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#Repost @spoonie.kate with @repostapp
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This week is invisible disabilities week! I share this photo to show that this is what an invisible illness looks like. People always think that even if someone has an invisible illness, you’ll still be able to tell if they’re sick. But invisible really means invisible. You don’t have to look weak or feeble or anything else to be sick. You can look perfectly healthy, happy, and vibrant and still be sick. There are a lot of people that tell me they can always tell when I’m having a good day versus a bad day, but most of them are wrong. What they’re really noticing is if I’m wearing makeup or not. I can’t tell you how many people have told me that I’m looking so great or “better” when I feel like I’m dying inside. This photo is what EDS and dislocating joints looks like. This is what POTS, chest pain, blood pooling, and an uncontrolled heart rate looks like. This is what chronic pain looks like. So think twice before you make assumptions on someone else’s capabilities or if their illness is real or not. Believe me, the outside doesn’t reflect the inside #invisibledisabilitiesweek @ehlers.danlos #invisibleillness #maketheinvisiblevisible #EDS #POTS #dysautonomia #chronicillness #chronicpain #painwarrior #chronicmigraine #GIproblems #raynauds #undiagnosed #spoonie #spoonielife
#Repost  @spoonie.kate with @repostapp ・・・ This week is invisible disabilities week! I share this photo to show that this is what an invisible illness looks like. People always think that even if someone has an invisible illness, you’ll still be able to tell if they’re sick. But invisible really means invisible. You don’t have to look weak or feeble or anything else to be sick. You can look perfectly healthy, happy, and vibrant and still be sick. There are a lot of people that tell me they can always tell when I’m having a good day versus a bad day, but most of them are wrong. What they’re really noticing is if I’m wearing makeup or not. I can’t tell you how many people have told me that I’m looking so great or “better” when I feel like I’m dying inside. This photo is what EDS and dislocating joints looks like. This is what POTS, chest pain, blood pooling, and an uncontrolled heart rate looks like. This is what chronic pain looks like. So think twice before you make assumptions on someone else’s capabilities or if their illness is real or not. Believe me, the outside doesn’t reflect the inside #invisibledisabilitiesweek  @ehlers.danlos #invisibleillness  #maketheinvisiblevisible  #EDS  #POTS  #dysautonomia  #chronicillness  #chronicpain  #painwarrior  #chronicmigraine  #GIproblems  #raynauds  #undiagnosed  #spoonie  #spoonielife 
Ehlers Danlos Syndrome is a charity close to our hearts. So grateful to everyone who has taken part donated to help raise awareness. #eds #ycsb #yorkshirecoastschoolofballet #filey #ayton #scarborough #ycsballet #ballet #invisiblevisible #edssociety #wackhairweek
#Repost @itsthelittlethingsblog with @repostapp
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@ehlers.danlos This week is Invisible Disabilities Week. 
We have a house full of #InvisibleDisabilitesWeek including all 3 girls having #eds . Diagnosis is incredibly hard to get and even harder to find a Dr who knows about it. I would say every time I meet a medical professional Im asked to spell it and then explain it. Miss L (6) is the most affected and for her it also affects her internal organs, swallowing and gut. She is regularly in hospital with breathing difficulties and chest infections from aspiration and reflux.
#Repost  @itsthelittlethingsblog with @repostapp ・・・ @ehlers.danlos This week is Invisible Disabilities Week. We have a house full of #InvisibleDisabilitesWeek  including all 3 girls having #eds  . Diagnosis is incredibly hard to get and even harder to find a Dr who knows about it. I would say every time I meet a medical professional Im asked to spell it and then explain it. Miss L (6) is the most affected and for her it also affects her internal organs, swallowing and gut. She is regularly in hospital with breathing difficulties and chest infections from aspiration and reflux.
Root cause. Those are two powerful words... In a perfect world more people would look at fixing the root cause of health issues. The body is amazing & can heal from so much, yet many choose to take prescriptions to cover up symptoms, rather than getting to the root source of the problem. To find the solution one must begin at the root... Try an elimination protocol: no artificial food, drinks, flavoring, chemicals. Positive change can be seen very quickly. As someone who has been through a lot in my own journey; I share because I genuinely care 🦋💕🦋
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#healthiswealth #healthyself #organic #nontoxic #rootcause #mypicture #healthcoach #advocate #isharebecauseicare #autoimmunedisease #awareness #eoe #arthritis #fibromyalgia #migraine #ctd #eds #rare #fitmom #fitwife #ukmoms #instahealth #universe #kindness #hearthealth #liveyoursuperlife
Root cause. Those are two powerful words... In a perfect world more people would look at fixing the root cause of health issues. The body is amazing & can heal from so much, yet many choose to take prescriptions to cover up symptoms, rather than getting to the root source of the problem. To find the solution one must begin at the root... Try an elimination protocol: no artificial food, drinks, flavoring, chemicals. Positive change can be seen very quickly. As someone who has been through a lot in my own journey; I share because I genuinely care 🦋💕🦋 . . . . #healthiswealth  #healthyself  #organic  #nontoxic  #rootcause  #mypicture  #healthcoach  #advocate  #isharebecauseicare  #autoimmunedisease  #awareness  #eoe  #arthritis  #fibromyalgia  #migraine  #ctd  #eds  #rare  #fitmom  #fitwife  #ukmoms  #instahealth  #universe  #kindness  #hearthealth  #liveyoursuperlife 
Dinner is gonna be eggplant pizza for 210 calories.
Dinner is gonna be eggplant pizza for 210 calories.
It's almost been 4 months of me being hooked up to these bags everyday. Saline didn't do any good but lactated ringers did. It helped so much at first but now it's not very noticeable. I have started a new medication to slow my heart rate down and I think that may be working better then these infusions or it's working because I'm hydrated with them🤷🏼‍♀️ idk we still have to figure some stuff out because I think my new meds are also making other symptoms worse. Oh who knows.. #eds #POTS #ehlersdanlossyndrome #dysautonomia #chronicillness #zebrastrong #infusion #piccline
It's almost been 4 months of me being hooked up to these bags everyday. Saline didn't do any good but lactated ringers did. It helped so much at first but now it's not very noticeable. I have started a new medication to slow my heart rate down and I think that may be working better then these infusions or it's working because I'm hydrated with them🤷🏼‍♀️ idk we still have to figure some stuff out because I think my new meds are also making other symptoms worse. Oh who knows.. #eds  #POTS  #ehlersdanlossyndrome  #dysautonomia  #chronicillness  #zebrastrong  #infusion  #piccline 
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌
Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA
➡ JONGÔ
➡ DJ JEAN DU PCB ➡ DJ VINNY
.
Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉
. 🎈 Condições especiais para aniversariantes.
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📲 Nomes na lista e mais informações: (27) 99741-3639

#VemCurtirComEstilo #EDS #TemploBeachClub @grupoestilodosamba @carol_andreao
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌ Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA ➡ JONGÔ ➡ DJ JEAN DU PCB ➡ DJ VINNY . Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉 . 🎈 Condições especiais para aniversariantes. . 📲 Nomes na lista e mais informações: (27) 99741-3639 #VemCurtirComEstilo  #EDS  #TemploBeachClub  @grupoestilodosamba @carol_andreao
When your #homemade #soap order comes in from @moriversoap and you HAVE to #sharethelove 💜
I couldn't be happier with this combo #awareness design and all the goodies🤗
#Occipitalneuralgia #ehlersdanlossyndrome #EDS #zebra #bluezebra #raredisease #chronicillness
My lazy Halloween costume is #EDS or #zebra. It's a Hoodie blanket, and I'll just do my make up similar to this. #halloweencostume #lazycostume
Hi, I'm Hannah-Grace and I'm 15! I've been sick for 2 and a half years. It all started in December of 2014 when my family was going on a vacation. I remember walking out to the car to put my luggage in and I wasn't feeling well- I could feel myself getting sick. I thought it was just a regular cold and that I would get better soon, so I didn't tell my parents right away because I wanted to go on vacation! We went on vacation and life went on. After a month, I was still sick and we didn't know why. I was tired all the time, my throat was always hurting, things like that. We went to the doctor and found out that I had mononucleosis, which is a disease that spreads through saliva- kissing or drinking from a water fountain. I've never kissed anyone😂, so we knew it had been from me drinking from the water fountains at school. There was no treatment for mono, so I just had to wait it out until it went away. But the symptoms never went away. We kept going to doctors and found out that I was healed of mono. But we did blood work and found that I was allergic to so many foods! Dairy, gluten, corn syrup(which is in like every processed candy and sodas), strawberries, and way more that I don't remember. It was very surprising! But we tried this diet and it didn't make me feel better, I was still fatigued and my throat was hurting all the time! Since then, we've moved and gotten a new doctor but it's still a mystery what I have. I have the symptoms of chronic fatigue syndrome, so I think that's what I have. But we can't treat anything because I'm undiagnosed, so I go throughout my normal life and I pray that God will heal me and use this situation for good! And so far, He totally has!! God has taught me how to totally trust in him through the sickness and fatigue and that my worth is found in Him, not in anything that happens to me or my circumstances!
Hi, I'm Hannah-Grace and I'm 15! I've been sick for 2 and a half years. It all started in December of 2014 when my family was going on a vacation. I remember walking out to the car to put my luggage in and I wasn't feeling well- I could feel myself getting sick. I thought it was just a regular cold and that I would get better soon, so I didn't tell my parents right away because I wanted to go on vacation! We went on vacation and life went on. After a month, I was still sick and we didn't know why. I was tired all the time, my throat was always hurting, things like that. We went to the doctor and found out that I had mononucleosis, which is a disease that spreads through saliva- kissing or drinking from a water fountain. I've never kissed anyone😂, so we knew it had been from me drinking from the water fountains at school. There was no treatment for mono, so I just had to wait it out until it went away. But the symptoms never went away. We kept going to doctors and found out that I was healed of mono. But we did blood work and found that I was allergic to so many foods! Dairy, gluten, corn syrup(which is in like every processed candy and sodas), strawberries, and way more that I don't remember. It was very surprising! But we tried this diet and it didn't make me feel better, I was still fatigued and my throat was hurting all the time! Since then, we've moved and gotten a new doctor but it's still a mystery what I have. I have the symptoms of chronic fatigue syndrome, so I think that's what I have. But we can't treat anything because I'm undiagnosed, so I go throughout my normal life and I pray that God will heal me and use this situation for good! And so far, He totally has!! God has taught me how to totally trust in him through the sickness and fatigue and that my worth is found in Him, not in anything that happens to me or my circumstances!
Zakończyliśmy zmagania na Ursynowskim Turnieju Tańca Sportowego! 💪🏻🏆 Gratulujemy wszystkim naszym solistom i życzymy powodzenia na kolejnych turniejach! ❤️ #egurrola #egurroladancestudio #egurrola #eds #kids #discodance #dancers #winners #proud #champions #hiphop #edsteam #amazing
Windy weekends 🌪
Windy weekends 🌪
All well wishes appreciated. My fusion broke at C5/C6 which made my titanium rod break, which made other areas of the hardware break. This also means I am in a halo brace for a second time!! I was told I have "Dangerlously life threatening instability". I went to the ER this past Monday, halo application Tuesday and surgery today!! #ehlersdanlossyndrome #eds #edsawareness #brokenneck #surgery #fusion #neurosurgery #hardware #xray #xrays #neck #invisibleillness #chronicillness #chronicpain #inspire #motivate #hope #wellwishes #getwellsoon #halo #halobrace
All well wishes appreciated. My fusion broke at C5/C6 which made my titanium rod break, which made other areas of the hardware break. This also means I am in a halo brace for a second time!! I was told I have "Dangerlously life threatening instability". I went to the ER this past Monday, halo application Tuesday and surgery today!! #ehlersdanlossyndrome  #eds  #edsawareness  #brokenneck  #surgery  #fusion  #neurosurgery  #hardware  #xray  #xrays  #neck  #invisibleillness  #chronicillness  #chronicpain  #inspire  #motivate  #hope  #wellwishes  #getwellsoon  #halo  #halobrace 
I'm pink, and I'm tired.

So. Many. Appointments.

I need to tap out, I've been over doing it be I know it, yesterday physio Assessment was just the thing that tipped me over. 
I am so completely and utterly drained right now, I had a seizure in my sleep this morning. Apparently I was so zonked I didn't wake up after four hours, and usually after a seizure I try to walk places, so people have to sit on me.

#tired #exhausted #ehlersdanlossyndrome #fibromyalgia #gerd #pain #cfs #spoonie #sensoryprocessingdisorder #depression #anxiety #eds #hypermobility #hemiplegicMigraines #NEAD #anxiety #gerd #mcas #ibd #migraines
I'm pink, and I'm tired. So. Many. Appointments. I need to tap out, I've been over doing it be I know it, yesterday physio Assessment was just the thing that tipped me over. I am so completely and utterly drained right now, I had a seizure in my sleep this morning. Apparently I was so zonked I didn't wake up after four hours, and usually after a seizure I try to walk places, so people have to sit on me. #tired  #exhausted  #ehlersdanlossyndrome  #fibromyalgia  #gerd  #pain  #cfs  #spoonie  #sensoryprocessingdisorder  #depression  #anxiety  #eds  #hypermobility  #hemiplegicMigraines  #NEAD  #anxiety  #gerd  #mcas  #ibd  #migraines 
Vitamin SEA 🌊 Managed a morning stretch & a windy walk with the beautiful blue sky 💙 Very low energy day, rough nights sleep & joint pain so feel good with what I achieved today! Learning to listen to my body ✨
Vitamin SEA 🌊 Managed a morning stretch & a windy walk with the beautiful blue sky 💙 Very low energy day, rough nights sleep & joint pain so feel good with what I achieved today! Learning to listen to my body ✨
I cannot emphasis this enough! Mast cell mediators can cause an unbelievable list of symptoms.

#mastcelldisease #MCAS #POTS #EDS #chronicillness
Awkward bodycheck at the stable. Why do I have to be so fat? Oh right, because I can’t control myself.
Awkward bodycheck at the stable. Why do I have to be so fat? Oh right, because I can’t control myself.
Tag the person who is that for you 😍💪❤ I'll go first... But actually I can't decide for one person! All of you are that for me 😊❤
Tag the person who is that for you 😍💪❤ I'll go first... But actually I can't decide for one person! All of you are that for me 😊❤
If you think we would get along or some shit hmu in dm maybe we can be friends. im so lonely.

#depressionmemes #depression #f4f #anxiety #anxietymemes #nichememe #nichestarterpack #nichememes #starterpacks #starterpack #meme #memes #dank #dankmemes #edgymemes #edgy #emo #love #lovememes #bulimia #eds #emo #dodieclark #doddleoddle #phan #rawrxd
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌
Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA
➡ JONGÔ
➡ DJ JEAN DU PCB ➡ DJ VINNY
.
Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉
. 🎈 Condições especiais para aniversariantes.
.
📲 Nomes na lista e mais informações: (27) 99741-3639

#VemCurtirComEstilo #EDS #TemploBeachClub @grupoestilodosamba @carol_andreao
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌ Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA ➡ JONGÔ ➡ DJ JEAN DU PCB ➡ DJ VINNY . Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉 . 🎈 Condições especiais para aniversariantes. . 📲 Nomes na lista e mais informações: (27) 99741-3639 #VemCurtirComEstilo  #EDS  #TemploBeachClub  @grupoestilodosamba @carol_andreao
Huge thanks if you came and chatted at Jesmond Food Market today! If you are still craving some gluten free, vegan, nut free bready goodness; head to @huntandgathernewcastle on the Quayside Market tommorow. Cat will be there from 10 with her healthy build a box meals, this time with a little #cannybread on the side. #breadysteadygo #sourdough #quinoa #quinoabread #ancientgrain #glutenfreebakery #artisanbread #marketday #firsttimer #thankseveryone #chef #developer #freefrom #vegan #speciality #heaton #newcastle #fitfam #igers #students #takehome #realbread #probiotics #prebiotic #happygut #spoonie #eds #teacher #cooking
Huge thanks if you came and chatted at Jesmond Food Market today! If you are still craving some gluten free, vegan, nut free bready goodness; head to @huntandgathernewcastle on the Quayside Market tommorow. Cat will be there from 10 with her healthy build a box meals, this time with a little #cannybread  on the side. #breadysteadygo  #sourdough  #quinoa  #quinoabread  #ancientgrain  #glutenfreebakery  #artisanbread  #marketday  #firsttimer  #thankseveryone  #chef  #developer  #freefrom  #vegan  #speciality  #heaton  #newcastle  #fitfam  #igers  #students  #takehome  #realbread  #probiotics  #prebiotic  #happygut  #spoonie  #eds  #teacher  #cooking 
This is so true! When you have an invisible illness, you might loose some friends for all sorts of reasons... When you are lucky, your true best friends stay and they are there to stay forever because they love you, no matter what's going on with your health! 
When you have a bad day, it's nice to have their support but when you have a good day, it's way better to have some fun together and to create positive memories! Did you know that those memories help us a lot when we are having a bad time? 
Cherish your true friends because friendship is so important in life! ❤ 
#Ehlers-Danlos #eds #spoonies #spooniequote #quote #quoteoftheday #quotes #invisible #chronic #illness #disease #invisibleillness #chronicillness #ihatebeingsick #friends #friend #love #friendship #cherish
This is so true! When you have an invisible illness, you might loose some friends for all sorts of reasons... When you are lucky, your true best friends stay and they are there to stay forever because they love you, no matter what's going on with your health! When you have a bad day, it's nice to have their support but when you have a good day, it's way better to have some fun together and to create positive memories! Did you know that those memories help us a lot when we are having a bad time? Cherish your true friends because friendship is so important in life! ❤ #Ehlers -Danlos #eds  #spoonies  #spooniequote  #quote  #quoteoftheday  #quotes  #invisible  #chronic  #illness  #disease  #invisibleillness  #chronicillness  #ihatebeingsick  #friends  #friend  #love  #friendship  #cherish 
Last night I was given yet another medical wristband to add to this ever-growing collection (yes, I do collect them 😂) of bands I have accumulated over the years from ER trips, hospital stays, and certain procedures. So, early last night I noticed that that the gauze above my port site was saturated in blood. I contacted the radiologist on call who said that I should change the dressing, but to have it checked out at the ER if the bleeding continued. Before I was discharged yesterday morning, the nurse told me to only do a dressing change if absolutely necessary (like if the Tegaderm was peeling off), so I felt quite uncomfortable changing the dressing so soon. Sure enough, before trying to change it, there was more blood, so off to the ER we went! 🏥 After all, I do have a foreign object embedded in my chest, so it was best to get it checked out. Fortunately, it turned out that the amount of blood wasn’t too abnormal for the first day of having a port, and I may have just somehow aggravated the area by moving my arm/shoulder too much. The doctor told me that it’s only really concerning if the gauze suddenly becomes soaked with blood within a matter of minutes.
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Also, by the time I got to the ER, the lidocaine used during the procedure had completely worn off, so I was in quite a bit of pain. As I mentioned yesterday (I really spoke too soon!), I wasn’t in any pain when I got home, so I figured that Tylenol and ice would be sufficient enough for pain control. Fortunately I was given a stronger pain med in the ER and to take at home, which has really helped. It feels more like an annoying pulling sensation now, which I can tolerate. Here’s hoping that today won’t end in another ER trip! 🤞🏼🙏🏼
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#port #powerport #portacath #ostomate #ileostomy #ostomy #stoma #girlswithguts #ostomyawareness #chronicillness #invisibleillness #spoonie #chronicallymotivated #eds #ehlersdanlossyndrome #zebrastrong #dysautonomia #orthostatichypotension #mastcellactivationsyndrome #endometriosis #endowarrior #klippelfeilsyndrom
Last night I was given yet another medical wristband to add to this ever-growing collection (yes, I do collect them 😂) of bands I have accumulated over the years from ER trips, hospital stays, and certain procedures. So, early last night I noticed that that the gauze above my port site was saturated in blood. I contacted the radiologist on call who said that I should change the dressing, but to have it checked out at the ER if the bleeding continued. Before I was discharged yesterday morning, the nurse told me to only do a dressing change if absolutely necessary (like if the Tegaderm was peeling off), so I felt quite uncomfortable changing the dressing so soon. Sure enough, before trying to change it, there was more blood, so off to the ER we went! 🏥 After all, I do have a foreign object embedded in my chest, so it was best to get it checked out. Fortunately, it turned out that the amount of blood wasn’t too abnormal for the first day of having a port, and I may have just somehow aggravated the area by moving my arm/shoulder too much. The doctor told me that it’s only really concerning if the gauze suddenly becomes soaked with blood within a matter of minutes. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Also, by the time I got to the ER, the lidocaine used during the procedure had completely worn off, so I was in quite a bit of pain. As I mentioned yesterday (I really spoke too soon!), I wasn’t in any pain when I got home, so I figured that Tylenol and ice would be sufficient enough for pain control. Fortunately I was given a stronger pain med in the ER and to take at home, which has really helped. It feels more like an annoying pulling sensation now, which I can tolerate. Here’s hoping that today won’t end in another ER trip! 🤞🏼🙏🏼 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #port  #powerport  #portacath  #ostomate  #ileostomy  #ostomy  #stoma  #girlswithguts  #ostomyawareness  #chronicillness  #invisibleillness  #spoonie  #chronicallymotivated  #eds  #ehlersdanlossyndrome  #zebrastrong  #dysautonomia  #orthostatichypotension  #mastcellactivationsyndrome  #endometriosis  #endowarrior  #klippelfeilsyndrom 
Ćwiczymy równowagę potrzebną w tańcu 😁❤💘💪Roztańczone Urodzinki😁😄😍a za tydzień  Bal Halloween 😻😻😻##EDS #egurrola #danceproject #family #eds #event #flashmob #krakow #city #fun #dancers #wawelcastle #instruktor #show #kids #balet #jazz #taniec #kids
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 
Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: 
ESTILO DO SAMBA
JONGÔ
DJ JEAN DU PCB 
DJ VINNY
.
Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! . 
Condições especiais para aniversariantes.
.
Nomes na lista e mais informações: (27) 99741-3639

#VemCurtirComEstilo #EDS #TemploBeachClub @grupoestilodosamba @carol_andreao
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ESTILO DO SAMBA JONGÔ DJ JEAN DU PCB DJ VINNY . Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! . Condições especiais para aniversariantes. . Nomes na lista e mais informações: (27) 99741-3639 #VemCurtirComEstilo  #EDS  #TemploBeachClub  @grupoestilodosamba @carol_andreao
厭倦😩直髮了嗎?
那就來點 大波浪🌊
增加點浪漫 知性的氣息❤️ #享受設計的微笑
#EDS特調 
歡迎提前3-7天預約
預約電話:0968949898
設計師:2號設計師 澄皓
lineID: eds32 
時間11:00~20:00
地址:台中市太平區新興路32號

#EDS  #享受設計的微笑

https://m.facebook.com/EnjoyDesignSmile32/
厭倦😩直髮了嗎? 那就來點 大波浪🌊 增加點浪漫 知性的氣息❤️ #享受設計的微笑  #EDS特調  歡迎提前3-7天預約 預約電話:0968949898 設計師:2號設計師 澄皓 lineID: eds32 時間11:00~20:00 地址:台中市太平區新興路32號 #EDS  #享受設計的微笑  https://m.facebook.com/EnjoyDesignSmile32/
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌
Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA
➡ JONGÔ
➡ DJ JEAN DU PCB ➡ DJ VINNY
.
Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉
. 🎈 Condições especiais para aniversariantes.
.
📲 Nomes na lista e mais informações: (27) 99741-3639

#VemCurtirComEstilo #EDS #TemploBeachClub @grupoestilodosamba @carol_andreao
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌ Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA ➡ JONGÔ ➡ DJ JEAN DU PCB ➡ DJ VINNY . Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉 . 🎈 Condições especiais para aniversariantes. . 📲 Nomes na lista e mais informações: (27) 99741-3639 #VemCurtirComEstilo  #EDS  #TemploBeachClub  @grupoestilodosamba @carol_andreao
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌
Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA
➡ JONGÔ
➡ DJ JEAN DU PCB ➡ DJ VINNY
.
Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉
. 🎈 Condições especiais para aniversariantes.
.
📲 Nomes na lista e mais informações: (27) 99741-3639

#VemCurtirComEstilo #EDS #TemploBeachClub @grupoestilodosamba @carol_andreao
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌ Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA ➡ JONGÔ ➡ DJ JEAN DU PCB ➡ DJ VINNY . Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉 . 🎈 Condições especiais para aniversariantes. . 📲 Nomes na lista e mais informações: (27) 99741-3639 #VemCurtirComEstilo  #EDS  #TemploBeachClub  @grupoestilodosamba @carol_andreao
#inktober2017 , a 'furious' cockatiel, lol, that's my Lucy 😂
#inktober2017  , a 'furious' cockatiel, lol, that's my Lucy 😂
Nabieramy wprawę w zabawie w bilarda❤💪👏💗 😁Udało się 😙😚😍#EDS #egurrola #danceproject #family #eds #event #flashmob #krakow #city #fun #dancers #wawelcastle #instruktor #show #kids #balet #jazz #taniec #kids #balet #jazz
Did you know? 
A patient with inappropriate sinus tachycardia may have a heart rate higher than  is “physiologically necessary,” or in other words, higher than it needs to be in order to get blood and oxygen around their body.
#DysautonomiaFacts #TeamDAF *"Inappropriate sinus tachycardia: current therapeutic options" Cardiology in Review
https://www.ncbi.nlm.nih.gov/pubmed/22143280 
#dysautonomia #dysautonomiaawareness #ehlersdanlossyndrome #mito #chronicillness #teamdaf #invisableillness #mastcell #mastcelldisease #gastroparesis  #sickofbeingsick  #sick #ehlersdanlos #potsie #potsies #potsy #pots #eds #tachycardia #lowbloodpressure #mitochondrialdisease #autonomicdysfunction #salty
Did you know? A patient with inappropriate sinus tachycardia may have a heart rate higher than is “physiologically necessary,” or in other words, higher than it needs to be in order to get blood and oxygen around their body. #DysautonomiaFacts  #TeamDAF  *"Inappropriate sinus tachycardia: current therapeutic options" Cardiology in Review https://www.ncbi.nlm.nih.gov/pubmed/22143280 #dysautonomia  #dysautonomiaawareness  #ehlersdanlossyndrome  #mito  #chronicillness  #teamdaf  #invisableillness  #mastcell  #mastcelldisease  #gastroparesis  #sickofbeingsick  #sick  #ehlersdanlos  #potsie  #potsies  #potsy  #pots  #eds  #tachycardia  #lowbloodpressure  #mitochondrialdisease  #autonomicdysfunction  #salty 
Roztańczone Urodziny❤💪💪❤💘Zaczęliśmy zabawę 😁😁😁#sun #egurrola #danceproject #family #eds #event #flashmob #krakow #city #fun #dancers #wawelcastle #instruktor #show #kids #balet #jazz #taniec
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌
Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA
➡ JONGÔ
➡ DJ JEAN DU PCB ➡ DJ VINNY
.
Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉
. 🎈 Condições especiais para aniversariantes.
.
📲 Nomes na lista e mais informações: (27) 99741-3639

#VemCurtirComEstilo #EDS #TemploBeachClub @grupoestilodosamba @carol_andreao
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌ Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA ➡ JONGÔ ➡ DJ JEAN DU PCB ➡ DJ VINNY . Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉 . 🎈 Condições especiais para aniversariantes. . 📲 Nomes na lista e mais informações: (27) 99741-3639 #VemCurtirComEstilo  #EDS  #TemploBeachClub  @grupoestilodosamba @carol_andreao
My First Fingersplints from my therapist...My arms, fingers & legs are so painfull. Fingers, wirst, elbows & knees dislocated/subluxated all the time...without splints I can life.... @ehlersdanlosuk
@ehlers.danlos.syndrome
@watercolor_me_impressed

#heds #edsawareness #eds #awarness #invisibleillness #ehlersdanlos #chronicillness #chronicpain #ehlersdanlossyndrome #splints #spoonie #spoonielife #POTS #zebrastrong #dontjudge #invisibledisability #invisibledisabilitiesweek #gastroparesis #dontjudgeaperson #alwaysfighting #hypermobility #mylife #mastcell #chronicfatigue #silversplints
My First Fingersplints from my therapist...My arms, fingers & legs are so painfull. Fingers, wirst, elbows & knees dislocated/subluxated all the time...without splints I can life.... @ehlersdanlosuk @ehlers.danlos.syndrome @watercolor_me_impressed #heds  #edsawareness  #eds  #awarness  #invisibleillness  #ehlersdanlos  #chronicillness  #chronicpain  #ehlersdanlossyndrome  #splints  #spoonie  #spoonielife  #POTS  #zebrastrong  #dontjudge  #invisibledisability  #invisibledisabilitiesweek  #gastroparesis  #dontjudgeaperson  #alwaysfighting  #hypermobility  #mylife  #mastcell  #chronicfatigue  #silversplints 
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌
Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA
➡ JONGÔ
➡ DJ JEAN DU PCB ➡ DJ VINNY
.
Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉
. 🎈 Condições especiais para aniversariantes.
.
📲 Nomes na lista e mais informações: (27) 99741-3639

#VemCurtirComEstilo #EDS #TemploBeachClub @grupoestilodosamba @carol_andreao
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌ Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA ➡ JONGÔ ➡ DJ JEAN DU PCB ➡ DJ VINNY . Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉 . 🎈 Condições especiais para aniversariantes. . 📲 Nomes na lista e mais informações: (27) 99741-3639 #VemCurtirComEstilo  #EDS  #TemploBeachClub  @grupoestilodosamba @carol_andreao
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌
Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA
➡ JONGÔ
➡ DJ JEAN DU PCB ➡ DJ VINNY
.
Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉
. 🎈 Condições especiais para aniversariantes.
.
📲 Nomes na lista e mais informações: (27) 99513-8357

#VemCurtirComEstilo #EDS #TemploBeachClub @grupoestilodosamba @carol_andreao
Chegou o dia do melhor pagode de Vila Velha e você tá pensando ainda se vai? ASSIM NÃO DÁ! 😱⚠❌ Os convidados dessa semana já estão confirmadíssimos e aqui vai nosso time de peso: ➡ ESTILO DO SAMBA ➡ JONGÔ ➡ DJ JEAN DU PCB ➡ DJ VINNY . Agora imagina tudo isso junto às nossas melhores promoções de bebidas! Imaginou? Então convoca geral e brota! 📢💥🎉 . 🎈 Condições especiais para aniversariantes. . 📲 Nomes na lista e mais informações: (27) 99513-8357 #VemCurtirComEstilo  #EDS  #TemploBeachClub  @grupoestilodosamba @carol_andreao
@ehlersdanlosuk Just got back from 30km trek, to raise awareness for Ehlers-Danlos Syndrome. 
Go to Ehlers-danlos.org for more information.

#EDS
#EhlersDanlosSyndrome
#EDSAwareness
 https://www.ehlers-danlos.org/
@ehlersdanlosuk Just got back from 30km trek, to raise awareness for Ehlers-Danlos Syndrome. Go to Ehlers-danlos.org for more information. #EDS  #EhlersDanlosSyndrome  #EDSAwareness  https://www.ehlers-danlos.org/
Last day of Invisible Disabilities Week...but not the last day of Invisible Illnesses
#invisibledisabilitiesweek #invisiblenomore #invisibledisabilitiesassociation #invisibleillnessawareness #invisibleillness #invisibleillnesssupport #EDS #POTS #MCTD #CRPS #RSD #FIBRO #FND
Come on Hayley... Sending you guys positive juju this Saturday morning. I'm going to try to paint, empty the dishwasher and unpack my suitcase. Exhausted but it was a great week vacation with my babe.
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#chronicdehydration#ivfluids#chronicpain#ednos#gpwarrior#gp#gastroparesis#chronicnausea#chronicpain#edsoldier#anorexia#anorexiarecovery#recovery#anxiety#ptsd#bipolardisorder#bipolartypetwo#bpd#eds#eds3#ehlersdanlos#pots#invisibleillness#chronicillness#painmanagement#qualityoflife#depression
Come on Hayley... Sending you guys positive juju this Saturday morning. I'm going to try to paint, empty the dishwasher and unpack my suitcase. Exhausted but it was a great week vacation with my babe. _______________________________________________________ #chronicdehydration #ivfluids #chronicpain #ednos #gpwarrior #gp #gastroparesis #chronicnausea #chronicpain #edsoldier #anorexia #anorexiarecovery #recovery #anxiety #ptsd #bipolardisorder #bipolartypetwo #bpd #eds #eds3 #ehlersdanlos #pots #invisibleillness #chronicillness #painmanagement #qualityoflife #depression 
It's a long road but I'll trundle to the end eventually 💙 Yesterday I went into town (yay!) And told a girl with a bright yellow rain style coat that I liked her coat and she said she had been eyeing up my bunny hat. Strange to think we might never meet again. I hope we do 💛 #cutestory #mademesmile ~
~
~
#spoonie #chronicillness #invisibleillness #sickchick #mecfs #meawareness #eds #hypermobility #chronicpain #yellow #parallel #moody #photooftheday #sky #clouds #redbrick #streetphotography #perspective #spoonieblog #autumnal #autumn
It's a long road but I'll trundle to the end eventually 💙 Yesterday I went into town (yay!) And told a girl with a bright yellow rain style coat that I liked her coat and she said she had been eyeing up my bunny hat. Strange to think we might never meet again. I hope we do 💛 #cutestory  #mademesmile  ~ ~ ~ #spoonie  #chronicillness  #invisibleillness  #sickchick  #mecfs  #meawareness  #eds  #hypermobility  #chronicpain  #yellow  #parallel  #moody  #photooftheday  #sky  #clouds  #redbrick  #streetphotography  #perspective  #spoonieblog  #autumnal  #autumn 
Burda banyodan sonra anne koynunda sızan bir kuzu varmış 💕😄 allahım isteyen herkese bu duyguyu yaşatsın 🙏🙏🙏🙏 biz gunden güne büyüyoruz ama emme artı mama devam ediyoruz benim suanki tek uğraşım kızımı sadece anne sütü ile beslemek saatler süren emislerimiz var sonrasında ortalık kaldıran çığlıklarla birlikte 😊 şimdi eds sistemini (emzirmedesteksistemi) keşfettim onu deniycem detayları tecrübeme göre aktaricam inş yeni annelere de ise yarar buara emme konusu üstünde olduğum için sık sık paylaşıcam bildiğimi hatta toplumca ustaca bildiğimizi sandığımız okadar yanlış varki geç olmadan düzeltmeye çalışıyorum yeni anne olacaklar facebook kullanıyorsanız orda emzirme sanatı grubuna üye olun lütfen ve aklınıza ne geliyorsa emme ile ilgili danışın ben çok faydasını gördüm 🙏🙏 #emme #meme #eds #emzirmedestegi #emzirmeebeleri #annesutu #cansuyu #emzirme #kolastrum #yenidogan #erkendogum #instamom #insta #transfer #tuptenanne #acemianne #tupbebek #annekokusu #misskokum #pembe #pembekizim
Burda banyodan sonra anne koynunda sızan bir kuzu varmış 💕😄 allahım isteyen herkese bu duyguyu yaşatsın 🙏🙏🙏🙏 biz gunden güne büyüyoruz ama emme artı mama devam ediyoruz benim suanki tek uğraşım kızımı sadece anne sütü ile beslemek saatler süren emislerimiz var sonrasında ortalık kaldıran çığlıklarla birlikte 😊 şimdi eds sistemini (emzirmedesteksistemi) keşfettim onu deniycem detayları tecrübeme göre aktaricam inş yeni annelere de ise yarar buara emme konusu üstünde olduğum için sık sık paylaşıcam bildiğimi hatta toplumca ustaca bildiğimizi sandığımız okadar yanlış varki geç olmadan düzeltmeye çalışıyorum yeni anne olacaklar facebook kullanıyorsanız orda emzirme sanatı grubuna üye olun lütfen ve aklınıza ne geliyorsa emme ile ilgili danışın ben çok faydasını gördüm 🙏🙏 #emme  #meme  #eds  #emzirmedestegi  #emzirmeebeleri  #annesutu  #cansuyu  #emzirme  #kolastrum  #yenidogan  #erkendogum  #instamom  #insta  #transfer  #tuptenanne  #acemianne  #tupbebek  #annekokusu  #misskokum  #pembe  #pembekizim 
Bounce with Bestloff
•
Yes... my disabled ass went to Bounce and survived😂
•
#uni #unilife #bounce #eds
Bounce with Bestloff • Yes... my disabled ass went to Bounce and survived😂 • #uni  #unilife  #bounce  #eds 
Feeling low and without motivation. This workout is done on stubbornness and discipline #fightingspirit #fitness #eds
✨💗✨💗✨ You Deserve #Miracles ✨💗✨ yesterday’s vibe 81 of #raiseyourvibration 🌟🌟🌟🌟🌟🌟🌟 🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟 #chronicpain #chronicillness #spoonie #ibs #eds #asthma  #fibromyalgia  #disabled #hypermobility #london #ehlersdanlossyndrome #chronicfatigue #pots #angeltribe
Nasze petardy z zespołów disco dance opanowały kolejne finały! Brawo!!! ❤️🔥 Wszystkie wyniki znajdziecie na naszym Facebooku ❗️ #egurroladancekids #egurroladancestudio #egurrola #eds #kids #discodance #dancers #winners #proud #champions
Had some extra time yesterday morning for shoulder mobility. Here's my before and after, slide for the video of my routine.
🙂
What do you do for your shoulder health? Post in the comments.
💪
💓
😎
#yogatober #rocktober #committosomething #mobility #stability #yoga #yogastrong
#fitness #fitspiration #fitspo #fitnessisajourney #shouldermobility #spoonielife #spoonie #eds #edshypermobility #progressnotperfection
When all you seem to do is talk about your chronic pain especially my migraines because they consume you in every way! I hate talking about it but if I don’t vent I’ll go insane!! So much pain and zero relief! 💜
When all you seem to do is talk about your chronic pain especially my migraines because they consume you in every way! I hate talking about it but if I don’t vent I’ll go insane!! So much pain and zero relief! 💜
Morning all (well afternoon but I got up at 11, lol). New roses in the garden ☺🌹 it's cold and windy and I still feel awful but the sun's out, my boys are playing nicely and even though I woke up lots of times to turn over cos my arms were so sore I still managed to get a decent amount of sleep. So definitely could be worse 😊 Happy Saturday ladies and gents 😘

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#rose #roses #rosebush #pinkrose #pinkroses #flowers #garden #southdowns #greenery #countryside #countrysideliving #spoonie #chronicillness #chronicallyill #chronicfatigue #painsomnia #ME #CFS #EDS #hEDS #EDSTYPEIII #hypermobility #ehlersdanlossyndrome #zebra #zebraspoonie #myalgicencephalomyilitis  #chronicfatiguesyndrome
Morning all (well afternoon but I got up at 11, lol). New roses in the garden ☺🌹 it's cold and windy and I still feel awful but the sun's out, my boys are playing nicely and even though I woke up lots of times to turn over cos my arms were so sore I still managed to get a decent amount of sleep. So definitely could be worse 😊 Happy Saturday ladies and gents 😘 _________________________________________ #rose  #roses  #rosebush  #pinkrose  #pinkroses  #flowers  #garden  #southdowns  #greenery  #countryside  #countrysideliving  #spoonie  #chronicillness  #chronicallyill  #chronicfatigue  #painsomnia  #ME  #CFS  #EDS  #hEDS  #EDSTYPEIII  #hypermobility  #ehlersdanlossyndrome  #zebra  #zebraspoonie  #myalgicencephalomyilitis  #chronicfatiguesyndrome 
🔥🔥"Хочу точно такие же ресницы, как у моей подруги"🔥🔥
Ну что, лэшмейкеры, знакома эта фраза?😂👍
Если да, ставьте лайк❤❤
Милые девушки, запомните, что мастеру совсем несложно сделать ресницы точно такие же "как у Вашей подруги" или точно такие же "как на том фото"🙃
Главное- подойдут ли Вам точно такие же ресницы😇
Потому что при наращивании ресниц, мастер учитывает 
разные критерии:
🌟Густота ресниц (Если у девушки густые ресницы, то даже классический объем может смотреться, как 3D)
🌟Цвет (Если Ваша подруга блондинка нарастила коричневые реснички, это не значит, что коричневые реснички будут смотреться так же и на Вас, брюнетке)
🌟Длина ресниц (Если у Вашей подруги очень короткие ресницы, а у Вас- длинные, то соответственно ее длина для Ваших ресничек не подойдет, это будет смотреться нелепо)

Поэтому к каждой девушке должен быть индивидуальный подход!❤😍🔥
❤ставим лайк( Вам не сложно, а нам- приятно) 🏘Студия: Кузнецкий мост 19стр2 (5 минут от метро) 🕑Работаем каждый день с 10:00 до 20:00 ☎8(999)839-01-77
🔥🔥"Хочу точно такие же ресницы, как у моей подруги"🔥🔥 Ну что, лэшмейкеры, знакома эта фраза?😂👍 Если да, ставьте лайк❤❤ Милые девушки, запомните, что мастеру совсем несложно сделать ресницы точно такие же "как у Вашей подруги" или точно такие же "как на том фото"🙃 Главное- подойдут ли Вам точно такие же ресницы😇 Потому что при наращивании ресниц, мастер учитывает разные критерии: 🌟Густота ресниц (Если у девушки густые ресницы, то даже классический объем может смотреться, как 3D) 🌟Цвет (Если Ваша подруга блондинка нарастила коричневые реснички, это не значит, что коричневые реснички будут смотреться так же и на Вас, брюнетке) 🌟Длина ресниц (Если у Вашей подруги очень короткие ресницы, а у Вас- длинные, то соответственно ее длина для Ваших ресничек не подойдет, это будет смотреться нелепо) Поэтому к каждой девушке должен быть индивидуальный подход!❤😍🔥 ❤ставим лайк( Вам не сложно, а нам- приятно) 🏘Студия: Кузнецкий мост 19стр2 (5 минут от метро) 🕑Работаем каждый день с 10:00 до 20:00 ☎8(999)839-01-77
Good luck to our EDS squad who are playing a tournament at Leeds United Academy this afternoon #EDS#gamesprogramme#development

The YEFA Team
Nasi mali soliści disco dance opanowali ursynowski parkiet! 😍 Wszystkie wyniki znajdziecie na naszym Facebooku! 🏆 #egurroladancekids #egurroladancestudio #egurrola #eds #kids #discodance #dancers #winners #proud #champions