Woke up this morning feeling like crap, super weak, so I took vitals. That’s actually a pretty good resting heart rate for me but that BP sucks!! Guess it’s a heavy salt day, thankfully it is an infusion day too.
I don’t know what’s been going on with me lately though. Leg cramps like crazy, they started to calm down when they saw my Potassium was low and increased the dose but now it’s happening again. I’ve been get this severe ache in my ovary area, one side at a time but it doesn’t favor just one side and the pain radiates outward, but only at night.(I’ve had a hysterectomy so I only have ovaries left) The latest thing is when I lay on my stomach (big stomach sleeper)it really bothers me ribs on my left side, not really painful but a lot of pressure, almost like they are going to pop or push in.
So last night I’m trying to sleep with an ice pack strapped to my leg, one on my lower abdomen and then position precariously with pillows propping me up to take pressure off.
Also, now I will wake up, eat breakfast and then have to go back to sleep for a couple hours as I can hardly keep my eyes open. Anyone have any insight?
Day 19: Don’t Hesitate To Reach Out “Nika C. Beamon any advice for my friend - I know you've been through similar things - and you have so much good advice.” I do? I wondered as I stared at my screen. It’s nice that Cat thinks so but I can’t give advice to a stranger. Why would he listen to me anyway? He doesn’t know my story. Of course, I understand how he feels. I know the frustration of repeatedly going to doctors and not getting a diagnosis while you body deteriorates. Still, does this qualify me dispense advice?
I put my phone down and went back to work. For ten minutes, I was had nagging thoughts that I should say something.
I was where Cat’s friend was nearly four years ago. I was dying physically and emotionally, I thought. I couldn’t figure out why I got up every day to go to a job that lost its luster only to use my money to pay doctors and medical bills. Then, I saw a Frida Kahlo quote. It said,”Don’t build a wall around your own suffering. It may devour you from the inside.” Those words and my friend/co-worker Lila motivated me to write my memoir; to share the details of journey with autoimmune disease. I’ve since spoken about it dozens of times in print and in person to strangers. So, why is he different?
I picked my phone up and I responded to Cat on his Facebook wall. “First, he’s not alone. I rebuilt my stomach two times and I still can’t eat bread. But I’m better than I was before. I got here by looking up the best doctors in the Castle Connolly guide to the top doctors.... I’d use the symptom checker on the Mayo Clinic website to go to the right type of doctor.... I leaned on family, friends and my faith...I vented by blogging and crying. I kept fighting. I wish I could offer more advice.” He saw my message and indicated he loved it.
Maybe I should view myself like a sacrificial lamb. Then, I won’t hesitate to reach out to someone else who can learn from my experiences.
Read days 1-18 here:
#spoonie#autoimmunedisease#invisibleillness#chronicillness#chronicpain#igg4#disability#2018#joythroughthepain#friendship#co -worker #backpain#advice
"There are times when I’m very sad and even burst into tears because of this life in prison." Simon Philibert Rabemananjara, known as Sipra, aged 28, reads Psalm 119:67 & 71 at Marofoto Prison, Madagascar. Rabemananjara, a shopkeeper, is a member of Gepaprim (prisoners association) and is sentenced to life imprisonment for murder but has appealed his conviction and is awaiting a new trial. "In here there are two types of interactions: one between detainees and one between detainees and prison administrators.The one between detainees and prison administrators consists of daily commands that we must follow and it is not making our lives easy, and what often happens among detainees is no one really cares about the other; they only think about themselves."
Too often it is the poorest, least educated, and most vulnerable people who find themselves in prison. When they are denied access to the basic necessities of life, which most of us take for granted, they are at greater risk of developing mental health issues. In Madagascar, many prisons lack adequate food, sanitation, proper medical care, and provide few rehabilitative programmes, educational or vocational opportunities. In such conditions, inmates who have never experienced mental health issues can become depressed, anxious, and/or traumatised. Prisoners around the world are known to have much higher incidence of mental health conditions. Overcrowded and high-stress environments often contribute to their conditions worsening.
#InMyWorld is designed to expose the challenges faced by people living with mental health issues and give them the chance to be seen, heard and valued. @witness_change is a nonprofit that aims to end human rights violations for marginalized communities through visual storytelling. Photo by @hammond_robin for @witness_change. Mental health issues affect 1 out of every 4 of us, however these stories are rarely heard. If you are living with a mental health condition or care for someone with a mental health issue, share your story and help end the stigma surrounding mental health.
I never thought that 10 months ago, this program would’ve turned into this outcome .. but everything is starting to wind down. Flights, hotel, and all things fun are booked. PowerPoint Presentation is complete. Shopping and packing has begun. Now only TEN days until I’m soaking up the sun and presenting at my first professional conference! ☀️👩🏽💻
ttps://www.youtube.com/watch?v=rp5C5cgVtmM Link in Bio
È online il video di “Dammi Un Paio D’ali”, il mio nuovo singolo arrangiato dal Maestro Celso Valli è disponibile in tutti i digital store.
Il video è stato girato nella bellissima location del lago di Garda, diretto ed interpretato da @simonepetralia con @realsaracardinaletti , le riprese e la fotografia sono di mio papà Sandro che continuerà a riprenderci da lassù❤️
Grazie a Fredom of Moving e Dario Rolfi per aver contribuito a realizzare questo video.
Buongiorno miei carissimi readers!!!
😍📖😍📖 Oggi vi propongo un libro molto famoso che è diventato un best seller in questi ultimi anni e del quale, proprio in questi giorni, stanno proiettando nei nostri cinema la trasposizione cinematografica. "WONDER" di R.J. PALACIO, edito da Giunti.
Qualcuno di voi lo ha letto? Che cosa ne pensate?
😘📖😘📖😘 È la storia di Auggie, nato con una tremenda deformazione facciale, che, dopo anni passati protetto dalla sua famiglia per la prima volta affronta il mondo della scuola. Come sarà accettato dai compagni? Dagli insegnanti? Chi si siederà di fianco a lui nella mensa? Chi lo guarderà dritto negli occhi? E chi lo scruterà di nascosto facendo battute? Chi farà di tutto per non essere seduto vicino a lui? Chi sarà suo amico? Un protagonista sfortunato ma tenace, una famiglia meravigliosa, degli amici veri aiuteranno Augustus durante l'anno scolastico che finirà in modo trionfante per lui. Il bellissimo racconto di un bambino che trova il suo ruolo nel mondo. Età di lettura: da 11 anni.
This week is one of the toughest since being diagnosed in 2014. I'm aware that I look like a sack of shit here but when life throws a wonky brain and shitty spine at you, what can you do. Awareness needs to be spread and if I have to post photo's of me looking like a crack whore to get the message out there then so be it 👍🏼 Much love to my insanely wonderful out of this world friends - wouldn't get through this BS without you! Now my next hurdle is how I'm going to online spend all the money I've saved by not commuting & not buying soya lattes all week 🤔
Does anyone else get annoyed when it feels like people on instagram call you out on your OWN DECISIONS? It happens all the time😫 Neither do people seem to understand that you can change your mind...I thought after Dash I'd never have a dog again, and it was a snap decision because I'd gone through something fucking horribly traumatic...then I had the worst month of my life that proved how much I need a dog to work on things with, walk with, & really bond with - a JUST ME dog. Kasper & Toller are fab, but due to missed socialisation they can't do many things (eg. Kasper can't go off lead most places, he lunges at litter & tries desperately to eat it because of previous abuse, he doesn't enjoy busy places, he prefers not to be bothered by other dogs. Toller is still v scared of busy roads, she doesn't have much stamina, I get anxious when large dogs are about). With Fin, I want puppy-hood to be us bonding & having fun. He's my hiking buddy, and I want him as stable & reliable as possible....he'll hopefully be coming basically everywhere with me, other than when we rarely have non pet friendly days out. I have exciting plans! He's an agility prospect, maybe we'll do scent work. I haven't said Finley's gonna be an SD, because I don't think he will be. If he miraculously did, I wouldn't be training him for that purpose until he was way older. That's not my aim. I'm so excited for Fin to come home, so let's not try ruin it...I needed this 😊