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🌎 World Wish Day!!!! Make-A-Wish is ⭐️MAGIC⭐️& it's contagious ❤️⭐️❤️⭐️#jacobsheartstory #jacobburris #worldwishday2017 #makeawish #makeawishoregon #makeawishfoundation #makeawishamerica #chdsurvivor #CHD #checkyourbp #coarctationoftheaorta
Tomorrow is World Wish Day!! Checkout my newest YouTube video - I calculate how long it will take for the MAGIC⭐️of ONE wish to reach every person on the planet TODAY!! https://youtu.be/36jnXbWxYlc ⭐️2044⭐️ #jacobsheartstory #jacobburris #worldwishday2017 #makeawish #makeawishoregon #makeawishfoundation #walkforwishes #justbeamazing #CHD #coarctationoftheaorta #checkyourbp
RIP ❤️LUCY💗if you're wondering why "I Love Lucy" it's b/c Lucille Ball had a CHD very similar to mine...she passed away 28 years ago today hours after she was given a human transplant to repair her aorta & the tissue was rejected. I am grateful for CHD pioneers like Lucy who were lost b/c incredible inventions like Dacron & other breakthroughs in research weren't available yet. My Dacron graft holds my aorta together & is compatible with human tissue so it won't be rejected. ❤️💪#jacobsheartstory #hearthero #chdaware #chdsurvivor #riplucy #ilovelucy #checkyourbp #coarctationoftheaorta #jacobburris #justbeamazing #cardiosmart
RIP ❤️LUCY💗if you're wondering why "I Love Lucy" it's b/c Lucille Ball had a CHD very similar to mine...she passed away 28 years ago today hours after she was given a human transplant to repair her aorta & the tissue was rejected. I am grateful for CHD pioneers like Lucy who were lost b/c incredible inventions like Dacron & other breakthroughs in research weren't available yet. My Dacron graft holds my aorta together & is compatible with human tissue so it won't be rejected. ❤️💪#jacobsheartstory  #hearthero  #chdaware  #chdsurvivor  #riplucy  #ilovelucy  #checkyourbp  #coarctationoftheaorta  #jacobburris  #justbeamazing  #cardiosmart 
Help this great kid on his Walk for Wishes tomorrow! 🌟👍👍👏👍👍🌟 #walkforwishes

@Regrann from @jacobs_heart_story -  Just 10 days until my team & I walk to grant wishes for Oregon kids!! If you haven't joined my team yet you can do it here: http://site.wish.org/goto/TeamJacobsHeartStory  if you can't make it out PLEASE, consider giving a few bucks to help make MAGIC happen for kids like me!!❤️ #jacobsheartstory #walkforwishes #makeawish #wishkid #beahero #airmax95s #spideyshoes #hearthero #chdaware #checkyourbp #justbeamazing  #doernbecherfreestyle #teamjacobsheartstory - #regrann
Help this great kid on his Walk for Wishes tomorrow! 🌟👍👍👏👍👍🌟 #walkforwishes  @Regrann from @jacobs_heart_story - Just 10 days until my team & I walk to grant wishes for Oregon kids!! If you haven't joined my team yet you can do it here: http://site.wish.org/goto/TeamJacobsHeartStory if you can't make it out PLEASE, consider giving a few bucks to help make MAGIC happen for kids like me!!❤️ #jacobsheartstory  #walkforwishes  #makeawish  #wishkid  #beahero  #airmax95s  #spideyshoes  #hearthero  #chdaware  #checkyourbp  #justbeamazing  #doernbecherfreestyle  #teamjacobsheartstory  - #regrann 
Just 10 days until my team & I walk to grant wishes for Oregon kids!! If you haven't joined my team yet you can do it here: http://site.wish.org/goto/TeamJacobsHeartStory  if you can't make it out PLEASE, consider giving a few bucks to help make MAGIC happen for kids like me!!❤️ #jacobsheartstory #walkforwishes #makeawish #wishkid #beahero #airmax95s #spideyshoes #hearthero #chdaware #checkyourbp #justbeamazing  #doernbecherfreestyle #teamjacobsheartstory
"Alright, STOP! While I do up my laces..." Happy Air Max Day 2017! Those shoes are "Nice, nice BABY!" @gyarabinec #jacobsheartstory #kissmyairs #nikeairmax95 ##nikefreestyle #nikedoernbecher #nikeairmax95 #nikedoernbecherairmax95 #airmaxday2017 #airmaxmonth2017 #checkyourbp #jacobburris #bionicboy #iceicebaby
Happy Nike Air Max Day - from your friendly neighborhood Spider-Man ❤️ #jacobsheartstory #kissmyairs #airmaxday2017 #justbeamazing #nikefreestyle #nikedoernbecher #dbfreestyle #nikeeugene #nike #nikeairmax95 #jacobburris #checkyourbp
Just before my trip to DC last week, my Nike design team surprised me with a pair of my very own Spidey Air Max PRMs autographed by none other than TOM HOLLAND!!! 🕸🕷Checkout the whole video at: https://youtu.be/9AvEFi5aseE #jacobsheartstory #jacobburris #airmaxmonth2017 #kissmyairs #tomholland #spiderman #spidey #ohsudoernbecherchildrenhospital #nikefreestyle #airmax95s #chdsurvivor #chdaware #1in110 #cardiosmart #coarctationoftheaorta #hearthero #justbeamazing #checkyourbp
Just before my trip to DC last week, my Nike design team surprised me with a pair of my very own Spidey Air Max PRMs autographed by none other than TOM HOLLAND!!! 🕸🕷Checkout the whole video at: https://youtu.be/9AvEFi5aseE #jacobsheartstory  #jacobburris  #airmaxmonth2017  #kissmyairs  #tomholland  #spiderman  #spidey  #ohsudoernbecherchildrenhospital  #nikefreestyle  #airmax95s  #chdsurvivor  #chdaware  #1in110  #cardiosmart  #coarctationoftheaorta  #hearthero  #justbeamazing  #checkyourbp 
Got to ride the streets of DC one last time yesterday!! Checkout these moves! ❤️#jacobsheartstory #washingtondcorbust #chd #chdsurvivor #chdaware #checkyourbp #coarctationoftheaorta #1in110 #cardiosmart #airmaxmonth2017 #acc17 #jacobburris
THANK YOU for helping me celebrate American Heart Month🇺🇸❤️It's such an honor to have an entire month dedicated to sharing my ❤️story & connecting with others who are affected by CHD!❤️ Can't wait for next year!!#jacobsheartstory #hearthero #coarctationoftheaorta #1in110 #americanheartmonth #chdaware #chdsurvivor #checkyourbp #justbeamazing #cardiosmart
Tomorrow morning I will be out at PeaceHealth RiverBend helping with FREE❤️ Teen Heart Screenings...These days all babies are screened for CHD but, kids about my age & older are at risk for having undetected CHD b/c WE WERE'NT EVER screened!❤️Time to get checked-out!! #jacobsheartstory #americanheartmonth #checkyourbp #chdaware #1in110 #justbeamazing #hearthero #peacehealth #cardiosmart
Here is the finished Matsumin Dual Calvecaster guitar effect pedal my dad made for the American Heart Association PDX Heart Ball silent auction- Checkout all the HEART HEROES on the side!! That's 14 ❤️Heroes who represent 25 different CHDs!! #jacobsheartstory #americanheartmonth #stantonebenchworks #1in110 #pdxheartball #chdaware #checkyourbp #jacobburris #hearthero #chd #coarctationoftheaorta #cardiosmart
Before and After - sarap to the leaves! 😉☺ #BoodleFight #HappyPuso 💘😘
#CheckYourBP #AngBatok 😉 
#Feb142017 #ValentinesParty2017
#FamilyAndFriends #LateUpload
❤️Here's the official press release about me winning the "I am CardioSmart" contest!!!! So stoked...leaving in 28 days!!❤️#jacobsheartstory #americanheartmonth #coarctationoftheaorta #cardiosmart #justbeamazing #chdaware #hearthero #1in110 #jacobburris #checkyourbp #washingtondcorbust #cardiosmart
It's official...❤️The City of Eugene, Mayor Lucy Vinis, proclaimed Feb 7 - 14th to be CHD, Congenital Heart Defect Awareness Week!! Met with her in person today & received a personal copy of the proclamation! So happy that my community is behind my mission to end CHD!❤️❤️❤️#jacobsheartstory #americanheartmonth #cityofeugene #checkyourbp #chdsurvivor #chdsurvivor #hearthero #proclaimchdawareness #1in110 #jacobburris
❤️My local hospital group, PeaceHealth, published this awesome story about me & my pediatric cardiologist, Dr. Misty Carlson. Before she was here in Eugene my family & I had to drive 2 hours north EVERY time I had an appointment - now we drive 20 minutes!! ❤️ I decided to wear Kian's DB shirt for the photo shoot to REPRESENT!!! 💪#jacobsheartstory #americanheartmonth #checkyourbp #chdaware #1in110 #hearthero #jacobburris
❤️My local hospital group, PeaceHealth, published this awesome story about me & my pediatric cardiologist, Dr. Misty Carlson. Before she was here in Eugene my family & I had to drive 2 hours north EVERY time I had an appointment - now we drive 20 minutes!! ❤️ I decided to wear Kian's DB shirt for the photo shoot to REPRESENT!!! 💪#jacobsheartstory  #americanheartmonth  #checkyourbp  #chdaware  #1in110  #hearthero  #jacobburris 
Today, February 3rd, is national Go RED Day!!! I hope you will ALL put on your favorite red shirt, hat, shoes...whatever!! & wear it proud for me today- wearing red promotes CHD & stroke awareness ❤️#jacobsheartstory #americanheartmonth #chdaware #checkyourbp #1in110 #justbeamazing #cswearred #gored
❤️ Found a pair of my Air Max 95s in a Sneakerchest machine....I was thinking about the odds of winning - Happy day 2 of American Heart ❤️ Month!!! I hope all of my 👟 sneakerhead supporters will remember to wear RED tomorrow for national CHD & stroke ❤️awareness day!! #jacobsheartstory #americanheartmonth #chdaware #checkyourbp #hearthero #1in110 #doernbecherairmax95 #sneakerchest photo credit: Amber D❤️Clackamus Town Center
Happy American Heart ❤️Month!! This is where I go to get my checkups now, but when I was originally diagnosed in 2014 there was NO specialist here that could read my test results b/c I am so young. Now my doctor has started a specialty clinic here in Eugene & has even had to expand b/c she has SO many patients with CHD! There are a lot of areas in the US without ❤️specialists....that needs to change!!!❤️#hearthero #jacobsheartstory #jacobburris #chdaware #chdawareness #1in110 #americanheartmonth #checkyourbp #CSWearRed
Happy American Heart ❤️Month!! This is where I go to get my checkups now, but when I was originally diagnosed in 2014 there was NO specialist here that could read my test results b/c I am so young. Now my doctor has started a specialty clinic here in Eugene & has even had to expand b/c she has SO many patients with CHD! There are a lot of areas in the US without ❤️specialists....that needs to change!!!❤️#hearthero  #jacobsheartstory  #jacobburris  #chdaware  #chdawareness  #1in110  #americanheartmonth  #checkyourbp  #CSWearRed 
Got fitted with a 24 hour ❤️BP monitor today....My amazing doc is making sure my blood pressure isn't too high throughout the day- if it is, it could be doing damage to my heart so she's just making sure I am A-OK 👌 School is going to be fun tomorrow, lol!! #jacobsheartstory #hearthero #chdaware #chdawareness #checkyourbp #1in110 #americanheartmonth
SOOOO stoked to go see the WWE at the Mathew Knight Arena Super Bowl Sunday!!!! Thanks to  @valkduk & @1047kduk for the opportunity to WIN these tickets...My bro & I are planning to have a BLAST!!!!❤️💯👏#jacobsheartstory #checkyourbp #1in110 #chdaware #chdawareness #hearthero #wwe #roadtowrestlemania #kduk #thankyoukduk
Since I was diagnosed w/ CHD my dad - Stantone Benchworks -has been donating a one-of-a-kind guitar effects pedal to be auctioned at the American Heart Association PDX  Heart Ball. This year I am helping with the design of the graphic & I want to include a list of  people & kid's names/ initials + their CHDs to help the design POP 💥 & to help create CHD awareness! ❤️Just comment your name or initials + you, or your ❤️ hero's CHD! Thank you for your help ❤️ heroes, together we are going to make CHD + Rock & Roll history!! #jacobsheartstory #hearthero #chdawareness #chdaware #1in110 #checkyourbp
Since I was diagnosed w/ CHD my dad - Stantone Benchworks -has been donating a one-of-a-kind guitar effects pedal to be auctioned at the American Heart Association PDX Heart Ball. This year I am helping with the design of the graphic & I want to include a list of people & kid's names/ initials + their CHDs to help the design POP 💥 & to help create CHD awareness! ❤️Just comment your name or initials + you, or your ❤️ hero's CHD! Thank you for your help ❤️ heroes, together we are going to make CHD + Rock & Roll history!! #jacobsheartstory  #hearthero  #chdawareness  #chdaware  #1in110  #checkyourbp 
Got an echo this morning & had my checkup.....looking good for now!! In the future, I may have to get a stint or replacement for my Dacron graft but for now - I'm GOOD TO GO!!! Tryouts for baseball are NEXT month!⚾️🏋🏽‍♀️⚡️💪❤️💯#jacobsheartstory #checkyourbp #chdaware #chdawareness #baseballseason #checkuptime #hearthero
My cardiologist always loves ❤️it when I show up for my 'stress test' in full workout gear.....sweatbands & all BABY!! No STRESS here!!😎#jacobsheartstory #jacobburris #chdaware #chdawareness #checkyourbp #stresstest #nike #peacehealth
When I was diagnosed with CHD 2 years ago, my hometown of Eugene, Oregon didn't even have a specialist (Pediatric Cardiologist) that I could see. That's how I ended up at Doernbecher Children's Hospital....Since then, my amazing Dr. Misty Carlson came here & STARTED a pediatric cardiology specialty clinic about 10 miles away from our home.  Peacehealth wrote about my story & how my doctor moving here really helped my family so much b/c we don't have to travel up to Portland as much.❤️ Just another way that Doernbecher continues to help our community, over 120 miles away!! Does anyone recognize the shirt I'm wearing?? Just a shoutout to my designer 'brother' Kian🎉#jacobsheartstory #checkyourbp #hearthero #chdawareness #chdaware #doernbecher #peacehealth #jacobburris
When I was diagnosed with CHD 2 years ago, my hometown of Eugene, Oregon didn't even have a specialist (Pediatric Cardiologist) that I could see. That's how I ended up at Doernbecher Children's Hospital....Since then, my amazing Dr. Misty Carlson came here & STARTED a pediatric cardiology specialty clinic about 10 miles away from our home. Peacehealth wrote about my story & how my doctor moving here really helped my family so much b/c we don't have to travel up to Portland as much.❤️ Just another way that Doernbecher continues to help our community, over 120 miles away!! Does anyone recognize the shirt I'm wearing?? Just a shoutout to my designer 'brother' Kian🎉#jacobsheartstory  #checkyourbp  #hearthero  #chdawareness  #chdaware  #doernbecher  #peacehealth  #jacobburris 
Just wanted to send a shoutout to Carrie Fisher - May the force be with you always......❤️ disease / cardiovascular complications take the lives of every 1 in 4 women. This is one of the reasons I am heading to Washington DC - so I can raise awareness about the #1 killer in the 🌎 WORLD!  #jacobsheartstory #ripcarriefisher  #checkyourbp #hearthero #chdawareness #chdaware
Merry 🎄 Christmas!! We got a late delivery yesterday - a huge box from The Doernbecher Children's Hospital Foundation & it was this amazing sign they found in storage from the release last year!!! I also scored Chase's Lego studded snap back from this year's collection!!! I LOVE ❤️ Doernbecher!!! Thank you @nike & @ohsudoernbecher for being so thoughtful & saving lives! ❤️#nikefreestyle #doernbecher #jacobsheartstory #chdsurvivor #chdawareness #chdaware #hearthero #jacobburris #spidermanshoes #spidey #spiderman #checkyourbp #justbeamazing
Merry 🎄 Christmas!! We got a late delivery yesterday - a huge box from The Doernbecher Children's Hospital Foundation & it was this amazing sign they found in storage from the release last year!!! I also scored Chase's Lego studded snap back from this year's collection!!! I LOVE ❤️ Doernbecher!!! Thank you @nike & @ohsudoernbecher for being so thoughtful & saving lives! ❤️#nikefreestyle  #doernbecher  #jacobsheartstory  #chdsurvivor  #chdawareness  #chdaware  #hearthero  #jacobburris  #spidermanshoes  #spidey  #spiderman  #checkyourbp  #justbeamazing 
Battle Ship #Platters #AllOurFavorite #WarMachine #MeatyGoodness #CheckYourBP Merry Christmas EveryOne!!
Knowing your numbers and controlling your #bloodpressure is the best🎁you can give to yourself and those that love you❤️#checkitnc #hearttheholidays #lifeiswhy #clt #cltiswhy #charlottenc #happyholidays #highbloodpressure #knowyournumbers #checkyourbp #healthyholidays #healthy #hearthealth #happyholidays #health #moretimeiswhy
Knowing your numbers and controlling your #bloodpressure is the best gift you can give to yourself and those that love you! ❤️#checkitva #hearttheholidays #lifeiswhy #rva #happyholidays #highbloodpressure #knowyournumbers #checkyourbp #healthyholidays #healthy #hearthealth #happyholidays #health #healthychoices
Please help out this #HeartWarrior if you have some time!! ❤️❤️ @jacobs_heart_story using @RepostRegramApp - VOTING has officially started...& I'm BEHIND! Instagram friends, I NEED your votes to help me get my story to Washington DC❤️if you have a minute- PLEASE go vote for my video!!! Thank you!! #washingtondcorbust #jacobsheartstory #jacobburris #checkyourbp #hearthero #chdsurvivor #chdaware
Good news you guys....I am in the lead by more than 60 votes!!!! I just hand delivered my letter to 🎅 Santa's red mailbox @macys b/c they donate $1 to the Make-A-Wish Foundation for EACH letter they get!!! I am sure you all know exactly what I asked for!!! Thanks for all your help Instagram ❤️friends! #jacobsheartstory #hearthero #chdsurvivor #checkyourbp #1in110 #chdawareness #chdaware #macysbelieve
On Sunday night Greg Olsen @gregolsen88 of the Carolina Panthers wore these cleats to support ❤️CHD AWARENESS!!!!❤️I just think it's SO cool that their design color was similar to mine.....So AMAZING! Also, thank you ALL for voting for my video....I'm in the lead by more than 60 votes!! Wooohooo!! #mycleatsmycause #chdaware #jacobsheartstory #hearthero #chdsurvivor #checkyourbp #1in110
Look 👀 how much we've grown....still able to squeeze into our Doernbechers though!!!❤️So awesome to see John Charles tonight! #jacobsheartstory #checkyourbp #hearthero #chdsurvivor #chdaware #doernbecher #doernbecherfreestyle
Woohoo!!! I am the leader this morning❤️Thanks to all of you who helped me to the top! PLEASE go vote for me if you haven't had a chance....instructions are on the next post🙏#washingtondcorbust #jacobsheartstory #chdaware #chdsurvivor #hearthero #checkyourbp
VOTING has officially started...& I'm BEHIND! Instagram friends, I NEED your votes to help me get my story to Washington DC❤️if you have a minute- PLEASE go vote for my video!!! Thank you!! #washingtondcorbust #jacobsheartstory #jacobburris #checkyourbp #hearthero #chdsurvivor #chdaware
Just got an email from the CardioSmart folks & their "official" voting site won't be up until later this week....HUGE THANKS to all of you who 'liked' my post, I will post the link to vote for my video AS SOON as it is available! Thank you ALL so much for your support🙏🎉❤️ #jacobsheartstory #hearthero #checkyourbp #washingtondcorbust #jacobburris
Just got an email from the CardioSmart folks & their "official" voting site won't be up until later this week....HUGE THANKS to all of you who 'liked' my post, I will post the link to vote for my video AS SOON as it is available! Thank you ALL so much for your support🙏🎉❤️ #jacobsheartstory  #hearthero  #checkyourbp  #washingtondcorbust  #jacobburris 
I submitted a video about my ❤️ story to the American College of Cardiology 'Living CardioSmart' campaign & just found out my vid is 1 of 4 FINALISTS!! They will feature our videos on their FB page & I will NEED YOUR VOTES to win the grand prize; a trip for two to Washington, DC!!!💯❤️Voting will start later this week, I will post the link to vote SOON!!!🎉#jacobsheartstory #chdawareness #checkyourbp #hearthero #jacobburris #washingtondcorbust
I submitted a video about my ❤️ story to the American College of Cardiology 'Living CardioSmart' campaign & just found out my vid is 1 of 4 FINALISTS!! They will feature our videos on their FB page & I will NEED YOUR VOTES to win the grand prize; a trip for two to Washington, DC!!!💯❤️Voting will start later this week, I will post the link to vote SOON!!!🎉#jacobsheartstory  #chdawareness  #checkyourbp  #hearthero  #jacobburris  #washingtondcorbust 
Just came across this amazing article about a shoe convention in 🇨🇦 Canada & @hardie_girl was featured with my shoe design!!!! I am beyond honored & SO grateful that my story is making it's way all over the 🌎 WORLD!! Thank you ALL for supporting me & Doernbecher Children's Hospital!!❤️ #jacobsheartstory #ohsudoernbecherchildrenhospital #ohsudoernbecher #chdsurvivor #chdaware #hearthero #jacobburris #checkyourbp
💕🏃🏾Up this morning at 6am. Just did my first Blood Pressure Check before my 🏃🏾. 116/79👍🏽These are the fruits I added to my diet to help get me here:
Bananas - 2per day
Golden Apples- 2per day
Dates- 6 per day (Note: Dates are Super Sweet so I spread those six out over the course of my day! #takecareofyourbody #checkyourbp 💕💕💕
💕🏃🏾Up this morning at 6am. Just did my first Blood Pressure Check before my 🏃🏾. 116/79👍🏽These are the fruits I added to my diet to help get me here: Bananas - 2per day Golden Apples- 2per day Dates- 6 per day (Note: Dates are Super Sweet so I spread those six out over the course of my day! #takecareofyourbody  #checkyourbp  💕💕💕
& it's my birthday!!!!! Today I'm the big ONE-FIVE!! ❤️ 🎉💥🍭🎁💰🎂💯(caution this video gets loud b/c I am excited!!!) #jacobsheartstory #birthdayweek #checkyourbp #1in110 #chdawareness #chdaware #chdsurvivor
Today is a great day to 'Check your BP!' ❤️ My BP #'s are looking AMAZING after my cardiologist adjusted my meds last week.....also started my BIRTHDAY⏰ countdown in the 'notes' -just 3 DAYS to go & I will be 15!!! 🎉🎂🍭🎁💝💯#jacobsheartstory #hearthero #chdaware #chdawareness #1in110 #checkyourbp #birthdayweek
World Heart Day salmon dinner❤️ My favorite meal at Doernbecher was the SALMON!! #jacobsheartstory #worldheartday #eatyourheartout #checkyourbp #1in110 #chdawareness #chdaware #hearthero #coarctationoftheaorta
Happy World Heart Day!! ❤️ Today is a big day for spreading awareness about cardiovascular disease b/c it's the leading cause of death WORLDWIDE! 'Check your BP' & make sure you get your check-ups! Thank you all for supporting this mission to save people out there who may not know they have ❤️ heart conditions! #jacobsheartstory #worldheartday #checkyourbp #1in110 #chdawareness #chdaware
Happy World Heart Day!! ❤️ Today is a big day for spreading awareness about cardiovascular disease b/c it's the leading cause of death WORLDWIDE! 'Check your BP' & make sure you get your check-ups! Thank you all for supporting this mission to save people out there who may not know they have ❤️ heart conditions! #jacobsheartstory  #worldheartday  #checkyourbp  #1in110  #chdawareness  #chdaware 
Was having some chest pain over the last couple of weeks so I went in for a ❤️ checkup this morning....Dr. says everything is looking ok!! ❤️ #jacobsheartstory #chdaware #chdawareness #1in110 #checkyourbp #coarctationoftheaorta
So stoked!!! Just got all setup to attend this year's OHSU Doernbecher NIKE Freestyle auction ❤️🍾💥Can't wait to help support this new group of DB designers!! #jacobsheartstory #jacobburris #JB13 #bionicboy #dbairmax95s #dbairmax95 #doernbecherairmax95 #checkyourbp
SO stoked that my Dad is going to donate another guitar effects pedal to help raise $ at The American Heart Association 'Heart Ball' ❤️❤️ Saving lives with ROCK!! 🤘🏽🎸🎼 #stantonebenchworks #jacobsheartstory #aha #checkyourbp #chdaware #chdsurvivor
In honor of SPIDERMAN DAY.....We learned from an avid shoe collector that there have been a few pairs of shoes that were loosely called "Spiderman/Spidey" but these JB's are the first official one's with the permission from the one & only Stan 'The Man' Lee @therealstanlee ❤️ #jacobsheartstory #dbairmax95 #doernbecherairmax95 #nationalspidermanday #hearthero #chdsurvivor #chdaware #checkyourbp #thankyoustanlee #walktomyownbeat #webslinger
Happy National Spider-Man Day!!! ❤️#jacobsheartstory #hearthero #chdsurvivor #chdaware #checkyourbp
Met up with my AWESOME aunt Julie & family in the middle of NOWHERE, Oregon....Heading over to Idaho to spend a week with my awesome family!! ❤Made sure to bring my meds,️ let the fun begin!!....later days mom & dad!! #jacobsheartstory #summertime #chdaware ##chdsurvivor #hearthero #checkyourbp
Big game today....hit a single w/ 2 RBIs here!!❤️ #baseballseason #crushinit #jacobsheartstory #hearthero #chdaware #chdsurvivor #checkyourbp
It's official.....I am a Freshman!!!! ❤️ #jacobsheartstory #chdsurvivor #hearthero #chdaware #checkyourbp
It's a BIG show to fill but, this is my fundraising progress for my Washington, D.C. trip. I plan to share my story with congress & hope to inspire them to vote for more funding for CHDs. Thanks SO much to everyone who has donated to help my cause....every bit helps!❤️ Headed up to the unveiling of The World's Greatest Sneaker with @shoezeum at the Oregon Historical Museum this evening from 6-9....hope to see you all there!!! ❤️ #jacobsheartstory #chdsurvivor #chdaware #checkyourbp #hearthero #washingtondcorbust
It's a BIG show to fill but, this is my fundraising progress for my Washington, D.C. trip. I plan to share my story with congress & hope to inspire them to vote for more funding for CHDs. Thanks SO much to everyone who has donated to help my cause....every bit helps!❤️ Headed up to the unveiling of The World's Greatest Sneaker with @shoezeum at the Oregon Historical Museum this evening from 6-9....hope to see you all there!!! ❤️ #jacobsheartstory  #chdsurvivor  #chdaware  #checkyourbp  #hearthero  #washingtondcorbust 
I have had the busiest day EVER!!! Came in from Portland JUST in time for my photo shoot!!! I am helping Peace Health to promote teen health screenings.....b/c you know I am ALL about 'Checking your BP!' #jacobsheartstory #checkyourbp #chdaware #hearthero #chdsurvivor