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The amazement was real !! Star struck ☺️☺️ seeing how she discovers the world makes my life complete!! ❤️❤️ #loverher #disneyland #downsyndrome #t21 #nothingdownaboutit #theluckyfew #morealikethandifferent #motherhood #momswithcameras #toddlerlife
That moment you and your brother discover Mickey Mouse is real 🙈🙈☺️ #disneyland #nothingdownaboutit #downsyndrome #morealikethandifferent #theluckyfew #t21 #trisomy21
Juliette’s 1st New Year celebrations! ... take me back!!! 😭😭😍❤️ #nothingdownaboutit #theluckyfew #downsyndrome #morealikethandifferent #t21 #trisomy21 #loved #motherhood #blessed
#toddler #kidsfashion  #ootd  #morealikethandifferent the #onesie #nothingdownaboutit #theluckyfew #frobabies #almost18months #babiesofinstagram #instababy #curlykids #happytoddler #toddleryears #toddlerlifestyle #curlygirls #instatoddler #toddlerlife #toddlerfun #toddlerfashion #mixedbaby #mixedkids #mixedchildren #toddlerlifestyle #cutekids #auntieduty #carters #frobabies #preciousbabygirl #atthepark #carterkids #toddlerfun #toddleratthepark  Today I had a play date with my auntie friend daughter who 6 that’s why I am smiling & happy to be outside ❤️😍😎🙌😃👧🏽🤳🦋🌳🌸☀️🌻 @nikkibabyxo99
#toddler  #kidsfashion  #ootd  #morealikethandifferent  the #onesie  #nothingdownaboutit  #theluckyfew  #frobabies  #almost18months  #babiesofinstagram  #instababy  #curlykids  #happytoddler  #toddleryears  #toddlerlifestyle  #curlygirls  #instatoddler  #toddlerlife  #toddlerfun  #toddlerfashion  #mixedbaby  #mixedkids  #mixedchildren  #toddlerlifestyle  #cutekids  #auntieduty  #carters  #frobabies  #preciousbabygirl  #atthepark  #carterkids  #toddlerfun  #toddleratthepark  Today I had a play date with my auntie friend daughter who 6 that’s why I am smiling & happy to be outside ❤️😍😎🙌😃👧🏽🤳🦋🌳🌸☀️🌻 @nikkibabyxo99
This is Jude’s happy place!  Anything to do with drums or music makes him so happy.  He looks like such a natural and was taking it very seriously! 😂

I don’t want to plan out Jude’s future and assume he will do something just because Tucker and I enjoy it, but watching Jude drum with his dad standing right there really made me feel like I got a glimpse into our future. ❤️ #judedude 😛
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#fatherandson #likefatherlikeson #drumsdrumsdrums #drummerboy #spreadhappiness #instatoddler #toddlersofinstagram #mystory #downsyndrome #ds #shouttheirworth #theluckyfew #nothingdownaboutit #upsyndrome #homiewithanextrachromie #trisomy21 #t21 #t21rocks @zildjiancompany @smeedrums
This is Jude’s happy place! Anything to do with drums or music makes him so happy. He looks like such a natural and was taking it very seriously! 😂 I don’t want to plan out Jude’s future and assume he will do something just because Tucker and I enjoy it, but watching Jude drum with his dad standing right there really made me feel like I got a glimpse into our future. ❤️ #judedude  😛 . . . . . #fatherandson  #likefatherlikeson  #drumsdrumsdrums  #drummerboy  #spreadhappiness  #instatoddler  #toddlersofinstagram  #mystory  #downsyndrome  #ds  #shouttheirworth  #theluckyfew  #nothingdownaboutit  #upsyndrome  #homiewithanextrachromie  #trisomy21  #t21  #t21rocks  @zildjiancompany @smeedrums
PJ party tonight ..seriously why are their sleep schedules sooo messed up lately!? Both kiddos are still WIDE awake 😴
PJ party tonight ..seriously why are their sleep schedules sooo messed up lately!? Both kiddos are still WIDE awake 😴
#toddler #kidsfashion  #ootd  #morealikethandifferent the #onesie #nothingdownaboutit #theluckyfew #mystory #frobabies #almost18months #babiesofinstagram #instababy #curlykids #happytoddler #toddleryears #toddlerlifestyle #curlygirls #instatoddler #toddlerlife #toddlerfun #toddlerfashion #mixedbaby #mixedkids #mixedchildren #toddlerlifestyle #cutekids #auntieduty #carters #frobabies #preciousbabygirl  Happy Tuesday Today I went to a Mexican Restaurant, I got to color & eat chips  you see my onesie that’s right I wish it said aunties I love both of them ❤️😍😃😋😁😎🤩👀💋 onesie from carters they have great clothes  @carters @nikkibabyxo99
#toddler  #kidsfashion  #ootd  #morealikethandifferent  the #onesie  #nothingdownaboutit  #theluckyfew  #mystory  #frobabies  #almost18months  #babiesofinstagram  #instababy  #curlykids  #happytoddler  #toddleryears  #toddlerlifestyle  #curlygirls  #instatoddler  #toddlerlife  #toddlerfun  #toddlerfashion  #mixedbaby  #mixedkids  #mixedchildren  #toddlerlifestyle  #cutekids  #auntieduty  #carters  #frobabies  #preciousbabygirl  Happy Tuesday Today I went to a Mexican Restaurant, I got to color & eat chips you see my onesie that’s right I wish it said aunties I love both of them ❤️😍😃😋😁😎🤩👀💋 onesie from carters they have great clothes @carters @nikkibabyxo99
Charlie learned a new trick! 🤦‍♀️ This kid is so curious! He keeps me on my toes! He thoroughly enjoys life! He seeks adventure! He makes people laugh! Don’t ever believe the lie that people with a “disability” don’t know Love or happiness! This kid shines it ever so brightly! #nothingdownaboutit #downsyndrome #theluckyfew #worthy #t21 #motherhood #motherhoodunplugged  #ds #shouttheirworth #grace
Appointment to check her orthotics! I was told today that our story was the top story for Fox and CBS in Indy!! We will also be on WGN News tomorrow morning. Truth: I hate being in front of the camera. I always have. I love to write. I love taking pictures of my daughter. Writing has always been my strength. If you would have told me three years ago that I’d be here now, I would have laughed. Since we are telling the truth here, I honestly don’t know what I’m doing. I don’t have the answers. The only thing I know for absolute certainty is how much I love Flick. How differently I look at the world through her eyes. How I’ve challenged myself over and over about my ableism and stereotyping etc. I know that I want to make the world better for her and people like her. I want to make it good enough so that when a parent delivers a child who happens to have a disability, it’s not such a shock. You don’t grieve. I want others to know her worth and I want her and others to have a place in society. I know that can’t happen if her diagnosis is a punchline. So I suck it up and I keep fighting. If sometimes I cry while I do it, I’ll just use that to make me stronger, to fight harder. I’ll figure it out as I go along.

Oh and check out her picture on @oshkoshkids IG! ❤️
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#downsyndrome #downsyndromeawareness #downsyndromelove #downsyndromerocks #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #mystory #babiesofinstagram #instababy #instakids #instatoddler #toddler #toddlerlife #toddlerlifestyle #toddlerfashion #photooftheday #blueeyes #instaphoto #fight #takeitdown #truth #motherhood
Appointment to check her orthotics! I was told today that our story was the top story for Fox and CBS in Indy!! We will also be on WGN News tomorrow morning. Truth: I hate being in front of the camera. I always have. I love to write. I love taking pictures of my daughter. Writing has always been my strength. If you would have told me three years ago that I’d be here now, I would have laughed. Since we are telling the truth here, I honestly don’t know what I’m doing. I don’t have the answers. The only thing I know for absolute certainty is how much I love Flick. How differently I look at the world through her eyes. How I’ve challenged myself over and over about my ableism and stereotyping etc. I know that I want to make the world better for her and people like her. I want to make it good enough so that when a parent delivers a child who happens to have a disability, it’s not such a shock. You don’t grieve. I want others to know her worth and I want her and others to have a place in society. I know that can’t happen if her diagnosis is a punchline. So I suck it up and I keep fighting. If sometimes I cry while I do it, I’ll just use that to make me stronger, to fight harder. I’ll figure it out as I go along. Oh and check out her picture on @oshkoshkids IG! ❤️ . . . #downsyndrome  #downsyndromeawareness  #downsyndromelove  #downsyndromerocks  #t21  #trisomy21  #upsyndrome  #morealikethandifferent  #nothingdownaboutit  #theluckyfew  #mystory  #babiesofinstagram  #instababy  #instakids  #instatoddler  #toddler  #toddlerlife  #toddlerlifestyle  #toddlerfashion  #photooftheday  #blueeyes  #instaphoto  #fight  #takeitdown  #truth  #motherhood 
“Skyler is 3 years old with Down syndrome. We had a birth diagnosis and took right to educating ourselves about Down syndrome. Skyler is the light of our life and brings us so much happiness and love. Skyler had a small hole in his heart, which has been closing perfectly. He loves signing time and uses signs for most of his communication. We like to focus on Skyler’s ABILITIES NOT HIS “Dis” abilities.” 💙💛✨ @skylerssmilebaskets #enableawareness #downsyndromeawareness #theluckyfew
“Skyler is 3 years old with Down syndrome. We had a birth diagnosis and took right to educating ourselves about Down syndrome. Skyler is the light of our life and brings us so much happiness and love. Skyler had a small hole in his heart, which has been closing perfectly. He loves signing time and uses signs for most of his communication. We like to focus on Skyler’s ABILITIES NOT HIS “Dis” abilities.” 💙💛✨ @skylerssmilebaskets #enableawareness  #downsyndromeawareness  #theluckyfew 
Yesterday she had a good day, she weened down to .5 liters of oxygen. Then things went left and she got a fever, her O2 SAT dropped to 84 and it was like watching the life drain out of her. I had gone to work and Matt was texting me updates (like this pic) all day. When I walked into her hospital room she was the opposite of this pic and my heart dropped. They upped her oxygen to 3 liters, increased the flow to prop open her airways and gave her Motrin for her 101.3 fever. 
Today I stayed with her. She had a good day and then at about 5pm-ish, she got a slight temperature and her oxygen dropped a little again. It seems like towards the end of the day her body is tired and begins to work harder and need more support. But we only had to put her up to 1.5 liters of oxygen so that’s a plus!

She’s still fighting. We’re still in the hospital. I’ve slept here with her every night. But what’s a growing bruise on my hip from the not that comfy bed when compared to peace of mind at being here with her...? #warriorprincess #slowandsteady #rsv
Yesterday she had a good day, she weened down to .5 liters of oxygen. Then things went left and she got a fever, her O2 SAT dropped to 84 and it was like watching the life drain out of her. I had gone to work and Matt was texting me updates (like this pic) all day. When I walked into her hospital room she was the opposite of this pic and my heart dropped. They upped her oxygen to 3 liters, increased the flow to prop open her airways and gave her Motrin for her 101.3 fever. Today I stayed with her. She had a good day and then at about 5pm-ish, she got a slight temperature and her oxygen dropped a little again. It seems like towards the end of the day her body is tired and begins to work harder and need more support. But we only had to put her up to 1.5 liters of oxygen so that’s a plus! She’s still fighting. We’re still in the hospital. I’ve slept here with her every night. But what’s a growing bruise on my hip from the not that comfy bed when compared to peace of mind at being here with her...? #warriorprincess  #slowandsteady  #rsv 
"As students in the U.S., we have an abundance of resources on hand in our clinics, but here in Sierra Leone, the resources are limited. I have been very impressed with how the Enable the Children team uses the resources they have to improve the lives of children with disabilities. It has been great to learn how they create various tools for children to improve mobility within their communities." -Emily, Student at @indwes
"As students in the U.S., we have an abundance of resources on hand in our clinics, but here in Sierra Leone, the resources are limited. I have been very impressed with how the Enable the Children team uses the resources they have to improve the lives of children with disabilities. It has been great to learn how they create various tools for children to improve mobility within their communities." -Emily, Student at @indwes
Última clase de la temporada! Muchas gracias @upswim por todo lo que me han enseñado hasta ahora, nos vemos en marzo para seguir aprendiendo!!!😄
Les dejo un bonus track de mi jugando en el camarín mientras mi Mamá lucha por vestirme jijiji🙊
#sindromededown #downup #swimup #t21 #downsyndrome #nothingdownaboutit #soyup #fuerzaup #unidosporlaexperienciaup #natacion #amolapiscina
Birthday Countdown:
E I G H T  M O N T H S
I just adore his smile. It makes my heart melt into a puddle every single time. It’s going to be tough to not just give him everything he wants. I mean- look at that face! 😍
This month was full of more firsts. We attended our first Step Up for Down syndrome walk, and went to our first pumpkin patch. I just love him more and more every day- if that’s even possible. 💛
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#downsyndrome #downsyndromerocks #downsyndromeawareness #downsyndromelove #mamasboy #boymom #babyboy #family #lifeisbetterwithyou #moments #momentslikethese #letthembelittle #babiesofinstagram #babiesofig #photooftheday #theluckyfew #morealikethandifferent #nothingdownaboutit #trisomy21 #shouttheirworth #11monthsold #babieswithstyle #love #t21 #dsdn #homiewithanextrachromie #clickinmoms #momswithcameras #birthday
Birthday Countdown: E I G H T M O N T H S I just adore his smile. It makes my heart melt into a puddle every single time. It’s going to be tough to not just give him everything he wants. I mean- look at that face! 😍 This month was full of more firsts. We attended our first Step Up for Down syndrome walk, and went to our first pumpkin patch. I just love him more and more every day- if that’s even possible. 💛 . . . . . . . . . . . . . . . . . . . . . . . . #downsyndrome  #downsyndromerocks  #downsyndromeawareness  #downsyndromelove  #mamasboy  #boymom  #babyboy  #family  #lifeisbetterwithyou  #moments  #momentslikethese  #letthembelittle  #babiesofinstagram  #babiesofig  #photooftheday  #theluckyfew  #morealikethandifferent  #nothingdownaboutit  #trisomy21  #shouttheirworth  #11monthsold  #babieswithstyle  #love  #t21  #dsdn  #homiewithanextrachromie  #clickinmoms  #momswithcameras  #birthday 
Eeek!!! We have a sitter! Sat up for over five minutes for the first time tonight!!! So exciting. The bigs clapped and cheered every time he kept himself from falling!!! .
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#nothingdownaboutit #homiewithanextrachromie #10months #babymilestones #dsdn #t21 #t21baby #lowmuscletone #soexcited #proudmama
She loves her “evah evah” song 😂 #thegreatestshowman
Testing out gear for my upcoming birthday gift! #samash  #samdrummy #electricdrumset #nothingdownaboutit #dsmaster
23•365
Today we had Hazel’s first visit to the pediatrician. At discharge from the hospital she had lost over 10% of her body weight, and was a bit jaundice. So we had to get her right in for an appointment. She was a little rock star and she has regained an ounce and is up to 6 lbs 13 ounces now. She was so sweet and perfect for the doctor and nurses. No crying at all. Even when she had her blood work drawn. 
As most of you know Hazel and I have had a lot of doctors appointments over the past months. And those appointments are sure to continue. Our sweet little Hazel has been blessed with one extra chromosome. And we wanted to share with you that she has a diagnosis of Down Syndrome. We have know this for several months now, and we are beyond certain that we have been blessed with this healthy and beautiful baby girl. As you may or may not know, Down Syndrome can have risks for additional medical concerns. Primarily there can be concerns with cardiac, digestive, swallowing and developmental issues. And we are so incredibly happy to let you all know that as of right now, she doesn’t have any of these!  I can’t tell you what relief the past several days of good news has been for us. Every doctor and specialist that we have seen has been beyond pleased with how healthy our little Hazel is. 
Now we are not naive to think that we’re completely free and clear by any means. We know that we will be learning and growing in our knowledge and understanding of what Hazel may or may not need in the coming years. We’ve already got appointments set up with early intervention, cardiologists, developmental specialists and pediatricians. Our world will be spinning and our learning unending. But we are so very in love with this sweet baby. And we know that you all will be too! 
We have had the very best support and love from our family and friends. And we are so thankful for each and every one of you. Every prayer and loving thought has been received with so much appreciation. Please know that Hazel is more than this diagnosis. She’s absolutely heaven sent and loved so very much. Our journey has only just begun! .
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23•365 Today we had Hazel’s first visit to the pediatrician. At discharge from the hospital she had lost over 10% of her body weight, and was a bit jaundice. So we had to get her right in for an appointment. She was a little rock star and she has regained an ounce and is up to 6 lbs 13 ounces now. She was so sweet and perfect for the doctor and nurses. No crying at all. Even when she had her blood work drawn. As most of you know Hazel and I have had a lot of doctors appointments over the past months. And those appointments are sure to continue. Our sweet little Hazel has been blessed with one extra chromosome. And we wanted to share with you that she has a diagnosis of Down Syndrome. We have know this for several months now, and we are beyond certain that we have been blessed with this healthy and beautiful baby girl. As you may or may not know, Down Syndrome can have risks for additional medical concerns. Primarily there can be concerns with cardiac, digestive, swallowing and developmental issues. And we are so incredibly happy to let you all know that as of right now, she doesn’t have any of these! I can’t tell you what relief the past several days of good news has been for us. Every doctor and specialist that we have seen has been beyond pleased with how healthy our little Hazel is. Now we are not naive to think that we’re completely free and clear by any means. We know that we will be learning and growing in our knowledge and understanding of what Hazel may or may not need in the coming years. We’ve already got appointments set up with early intervention, cardiologists, developmental specialists and pediatricians. Our world will be spinning and our learning unending. But we are so very in love with this sweet baby. And we know that you all will be too! We have had the very best support and love from our family and friends. And we are so thankful for each and every one of you. Every prayer and loving thought has been received with so much appreciation. Please know that Hazel is more than this diagnosis. She’s absolutely heaven sent and loved so very much. Our journey has only just begun! . . . . . . . . . . . . . . . . . . . . . . . . .
This morning Millie went with @kendallshultz_ to the library. This picture brings my heart so much joy! I'm so thankful for this friendship that started with Kendall needing a place to stay for a summer and turned into her becoming family. I love our community! #sillymillie #nothingdownaboutit #theluckyfew #community #friendsforlife
This morning Millie went with @kendallshultz_ to the library. This picture brings my heart so much joy! I'm so thankful for this friendship that started with Kendall needing a place to stay for a summer and turned into her becoming family. I love our community! #sillymillie  #nothingdownaboutit  #theluckyfew  #community  #friendsforlife 
Link in my bio to sign the petition. Please sign it 💙💛💙
@netflix must take down this degrading, ignorant so called comedy by @seguratom .
 As part of the down syndrome community this had me livid. Tom I would love for you to come to see us . Learn our stories, meet our loved ones and see for yourself how pure and wonderful they are. You cut them down with ABSOLUTLY NO IDEA HOW HARD they workto get where they need to be, HOW HARD they love, and how hard it is for us to stand by as a public figire like you label our community as something it is not because of your ignorant and hateful words. Shame on you. Get with the times big boy. Its our time and we will fight for acceptance, awareness, Possitivity and love. .
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@wane_15 @foxnews @netflix
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#shameonyounetflix #netflix #downsyndromeawareness #downsyndrome #downsyndromecommunity #theluckyfew #nothingdownaboutit #t21 #trismoy21 #specialneeds #rwordcampaign
Link in my bio to sign the petition. Please sign it 💙💛💙 @netflix must take down this degrading, ignorant so called comedy by @seguratom . As part of the down syndrome community this had me livid. Tom I would love for you to come to see us . Learn our stories, meet our loved ones and see for yourself how pure and wonderful they are. You cut them down with ABSOLUTLY NO IDEA HOW HARD they workto get where they need to be, HOW HARD they love, and how hard it is for us to stand by as a public figire like you label our community as something it is not because of your ignorant and hateful words. Shame on you. Get with the times big boy. Its our time and we will fight for acceptance, awareness, Possitivity and love. . . . @wane_15 @foxnews @netflix . . . #shameonyounetflix  #netflix  #downsyndromeawareness  #downsyndrome  #downsyndromecommunity  #theluckyfew  #nothingdownaboutit  #t21  #trismoy21  #specialneeds  #rwordcampaign 
I can hear her saying, "Seeeeeeee!" She built a marble maze. (See more in our story.)
Then she took a picture of it. "See, Mommy! Seeeeeeee!"
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#MyLittleGirl
#NothingDownAboutIt
#DownSyndromeIsBeautiful
#ThingsIWantToRemember
Some very cute little princess,  is happy she has a sponsor!! Isn't Adelaide the cutest?!? #makingkidssmile  #downrightperfect  #downsyndromerocks  #nothingdownaboutit  #downrighthappysurprises
Hi Friends! #extracuteeva and I made it back home from our @babiekinsmag trip to #houston and I wanted to share these beautiful captures from another photographer,  the very talented @analiciaherrmann . This is her sweet daughter pictured here with Eva ( as they played at the park on an unusually cold day in TX). Eva met a lot of new friends in TX and she can't stop talking about them! I am so grateful to have met such amazing people in #houston. ♡ .
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#magicofchildhood #babiekinsmag #candidchildhood #childhoodunplugged #umh_kids#uniteinmotherhood #momtogs #thatsdarling #dailyparenting #dslooking #flashesofdelight #ig_motherhood #ig_kids #babiekinsmag #nothingisordinary #photography  #momswithcameras #momtogs #dailyparenting #postmoreportraits #documentlife #dsdn #changingthefaceofbeauty #theluckyfew #dsawareness #nothingdownaboutit  #downsyndromerocks #t21 #instablog #littleandbrave #wildandfreekids
Hi Friends! #extracuteeva  and I made it back home from our @babiekinsmag trip to #houston  and I wanted to share these beautiful captures from another photographer, the very talented @analiciaherrmann . This is her sweet daughter pictured here with Eva ( as they played at the park on an unusually cold day in TX). Eva met a lot of new friends in TX and she can't stop talking about them! I am so grateful to have met such amazing people in #houston . ♡ . . . . . . #magicofchildhood  #babiekinsmag  #candidchildhood  #childhoodunplugged  #umh_kids #uniteinmotherhood  #momtogs  #thatsdarling  #dailyparenting  #dslooking  #flashesofdelight  #ig_motherhood  #ig_kids  #babiekinsmag  #nothingisordinary  #photography  #momswithcameras  #momtogs  #dailyparenting  #postmoreportraits  #documentlife  #dsdn  #changingthefaceofbeauty  #theluckyfew  #dsawareness  #nothingdownaboutit  #downsyndromerocks  #t21  #instablog  #littleandbrave  #wildandfreekids 
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Lydia has been feeling much better today! She still has a little cough but is powering through it, she’s my superhero! LOV even toughened it out with her PT this morning for the full hour, she was quite pitiful but worked so hard! Nothing’s keeping her “down” .
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#t21truelov #nothingdownaboutit #trisomy21 #t21 #bekindtooneanother #theluckyfew
It's not Thursday but I'm posting a #tbt because I'm really cute and wanted to show all of you. #goarmy #mydadmissesfootballseason
#taggingtuesday // LET'S GROW THIS COMMUNITY!!@theablefables wants you to tag a friend or two that support inclusion! Ready, set, go!!
#taggingtuesday  // LET'S GROW THIS COMMUNITY!!@theablefables wants you to tag a friend or two that support inclusion! Ready, set, go!!
He worked hard to get to this #houseofboys
Hello! 💜 💜 💜 Jemma is such a pleasant baby and I feel so blessed because of this :) Her "chillness" allows me to manage my 2 year old better! And yes, I wrote MANAGE because homeboy is definitely going through his Awesome Two's (I won't say Terrible Two's because he's a delight half of the time). 😑 💙
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#jemmafaye #thejemmafayeway #babiesofinstagram #instababy #babylove #happybaby #nothingdownaboutit #theluckyfew #downrightperfect #extraspecial #t21 #upsyndrome #girlsrock #Downsyndromeawareness #mommylove #instamom #momlife #motherhood
Hello! 💜 💜 💜 Jemma is such a pleasant baby and I feel so blessed because of this :) Her "chillness" allows me to manage my 2 year old better! And yes, I wrote MANAGE because homeboy is definitely going through his Awesome Two's (I won't say Terrible Two's because he's a delight half of the time). 😑 💙 💛 💙 💛 #jemmafaye  #thejemmafayeway  #babiesofinstagram  #instababy  #babylove  #happybaby  #nothingdownaboutit  #theluckyfew  #downrightperfect  #extraspecial  #t21  #upsyndrome  #girlsrock  #Downsyndromeawareness  #mommylove  #instamom  #momlife  #motherhood 
Dancing machine... Rio loves to dance. Rio and her other mamma spend a lot of time dancing to Micheal Jackson. So it seems that twerking is a natural born skill as Rio has never seen twerking 😉 #downsyndrome #blindbaby #downsyndromeawareness #theluckyfew #dsdn #raisingrio #littlewarrior #t21 #t21rocks #changingthefaceofbeauty #babyrio #specialneeds #appliedbehavioranalysis #aba #behavioranalysis #visionimpaired #upsyndrome #nothingdownaboutit #samesexparents #twomoms #twomommies #dancingmachine
Dancing machine... Rio loves to dance. Rio and her other mamma spend a lot of time dancing to Micheal Jackson. So it seems that twerking is a natural born skill as Rio has never seen twerking 😉 #downsyndrome  #blindbaby  #downsyndromeawareness  #theluckyfew  #dsdn  #raisingrio  #littlewarrior  #t21  #t21rocks  #changingthefaceofbeauty  #babyrio  #specialneeds  #appliedbehavioranalysis  #aba  #behavioranalysis  #visionimpaired  #upsyndrome  #nothingdownaboutit  #samesexparents  #twomoms  #twomommies  #dancingmachine 
Can you see that super happy face? @cisneros_60 ☺ 💛💙💛
#nothingdownaboutit #trisomy21 #chdawareness #changingthefaceofbeauty #luckyfew #babysmiles #3monthsold
#inclusionisthenewcool // This month we will be donating 10% of every sale to the Kincinas family who is adopting a little boy from China who has Down syndrome ❤️
#inclusionisthenewcool  // This month we will be donating 10% of every sale to the Kincinas family who is adopting a little boy from China who has Down syndrome ❤️
#iwouldnotchangeyoufortheworldbutiwillchange theworldforyou #downrightperfect #downsyndrome #beautiful #heartwarrior #smart #funny #resilient #happy #theluckyfew #nothingdownaboutit 
P.s. to sign the netfix petition and to learn more link is in my bio.
“Tell me how am I supposed to breathe with no air?” Jordan Sparks We have some AMAZING news. For 18 months and 1 day this little one has needed extra oxygen to breathe, but today.....today she doesn’t need it anymore🙌🙌🙌! We got a call last night that her sleep study results came back and they were great. She only had 2.8 obstructive apneas an hour. Down from 26, then 24, 10.2 and now just 2.8. That means she doesn’t need a cpap anymore and her o2 levels stayed up the entire night too so we will say goodbye to the cannula as well. It was 9 + months of 24/7 oxygen and about 9 months of oxygen during sleep only. We are so grateful that she has grown bigger and stronger and her health is improving with her size. It was sooo hard to have a baby on oxygen. It was my normal but that didn’t make it easy. It was frustrating carrying the tanks around, making sure the cannula stayed in her nose, keeping her skin moist and free of scabs do to the tape and on and on and on. We are beyond grateful for modern medicine and so very happy that we are saying goodbye to some of it. Scroll for pictures of our oxygen journey. The picture of her free of oxygen is from the first day she was able to go oxygen free during the day and the first picture is from today. If you are still in the midst of oxygen days with your child, your day will come and it will be a celebration!! #theluckyfew #cpap #oxygen #sleepstudy
“Tell me how am I supposed to breathe with no air?” Jordan Sparks We have some AMAZING news. For 18 months and 1 day this little one has needed extra oxygen to breathe, but today.....today she doesn’t need it anymore🙌🙌🙌! We got a call last night that her sleep study results came back and they were great. She only had 2.8 obstructive apneas an hour. Down from 26, then 24, 10.2 and now just 2.8. That means she doesn’t need a cpap anymore and her o2 levels stayed up the entire night too so we will say goodbye to the cannula as well. It was 9 + months of 24/7 oxygen and about 9 months of oxygen during sleep only. We are so grateful that she has grown bigger and stronger and her health is improving with her size. It was sooo hard to have a baby on oxygen. It was my normal but that didn’t make it easy. It was frustrating carrying the tanks around, making sure the cannula stayed in her nose, keeping her skin moist and free of scabs do to the tape and on and on and on. We are beyond grateful for modern medicine and so very happy that we are saying goodbye to some of it. Scroll for pictures of our oxygen journey. The picture of her free of oxygen is from the first day she was able to go oxygen free during the day and the first picture is from today. If you are still in the midst of oxygen days with your child, your day will come and it will be a celebration!! #theluckyfew  #cpap  #oxygen  #sleepstudy 
OH SO SPOILT !! Thanks @sheratonfijiresort for pre birthday cake, singing and cuddles!! ❤️ #sheratonfiji #starwoodpreferedguest #emmysbrotherleo #birthday #firstbirthdaycake #cake #singing #cuddles #ds #nothingdownaboutit #spoilt #love #hugs #spg #downsyndromelove #t21 #homiewithanextrachromie #happybirthday #fiji #summer #
At breakfast, Lennox took a bite of his GF waffle, immediately spit it out and said clear as day “Gross!”😳Fair enough🤣 #accurate #wordoftheday #newdiet #glutenfree #hesnotafan #downsyndrome #nothingdownaboutit
Mir Bear definitely didn’t quite understand the objective of this game 😂... and I love it... he makes the rules #BossBaby #ImgoingToPlayThisGameMyWay #SoWhatIfImGoingToBeThrowingTheBallForTheNextThreeHours #ImHavingFun 🤗
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#MyLittleMirBear #DownSyndrome #DownSyndromeLove #NothingDownAboutIt #TheLuckyFew
Our first #SpotlightTuesday is dedicated to our entire community and partners of #HoustonHeights. The small-town charm inside a bustling city provides a wonderful environment for us at the Summerhouse. The shopping, restaurants, and neighbors of this community bring smiles to our faces everyday! What are your favorite things to do in the Heights?! 🏡
Our first #SpotlightTuesday  is dedicated to our entire community and partners of #HoustonHeights . The small-town charm inside a bustling city provides a wonderful environment for us at the Summerhouse. The shopping, restaurants, and neighbors of this community bring smiles to our faces everyday! What are your favorite things to do in the Heights?! 🏡
Little Miss got a new accessory and her reaction to seeing better is just the sweetest. 
#sweetT #guymontribe #nothingdownaboutit #downsyndromeawareness #downsyndrome
So this kinda happened this evening, I'm in love 😍

@Regranned from @inkys_tattoo -  Custom Down syndrome awareness tattoo I did on my Wife today for our little boy #Mrinky #tattoos #tattoo #uktattoo #tattooed #tattooer #tattooartist #tattooart #tattooink #freshlyinked #ink #tattootime #customtattoo #tatt #blackgrey #tattooedgirls #tattooedwomen #newtattoo #newink #downsyndrome #upwithdowns #321 #extrachromosome #t21 #morealikethandifferent #theluckyfew #nothingdownaboutit #downsyndromerocks
So this kinda happened this evening, I'm in love 😍 @Regranned from @inkys_tattoo - Custom Down syndrome awareness tattoo I did on my Wife today for our little boy #Mrinky  #tattoos  #tattoo  #uktattoo  #tattooed  #tattooer  #tattooartist  #tattooart  #tattooink  #freshlyinked  #ink  #tattootime  #customtattoo  #tatt  #blackgrey  #tattooedgirls  #tattooedwomen  #newtattoo  #newink  #downsyndrome  #upwithdowns  #321  #extrachromosome  #t21  #morealikethandifferent  #theluckyfew  #nothingdownaboutit  #downsyndromerocks 
A few of the sets that have gone out recently! I love being able to customize these to each child's needs.

#specialneedschild #specialneeds #homiewithanextrachromie #nothingdownaboutit #upsyndrome #autismacceptance #autism #autismawareness
So this Netflix special that has been gaining publicity for all of the wrong reasons... I know I’ve ranted about it as well on my IG stories but I’ve had a few days to process this whole situation and I just wanted to say a bit more... As inappropriate and disrespectful as this stand-up is, I am even more disturbed by the platform that this has created for the public to target people like my girl and parents like me. This “comedian” directly targeted a parent with a DS child by sharing her post on his social media when she expressed her disapproval of his show. What ensued amongst his fans, followers, and trolls were comments, threats, and jokes that were even more vile and disgusting, and it terrifies me that I am raising my daughters in such a world. The DS community is a tight knit, supportive, and driven group. An attack on any one of us is felt within the whole group and we sure as hell aren’t just going to sit quietly. I am a mom, I am a special needs mom, and I will do everything in my power to protect my children and to change the world they live in for the better.
Also, thank you @todaysparent for their article on this subject, and reaching out to me for a comment. If you want to check it out, you can follow the link on the @todaysparent page.
So this Netflix special that has been gaining publicity for all of the wrong reasons... I know I’ve ranted about it as well on my IG stories but I’ve had a few days to process this whole situation and I just wanted to say a bit more... As inappropriate and disrespectful as this stand-up is, I am even more disturbed by the platform that this has created for the public to target people like my girl and parents like me. This “comedian” directly targeted a parent with a DS child by sharing her post on his social media when she expressed her disapproval of his show. What ensued amongst his fans, followers, and trolls were comments, threats, and jokes that were even more vile and disgusting, and it terrifies me that I am raising my daughters in such a world. The DS community is a tight knit, supportive, and driven group. An attack on any one of us is felt within the whole group and we sure as hell aren’t just going to sit quietly. I am a mom, I am a special needs mom, and I will do everything in my power to protect my children and to change the world they live in for the better. Also, thank you @todaysparent for their article on this subject, and reaching out to me for a comment. If you want to check it out, you can follow the link on the @todaysparent page.
Carnival is around the corner...so let‘s try some hats 🎩 
#hats #hüte #sombrero #karneval #carnival #girl #funny #theluckyfew #nothingdownaboutit #outandaboutwithmama #downsyndrom
Our little cowgirl 😍😂🎶 check out her square dancing😍🙊 Thank you to anyone who signed the online petition!! Over 35,000 votes so far and if thats not enough to make a statement in the Down syndrome community i don’t know what is!! Seriously, my niece is the sweetest happiest little human and i do not want to live in a society where making fun of her is ever okay. I feel so lucky to be her aunt💖 #ilovemyniece #downsyndrome #downsyndromebaby #nothingdownaboutit #sorryfortheweirdangle #squaredancing #dosido #littlecowgirl #takeitdown
Our little cowgirl 😍😂🎶 check out her square dancing😍🙊 Thank you to anyone who signed the online petition!! Over 35,000 votes so far and if thats not enough to make a statement in the Down syndrome community i don’t know what is!! Seriously, my niece is the sweetest happiest little human and i do not want to live in a society where making fun of her is ever okay. I feel so lucky to be her aunt💖 #ilovemyniece  #downsyndrome  #downsyndromebaby  #nothingdownaboutit  #sorryfortheweirdangle  #squaredancing  #dosido  #littlecowgirl  #takeitdown 
Biz Rüzgarla okulda her hafta karşılaşır, mutlaka hoşbeş etmeden geçmeyiz. #okularkadaşımrüzgar #downrocks #theluckyfew #nothingdownaboutit
There is no better feeling in the world than the feeling of knowing that your baby, the one who holds your entire heart, is healthy and free of sickness. 
A few months ago, Cooper had routine lab work performed. For those of you who do not know, children with Down Syndrome have an increased risk of diseases such as leukemia. For this reason, blood work is important to keep up on. Long story short: upon receiving the test results, the pediatrician had noticed a few results that were "off" and we were told to come back for a re-draw (in hopes that the results were inaccurate). Being a pediatric RN, and working with oncology patients, this had me worried sick. BUT, 1.5 months later and here we sit, all smiles because the results came back perfect. 
These last months of waiting have been pure heart ache for me. I haven't been able to sleep, I haven't been able to think straight and (although completely ashamed to admit this) I have questioned my faith. There have been several thoughts of "how could God potentially bring so much hurt and pain to my boy, and to my husband and I?" How foolish I am to have questioned the Lord?! He will always take care of us-- this I know. GOD is so GOOD. Praise Jesus Christ
There is no better feeling in the world than the feeling of knowing that your baby, the one who holds your entire heart, is healthy and free of sickness. A few months ago, Cooper had routine lab work performed. For those of you who do not know, children with Down Syndrome have an increased risk of diseases such as leukemia. For this reason, blood work is important to keep up on. Long story short: upon receiving the test results, the pediatrician had noticed a few results that were "off" and we were told to come back for a re-draw (in hopes that the results were inaccurate). Being a pediatric RN, and working with oncology patients, this had me worried sick. BUT, 1.5 months later and here we sit, all smiles because the results came back perfect. These last months of waiting have been pure heart ache for me. I haven't been able to sleep, I haven't been able to think straight and (although completely ashamed to admit this) I have questioned my faith. There have been several thoughts of "how could God potentially bring so much hurt and pain to my boy, and to my husband and I?" How foolish I am to have questioned the Lord?! He will always take care of us-- this I know. GOD is so GOOD. Praise Jesus Christ
This is one of the first calm moments in the past 2 days. It’s been filled with er visits, phone calls with drs, lots of meds, and trying to figure out how to make our girl comfortable.

We’ve ended up with pneumonia, restless sleeping, a nebulizer, and not being able to verbalize that.

I’ve had to watch my goal of gifting amazing girls a piece of jewelry for their special night slip away. 
But, we’ve learned a lot, Violet has hopefully learned we will always be there to protect her and advocate for her. 
So, if you have a friend who has a child with special needs and especially if their kiddo has been sick. Send them a text and ask how they are doing, tell them you are thinking of them, take them coffee, really anything. I’d be lost if I weren’t surrounded by my village from all over checking in on us. 
#nothingdownaboutit #theluckyfew #VioletRu #downsyndromeadoption #chinaadoption #changethefaceofbeauty #downsyndromeawareness
This is one of the first calm moments in the past 2 days. It’s been filled with er visits, phone calls with drs, lots of meds, and trying to figure out how to make our girl comfortable. We’ve ended up with pneumonia, restless sleeping, a nebulizer, and not being able to verbalize that. I’ve had to watch my goal of gifting amazing girls a piece of jewelry for their special night slip away. But, we’ve learned a lot, Violet has hopefully learned we will always be there to protect her and advocate for her. So, if you have a friend who has a child with special needs and especially if their kiddo has been sick. Send them a text and ask how they are doing, tell them you are thinking of them, take them coffee, really anything. I’d be lost if I weren’t surrounded by my village from all over checking in on us. #nothingdownaboutit  #theluckyfew  #VioletRu  #downsyndromeadoption  #chinaadoption  #changethefaceofbeauty  #downsyndromeawareness 
Dance party with @imaginedragons and my big sister, Hope🕺🏻#imaginedragons #dance
Joon is 2.5 and she has come a long way with her gross motor and physical activity. But still, she is not walking. She is cruising along furniture, walls and is walking with a tight grip of our fingers. But she isn’t independently taking steps. Yet... She has a walker, and enjoys using it outside. But in our tight spaced home,she prefers to butt scoot or spider crawl. I know she will walk, I know she has her own path and will go at her pace. Years from now, I will laugh at how silly I was for even worrying or being bummed that she wasn’t walking at this age. Then, I won’t even think about how much we have worked or tried and failed and tried again. But today, I know. I know how badly I want her to take those little steps or to run into my arms. I know what she is capable of and walking is only one small physical mountain to conquer. And then we will be off to the next... Because she can truly climb and move those mountains. @_justjoon_ #justjoon #physicaltherapy #grossmotor #walking #downrightperfect #nothingdownaboutit #theluckyfew 📷:@heather_holbrook_photography
Joon is 2.5 and she has come a long way with her gross motor and physical activity. But still, she is not walking. She is cruising along furniture, walls and is walking with a tight grip of our fingers. But she isn’t independently taking steps. Yet... She has a walker, and enjoys using it outside. But in our tight spaced home,she prefers to butt scoot or spider crawl. I know she will walk, I know she has her own path and will go at her pace. Years from now, I will laugh at how silly I was for even worrying or being bummed that she wasn’t walking at this age. Then, I won’t even think about how much we have worked or tried and failed and tried again. But today, I know. I know how badly I want her to take those little steps or to run into my arms. I know what she is capable of and walking is only one small physical mountain to conquer. And then we will be off to the next... Because she can truly climb and move those mountains. @_justjoon_ #justjoon  #physicaltherapy  #grossmotor  #walking  #downrightperfect  #nothingdownaboutit  #theluckyfew  📷:@heather_holbrook_photography
I’m so proud of him. But I’m so screwed. .
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#gunnardavid #crawling #littleman #climbing #imscrewed #bigboy #soproud #hessostrong #nothingdownaboutit
Biz bi temiz hava alıp geldik😁eğitimden sonra park keyfisi 😁 #downsendromu #downsyndrome #theluckyfew #nothingdownaboutit #t21 #parkday #mutluluk #kuzucuklar
Shout out to my Aunt Kelly for giving me this unicorn towel! 🦄🦄🦄
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#baby #armrolls #unicorn #happygirl #instacute #chicago #comfy #nothingdownaboutit #changingthefaceofbeauty #adorable #unicornparty #tuesday #babiesofinstagram
Our new website is officially live! 🎉🎉🎉
Our new website is officially live! 🎉🎉🎉
Repping my little brother Killian with my #TheLuckyFew decal! I love it! @ndssorg @ndssbuddywalk @upsideofdownsyndrome @micamay #NothingDownAboutIt #Trisomy21 #UpsideOfDown #DownSyndromeAwareness P.S. I made it! Let me know if you’d like one!
DONT FORGET TO USE THE CODE MIKEY20 AT CHECKOUT TO SAVE!
#Repost @alilsomethingextra321 (@get_repost)
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🖤G I V E A W A Y🖤 Starting today all orders will receive a FREE #theluckyfewtattoo car decal🖤 Today through the end of the month or until supplies run out! Decals are available for purchase on the website. Link in @alilsomethingextra321 profile .
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#alilsomethingextra #ds #t21 #321 #downsyndrome  #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeisbetterwithyou #nothingdownaboutit #homiewithanextrachromie #t21awareness #rockthe21 #rockin #rockinit #shouttheirworth #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks
#downrightperfect
DONT FORGET TO USE THE CODE MIKEY20 AT CHECKOUT TO SAVE! #Repost  @alilsomethingextra321 (@get_repost) ・・・ 🖤G I V E A W A Y🖤 Starting today all orders will receive a FREE #theluckyfewtattoo  car decal🖤 Today through the end of the month or until supplies run out! Decals are available for purchase on the website. Link in @alilsomethingextra321 profile . . . #alilsomethingextra  #ds  #t21  #321  #downsyndrome  #upsyndrome  #theluckyfew  #morealikethandifferent  #changingthefaceofbeauty  #t21love  #lifeisbetterwithyou  #nothingdownaboutit  #homiewithanextrachromie  #t21awareness  #rockthe21  #rockin  #rockinit  #shouttheirworth  #photooftheday  #dsdn  #dsrocks  #downsyndromeawareness  #teamds  #downsyndromelove  #extrachromosome  #specialneeds  #downsyndromerocks  #downrightperfect 
Such a fun day today! I got speaking to a Nanna in soft play who was there with her Grandson, she was telling me her daughter is engaged and her fiance has down syndrome! It was so nice to hear such positive stories and hear about her experience raising a child with a disability ♥️
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#everylifematters #positive #softplay #softplayfun #blondie #chat #sharingstories #morealikethandifferent #nothingdownaboutit #downsyndomelove #baby #mystory #instababy #babiesofinstagram #downsyndromeawareness #t21 #dsdn #changingthefaceofbeauty #lifeisbetterwithyou #theluckyfew #changing #future
Such a fun day today! I got speaking to a Nanna in soft play who was there with her Grandson, she was telling me her daughter is engaged and her fiance has down syndrome! It was so nice to hear such positive stories and hear about her experience raising a child with a disability ♥️ . . . #everylifematters  #positive  #softplay  #softplayfun  #blondie  #chat  #sharingstories  #morealikethandifferent  #nothingdownaboutit  #downsyndomelove  #baby  #mystory  #instababy  #babiesofinstagram  #downsyndromeawareness  #t21  #dsdn  #changingthefaceofbeauty  #lifeisbetterwithyou  #theluckyfew  #changing  #future 
När ”vi” lagade mat ikväll;) 💕 #florence #foreverornever #tisdagsmiddag #nothingdownaboutit #t21 #mat #matlagning