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Jeremiah "Miah" i am 13 and I have had 4 open heart surgeries so far.
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#scarsarebeautifulproject #scarsarebeautiful #heartwarrior #avcanal #downsyndrome #strongerthanmost #teenager #heartdefects #downsyndrome 
@scarsarebeautifulproject
What's up Doc? Why this adorable bugs bunny made by our  amazingly talented friend @jen_christ_ . Thanks for your rocksforryan contributions โ™ก #rocksforryan #rocks #paintrocks #art #plaidcrafts #lifeafterloss #childloss #nevergiveup #kindnessrocks #sacramentorocks #sadsfoundation #longqtsyndrome #heartwarrior #longqt #changetheworld #awareness #carmichael #sacramento #heshouldbehere #bugsbunny #warnerbros #cartoon #looneytunes #animals #bunny
What's up Doc? Why this adorable bugs bunny made by our amazingly talented friend @jen_christ_ . Thanks for your rocksforryan contributions โ™ก #rocksforryan  #rocks  #paintrocks  #art  #plaidcrafts  #lifeafterloss  #childloss  #nevergiveup  #kindnessrocks  #sacramentorocks  #sadsfoundation  #longqtsyndrome  #heartwarrior  #longqt  #changetheworld  #awareness  #carmichael  #sacramento  #heshouldbehere  #bugsbunny  #warnerbros  #cartoon  #looneytunes  #animals  #bunny 
Finally got to sit up in his chair after a month. That smiles makes everything better. #TeamMarco #HeartWarrior #CHD โค๏ธ๐Ÿ’ช๐Ÿผ
Finally got to sit up in his chair after a month. That smiles makes everything better. #TeamMarco  #HeartWarrior  #CHD  โค๏ธ๐Ÿ’ช๐Ÿผ
Coming along really well! I'm  happy!! ๐ŸŽจ๐ŸŽจ๐Ÿ‘๐Ÿป#lovetopaint #artwork #monday #seascape #t21love #prescious #talented #artist #chd #fightergirls #specialgirl #sweetheart #heartwarrior #acrylic #painterlife #canvasart #beach #swing #lightsky
When you are this cute you have to wear your #tags4tots sign right on you to remind others not to touch! You make it almost impossible with those cute cheeks! #heartwarrior #chd #chdawareness www.tags4tots.com
When you are this cute you have to wear your #tags4tots  sign right on you to remind others not to touch! You make it almost impossible with those cute cheeks! #heartwarrior  #chd  #chdawareness  www.tags4tots.com
One of the many blessings of having Rosie is meeting her T21 buddies and families. Having the T21 community in my life is such a blessing. 
After Rosie's eye test this morning, a few of us met for lunch. As ever, the main topic of conversation was the patchwork of NHS support locally, so it's great that there's going to be a pathway for T21 kids locally. 
We also shared stories of diagnosis, ranging from the good to the terrible. Although life with Rosie isn't always easy, she is an amazing blessing. There is genuinely nothing to be sorry about. I'm so fortunate to have friends, such as @tibbskatie, who are strong and positive advocates for Downs Syndrome in the healthcare sector. It's so important that new mums and mums to be get an accurate representation of what it is like to be a mother to a child with Downs Syndrome. Really, all mums at higher risk of T21 should just be signposted to @lovedailydoseofbella @madelinesmodelling_ @flicks_on_fleek @thesanchezsix as well as the fabulous Ollie & Cameron and Donโ€™t be Sorry on facebook. 
#tellitrightstartitright #t21 #downssyndrome #downsyndrome #homieswithextrachromies #heartwarrior #heartbaby #10months #blw #tubies #tubiebaby #dsdn #dontbesorry #upnotdown #designergenes #nosufferinghere
One of the many blessings of having Rosie is meeting her T21 buddies and families. Having the T21 community in my life is such a blessing. After Rosie's eye test this morning, a few of us met for lunch. As ever, the main topic of conversation was the patchwork of NHS support locally, so it's great that there's going to be a pathway for T21 kids locally. We also shared stories of diagnosis, ranging from the good to the terrible. Although life with Rosie isn't always easy, she is an amazing blessing. There is genuinely nothing to be sorry about. I'm so fortunate to have friends, such as @tibbskatie, who are strong and positive advocates for Downs Syndrome in the healthcare sector. It's so important that new mums and mums to be get an accurate representation of what it is like to be a mother to a child with Downs Syndrome. Really, all mums at higher risk of T21 should just be signposted to @lovedailydoseofbella @madelinesmodelling_ @flicks_on_fleek @thesanchezsix as well as the fabulous Ollie & Cameron and Donโ€™t be Sorry on facebook. #tellitrightstartitright  #t21  #downssyndrome  #downsyndrome  #homieswithextrachromies  #heartwarrior  #heartbaby  #10months  #blw  #tubies  #tubiebaby  #dsdn  #dontbesorry  #upnotdown  #designergenes  #nosufferinghere 
We're creating a special heart pillow for #CHDwarriors currently battling CHD in the hospital and we need your Heart Warrior's help! Whether sketched in pencil, drawn in crayon or painted with water colors, we want to see it! (Mom and Dad, feel free to help out if your warrior is young). These heart pillows are meant to provide comfort to families who are in the thick of the battle and we need your little one's help to do just that! We will be collecting entries for one week starting today, let the creativity fly!
We're creating a special heart pillow for #CHDwarriors  currently battling CHD in the hospital and we need your Heart Warrior's help! Whether sketched in pencil, drawn in crayon or painted with water colors, we want to see it! (Mom and Dad, feel free to help out if your warrior is young). These heart pillows are meant to provide comfort to families who are in the thick of the battle and we need your little one's help to do just that! We will be collecting entries for one week starting today, let the creativity fly!
Hello everyone! ๐Ÿ‘‹๐Ÿป meet Gavin! He is from Canada and has Hypoplastic Left Heart just like Liam. He's 3 almost 4 weeks post Glenn. He is currently inpatient due to chylothorax. 
Let us take a minute to pray for this sweet boy and hope for discharge very soon. I am all too familiar with long hospital stays. He WILL overcome this journey. He is a warrior. #hypoplasticleftheartsyndrome #HLHS #hlhswarrior #hlhsawareness #CHD #chdwarrior #chdawareness #chdsurvivor #heartbaby #heartstrong #heartwarrior #halfaheart #heartmoms #1in100
Hello everyone! ๐Ÿ‘‹๐Ÿป meet Gavin! He is from Canada and has Hypoplastic Left Heart just like Liam. He's 3 almost 4 weeks post Glenn. He is currently inpatient due to chylothorax. Let us take a minute to pray for this sweet boy and hope for discharge very soon. I am all too familiar with long hospital stays. He WILL overcome this journey. He is a warrior. #hypoplasticleftheartsyndrome  #HLHS  #hlhswarrior  #hlhsawareness  #CHD  #chdwarrior  #chdawareness  #chdsurvivor  #heartbaby  #heartstrong  #heartwarrior  #halfaheart  #heartmoms  #1in100 
Dreaming of being out in that sunshine one day soon! ๐ŸŒž๐Ÿ’™๐Ÿ’™ #littleolivergray #olivergraysheartjourney #heartwarrior
I was looking for some photos from last year and came across these. We tried to blow glitter but that didn't work at all. We ended up with a HUGE pile of glitter on the floor!  She LOVED the wand so I used a little technology to add in the glitter magic and a vacuum to clean up all the real glitter!

#avakohles #glitter #sparkle #magicwand #silversparkle #carrieanne #searssisters #thewaycarrieseesit #carrieannephoto #downsyndrome #upsyndrome #dsdn #theupside #theluckyfew #heartwarrior #changingthefaceofbeauty #lifewithava #lifeisbetterwithyou #nothingdownaboutit #mygirl #toddlersofinstagram #3 #blessed #thankful #grateful
I was looking for some photos from last year and came across these. We tried to blow glitter but that didn't work at all. We ended up with a HUGE pile of glitter on the floor! She LOVED the wand so I used a little technology to add in the glitter magic and a vacuum to clean up all the real glitter! #avakohles  #glitter  #sparkle  #magicwand  #silversparkle  #carrieanne  #searssisters  #thewaycarrieseesit  #carrieannephoto  #downsyndrome  #upsyndrome  #dsdn  #theupside  #theluckyfew  #heartwarrior  #changingthefaceofbeauty  #lifewithava  #lifeisbetterwithyou  #nothingdownaboutit  #mygirl  #toddlersofinstagram  #3  #blessed  #thankful  #grateful 
Esta foto lo dice todo!โฃ๏ธEn esta semana que comienza intentemos ver mรกs con nuestro corazรณn, dejando a un lado los prejuicios que tanto mal nos hacen a todos โ˜บ๏ธโ˜๐ŸผEl amor no tiene etiquetas!โฃ๏ธFeliz lunes! .
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"Before anything else, we are all human. Itโ€™s time to embrace diversity. Letโ€™s put aside labels in the name of love." โฃ๏ธ #lovehasnolabels ๐Ÿค—โ˜๐Ÿผ Let love be your energy this week! #sisterlove #loverocks #goodvibes #newweek #freshstart .
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#GiaMaria #BabyG #TheLuckyFew #UpSyndrome #nothingdownaboutit #differentcapabilities #DownSyndrome #extrachromosomeextracute #t21 #HeartWarrior #Inclusion #babiesofinstagram #HollandTourGuide #littleandbrave #InclusionIsTheNewCool #downsyndromerocks #DownSyndromeAwareness #SindromeDown #Trisomia21 #Instagood #instababy #ChangingTheFaceOfBeauty #Colombia #MuchoMasQueUnCromosomaDeMas
Esta foto lo dice todo!โฃ๏ธEn esta semana que comienza intentemos ver mรกs con nuestro corazรณn, dejando a un lado los prejuicios que tanto mal nos hacen a todos โ˜บ๏ธโ˜๐ŸผEl amor no tiene etiquetas!โฃ๏ธFeliz lunes! . . "Before anything else, we are all human. Itโ€™s time to embrace diversity. Letโ€™s put aside labels in the name of love." โฃ๏ธ #lovehasnolabels  ๐Ÿค—โ˜๐Ÿผ Let love be your energy this week! #sisterlove  #loverocks  #goodvibes  #newweek  #freshstart  . . . . . . #GiaMaria  #BabyG  #TheLuckyFew  #UpSyndrome  #nothingdownaboutit  #differentcapabilities  #DownSyndrome  #extrachromosomeextracute  #t21  #HeartWarrior  #Inclusion  #babiesofinstagram  #HollandTourGuide  #littleandbrave  #InclusionIsTheNewCool  #downsyndromerocks  #DownSyndromeAwareness  #SindromeDown  #Trisomia21  #Instagood  #instababy  #ChangingTheFaceOfBeauty  #Colombia  #MuchoMasQueUnCromosomaDeMas 
Through all the shit you make things better โค๏ธโค๏ธ @blinkryba  #mylittleman #glenn #heartwarrior #hlhs #chd #zipperclubmember #handsome #love
Blue eyes and black hair please stay! 3 weeks and 1 day old! What a beauty! Having another good day! #theluckyfew #ndss #downsyndrome #upsyndrome #heartwarrior
My itty-bitty is getting so big. I cannot believe it is already time to start planning his 1st birthday! 
#mommytoperfection #tga #heartwarrior #ouchildrens #myGodisbigger #frankiejvernon
Well it was a lunch time soak for this one after a messy snack, and it was the first time Rory sat unaided in a bath!!๐Ÿ˜ Almost a year since Rory had his Open heart surgery and you can't even tell there's even a scar there it's healed amazinglyโค

#chdawareness #heartwarrior #braveheart #zipperclub #completeavsdrepair #mumslittlehero
Yesterday marked 3years since Austin had surgery to repair a congenital heart defect. So thankful for this child! #morealikethandifferent #TeamAustintatious #hislifematters #downsyndrome #heartwarrior
More pictures from the SuperHero Heart Run!! So thankful for everyone who came out to support us in honor of Brycen! We can't wait to do it again next year. It was emotional for sure, but we are glad to do it for Brycen! #TeamBrycen, #mommyshero, #flyhigh, #gonetoosoon, #heartwarrior, #heartangel, #superheroheartrun, #superheroheartrun2017, #CHDSUCKS
Baby cuddles are my favorite! #thisboystolemyheart #heartwarrior #heissosweet #mommasboy
He's the most handsome little boy ever and he knows it!! ๐Ÿ’™๐Ÿ’™๐Ÿ’™ #littleolivergray #olivergraysheartjourney #heartwarrior
Time with these women always fills my heart-- a group of Moms who "get it" and who accept me despite my reality being many of their worst nightmares. These women have handed their children over to a surgeon to have their chests opened and their tiny hearts repaired, not knowing if they'd see them again with their eyes open-- they stay on top of rigorous medicine schedules-- they spend time away from their spouses and other children to hold vigil at their heart warrior's bedside-- they spend holidays, birthdays, and special occasions in the hospital-- they've traded kids' extracurricular activities for Dr appointments, recovery from surgery, therapy, and frequent ER visits-- they've pleaded with God to save their child, they've seen other Moms say last goodbyes to theirs, and they've wished SO HARD that they could take on their child's pain if it would make them all better. Some of them are new to this world and others well-versed. These women know REAL struggles and, although everyday is far from easy, they know that each new day with their warrior is a gift. And through it all, look at these smiles! There wasn't a quiet second during our 4 hours together last night โค๏ธโค๏ธโค๏ธ We call our children with congenital heart disease "heart warriors" but these women are warriors too! ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ
Time with these women always fills my heart-- a group of Moms who "get it" and who accept me despite my reality being many of their worst nightmares. These women have handed their children over to a surgeon to have their chests opened and their tiny hearts repaired, not knowing if they'd see them again with their eyes open-- they stay on top of rigorous medicine schedules-- they spend time away from their spouses and other children to hold vigil at their heart warrior's bedside-- they spend holidays, birthdays, and special occasions in the hospital-- they've traded kids' extracurricular activities for Dr appointments, recovery from surgery, therapy, and frequent ER visits-- they've pleaded with God to save their child, they've seen other Moms say last goodbyes to theirs, and they've wished SO HARD that they could take on their child's pain if it would make them all better. Some of them are new to this world and others well-versed. These women know REAL struggles and, although everyday is far from easy, they know that each new day with their warrior is a gift. And through it all, look at these smiles! There wasn't a quiet second during our 4 hours together last night โค๏ธโค๏ธโค๏ธ We call our children with congenital heart disease "heart warriors" but these women are warriors too! ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ
โคโคโคโค oh my Baby Carson. Every day I pray and thank God for giving me time with this beautiful soul when I was only promised hours with him. I am forever grateful. We love him so much โคโคโคโค
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#love #family #heartattacksurvivor #hearttransplantsurvivor #strokesurvivor #heartmom #heartwarrior #thankful #lovehim #momlife #godisgood #miracleshappen #thebestisyettocome #toolegittoquit
โค๏ธ๐Ÿ’”H E A R T  U P D A T E ๐Ÿ’”โค๏ธ today we had a routine appointment back at the brilliant LGI for a scan on Rae's heart โค๏ธ we were hoping to get a date for her open heart surgery today however there is some other little bits that need fixing first before the op can happen. It is looking like it will be mid December. Rae had a great time during the scan, pulling on all the wires and putting them in her mouth! She wasn't phased by it at all ๐Ÿ’ช๐Ÿป#chd #chdawareness #tetralogyoffallot #heartwarrior #heartmum #heartmom #mumlife #bornwithabrokenheart #leedschildrensheartsurgeryfund
โค๏ธ๐Ÿ’”H E A R T U P D A T E ๐Ÿ’”โค๏ธ today we had a routine appointment back at the brilliant LGI for a scan on Rae's heart โค๏ธ we were hoping to get a date for her open heart surgery today however there is some other little bits that need fixing first before the op can happen. It is looking like it will be mid December. Rae had a great time during the scan, pulling on all the wires and putting them in her mouth! She wasn't phased by it at all ๐Ÿ’ช๐Ÿป#chd  #chdawareness  #tetralogyoffallot  #heartwarrior  #heartmum  #heartmom  #mumlife  #bornwithabrokenheart  #leedschildrensheartsurgeryfund 
He had his newborn hearing test, at 3.5 months old ๐Ÿ˜‚, he likes to do things a little differently. He passed with flying colors though! Now he's ready to DJ ๐Ÿ˜Ž๐Ÿ˜๐Ÿ˜ ๐Ÿ’™๐Ÿ’™๐Ÿ’™ #littleolivergray #olivergraysheartjourney #heartwarrior
He had his newborn hearing test, at 3.5 months old ๐Ÿ˜‚, he likes to do things a little differently. He passed with flying colors though! Now he's ready to DJ ๐Ÿ˜Ž๐Ÿ˜๐Ÿ˜ ๐Ÿ’™๐Ÿ’™๐Ÿ’™ #littleolivergray  #olivergraysheartjourney  #heartwarrior 
1 year ago today, we headed to Omaha for all of Ava's pre-op appointments for her open heart surgery.  1 year ago today, Grant was testing out the free Zoom app on his Kindle so we could see each other, since the boys stayed home with grandma and grandpa while we were in the hospital. 
Can you believe it's been a year?  I can't!

I am so blessed and thankful to be a work-at-home, stay-at-home mom so I could be there for her and the rest of my family.  Even though I know the outcome, I can still feel the stress when I think back on this time last year.  The fear of finishing this life without her was the worst.

#heartwarrior
#chdawareness
#carrieanne
#avakohles
#grantkohles
#anniversary
#openheartsurgery
#grateful
#thankful
#blessed
#downsyndrome
#nothingdownaboutit 
#lifeisbetterwithyou 
#theluckyfew
1 year ago today, we headed to Omaha for all of Ava's pre-op appointments for her open heart surgery. 1 year ago today, Grant was testing out the free Zoom app on his Kindle so we could see each other, since the boys stayed home with grandma and grandpa while we were in the hospital. Can you believe it's been a year? I can't! I am so blessed and thankful to be a work-at-home, stay-at-home mom so I could be there for her and the rest of my family. Even though I know the outcome, I can still feel the stress when I think back on this time last year. The fear of finishing this life without her was the worst. #heartwarrior  #chdawareness  #carrieanne  #avakohles  #grantkohles  #anniversary  #openheartsurgery  #grateful  #thankful  #blessed  #downsyndrome  #nothingdownaboutit  #lifeisbetterwithyou  #theluckyfew 
Dear Ayden, 
I can't even begin to explain how much you have taught me over this course of a year. How I could love you more than anything else in this world. All you do is amaze me โค๏ธ I can't wait to keep watching you grow, and see all the new things your capable of doing in that time. 
Happy 1st birthday baby boy! 
I love you ๐Ÿ˜˜๐Ÿ’™ Love Mommy xoxo 
#birthdayboy #birthday #oneyear #1 #cantbelieveit #timeflies #preemie #premature #trachbaby #trach #gtubebaby #gtube #tubiebaby #tubiemom #tubielife #tof #tetralogyoffallot #heartcondition #heart #heartbaby #zipperclub #heartwarrior #zipperclubmember
Dear Ayden, I can't even begin to explain how much you have taught me over this course of a year. How I could love you more than anything else in this world. All you do is amaze me โค๏ธ I can't wait to keep watching you grow, and see all the new things your capable of doing in that time. Happy 1st birthday baby boy! I love you ๐Ÿ˜˜๐Ÿ’™ Love Mommy xoxo #birthdayboy  #birthday  #oneyear  #1  #cantbelieveit  #timeflies  #preemie  #premature  #trachbaby  #trach  #gtubebaby  #gtube  #tubiebaby  #tubiemom  #tubielife  #tof  #tetralogyoffallot  #heartcondition  #heart  #heartbaby  #zipperclub  #heartwarrior  #zipperclubmember 
Congenital heart defects are the leading cause of birth defect-related deaths. 25% of babies born with a critical #CHD will not survive past their first birthday. 
#CHDawareness #CHD #Heart #HeartWarrior #Vietnam
How did we get here? Why? What went wrong? 
We went from being excited to share that mama got to hold Mason back to intubation. 
Today was a really emotional day. Mason seemed to be settling his episodes further out and less frequently. We stayed up all night only getting 2-3 hours of sleep watching him, waiting for his next episode. 
This morning we got a new doctor come in who instantly made me feel at ease. Our new nurse also let me hold Mason for a little while. My heart was overjoyed! Just a few hours later, it felt like the walls were crashing around us. 
Mason had another episode but this time it was bad. He quit breathing. His entire color turned. They had to make the decision to intubate. We knew yesterday evening something just wasn't right. It took a new doctor on shift and him seeing the episode and him not breathing to finally do something aggressive about it. 
This little guy has struggled more than any child should ever have to. He's been poked, prodded, operationed on, tubes down his nose, tubes down his throat, tubes and wires in his chest, ultrasounds and x rays galore. He's fought and fought hard. He's continued to fight. He hasn't given up, even when we knew he was just barely hanging on yesterday and today. He's been so strong while we have felt so weak. 
So whilst I wouldn't typically share the photo of him with his breathing tube. I'm showing you just how real and hard this ride has been. How real and raw this is. How he can go from seeming to progress to instantly taking the downhill battle. While many are complaining about it being a Monday and returning back to school and work, take a second and think of the fight that my little guy (and so many others) have to go through to survive. So be thankful and fight each day as strong as Mason. 
#masonstrong #masonwilliam #heartwarrior #zipperclub #chd #chdsucks #chdwarrior #masonmyhero
How did we get here? Why? What went wrong? We went from being excited to share that mama got to hold Mason back to intubation. Today was a really emotional day. Mason seemed to be settling his episodes further out and less frequently. We stayed up all night only getting 2-3 hours of sleep watching him, waiting for his next episode. This morning we got a new doctor come in who instantly made me feel at ease. Our new nurse also let me hold Mason for a little while. My heart was overjoyed! Just a few hours later, it felt like the walls were crashing around us. Mason had another episode but this time it was bad. He quit breathing. His entire color turned. They had to make the decision to intubate. We knew yesterday evening something just wasn't right. It took a new doctor on shift and him seeing the episode and him not breathing to finally do something aggressive about it. This little guy has struggled more than any child should ever have to. He's been poked, prodded, operationed on, tubes down his nose, tubes down his throat, tubes and wires in his chest, ultrasounds and x rays galore. He's fought and fought hard. He's continued to fight. He hasn't given up, even when we knew he was just barely hanging on yesterday and today. He's been so strong while we have felt so weak. So whilst I wouldn't typically share the photo of him with his breathing tube. I'm showing you just how real and hard this ride has been. How real and raw this is. How he can go from seeming to progress to instantly taking the downhill battle. While many are complaining about it being a Monday and returning back to school and work, take a second and think of the fight that my little guy (and so many others) have to go through to survive. So be thankful and fight each day as strong as Mason. #masonstrong  #masonwilliam  #heartwarrior  #zipperclub  #chd  #chdsucks  #chdwarrior  #masonmyhero 
I don't feel the need to fight with the outer world when I'm not fighting with myself. People are missing this- you find the peace within yourself first, and then you can be a peacemaker. 
And just as love can drive out hate, and light can drive out darkness; peace can drive out violence. 
@proactiveyellowworld #peace #peacewarrior #dalailama #dalailamaquotes #endviolence #peacebeginswithin #heartwarrior #myresistanceislove
I have spent almost every night here for the past 3 and a half months. It was a home away from home so that I could be here in Charleston everyday for Oliver. Last night was my last night there because Oliver was moved to a room where I can be with him all the time. I'm sad to leave, but hopefully this just means we are that much closer to coming home! I am so thankful that this house exists and that they have been here for me, because without them I don't know what we would have done living 2 hours away from Charleston. #littleolivergray #olivergraysheartjourney #heartwarrior #ronaldmcdonaldhouse #charlestonsc
I have spent almost every night here for the past 3 and a half months. It was a home away from home so that I could be here in Charleston everyday for Oliver. Last night was my last night there because Oliver was moved to a room where I can be with him all the time. I'm sad to leave, but hopefully this just means we are that much closer to coming home! I am so thankful that this house exists and that they have been here for me, because without them I don't know what we would have done living 2 hours away from Charleston. #littleolivergray  #olivergraysheartjourney  #heartwarrior  #ronaldmcdonaldhouse  #charlestonsc 
Custom set for a heart warrior and his mommy! #customtees #mommyandmefashion #heartwarrior
T.O.U.C.H. Heart picnic!!!! We look forward to going every year!!!! CHOI is such an amazing hospital with amazing staff!!! Love being able to see them with a day of fun!!!! It is so wonderful for Lily to be able to meet other kids just like her!!!
#chd #HLHS #PAPVR #AA #MA #heartwarrior
T.O.U.C.H. Heart picnic!!!! We look forward to going every year!!!! CHOI is such an amazing hospital with amazing staff!!! Love being able to see them with a day of fun!!!! It is so wonderful for Lily to be able to meet other kids just like her!!! #chd  #HLHS  #PAPVR  #AA  #MA  #heartwarrior 
Happy Birthday to my little heart warrior! You are the bravest person I know. I hope this year brings healing. Keep strong my brave heart! I love you โ™ก #bebrave #mylittlewarrior #babybrother #birthday #heartofawarrior #fighter #heartwarrior #snapchat #moose
He fell quite a few times today, but he got back up, chalked up and tried again. Some people would see this as a failure of a training day. In his case it isn't. It's proof that he is willing to try, try and try again. Coach Christine is a huge blessing to me. She pushes him just as hard  as I do. She sees his potential. #adaptiveascents #adaptiveclimbinginitiative #northface #heartwarrior
He fell quite a few times today, but he got back up, chalked up and tried again. Some people would see this as a failure of a training day. In his case it isn't. It's proof that he is willing to try, try and try again. Coach Christine is a huge blessing to me. She pushes him just as hard as I do. She sees his potential. #adaptiveascents  #adaptiveclimbinginitiative  #northface  #heartwarrior 
This girl and I got our #heartwalking in this morning, then the family and I headed to a local heart walk. Spread all the awareness you can!

#achd #iam1in100 #heartwarrior
As hard as it was, this cutie & I ended our 3 year breastfeeding journey together this week! I enjoyed giving you the best start in life my sweet boy. #forevermybodhi #heartwarrior #lastbaby
As hard as it was, this cutie & I ended our 3 year breastfeeding journey together this week! I enjoyed giving you the best start in life my sweet boy. #forevermybodhi  #heartwarrior  #lastbaby 
It's been 2 years of his magical life.
You are wonderful.
You bring magic to our life.
Even if this is still a beggining of our journey.

But i know since i hold you for the first time, 2 years ago.
You are a warrior.
You are worth fighting for.
Whatever it takes, never never give up.

May Allah always ease your way, darling.
Happy birthday Muhammad Harsya Danendra. โค๏ธโค๏ธโค๏ธ #akulangka 
#rarewarrior
#heartwarrior 
#digeorgesyndrome 
#chdwarrior 
#22qutie
It's been 2 years of his magical life. You are wonderful. You bring magic to our life. Even if this is still a beggining of our journey. But i know since i hold you for the first time, 2 years ago. You are a warrior. You are worth fighting for. Whatever it takes, never never give up. May Allah always ease your way, darling. Happy birthday Muhammad Harsya Danendra. โค๏ธโค๏ธโค๏ธ #akulangka  #rarewarrior  #heartwarrior  #digeorgesyndrome  #chdwarrior  #22qutie 
Please send me your ideas/suggestions for new Season 3 designs. Thank you for the continuous support as well โค๏ธ comment below and or DM Link in Bio | EmajeHARRIS.com ๐ŸŽ‰#chronicillnesses #heartcondition #hearthealth #heartdiseaseawareness #heartwarrior #heartwalk  #instastyle #fblogger #lookbook #menwithstyle #outfitoftheday #styleoftheday #menswear #ootdmen #lookoftheday #snobshots #streetwear #urbanfashion #fashiondiaries #men #women #kids #fashionkiller #fashiongram
Please send me your ideas/suggestions for new Season 3 designs. Thank you for the continuous support as well โค๏ธ comment below and or DM Link in Bio | EmajeHARRIS.com ๐ŸŽ‰#chronicillnesses  #heartcondition  #hearthealth  #heartdiseaseawareness  #heartwarrior  #heartwalk  #instastyle  #fblogger  #lookbook  #menwithstyle  #outfitoftheday  #styleoftheday  #menswear  #ootdmen  #lookoftheday  #snobshots  #streetwear  #urbanfashion  #fashiondiaries  #men  #women  #kids  #fashionkiller  #fashiongram 
Hooray our Lil hedgehog was found today...ironically by my nephew haha. But no worries we re hid it for you to find! Also poster is my sissy she is fabulous at makeup check her out @tb_beauty13 . Keep those pics coming!#rocksforryan #rocks #paintrocks #paint #sacramentorocks #sacramento #sadsfoundation #longqtsyndrome #heartwarrior #longqt #changetheworld #awareness #carmichael #getoutside #found #plaidcrafts #hideandseek #littlethings #ittybittys #art #hedgehog #animals #cute
Hooray our Lil hedgehog was found today...ironically by my nephew haha. But no worries we re hid it for you to find! Also poster is my sissy she is fabulous at makeup check her out @tb_beauty13 . Keep those pics coming!#rocksforryan  #rocks  #paintrocks  #paint  #sacramentorocks  #sacramento  #sadsfoundation  #longqtsyndrome  #heartwarrior  #longqt  #changetheworld  #awareness  #carmichael  #getoutside  #found  #plaidcrafts  #hideandseek  #littlethings  #ittybittys  #art  #hedgehog  #animals  #cute 
"He/She who wants a rose must respect the thorn." A reminder to honor all the parts of a journey towards something awesome- every relationship and every goal is bound to have its prickly parts! May the thorns awaken our devotion even more... Grateful for this thought while sipping Hawthorn (heart protector medicine) tea! โค๏ธ๐ŸŒน๐Ÿ™๐Ÿพ #teabagwisdom #heartwarrior #devotion #femmebotanica #womenempowerment #heartmedicine
"He/She who wants a rose must respect the thorn." A reminder to honor all the parts of a journey towards something awesome- every relationship and every goal is bound to have its prickly parts! May the thorns awaken our devotion even more... Grateful for this thought while sipping Hawthorn (heart protector medicine) tea! โค๏ธ๐ŸŒน๐Ÿ™๐Ÿพ #teabagwisdom  #heartwarrior  #devotion  #femmebotanica  #womenempowerment  #heartmedicine