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At the office of my chiropractor for some much need adjustments for my back. God, I wish all my aches and pains would just magically vanish 🤦🏻‍♂️🙄
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#chiropractor #backpain #backache #jointpain #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
At the office of my chiropractor for some much need adjustments for my back. God, I wish all my aches and pains would just magically vanish 🤦🏻‍♂️🙄 . #chiropractor  #backpain  #backache  #jointpain  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
"A hello from the quarantine of bacilli" ✌
I have a big cold and will not be able to workout this week. 😢
But I can use the time to answer some questions. 1. Why do you workout so much? Because my body has been through hell and back not on my terms. I've watched myself waste away in a hospital bed drinking the formula because I couldn't eat. I've watched my body turning into an ugly one without my control.. So why? Because I want to love my body and treat it right and be as strong as I can be! 💜💪
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Ein krächzendes "Hallo" ihr Fleißigen! 🤗
Mich hat es total erwischt bzw. umgehauen und ich bin krank ans Bett gefesselt. 😔🤧 Nervig, gerade im Aufbau.. was macht ihr in dieser Situation um nicht sofort wieder Gewicht zu verlieren? 
Ich schätze ich werde die komplette Woche nicht zum Training können, also trainiert fleißig für mich mit! 😊😙 #cold #crohnsdisease #crohnfighter #ibd #crohnscolitis #bodybuilding #crohnie #fitness #girlswholift #training #instafit #instafitgermany #fitfam #fitgirl #fitchic #girlswithmuscles #girlswholift #selfie #gymgrind #ironaddict #fitspo #selfieoftheday
"A hello from the quarantine of bacilli" ✌ I have a big cold and will not be able to workout this week. 😢 But I can use the time to answer some questions. 1. Why do you workout so much? Because my body has been through hell and back not on my terms. I've watched myself waste away in a hospital bed drinking the formula because I couldn't eat. I've watched my body turning into an ugly one without my control.. So why? Because I want to love my body and treat it right and be as strong as I can be! 💜💪 🌟🌟🌟🌟🌟 Ein krächzendes "Hallo" ihr Fleißigen! 🤗 Mich hat es total erwischt bzw. umgehauen und ich bin krank ans Bett gefesselt. 😔🤧 Nervig, gerade im Aufbau.. was macht ihr in dieser Situation um nicht sofort wieder Gewicht zu verlieren? Ich schätze ich werde die komplette Woche nicht zum Training können, also trainiert fleißig für mich mit! 😊😙 #cold  #crohnsdisease  #crohnfighter  #ibd  #crohnscolitis  #bodybuilding  #crohnie  #fitness  #girlswholift  #training  #instafit  #instafitgermany  #fitfam  #fitgirl  #fitchic  #girlswithmuscles  #girlswholift  #selfie  #gymgrind  #ironaddict  #fitspo  #selfieoftheday 
Always do your best; even if your best doesn't seem like much. Give it what you've got and don't worry about the rest. Just do what you can. 
#Repost #Repost from @ileostomy_crohn_princess .
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#CrohnsProblems #CrohnsDisease #Chronicpain #IBD #InflammatoryBowelDisease #CrohnsColitis #spoonie #ChronicIllness #autoimmune #RSO #CannabisOil #Ganja #Crohns #Celiac #health #Healing #NaturalCures #NaturalRemedies #DigestiveHealth #Digestivesystem
#🎧 Stan Bush - The Touch by @sounds_app #soundsapp on https://get.sounds.am/5Tnm/F4nYnsYuVJ
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I know, this is an unusual selection for me to play but when I saw this movie when I was a kid, I remember falling in love with this soundtrack and this little gem of a track was one of those anthems to help get me psyched up and overcome whatever obstacle gave me a tough challenge! I hope that whoever may hear this, it can help give them that little push of strength they may need 💪🏼👊🏼💜💙
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#transformers #transformersthemoviesoundtrack #80smusic #80srock #musicforthesoul #musicforhealing #crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
#🎧 Stan Bush - The Touch by @sounds_app #soundsapp  on https://get.sounds.am/5Tnm/F4nYnsYuVJ . I know, this is an unusual selection for me to play but when I saw this movie when I was a kid, I remember falling in love with this soundtrack and this little gem of a track was one of those anthems to help get me psyched up and overcome whatever obstacle gave me a tough challenge! I hope that whoever may hear this, it can help give them that little push of strength they may need 💪🏼👊🏼💜💙 . #transformers  #transformersthemoviesoundtrack  #80smusic  #80srock  #musicforthesoul  #musicforhealing  #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
How cute is this teddy bear 🐻 on my text book!
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My new challenge for 2018... to complete the Stomal Nursing Graduate Certificate!... & become a Stoma Nurse ❤️
#justabitnervous #itsbeenawhile #postgrad #stomanurse #study #jugglingballs #crohnscolitis #crohns #crohnsdisease #ileostomy #coloplast #ostomy #ostomynsw #nocolonstillrollin
As IBD and Chronic Illness Warriors we pretty much have no choice but to be strong and fight our respective illnesses. Giving up is not an option and we must persevere and overcome these challenges that we all face. They are never easy and we will feel a tremendous amount of pain and shed many tears of frustration but once those tough storms clear, we become stronger and wiser as we continue to handle these illnesses. Stay strong 💪🏼💜💙
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#sylvesterstallone #rockybalboa #fightersfight #inspiring #inspiration #inspirationalquotes #strength #stayingstrong #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
As IBD and Chronic Illness Warriors we pretty much have no choice but to be strong and fight our respective illnesses. Giving up is not an option and we must persevere and overcome these challenges that we all face. They are never easy and we will feel a tremendous amount of pain and shed many tears of frustration but once those tough storms clear, we become stronger and wiser as we continue to handle these illnesses. Stay strong 💪🏼💜💙 . #sylvesterstallone  #rockybalboa  #fightersfight  #inspiring  #inspiration  #inspirationalquotes  #strength  #stayingstrong  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
Never WebMD...NEVER webmd. #crohnsiscray #didyoudietho
Tomorrow I will go to see the cardiologist, and on Tuesday will get the bimonthly labs done. It's weird how fast time flies when you're measuring it like this. Tuesday will be 8 weeks on 6mp.
Tomorrow I will go to see the cardiologist, and on Tuesday will get the bimonthly labs done. It's weird how fast time flies when you're measuring it like this. Tuesday will be 8 weeks on 6mp.
Stay #Curious. There is always more to learn and there are many ways of looking at any situation. Don't be afraid to ask questions or change your mind. A new perspective is only a thought away. .
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#Wonder #Mindfulness #SelfMastery #Meditation #SpiritualDevelopment #Spiritualawakening #questioneverything #Crohns #IBD #InflammatoryBowelDisease #CrohnsColitis #Healing #Health #DigestiveHealth #Digestivesystem #CeliacDisease #consciousness #CrohnsProblems #CrohnsDisease #ChronicIllness
Stay #Curious . There is always more to learn and there are many ways of looking at any situation. Don't be afraid to ask questions or change your mind. A new perspective is only a thought away. . . . #Wonder  #Mindfulness  #SelfMastery  #Meditation  #SpiritualDevelopment  #Spiritualawakening  #questioneverything  #Crohns  #IBD  #InflammatoryBowelDisease  #CrohnsColitis  #Healing  #Health  #DigestiveHealth  #Digestivesystem  #CeliacDisease  #consciousness  #CrohnsProblems  #CrohnsDisease  #ChronicIllness 
The best experiences in life happen outside of your #ComfortZone. Take a #LeapofFaith and pursue your dreams! What are you passionate about? What excites your soul? That's what you should be doing with your life. So start now & go for it!
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#Dharma #Truth #Peace #Knowingness #Bliss #abundance #Shaman #Mindfulness #SelfMastery #Meditation #SpiritualDevelopment #Spiritualawakening #Crohns #Celiac #ChronicIllness #autoimmune #Healing #Health #DigestiveHealth #Digestivesystem #CeliacDisease #CrohnsProblems #CrohnsDisease #Chronicpain #IBD #InflammatoryBowelDisease #CrohnsColitis #spoonie
The best experiences in life happen outside of your #ComfortZone . Take a #LeapofFaith  and pursue your dreams! What are you passionate about? What excites your soul? That's what you should be doing with your life. So start now & go for it! . . . #Dharma  #Truth  #Peace  #Knowingness  #Bliss  #abundance  #Shaman  #Mindfulness  #SelfMastery  #Meditation  #SpiritualDevelopment  #Spiritualawakening  #Crohns  #Celiac  #ChronicIllness  #autoimmune  #Healing  #Health  #DigestiveHealth  #Digestivesystem  #CeliacDisease  #CrohnsProblems  #CrohnsDisease  #Chronicpain  #IBD  #InflammatoryBowelDisease  #CrohnsColitis  #spoonie 
#🎧 The Velvet Underground & Nico - Sunday Morning by @sounds_app #soundsapp on https://get.sounds.am/5Tnm/IHug4jnlTJ
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Ugh!!! Trying to fight through this Sunday morning with so much back pain! I hope everyone is having a blessed day today 💜💙❤️🙏🏼
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#60s #60srock #60smusic #rockmusic #musicforthesoul #musicforhealing #crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
#🎧 The Velvet Underground & Nico - Sunday Morning by @sounds_app #soundsapp  on https://get.sounds.am/5Tnm/IHug4jnlTJ . Ugh!!! Trying to fight through this Sunday morning with so much back pain! I hope everyone is having a blessed day today 💜💙❤️🙏🏼 . #60s  #60srock  #60smusic  #rockmusic  #musicforthesoul  #musicforhealing  #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Bonjour! Not long now til my beloved #GoYourCrohnWay is published in French!!! VERY excited to see what my French pals with badly behaved bowels make of my ramblings! Je t'aime! 💕🇫🇷
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#crohnsdisease #crohns #ibd #ulcerativecolitis #crohnsawareness #inflammatoryboweldisease #chronicillness #chronicpain #french #translation #bonjour #frenchbook #chronicfatigue #ccuk #crohnscolitis #crohnsandcolitisuk
As I continue my journey in weightloss for this year, I have mentioned in a recent post that I would be willing to partake in other activities to help with my journey and I never have given much thought into yoga. I recently watched a documentary on Netflix called “The Resurrection of Jake the Snake” and how Diamond Dallas Page’s regimen of his type of yoga or DDPYoga helped Jake Roberts lose weight and his joint pains and mobility. In the documentary, he also helps another wrestler, Scott Hall with his health and also the regimen has helped Gabriel Iglesias aka “Fluffy” lose weight as well. It took me a while to track down a physical copy of this book but then I learned it’s on iBooks 😅🤪 I’m hoping if there are any dudes trying yoga let me know because I hope I’m not the only one leading the pack 🤨😂
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#yoga #ddpyoga #ddp #diamonddallaspage #getfit #weightlosstransformation #weightlossjourney #crohnsdisease #crohns #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
As I continue my journey in weightloss for this year, I have mentioned in a recent post that I would be willing to partake in other activities to help with my journey and I never have given much thought into yoga. I recently watched a documentary on Netflix called “The Resurrection of Jake the Snake” and how Diamond Dallas Page’s regimen of his type of yoga or DDPYoga helped Jake Roberts lose weight and his joint pains and mobility. In the documentary, he also helps another wrestler, Scott Hall with his health and also the regimen has helped Gabriel Iglesias aka “Fluffy” lose weight as well. It took me a while to track down a physical copy of this book but then I learned it’s on iBooks 😅🤪 I’m hoping if there are any dudes trying yoga let me know because I hope I’m not the only one leading the pack 🤨😂 . #yoga  #ddpyoga  #ddp  #diamonddallaspage  #getfit  #weightlosstransformation  #weightlossjourney  #crohnsdisease  #crohns  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Received my membership pack for @crohnsandcolitisuk disabilities aren’t always visible! 💜 #ibdawareness #cantwaitcard #radarkey #crohnsdisease #colitis #ibd #crohnscolitis #awareness #membership #bodies #illness #fighter #health #chronicillness #research #invisibleillness #instadaily
Had my first almost bed leak the other morning!!
I had woken to a pretty full bag & remember thinking I’d better go empty it. 
I must have dosed off again because next thing I know I woke to my bag about to blow off my belly! 
So I quickly ran to the loo to let out the gas before I changed it.
I was lucky, it was only a few mm from leaking!
Got a quick unimpressed selfie in... but thankfully I didn’t end up with 💩 in the bed 😅
#stomaproblems #stomalife #nocolonstillrollin #ileostomy #ostomy #ostomyawareness #crohnscolitis #crohns #crohnsdisease #ulcerativecolitis #shithappens
Had my first almost bed leak the other morning!! I had woken to a pretty full bag & remember thinking I’d better go empty it. I must have dosed off again because next thing I know I woke to my bag about to blow off my belly! So I quickly ran to the loo to let out the gas before I changed it. I was lucky, it was only a few mm from leaking! Got a quick unimpressed selfie in... but thankfully I didn’t end up with 💩 in the bed 😅 #stomaproblems  #stomalife  #nocolonstillrollin  #ileostomy  #ostomy  #ostomyawareness  #crohnscolitis  #crohns  #crohnsdisease  #ulcerativecolitis  #shithappens 
Had such an INCREDIBLE time at the #CCCongress! Thanks a million to the @crohnscolitisfoundation for giving me the opportunity to attend. I learned so much that I look forward to sharing in a blog post coming soon 😊I also had the opportunity to connect with other inspiring IBD advocates @aaronblockeribd @itsmemegaroo and @crazycreolemama. Stay tuned for some crazy awesome @clarahealth #PatientsHavePower podcasts live from the conference!! .
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#IBD #crohnsdisease #ulcerativecolitis #crohnscolitis #treatments #cures #crohnswarrior #colitiswarrior #ibdwarrior #patientadvocate
Had such an INCREDIBLE time at the #CCCongress ! Thanks a million to the @crohnscolitisfoundation for giving me the opportunity to attend. I learned so much that I look forward to sharing in a blog post coming soon 😊I also had the opportunity to connect with other inspiring IBD advocates @aaronblockeribd @itsmemegaroo and @crazycreolemama. Stay tuned for some crazy awesome @clarahealth #PatientsHavePower  podcasts live from the conference!! . . . #IBD  #crohnsdisease  #ulcerativecolitis  #crohnscolitis  #treatments  #cures  #crohnswarrior  #colitiswarrior  #ibdwarrior  #patientadvocate 
There are many people that will come into our lives and have some sort of impact on us whether it’s in our own personal life or here in Instagram or any other form of social media! I’m very fortunate to meet a lot of you on here that have given me much inspiration! I will continue to do my best to be a good example to those out there that may need inspiration and encouragement as well! 😃💜💜
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#encouragement #inspiring #inspirationalquotes #quoteoftheday #quotestoliveby #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
There are many people that will come into our lives and have some sort of impact on us whether it’s in our own personal life or here in Instagram or any other form of social media! I’m very fortunate to meet a lot of you on here that have given me much inspiration! I will continue to do my best to be a good example to those out there that may need inspiration and encouragement as well! 😃💜💜 . #encouragement  #inspiring  #inspirationalquotes  #quoteoftheday  #quotestoliveby  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
PREACH GIRL. #crohnsiscray
There are all types of #NaturalAlternatives for #Pharmaceuticals, these are some #NaturalAntibiotics that can be useful for many purposes. Be careful when using any #antibiotics,  including natural ones. Consult your #healtchcare practitioner before starting any treatment plan, preferably a #naturopathicdoctor or at least one who is familiar with #NaturalMedicine. #NaturalRemedies #Healing #NaturalCures #DigestiveHealth #Digestivesystem #spoonie #chronicpain #IBD #InflammatoryBowelDisease #CrohnsColitis #Crohns #Celiac #SIBO
There are all types of #NaturalAlternatives  for #Pharmaceuticals , these are some #NaturalAntibiotics  that can be useful for many purposes. Be careful when using any #antibiotics , including natural ones. Consult your #healtchcare  practitioner before starting any treatment plan, preferably a #naturopathicdoctor  or at least one who is familiar with #NaturalMedicine . #NaturalRemedies  #Healing  #NaturalCures  #DigestiveHealth  #Digestivesystem  #spoonie  #chronicpain  #IBD  #InflammatoryBowelDisease  #CrohnsColitis  #Crohns  #Celiac  #SIBO 
#🎧 Temple of the Dog - Hunger Strike by @sounds_app #soundsapp on https://get.sounds.am/5Tnm/DLZzaCrpQJ
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Chris Cornell of Soundgarden + Eddie Vedder of Pearl Jam = One kick ass song 😌
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#90s #90smusic #90srock #rockmusic #alternativerock #musicforthesoul #musicforhealing #crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
#🎧 Temple of the Dog - Hunger Strike by @sounds_app #soundsapp  on https://get.sounds.am/5Tnm/DLZzaCrpQJ . Chris Cornell of Soundgarden + Eddie Vedder of Pearl Jam = One kick ass song 😌 . #90s  #90smusic  #90srock  #rockmusic  #alternativerock  #musicforthesoul  #musicforhealing  #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
Entyvio Infusion #6 - this may be my last. Look for my blog post later, I'll go over my Crohn's disease plan and everything else going on with y'all. #crohns #itcouldbeworse #entyvio #infusion
1 year ago to the day...Bumsout Gunsout happened...we raised £7000 for IBD charities and I missed the then world record by 200 press ups... And I’ve been milking it ever since...
Feel a bit shocked that it’s been a year and a bit ashamed we’ve not done it since. My shoulder injury is holding me back. As is my memory of how horrible it was to do 2200 press ups in an hour. And my general gutlessness, both figuratively and literally. But so long as it helps, if it shows that even at your lowest you can still push your body to do pretty amazing things (albeit failing spectacularly) and so long as we continue to raise a smile while bringing positive awareness for IBD patients, then we’ll keep going. And going. Like a shit Duracell Bunny. With his belly stuffing missing. And hopefully less creepy. 
#bumsoutgunsout #pressupworldrecordchallenge #2700pressups #crohnscolitis #ibd #fitness #stupidchallenge
1 year ago to the day...Bumsout Gunsout happened...we raised £7000 for IBD charities and I missed the then world record by 200 press ups... And I’ve been milking it ever since... Feel a bit shocked that it’s been a year and a bit ashamed we’ve not done it since. My shoulder injury is holding me back. As is my memory of how horrible it was to do 2200 press ups in an hour. And my general gutlessness, both figuratively and literally. But so long as it helps, if it shows that even at your lowest you can still push your body to do pretty amazing things (albeit failing spectacularly) and so long as we continue to raise a smile while bringing positive awareness for IBD patients, then we’ll keep going. And going. Like a shit Duracell Bunny. With his belly stuffing missing. And hopefully less creepy. #bumsoutgunsout  #pressupworldrecordchallenge  #2700pressups  #crohnscolitis  #ibd  #fitness  #stupidchallenge 
Crohn’s Disease, you have forever changed my life by making it a living hell! You have taken things away that I had loved and caused me much pain, mental stress, and left me with numerous scars. Despite all that, I have learned to be humble, patient, kind, giving, neighborly, compassionate and most of all STRONG! Whatever you have thrown at me I have beaten you and I will always and continue to beat you!! Do you know why? BECAUSE I WON’T BACK DOWN!!! And this goes for all of us who suffer from IBD!! We won’t give up and we will keep fighting with every tooth and nail!!
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#tompetty #inspiring #inspiration #inspirationalquotes #inspirationallyrics #strength #stayingstrong #kindness #caring #caringforothers #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
Crohn’s Disease, you have forever changed my life by making it a living hell! You have taken things away that I had loved and caused me much pain, mental stress, and left me with numerous scars. Despite all that, I have learned to be humble, patient, kind, giving, neighborly, compassionate and most of all STRONG! Whatever you have thrown at me I have beaten you and I will always and continue to beat you!! Do you know why? BECAUSE I WON’T BACK DOWN!!! And this goes for all of us who suffer from IBD!! We won’t give up and we will keep fighting with every tooth and nail!! . #tompetty  #inspiring  #inspiration  #inspirationalquotes  #inspirationallyrics  #strength  #stayingstrong  #kindness  #caring  #caringforothers  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
My last night with Axel Rose and Gizmo. 💕
Health recap/update: I get labs done every 2 weeks now. The last 2 times my numbers were bad and getting worse. My primary was very concerned last week, called me up, talking about blood transfusions, referring me to a hematologist, iron IV, bone marrow problems, low WBC (1), low RBC, low hemoglobin, low everything, low iron..she said my anemia was the worst it's ever been. She was scared. She called my specialist. He wasn't as concerned bc the current meds can cause the low WBC and some other things (doesn't mean it's still not bad!) So they agree and lowered my dosage of 6mp from 75mg/day to 50mg. They also wanted me to do lab repeat in 7 days instead of waiting 2 weeks. I did those yesterday. Everything is still very low, but good news is my WBC is up to 2 now. With the mercaptupurine reduced, I've had lasting energy each day! I thought for sure I wouldn't have those heart "scares" again. Well, yesterday I felt like collapsing while at work. Luckily I had my pulse ox on me. Turns out I was right. My heart rate sat in the 30s for 10-15 minutes while my oxygen sat in the 70s to 80s. I couldn't leave work, so I waited. My HR dropped down to 24 at one point which really scared me. This happened again 2 hours later. I nearly went to ER, but by the time I was off work things stabilized (and remained that way) for the rest of the night. I called my specialist today and they've now referred me to a cardiologist. 
Progress. Good news, I was able to play with the kids in PE today for over 40 minutes! Not sure how, but it was amazing! Felt so good to exercise. I haven't had energy like that in MONTHS. My body is so unpredictable these days. lol
My last night with Axel Rose and Gizmo. 💕 Health recap/update: I get labs done every 2 weeks now. The last 2 times my numbers were bad and getting worse. My primary was very concerned last week, called me up, talking about blood transfusions, referring me to a hematologist, iron IV, bone marrow problems, low WBC (1), low RBC, low hemoglobin, low everything, low iron..she said my anemia was the worst it's ever been. She was scared. She called my specialist. He wasn't as concerned bc the current meds can cause the low WBC and some other things (doesn't mean it's still not bad!) So they agree and lowered my dosage of 6mp from 75mg/day to 50mg. They also wanted me to do lab repeat in 7 days instead of waiting 2 weeks. I did those yesterday. Everything is still very low, but good news is my WBC is up to 2 now. With the mercaptupurine reduced, I've had lasting energy each day! I thought for sure I wouldn't have those heart "scares" again. Well, yesterday I felt like collapsing while at work. Luckily I had my pulse ox on me. Turns out I was right. My heart rate sat in the 30s for 10-15 minutes while my oxygen sat in the 70s to 80s. I couldn't leave work, so I waited. My HR dropped down to 24 at one point which really scared me. This happened again 2 hours later. I nearly went to ER, but by the time I was off work things stabilized (and remained that way) for the rest of the night. I called my specialist today and they've now referred me to a cardiologist. Progress. Good news, I was able to play with the kids in PE today for over 40 minutes! Not sure how, but it was amazing! Felt so good to exercise. I haven't had energy like that in MONTHS. My body is so unpredictable these days. lol
Four years ago my life changed forever. Four years of fighting. Four years of being a freaking warrior. Four years of hoping that there will one day be a cure. ————————————————————————
What we need: awareness + funding + research. 💜 Atlanta friends: Join us on May 20th & walk with Team Byrd {link in profile} Perk: poop emoji chocolate cupcakes will be given to all team members 💩————————————————————————
#peoplehopetribe #spoonie #crohnsdisease #crohnscolitis #ulcerativecolitis #invisibleillness #butyoudontlooksick #chronicillness #chronicpain #ibdawareness #myibd #ccfa #takesteps #takestepsatlanta #crohnsfighter #spoonielife
Four years ago my life changed forever. Four years of fighting. Four years of being a freaking warrior. Four years of hoping that there will one day be a cure. ———————————————————————— What we need: awareness + funding + research. 💜 Atlanta friends: Join us on May 20th & walk with Team Byrd {link in profile} Perk: poop emoji chocolate cupcakes will be given to all team members 💩———————————————————————— #peoplehopetribe  #spoonie  #crohnsdisease  #crohnscolitis  #ulcerativecolitis  #invisibleillness  #butyoudontlooksick  #chronicillness  #chronicpain  #ibdawareness  #myibd  #ccfa  #takesteps  #takestepsatlanta  #crohnsfighter  #spoonielife 
I found a couple of old Polaroids of me for this throwback Thursday! I couldn’t even begin to tell you how old I was 🤷🏻‍♂️Gotta love the second shot of me playing with Gumby 😅😂🤣
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#throwbackthursday #tbt #polaroid #polaroidcamera #gumby #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
I found a couple of old Polaroids of me for this throwback Thursday! I couldn’t even begin to tell you how old I was 🤷🏻‍♂️Gotta love the second shot of me playing with Gumby 😅😂🤣 . #throwbackthursday  #tbt  #polaroid  #polaroidcamera  #gumby  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Hello 👋 many of you superb ladies contact me about struggling in relationships along with #chronicillness amongst other things - I'm by noooo means an expert, (despite having written half a book about it and lived with a human man for more than a decade) and i'm doing my bestest to get back to you all individually but for now I want to remind you illness doesn't negate love ❤ ❤ ❤
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#GoYourCrohnWay #MyFlareLady #chronicillness #chronicpain #chronicfatigue #crohns #ibd #ulcerativecolitis #crohnsdisease #chroniclife #crohnsawareness #crohnscolitis
Hello 👋 many of you superb ladies contact me about struggling in relationships along with #chronicillness  amongst other things - I'm by noooo means an expert, (despite having written half a book about it and lived with a human man for more than a decade) and i'm doing my bestest to get back to you all individually but for now I want to remind you illness doesn't negate love ❤ ❤ ❤ . . #GoYourCrohnWay  #MyFlareLady  #chronicillness  #chronicpain  #chronicfatigue  #crohns  #ibd  #ulcerativecolitis  #crohnsdisease  #chroniclife  #crohnsawareness  #crohnscolitis 
So much is taken for granted these days.....Feels good to put food on my parents plate! :-) #crohnscrusher #crohnscolitis #crohnsdisease #crohnsandcolitisawareness #cook #food #healthydiet  #menshealthfitness #menshealth #mom #dad # family
Always find time for the things that make you feel happy to be alive! 💖
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Still busy with work and private life, but also still #grinding! 💪💪
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Hey Sporthasen! 😘
Hab leider immer noch viel um die Ohren, deshalb auch in dieser Woche nicht so sehr aktiv hier bei Insta. Aber manchmal geht das Privatleben halt vor. 😏
Seid lieb gegrüßt!! ❤

#bodybuilding #crohnie #crohnsdisease #ibd #crohnscolitis #offseason #progress #fitness #girlswithmuscles #girlswholift #training #instafit #instafitgermany #fitfam #fitgirl #fitchic #ironaddict #bizeps #back #progress #fitspo #ced
Always find time for the things that make you feel happy to be alive! 💖 💕💕💕💕 Still busy with work and private life, but also still #grinding ! 💪💪 🌟🌟🌟🌟🌟 Hey Sporthasen! 😘 Hab leider immer noch viel um die Ohren, deshalb auch in dieser Woche nicht so sehr aktiv hier bei Insta. Aber manchmal geht das Privatleben halt vor. 😏 Seid lieb gegrüßt!! ❤ #bodybuilding  #crohnie  #crohnsdisease  #ibd  #crohnscolitis  #offseason  #progress  #fitness  #girlswithmuscles  #girlswholift  #training  #instafit  #instafitgermany  #fitfam  #fitgirl  #fitchic  #ironaddict  #bizeps  #back  #progress  #fitspo  #ced 
All these people sharing their picture with the world to help stop the stoma stigma ... so many people out there are ashamed or embarrassed... this proves you are not alone #stopstomastigma #ibd #crohnscolitis #bagforlife #standtogtherstandtall
This is all I want to do and give my best by doing it! Deep down, the friendship or relationship that I may develop and happiness that I can bring from doing this is the biggest reward that anyone can ask for 😀💜💜
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#kindness #inspiring #inspirationalquotes #quoteoftheday #quotestoliveby #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
This is all I want to do and give my best by doing it! Deep down, the friendship or relationship that I may develop and happiness that I can bring from doing this is the biggest reward that anyone can ask for 😀💜💜 . #kindness  #inspiring  #inspirationalquotes  #quoteoftheday  #quotestoliveby  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Finally got my company supervisor shirt! Too bad I ordered the size I was before I lost weight 🤦🏻‍♂️ Oh well, I’m happy 🤷🏻‍♂️😊
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#supervisor #work #worklife #vons #safeway #crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
Finally got my company supervisor shirt! Too bad I ordered the size I was before I lost weight 🤦🏻‍♂️ Oh well, I’m happy 🤷🏻‍♂️😊 . #supervisor  #work  #worklife  #vons  #safeway  #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Excuse me but white and navy aren’t quite my colours 👗 
Okay so first things first, it’s safe to say hospital gowns are the most unflattering fashion accessory known to man, then I’m handed paper shorts with a big hole in the back, I half expected Jonny to appear through the gap when the Nurse held them towards me.
So it’s safe to say yesterday didn’t go to plan at all, my second lot of moviprep wasn’t playing ball and I started to vomit so following instructions I stop drinking immediately. I proceeded to the hospital and fill out my forms for the nurse to then tell me off for doing as my prep guided said so. Iv never been more confused, don’t send out my instruction guides if you don’t want us to follow them surely!?.
Thankfully she agrees to carry on anyway seen as I came - how nice of her!
Then I’m told I need a cannula which is fine, if you not absolutely terrified of needles I asked if I could have my dad in with me just while she put this in knowing fair well it will be the only thing to prevent a panic attack or worse and that wasn’t allowed, so first attempt needle goes in with cannula and like something never seen before it literally fired back out across the room like a bullet followed by me hitting the deck this happened a further time and then the last two attempts they wouldn’t flush 😔. So having failed in them I’m told we can’t do a full scope today because it’s far to dangerous without one in. Now this has left me with so many mixed emotions as the majority off my problem comes from my ascending and transverse colon. But again she still decided it’s best to check the descending side which I must add was a lot healthier looking than last time but when reaching the top you could see the start off the inflammation and ulcers im still battling with but unfortunately we could go no further. Now I feel like where just back to square one and no new information was found why is this disease so complex and frustrating. All these medications Iv been placed on, steroids for 9 months and still my bowel doesn’t look healthy I’m preying today when I see my surgeon he will agree to dig deeper LITERALLY! #crohns #crohnssucks #crohnscolitis #colitis
Excuse me but white and navy aren’t quite my colours 👗 Okay so first things first, it’s safe to say hospital gowns are the most unflattering fashion accessory known to man, then I’m handed paper shorts with a big hole in the back, I half expected Jonny to appear through the gap when the Nurse held them towards me. So it’s safe to say yesterday didn’t go to plan at all, my second lot of moviprep wasn’t playing ball and I started to vomit so following instructions I stop drinking immediately. I proceeded to the hospital and fill out my forms for the nurse to then tell me off for doing as my prep guided said so. Iv never been more confused, don’t send out my instruction guides if you don’t want us to follow them surely!?. Thankfully she agrees to carry on anyway seen as I came - how nice of her! Then I’m told I need a cannula which is fine, if you not absolutely terrified of needles I asked if I could have my dad in with me just while she put this in knowing fair well it will be the only thing to prevent a panic attack or worse and that wasn’t allowed, so first attempt needle goes in with cannula and like something never seen before it literally fired back out across the room like a bullet followed by me hitting the deck this happened a further time and then the last two attempts they wouldn’t flush 😔. So having failed in them I’m told we can’t do a full scope today because it’s far to dangerous without one in. Now this has left me with so many mixed emotions as the majority off my problem comes from my ascending and transverse colon. But again she still decided it’s best to check the descending side which I must add was a lot healthier looking than last time but when reaching the top you could see the start off the inflammation and ulcers im still battling with but unfortunately we could go no further. Now I feel like where just back to square one and no new information was found why is this disease so complex and frustrating. All these medications Iv been placed on, steroids for 9 months and still my bowel doesn’t look healthy I’m preying today when I see my surgeon he will agree to dig deeper LITERALLY! #crohns  #crohnssucks  #crohnscolitis  #colitis 
I usually use my @ostomate_active shower Jack/ shower cover which is great for keeping my bag dry in the shower 🚿 
However I forgot to pack it on the weekend when we went to the city 🤦🏻‍♀️ A shower cap did the trick... certainly not as good but saved air drying it before getting dressed 😉
#ostomyhack #ostomyawareness #stomalife #nocolonstillrollin #aussieostomate #crohnscolitis #coloplast #sensuramio
#livewithguts 💜🌟💜🌟
Life can be a Jungle sometimes..
It helps having this community to share our common struggles, ups and downs together 💜
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Thanks @livewithguts1 for my sweet wristband helping share awareness of #autoimmunedisease 💜
#autoimmuneawareness #purple #awareness #ibd #inflammatoryboweldisease #crohnsdisease #crohnscolitis #ulcerativecolitis #ileostomy #lifesajungle #nocolonstillrollin #aussieostomate #wegotthis #stillgotguts
This Mum gig is always interesting... had to Rescue my 2 yr old from the top of the play equipment this morning 😂😂
#mumlife #stomalife #crohnscolitis #crohns #ulcerativecolitis #nocolonstillrollin #ileostomy #daughterlove #playtime
Today was my EUA for my never-healing abscess. They did their voodoo & all went well. Hopefully we see improvement this time around. In the meantime, Hubs couldn’t find Otis this morning. Why? Bc Otis burrowed himself up in my blanket after I left for the hospital- he was keeping my spot warm for when I came home to recover ❤️ Sure enough when I got home, he & Tessy were waiting at the door for me looking to keep me company ❤️#ilovemydogs #crohns #crohnscolitis #crohnsdisease #ibd #invisibleillness
Today was my EUA for my never-healing abscess. They did their voodoo & all went well. Hopefully we see improvement this time around. In the meantime, Hubs couldn’t find Otis this morning. Why? Bc Otis burrowed himself up in my blanket after I left for the hospital- he was keeping my spot warm for when I came home to recover ❤️ Sure enough when I got home, he & Tessy were waiting at the door for me looking to keep me company ❤️#ilovemydogs  #crohns  #crohnscolitis  #crohnsdisease  #ibd  #invisibleillness 
I don’t post about this stuff too much, but I feel like this needs to be posted. Having multiple chronic illnesses aren’t easy. Especially when having one disease sparks another, and another, until you’re caught up in this cycle that you feel can never be escaped. Anyways, yesterday I had a liver biopsy because the doctors believe I have Auto-immune Hepatitis which is inflammation in the liver when it’s being attacked by the body. This is the third autoimmune disease I will be diagnosed with in less than a year. Although this journey has been quite extensive, I’m looking forward to the moment where I am pain free, medication free, and most importantly, disease free. Some say it cannot be done, but miraculous improvements are already taking place and will continue to do so with hard work and determination.
Cheers to this long road that will end with great payoff🥂
I don’t post about this stuff too much, but I feel like this needs to be posted. Having multiple chronic illnesses aren’t easy. Especially when having one disease sparks another, and another, until you’re caught up in this cycle that you feel can never be escaped. Anyways, yesterday I had a liver biopsy because the doctors believe I have Auto-immune Hepatitis which is inflammation in the liver when it’s being attacked by the body. This is the third autoimmune disease I will be diagnosed with in less than a year. Although this journey has been quite extensive, I’m looking forward to the moment where I am pain free, medication free, and most importantly, disease free. Some say it cannot be done, but miraculous improvements are already taking place and will continue to do so with hard work and determination. Cheers to this long road that will end with great payoff🥂
Exactly! Even when you’re at your worst and still managing to overcome to get through your struggles, there are those around us that are watching us and those types of actions we do and use tend to influence and inspire those and we will never know that it’s helped someone who we may never know as well. Stay strong everyone 💪🏼🙏🏼💜👊🏼
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#inspiring #inspiration #inspirationalquotes #strength #stayingstrong #kindness #caring #caringforothers #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
Exactly! Even when you’re at your worst and still managing to overcome to get through your struggles, there are those around us that are watching us and those types of actions we do and use tend to influence and inspire those and we will never know that it’s helped someone who we may never know as well. Stay strong everyone 💪🏼🙏🏼💜👊🏼 . #inspiring  #inspiration  #inspirationalquotes  #strength  #stayingstrong  #kindness  #caring  #caringforothers  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
Some days are easier than others to deal with especially when dealing with a chronic illness. On those tough days, it’s best to take baby steps and take things one step at a time. My mistake half the time is pushing myself too much at times especially when I’m not feeling my best and I’ll be completely drained to do anything else. It’s ok to just take small steps to get through the day and there is no shame in it. We just continue to do our best and stay strong doing it 💪🏼💜
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#inspiring #inspiration #inspirational #stayingstrong #strength #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
Some days are easier than others to deal with especially when dealing with a chronic illness. On those tough days, it’s best to take baby steps and take things one step at a time. My mistake half the time is pushing myself too much at times especially when I’m not feeling my best and I’ll be completely drained to do anything else. It’s ok to just take small steps to get through the day and there is no shame in it. We just continue to do our best and stay strong doing it 💪🏼💜 . #inspiring  #inspiration  #inspirational  #stayingstrong  #strength  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
She’s a perfect 10, but she wears a 12 🎵🎶 Im absolutely ****ing starving! 
Now there is a January diet and then there is MY January diet, not by choice but thanks to prep I’m having to starve and shit myself while also having to drink laxatives.
So this is my first time drinking this stuff in prep for tomorrow and my god surely having crohns colitis is enough of a sacrifice I have to make in life, not even when mixed with orange juice does it mask the taste of this stuff.
Please dear Jesus surely they can make a better tasting drink especially when your having to have two litres of the stuff. And if that’s not painful enough all I want is a piece of bread just to mask the hunger, honestly i could eat a scabby horse. I have to keep reminding myself that tomorrow is D-day, the day I finally (hopefully) can have my full scoop as my first one had to stop within two inches because my bowel was that inflamed and ulcerated they risked perforation, hopefully this time even though I’m still in a flare up they can go further and dig out more answers and hopefully the answer I’m looking for! I’m hoping the surgeon will agree to the surgery that I want, I want my bag! I’m ready now. Although I know and he knows we don’t have much option and I will be facing surgery at some point my surgeon only wants me to have a section removed where as I want the colon gone now. I can’t cope with this pain no longer, I want to wake up and not have to worry about have I brought my spare pants and knickers for well you know just incase. I want to be normal even if it’s just for a year I’ll take it 
And if I get my answer I promise next time I’ll drink my moviprep like a good little girl 
#crohns #crohnssucks #crohnscolitis #crohnsproblems #crohnsprincess #crohnswarrior #colitis #colitisproblems #colitiswarrior #ibd #inflammatoryboweldisease #ibdwarrior #ibdprincess #fingerscrossed #sohungry #starving
She’s a perfect 10, but she wears a 12 🎵🎶 Im absolutely ****ing starving! Now there is a January diet and then there is MY January diet, not by choice but thanks to prep I’m having to starve and shit myself while also having to drink laxatives. So this is my first time drinking this stuff in prep for tomorrow and my god surely having crohns colitis is enough of a sacrifice I have to make in life, not even when mixed with orange juice does it mask the taste of this stuff. Please dear Jesus surely they can make a better tasting drink especially when your having to have two litres of the stuff. And if that’s not painful enough all I want is a piece of bread just to mask the hunger, honestly i could eat a scabby horse. I have to keep reminding myself that tomorrow is D-day, the day I finally (hopefully) can have my full scoop as my first one had to stop within two inches because my bowel was that inflamed and ulcerated they risked perforation, hopefully this time even though I’m still in a flare up they can go further and dig out more answers and hopefully the answer I’m looking for! I’m hoping the surgeon will agree to the surgery that I want, I want my bag! I’m ready now. Although I know and he knows we don’t have much option and I will be facing surgery at some point my surgeon only wants me to have a section removed where as I want the colon gone now. I can’t cope with this pain no longer, I want to wake up and not have to worry about have I brought my spare pants and knickers for well you know just incase. I want to be normal even if it’s just for a year I’ll take it And if I get my answer I promise next time I’ll drink my moviprep like a good little girl #crohns  #crohnssucks  #crohnscolitis  #crohnsproblems  #crohnsprincess  #crohnswarrior  #colitis  #colitisproblems  #colitiswarrior  #ibd  #inflammatoryboweldisease  #ibdwarrior  #ibdprincess  #fingerscrossed  #sohungry  #starving 
So we have my relatively pretty Terminal Ileum then swipe to see my bubble-gummed Hepatic Flexure. Entyvio and Methotrexate have joined the long list of meds that have failed me. I am starting Stelara ASAP. But, it is currently the end of the line. If I’m a few months it doesn’t show signs of working, the next step is colon removal.  I’ve been on Prednisone for about a week now with little to no improvement and if they don’t kick in soon I’m to be admitted to hospital with potential for a sooner surgery. So there we have it. #crohnscolitis from the inside and #medicationfail  galore #crohnsdisease #ibd #invisibleillness #eh
So we have my relatively pretty Terminal Ileum then swipe to see my bubble-gummed Hepatic Flexure. Entyvio and Methotrexate have joined the long list of meds that have failed me. I am starting Stelara ASAP. But, it is currently the end of the line. If I’m a few months it doesn’t show signs of working, the next step is colon removal. I’ve been on Prednisone for about a week now with little to no improvement and if they don’t kick in soon I’m to be admitted to hospital with potential for a sooner surgery. So there we have it. #crohnscolitis  from the inside and #medicationfail  galore #crohnsdisease  #ibd  #invisibleillness  #eh 
I know I posted this before but I never get tired of this meme! That’s what you get, Wimpy for welching on your burger tabs 😁😂 And if y’all don’t get this meme leave a comment and I’ll re-edit my caption for everyone to understand 😉😊
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#popeye #wimpy #ronaldmcdonald #jackinthebox #burgerking #hamburger #tuesday  #iwillgladlypayyoutuesdayforahamburgertoday #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
I know I posted this before but I never get tired of this meme! That’s what you get, Wimpy for welching on your burger tabs 😁😂 And if y’all don’t get this meme leave a comment and I’ll re-edit my caption for everyone to understand 😉😊 . #popeye  #wimpy  #ronaldmcdonald  #jackinthebox  #burgerking  #hamburger  #tuesday  #iwillgladlypayyoutuesdayforahamburgertoday  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
The struggle is too real. #tired #crohnsiscray
Exactly! We should never change and live up to someone else’s expectations! We should be who we are no matter the circumstances and if some of these so called friends or toxic people in our lives think otherwise then it’s time to cut the cord and say “Bye, Felicia!” 👋🏼
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#inspiring #inspiration #inspirationalquotes #kindness #caring #caringforothers #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
Exactly! We should never change and live up to someone else’s expectations! We should be who we are no matter the circumstances and if some of these so called friends or toxic people in our lives think otherwise then it’s time to cut the cord and say “Bye, Felicia!” 👋🏼 . #inspiring  #inspiration  #inspirationalquotes  #kindness  #caring  #caringforothers  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
@Regranned from @agent_crohns -  Yup! Pretty much heard all of these in my days 😐 I think the only one missing is “Is it contagious?” God, how I wanted to choke people that asked me that one 😡 But I was too weak to do so.
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#crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife  #Tiffieldtwins2  #regrann  #billy2
@Regranned from @agent_crohns - Yup! Pretty much heard all of these in my days 😐 I think the only one missing is “Is it contagious?” God, how I wanted to choke people that asked me that one 😡 But I was too weak to do so. . #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #Tiffieldtwins2  #regrann  #billy2 
So I decided to start working out again. I haven’t fully committed to working out since about fall 2016. Just did some little starting ones and I already forgot how much I missed it. Also survived my first week of (online) college 🎉 I’m pretty dang happy because it’s keeping me busy. So there’s a little update for your night 💜#crohnsdisease #crohnie #IBD #spoonie #crohnswarrior #crohnsaccount #chronicillness  #crohnscolitis #crohns #IBS #severeIBS #chronicfighter #autoimmunedisease #purpleribbon #medicalaccount
So I decided to start working out again. I haven’t fully committed to working out since about fall 2016. Just did some little starting ones and I already forgot how much I missed it. Also survived my first week of (online) college 🎉 I’m pretty dang happy because it’s keeping me busy. So there’s a little update for your night 💜#crohnsdisease  #crohnie  #IBD  #spoonie  #crohnswarrior  #crohnsaccount  #chronicillness  #crohnscolitis  #crohns  #IBS  #severeIBS  #chronicfighter  #autoimmunedisease  #purpleribbon  #medicalaccount 
As this week starts, I do have a bad habit of dreading Monday and I’m sure I’m not the only one 😅😂 As the days go by, I do my best to remember to be encouraging and help those in need and be a blessing to those around me. However, I have met some over the years that have taken advantage of my kindness and have had people scoff at me for my ideas and how I live or what I do in my life. For those people, I just slowly cut them off because why give to those that don’t care about you? I would rather let my light shine to those that may want to see it than share with those that are selfish and try to turn that light off and I won’t let people like that try and change me to their standards.
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#kindness #inspiring #inspirationalquotes #quoteoftheday #quotestoliveby #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
As this week starts, I do have a bad habit of dreading Monday and I’m sure I’m not the only one 😅😂 As the days go by, I do my best to remember to be encouraging and help those in need and be a blessing to those around me. However, I have met some over the years that have taken advantage of my kindness and have had people scoff at me for my ideas and how I live or what I do in my life. For those people, I just slowly cut them off because why give to those that don’t care about you? I would rather let my light shine to those that may want to see it than share with those that are selfish and try to turn that light off and I won’t let people like that try and change me to their standards. . #kindness  #inspiring  #inspirationalquotes  #quoteoftheday  #quotestoliveby  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
The deeper your #struggle carves into your being, the more #strength you can contain. When you feel #truestrength, look deep into your #soul and you will find it is that struggle which has cultivated your strength. Stay strong and never give up. 
#Repost @spiritual_conscious1
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#InnerStrength #SelfDiscipline #Mastery #PositiveMentalAttitude #SelfMastery #Meditation #SpiritualDevelopment #Spiritualawakening #Crohns #Celiac #ChronicIllness #autoimmune #Healing #Health #DigestiveHealth #Digestivesystem #CeliacDisease #CrohnsProblems #CrohnsDisease #Chronicpain #IBD #InflammatoryBowelDisease #CrohnsColitis
The deeper your #struggle  carves into your being, the more #strength  you can contain. When you feel #truestrength , look deep into your #soul  and you will find it is that struggle which has cultivated your strength. Stay strong and never give up. #Repost  @spiritual_conscious1 . . . #InnerStrength  #SelfDiscipline  #Mastery  #PositiveMentalAttitude  #SelfMastery  #Meditation  #SpiritualDevelopment  #Spiritualawakening  #Crohns  #Celiac  #ChronicIllness  #autoimmune  #Healing  #Health  #DigestiveHealth  #Digestivesystem  #CeliacDisease  #CrohnsProblems  #CrohnsDisease  #Chronicpain  #IBD  #InflammatoryBowelDisease  #CrohnsColitis 
For me, it’s not about winning or losing. It’s just being the best person I can be and to live my life the best to my knowledge and help those that need it.
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#smile #smiling #happiness #doyourbest #beyourbest #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
For me, it’s not about winning or losing. It’s just being the best person I can be and to live my life the best to my knowledge and help those that need it. . #smile  #smiling  #happiness  #doyourbest  #beyourbest  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Sunday funday...#crohnsiscray
@gutlessglamourpuss I am answering ur tag of #10thingsaboutme
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1) I am mostly of Mexican heritage but I also have some Sioux Indian in me from my Maternal Grandfather’s side who was born on a reservation in Nebraska
2) My last name should’ve been Herrera but it was anglicized to Howard thanks to my Grandfather immigrating from Mexico to the U.S. in the 1920s
3) I have an older half-sister who I haven’t had contact with for over 20 years since my father died. I’ve used the internet to find her but have had no such luck
4) I use to ice skate and had aspirations of wanting to compete in the Olympics but Crohn’s disease put a stop to that
5) I use to play the tenor saxophone
6) I have a fear of spiders and they’ll usually be killed onsite
7) I have a strong admiration for Sylvester Stallone and he’s been a big influence in my life
8) I’m not a big fan of Horror movies but I’ll watch them. However, I have to be buzzed or drunk to watch them. Good luck on that 😂
9) I’m a big fan of mobster themed movies and television shows
10) The first concert I’ve ever been to was to see The Scorpions
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#crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
@gutlessglamourpuss I am answering ur tag of #10thingsaboutme  . 1) I am mostly of Mexican heritage but I also have some Sioux Indian in me from my Maternal Grandfather’s side who was born on a reservation in Nebraska 2) My last name should’ve been Herrera but it was anglicized to Howard thanks to my Grandfather immigrating from Mexico to the U.S. in the 1920s 3) I have an older half-sister who I haven’t had contact with for over 20 years since my father died. I’ve used the internet to find her but have had no such luck 4) I use to ice skate and had aspirations of wanting to compete in the Olympics but Crohn’s disease put a stop to that 5) I use to play the tenor saxophone 6) I have a fear of spiders and they’ll usually be killed onsite 7) I have a strong admiration for Sylvester Stallone and he’s been a big influence in my life 8) I’m not a big fan of Horror movies but I’ll watch them. However, I have to be buzzed or drunk to watch them. Good luck on that 😂 9) I’m a big fan of mobster themed movies and television shows 10) The first concert I’ve ever been to was to see The Scorpions . #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
Yesterday at around 3 am I woke up from pain and vomiting. I was rushed back to Mount Sinai hospital in extreme pain and confusion. After a very long day of tests, tubes, and medications we were finally given answers by the GI specialists. Due to the extensive surgery involving the removal of my entire large intestine/colon, my body was not responding as it should be. My small intestine had what's called an ileus, which is essentially a lack of movement in my small intestine, causing intestinal obstruction. Because my small intestine is "shut down" right now, I have to have tubes that flush out the stool from inside of my body. Apparently this can happen at any point to anyone who has colostomy surgery so it's important to be aware of it. I'll probably be in the hospital for a little while until they can get my small intestine/bowel to start back up again and work properly. This has also had a tremendous impact on my family and girlfriend..I have to give a shoutout to all of them because without them all I truly have no idea where I would be right now. Thank you especially to my amazing girlfriend Kelly who has stuck by my side since day 1 with all of this. I truly don't know what I'd do without her. She has been my rock and helps brighten up my day when I'm feeling down or feeling like I can't handle this! I love you so much Kelly! •
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#family #love #ibd #crohns #colitis #positivity #positivevibes #strength #crohnscolitis
Yesterday at around 3 am I woke up from pain and vomiting. I was rushed back to Mount Sinai hospital in extreme pain and confusion. After a very long day of tests, tubes, and medications we were finally given answers by the GI specialists. Due to the extensive surgery involving the removal of my entire large intestine/colon, my body was not responding as it should be. My small intestine had what's called an ileus, which is essentially a lack of movement in my small intestine, causing intestinal obstruction. Because my small intestine is "shut down" right now, I have to have tubes that flush out the stool from inside of my body. Apparently this can happen at any point to anyone who has colostomy surgery so it's important to be aware of it. I'll probably be in the hospital for a little while until they can get my small intestine/bowel to start back up again and work properly. This has also had a tremendous impact on my family and girlfriend..I have to give a shoutout to all of them because without them all I truly have no idea where I would be right now. Thank you especially to my amazing girlfriend Kelly who has stuck by my side since day 1 with all of this. I truly don't know what I'd do without her. She has been my rock and helps brighten up my day when I'm feeling down or feeling like I can't handle this! I love you so much Kelly! • • #family  #love  #ibd  #crohns  #colitis  #positivity  #positivevibes  #strength  #crohnscolitis 
It’s been a good day! My recover has been going great! I walked 2 1/2 miles around the hospital floor today! That’s 25 laps!! I also had output from my stoma, ate solid foods, and got my IV out! I’m set to go home tomorrow! 
I told my surgeon before she took me back to the operating room that I trusted her to revise my stoma the way she felt was best. I just wanted it done right. There was a possibility that she could do it from the stoma site but most likely she would give me an incision. When I woke up in recovery I was most interested to see my new stoma and then to learn if I had an incision, which I did. It runs down the middle of my abdomen, same as last time but isn’t as long. I don’t have much pain surrounding my stoma but do around the incision. I’ve been able to control it with Tylenol and also walking helps. 01/13/18 #ileostomy #stoma #revision #surgery #crohnscolitis
It’s been a good day! My recover has been going great! I walked 2 1/2 miles around the hospital floor today! That’s 25 laps!! I also had output from my stoma, ate solid foods, and got my IV out! I’m set to go home tomorrow! I told my surgeon before she took me back to the operating room that I trusted her to revise my stoma the way she felt was best. I just wanted it done right. There was a possibility that she could do it from the stoma site but most likely she would give me an incision. When I woke up in recovery I was most interested to see my new stoma and then to learn if I had an incision, which I did. It runs down the middle of my abdomen, same as last time but isn’t as long. I don’t have much pain surrounding my stoma but do around the incision. I’ve been able to control it with Tylenol and also walking helps. 01/13/18 #ileostomy  #stoma  #revision  #surgery  #crohnscolitis 
Welp, I finally have a weekend off but no more spoons 🥄 to do crap for a Friday night 😪 I think I’ll do a little binge watching with these for tonight 😄
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#quentintarantino #bluray #bluraycollection #fridaynight #bingewatching #movies #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
Welp, I finally have a weekend off but no more spoons 🥄 to do crap for a Friday night 😪 I think I’ll do a little binge watching with these for tonight 😄 . #quentintarantino  #bluray  #bluraycollection  #fridaynight  #bingewatching  #movies  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
Absolutely! Over the years, I had a hard time getting my confidence back after being diagnosed with Crohn’s. It certainly humbled me as I was an arrogant and cocky teenager. After my struggles with prednisone and accepting my ileostomy, I had to do my best find myself again and it wasn’t easy. As time went by, people that I have come into contact with both in my personal life and work life have noticed certain qualities in me that I never thought existed and that’s leadership. One of my managers saw that in me and asked if I wanted to be a supervisor. I was reluctant at first but I went for it. I had my struggles adjusting at first because there were certain standards that I had to live up to and I had to be an example to those around me. I’ve been in management for almost 10 years now and I’ve had my ups and my fair share of downs, but people out there put their trust and faith in me and I have to do my best to live up to that and I will do utmost to not let anyone down 😊💜
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#work #life #supervisor #personallife #worklife #confidence #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
Absolutely! Over the years, I had a hard time getting my confidence back after being diagnosed with Crohn’s. It certainly humbled me as I was an arrogant and cocky teenager. After my struggles with prednisone and accepting my ileostomy, I had to do my best find myself again and it wasn’t easy. As time went by, people that I have come into contact with both in my personal life and work life have noticed certain qualities in me that I never thought existed and that’s leadership. One of my managers saw that in me and asked if I wanted to be a supervisor. I was reluctant at first but I went for it. I had my struggles adjusting at first because there were certain standards that I had to live up to and I had to be an example to those around me. I’ve been in management for almost 10 years now and I’ve had my ups and my fair share of downs, but people out there put their trust and faith in me and I have to do my best to live up to that and I will do utmost to not let anyone down 😊💜 . #work  #life  #supervisor  #personallife  #worklife  #confidence  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
Yup! Pretty much heard all of these in my days 😐 I think the only one missing is “Is it contagious?” God, how I wanted to choke people that asked me that one 😡 But I was too weak to do so.
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#crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
Yup! Pretty much heard all of these in my days 😐 I think the only one missing is “Is it contagious?” God, how I wanted to choke people that asked me that one 😡 But I was too weak to do so. . #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife 
Goals! 💕
My only goal in life right now.. Apart from building ginormous quads, hangin' hammies, granite shelf glutes and bulging bizeps...
Is to be genuinely happy, regardless of what that looks like to others. ❤
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Juhuuu, ratet mal wer morgen eine Behindertentoilette bräuchte?!! 😄😄
Hab seit langem mal wieder den Beinbeuger im sitzen trainiert und das hat gepfeffert!! 🙈🔥
Nun kann ich das Wochenende mit vielen Leckereien genießen. 😊
Heute geht es zB. noch zum All-you-can-eat Sushi mit meinen Mädels. 😍
Kommt alle gut ins Wochenende! 😊💋 #boorybuilding #bootyworkout #legday #gymgrind #ironaddict #fitspo #fitgirl #fitchic #girlswithmuscles #girlswholift #training #instafit #instafitgermany #fitfam #bodybuilding #crohnie #crohnsdisease #ibd #crohnscolitis #offseason #progress #goals #happy #hammies
Goals! 💕 My only goal in life right now.. Apart from building ginormous quads, hangin' hammies, granite shelf glutes and bulging bizeps... Is to be genuinely happy, regardless of what that looks like to others. ❤ 🌟🌟🌟🌟🌟 Juhuuu, ratet mal wer morgen eine Behindertentoilette bräuchte?!! 😄😄 Hab seit langem mal wieder den Beinbeuger im sitzen trainiert und das hat gepfeffert!! 🙈🔥 Nun kann ich das Wochenende mit vielen Leckereien genießen. 😊 Heute geht es zB. noch zum All-you-can-eat Sushi mit meinen Mädels. 😍 Kommt alle gut ins Wochenende! 😊💋 #boorybuilding  #bootyworkout  #legday  #gymgrind  #ironaddict  #fitspo  #fitgirl  #fitchic  #girlswithmuscles  #girlswholift  #training  #instafit  #instafitgermany  #fitfam  #bodybuilding  #crohnie  #crohnsdisease  #ibd  #crohnscolitis  #offseason  #progress  #goals  #happy  #hammies 
I have no doubt Otis knows when I’m not feeling well. He cuddles with me or sits near me when normally he is in his bed. #lovemyminischnauzer #dogsareawesome #ibd #crohnsdisease #crohnscolitis #crohns
Having a great day at a beautiful friends wedding with this man by my side 💜
#inlove #weddingtime #sydney #crohnscolitis #crohns #ileostomy #stomalife #ostomyfashion #autoimmunedisease #nocolonstillrollin #ostomy #lovinglife #reviewgirl
Infusion day was today - thank heavens. Things have been a little rough around here. It feels like everything is hitting us all at once & anxiety levels are pretty high at the Vihlen house. When it rains it pours right? Cue angry colon. Planning on spending the day in bed tomorrow recuperating - hoping to incorporate some much needed meditation, prayer, & deep breathing. ————————————————————————
Tiki update: her ear surgery went well but she is absolutely pitiful & looks like an animal tried to chew her ear off. Breaking my heart to see her this way... don’t plan on leaving her side for a while.
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My Infusion day tradition continues on with this @tattly @riflepaperco floral. unfortunately it didn’t occur to me that the peach flowers wouldn’t show up haha but I still love it! ————————————————————————
#entyvio #peoplehopetribe #spoonie #crohnsdisease #crohnscolitis #ulcerativecolitis #invisibleillness #butyoudontlooksick #chronicillness #chronicpain #ibdawareness #myibd #ccfa #tattly #temporarytattoo
Infusion day was today - thank heavens. Things have been a little rough around here. It feels like everything is hitting us all at once & anxiety levels are pretty high at the Vihlen house. When it rains it pours right? Cue angry colon. Planning on spending the day in bed tomorrow recuperating - hoping to incorporate some much needed meditation, prayer, & deep breathing. ———————————————————————— Tiki update: her ear surgery went well but she is absolutely pitiful & looks like an animal tried to chew her ear off. Breaking my heart to see her this way... don’t plan on leaving her side for a while. ———————————————————————— My Infusion day tradition continues on with this @tattly @riflepaperco floral. unfortunately it didn’t occur to me that the peach flowers wouldn’t show up haha but I still love it! ———————————————————————— #entyvio  #peoplehopetribe  #spoonie  #crohnsdisease  #crohnscolitis  #ulcerativecolitis  #invisibleillness  #butyoudontlooksick  #chronicillness  #chronicpain  #ibdawareness  #myibd  #ccfa  #tattly  #temporarytattoo 
Picture this: you walk in the weight room one early morning among a sea of big dudes in their grey muscle shirts, and the only pop of color you see is a lil colombiana trying her best 🎨
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#fit #fitness #fitnessjourney #fitnessjunkie #fitgirl #gymoutfit #gymrat #gymlife #girlswholift #color #crohns #crohnsdisease #crohnscolitis #crohnswarrior #kickcrohnsinthebutt #kickcrohnsinthegut #hardwork #getbackinshape #newyearsgains #underarmour #underarmourgirl #ua #colombiana #kollarfitness
Picture this: you walk in the weight room one early morning among a sea of big dudes in their grey muscle shirts, and the only pop of color you see is a lil colombiana trying her best 🎨 • • • #fit  #fitness  #fitnessjourney  #fitnessjunkie  #fitgirl  #gymoutfit  #gymrat  #gymlife  #girlswholift  #color  #crohns  #crohnsdisease  #crohnscolitis  #crohnswarrior  #kickcrohnsinthebutt  #kickcrohnsinthegut  #hardwork  #getbackinshape  #newyearsgains  #underarmour  #underarmourgirl  #ua  #colombiana  #kollarfitness 
I can honestly say that this quote is very true, indeed. As we’ve all shared our stories, journeys and struggles on here, we have gained so much.....each other! I have had the pleasure of meeting and befriending all of u and to me, I feel very rich because u people are my treasure and I am truly grateful for the community we have on here 😊🤗💜💜 and @marksleper I think u will like this quote 😉
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#leonardnimoy #leonardnimoyquote #inspiring #inspiration #inspirationalquotes #kindness #caring #caringforothers #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife
I can honestly say that this quote is very true, indeed. As we’ve all shared our stories, journeys and struggles on here, we have gained so much.....each other! I have had the pleasure of meeting and befriending all of u and to me, I feel very rich because u people are my treasure and I am truly grateful for the community we have on here 😊🤗💜💜 and @marksleper I think u will like this quote 😉 . #leonardnimoy  #leonardnimoyquote  #inspiring  #inspiration  #inspirationalquotes  #kindness  #caring  #caringforothers  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife