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Not a lot of changes today. (Going to be working on a diuretics regimen for a little while.) Early this morning, it was discovered that Colton's PICC line had flipped up into his IJ. Instead of replacing or losing the line completely, they decided that it'd be in Colton's best interest to pull the line back, resuture, & continue to use it for his blood draws. I definitely agreed with them. He's been stable & his primary use for it now are his labs. They can also use it for various other IV meds if they really needed to. This way they don't need to remove it & then keep head sticking or arterial sticking him. (He is an impossible stick!) During the procedure, he did wonderful! He was so tough that he didn't even cry. He seriously loves his care team at Riley. While some kids may fear the "red shirts," Colton doesn't want them ever leaving his room. 😂

Here's another video of a sleepy Colton who kept changing his mind about napping.
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#ColtonStrong #tricuspidatresia #hypoplasticrightventricle #tetrologyoffallot #unbalancedavcanal #chd #heartwarrior #hearthero #hirschsprungsdisease  #downsyndrome #downsyndromeawareness #dsdn #trisomy21 #t21 #theluckyfew #downrightperfect #littlebrother #tubie #babieswithglasses #glasses #changingthefaceofbeauty
Not a lot of changes today. (Going to be working on a diuretics regimen for a little while.) Early this morning, it was discovered that Colton's PICC line had flipped up into his IJ. Instead of replacing or losing the line completely, they decided that it'd be in Colton's best interest to pull the line back, resuture, & continue to use it for his blood draws. I definitely agreed with them. He's been stable & his primary use for it now are his labs. They can also use it for various other IV meds if they really needed to. This way they don't need to remove it & then keep head sticking or arterial sticking him. (He is an impossible stick!) During the procedure, he did wonderful! He was so tough that he didn't even cry. He seriously loves his care team at Riley. While some kids may fear the "red shirts," Colton doesn't want them ever leaving his room. 😂 Here's another video of a sleepy Colton who kept changing his mind about napping. . . . . #ColtonStrong  #tricuspidatresia  #hypoplasticrightventricle  #tetrologyoffallot  #unbalancedavcanal  #chd  #heartwarrior  #hearthero  #hirschsprungsdisease   #downsyndrome  #downsyndromeawareness  #dsdn  #trisomy21  #t21  #theluckyfew  #downrightperfect  #littlebrother  #tubie  #babieswithglasses  #glasses  #changingthefaceofbeauty 
Potty training is still going good for this cookie monster but not without it's occasional accidents. Last week he took a dump right in the middle of our living room floor, put his pants back on, stepped in the poopy and then proceeded to walk through most of the upstairs (I love having hardwood floors!). We give him a cookie every time his tells us he needs to go potty and it has really been the trick to get him to go. He is trying and I'm super proud of him.
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#downsyndromelove #downsyndrome #downsyndromeawareness #downsyndromerocks #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #mystory #babiesofinstagram #changingthefaceofbeauty #instababy #toddlersofinstagram #downrightperfect
Potty training is still going good for this cookie monster but not without it's occasional accidents. Last week he took a dump right in the middle of our living room floor, put his pants back on, stepped in the poopy and then proceeded to walk through most of the upstairs (I love having hardwood floors!). We give him a cookie every time his tells us he needs to go potty and it has really been the trick to get him to go. He is trying and I'm super proud of him. - - - - #downsyndromelove  #downsyndrome  #downsyndromeawareness  #downsyndromerocks  #t21  #trisomy21  #upsyndrome  #morealikethandifferent  #nothingdownaboutit  #theluckyfew  #mystory  #babiesofinstagram  #changingthefaceofbeauty  #instababy  #toddlersofinstagram  #downrightperfect 
Looking through old photos while I settle this girl back to bed (I’m convinced that all moms do this).
Finding some real gems😭😂🤣
#likethisone
#andthisone
#thehair
#thecheeks
#ohmygoodnesscheeks
Grandma always has something up her sleeve. Christmas card pictures called for a 'Merry Christmas Sh#@%er was full' shirt 🤣🤔🙈 Stay tuned... #PerfectlyPierce #babylife #boymodel #humor #theluckyfew #nothingdownaboutit #Christmas #upsyndrome #dsdn #t21 #lovehim #upwithdowns #downrightperfect #heartsofull #handsome #homiewithanextrachromie #perfectlymade #wonderfullymade #fearfullymade #weightlifting #downsyndromeawareness #family #Christmascards #ChristmasVacation
Grandma always has something up her sleeve. Christmas card pictures called for a 'Merry Christmas Sh#@%er was full' shirt 🤣🤔🙈 Stay tuned... #PerfectlyPierce  #babylife  #boymodel  #humor  #theluckyfew  #nothingdownaboutit  #Christmas  #upsyndrome  #dsdn  #t21  #lovehim  #upwithdowns  #downrightperfect  #heartsofull  #handsome  #homiewithanextrachromie  #perfectlymade  #wonderfullymade  #fearfullymade  #weightlifting  #downsyndromeawareness  #family  #Christmascards  #ChristmasVacation 
Eating blueberries and making the cutest faces. #theluckyfew #lifeisbetterwithyou #nothingdownaboutit #downsyndrome
#TBT to when my girls were only 7 weeks old and to a picture that always makes me laugh #thosefacestho 😂
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#twinlife #twinmom #twingirls #chromosomecutie #nothingdownaboutit #theluckyfew #upwithdown #upsyndrome #LifeIsBetterWithYou #downrightperfect #morealikethandifferent #downsyndrome #trisomy21 #t21
It’s been a rough evening. Ryker hasn’t been tolerating pain or hunger very well. He’s been sleeping on and off, however when he’s awake he doesn’t stop crying I hope tomorrow is a better day and he gets his much needed rest. 
#babyboy #ourson #rykerstark #nicubaby #downsyndrome #nothingdownaboutit #trisomy21 #t21 #iloveyou #tothemoonandback #myworld #downrightperfect #homiewithanextrachromie #9monthsold #theluckyfew #dsdn #smiles #bigeyes  #nooxygentank #daddyandson #smiles #model #futuremodel #ladiesman #mamasboy #lifeisbetterwithyou #chubbycheeks #toofunny #family #congenitalheartdefect #openheartsurgery @theellenshow
It’s been a rough evening. Ryker hasn’t been tolerating pain or hunger very well. He’s been sleeping on and off, however when he’s awake he doesn’t stop crying I hope tomorrow is a better day and he gets his much needed rest. #babyboy  #ourson  #rykerstark  #nicubaby  #downsyndrome  #nothingdownaboutit  #trisomy21  #t21  #iloveyou  #tothemoonandback  #myworld  #downrightperfect  #homiewithanextrachromie  #9monthsold  #theluckyfew  #dsdn  #smiles  #bigeyes  #nooxygentank  #daddyandson  #smiles  #model  #futuremodel  #ladiesman  #mamasboy  #lifeisbetterwithyou  #chubbycheeks  #toofunny  #family  #congenitalheartdefect  #openheartsurgery  @theellenshow
OMG 😍🎄 we are so excited for our very first Christmas with this little guy that completes our family of 6! .
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👕 by @krosedesignco 
Use discount code GRAYSON15 for your custom needs! .
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👖 by @all_torn_up_apparel .
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#graysonwillmovemountains #brandrep #brandrepsearch #downrightperfect #upsyndrome #downsyndrome #downsyndromeparent #downsyndromeawarness #dsdn #t21 #theluckyfew #nothingdownaboutit #lifeisbetterwithyou #morealikethandifferent #babiesofinstagram #shouttheirworth #trisomy21 #downmagazine
OMG 😍🎄 we are so excited for our very first Christmas with this little guy that completes our family of 6! . . . 👕 by @krosedesignco Use discount code GRAYSON15 for your custom needs! . . 👖 by @all_torn_up_apparel . . #graysonwillmovemountains  #brandrep  #brandrepsearch  #downrightperfect  #upsyndrome  #downsyndrome  #downsyndromeparent  #downsyndromeawarness  #dsdn  #t21  #theluckyfew  #nothingdownaboutit  #lifeisbetterwithyou  #morealikethandifferent  #babiesofinstagram  #shouttheirworth  #trisomy21  #downmagazine 
Zach is pure joy. 
Link in bio | gozak.org
Zach is pure joy. Link in bio | gozak.org
A few things to update about today.

Last night Colton received some Albumin for low blood pressures. He ended the night very positive after already being fluid overloaded. Now he is up almost a whole kilo (of fluid) & is working harder to breathe. He is also desatting very quickly when he is without oxygen for short periods of time. (Sneaking his cannula out or switching between his mask & cannula.) They are working on getting the fluid off. This roller coaster of fluid is the most frustrating thing for Matt & I to have to deal with.

Unfortunately, his PICC line went bad today & had to come out. Tomorrow, they hope to put another PICC line in. 
One of his labs this morning was for his thyroid. I'm still waiting on all the numbers & more details, but they said one of his numbers was WAY off & even being sick wouldn't change a number this much - I asked. He needs to be started on Synthroid (just like you sis). Future testing is going to determine whether this is tempory or actual hypothyroidism.

Colton's been having a rough time since the night of his sleep study, but somehow still finds joy in little things. Today Mommy & Daddy switched boys. It's always hard for us to make the switch, but it was good to see the boys interact with each other. ❤ .
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#ColtonStrong #tricuspidatresia #hypoplasticrightventricle #tetrologyoffallot #unbalancedavcanal #chd #heartwarrior #hearthero #hirschsprungsdisease  #downsyndrome #downsyndromeawareness #dsdn #trisomy21 #t21 #theluckyfew #downrightperfect #littlebrother #bigbrother #tubie #babieswithglasses #glasses #fournado #changingthefaceofbeauty #pawpatrol
A few things to update about today. Last night Colton received some Albumin for low blood pressures. He ended the night very positive after already being fluid overloaded. Now he is up almost a whole kilo (of fluid) & is working harder to breathe. He is also desatting very quickly when he is without oxygen for short periods of time. (Sneaking his cannula out or switching between his mask & cannula.) They are working on getting the fluid off. This roller coaster of fluid is the most frustrating thing for Matt & I to have to deal with. Unfortunately, his PICC line went bad today & had to come out. Tomorrow, they hope to put another PICC line in. One of his labs this morning was for his thyroid. I'm still waiting on all the numbers & more details, but they said one of his numbers was WAY off & even being sick wouldn't change a number this much - I asked. He needs to be started on Synthroid (just like you sis). Future testing is going to determine whether this is tempory or actual hypothyroidism. Colton's been having a rough time since the night of his sleep study, but somehow still finds joy in little things. Today Mommy & Daddy switched boys. It's always hard for us to make the switch, but it was good to see the boys interact with each other. ❤ . . #ColtonStrong  #tricuspidatresia  #hypoplasticrightventricle  #tetrologyoffallot  #unbalancedavcanal  #chd  #heartwarrior  #hearthero  #hirschsprungsdisease   #downsyndrome  #downsyndromeawareness  #dsdn  #trisomy21  #t21  #theluckyfew  #downrightperfect  #littlebrother  #bigbrother  #tubie  #babieswithglasses  #glasses  #fournado  #changingthefaceofbeauty  #pawpatrol 
8 meses en este mundo mundial; Trabajando con fonoaudiologa...fortaleciendo músculos de carita y jugando a sacar y poner los adornos del arbolito de pascua...gracias a karina la fono que construyó el arbolito para catita #estimulacionemcasa #estimulaciontemprana #downrightperfect #downsyndromerocks #t21 #t21love #t21rocks #princesse #princess #babydown #babygym #babytravel #teletonchile #fonoaudiologia
Eating blueberries and making the cutest faces. #theluckyfew #lifeisbetterwithyou #nothingdownaboutit #downsyndrome
One kid who refuses to go inside, one kid who refuses to stay outside, but they make it work.
#sisters
One kid who refuses to go inside, one kid who refuses to stay outside, but they make it work. #sisters 
It has been an amazing 2 years of love, giggles and growth. You are becoming such a beautiful toddler and I look forward to all your new accomplishments. Happy Birthday, Mommy and Daddy love you.
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#love #happybaby #upsyndrome #downsyndrome #awareness #trisomy21 #mystory #igtoddler #toddlerlife #penelopestrong #morealikethandifferent #theluckyfew #lifewithdownsyndrome #dsastx #downrightperfect #nothingdownaboutit #specialneedsfamily #mommysgirl #daddysgir #happybirthday #two #birthdaygirl
It has been an amazing 2 years of love, giggles and growth. You are becoming such a beautiful toddler and I look forward to all your new accomplishments. Happy Birthday, Mommy and Daddy love you. . #love  #happybaby  #upsyndrome  #downsyndrome  #awareness  #trisomy21  #mystory  #igtoddler  #toddlerlife  #penelopestrong  #morealikethandifferent  #theluckyfew  #lifewithdownsyndrome  #dsastx  #downrightperfect  #nothingdownaboutit  #specialneedsfamily  #mommysgirl  #daddysgir  #happybirthday  #two  #birthdaygirl 
It's Day 267 of #321DaysofAcceptance 
Today we meet the handsome Cooper from GiGi's Playhouse - Nashville! Cooper loves any program or party at GiGi's Playhouse that includes dance! For Coopers 10th birthday we went to see Justin Bieber ·, we bet he probably had a few moves to show off that night! 
Together, through the 321 Days of Acceptance campaign, we are showing the world that Down syndrome is not bad, scary or anything to back away from. Life is big and beautiful! Our friends who are living with Down syndrome are showing us every day how they share the same likes & dislikes that we all do.  Today we challenge you all to find your nearest Playhouse and see how you can get involved, we promise you are about to make some of the best friends! www.gigisplayhouse.org

#generationG #santa #choosekindness #educate #inspire #believe #generationG #gigisplayhouse #purposeful #downrightawesome #downsyndrome #downsyndromerocks #dontlimitme #rockthe21 #theluckyfew #downsyndromeawarness #downsyndromeacceptance #everyday365 #strongertogether #downrightperfect #mondaymotivation #morealikethandifferent
It's Day 267 of #321DaysofAcceptance  Today we meet the handsome Cooper from GiGi's Playhouse - Nashville! Cooper loves any program or party at GiGi's Playhouse that includes dance! For Coopers 10th birthday we went to see Justin Bieber ·, we bet he probably had a few moves to show off that night! Together, through the 321 Days of Acceptance campaign, we are showing the world that Down syndrome is not bad, scary or anything to back away from. Life is big and beautiful! Our friends who are living with Down syndrome are showing us every day how they share the same likes & dislikes that we all do. Today we challenge you all to find your nearest Playhouse and see how you can get involved, we promise you are about to make some of the best friends! www.gigisplayhouse.org #generationG  #santa  #choosekindness  #educate  #inspire  #believe  #generationG  #gigisplayhouse  #purposeful  #downrightawesome  #downsyndrome  #downsyndromerocks  #dontlimitme  #rockthe21  #theluckyfew  #downsyndromeawarness  #downsyndromeacceptance  #everyday365  #strongertogether  #downrightperfect  #mondaymotivation  #morealikethandifferent 
Water is quite cool this morning even for us who came from -20C weather so Nico is not having it. Plus he is new to the waves. He gets startled and makes a sad face each time a gush of water reaches his feet. 
#downrightperfect
#travelwithbaby
#hawaii
#homiewithextrachromie
Meet Matt’s older big twin brothers, Bill and Chris! Luckily for Matt he can tell them apart his older sisters had it rough growing up though trying to figure out who was who sometimes. #downsyndrome #downwithjoy #downrightperfect #nothingdownaboutit
Matt and his sister @murphyablair, whenever we get a chance we like to go visit her because she takes us to fun places like this amazing ice cream place called Farmhouse Creamery #downsyndome #downwithjoy #downrightperfect #nothingdownaboutit #gigem
Hi 👋🏼 na wie findet ihr meine neue Frisur? Made by meiner tollen Tante @colourupmylife ! Einen schönen Abend wünschen wir euch noch 🤗
#love #besthuman #qualitytime #mylove #today #happy #goodtimes #t21 #lifeisbetterwithyou #oneandonly #lifewithkids #downrightperfect #ootd #myeverything #dailypost #followus #perfectboy #nothingdownaboutit #bigboy #lifewithbubby #thankful  #theluckyfew #sunshine #thankgod
We won this necklace through @auctionfordamian and we love it!! It’s from @gummy.chic and it’s not only adorable, but Peanut has been actually using it instead of grinding her teeth!! Definitely plan on ordering her another one for Christmas! .
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#teamjana #babyjana #peanut #babymodel #babygirl #babysmiles #babiesofig #babiesofinstagram #babyface #wonderfullymade #soloved  #downsyndrome #downsyndromebaby #downsyndromelove #downsyndromeisbeautiful #downrightperfect #theluckyfew #t21 #t21rocksss #dsdn #morealikethandifferent #changingthefaceofbeauty  #terribletwos #terrifictwos #lifeisbetterwithyou #autism #dualdiagnosis #dsautism
We won this necklace through @auctionfordamian and we love it!! It’s from @gummy.chic and it’s not only adorable, but Peanut has been actually using it instead of grinding her teeth!! Definitely plan on ordering her another one for Christmas! . . #teamjana  #babyjana  #peanut  #babymodel  #babygirl  #babysmiles  #babiesofig  #babiesofinstagram  #babyface  #wonderfullymade  #soloved  #downsyndrome  #downsyndromebaby  #downsyndromelove  #downsyndromeisbeautiful  #downrightperfect  #theluckyfew  #t21  #t21rocksss  #dsdn  #morealikethandifferent  #changingthefaceofbeauty  #terribletwos  #terrifictwos  #lifeisbetterwithyou  #autism  #dualdiagnosis  #dsautism 
This photo is four years ago 2014, when she was 5 years old, love this face 😍🐶
This photo is four years ago 2014, when she was 5 years old, love this face 😍🐶
As Jaime gets closer to aging out of Early intervention (6 months left) the more anxious I get. Next month I have last progress meeting with all his therapist set up his next goals and start talking about meeting with the public school in may. I have to keep reminding myself these little pieces of paper do not define him every week. Regardless of great sessions and not so great; He has so much worth. I have to become more familiar with the 4 parts of the IDEA act and other bilaws regarding Jaimes education. Ain’t nobody going to advocate for him like mama. #ei #nothingdownaboutit #downrightperfect #damnyellowpiecesofpaper ☀️
As Jaime gets closer to aging out of Early intervention (6 months left) the more anxious I get. Next month I have last progress meeting with all his therapist set up his next goals and start talking about meeting with the public school in may. I have to keep reminding myself these little pieces of paper do not define him every week. Regardless of great sessions and not so great; He has so much worth. I have to become more familiar with the 4 parts of the IDEA act and other bilaws regarding Jaimes education. Ain’t nobody going to advocate for him like mama. #ei  #nothingdownaboutit  #downrightperfect  #damnyellowpiecesofpaper  ☀️
Rushing his daddy out of the shower 😂 and he signed “daddy” for the first time 😊😞 even in sign language they say daddy first 😩 but so proud of my boy 🙌🏼 ❤️(late post from yesterday) #all4jack #son❤️daddy #upsyndrome #upwithdown #downsyndromerocks #downrightperfect #changingthefaceofbeauty #t21 #t21rocks #theluckyfew💙💛 #chd #chdwarrior #downsyndrome #ds
Snow day...!!!😫😭
(She’s still not feeling well so it’s not even like we played outside. Just the walk from the car to the house and she was like👎😟)
Snow day...!!!😫😭 (She’s still not feeling well so it’s not even like we played outside. Just the walk from the car to the house and she was like👎😟)
The prettiest eyes I ever did see 👀
I would literally stare at this girl all day, in my eyes she is perfect 💕 it amazes me how much happiness one little person can bring 😃😘 #blessed -
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#downrightperfect #trisomy21 #downsyndrome #eyes #thoseeyes #downsyndromeireland #downsyndromeawareness  #irishmammy #mother #love #evieannie #nothingdownabouther #mygirl #blog #baby #cute #cutekids #cutebabies #photography #changingthefaceofbeauty #beautycomesinallforms #happiness #perfect #family #ds #dsbaby #t21
The prettiest eyes I ever did see 👀 I would literally stare at this girl all day, in my eyes she is perfect 💕 it amazes me how much happiness one little person can bring 😃😘 #blessed  - - - - - #downrightperfect  #trisomy21  #downsyndrome  #eyes  #thoseeyes  #downsyndromeireland  #downsyndromeawareness  #irishmammy  #mother  #love  #evieannie  #nothingdownabouther  #mygirl  #blog  #baby  #cute  #cutekids  #cutebabies  #photography  #changingthefaceofbeauty  #beautycomesinallforms  #happiness  #perfect  #family  #ds  #dsbaby  #t21 
Maybe he was cold 😆#rockorocks
We going home today 🙌🏽🙌🏽🙏🏽🙏🏽 #Thankgod #17dayslater😏 #wefinallymadeit #Bronx #hewasbornSTRONG #downsyndromeawareness #downrightperfect
Today is the day, it’s gonna feel like an eternity waiting for Jacob to get done with surgery but I know he’s in great hands. (Removing cholesteatoma in the left ear 👂🏼 placing a tube in the right ear,and taking out his tonsils and adenoids total time approximately 5 hrs) 😇 #theluckyfew #downrightperfect #thelongestdayever #mychamp
Today is the day, it’s gonna feel like an eternity waiting for Jacob to get done with surgery but I know he’s in great hands. (Removing cholesteatoma in the left ear 👂🏼 placing a tube in the right ear,and taking out his tonsils and adenoids total time approximately 5 hrs) 😇 #theluckyfew  #downrightperfect  #thelongestdayever  #mychamp 
It’s going to be a good morning! Just keep skipping, just keep skipping #downwithjoy #morning #downsyndrome #downrightperfect #blessed #nothingdownaboutit
Wait for the end.
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One of my favorite moments to watch over and over again. .
Link in bio | gozak.org
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#nothingdownaboutit #lifeisbetterwithyou #luckyfew #upsyndrome #downs #downsyndrome #t21 #trisomy21 #downsyndromelove #smile #life #advocate #downrightperfect #websitedesign #nonprofit #nonprofitorganization
ADSku yg belok..... ADSku pinter...... Anak surga..... Sehat selalu ya Nang.... Jadilah seturut kehendak Allah..... Love u always anak gantengku....😘😇 #downrightperfect #nevergetsmedown #myprecious #melawandunia
Ha! Love that poll feature on IG stories, and if you saw one of our stories last night...and you voted for mischief (over 80%!)....you were wrong! Little man was once again Santa-momma’s helper yesterday, sorting through “gently used” clothes (not sure anything that gets worn by Caleb is gently used, but it sounds nice right?) Every so often, we go through the pile of clothes that don’t fit this kid anymore. A stack that has been increasing rapidly over the fall 😢😢. The kid that wore the same size for three years is almost catching up to a decent size for his age (10). Seems like I’m blinking and missing weekly these days. #growthspurt 
Anywho - we love the Vietnam Veterans organization, who actually will come to your house to pick up your donations. Clothes, toys, Knick knacks, etc.  All set for them this morning, and Caleb gets another ✔️ on the Nice list for Santa 😊🎅🏻🎁
#santashelper #hohoho #christmas #makingroomfornewclothes #givingbackfeelsgood #calebjprewitt 
#igersjax @instagram
Ha! Love that poll feature on IG stories, and if you saw one of our stories last night...and you voted for mischief (over 80%!)....you were wrong! Little man was once again Santa-momma’s helper yesterday, sorting through “gently used” clothes (not sure anything that gets worn by Caleb is gently used, but it sounds nice right?) Every so often, we go through the pile of clothes that don’t fit this kid anymore. A stack that has been increasing rapidly over the fall 😢😢. The kid that wore the same size for three years is almost catching up to a decent size for his age (10). Seems like I’m blinking and missing weekly these days. #growthspurt  Anywho - we love the Vietnam Veterans organization, who actually will come to your house to pick up your donations. Clothes, toys, Knick knacks, etc. All set for them this morning, and Caleb gets another ✔️ on the Nice list for Santa 😊🎅🏻🎁 #santashelper  #hohoho  #christmas  #makingroomfornewclothes  #givingbackfeelsgood  #calebjprewitt  #igersjax  @instagram
생후 8일만에 받은 염색체 검사 📄 
이렇게 귀여운 21번 염색체는 첨 봄 💗
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seriously, the cutest extra chromosome ever! 👼
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#지민이 #다운증후군 #염색체검사 #21번염색체 #jimin #downsyndrome #t21 #downrightperfect #lifeisbetterwithyou #oneofakind
Heute Thema #familie bei der #lebenimadvent #challenge 
Das Bild ist schon etwas älter, vom März 2015 beim Markt der Möglichkeiten geschossen von @juliareckeweg 
Familie ist für mich das wichtigste und es wird immer schwieriger alle auf ein Foto zu bekommen, denn die Große nabelt sich schon so langsam ab, war am Sonbtag nicht mit auf dem Weihnachtsmarkt und ich weiß bald sind auch gemeinsame Urlaube vorbei #Pubertät ist schon ne extrem schwierige Zeit für das Familienleben, alles rüttelt sich neu zurecht
#mamasundpapasaufinstagram #damilylife #familienleben #elternblogger #t21 #downsyndrom #downrightperfect #downsyndrome
Heute Thema #familie  bei der #lebenimadvent  #challenge  Das Bild ist schon etwas älter, vom März 2015 beim Markt der Möglichkeiten geschossen von @juliareckeweg Familie ist für mich das wichtigste und es wird immer schwieriger alle auf ein Foto zu bekommen, denn die Große nabelt sich schon so langsam ab, war am Sonbtag nicht mit auf dem Weihnachtsmarkt und ich weiß bald sind auch gemeinsame Urlaube vorbei #Pubertät  ist schon ne extrem schwierige Zeit für das Familienleben, alles rüttelt sich neu zurecht #mamasundpapasaufinstagram  #damilylife  #familienleben  #elternblogger  #t21  #downsyndrom  #downrightperfect  #downsyndrome 
Tomorrow is another day and we’re happy about that! #downsyndrome #downwithjoy #downrightperfect #nothingdownaboutit
My big brother Linus ❤ He is a fanatic man and dad. He is always happy when he sees me and is there for me if I need to. He is a good male model💙
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Min storebror Linus ❤
han är en fanatisk man och pappa. Han är alltid glad när han ser mig och finns där för mig om jag behöver. Han är en bra manlig förebild 💙
My big brother Linus ❤ He is a fanatic man and dad. He is always happy when he sees me and is there for me if I need to. He is a good male model💙 • Min storebror Linus ❤ han är en fanatisk man och pappa. Han är alltid glad när han ser mig och finns där för mig om jag behöver. Han är en bra manlig förebild 💙
A Very, Very RAD Christmas is coming to you in just 6 days! Come dance the night away to celebrate the holidays with your Camp family! Did we mention that we are revealing the 2018 Camp theme?! We will see you at the door! Link in bio!
A Very, Very RAD Christmas is coming to you in just 6 days! Come dance the night away to celebrate the holidays with your Camp family! Did we mention that we are revealing the 2018 Camp theme?! We will see you at the door! Link in bio!
Happy #monday & welcome to Day 266 of #321DaysofAcceptance

Meet Marley from GiGi's Playhouse Houston! Marley is a curious, confident 11-year old who plays football and basketball. He likes to be in charge and never takes no for an answer, hence his overwhelmingly persistent personality. He is the youngest sibling of three so he learned early how to “get what he wants". He loves to eat pizza, sing and dance...in that order precisely.

Have you been thinking about #volunteering at GiGi's Playhouse? The biggest perk is you get to hang out with amazing people like Marley! Learn more here - https://gigisplayhouse.org/volunteer

#educate #inspire #believe #generationG #gigisplayhouse #purposeful #downrightawesome #downsyndrome #downsyndromerocks #dontlimitme #rockthe21 #theluckyfew #downsyndromeawarness #downsyndromeacceptance #everyday365 #strongertogether #downrightperfect #mondaymotivation #strongertogether
Happy #monday  & welcome to Day 266 of #321DaysofAcceptance  Meet Marley from GiGi's Playhouse Houston! Marley is a curious, confident 11-year old who plays football and basketball. He likes to be in charge and never takes no for an answer, hence his overwhelmingly persistent personality. He is the youngest sibling of three so he learned early how to “get what he wants". He loves to eat pizza, sing and dance...in that order precisely. Have you been thinking about #volunteering  at GiGi's Playhouse? The biggest perk is you get to hang out with amazing people like Marley! Learn more here - https://gigisplayhouse.org/volunteer #educate  #inspire  #believe  #generationG  #gigisplayhouse  #purposeful  #downrightawesome  #downsyndrome  #downsyndromerocks  #dontlimitme  #rockthe21  #theluckyfew  #downsyndromeawarness  #downsyndromeacceptance  #everyday365  #strongertogether  #downrightperfect  #mondaymotivation  #strongertogether