Beautiful sunrise for our last early morning Friday drive to Denver for awhile! Next week we have radiation M-W, then a small procedure at Children's on Thursday. We are planning a party with her oncology team to celebrate end of radiation and how well Caroline is doing. It's been requested that I make keto brownies and keto coconut cupcakes. I can't wait. 🎉 #prayforcarolinemarie#beatcancer#childhoodcancer#cancersucks
Get that #fridayfeeling with us by celebrating our volunteers! We had an amazing time last Saturday learning about their super strengths, hearing feedback, new ideas and about their motivation to give children with cancer around the world the #giftofgrowingup ! 👍🌍💛 Read more about the workshop and volunteering opportunities from the link in our bio ⬆️
VOLUNTEER REQUEST: Friday 1/26-Tuesday 1/30. We are getting excited for the @americanbusassn convention starting in 8 days. ISF will have a booth at the 5-day convention, Friday 1/26-Tuesday 1/30. Please consider volunteering for a shift(s). We are very fortunate to be chosen as the charity for their Give Back program. Shifts & sign up form can be found on FB and our website.
This guy is the perfect inspiration to start your weekend off right. 6 years+ 23 days of running every day. Every. Single. Day. That translates to 2,213 consecutive days of running. This is McBeast, a local Monroe NC ‘Run-Streaker’ who ran anywhere from 1 to 50 miles every day during his 6 years + 23 day streak. He is one of the coolest dudes we have ever met. 😎 He hates cancer. Every type. McBeast stands up to cancer through his running and on many days runs in honor of a specific #cancerfighter as part of his fundraising efforts. He raises money for organizations like @leukemialymphomasociety ‘s @myteamintraining and @theisfoundation Isabella’s Dream Team. McBeast proclaims that cancer patients can’t take days off, so neither can he. This is a post run selfie after running 4 miles during this week’s snowfall. A man full of heart and faith... thank you McBeast for running against cancer every day. P.S. We think the gray #cancermessedwith beanie is the perfect color to accentuate the beard. Gotta run against cancer with style right? 🏃🏼♂️ [Stand up to cancer with #cancermessedwith gear at cancermessedwith.com] #nodaysoff
It’s been a while!!! We miss you guys!!! Sorry for the lack of updates but since the last surgery then set of scans and we have been enjoying ... normal! In this picture is the kids’ grandpa who came from Egypt and spent winter break with us ... it was everything we all needed! As always thank you guys SO much for always sending us messages to check on Zein. It is God+ your prayers that got us here:) #ZEINiac#childhoodcancer#powerofprayers#ZEINvolution اتأخرنا عليكو معلش و بقالنا كتير مكتبناش حاجة. بس من ساعة العملية الاخيرة و بعديها التحاليل و الفحص الدوري و كنا محتاجين راحة و حبينا نستمتع بشوية حياة طبيعية:) في الصورة دي جد الولاد .. جه من مصر وقضي اجازة نص السنة معانا الحمد لله. دايما نشكركوا علي اهتمامكم و رسايلكم للاطمئنان علي زين... احنا هنا بفضل الله و فضل دعائكم. #سرطان_الاطفال#التحدي_هو_زين
So I wanted to wait, like I realllllly wanted to wait because we do have a few tests we are waiting to come back. However I am literally on top of the world 🌎! Today we received incredible and unexpected news. As most of you may know, Summer has been misdiagnosed multiple times, and received 2 very broad rounds of chemotherapy. The doctors did not think it would be effective to her actually diagnosis of AML with the RAM phenotype (very very very rare). So yesterday Summer had all of her routine procedures to determine a baseline of where she’s at before starting her intense chemo. Today our doctors were in disbelief. Today our doctors actually said the words “I have good news”, which have been foreign to our ears since Thanksgivings. Her bone marrow is CANCER FREE! CANCER FUCKING FREE!😃The mass growing behind her ear has decreased by half and her CSF (cerebral spinal fluid where leukemia likes to hide) is also cancer free! She is a miracle. A living, breathing, ass kicking miracle 💪🏼We will still proceed with chemo and a bone marrow transplant but things are looking up everyone! My heart is so happy for our baby girl!! 💕💕 #morethan4#childhoodcancer#childhoodcancerawareness#SummerStrong#TeamSummer#fightlikeakid#fuckcancer#kidsgetcancertoo#gogoldforkids#gogoldforchildhoodcancer#gogold#godisgood#godislove
Cooking at night with a glass of wine (yes, I know that’s not a wine glass) takes me back to so many nights when Willy and Joel were at the hospital and I was desperately trying to get things ready to go back the next day. Tired boys, tired parents, laundry, switching out one set of tiny PJ’s for another, packing that favorite blanket or bear to bring to Joel... phew. I would always get a text from @lesliemeadowphotography reminding me it’ll be okay and that I need to remember in all the hurrying to honor my grief.
I can’t tell you how appreciative I am of this dull moment. All three little boy beds have little boys asleep in them. Willy is in the garage working on the moose we were given. And me? I’m once again cooking at night with a glass of wine.
Over the next few weeks, I have to cook everything in my cookbook and get the food photo-ready. Good thing I made the recipes simple and freezer-friendly 😂
Also good that while we over here are cancer-free (🎉🎊🎗), the boys still love this stuff! Because, fun fact: cookbook or not, I’ve still got lunches to pack. The struggle is real. And the struggle is adored ❤️
And @lilgoldrush , this one is vegetables and protein, so it’s coming your way!
What would you do if someone you loved with all of your heart was diagnosed with brain cancer tomorrow?
Imagine hearing those words, hearing that someone you love has cancer of the worst kind, the kind with the lowest survival rate? Imagine being told your child has brain cancer? How would you tell your family? How would you tell their brothers and sisters, and them, that they were about to begin the fight for their life.. but there was a high chance they wouldn't win? And what would you do if the doctor walked into the room, and held your hand while they told you there was nothing left they could do? What would you do if you were told, your child, brother, sister, mother, father, aunt or uncle, grandma or grandpa, cousin, or step sister, best friend or enemy, teacher or colleague... was being killed by the awful beast called cancer?
Brain cancer is all too real, and it rips a million families apart year after year, including mine. We need to find a cure. We need to stop this happening. We need to stop having to bury our best friends, our mothers and fathers, bothers, sisters and children. #WeNeedToPutAnEndToCancer#WorthMoreThan4
After Fighting Long and Hard, 7 Yr Young Child Hero🎗Alexandra💖 @kykybean Was NED the Beginning of 2017... 5 Months Later...June 2017, Child Hero🎗Alexandra Relapsed💔.
Currently at Sloan Kettering in #NYC (Far Away from Her Home State of #Oklahoma ), Fighting Stage 4 High Risk #Neuroblastoma ... This Little Girl Has Been Through the Absolute Unthinkable.
Bravest💪 Alexandra💖 has Endured:
4 Major Surgeries.
3 Full Cycles of Chemotherapy.
2 Radiation Cycles.
She had 1 Kidney Removed,
& Had Brain Surgery as Recent as April, 2017. .
#REALNEWS but Hidden News. #News That Deserves To Be Known. A #REALHERO Child That Deserves To Be Known. A Child That Deserves A Childhood & A Future.
Child Hero🎗 Alexandra💖 @kykybean
DESERVES EQUAL USA🇺🇸 GOVT CANCER FUNDING For the #CHILDHOODCANCER She FIGHTS🥊. .
NOT 🚫LESS THAN 4%, BUT EQUAL = 50/50 CANCER FUNDING AS COMPARED TO ADULT CANCERS. .
Please, #Fight 🥊For Our Kids, BE A #VOICE 🗣#ChildhoodCancers Are NOT RARE!! .
PROPER STATISTICS, UNIVERSAL🌎AWARENESS🎗, and EQUAL CANCER FUNDING ARE RARE!! .
Please Follow Alexandra On Her Fight @kykybean
This Is A #Family In Great Need, Far From #Home , Almost No #Money Has Been Contributed To Their #GoFund . Everything Helps and Matters. Please Consider Donating : www.gofundme.com/flores5 & If You Will, Share This GoFund On All #SocialMedia To Help This Gold💛Family.
My 2 year old has cancer....her doctor finally did a CBC and everything was low. Which lead to a retest and then having to go to a diagnostic center for a retest. This morning we were told she was to be admitted to Levine’s Children’s Hospital. They did their own CBC and look at her blood under a microscope so they could see any abnormalities. At this point we know she has leukemia, hopefully tomorrow we will know which kind she has and they hope to be able to start chemo sometime Friday. This wasn’t quite what I expected when I took them to the doctor yesterday for the flu but this is where we’re at so we’ll just take this as it all comes #downsyndrome#leukemia#childhoodcancer#wewontgiveup
What a rollercoaster these let 24 hours have been! We made it New Orleans last night after a crazy two and a half hour drive on roads we didn’t even know existed! We still had trouble getting to Ochsner this morning because so many roads were still closed. When we arrived at clinic we found out that there was no running water anywhere at the hospital so they weren’t sure they would be going through with her spinal tap! They were finally able to move forward with her procedure! Her blood work looked great today; no changes to her meds! Annabelle completed her 23rd and final spinal tap with intrathecal chemo!!! Annabelle has only two months of treatment left! We will end treatment in March! We are so close!!! I made a poster for her to hold but since we had to put it in the car a day early it was ruined by the time we made it to New Orleans!! Annabelle calls the propofol her cheesy stuff and she was excited to be rid of it after today! picture of the ruined sign just for the memories!! Thanks for the prayers we are now home safe and sound!! #teamannabanana#awesomesauce#leukemiawarrior#cancerfighter#childhoodcancerawareness#childhoodcancer#lastspinaltap#twomonthstogo#nomorecheesystuffforme#todayismylastlp
Tre was super crabby today. Turns out he has a fever, which isn’t good when your immune system is compromised. But we are in good hands, and we got to spend the day with sweet Ava...and that was the best kind of medicine. #TreStrong#ChildhoodCancer#PediatricCancer#CancerSucks
🎗Happy 5th Birthday in Heaven to the most amazing, sweet and loving little angel🎂I wonder what you are doing today❤I hope you are having fun and lots of presents🎁We miss you SO much and we wish you were here to celebrate with you🌸But today i choose to be happy, to create memories and honor your life. Love you with all my heart Macky, and i hope there is a big party for you today in Heaven👼
Keep flying high princess, till we meet in Heaven 🌻
My heart, prayers and love are with Macky's family. She should be here.
FB: Smack this Mack
Feliz Cumpleaños al ser mas maravilloso del cielo. Macky, nuestros corazones desean que estuvieras aquí para celebrar contigo, pero decidimos ser felices y crear memorias en tu honor. Esperamos que haya una gran fiesta para ti hoy en el cielo. Te amamos y extrañamos con todo el corazón!
This is Isabella’s Aunt Laura, who is currently awaiting the birth of her 3rd baby. When firstborn Jackson arrived five years ago, Isabella was there. 4 short weeks later, she was gone. And in that moment, a void was left. Jackson forever missed out on the opportunity to grow up with a cousin for a best pal. His sister, Eden, faces that same truth. And their newborn sibling, who we are overjoyed to welcome in the very near future, will also face the world without her in it. Pediatric cancer changes the future for everyone; the emptiness it leaves carries on forever. This is why we won’t back down. @cancermessedwith
Five years ago, this (soon-to-be) mommy of 3 was welcoming her firstborn. Just weeks later, the family lost their niece to neuroblastoma. The loss created an enormous void; marked by missed moments, hugs, laughs, and joy. These siblings will forever miss the cousin they couldn’t grow up with, the most special playmate they never had. This family was devastated by pediatric cancer. But they continue to fight in honor of their niece, cousin, and best friend. #cancermessedwith
Oli made this post on January 1st. This was the day our lives truly changed forever. The day they found that stupid tumor in his head. Oli lived for only 15 more days. 💔 he only lived 15 days after they found that tumor. That's what cancer does. It stole his life before it could truly begin. It didn't even give him a chance. It's such a selfish beast. My heart hurts 😔 you got your wish, baby boy. You're with Jesus now. #childhoodcancer#teamlove#teamoliver#fuckcancer#angelsforoliver
She is the reason I work to have more, comfortable is not enough. Working for time free for financial freedom this has been one hell of a Journey and it has taken me 5 years to finally accept what she went through #tbt2012#survivor#childhoodcancer#wondermommy Full story will be on my blog tomorrow. #linkinbio
There's some advice quite commonly given to parents to "be in the moment" with their child and not take thousands of photos. Let me tell you, when your child dies you are grateful to have thousands of photos. But if you were the one taking them, there are only a few of you together. And you think you've seen all of them. In 2010 when Zoe was off treatment, @nykiegroveeades did a photo session with her. She's just found the outtakes I've never seen and I am sooo happy and grateful - and we look so happy in this one.
I miss him. I miss him so much. No more helping him with homework. No more cuddles before bed. No more hearing his voice or shopping for his clothes. No more first days of school. Nothing. No more. Cancer is a thief and a murderer. My boy deserved a cure. Childhood Cancer only received 4% of research funding. This isn't okay. My baby NEEDED a cure. We NEEDED him to live but CANCER took him. We HAVE to step up. We CAN'T keep letting cancer murder our kids. No more of this 💔 #fuckcancer#childhoodcancer#teamlove#teamoliver#angelsforoliver