October 15-21 is Invisible Disabilities week! 💕
You've got to ask yourself, what does someone with a disability look like? Most people would immediately think of wheelchairs and differences in physical appearance, but that isn't all disabilities 🙅🏼 Just because you can't see the pain doesn't mean it isn't there. You never know what battles people are fighting so don't assume 💪🏻❤️ .
This week is time to raise some awareness for people with invisible illness, so remember - just because you can't see an illness, doesn't mean it's not there, and support can go a very long way 💕😘🙏🏻 .
Does anyone else feel like the Spoonie life is a giant magnet for stress, turmoil and crisis?
IT NEVER STOPS. *rant warning*
Some “highlights” of the last several months include my mother (who lives with me) had a major heart attack followed by a suicide attempt a few months after which led to a long overdue Bipolar diagnosis~My husband and I had to file bankruptcy due to my medical bills~Still waiting on my disability hearing with a judge. I haven’t been able to work the last 15 months~The extremely shady Carrington Mortgage started foreclosure proceedings on my home (a very complicated and angering fight we’ve had for the last year)~Still waiting on the hardest hit fund to approve our app for assistance with the mortgage.🤞🏽Family has scraped up almost all of the money to lend us but still $1100 short needed before the 26th.
I’ve been flaring for two months now only to learn as of today my Lupus is officially upgraded to severe with heart complications. I have chronic myopericarditis with scar tissue present. New challenge: changing my meds up...again - progressive heart problems tops inflammatory arthritis. So goodbye Methotrexate. Hello to long term steroids again and trying to sort out my next medication.
I’m so exhausted and drained and struggling with anxiety and depression and then gratitude and then shame for having pity parties. It could be worse. It HAS been worse. But I would not object to a break in the bad news department. **rant over** Thank you if you read all of my middle of the night painsomnia ramblings. Verbal diarrhea at its finest! 😂 #heart#myopericarditis#scartissue#lupussucks#depression#anxiety#ptsd#selfharm#eatingdisorder#abuse#survivor#chronicpain#invisibleillness#autoimmunedisease#butyoudontlooksick#spoonie#spoonies#spoonies_united#lupus#fibromyalgia#raynauds#sjogrenssyndrome#arthritis#spinalstenosis#facetarthritis#osteoarthritis#degenerativediscdisease
💖My favourite quote
It's helped me through exams, anxiety attacks, depression, hospital stays & more. It feels like this episode is taking its time to pass but I know it will 🙏🏽
Fingers crossed any day now..😂
Hey 👋🏻 my #internship began two days ago. Although it's the best internship I ever made (so far) it's really stressful and makes my #headache and #neckpain worse. 😕 yesterday I ended up crying at home because one of my colleagues was so mean to me. Today I have #therapy , actually I wanted to cancel it but I didn't realize it until yesterday evening and now it's too late 🙄 anyway: I hope you're all doing fine 💗 have a nice day! 🍁
Tomorrow is a day I’ve waited over three years for ⏳
In 2014 I stumbled across a 25-minute home workout by “the guy from Insanity” 💦 I tried it for a couple of weeks and then I went off to Glastonbury festival and it fell by the wayside🍻 🎵 ⛺️
I did almost nothing for another 18 months apart from buy a DVD that I tried once or twice, and the DOMS for were so bad I didn’t do anymore. I didn’t have anyone to tell me that DOMS are normal and that I should carry on exercising to ease them🤦🏻♀️
I heard “the guy from Insanity” was doing some sort of dancing workout. “That sounds fun” I thought. And it really was 💃🏻🕺 I even got colleagues involved and started a little fit club at work
One day, I was mooching on FB (as you do), and I found the profile of someone who would go on to change my life. While I was taking steps in an attempt to lose weight, my health was generally declining, and my well-being had taken a hit too
2015 became the year I tried to focus on cleaning my diet up and 2016 was the year I decided enough was enough
At the start of 2016, I weighed 200lbs. I was reliant on a cocktail of pills to function and, more often that not, a walking stick to move. I was miserable and spent my spare time attempting to rest
But I knew I needed to make changes. So I went back to the workout that gave me the evil DOMS and I trusted these crazy little containers for my portions
My life was transformed. I knew I had to pay it forward and help others in the same way I had been helped
Fast forward to today, I’m 40+ lighter. I’m medication free and rarely have to use my walking stick (I can count how many times I’ve had to use it this year on one hand). I understand that food is fuel, and I know the importance of making sure I use the right fuel. I invest in improving my mindset and emotional well-being. I am the sum of the five people I am closest to, and they are five fearsome badasses who share the same passion for transforming lives
Tomorrow becomes the day that my duty to help others becomes official, and tomorrow becomes the day I am officially welcomed to the Beachbody family. It’s like a wedding day and this is gonna be a lifelong marriage
" Our very infirmities help us unexpectedly " William James
My pain helped me to rediscover myself and create myself again.✨🦋✨ ✨. ✨My chronic pain made me grow spiritually and develop a new sense of values.
It open up new horizons for me , changed my values and made my life richer in the new way. I learn what mindfulness means , that yoga is everyone, how practice 'creative' meditation , how to breath in and enjoy the present moment.
Most of all the skills and knowledge I acquired I was able to use to help not only myself, but my boys to deal a through their difficult times and help them get ready for their life journey. ✨As full time working mom I never had time to slowdown and learn about myself , or even do things I like . My health conditions changed everything. My body physically made me stop my life as I knew , as I would not do it myself . It took my voice and my strength away from me. So I could not walk and talk anymore. I learned my lesson a hard way . After 10 years I am still learning , as it's never ending discovery.
I am now trying to be friends with my chronic pain , my body and mind , so we could find common grounds to manage and enjoy life .✨🦋💗🦋✨ #chronicpain#invisibleillness#pain#grow#spiritually#values#discovery#body#mind#friends#enjoy#health#mindfulness#mindset#acknowledge#acceptance#alwaysbelieve#gratitude#choicetomake#inspire#love#learning#creative#life#happiness#personaldevelopment#loveyourself#yogahealing#smile
“Spiritual courage is defined as a journey that requires you to be in the present. You surrender your ego to a higher level of courage consciousness by setting a “Declaration of Courageous Intention”— that's what spiritual means. To become courage-conscious is a gift to the spirit”
BONG CLEANING TUTORIAL!!! who fuckin hates cleaning bongs? I do 💩💩💩 so I decided to make my own way to do it. So cheap. Amazingly effective. 1:Pipe cleaners $1.00 for 100,2: plastic wrap, 3: aluminum foil, 4: strongest ISO you can find. 5 The rabbit. (Very pliable rubbery wine Cork. Super cheap. Use synthetic cork in a pinch but these things are amazing and clean right up when done. Step 1: fill bong with desired amount of ISO (you can also do this with hot water and coarse salt of very dirty). Step 2: Cork the stem side, step 3: plastic wrap layer the tube and wrap as tightly as you can with the pipe cleaner. The super thin metal wire if wrapped tight makes a great seal. Step4: aluminum foil over the top and another pip cleaner ( put pipe cleaners above or below each other so they all get full contact around the glass for the tightest seal. Nobody wants this to leak!) Step5: repeat step 3 and 4 one more time. Step 6: shake like a mother fucker and let it chill, shaking every so often. Use gloves just in case at some point you'll have to remove the layers and they will be sticky and nasty. Step7: rinse well repeat if needed. Step : get on that grind and rip a fat bowl !!!!! Tutorial as requested by @i_am_the_real_matt_pothier and for @missamanda_710
I feel like I don't rant often on social media, but when I do, it's worth reading (so pay attention). When I was 9(ish) I started getting headaches. When I was 19, my headaches became intense, throbbing, and debilitating. I thought it was stress, or I needed glasses or that there was some other cause with an actual resolution. I was experiencing throbbing, light and smell sensitivity, vomiting, dizziness, insomnia, neck pain, eye pain, etc. Unfortunately, I was starting to experience chronic migraines. I began taking preventative medication (none of which were actually created to treat migraines) and with that, came countless side effects. Depression, mania, high blood pressure, low blood pressure, weight gain, dizziness, cognitive cloudiness, and I could go on and on. Nothing was working, so not only was a dealing with the symptoms of having a migraine every god damn day, I was also trying to find any type of medicine to help take my pain away and that didn't give me any additional symptoms to combat. Eventually, I was FINALLY referred to a specialist and now have to drive two hours every ten weeks to get 35 injections of Botox into my forehead, scalp, neck, and shoulders (thank god I have insurance to help me pay for the two vials I need every ten weeks). I live in chronic pain, in constant fear of when the pain will return if I wake up headache free, and with the constant struggle of trying to function. I'm exhausted, nauseated, and holding back tears 78% of the time. Please don't say you have a migraine because you're hungover and have a headache. But also, please take it seriously and talk to your doctor if you are experiencing the symptoms of migraine headaches. Trust yourself to know it's "more than just a headache". Migraine headaches are a legitimate neurological disorder with many treatment options that are often effective (mine are just resilient), so don't suffer in silence 👤#chronicillness#chronicpain#migraine#migraineawareness
• #tootrue ahead of the game with my "New Year, New Me" body (that saying makes me cringe!!) ... in the past 8 weeks I have gotten quicker and better results than my year working with a PT and a year going it alone at the gym. It's about time!! And I'm exercising for less time and in the comfort of my home 🙌🏻😻👯#whynotyou •
Welp, that was not what was supposed to happen. After they pulled the epidural this morning, the pain crept back all day until I couldn’t straighten my leg all the way. It swelled up and changed back to CRPS purple. I’ve started steroids and temporary pain meds and am getting cozy with some hot cocoa and journaling. Not the best day.