Tonight I hesitated to put up a picture from a work event (on right) on my personal feed because sometimes it's hard to see your moon face until someone takes your picture. What's called moon face is a side effect of prednisone for many which is much fuller than normal face. My weight is the same in these pictures and they were taken about 7 months apart. Lately I've been very nostalgic of the way I used to look and many parts of the life I used to so easily have. (Left pic) Chronic diseases have their own demons and many of them are not easy to face (no pun intended 😂) I'm looking forward to days ahead where I don't take drugs like prednisone with effects like these. Until then I encourage you to continue your battle, especially by smiling through your moon face and go ahead and post those not so perfect pictures of yourself. Let your pictures be a reminder of all you have managed to do despite these certain adversities. Much love my warriors. 💕💕😘 #ibd#ibdawareness#crohnielife#crohnie#pred#battle#moonface#warriors#chronicdisease
No matter how much I want to give up I keep pressing on. I'm heartbroken at the amount of people that have faded from my life when I was diagnosed with crohns and I lost even more once I was in the hospital. My ileostomy makes me feel so unattractive sometimes I feel like I have every reason to give up. But I can't I have to come to far. I'm very thankful for all the love and support I have from everyone that has stuck by my side. #crohnielife#crohnswarrior#ileostomy#strength#invisibleillness#ostomate
To continue from yesterday’s post, this is true •
Do what makes you happy. •
Whatever it is. Eating pizza everyday. Playing board games. Working 7 days a week. Hiking. Volunteering. Spending money. •
Whatever it is, as long as it truly and honestly makes you smile on the inside and out, then just do it. •
I would love to eat pizza everyday. I would love to eat pizza once in awhile. And I can. But it hurts the guts for 2 days at least afterwards. •
So my happy place changed. For me to feel good and smile I had to change my diet. Completely. And it is massively restricted at this point until I figure out what I can and cannot eat. •
But it gets better everyday. And a happy tummy makes me a happy person 😂
Things change. Everyday. Every minute. Go with flow. Chill out. Enjoy the ride and love on the moment.
Another picture and example that I hope spreads awareness for IBD. I've learned to accept that despite the precautions I take annoying butt leakage is one of the most frustrating symptoms I've been dealing with over the last couple years-- despite using lots of different products and things to soak it up, it does what it wants sometimes! Black might hide leakage well but YOLO so live dangerously and keep your chins up warriors; stay strong, stand tall, and don't forget your @tide_togo Pen! In the meantime I hope for a future where I can go about my days without leakage, but in the meantime imma keep my yellow dress on🙌👏😘💪💪 #ibd#ibdawareness#crohnie#alltheleaks#soldieron#warriors#crohnielife#perspective#positivevibes
Flu shot yesterday, injection tonight, infusion tomorrow.
I went home early, today for some extra rest. The doctor is upping my dose, tomorrow.
I'm pretty tired, but excited to take another step towards remission.
The last picture is of me getting my treat after injecting myself. I like to reward myself. Haha
Love this quote! What a powerful reminder of the power of hope. Tomorrow I meet with another doctor at a new (to me) medical campus. I am hopeful that he will be ready to offer some guidance in this journey. I'm hopeful he will have an open mind and ideas. Hope never goes out of style and it can help you with the simplest to the most difficult of tasks and times. I wanted to post this to remind anyone who is struggling that hope is always there! You can do this, warriors. 💪💪And if you think of it hope with me not just tomorrow but everyday! 🙌🙏🏻✨💜 #ibd # ibdawareness #crohnielife#hope#strength#hopeon#quotestoliveby#perspective#positivevibes