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For #worldprematurityday I can’t help but think about all of the parents experiencing the same journey Vanesa and I have found ourselves on. When looking around the NICU, there is a room full of warrior babies and dedicated parents who never give up. We were so blessed to have Nicholas at 35 weeks with an army of supportive doctors and nurses who have continuously fought for Nick’s life. God Bless all of the parents, doctors and nurses around the world who never give up on premature and disabled babies πŸ’™πŸ’› #TeamNickJr #beautiful #angel #baby #worldprematurityday #xtra21 #downrightperfect  #trisomy21 #parentsofangels #rockthe21 #downsyndromeangel #savedownsyndrome #theluckyfew #blessed #nothingdownaboutit #downsyndromeawareness #bornthisway #upsyndrome #specialneeds #downsyndrome #changingthefaceofbeauty #morealikethandifferent #dontgiveup #nevergiveup #beatingtheodds #DefeatingTheNicu @beautifulconditions
For #worldprematurityday  I can’t help but think about all of the parents experiencing the same journey Vanesa and I have found ourselves on. When looking around the NICU, there is a room full of warrior babies and dedicated parents who never give up. We were so blessed to have Nicholas at 35 weeks with an army of supportive doctors and nurses who have continuously fought for Nick’s life. God Bless all of the parents, doctors and nurses around the world who never give up on premature and disabled babies πŸ’™πŸ’› #TeamNickJr  #beautiful  #angel  #baby  #worldprematurityday  #xtra21  #downrightperfect  #trisomy21  #parentsofangels  #rockthe21  #downsyndromeangel  #savedownsyndrome  #theluckyfew  #blessed  #nothingdownaboutit  #downsyndromeawareness  #bornthisway  #upsyndrome  #specialneeds  #downsyndrome  #changingthefaceofbeauty  #morealikethandifferent  #dontgiveup  #nevergiveup  #beatingtheodds  #DefeatingTheNicu  @beautifulconditions
Last night Vanesa and I left the hospital in high hopes that Nick Jr would be able to adapt to the room temperature while in his new crib. His body temp this morning dropped so he is now back in the incubator. Although we were set back a few days, we remain positive knowing that Nick will be out soon. God Is GoodπŸ’™πŸ’› #xtra21 #downrightperfect  #trisomy21 #parentsofangels #rockthe21 #downsyndromeangel #savedownsyndrome #theluckyfew #blessed #nothingdownaboutit #downsyndromeawareness #bornthisway #upsyndrome #specialneeds #downsyndrome #changingthefaceofbeauty #morealikethandifferent #dontgiveup #nevergiveup
Last night Vanesa and I left the hospital in high hopes that Nick Jr would be able to adapt to the room temperature while in his new crib. His body temp this morning dropped so he is now back in the incubator. Although we were set back a few days, we remain positive knowing that Nick will be out soon. God Is GoodπŸ’™πŸ’› #xtra21  #downrightperfect  #trisomy21  #parentsofangels  #rockthe21  #downsyndromeangel  #savedownsyndrome  #theluckyfew  #blessed  #nothingdownaboutit  #downsyndromeawareness  #bornthisway  #upsyndrome  #specialneeds  #downsyndrome  #changingthefaceofbeauty  #morealikethandifferent  #dontgiveup  #nevergiveup 
A major milestone for Nicholas tonight. He has been taken out of the incubator and is now in a crib. The doctors believe that his body is ready and able to naturally adapt to the room temperature. BIG WIN FOR NICKY JR!!!πŸ’™πŸ’›πŸ’™πŸ’› #OneStepCloserToHome #TeamNickjr #xtra21 #downrightperfect  #trisomy21 #parentsofangels #rockthe21 #downsyndromeangel #savedownsyndrome #theluckyfew #blessed #nothingdownaboutit #downsyndromeawareness #bornthisway #upsyndrome #specialneeds #downsyndrome #changingthefaceofbeauty #morealikethandifferent #dontgiveup #nevergiveup
A major milestone for Nicholas tonight. He has been taken out of the incubator and is now in a crib. The doctors believe that his body is ready and able to naturally adapt to the room temperature. BIG WIN FOR NICKY JR!!!πŸ’™πŸ’›πŸ’™πŸ’› #OneStepCloserToHome  #TeamNickjr  #xtra21  #downrightperfect  #trisomy21  #parentsofangels  #rockthe21  #downsyndromeangel  #savedownsyndrome  #theluckyfew  #blessed  #nothingdownaboutit  #downsyndromeawareness  #bornthisway  #upsyndrome  #specialneeds  #downsyndrome  #changingthefaceofbeauty  #morealikethandifferent  #dontgiveup  #nevergiveup 
Baby Nick Jr. is being closely monitored in the Neonatal Intensive Care Unit (NICU) for possible fluid build-up around his lungs. Today, he received his special formula to reduce that possibility. Nick no longer needs IV fluids and has shown great feeding and digestion capabilities by finishing his first bottle entirely on his own. He is currently being treated for jaundice under the blue light and with the Lords prayers he will hopefully pass all tests and be out of the NICU by this weekend.πŸ’™πŸ’› #xtra21 #downrightperfect  #trisomy21 #parentsofangels #rockthe21 #downsyndromeangel #savedownsyndrome #theluckyfew #blessed #nothingdownaboutit #downsyndromeawareness #bornthisway #upsyndrome #specialneeds #downsyndrome #changingthefaceofbeauty #morealikethandifferent #dontgiveup #nevergiveup
Baby Nick Jr. is being closely monitored in the Neonatal Intensive Care Unit (NICU) for possible fluid build-up around his lungs. Today, he received his special formula to reduce that possibility. Nick no longer needs IV fluids and has shown great feeding and digestion capabilities by finishing his first bottle entirely on his own. He is currently being treated for jaundice under the blue light and with the Lords prayers he will hopefully pass all tests and be out of the NICU by this weekend.πŸ’™πŸ’› #xtra21  #downrightperfect  #trisomy21  #parentsofangels  #rockthe21  #downsyndromeangel  #savedownsyndrome  #theluckyfew  #blessed  #nothingdownaboutit  #downsyndromeawareness  #bornthisway  #upsyndrome  #specialneeds  #downsyndrome  #changingthefaceofbeauty  #morealikethandifferent  #dontgiveup  #nevergiveup 
Sometimes there’s no update on anything and there’s nothing related to DS that we want to talk about. Sometimes she’s just a cute little girl with a phone and some cute clothes. #morealikethandifferent πŸ’›πŸ‘§πŸ»πŸ’™+ πŸ“± + πŸ‘šπŸ‘–πŸ‘Ÿ=❀️😍 #toddlerfashion #😍 #πŸ’™πŸ’› #downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome  #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #promoteDSresearch #advocate #dontscreenusout #differentisbeautiful
Sometimes there’s no update on anything and there’s nothing related to DS that we want to talk about. Sometimes she’s just a cute little girl with a phone and some cute clothes. #morealikethandifferent  πŸ’›πŸ‘§πŸ»πŸ’™+ πŸ“± + πŸ‘šπŸ‘–πŸ‘Ÿ=❀️😍 #toddlerfashion  #😍 #πŸ’™πŸ’› #downsyndromeangel  #savedownsyndrome  #dschildrendeservelife  #extracutechromosome  #theluckyfew  #t21  #downsyndrome  #downrightperfect  #trisomy21  #downsyndromeawareness  #bornthisway  #nothingdownaboutit  #upsyndrome  #specialneeds  #changingthefaceofbeauty  #promoteDSresearch  #advocate  #dontscreenusout  #differentisbeautiful 
Welcome to the world my little Nicholas Jr. Today is your Birthday and you are a healthy baby boy at 5 lbs 9 oz. Your mom and I have been worrying about you and waiting for this moment for a long time. Meeting you today has changed our lives forever and we promise to always protect and love you unconditionally. 
Love,
your parents, 
Nick and Vanesa.

#xtra21 #downrightperfect  #trisomy21 #parentsofangels #rockthe21 #downsyndromeangel #savedownsyndrome #theluckyfew #blessed #nothingdownaboutit #downsyndromeawareness #bornthisway #upsyndrome #specialneeds #downsyndrome #changingthefaceofbeauty #morealikethandifferent #dontgiveup #nevergiveup @globaldownsyndrome
Welcome to the world my little Nicholas Jr. Today is your Birthday and you are a healthy baby boy at 5 lbs 9 oz. Your mom and I have been worrying about you and waiting for this moment for a long time. Meeting you today has changed our lives forever and we promise to always protect and love you unconditionally. Love, your parents, Nick and Vanesa. #xtra21  #downrightperfect  #trisomy21  #parentsofangels  #rockthe21  #downsyndromeangel  #savedownsyndrome  #theluckyfew  #blessed  #nothingdownaboutit  #downsyndromeawareness  #bornthisway  #upsyndrome  #specialneeds  #downsyndrome  #changingthefaceofbeauty  #morealikethandifferent  #dontgiveup  #nevergiveup  @globaldownsyndrome
I absolutely love this video!! We are always working with Atalia to talk more and say words that she doesn’t usually say. Often times our 14 month old picks up on it too (you can hear her say β€œice cream” for the first time in the background). Atalia’s so stinking cute with the way she says things - you have to watch! 😍😍 #brainfreeze #Yummy  #ucky #icecream #speech
πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™
#downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome  #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #promoteDSresearch #advocate #dontscreenusout #differentisbeautiful
I absolutely love this video!! We are always working with Atalia to talk more and say words that she doesn’t usually say. Often times our 14 month old picks up on it too (you can hear her say β€œice cream” for the first time in the background). Atalia’s so stinking cute with the way she says things - you have to watch! 😍😍 #brainfreeze  #Yummy  #ucky  #icecream  #speech  πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™ #downsyndromeangel  #savedownsyndrome  #dschildrendeservelife  #extracutechromosome  #theluckyfew  #t21  #downsyndrome  #downrightperfect  #trisomy21  #downsyndromeawareness  #bornthisway  #nothingdownaboutit  #upsyndrome  #specialneeds  #changingthefaceofbeauty  #promoteDSresearch  #advocate  #dontscreenusout  #differentisbeautiful 
it’s a shopping kind of day. woo-hoo!!!! πŸ›πŸ› it’s especially more fun when it’s at my favorite store!!! @hm @hm_kids πŸ’—πŸ’— downsyndromekidsaresmart #downsyndrome #downsyndromekid #downsyndromelife #downsyndromeangel  #downsyndromelove #downsyndromecutie #throwback #downsyndromemodel #pledgeofallegiance #roadtrip #fun #hm #hmkids #shopping #dailylife #fun #spendingmoney #shoppingspree #shoppingismycardio#peoplewithdsrock#ds
it’s a shopping kind of day. woo-hoo!!!! πŸ›πŸ› it’s especially more fun when it’s at my favorite store!!! @hm @hm_kids πŸ’—πŸ’— downsyndromekidsaresmart #downsyndrome  #downsyndromekid  #downsyndromelife  #downsyndromeangel  #downsyndromelove  #downsyndromecutie  #throwback  #downsyndromemodel  #pledgeofallegiance  #roadtrip  #fun  #hm  #hmkids  #shopping  #dailylife  #fun  #spendingmoney  #shoppingspree  #shoppingismycardio #peoplewithdsrock #ds 
A little sweet treat before bed. #strawberryicecream The kids all had a great day today: played fair, were very sweet to each other and let mommy actually take an uninterrupted (fast) shower....lol πŸ˜†πŸ˜†#mommyproblems Atalia was feeling much better and was more than happy to get her well deserved treat. #allsmiles #happygirl πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™
#downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome  #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #promoteDSresearch #advocate #dontscreenusout #differentisbeautiful
A little sweet treat before bed. #strawberryicecream  The kids all had a great day today: played fair, were very sweet to each other and let mommy actually take an uninterrupted (fast) shower....lol πŸ˜†πŸ˜†#mommyproblems  Atalia was feeling much better and was more than happy to get her well deserved treat. #allsmiles  #happygirl  πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™ #downsyndromeangel  #savedownsyndrome  #dschildrendeservelife  #extracutechromosome  #theluckyfew  #t21  #downsyndrome  #downrightperfect  #trisomy21  #downsyndromeawareness  #bornthisway  #nothingdownaboutit  #upsyndrome  #specialneeds  #changingthefaceofbeauty  #promoteDSresearch  #advocate  #dontscreenusout  #differentisbeautiful 
#throwback #1stbirthday Atalia is sick....again. She isn’t up for pictures so, we are doing a little throwback love this week;) With 3 kids under 6 in the house and sick season upon us, it has already been a struggle. Many parents with a special needs child are able to stay home to care for their child, but that has not been something we were able to do. We both work and struggle to keep up with her care, therapy & doctor’s appointments, which has gotten easier for us over the years. At first, it was overwhelming and like many others we feared having her in the daycare system. It was either the fear that she would be sick all the time (which has happened on occasion) or the fear that they wouldn’t take care of her the way that she needed. We also feared that she would be treated different because she wasn’t a β€œtypical” child, which all of her classmates were. Now, 3 years in, we have learned to manage the ups and downs of parenthood and even more so the parenthood with a special needs child while both working. It’s not easy, but it does get easier. The daycare system has worked for us in a very positive way - Despite all the sick days that come from being around other kids. The biggest part of our success is having understanding employers, accommodating schedules and working together. If, you are one of the families that struggle to work, care and provide for your loved one- just know you are not alone. Keep your head up this season and take one day at a time. #staypositive #workingparents #specialneedsparents πŸ’™πŸ’™πŸ‘§πŸ»πŸ’›πŸ’›
#downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome  #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #promoteDSresearch #advocate #dontscreenusout #differentisbeautiful
#throwback  #1stbirthday  Atalia is sick....again. She isn’t up for pictures so, we are doing a little throwback love this week;) With 3 kids under 6 in the house and sick season upon us, it has already been a struggle. Many parents with a special needs child are able to stay home to care for their child, but that has not been something we were able to do. We both work and struggle to keep up with her care, therapy & doctor’s appointments, which has gotten easier for us over the years. At first, it was overwhelming and like many others we feared having her in the daycare system. It was either the fear that she would be sick all the time (which has happened on occasion) or the fear that they wouldn’t take care of her the way that she needed. We also feared that she would be treated different because she wasn’t a β€œtypical” child, which all of her classmates were. Now, 3 years in, we have learned to manage the ups and downs of parenthood and even more so the parenthood with a special needs child while both working. It’s not easy, but it does get easier. The daycare system has worked for us in a very positive way - Despite all the sick days that come from being around other kids. The biggest part of our success is having understanding employers, accommodating schedules and working together. If, you are one of the families that struggle to work, care and provide for your loved one- just know you are not alone. Keep your head up this season and take one day at a time. #staypositive  #workingparents  #specialneedsparents  πŸ’™πŸ’™πŸ‘§πŸ»πŸ’›πŸ’› #downsyndromeangel  #savedownsyndrome  #dschildrendeservelife  #extracutechromosome  #theluckyfew  #t21  #downsyndrome  #downrightperfect  #trisomy21  #downsyndromeawareness  #bornthisway  #nothingdownaboutit  #upsyndrome  #specialneeds  #changingthefaceofbeauty  #promoteDSresearch  #advocate  #dontscreenusout  #differentisbeautiful 
#selfcare
Playing my new favourite thing ever, in bed after a long bath at 11:30am noodling along to Percy Sledge blasting through this empty house. Thank you @rufusguitarshop for helping me finance  this beauty (along with another little dynamite setup that will blow yer socks off!).
Endlessly grateful for the GoFundMe love that allowed me to find the best Nanny I could ask for so that I can take the rare time for myself to do what makes my heart sing. Grateful for my son's amazing school, for this beautiful robe from my Mama, for the sun finding me through the skylight... Now it's gone and I gotta run to Cranial Sacral therapy for me and my #downsyndromeangel. Too bad I just wasted 20 min on Instagram😳 #momtime
#selfcare  Playing my new favourite thing ever, in bed after a long bath at 11:30am noodling along to Percy Sledge blasting through this empty house. Thank you @rufusguitarshop for helping me finance this beauty (along with another little dynamite setup that will blow yer socks off!). Endlessly grateful for the GoFundMe love that allowed me to find the best Nanny I could ask for so that I can take the rare time for myself to do what makes my heart sing. Grateful for my son's amazing school, for this beautiful robe from my Mama, for the sun finding me through the skylight... Now it's gone and I gotta run to Cranial Sacral therapy for me and my #downsyndromeangel . Too bad I just wasted 20 min on Instagram😳 #momtime 
5 months old now, and smiling and eating like a champ! Question: What has been most helpful to you when teaching your baby to keep their tongue inside their mouth, and at what age did they learn to do it? Any advice is appreciated, we don’t have a lot of resources where we now live - deep in the jungle of Costa Rica.
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#alittlesomethingextra #theluckyfew #lifewithds #downsyndrome #upwithdown #savedownsyndrome #nothingdownaboutit #chromosomecutie #changingthefaceofbeauty #downsyndromeisbeautiful #downrightadorable #downrightperfect #downsyndromecutie #sindromededown #downsyndromelife #downsyndromelove #downsyndromerocks #downsyndromebaby #downsyndromebeauty #downsyndromemodel #downsyndromefamily #downsyndromeprincess #downsyndromegirl #downsyndromeangel #dsdn #ds
5 months old now, and smiling and eating like a champ! Question: What has been most helpful to you when teaching your baby to keep their tongue inside their mouth, and at what age did they learn to do it? Any advice is appreciated, we don’t have a lot of resources where we now live - deep in the jungle of Costa Rica. . . . . . . . . . #alittlesomethingextra  #theluckyfew  #lifewithds  #downsyndrome  #upwithdown  #savedownsyndrome  #nothingdownaboutit  #chromosomecutie  #changingthefaceofbeauty  #downsyndromeisbeautiful  #downrightadorable  #downrightperfect  #downsyndromecutie  #sindromededown  #downsyndromelife  #downsyndromelove  #downsyndromerocks  #downsyndromebaby  #downsyndromebeauty  #downsyndromemodel  #downsyndromefamily  #downsyndromeprincess  #downsyndromegirl  #downsyndromeangel  #dsdn  #ds 
Sleep study test results are in!! We successfully escaped the #cpap !!!! Went from 5.9 to 1.1 per hour and 85% Oxygen to 93%πŸ‘πŸΌπŸ‘πŸΌ Her surgery was obviously a huge success and has really helped her. She seems much healthier these days too! We couldn’t be happier right now!! #downsyndromeawarenessmonth #october #rocktober #sleepstudy #sleepapnea πŸ’™πŸ’™πŸ‘§πŸ»πŸ’›πŸ’›
#downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome  #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #promoteDSresearch #advocate #dontscreenusout #differentisbeautiful
Sleep study test results are in!! We successfully escaped the #cpap  !!!! Went from 5.9 to 1.1 per hour and 85% Oxygen to 93%πŸ‘πŸΌπŸ‘πŸΌ Her surgery was obviously a huge success and has really helped her. She seems much healthier these days too! We couldn’t be happier right now!! #downsyndromeawarenessmonth  #october  #rocktober  #sleepstudy  #sleepapnea  πŸ’™πŸ’™πŸ‘§πŸ»πŸ’›πŸ’› #downsyndromeangel  #savedownsyndrome  #dschildrendeservelife  #extracutechromosome  #theluckyfew  #t21  #downsyndrome  #downrightperfect  #trisomy21  #downsyndromeawareness  #bornthisway  #nothingdownaboutit  #upsyndrome  #specialneeds  #changingthefaceofbeauty  #promoteDSresearch  #advocate  #dontscreenusout  #differentisbeautiful 
Writing our story has been an emotional journey, but one I believe should be shared. To those who enjoyed part 2,I hope you will find part 3 just as intriguing. Please remember to share, comment and subscribe. God bless.
#KaceyKim #t21angel #downrightperfect #downsyndromebaby #downsyndromeangel #morealikethandifferent 
https://m.facebook.com/story.php?story_fbid=616508355186592&id=100004822981297
You have no idea of the happiness you brought into my life 😍 I❀️U Angelito πŸ˜‡
#DownSyndrome #DownSyndromeBoy #DownSyndromeBaby #DownSyndromeLove  #DownSyndromeMom #DownSyndromeAngel
#SindromeDeDown
#Ángelito
Their nightly ritual...rearranging Tupperware. Lol. At least they are working together. It’s cuteπŸ˜‰ #teamwork #girls πŸ‘§πŸ»πŸ‘ΆπŸ»
πŸ’™πŸ’™πŸ’›πŸ’›
#downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome  #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #promoteDSresearch #advocate #dontscreenusout #differentisbeautiful
Their nightly ritual...rearranging Tupperware. Lol. At least they are working together. It’s cuteπŸ˜‰ #teamwork  #girls  πŸ‘§πŸ»πŸ‘ΆπŸ» πŸ’™πŸ’™πŸ’›πŸ’› #downsyndromeangel  #savedownsyndrome  #dschildrendeservelife  #extracutechromosome  #theluckyfew  #t21  #downsyndrome  #downrightperfect  #trisomy21  #downsyndromeawareness  #bornthisway  #nothingdownaboutit  #upsyndrome  #specialneeds  #changingthefaceofbeauty  #promoteDSresearch  #advocate  #dontscreenusout  #differentisbeautiful 
Ready for Leslie's @leslie.hernandez124  presentation at her school, Down Syndrome theme. Proud of my girl. πŸ’™πŸ’›
#DownSyndrome #DownSyndromeBoy #DownSyndromeBaby #DownSyndromeLove  #DownSyndromeMom #DownSyndromeAngel
#SindromeDeDown
#Ángelito
" Out of suffering have emerged the strongest souls ; the most massive characters are seared with scars." - Khahil Gibran

Today is one year since Anastasia had her BIG surgery on her heart.

These photos are very personal to me and I haven't shared them out before, but here you see one year between pictures.

50% of babies born with Down Syndrome have abnormalities with their hearts. Most babies end up having heart surgery. Heart defects come in all types, from minor to major. Defects can occur inside the heart or in the large blood vessels outside the heart. She had heart defects on both sides, one was repaired at only 2 weeks old and the big one at 4 months old.

I know many parents around the world go through this process, and it is not easy. The hardest part is saying goodbye to your little one as they are wheeled off to surgery. Both surgeries I cried and worried about, but looking at her smile through this all, before and after took most of my worries away.

Adapting to these news and learning to care for the infant is superimposed on the normal transition to parenthood. The period of diagnosis, hospitalisation and early caregiving at home is extremely stressful.

Despite the challenges, we adapted sucessfully and look at her NOW! 
Because of Anastasia, we've met the most wonderful people, therapist, doctors and plenty more. Anastasia introduced us to a world we weren't too familiar with but now we are ≀3

We are forever thankful how everything went well and that she is healthy and strong now, because of her we've learned to be stronger together, more aware and most of all more grateful.
" Out of suffering have emerged the strongest souls ; the most massive characters are seared with scars." - Khahil Gibran Today is one year since Anastasia had her BIG surgery on her heart. These photos are very personal to me and I haven't shared them out before, but here you see one year between pictures. 50% of babies born with Down Syndrome have abnormalities with their hearts. Most babies end up having heart surgery. Heart defects come in all types, from minor to major. Defects can occur inside the heart or in the large blood vessels outside the heart. She had heart defects on both sides, one was repaired at only 2 weeks old and the big one at 4 months old. I know many parents around the world go through this process, and it is not easy. The hardest part is saying goodbye to your little one as they are wheeled off to surgery. Both surgeries I cried and worried about, but looking at her smile through this all, before and after took most of my worries away. Adapting to these news and learning to care for the infant is superimposed on the normal transition to parenthood. The period of diagnosis, hospitalisation and early caregiving at home is extremely stressful. Despite the challenges, we adapted sucessfully and look at her NOW! Because of Anastasia, we've met the most wonderful people, therapist, doctors and plenty more. Anastasia introduced us to a world we weren't too familiar with but now we are ≀3 We are forever thankful how everything went well and that she is healthy and strong now, because of her we've learned to be stronger together, more aware and most of all more grateful.
Skrg mikir deh lo....oww buru2 pulang mw party toh, g ada responsibilitynya at all πŸ˜„πŸ˜„πŸ˜„πŸ˜„πŸ˜„ yg duluan ngacir ninggalin gw siapa? when you dont care about me...I can do the same πŸ˜„πŸ˜„πŸ˜„πŸ˜„πŸ˜„πŸ˜„ #kidsparty #goingtoparty #stocklama #oldtrash #trisomy21 #downsyndromeangel #youdontcare #metoo
I love smiling for the camera πŸŽ₯ πŸ˜„
I love smiling for the camera πŸŽ₯ πŸ˜„
This picture wouldn't be the same if you took her out of it. It wouldn't be as bright and happy. It wouldn't make you smile as big or for as long. It wouldn't grab your attention as much or set this group apart from the others....
If one decision had been different. If one negative influence had been projected and believed. If the test had been taken and we gave into our doubts and ignorance..... This would be a very different picture. 
Thank God for Divine Intervention, inspiring stories and loving families all over the world that have made beautiful pictures like this. The magic of them is that they have amazing people in them just like her.
(We love you all. πŸ’‹) #theluckyfew #πŸ’›πŸ’™ #downsyndromeawarenessmonth #october  #specialneedssiblings πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™
#downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome  #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #promoteDSresearch #advocate #dontscreenusout #differentisbeautiful
This picture wouldn't be the same if you took her out of it. It wouldn't be as bright and happy. It wouldn't make you smile as big or for as long. It wouldn't grab your attention as much or set this group apart from the others.... If one decision had been different. If one negative influence had been projected and believed. If the test had been taken and we gave into our doubts and ignorance..... This would be a very different picture. Thank God for Divine Intervention, inspiring stories and loving families all over the world that have made beautiful pictures like this. The magic of them is that they have amazing people in them just like her. (We love you all. πŸ’‹) #theluckyfew  #πŸ’›πŸ’™ #downsyndromeawarenessmonth  #october  #specialneedssiblings  πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™ #downsyndromeangel  #savedownsyndrome  #dschildrendeservelife  #extracutechromosome  #theluckyfew  #t21  #downsyndrome  #downrightperfect  #trisomy21  #downsyndromeawareness  #bornthisway  #nothingdownaboutit  #upsyndrome  #specialneeds  #changingthefaceofbeauty  #promoteDSresearch  #advocate  #dontscreenusout  #differentisbeautiful 
My little princess πŸ’•πŸŒΈ
My little princess πŸ’•πŸŒΈ
We are proud to support Team Joann who are participating in the Step  Up For Down Syndrome Walk in victoria, they have been raising funds yearly for Down Syndrome Victoria, in honour of their beautiful Joann. If you would like to donate please do so on the link below, funds raised go to Down Syndrome Victoria. 
Thank you in advance. 
https://stepup-melbourne2017.everydayhero.com/au/Joann

#fundraising #everydayhero #downsyndrome #downsyndromelove #joann #downsyndromebeauty #downsyndromevictoria #stepup #stepupwalk #happy #charitywalk #raiseawareness #downsyndromeawarenessmonth #downsyndromeangel #downsyndromewalk #beautiful #connectiveinstinctsinspiredbycoco
We are proud to support Team Joann who are participating in the Step Up For Down Syndrome Walk in victoria, they have been raising funds yearly for Down Syndrome Victoria, in honour of their beautiful Joann. If you would like to donate please do so on the link below, funds raised go to Down Syndrome Victoria. Thank you in advance. https://stepup-melbourne2017.everydayhero.com/au/Joann #fundraising  #everydayhero  #downsyndrome  #downsyndromelove  #joann  #downsyndromebeauty  #downsyndromevictoria  #stepup  #stepupwalk  #happy  #charitywalk  #raiseawareness  #downsyndromeawarenessmonth  #downsyndromeangel  #downsyndromewalk  #beautiful  #connectiveinstinctsinspiredbycoco 
Seems like such a sad picture of our little angel to have Daddy #photobomb it in the background....πŸ˜³πŸ˜πŸ™„πŸ˜œbut it's actually not as bad as it looks. Atalia Lynix finally had her follow up #sleepstudy after having her surgery earlier this year. We are praying for great results this go around, but if not then we will just learn to deal with a #cpap for her if we have to. In the big scheme of things, these little extras are a very small price to pay for such a lucrative gift as her. #mygirlispriceless #wortheverything
πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™ #downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome  #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #promoteDSresearch #advocate #dontscreenusout #differentisbeautiful
Seems like such a sad picture of our little angel to have Daddy #photobomb  it in the background....πŸ˜³πŸ˜πŸ™„πŸ˜œbut it's actually not as bad as it looks. Atalia Lynix finally had her follow up #sleepstudy  after having her surgery earlier this year. We are praying for great results this go around, but if not then we will just learn to deal with a #cpap  for her if we have to. In the big scheme of things, these little extras are a very small price to pay for such a lucrative gift as her. #mygirlispriceless  #wortheverything  πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™ #downsyndromeangel  #savedownsyndrome  #dschildrendeservelife  #extracutechromosome  #theluckyfew  #t21  #downsyndrome  #downrightperfect  #trisomy21  #downsyndromeawareness  #bornthisway  #nothingdownaboutit  #upsyndrome  #specialneeds  #changingthefaceofbeauty  #promoteDSresearch  #advocate  #dontscreenusout  #differentisbeautiful 
My baby girl is growing up so fast 😫😍❀️
My baby girl is growing up so fast 😫😍❀️
October is down syndrome awareness month. Let's all remember that no mater how others see us we are all perfect! #downsyndrome  #downsyndromeawareness  #perfectlyimperfect  #Constantine  #riplittleman #downsyndromeangel #beautifulbaby
Love every inch of her
Love every inch of her
You know who's leading the pack on this girls day out, right!?!?! She's always a leader. Rarely a follower. πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™ #myangel #teachingherlittlesister #girlpower #girlsrule πŸ‘§πŸ»πŸ‘ΆπŸ»
πŸ’›πŸ’™
#downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome  #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #promoteDSresearch #advocate #dontscreenusout #differentisbeautiful
You know who's leading the pack on this girls day out, right!?!?! She's always a leader. Rarely a follower. πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™ #myangel  #teachingherlittlesister  #girlpower  #girlsrule  πŸ‘§πŸ»πŸ‘ΆπŸ» πŸ’›πŸ’™ #downsyndromeangel  #savedownsyndrome  #dschildrendeservelife  #extracutechromosome  #theluckyfew  #t21  #downsyndrome  #downrightperfect  #trisomy21  #downsyndromeawareness  #bornthisway  #nothingdownaboutit  #upsyndrome  #specialneeds  #changingthefaceofbeauty  #promoteDSresearch  #advocate  #dontscreenusout  #differentisbeautiful 
Messy hair, don't care πŸ€·β€β™€οΈ
Messy hair, don't care πŸ€·β€β™€οΈ
28 weeks old and the news could not get any better. Nick Jr. is self healing with a significant decrease in fluid build-up. πŸ‘πŸ½πŸ‘πŸ½
#xtra21 #downrightperfect #trisomy21 #parentsofangels #downsyndromeangel #savedownsyndrome #theluckyfew #blessed #nothingdownaboutit #downsyndromeawareness #bornthisway #upsyndrome #specialneeds #downsyndrome #changingthefaceofbeauty #morealikethandifferent #dontgiveup #nevergiveup
What you need to hear if you are pregnant or give birth to a beautiful child who has Down Syndrome: "You will be proud. Your child will dazzle you. One day, when you least expect it, you will feel your heart stretch. You will discover within yourself a kind of love you never knew you had." Congratulations! You are in for an incredible love and journey that is only given to #theluckyfew πŸ’‹πŸ’‹ πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™
#downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome  #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #promoteDSresearch #advocate #dontscreenusout #differentisbeautiful
What you need to hear if you are pregnant or give birth to a beautiful child who has Down Syndrome: "You will be proud. Your child will dazzle you. One day, when you least expect it, you will feel your heart stretch. You will discover within yourself a kind of love you never knew you had." Congratulations! You are in for an incredible love and journey that is only given to #theluckyfew  πŸ’‹πŸ’‹ πŸ’›πŸ’›πŸ‘§πŸ»πŸ’™πŸ’™ #downsyndromeangel  #savedownsyndrome  #dschildrendeservelife  #extracutechromosome  #theluckyfew  #t21  #downsyndrome  #downrightperfect  #trisomy21  #downsyndromeawareness  #bornthisway  #nothingdownaboutit  #upsyndrome  #specialneeds  #changingthefaceofbeauty  #promoteDSresearch  #advocate  #dontscreenusout  #differentisbeautiful 
Mi pillΓ­n greΓ±udito πŸ˜‡ acompaΓ±ando en la cosecha de chiles 🌢 πŸ˜ŠπŸ˜ƒπŸ™ŒπŸΌ
#DownSyndrome #DownSyndromeBoy #DownSyndromeBaby #DownSyndromeLove  #DownSyndromeMom #DownSyndromeAngel
#SindromeDeDown
#Ángelito
There is nothing better than ending the day with a good dose of laughter 😁☺️ My beautiful Angel πŸ˜‡πŸ˜ Love You 😘😘
#DownSyndrome #DownSyndromeBoy #DownSyndromeBaby #DownSyndromeLove  #DownSyndromeMom #DownSyndromeAngel
#SindromeDeDown
#Ángelito