Let Talk About 'The Stigma'
Oh your not one of 'those' or 'it's all in your head' or it's not even a real illness....
I usually laugh it off but is it ignorance or is it someone trying to be funny when they have nothing better to say?? No it's not a fad, no it's not in my head, well I suppose it is with me because gluten attacks my brain. 😒 I often tell people I have coeliac disease as people have often heard of that more than Gluten Ataxia, many healthcare professionals haven't heard of my 'unique' condition. Coeliacs and Gluten Ataxia sufferers both have to stick to a gluten, wheat, barley, rhy and malt free diet and avoid oats in the first year. However coeliacs autoimmune reaction attacks the gut and Gluten Ataxia attacks the cerebellum in the brain.
Commonly, Celiacs can tolerate far higher levels of antibodies in the blood before presenting symptoms than someone with Gluten Ataxia (I often describe as Brain Coeliac). I have to be super strict with my foods & drink and a simple slip up can knock me off my feet for days,sometimes weeks and it takes months before it's completely out of your system.
I have to have my bloods monitored every 6 months and a MRI scan on my brain to monitor the damage already caused by the gluten. Today however I have been for extra bloods as we can't understand why I've been so unwell lately.
Just waiting to hear back from my Ataxia nurse to see what the professor says 👨🏫 No place for needle phobia these days, I should probably get a tap installed!
Afternoon pick me up - fresh mixed berries, cacao nibs and @purecocobella coconut yogurt.
I love coconut yogurt because not only is it delicious, but it's full of good fats which helps with satiety.
And a bonus - it's low FODMAP!
Do you want THIS mindset?
I definitely recommend you to read "The 5 Second Rule" by Mel Robbins.
This book has helped me not only just get out of bed in the mornings; it also helps me choose to fold my laundry. It helps me choose to unload the dishwasher. It helps me choose to workout.
You have to count down 5-4-3-2-1 and GO!
"The counting interrupts your normal pattern of behavior, distracts you, and creates a moment of deliberate action. By asserting control in that moment, you activate your prefrontal cortex so that you can drive your thoughts and actions."
Go get it "wrong" SO you can realize there is no wrong!! If you feel held back with fear you're gonna "fail" or look stupid or just get it "wrong"... take the emotion out of it by giving yourself PERMISSION to get it wrong, to fail, to look silly. We love people actually that have stories of falling on their faces before they "succeed" so don't fear the temporary "failure".... that's JUST a feeling anyway. Get excited that you're GROWING and not staying stagnant.
Be with someone who brings the best out of you! Happy birthday to my amazing partner, sharing all my joys &tears. Supporting me through my rough journey, I wish you the best day.. I love you, always ❤ 2 2 ❤
Free podcast alert 🚨 After the GMA interview with Mara Schiavocampo when I was last in NY (pictured here with a table groaning with Gut Makeover food) we had a radio interview together. It has just been released as a free ABC Motivated Podcast. It's a good intro to this approach especially for people who would normally NEVER touch a "diet" book with a barge pole. Countless people are now getting into Gut Makeover in a big way and enjoying the improved digestive and weight results (see below)...
Where you can listen:
Apple Podcast: http://apple.co/2seKfap
Google Play Music: http://bit.ly/2s9NiFK
On the ABC News app under the "Listen" section.
And on: http://www.abcnewspodcasts.com
Loved this comment here on FB last week (Amazon has many many more). Being British I’m slightly embarrassed at sharing…and also embarrassed that just suggesting we eat unprocessed food for 4 weeks can get such powerful weight loss and improved digestion results. That simple. Without pills. "Jeanette, I can't begin to tell you what an impact the gut makeover has had on me. You should be in for a knighthood for the reduced cost of medication to the NHS alone !! Had forgotten about the horrible acid reflux at night which is a long distant memory. My health is so much better and I'm in size 12 jeans for the first time ever!” ❤️As an author made my day ♥️
TRAVELING WITH UC #TBT
.......... Here's me with a beautiful macau parrot (which I later held) at a resort in Sauipe in Brasil (near Salvador). This was in 2014, after 6 months of traveling around Brasil, Argentina, Chile and Europe. .
My UC was so bad it caused my immune system to get so low that I developed scabies twice and had heat rash that wouldn't quit. My UC flared so uncontrollably that even the 50mg prednisone I brought with me as emergency didn't take the edge off. IThe long plane journeys back to Sydney were some of the most exhausting of my life.
When we got back to Australia, I ended up in hospital for a week and it was the first time colectomy surgery was discussed as an option. But Infliximab/Remicade was new to Australia and I was approved by our health system to try it, so I did (this meant treatment was free, apart from my yearly private hospital admission of $500, and monthly private health insurance fee around $150).
My UC never stopped me from traveling the world, and I'm so grateful I could still do that. And grateful my husband had the patience to deal with all the issues that came along with it. 😂 .
Even though I was so extremely ill, as soon as I saw this parrot it put a smile on my face. Always find the happy moments, no matter how small. It makes the challenging times easier to deal with! 💜🙌 ..........
Kefir is a unique cultured dairy product that’s one of the most probiotic-rich foods on the planet
Digestive Hope is an online course that teaches you how to make your own probiotics at home > LEARN MORE digestivehope.com
It is human nature to doubt oneself. We all do it and when we do, we are actually creating our own limits. Those negative thoughts are destroying our chances of success. * there's no point me applying for that job, other people have more chance of getting it.
* I can't follow a healthier lifestyle, I have no willpower.
* I find change difficult so not open to new ideas.
The truth is, you have just as much chance as anyone else in getting that job, you do have willpower and trying new things is an adventure. All you need to do is make the effort, plan and prepare for success. Sometimes it may not work out but that shouldn't stop you trying.
People are doing the impossible every day - why can't you be one of those people? The only person holding you back, is you! Just believe that you can.
🍞 What are your favourite GF toast toppings?
If you love homemade bread, ORGRAN has you with their Premium Bread Mix. 😍 Baking not your thing? No worries as well you can also enjoy these AVOCADO AND HERB GLUTEN FREE SANDWICHES on their ready to go Crispibread! 🤸♀️ Find this recipe link in bio.
Recipe link in bio or search AVOCADO on yumglutenfree.com.au: https://yumglutenfree.com.au/gf-recipes/breakfast/avocado-and-herb-gluten-free-sandwiches/.
#yumglutenfree#ad Follow @yumglutenfree
Photo: Moody fish dinner 📽🐬. We choose our fish carefully each week at the market, ensuring we buy fish low in toxins, sustainable and local. The fish you want to consume a limited amount of are: tuna, swordfish, shark (flake), broadbill and marlin - as they contain higher quantities of mercury.
How does our fish become toxic? As coal is combusted, small particles of mercury are blown into the air with other pollutants. When it rains, this atmospheric mercury is collected into water and enters the ocean as rain, where it is converted into methylmercury by waterborne bacteria and eventually makes its way into the bellies of fish. Large, predatory fish contain higher quantities of mercury as it accumulates via consuming smaller fish which contain mercury and therefore inheriting their contamination.
What you eat is what you will be made of. Food is the building blocks of our bodies. 🐡🐠🐳#mettleandgrace#mettlegrace#healing#healthyfood#medicinalfoods#health#wellbeing#wellness#sustainable#lowtoxins#cancer#ibs#multiplesclerosis#illness#diabetes#cookingclass#recipecreation
I am so excited to try some water kefir from one of our boss babes @kerryn_louise_33 . Keifir is high in nutrients and probiotics and incredibly beificial for digestion and gut health .
As some of you know I suffer from ibs and I am wheat and dairy intollerant so I am excited to see what this will do for my gut health ❤
Has anyone else tried kefir 🤔
💫SWAP - Alternativas Low-FODMAP para o nosso intestino irritável 💫
Já vos falei aqui várias vezes sobre a abordagem “low-FODMAP” e de como esta me ajudou bastante a perceber quais os alimentos e quantidades me pioravam os sintomas de desconforto abdominal (principalmente inchaço e flatulência).
Por isso achei que seria interessante para vocês saberem quais os alimentos considerados High-FODMAP e algumas alternativas Low-FODMAP.
Vou basear-me nas medições feitas pela @monashfodmap e dar-vos algum feedback da minha experiência pessoal. E se se sentirem à vontade , partilhem a vossa experiência também!! 🙂
❗Mais um pouco sobre a abordagem Low-FODMAP:
A dieta Low FODMAP, significa baixa em alimentos com elevado conteúdo de hidrato de carbono fermentáveis.
IMPORTANTE: Esta lista não leva em consideração outros constituinte dos alimentos que por vezes podem causar problemas (ex: gluten, caseína, tipo de fibra...). Por isso, é como digo sempre, cada caso é um caso e o impacto que esta abordagem terá, vai depender de cada um e do seu padrão e causa dos sintomas.
No entanto mesmo assim, tem demonstrado ser eficaz no controlo dos sintomas.
O ideal, antes de iniciar qualquer restrição ou mudança, é falar com o médico e/ou nutricionista para garantir que esta é uma opção adequada para o vosso caso : )
Hoje ainda faço escolhas baseadas nessa lista mas tento não eliminar nenhum alimento saudável completamente, pois há alimentos com elevado conteúdo de FODMAPs que são importantes numa alimentação saudável.
Espero que vos seja útil e principalmente que vos ajude a conhecerem-se melhor :)
Partilhem também a vossa experiência 😘
I LIBRI CONSIGLIATI. Per la RUBRICA "PRIMA CHE SCRITTRICE, LETTRICE”.
Questa settimana la mia RECENSIONE BREVE riguarda "LA MOGLIE DI DIO" di Francesco Grasso (edizioni Ensemble )
"Da quando ho pubblicato con due piccole case editrici sto scoprendo che, in questi ultimi anni, sono spesso proprio queste a proporci nuovi e interessanti scrittori, rispetto ai grandi editori che preferiscono puntare su cavalli sicuri.
Ho trovato "La moglie di Dio" accattivante e divertente; un giallo sui generis dalla scrittura fluida, con una gradevole vena ironica.
Il ritmo sostenuto e la trama avvincente mi hanno fatto trascorrere ore liete incuriosita dal mistero che si cela dietro le protagoniste: due anziane sorelle, apparentemente innocue... "
... Puoi leggere il resto della BREVE RECENSIONE in didascalia sulla mia pagina FB: Daniela Carelli Blog & News (nella sezione foto - album: LIBRI CONSIGLIATI)
After more tender meat? Try using pulverised pineapple as a marinade!🍍🍍🍍
Pineapple contains the enzyme Bromelain. Bromelain breaks down the connective tissue + protein in meat, which increases tenderness.
Sooo not only is pineapple a delicious, nutritious and #lowfodmap fruit...it may also produce the perfect steak!
🧀💜 CASHEW CHEESE! 🧀💜⠀
FODMAP UPDATE: have you guys heard the latest?! My friends over @fodmapfriendlyfoodprogram have recently tested cashew butter & found that up to 10g is considered FODMAP Friendly! Yeeeeha! What does this mean? Well hero more cheese / sweet / savoury sauce options!⠀
Cashew nuts are actually the kidney-shaped seeds that adhere to the bottom of the cashew apple, the fruit of the cashew tree, which is native to the coastal areas of northeastern Brazil. 💃⠀
Not only do cashews have a lower fat content than most other nuts, approximately 82% of their fat is unsaturated fatty acids, plus about 66% of this unsaturated fatty acid content are heart-healthy monounsaturated fats, similar to those found in olive oil. 🍸 ⠀
Studies of diabetic patients show that monounsaturated fat, when added to a low-fat diet, can help to reduce high triglyceride levels. Triglycerides are a form in which fats are carried in the blood, and high triglyceride levels are associated with an increased risk for heart disease, so ensuring you have some monounsaturated fats in your diet by enjoying cashews is a good idea, especially for persons with diabetes. 👌⠀
This super simple recipe comes from culinary whizz Jess over @healthcoachphilly ... it's simply:⠀
cashew butter, add a probiotic (Monash suggests avoiding probiotics during the elimination phase as it can confuse symptoms, so do this during re-introduction) and let sit to ferment (this is what gives it the cheeeeeese tang), then flavor with things like nutritional yeast, salt, lemon and herbs. I then let this sit in a dehydrator for additional time to create a rind (totally optional). 🧀⠀
Enjoy loves and don't forget to check out www.thefodmapfriendlyvegan.com for more #fodmapfriendlyvegan updates and inspo! 😘😘😘
Frukostfralla! Receptet på brödet finns nån dag tillbaks!
Fodmap, har man ibs ska man äta enligt fodmap. Men vad är fodmap? Tanken med fodmap är att man ska undvika att äta livsmedel som orsakar jäsning och gaser.
FODMAP står för Fermenterbara, Oligo-, Di- och Monosackarider och Sockeralkoholer (Polyols). Alltså en massa ord som man inte förstår sig på.
Vi delar in det i olika kategorier så blir det lättare att förstå!
Fruktos är första gruppen, fruktos finns i bl.a frukter och juicer och för att kroppen ska kunna ta upp fruktosen så behövs lika mängd glukos. Finns det för lite glukos så tas inte fruktosen upp och när det då går igenom kroppen så jäser det och därför får man ont om man har ibs. Detta händer för alla människor men har du inte ibs så får du oftast inte ont när det jäser. Vanligt socker innehåller lika stor del fruktos som glukos och går därför bra. Några exempel på frukter som ej är godkända är mango, vattenmelon 🍉, äpple 🍏, päron.
Och några som är godkända är tex annans, apelsin, honungsmelon, kiwi 🥝. Även morots juice går bra.
Den andra gruppen är laktos, vilket är sockerarter från ko 🐮, get, får osv.
Även om man inte är laktosintolerant så ska man undvika laktos om man vill äta en kost fri från fodmaps.
Oligiosackarider är nästa grupp och det är prebiotiska kostfibrer. Som egentligen är bra för tarmfloran men som är svåra för kroppen att bryta ned och därför reagerar man med ibs på dom. Oligiosackarider finns i sädesslag(vete, råg), lök, vitlök, baljväxter. Även kaffe och te ingår i den här gruppen! Leta efter Oligofruktos, fruktooligosackarider, FOS och inulin på innehållsförteckningar och undvik om dessa finns med. Kan finnas i många glutenfria produkter som är fri från gluten(protein) men inte från oligiosackarider vilket är vad du med ibs reagerar på!
Sista gruppen är Sockeralkoholer!
Du ska undvika erytritol, mannitol, maltitol, xylitol, sukrin, isomalt samt sorbitol som bland annat finns naturligt i avokado 🥑. Dessa sötningsmedel finns ofta i tuggummin, halstabletter, proteinbars och shakes.