Playing my new favourite thing ever, in bed after a long bath at 11:30am noodling along to Percy Sledge blasting through this empty house. Thank you @rufusguitarshop for helping me finance this beauty (along with another little dynamite setup that will blow yer socks off!).
Endlessly grateful for the GoFundMe love that allowed me to find the best Nanny I could ask for so that I can take the rare time for myself to do what makes my heart sing. Grateful for my son's amazing school, for this beautiful robe from my Mama, for the sun finding me through the skylight... Now it's gone and I gotta run to Cranial Sacral therapy for me and my #downsyndromeangel . Too bad I just wasted 20 min on Instagram😳 #momtime
" Out of suffering have emerged the strongest souls ; the most massive characters are seared with scars." - Khahil Gibran
Today is one year since Anastasia had her BIG surgery on her heart.
These photos are very personal to me and I haven't shared them out before, but here you see one year between pictures.
50% of babies born with Down Syndrome have abnormalities with their hearts. Most babies end up having heart surgery. Heart defects come in all types, from minor to major. Defects can occur inside the heart or in the large blood vessels outside the heart. She had heart defects on both sides, one was repaired at only 2 weeks old and the big one at 4 months old.
I know many parents around the world go through this process, and it is not easy. The hardest part is saying goodbye to your little one as they are wheeled off to surgery. Both surgeries I cried and worried about, but looking at her smile through this all, before and after took most of my worries away.
Adapting to these news and learning to care for the infant is superimposed on the normal transition to parenthood. The period of diagnosis, hospitalisation and early caregiving at home is extremely stressful.
Despite the challenges, we adapted sucessfully and look at her NOW!
Because of Anastasia, we've met the most wonderful people, therapist, doctors and plenty more. Anastasia introduced us to a world we weren't too familiar with but now we are ≤3
We are forever thankful how everything went well and that she is healthy and strong now, because of her we've learned to be stronger together, more aware and most of all more grateful.