I am both disgusted and disappointed with some people in this world! I know this will be perceived as religious or maybe even about rights, but I'm going to speak up! Yes, I was scared to death when I found out I would have a child with Down syndrome, yes, the world made me scared. If we would just have more compassion, more love and respect for human life, people wouldn't be afraid of being different. There wouldn't be so much hate in this crazy world! I'm ashamed of people who think babies should be killed because of their disabilities. What makes their own life worthy? Everyone's life is worth living! I cannot imagine our lives with out our Jordan Grace...she's full of life, full of joy, full of hope, full of worth!!! It's plain and simple, if someone doesn't want kids, avoid the obvious! If someone doesn't want to gain weight work out and eat well, it's common sense people. Where's the rights of all these unborn children??? Why should the rights of the person who doesn't want a kid over trump the precious life without fault? I'm sadden and sick to my stomach to learn of these horrible people (including the "professional" who pressured me to eliminate my own pregnancy) who think it's ok to just discard a life in the garbage like a piece of trash. BE KIND! RESPECT! INCLUDE! Get EDUCATED! 😊
Come along with me as I attend the #2017NDSC National Down Syndrome Congress conference in Sacramento.
Follow me as I attend workshops, man a booth (as Interim Executive Director for Lumind RDS), network, cultivate friendships, and have fun learning by following me at #marlaatndsc
People from all over the globe will be attending the #2017NDSC convention to hear the latest information in the world of down syndrome from world-renowned experts on how to care and support their loved ones with #downsyndrome . *
Parents and caregivers learn about how to advocate, educate and care for their loved ones with Down Syndrome.
While #selfadvocates come together to learn, and create friendships.
And siblings share about their life having a sibling with Down Syndrome.
From workshops, vendors, awards and dances. This will sure be the place to be next week.
Malachi is home!!! I've prayed so much for this precious angel to come home to his amazing family! So to be present the moment he stepped off the elevator along with his loving mother, I couldn't help the tears from flowing. Knowing Jalena and Emmy has been such a blessing in my life! To watch her bring her son home today has filled my heart with all the goodness that we fail to see each day! Tonight as they sleep under the same roof in his forever home, I thank God for answering so many prayers! 💙 you are home sweet Malachi and you are so loved! 🦋
There's a mother somewhere out there with an appointment for termination of her pregnancy because she found out her baby would have Down syndrome. I read this last night and that precious baby and life hasn't left my mind, deep feelings of despair came over me, to the point where I shed tears in a way I hadn't in over three years. I couldn't sleep last night thinking of the unmeasurable love I have for our Jordan Grace and thinking someone being so scared that they may miss out on this precious being. My heart understands the fear, uncertainty and especially the deep dark hole one can fall into. But now that I'm a mother to this precious one, I was never told of how much joy, laughter, love and worry, just like our oldest, she would bring. I was only told of the negative and the scary! If you could say anything positive to someone who has just been diagnosed with a baby with Ds, what would you tell them?
We want Jordan Grace to know that she has Down syndrome, she came up with "It's cool" part. We want her to be proud of who she is, but not defined by her diagnosis. Each day she shows us what she's capable of and we are just here to support and love her, she makes it so easy! 🦋 don't forget to watch our friend @sean_from_born_this_way on @aetv tonight!!! ❤
I've been working on a book. I stopped writing for about two weeks because it became just so difficult, some chapters bring out all the emotions that bring me down to my knees and take me to that place of deep sorrow. It has been extremely therapeutic but also a bit humbling to open up about some of the feelings I haven't even shared with some of my close friends. Each time I'm about to write, I remove myself as the character and become the reader. I want to be helpful to those who have experienced this kind of pain, to be an advocate and to also be a source of support for anyone who may need or want to talk. So if you are following and need to chat with someone, please know I am here!
Yesterday I had the pleasure and privilege of speaking to student midwives at the #UniversityofBrighton . We were sharing birth stories and talking about the language used when a baby with Down's Syndrome is born. I just showed this picture to Audrey and she said "Daddy's wearing a hat. Daddy's holding a baby." Little does she know, this is Audrey just minutes old. At the time, my world came crashing down, but now I look at this picture and know it's when my world was changed immeasurably for the better. #awesomeaudreyemily#downsyndromeawareness#downsyndromeadvocacy#tellitright#downssyndromeassociation
❤️Porque es bella.
Porque tiene un gen extra y eso la hace brillar!✨
Porque las personas con síndrome de Down tienen mucho que aportar al mundo tomemos consciencia y abramos el corazón a la #integracion con infinito amor, respeto y admiración! 🕊
🙌🏻Gracias @fofuricesdebela por esta preciosa foto de Bela 😍
•LINK IN BIO
I finally was able to take time to finish the book #theluckyfew a couple nights ago. •
I was so encouraged by this book. Not because I have a child with Down syndrome but because God gave me the unexpected and asked me to embrace it. Boy oh boy, isn't it so much sweeter that way? That's really what the theme of this book is. Boldly stepping into what God is calling you to and watching him make it better then you could have thought up on your own.
Such a good read. If you are looking for encouragement I recommend #theluckyfew 100%!! •
• Still available for preorder and there are lots of awesome freebies that come along with it!
4 days until the release date (WDSD!!) so hurry!! 😉😉 •
LINK IN BIO!
"I get angry, understanding that we had let our culture taint us into thinking that Down Syndrome should go on the con list when it should have been one of our pros. Friends, Down Syndrome is only ever a pro." •
FRIENDS! I have the absolute privilege of being apart of the #LuckyFew book launch team!! I have been following @macymakesmyday on Instagram since shortly after I had Moses. In the beginning learning about Down Syndrome was very intimidating, but seeing the Avis family (via Instagram ) live a normal life while having 2 children with DS, was such an encouragement.
I am only 3 chapters in and I have been in tears more than once! The good kind! This book is not just about Down Syndrome. It is SO much more. I'll be giving updates as I read!
I encourage you to consider preordering this book so that you too can share in this beautiful story. Hits the shelves 3/21/17 ! World Down syndrome day!! #downsyndromeawareness#downsyndromeadoption#downsyndromeadvocacy#adoption#theluckyfew#downisup#nothingdownaboutit#heatherAvis#theAvisfamily
We are $580 shy of our $5,000 goal in support of @ndssorg an amazing human rights organization who service the beautiful community of people with #DownSyndrome and their families. We were fundraising in hopes of collectively creating a more inclusive world for all and one day being able to celebrate everyone's differences and unique ability. Can you help us? Even a $5 contribution from each of you would mean the world. Standing together there is nothing that we cannot accomplish. Thank you!! Lisa & Blake ((to all of you who have donated you have my eternal gratitude and respect)) 🌹💛💙 #Charity#Giving#Donate#SeeTheAbility#ShareThisPost#NDSS#DownSyndromeAwareness#DownSyndromeAdvocacy#Advocacy#AdvocacyMatters#AbilityParent#Disability#DSAM needed yesterday but put work for this community continues. X www.classy.org/Blake5for5 link also in profile.
Happy FIVE months to this little angel 💕 I can't believe it's been that long since this little sweet pea entered the world. To celebrate, another question answer from our DS awareness post 😊 Lots of people are apparently super interested in our future as a family--mainly, in whether we're planning on having more children. The short answer is probably. We love kids & have always talked about having at least two. Kerrigan's diagnosis may cause us to adjust a few things, like when we decide to bring another little one into our family, depending on her development and needs as she grows and learns. We want to make sure we're able to give her every second of time and attention we can during these critical first few years. That being said, we firmly believe that a sibling would be a wonderful friend, confidante, and advocate for Kerrigan as they grow up together. We haven't quite decided if we want to have more biological children or adopt (or both), but we have plenty of time for those talks! 💙💛 In the meantime, we're just loving this sweet little FIVE MONTH OLD! Where does the time go?! 😭😭
One of the most common questions we get about Kerrigan is about her future. Will she be independent? Will she ever live on her own?
These questions were definitely amongst the most concerning when we received her diagnosis back in May. What we've come to realize in the months since is that there's never any guarantee about the future of any kiddo--there are plenty of typically developing children who grow up and live at home into adulthood, there are plenty of individuals with Down syndrome who grow up and live independently, and a whole mix in between. Our decision from the get-go has been to maintain high expectations for Kerrigan's future and to set lofty goals for our girl! We want Kerrigan to live an independent and fulfilling life, and we're going to work hard to make sure she has every opportunity to do so. In a world where young adults with Down syndrome are winning Emmy's for starring in a national TV show on a major channel, we fully believe anything is possible for our little girl!