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Busy day!! Santa Claus came to see sleepy Colton today! ❤🎄 Colton's been a very good boy this year. :) He also had other visitors. Infectious Disease, Nephrology (kidney docs), & an occupational therapist stopped in to see him too.

Colton's chest discoloration looks a little worse, so they went ahead & did a chest/neck ultrasound to check for muscle breakdown. (Don't know results yet.) With Colton's history & to be on the safe side, they started him on an antibiotic, Clindamycin. We really hope this leads nowhere, but prefer to be extra cautious. 
Nephrology ordered more labs & an ultrasound to dig deeper into why Colton is having so many problems with fluid. He's on a ton of diuretics & still not urinating enough. 
Feeds are also still an issue. Colton is still having slow motility, so we are constantly trying to figure out how to keep up with his nutrition without pushing him too much. 
A care conference for Colton was held today to make sure everyone was on the same page. Our frustrations were addressed & they discussed taking things much slower with Colton, which is something we've wanted anyways. Although spending another Christmas, birthday, new year, etc here again is not ideal, all we want is for Colton to be in a very good place before we go home. (Which will not be anytime soon.) We still plan on spending time together as a family & that's what's important, not whether or not we are at home or in a hotel & hospital. Next time we go home, we don't want to come right back for fluid issues or an illness. In the care conference, Colton's cardiologist also talked about getting C back into the cath lab in the near future. (I will explain more about this at a later date.) Overall, the conference went very well.

While Colton was busy at Riley, Hayden had a big day too. He had his very 1st school Christmas program. He did very well & actually took this picture "for Colton" so Colton could see him. I just love how much he cares for his little brother. ❤😍
Busy day!! Santa Claus came to see sleepy Colton today! ❤🎄 Colton's been a very good boy this year. :) He also had other visitors. Infectious Disease, Nephrology (kidney docs), & an occupational therapist stopped in to see him too. Colton's chest discoloration looks a little worse, so they went ahead & did a chest/neck ultrasound to check for muscle breakdown. (Don't know results yet.) With Colton's history & to be on the safe side, they started him on an antibiotic, Clindamycin. We really hope this leads nowhere, but prefer to be extra cautious. Nephrology ordered more labs & an ultrasound to dig deeper into why Colton is having so many problems with fluid. He's on a ton of diuretics & still not urinating enough. Feeds are also still an issue. Colton is still having slow motility, so we are constantly trying to figure out how to keep up with his nutrition without pushing him too much. A care conference for Colton was held today to make sure everyone was on the same page. Our frustrations were addressed & they discussed taking things much slower with Colton, which is something we've wanted anyways. Although spending another Christmas, birthday, new year, etc here again is not ideal, all we want is for Colton to be in a very good place before we go home. (Which will not be anytime soon.) We still plan on spending time together as a family & that's what's important, not whether or not we are at home or in a hotel & hospital. Next time we go home, we don't want to come right back for fluid issues or an illness. In the care conference, Colton's cardiologist also talked about getting C back into the cath lab in the near future. (I will explain more about this at a later date.) Overall, the conference went very well. While Colton was busy at Riley, Hayden had a big day too. He had his very 1st school Christmas program. He did very well & actually took this picture "for Colton" so Colton could see him. I just love how much he cares for his little brother. ❤😍
Our little ⭐️.....I may be slightly biased but you are beautiful Amelia.....💕 #homiewithanextrachromie #morealikethandifferent #changingthefaceofbeauty #downsyndrome #t21 #theluckyfew #theamazingamelia
Eating blueberries and making the cutest faces. #theluckyfew #lifeisbetterwithyou #nothingdownaboutit #downsyndrome
Tomorrow we celebrate Lucia in Sweden. I sing Silent night and use signs as support. I'll do that at school tomorrow for the whole high school 😀👍👸
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Imorgon firar vi Lucia. Jag sjunger Stilla natt och använder tecken som stöd. Det skall jag göra för hela gymnasiet imorgon 😀👍👸
Tomorrow we celebrate Lucia in Sweden. I sing Silent night and use signs as support. I'll do that at school tomorrow for the whole high school 😀👍👸 • Imorgon firar vi Lucia. Jag sjunger Stilla natt och använder tecken som stöd. Det skall jag göra för hela gymnasiet imorgon 😀👍👸
Lila had her three month cardiologist follow up today and it was all good news! ❤️ She had an EKG (second pic) and kept trying to pull the wires off, until I gave her my finger to hold. Her EKG was great and the doctor was impressed overall with her development. 🙌🏻 We go back in three months and will do another ECHO then. ❤️ Last pic is after bath tonight, because her little face 😍
Lila had her three month cardiologist follow up today and it was all good news! ❤️ She had an EKG (second pic) and kept trying to pull the wires off, until I gave her my finger to hold. Her EKG was great and the doctor was impressed overall with her development. 🙌🏻 We go back in three months and will do another ECHO then. ❤️ Last pic is after bath tonight, because her little face 😍
Echando de menos a nuestros niños pero disfrutando mucho!..me muero de la risa con este vídeo!!! 😍😂😍 Pepita talking to herself!!!..such a cute and funny video. We are having a children-free break and enjoying every minute..but also missing the children. When Pepita grows up we would love to do a family trip somewhere, someday! #pepitamola #superpepita #extrachromosomeextracute #theluckyfew #t21 #downsyndromeawareness #differentcapabilities #changingthefaceofbeauty
Back in swim lessons. My favorite moments are when she interacts with the other students and instructors and moments like these when she finds me in the crowd of parents and waves with such joy! 😊 #blessed ❤️
Back in swim lessons. My favorite moments are when she interacts with the other students and instructors and moments like these when she finds me in the crowd of parents and waves with such joy! 😊 #blessed  ❤️
Pepita dominando las escaleras del cole..sin ayuda! No se puede ser más independiente. Pepicius Maximus!!! 🔝🔝🔝 Pepita’s doesn’t want any help with the stairs..she got it all under control! That’s the way Peps ;) #pepitamola #superpepita #extrachromosomeextracute #theluckyfew #t21 #downsyndromeawareness #differentcapabilities #changingthefaceofbeauty
Compartiendo momentos con una amiga como es Miryam Gallego. Aún no tienes el calendario del cole de Noa? No esperes más, se están agotando! #miryamgallego también ha querido colaborar con la #fundacióngilgayarre. Entra en www.gilgayarre.org y sabrás cómo conseguirlo

#elcuadernodenoa @elcuadernodenoa @fundaciongilgayarre #downaddicts #actrizespañola #aguilaroja #miryam_gallego_cf #differentcapabilities #downup 
#portimismo #sindromededown
#tengoundownextraordinario #mundodown #preciousmoments #familiadown #downlovers #capacidadesdiferentes #t21rocks #upsyndrome #fundaciondownup #extrachromosomeextracute #downmagazine #t21 #bestoflife #masupquedown #downsyndrome #familydown #nothingdownaboutit #changingthefaceofbeauty
Compartiendo momentos con una amiga como es Miryam Gallego. Aún no tienes el calendario del cole de Noa? No esperes más, se están agotando! #miryamgallego  también ha querido colaborar con la #fundacióngilgayarre . Entra en www.gilgayarre.org y sabrás cómo conseguirlo #elcuadernodenoa  @elcuadernodenoa @fundaciongilgayarre #downaddicts  #actrizespañola  #aguilaroja  #miryam_gallego_cf  #differentcapabilities  #downup  #portimismo  #sindromededown  #tengoundownextraordinario  #mundodown  #preciousmoments  #familiadown  #downlovers  #capacidadesdiferentes  #t21rocks  #upsyndrome  #fundaciondownup  #extrachromosomeextracute  #downmagazine  #t21  #bestoflife  #masupquedown  #downsyndrome  #familydown  #nothingdownaboutit  #changingthefaceofbeauty 
Cómo me miras, mi niña! qué atenta estás a todo lo que digo. 
Me encanta que prestes atención a todo lo que ocurre a tu alrededor. Eso hará que aprendas mas cosas.
#elcuadernodenoa @irma.pct  #downaddicts #diagnosticoprenatal #differentcapabilities #downup
#portimismo #sindromededown
#tengoundownextraordinario #mundodown #babydown #preciousmoments #familiadown #downlovers #capacidadesdiferentes #t21rocks #upsyndrome #fundaciondownup #extrachromosomeextracute #downmagazine #t21 #bestoflife #masupquedown #downsyndrome #familydown #nothingdownaboutit #changingthefaceofbeauty
Cómo me miras, mi niña! qué atenta estás a todo lo que digo. Me encanta que prestes atención a todo lo que ocurre a tu alrededor. Eso hará que aprendas mas cosas. #elcuadernodenoa  @irma.pct #downaddicts  #diagnosticoprenatal  #differentcapabilities  #downup  #portimismo  #sindromededown  #tengoundownextraordinario  #mundodown  #babydown  #preciousmoments  #familiadown  #downlovers  #capacidadesdiferentes  #t21rocks  #upsyndrome  #fundaciondownup  #extrachromosomeextracute  #downmagazine  #t21  #bestoflife  #masupquedown  #downsyndrome  #familydown  #nothingdownaboutit  #changingthefaceofbeauty 
Fast asleep clutching his fave toys! 😍 Hes obviously learnt that living with a toddler you need to gaurd things in your sleep! 😂😂 Also can we just take a second to appreciate his little fluffy tuft of hair?! 💙💙
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#sleep #babysofinsta #toys  #ongaurd #keepthemclose #faves #thathair #bunny #naptime #beautiful #cutebaby #changingthefaceofbeauty #ctfob #morealikethandifferent #team21 #special #downsyndromeawareness #downsyndrome #dsdn #nothingdownaboutit #downsyndomelove #downrightbeautiful #love
Fast asleep clutching his fave toys! 😍 Hes obviously learnt that living with a toddler you need to gaurd things in your sleep! 😂😂 Also can we just take a second to appreciate his little fluffy tuft of hair?! 💙💙 . . . #sleep  #babysofinsta  #toys  #ongaurd  #keepthemclose  #faves  #thathair  #bunny  #naptime  #beautiful  #cutebaby  #changingthefaceofbeauty  #ctfob  #morealikethandifferent  #team21  #special  #downsyndromeawareness  #downsyndrome  #dsdn  #nothingdownaboutit  #downsyndomelove  #downrightbeautiful  #love 
#TBT #tbthursday Después de 18 días en el hospital por fin me fui a casa. Desde siempre mi papi me ha sostenido con un amor que es imposible de superar. Te amo papi, desde siempre 😍 
#TeamamosCamila #muñequita #ojitosdealmendra #love #baby #beatiful #photooftheday #photogenic #babygirl #fashion #babylook #babyfashion #extrachromosomeextracute #extrachromosomeextralove #extrachromosomesrock #extrachromosome #t21rocks #sindromededown #upsindrome #trisomy21 #trisomia21 #inclusion #babiesofinstagram #inclusionisthenewcool #changingthefaceofbeauty  #downsyndrome #downaddicts
#TBT  #tbthursday  Después de 18 días en el hospital por fin me fui a casa. Desde siempre mi papi me ha sostenido con un amor que es imposible de superar. Te amo papi, desde siempre 😍 #TeamamosCamila  #muñequita  #ojitosdealmendra  #love  #baby  #beatiful  #photooftheday  #photogenic  #babygirl  #fashion  #babylook  #babyfashion  #extrachromosomeextracute  #extrachromosomeextralove  #extrachromosomesrock  #extrachromosome  #t21rocks  #sindromededown  #upsindrome  #trisomy21  #trisomia21  #inclusion  #babiesofinstagram  #inclusionisthenewcool  #changingthefaceofbeauty  #downsyndrome  #downaddicts 
#rockon
The perfect tree Grew very long ago,
And it was not decked with silver Or with ornaments of gold... Diego was on the hunt for the Perfect Tree! On his way home, as happy as can be, he's on a mission to deliver the perfect tree! 🎄🎶🎄🎶 @carters @changingthefaceofbeauty @oshkoshkids @petegarciaography #downsyndromeawareness #eldiegoisfamous #blessedlife #t21 #changingthefaceofbeauty #lovecarters #oshkoshkid
Our dear friend Emmy’s surgery has got me on edge. I am reminded that every single day is a gift, that’s why it’s called the present. It also has me thinking about the beautiful power of prayer and coming together as a community to lift each other up. My heart is with precious Emmy, her beautiful mama Lena, and her brother Malachi. Visit @heartofgraceadoption and show her lots of love! I’d love for her to know how many people are praying for her family! You are loved! ❤️(📸 @kararohlphoto)
Our dear friend Emmy’s surgery has got me on edge. I am reminded that every single day is a gift, that’s why it’s called the present. It also has me thinking about the beautiful power of prayer and coming together as a community to lift each other up. My heart is with precious Emmy, her beautiful mama Lena, and her brother Malachi. Visit @heartofgraceadoption and show her lots of love! I’d love for her to know how many people are praying for her family! You are loved! ❤️(📸 @kararohlphoto)
This baby goes everywhere now 👶🏻
This baby goes everywhere now 👶🏻
Check out this gorgeous and oh so #mightymum Emma! Like so many mums she deserves a round of 👏👏 a rest and some wine 🥂 for smashing a year of therapy and everything else that goes along with being mum to a differently abled child 🖤 Mums tale some time for yourself this festive season xx We can’t be mighty if we don’t recharge 🔋
Check out this gorgeous and oh so #mightymum  Emma! Like so many mums she deserves a round of 👏👏 a rest and some wine 🥂 for smashing a year of therapy and everything else that goes along with being mum to a differently abled child 🖤 Mums tale some time for yourself this festive season xx We can’t be mighty if we don’t recharge 🔋
There's something wonderful about Christmas jammies (Which is why we secretly wear them year round) 🎄😴
There's something wonderful about Christmas jammies (Which is why we secretly wear them year round) 🎄😴
This was dope💪🏾💪🏾💪🏾💪🏾 #Repost @rogerbonds (@get_repost)
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I absolutely love this young lady and determination. @diddy anythings possible is her slogan. Repost from @tajia_love using @RepostRegramApp - I took about 4 steps!!! I think I see my dream coming true 🌟🌟
Yo di 4 pasos! Creo que veo mi sueño llegando 🌟🌟 #cerebralpalsy #cerebralpalsyawareness #tajiasjourney #proudtobeme #cpwarrior #wheelchair #happy #unstoppable #iamadaptive #specialneeds #beautiful #inspiration #impossibleisnothing #latina #disabilities #blessed #changingthefaceofbeauty #walking #takingsteps #meamoynomeimporta
This was dope💪🏾💪🏾💪🏾💪🏾 #Repost  @rogerbonds (@get_repost) ・・・ I absolutely love this young lady and determination. @diddy anythings possible is her slogan. Repost from @tajia_love using @RepostRegramApp - I took about 4 steps!!! I think I see my dream coming true 🌟🌟 Yo di 4 pasos! Creo que veo mi sueño llegando 🌟🌟 #cerebralpalsy  #cerebralpalsyawareness  #tajiasjourney  #proudtobeme  #cpwarrior  #wheelchair  #happy  #unstoppable  #iamadaptive  #specialneeds  #beautiful  #inspiration  #impossibleisnothing  #latina  #disabilities  #blessed  #changingthefaceofbeauty  #walking  #takingsteps  #meamoynomeimporta 
#EmmettSlade was getting festive making decorations for his classroom door! 😍🎄❄️⛄️
#EmmettSlade  was getting festive making decorations for his classroom door! 😍🎄❄️⛄️
School Play today! Played the role of a shepherdess ❤️
School Play today! Played the role of a shepherdess ❤️
Busy day!! Santa Claus came to see sleepy Colton today! ❤🎄 Colton's been a very good boy this year. :) He also had other visitors. Infectious Disease, Nephrology (kidney docs), & an occupational therapist stopped in to see him too.

Colton's chest discoloration looks a little worse, so they went ahead & did a chest/neck ultrasound to check for muscle breakdown. (Don't know results yet.) With Colton's history & to be on the safe side, they started him on an antibiotic, Clindamycin. We really hope this leads nowhere, but prefer to be extra cautious. 
Nephrology ordered more labs & an ultrasound to dig deeper into why Colton is having so many problems with fluid. He's on a ton of diuretics & still not urinating enough. 
Feeds are also still an issue. Colton is still having slow motility, so we are constantly trying to figure out how to keep up with his nutrition without pushing him too much. 
A care conference for Colton was held today to make sure everyone was on the same page. Our frustrations were addressed & they discussed taking things much slower with Colton, which is something we've wanted anyways. Although spending another Christmas, birthday, new year, etc here again is not ideal, all we want is for Colton to be in a very good place before we go home. (Which will not be anytime soon.) We still plan on spending time together as a family & that's what's important, not whether or not we are at home or in a hotel & hospital. Next time we go home, we don't want to come right back for fluid issues or an illness. In the care conference, Colton's cardiologist also talked about getting C back into the cath lab in the near future. (I will explain more about this at a later date.) Overall, the conference went very well.

While Colton was busy at Riley, Hayden had a big day too. He had his very 1st school Christmas program. He did very well & actually took this picture "for Colton" so Colton could see him. I just love how much he cares for his little brother. ❤😍
Busy day!! Santa Claus came to see sleepy Colton today! ❤🎄 Colton's been a very good boy this year. :) He also had other visitors. Infectious Disease, Nephrology (kidney docs), & an occupational therapist stopped in to see him too. Colton's chest discoloration looks a little worse, so they went ahead & did a chest/neck ultrasound to check for muscle breakdown. (Don't know results yet.) With Colton's history & to be on the safe side, they started him on an antibiotic, Clindamycin. We really hope this leads nowhere, but prefer to be extra cautious. Nephrology ordered more labs & an ultrasound to dig deeper into why Colton is having so many problems with fluid. He's on a ton of diuretics & still not urinating enough. Feeds are also still an issue. Colton is still having slow motility, so we are constantly trying to figure out how to keep up with his nutrition without pushing him too much. A care conference for Colton was held today to make sure everyone was on the same page. Our frustrations were addressed & they discussed taking things much slower with Colton, which is something we've wanted anyways. Although spending another Christmas, birthday, new year, etc here again is not ideal, all we want is for Colton to be in a very good place before we go home. (Which will not be anytime soon.) We still plan on spending time together as a family & that's what's important, not whether or not we are at home or in a hotel & hospital. Next time we go home, we don't want to come right back for fluid issues or an illness. In the care conference, Colton's cardiologist also talked about getting C back into the cath lab in the near future. (I will explain more about this at a later date.) Overall, the conference went very well. While Colton was busy at Riley, Hayden had a big day too. He had his very 1st school Christmas program. He did very well & actually took this picture "for Colton" so Colton could see him. I just love how much he cares for his little brother. ❤😍
Lila had her three month cardiologist follow up today and it was all good news! ❤️ She had an EKG (second pic) and kept trying to pull the wires off, until I gave her my finger to hold. Her EKG was great and the doctor was impressed overall with her development. 🙌🏻 We go back in three months and will do another ECHO then. ❤️ Last pic is after bath tonight, because her little face 😍
Lila had her three month cardiologist follow up today and it was all good news! ❤️ She had an EKG (second pic) and kept trying to pull the wires off, until I gave her my finger to hold. Her EKG was great and the doctor was impressed overall with her development. 🙌🏻 We go back in three months and will do another ECHO then. ❤️ Last pic is after bath tonight, because her little face 😍
“Seth was born 3 months premature weighing 2lbs, 4ozs. We were told to say our goodbyes on 3 separate occasions and Seth was given a 1% chance of survival due to necrotizing enterocolitis, severe brain bleeds, and sepsis. First, they told us he would never come home. Once home, they told us he would never sit up, walk, or talk. Once the school years came, they told us he would never follow directions nor have the ability to be educated. For years, all of Seth’s specialists had underestimated the fight within him. Through therapy, parent advocacy, and relentless determination, Seth continues to defy all odds.

Never let acronyms define who your child is. Seth is not ASD, PVL, CP, SPD, & OCD. If you focus on all that he can’t do, you’ll never see how amazing Seth truly is. He’s a child who taught himself to read at 18 months. He’s a six-year-old who knows six languages. And most importantly, Seth is a happy little boy marking his path through life with fiery determination; bound to do great things.” 💙💚✨ @littlemanbigplans 
#enableawareness #autismawareness #cerebralpalsyawareness
“Seth was born 3 months premature weighing 2lbs, 4ozs. We were told to say our goodbyes on 3 separate occasions and Seth was given a 1% chance of survival due to necrotizing enterocolitis, severe brain bleeds, and sepsis. First, they told us he would never come home. Once home, they told us he would never sit up, walk, or talk. Once the school years came, they told us he would never follow directions nor have the ability to be educated. For years, all of Seth’s specialists had underestimated the fight within him. Through therapy, parent advocacy, and relentless determination, Seth continues to defy all odds. Never let acronyms define who your child is. Seth is not ASD, PVL, CP, SPD, & OCD. If you focus on all that he can’t do, you’ll never see how amazing Seth truly is. He’s a child who taught himself to read at 18 months. He’s a six-year-old who knows six languages. And most importantly, Seth is a happy little boy marking his path through life with fiery determination; bound to do great things.” 💙💚✨ @littlemanbigplans #enableawareness  #autismawareness  #cerebralpalsyawareness 
12.12.17 #latergram Our last walk down these halls for Fall picture retakes. Our 1st year being ill for orig dates and class pictures. #goingwiththeflow #thisismyadventure #preking #graduationyear #kindergartenherewecome #ootd #bowtie #downsyndromeawareness #morealikethandifferent #makingadifference #changingthefaceofbeauty #myworld #blessedandgrateful
We have been having fun finding ways to sneak therapy into playtime, thankfully Annie is cool with it because she has no idea 😂
We have been having fun finding ways to sneak therapy into playtime, thankfully Annie is cool with it because she has no idea 😂
Haven't been on social media the past couple of days. I've felt so overwhelmed with everything and like i was spending to much time trying to respond to everyone vs spending time with Myah. Myah deserves all my attention, i will still respond to everyone it may just take me a minute. Anyone else feel this way?, what do you do to help you get more organized about it? .
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#extrachromosomeextracute #trisomy21 #t21 #morealikethandifferent #trisomy21love #downsyndrome #downsyndromeawareness #downsyndromelove  #like  #twomommies #twomoms #2moms #downsyndromelove #downrightperfect #nothingdownaboutit #instababy #babiesofinstagram #babieswithstyle #myahnicoleflores #theluckyfew #dsdn #changingthefaceofbeauty #blogger #downmagazine #ctfob #brandrep #momlife #momarazzi
Haven't been on social media the past couple of days. I've felt so overwhelmed with everything and like i was spending to much time trying to respond to everyone vs spending time with Myah. Myah deserves all my attention, i will still respond to everyone it may just take me a minute. Anyone else feel this way?, what do you do to help you get more organized about it? . . . . #extrachromosomeextracute  #trisomy21  #t21  #morealikethandifferent  #trisomy21love  #downsyndrome  #downsyndromeawareness  #downsyndromelove  #like  #twomommies  #twomoms  #2moms  #downsyndromelove  #downrightperfect  #nothingdownaboutit  #instababy  #babiesofinstagram  #babieswithstyle  #myahnicoleflores  #theluckyfew  #dsdn  #changingthefaceofbeauty  #blogger  #downmagazine  #ctfob  #brandrep  #momlife  #momarazzi 
Hola! 🌸
Y hoy Naty ha comenzado a mantenerse de pie por más tiempo! SÚPER FELICES! De allí la importancia de recibir atención temprana! Es muy muy importante que las mamis que recién hayan tenido o vayan a tener un hijo con #SD organicen las terapias lo antes posible, de eso dependerán los avances de sus hijos.
#purelove #babydown #downsyndromeawareness #theluckyfew #elamornocuentacromosomas #elsdnoesunaenfermedad #SD #t21 #NatyFlower #NatyCampeona #Natillita #NatyGift #loveU #mylittleflower #youaremysunshine #love #respect #inclusion #diversity #abilities #like4like #downaddicts #extracromosomeextracute #nothingdownaboutit #changingthefaceofbeauty #upsyndrome #cutebaby #portimismo #atenciontemprana #progreso
Hola! 🌸 Y hoy Naty ha comenzado a mantenerse de pie por más tiempo! SÚPER FELICES! De allí la importancia de recibir atención temprana! Es muy muy importante que las mamis que recién hayan tenido o vayan a tener un hijo con #SD  organicen las terapias lo antes posible, de eso dependerán los avances de sus hijos. #purelove  #babydown  #downsyndromeawareness  #theluckyfew  #elamornocuentacromosomas  #elsdnoesunaenfermedad  #SD  #t21  #NatyFlower  #NatyCampeona  #Natillita  #NatyGift  #loveU  #mylittleflower  #youaremysunshine  #love  #respect  #inclusion  #diversity  #abilities  #like4like  #downaddicts  #extracromosomeextracute  #nothingdownaboutit  #changingthefaceofbeauty  #upsyndrome  #cutebaby  #portimismo  #atenciontemprana  #progreso 
Listen woman. I am hungry. Don’t make me go in that pantry and make something for myself! #feedme
Listen woman. I am hungry. Don’t make me go in that pantry and make something for myself! #feedme 
Taking down today's advent card • Each days card has instructions for a hidden present • A few days ago he got a book to which he said "no, present" so I guess books are not considered presents anymore? (Even though he literally spends hours a day reading???)• I tried again today with another book which he seemed the accept better!!🖤
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#adventcalendar #advent #tradition #christmasiscoming #earlyreader #lifewithds
Taking down today's advent card • Each days card has instructions for a hidden present • A few days ago he got a book to which he said "no, present" so I guess books are not considered presents anymore? (Even though he literally spends hours a day reading???)• I tried again today with another book which he seemed the accept better!!🖤 . . #adventcalendar  #advent  #tradition  #christmasiscoming  #earlyreader  #lifewithds 
Idk how I'm going to get through the mountains of laundry I have to fold when she wants to play 🤷‍♀️
Idk how I'm going to get through the mountains of laundry I have to fold when she wants to play 🤷‍♀️
Baker was moved out of the cardiac ICU this morning and over to the step-down unit! Homeboy is off oxygen, his central line has been removed and he is now allowed to feed orally. He’s still refusing the bottle but he was able to breastfeed successfully for the first time since his operation! 💪🏻🥛 #whatheartsurgery #rockstar #TeamHeartBaker #BakersHeart❤️
Baker was moved out of the cardiac ICU this morning and over to the step-down unit! Homeboy is off oxygen, his central line has been removed and he is now allowed to feed orally. He’s still refusing the bottle but he was able to breastfeed successfully for the first time since his operation! 💪🏻🥛 #whatheartsurgery  #rockstar  #TeamHeartBaker  #BakersHeart ❤️
Today was gingerbread house day at school! Annie had a relaxing day at home with dad while mom + Tanner played 🏠🎄🎁
Today was gingerbread house day at school! Annie had a relaxing day at home with dad while mom + Tanner played 🏠🎄🎁
Our little ⭐️.....I may be slightly biased but you are beautiful Amelia.....💕 #homiewithanextrachromie #morealikethandifferent #changingthefaceofbeauty #downsyndrome #t21 #theluckyfew #theamazingamelia
Gotta take a 2017 version of this picture...!📸
(Ver.2016 thanks to @rkhan05)
Gotta take a 2017 version of this picture...!📸 (Ver.2016 thanks to @rkhan05)
#tbt First time standing up in front of a crowd and sharing my journey ❤ Hoping that as I get older that I can let go of my shyness and continue to share my journey to people #cerebralpalsy #cerebralpalsyawareness #tajiasjourney #proudtobeme #cpwarrior #wheelchair #happy #unstoppable #iamadaptive #specialneeds #beautiful #inspiration #impossibleisnothing #latina #disabilities #blessed #changingthefaceofbeauty #meamoynomeimporta
Zephyn’s photoshoot with a wind machine! LOL 🤣😂 No I use a fan as white noise during nap time and today Zephyn was having a good time being silly playing in front of it. 🤣 🌬
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#zephyn #mylittlebear #lifeisbetterwithyou #sosilly #thatfacetho #cutie #adorable #differentisbeautiful #changingthefaceofbeauty #beauty #love #photooftheday #baby #toddlerlife #instagood #momlife #lovefordownsyndrome #downsyndrome #savedownsyndrome #theluckyfew #fun #happy #smile #zephynbear🐻 #havingthetimeofmylife #modle #howsmyhair #photoshoot
Zephyn’s photoshoot with a wind machine! LOL 🤣😂 No I use a fan as white noise during nap time and today Zephyn was having a good time being silly playing in front of it. 🤣 🌬 🌬 🌬 #zephyn  #mylittlebear  #lifeisbetterwithyou  #sosilly  #thatfacetho  #cutie  #adorable  #differentisbeautiful  #changingthefaceofbeauty  #beauty  #love  #photooftheday  #baby  #toddlerlife  #instagood  #momlife  #lovefordownsyndrome  #downsyndrome  #savedownsyndrome  #theluckyfew  #fun  #happy  #smile  #zephynbear 🐻 #havingthetimeofmylife  #modle  #howsmyhair  #photoshoot 
I could hold and play with this cutie all day long. This is how Lucy talks to us right now and I can’t wait until Monday when she will get her #hearingaids for the first time and can actually hear herself and us!!! #downsyndrome #downsyndromeawareness #joubertsyndromeawareness #joubertsyndrome #downsyndromelove #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #pulmonaryhypertension #sleepapnea #lowmuscletone #t21 #trisomy21 #theluckyfew #lovefordowns #dsdn #upsyndrome #happybaby #changingthefaceofbeauty #hearingloss
I could hold and play with this cutie all day long. This is how Lucy talks to us right now and I can’t wait until Monday when she will get her #hearingaids  for the first time and can actually hear herself and us!!! #downsyndrome  #downsyndromeawareness  #joubertsyndromeawareness  #joubertsyndrome  #downsyndromelove  #nothingdownaboutit  #congenitalheartdefect  #openheartsurgery  #zipperclub  #heartwarrior  #pulmonaryhypertension  #sleepapnea  #lowmuscletone  #t21  #trisomy21  #theluckyfew  #lovefordowns  #dsdn  #upsyndrome  #happybaby  #changingthefaceofbeauty  #hearingloss 
Red carter 👖 jeans ... vest with the fur. The whole 🌎 was looking at her . .
I would like to thank my auntie @yurii_siilva_santoy  for my little elf ❤️ and my auntie Claudia for my outfit ❤️ And mommy thanks for my bow 🙇🏻‍♀️ and for loving me 💗🤱🏻
#babiesofinstagram #DownSyndrome #changinglives #changingthefaceofbeauty #extraspecialdelivery #santashelper🎄 #itsthemostwonderfultimeoftheyear🎅 #t21
#dsdn  #mymompicksmyclothes #luckycharm
Being at home with this girl has been awesome! Busy! But awesome. It has come with it's own set of challenges. I am grateful for the opportunity and services of therapy but it is easy to get really wrapped up in what Louisa ISN'T doing instead of celebrating what she IS doing. It is a constant balance of wanting her to be a little girl and also having high expectations of her. Regardless, I feel lucky to be her momma. #louisajean #dsdn #downsyndromeawareness #ctfob #changingthefaceofbeauty #upsyndrome #theluckyfew #nothingdownaboutit
Being at home with this girl has been awesome! Busy! But awesome. It has come with it's own set of challenges. I am grateful for the opportunity and services of therapy but it is easy to get really wrapped up in what Louisa ISN'T doing instead of celebrating what she IS doing. It is a constant balance of wanting her to be a little girl and also having high expectations of her. Regardless, I feel lucky to be her momma. #louisajean  #dsdn  #downsyndromeawareness  #ctfob  #changingthefaceofbeauty  #upsyndrome  #theluckyfew  #nothingdownaboutit 
So today’s food consisted of: fruity porridge for breakfast, squash and chicken (from a jar) followed by apple and pear with cinnamon for lunch. For dinner Amelia had homemade cottage pie with us followed again by apple and pear with cinnamon 😁
#babyweaing#babyfood#weaning#babyblog#babyspam#instababy#downsyndromeblog#downsyndromeawareness#dsdn#enableawareness#downrightperfect#ukparentingblog#baby#babygirl#firstbaby#childhoodunplugged#blog#blogging#pblogger#changingthefaceofbeauty#ds#downsyndrome#t21#t21rocks#lifewithds#theluckyfew#mumlife#firsttimemum#mumsofinstagram#babiesofinstagram
So today’s food consisted of: fruity porridge for breakfast, squash and chicken (from a jar) followed by apple and pear with cinnamon for lunch. For dinner Amelia had homemade cottage pie with us followed again by apple and pear with cinnamon 😁 #babyweaing #babyfood #weaning #babyblog #babyspam #instababy #downsyndromeblog #downsyndromeawareness #dsdn #enableawareness #downrightperfect #ukparentingblog #baby #babygirl #firstbaby #childhoodunplugged #blog #blogging #pblogger #changingthefaceofbeauty #ds #downsyndrome #t21 #t21rocks #lifewithds #theluckyfew #mumlife #firsttimemum #mumsofinstagram #babiesofinstagram 
“Wyatt has Christianson Syndrome.  The exact prevalence isn't known, but he is only 1 of 2 in Arkansas, and there are very few documented in the US. Wyatt is nonverbal, ataxic, epileptic, and extremely cognitively delayed, but he is almost always happy and his smile lights up any room!  He's truly a blessing!” ❤️✨ @wywyswarriors #enableawareness #christiansonsyndromeawareness
“Wyatt has Christianson Syndrome. The exact prevalence isn't known, but he is only 1 of 2 in Arkansas, and there are very few documented in the US. Wyatt is nonverbal, ataxic, epileptic, and extremely cognitively delayed, but he is almost always happy and his smile lights up any room! He's truly a blessing!” ❤️✨ @wywyswarriors #enableawareness  #christiansonsyndromeawareness 
Y esta señora que esta aquí, es una de mis terapeuta de lenguaje desde hace unos meses... Es la que me hace hablar, no tengo opción. Es SUPER ocurrente como ven en las fotos, y es que así me gusta aprender, ella no me la pone NADA fácil, sin embargo, siempre encuentra la manera de hacerlo divertido y bueno... También se que como soy #xtrasabroso se aprovecha de mi😂😂😂. No tiene instagram, su nombre es Ma Elisa y es hermana de la @gordavillasmil. Yo estoy en terapia de lenguaje desde los 9 meses aproximadamente, mami esta buscando fotos de mis terapeutas anteriores... Algo que tiene genial María Elisa es que mi mami puede entrar a terapia así que ella puede reforzar en casa lo aprendido. Mamita sale de reflejo en el espejo (foto de la derecha). #downsyndrome #sindromededown#t21#trisomy21#trisomia21 #cromosomadeamor#t21#downeate#mosaicdownsyndrome#gordinchi #downsyndromeawareness #downsyndromerocks #downsyndromelove#UpWithDown #lawsyndrome#specialneeds #changingthefaceofbeauty#downrightperfect #dsdn #justlikeyou #terapiadelenguaje
Y esta señora que esta aquí, es una de mis terapeuta de lenguaje desde hace unos meses... Es la que me hace hablar, no tengo opción. Es SUPER ocurrente como ven en las fotos, y es que así me gusta aprender, ella no me la pone NADA fácil, sin embargo, siempre encuentra la manera de hacerlo divertido y bueno... También se que como soy #xtrasabroso  se aprovecha de mi😂😂😂. No tiene instagram, su nombre es Ma Elisa y es hermana de la @gordavillasmil. Yo estoy en terapia de lenguaje desde los 9 meses aproximadamente, mami esta buscando fotos de mis terapeutas anteriores... Algo que tiene genial María Elisa es que mi mami puede entrar a terapia así que ella puede reforzar en casa lo aprendido. Mamita sale de reflejo en el espejo (foto de la derecha). #downsyndrome  #sindromededown #t21 #trisomy21 #trisomia21  #cromosomadeamor #t21 #downeate #mosaicdownsyndrome #gordinchi  #downsyndromeawareness  #downsyndromerocks  #downsyndromelove #UpWithDown  #lawsyndrome #specialneeds  #changingthefaceofbeauty #downrightperfect  #dsdn  #justlikeyou  #terapiadelenguaje 
Tag someone (or as many as you want) who is deserving of a little extra holiday magic💫 I will use my random number generator to select a few lucky folks to win these☕️
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Entering ends 12/14/17 at midnight EST. This giveaway is not sponsored or endorsed by IG. .
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#alilsomethingextra #ds #t21 #321 #downsyndrome  #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeiabetterwithyou #nothingdownaboutit #homiewithanextrachromies #t21awareness #rockthe21 #rockin #rockinit #shouttheirworth #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks
#downrightperfect #giveaway
Tag someone (or as many as you want) who is deserving of a little extra holiday magic💫 I will use my random number generator to select a few lucky folks to win these☕️ . . . Entering ends 12/14/17 at midnight EST. This giveaway is not sponsored or endorsed by IG. . . . #alilsomethingextra  #ds  #t21  #321  #downsyndrome  #upsyndrome  #theluckyfew  #morealikethandifferent  #changingthefaceofbeauty  #t21love  #lifeiabetterwithyou  #nothingdownaboutit  #homiewithanextrachromies  #t21awareness  #rockthe21  #rockin  #rockinit  #shouttheirworth  #photooftheday  #dsdn  #dsrocks  #downsyndromeawareness  #teamds  #downsyndromelove  #extrachromosome  #specialneeds  #downsyndromerocks  #downrightperfect  #giveaway 
Each heart is a pilgrim,
Each one wants to know
The reason why the winds die
And where the stories go.
Pilgrim, in your journey
You may travel far,
For pilgrim it's a long way
To find out who you are
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Varje hjärta är en pilgrim, Var och en vill veta Anledningen till att vindarna dör Och var historierna går. Pilgrim, på din resa Du kan resa långt, För pilgrim är det långt För att ta reda på vem du är
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Each heart is a pilgrim, Each one wants to know The reason why the winds die And where the stories go. Pilgrim, in your journey You may travel far, For pilgrim it's a long way To find out who you are 💖 • Varje hjärta är en pilgrim, Var och en vill veta Anledningen till att vindarna dör Och var historierna går. Pilgrim, på din resa Du kan resa långt, För pilgrim är det långt För att ta reda på vem du är 💖