I started writing in a notebook about 3 days after going into hospital last year with a kidney stone and the 16th is when they told me that I had some form of blood cancer. My sister bought me the notebook as a way of coping with what would happen each day. To help me journal how I felt or what doctors had said or what tests I had. As you can see from day one I started with a positive affirmation. This changed around the 26th June as that day I found out exactly the type of cancer I was facing so each day I wrote "I have lymphoma and I'm going to beat it." Earlier this year when it came back, my statement every day was "I have lymphoma and I'm going to beat it, again!". It's quite confronting looking back through this but at the same time gives me strength to keep pushing on to full recovery now I'm back in remission again. #nonhodgkinslymphoma#remission
Today I've reached another milestone in my cancer journey. 6 months ago today I received my last chemo treatment...This day is something I've really focused on since I was told I had ovarian cancer...what this means is that I'm platinum sensitive...this means that if I was to recur, my doctors will have more choices of treatment drugs to choose from then if I had recurred before 6 months in remission which would have made me platinum resistant...so this is huge...this is a great thing...another thing to be grateful for...what many people don't realize is that even after you hear the word remission, your cancer journey does not end. The fear is still there. I think it will forever be there. And that's okay. I still believe I was put on this journey for a reason...the fear is a reminder of what I've accomplished, how strong I am and honestly how blessed my life is. It's changed me...and I'm embracing that! As I reach this milestone, I'd like to thank everyone who has been there for me, Keith & the kids. We have not forgotten. Our family, our friends, our tribe, each and every person who reached out, sent a meal, a message, a Snapchat...we love you, and thank God daily for bringing you into our lives! When I was first diagnosed and all throughout treatment I was addicted to the web and learning everything I possibly could about ovarian cancer...I post about my journey because I spent many days and nights reading about others journeys looking for hope and that truly helped...so again...in an attempt to make this mess a message, I post updates to give that someone hope! #ovariancancer#remission#Godisgood#foleyville#hope#platinumsensitive
There I was in the pantry door, about to cook a box of mac and cheese, and eat the whole thing, straight out of the pot. I made sure to recognize that this craving wasn't out of hunger or nutritional deficiency, but rather a desire to avoid dealing with a difficult emotion - a behavior no doubt developed in childhood. I begrudgingly piled some random stuff on a plate, and it actually looked appetizing. I normally would've gone the mac and cheese route, so I'll consider this one good rep toward making the same choice more likely in the future. #paleodiet#primalfood#lchflifestyle#mindfuleating#scanxiety#hodgkinslymphoma#remission
How would it feel if you were able to say that you SUCCEEDED in overcoming a health condition?
Maybe you have an autoimmune condition like me?
Maybe you have high cholesterol?
Maybe you are borderline diabetic?
When I was first diagnosed with discoid lupus I was completely overwhelmed with emotions. Even right now, I am flooded with emotions writing this. But my tears now are because of happiness and not fear. I remember thinking, why? Why was my own body turning against me? Such a small number of people are diagnosed with this, why ME? I was absolutely panicked that my face would become so scarred and disfigured that my children wouldn’t want to be out in public with me. 😔 My anxiety and fear of what this disease can do turned into full blown panic attacks. Complete with a trip to the urgent care thinking I was having a heart attack😥 I remember being so depressed. Was this was going to be my new ‘normal’? This is what my life is going to be like? After seeing several doctors and getting a few symptoms under control, I made the decision that I was NOT going to sit back and accept that this was just the way things were going to be. I was not going to let this disease define me. I made the CHOICE to do everything in my power to take care of ME. From the inside out! I changed the way I eat, fully committed to exercise (instead of just when I felt like it!) researched the benefits of super nutrition and how it can help you HEAL your body. This journey is not one that has an expiration date for me. It has become my lifestyle. And I can say without a doubt, it was the BEST decision I have ever made ✨ I will say, that I am no different than you. There are still days that I don’t want to workout. There are still days I really want to eat pizza for every meal 🍕😂 and I still have some every now and then 😉 I don’t have a magical solution to get you motivated everyday. But, you can make the same CHOICE that I did. You can be courageous and take that first step❤️ So how does it feel? To say that your health condition is in remission? Or that it is well controlled? Exactly how you would imagine, ABSOLUTELY AMAZING!
This is what a chronic GVHD looks like.
GVHD or graft vs host disease is when the new immune system generated from the new bone marrow attacks the host cells mistaken them as a foreign entity. This usually happens after a stem cell transplant and the donor's stem cells are not 100% match. In my case a 50% match with my brother.
Symptoms usually vary from minor skin rash to fatal organ failure.
It looks ugly specially when having it on my face. But I'll take it everyday instead of a fucking cancer.
The best is yet to come ❤💙💚💛💜 .
This is Tobias and his ward 84 room mate Matthew four months ago and now. Seeing them both looking so well and playing together in Ward 84 Daycase today was wonderful. Finding out that they are still both in remission was even better! We can't wait to go and play in Matthew's special garden that his friends and family made him while he was poorly on the ward.
Scan results day couldn't have gone better. No new tumours and the bit of residual ?dead tumour "may have even reduced in size"! Better news that we ever could have expected! Even more promising is the fact that Tobias has now been in remission for 4 months! That's 4 months closer to the magical 5 year mark! Also, as his consultant reminded us today, the children who relapsed like Tobias continued to do so relatively fast after finishing further chemo. So the longer he stays in remission after finishing treatment the better his chances become.
After everything that has happened his consultant doesn't want us to get too excited and says he still views Toby's scans with an air of caution and he will continue to be scanned 6 weekly until the oncologists and radiologists decide otherwise.
Overall a great week for Toby, Matthew and our wonderful little friend Molly who found out she was in remission yesterday after bravely battling an aggressive rhabdoid tumour. We hold in our hearts every day the children still fighting and the angels.
Thanks for all of your love, support and prayers. Hoping that Tobias continues down this positive road and that in four years and 8 months time when he gets the all clear all his funds raised can go to the Grace Kelly Ladybird Trust and further their great work funding awareness and research for rare aggressive tumours like Tobias' and angel Grace's.
All our love ♥️ .
Click link in bio to read basic information about breast cancer such as what it is and how it forms, as well as the signs and symptoms of the disease. Access Staffing supports October Breast Cancer Awareness Month.#AccessStaffing#BCA @americancancersociety
Come support Maple Tree Cancer Alliance TODAY from 6:30 AM-8:00 PM!
You can come for breakfast, lunch, dinner OR order catering for your office. Just mention Maple Tree as you give them your order!
2360 N. Fairfield Road, Beavercreek, Ohio 45431
Felt the urge to put my bare feet on the Earth this morning. ✌🏻 With all of the "doing" that I've been doing (starting to write my book, doing @nutritionschool business coursework, working full time and thriving with #crohnsdisease ), I haven't gotten outside to enjoy #nature as much as I'd like during this beautiful season. 🍂🍁 This morning, with the cool air in my lungs + the crunchy leaves and dew drenched grass under my feet, I remembered two important things that the fall season shares with us: • how important it is to let go of things that no longer serve us
• how important it is to shine bright and show your true, authentic colors with the 🌎
Even if you are working full time AND building a business AND thriving with #illness AND maintaining genuine, authentic, loving relationships AND sharing your message with the world, don't forget to step outside of your door every once in a while. Mother Nature always has reminders to share with us if we look for them and they are always, always worth seeing. 💜
Good news everybody! So I'm still in remission according to the doctor. Next appointment is in 2 months just before Christmas. After that the appointments should have more delay in between. #nonhodgkinslymphoma#remission
Hey everyone! Happy Wednesday 🐪Today I had my first appointment at my new hospital for all things polyp related, hopefully getting to the bottom of why I got ill at such a young age 🕵🏼🕵🏻♀️ meant going all the way to zone 4!!! Bloody missions away 😉 This meant my mum came up with me which was nice as I don’t see her much when I’m at uni 📖 so met her at London Bridge and we stopped back there after my appointment as we had definitely earned some food! 😩 Then we saw this stall at the market, the free from bakehouse... so obviously we went for a look 😏 This stall had loads of lush goodies to spice up ur Wednesday 🕺🏼 so my mum treated me to a sea salt and choc brownie, and a banana and choc chip bread 😛😍🍫🍌🍌🍌 (the brownie is the best I’ve ever had... and I bake a good gf brownie I would say 😉) lots of variety and I’d Defo check them out if you’re ever about. Hope these pics make you hungry!! Will defo be back here to pick up some more treats 😛😛😛______________________________________________ #cancer#remission#coeliac#glutenfree#freefrom#freefrombakehouse#london#londonbridge#boroughmarket#bakery#almond#brownie#cake#granola#vegan#sweettooth
Im really practicing being a squeaky wheel bcz as an #entrepreneur doing #indiefilm I realise it's a lot about being a mouthpiece for your work alongside creativity. Ima need ur support for my how to survive #breastcancer#documentary launching #crowdfund soon for ur investment so like my page it's my most important film yet💜