my baby has Down Syndrome to some stranger at Target 🤦♀️🤦♀️🤦♀️"He's so cute!" .."Thanks! He has Down Syndrome!" #stillcringing
New on the ds-connex #blog : it's time to recognize the Super Sibs again! Find out how you can submit a nomination for your favorite Super Sibs at the link in our bio.
Here's an example of a Super Sib submission:
Andrew is Alex's little brother and co-captain of @teamalexcbus. He enjoys hosting his own fundraisers; this summer, Andrew's Root Beer Float Stands raised hundreds of dollars for @dsaco_cbus. He is a natural advocate for his big brother, teaching his peers the
importance of inclusion. Andrew is a devoted ally, one of Alex's biggest fans, and a great little brother.
Today as I dropped her off at school I asked her what she was going to do first, she saw everyone at the play doh table and she said "play doh" very clearly. Her speech is expanding not only daily but seems like throughout the day. I'm so proud of this sweet little lady! 🌸