Time to speak up now. I've recently been diagnosed with fibromyalgia. A syndrome that is hardly understood but affects more people than we realise. You can't sleep even though you're so tired that your body screams at you to rest. Your muscles all over your body feel like they're being beaten up constantly. I can hardly eat, I have to force myself. I become exhausted even when I blow dry my hair. Going food shopping with my mum can cause a flood of pain and fatigue where I want to cry and just lie down on the shop floor. My doctor is helping me figure out medication that can help me and my family have been wonderful, I can't thank them enough for their love and support. But the truth is, fibromyalgia has changed my life. I am having to get to know my own body again and my limits. It seems I won't be able to work a full time job again. It's been hard and will most likely get even harder. But all I can do is push forward. There's no other option. Awareness of this illness is horribly lacking. It is real and the people who suffer need your understanding and support. As it could happen to anyone, even you. .
Love this from Jade 💛⠀
✨ #Fibromyalgia syndrome ✨ #Chronicfatigue ✨ #PCOS ✨ #IBS ⠀
Jade was fed up so tried our Plant Protein Shakes & Nutrition Capsules, just look.. 👇🏼😍🔥💯💋⠀
"My journey has been slow with lots of ups and downs but since I started, I feel so much better! My pain has reduced, I feel energised and I have less bad days, my IBS has improved greatly and my PCOS symptoms have almost disappeared! ⠀
And I have lost 2 stone!!! I still have a long way to go but I am proud of where I have got too! ❤"
‘I’m okay...’ 👌🏻Got that one down to a T 👌🏻It’s funny as I actually HATE lying & I’m also dreadful at it, it’s written all over my face 😂 but I’ve become so adept at ‘I’m fine & I’m okay’, possibly so rehearsed, when really I live a living hell, it’s bananas. Because truth be told, where would I even start to describe how truly awful daily life with severe M.E is? Never mind the rest of my collection of illnesses 🙈 #SevereMEruinedmylife#imfine#imfineitsfineeverythingsfine#imfinenot#severeME
We are now redefining disability in the UK!!!! Today is Day 1! I can't wait to get to know your challenges, goals and help you navigate the ups and downs of wellness. Drew and I live by example and we are proof of the struggles of health BUT also are the hope that your quality of life CAN improve with fitness, nutrition and general wellness practices! What is your name and how long have you been following our journey?!?
Early morning Celery Juice for the WIN! It's been about two weeks since I incorporated Celery Juice into my life style and why it's still early to tell a major difference. I do believe it's helping to keep my body hydrated which is helping with my dizzy spells. I suffer with chronic vertigo among many other things and have tried everything to relieve it. I also drink Celery Juice for many other beneficial reasons. It helps cleanse your liver of toxins, restores your adrenals, helps with low hydrochloric acid, stomach issues, fights brain fog, fatigue and lowers inflammation in the body. There's other beneficial reasons to drink Celery Juice that I haven't listed but these are my top favorites that I'm hoping with help me on my journey ♡ #celeryjuice#medicalmedium
I was diagnosed last year, with Myalgic Encephalomyelitis also known as Chronic Fatigue Syndrome. CFS is a chronic longterm condition that causes intense debilitating fatigue, flu like symptoms, headaches, cognitive problems such as forgetfulness, disorientation, widespread pain all over the body, IBS, dizziness, muscle weakness + other symptoms. There are debates about the name, definition + cause but those who have it, know they have it. It's often believed to be caused by trauma, such as a car accident etc, injury to the spine or neck, some say it's adrenal fatigue, burn out, others say it is linked to the mitochondria which is like the powerhouse of the cells. Some say it is triggered by glandular fever - In a nutshell it's complex. Many would say it is an accumulation of all these things + more. What is known, is that it effects everyone differently + to different severity. Some are bedbound, some function well + work.
M.E can be an enigma in itself. What is most advised, is to treat symptoms + listen to the body. Mainly through rest. Deliberate rest. Not watching Netflix rest, but the kind of rest that limits stimulation of every kind. The kind of rest that involves laying in a dark room, getting "horizontal" not sleeping, simply resting the body, preferably in silence. These are called "therapeutic rests" which are to be taken like a prescription medicine, 3 times daily, starting at 10 minutes upto 1hr.
This really seems to be the only type of rest, at least for those with M.E that actually gets to work at healing the body. It effectively presses RESET over time. It allows the adrenal functions to calm, the hormones to rewire themselves, cortisol *stress hormone that causes inflammation* to decrease + other good hormones to increase, thus healing the body. This can take months or it can take years + it often needs to be cushioned with lots of other GOOD STUFF to increase the benefits. Like diet + sleep.
I struggle to rest. In This way. A friend who also has M.E texted me yesterday, a simple text. It was enough to encourage me to try again after months of stubbornly refusing to 'give in'
As always, I share for awareness + because I love to do so. 🎇
Day 19 – Cloud
Brain fog is a good pal of epilepsy. The mischievous pair walks hand in hand and slows the whole world down to a crawl. Your brain is shrouded in a cloud of fatigue, confusion and the worst memory recall (yes, we’ve had that conversation three times in the last 20 minutes). What’s the word again? What was I doing? It strikes after seizures like a storm and renders you useless. Or sometimes it just hangs over you like a cloudy day and you’re left struggling to do the simplest things. You’re popping these pills that you stopped sorting into little pill boxes a while ago because there’s too many – now you just take them from a giant bag like a pick ‘n’ mix.
A big cloud of grey – sometimes it slips away and you function again but it’ll be back. Here’s me and an EEG – the rainbow of wires cascading from my head, monitoring the ictal spike that makes my brain a little bit like an earthquake zone sometimes.
Let me know if you're attempting it too! [drawing every day in October with a prompt word]. So I've been wanting to do this 2 years running and this year seems to be the best time to try!
I haven't been so sad to finish a book in a long time. Spellbook of the Lost and Found by @moirawithatrema is incredible - it's one of those hauntingly beautiful, powerful books that lingers with you long after you've turned the final page. It reminds me slightly of one of my all time favourite books, The Night Circus, because the language is so evocative & the use of magical realism is perfectly balanced. It also addresses some extremely complex and important issues sensitively and empathetically, it's a brilliant book. If you're looking for a new book to read, especially on a cold autumnal day/evening curled up by the fire, I cannot recommend this enough.
You guys ready for a long long story!? So two days ago I started getting ready for my day.. standing in the shower and started feeling shitty so i indulged and just stood under the water for a while relaxing, the next thing i know my apple watch is dinging with an alert.. my heart rate was over 125 bpm after standing still for ten mins.. thats weird right? So i quickly finish my shower and get dressed and sit down.. heart beat was at 134 bpm sitting 🤔 okay thats weird but i kinda forget cause my son woke up and needs a nappy change, we get to the change table and im feeling a bit dizzy which is kinda normal for me but i thought ill check my heart rate and its 144.. ok.. what even is a normal heart rate for changing a nappy? I thought so i went about my day eventualluy my heart rate got to 161 and i thought hmmmm maybe i should call my doctor its been like 45 mins of my heart being over 125. She told me to ring an ambulance and when they got here my heart rate was 173 bpm standing still! It was also chucking in an extra beat and then missing one.. felt like someone was squeezing my lungs when it happened, anyways got to hospital and it had finally started to come down under 110 all investigations were negative about to discharge me and they decide to do a postural bp and heart rate.. blood pressure goes up and heart beat goes up 40 bpm, so looks like we are looking at POTS (Postural orthostatic tachycardia syndrome) but i guess we will see 🤔
So the beauty is that compared to chronic illness healing all other goals seem quite achievable.
I think we are becoming amazing goal getters and dream catchers and creatives. But in a different way to how we used to be.
This morning I'm thinking about the non-linearity of getting to where you want to be. That moments and days when things are shit and difficult are just a part of it, and it does not mean you are not on the overall right path still headed in the right direction. It is something I have struggled with the last years, and definitely did not accept at all before this healing journey, but I feel like I am finally learning to accept that getting to a goal isn't just a straight line up and to the right. And trusting that makes goals and dreams seem so much more achievable: you don't have to get it right all the time, the only thing you really have to do is not give up. And the beauty of learning something as part of recovery is that it is transferable. A couple of days ago my novel writing felt stuck, but I didn't panic, or quit (though definitely had the instinctual thought to just stop the whole project) and then today it is flowing again. So no matter where you are on the curve, in a dip or on an upward part of it, keep going.
HOW MANY hours do you spend in one day in front of some form of digital screen???
The majority of us spend most of our waking hours staring at a digital screen, with studies suggesting that 60% of people spend over six hours each day in front of a digital device 😱
And did you know that this blue light blue light signals to the brain that it's day time and creates wakefulness....
So... I'm sure we can all agree that most of us spent quite a bit of time lying in bed at night scrolling on our phones 🙋🙀
Here's a handy tip for a better nights sleep 〰 simply swipe up on your iphone and hit the Night Shift: On button to reduce the blue light from your iphone or tablet screen 👌
So, THIS IS HOW IT IS.............. I look at my beautiful view which I’m grateful for. And I’m sat here in awe and appreciate, but also in utter depletion and paradoxical emotions. // I was going to do a IG story but I haven’t the strength, yet I want to explain HOW this illness works and FEELS. // To actually explain. Because people do care and want to understand// So, Here it is - I wake exhausted and unwell every day. As though yesterday I ran a marathon on no food. .... // My aim is to try to get to the next marker. First to get up. To get a drink. Each marker and step depleting me further as my reserves are used up. But hoping momentum kicks in to compensate. Never able to think about the day ahead because that would mean cancelling every little thing at this point. // Getting breakfast the next challenge. Sitting here afterwards wondering how I’ll get dressed and clean my teeth. Maybe a bath would ease me in? Knowing I need to rest more before that can happen. // Once I’m dressed at least I’ve ticked off the basics (which don’t feel basic) and can consider if the next marker will be contemplated. If that is even a potential? Often THIS is it though, but if so I go back to bed from a place of ‘trying’. Of some satisfaction. For Always we are motivated even against the deepest fatigue. Always with will power even if it isn’t seen. // And so daily living at this level is about STAGES. One step at a time. Seeing how far we get. Maybe that ‘thing’ will be possible this afternoon once we have ticked all the milestones before it. Right now with them all in front of me it is not. // A game of chance? Nope. It’s an unfair game where there is no energy and all we run on is (unappreciated) inner strength . Step by step. Often taking or achieving 1 or 2 steps in a day ... then on repeat each day ... wondering if we will get to step 3 or 4? Or maybe even, once a month, to step 46 with a trip out or to the hairdressers? Not knowing. always trying. A game of uncertainty. This is how it is.// And if you find yourself a player in this game of chronic illness, know that I see you. Every step is valid. Xx
Happy Friday eve peeps! Yes I call Thursday nights Friday eve because Friday is my favourite day of the week 🤗
Just thought I'd share some things I've learnt over the past week about myself... 1. I've got a hell of a lot of persistence! If there is a way you betcha I'll find it! 💪🏻👀 2. Self-love is one of the best things you can do for yourself. Something I've struggled with a lot 😌
3. It's okay to have emotions and be honest with yourself ☺️ 4. I'm always finding ways to seek adventure... trying to talk the boyfriend into going overseas again 🤣🙄✈️ 5. And last but not least, I have no idea how I've gotten to where I am but I bloody love life at the moment!
I've found that writing my story in blogs has really opened my eyes to how far I've really come in the past 3-4 years. ☺️
I can't wait to share my story with you.
I'm so so thankful to be happy and healthy! 😁
Sleep when you suffer with M.E. Is either all or nothing, pain, worries, emotions also adds to sleepless nights; we tend to be restless in bed getting frustrated with not sleeping, clock watching creating tension in our mind, we go on social media and Netflix to try get us to drift off, but this stimulates our brain waves instead of relaxing them; we hold lots of tension in our muscles as well as our mind, which causes pain, sleepless nights, restlessness and emotions.
The good news is that sleep patterns are part learnt by our mind and with some simple steps we can reach establish a good sleeping pattern to get the restful and healing sleep our body desperately needs.
You can find out how in my new Ebook ✨ link in my bio or found on my website ✨
Repost photo from @onefiftybelow
When you finally get to your cryotherapy appointment 3 weeks overdue.......You wouldnt beleieve it but i have totally seen a huge difference in my body the last 2 weeks with not getting my weekly freeze session......my chronic fatigue is on a high this week my body was so inflammed, i just felt like i was aching all over and that my body was soo heavy. I was lucky to get 2 hours sleep a night which is causing me to be emotional i just felt horrible, a reminder to myself dont miss appointment this actually works its helps my recovery from training and help my fatigue bring on my relaxing sleep tonight, the moment i step foot in that chamber i felt this relief it really is unreal how amazing you feel after 3 minutes.
If you dont beleive me that this works why not test it out yourself and head on down to @onefiftybelow ......go beat that fatigue feeling today with a cryotherapy session, best 3 minutes of your life.
His and Hers ❤️ ▪️▪️
I honestly love pho (shout-out @autumnellick) and I am a huge fan of ramen. Everywhere I go, I always try to eat based off either the European or Asian culture. Don't get me wrong, I completely understand comfort food (Mac and cheese, @thewoodyshow ) and those days where you just need to binge... no shame there! ▪️▪️ For me, however, my comfort food is literally kale soup 🙈 I'm actually starting a cleanse in two days - 3 days of juice and 10 days of the Master Cleanse. I'm going to be a grumpy, evil, soul-torturing person -partly because I can't eat, but mostly because no more Red Bull! Or any fake energy source. So please, in the next 15 days know that anything I say is from hunger ❤️