an online Instagram web viewer

#homiewithanextrachromie medias

Photos

I will be walking this weekend along side my family in honor of my niece Miu who was born with Down Syndrome 8 months ago. Please follow the link to donate to this great organization so they can continue the great work they do in our community.
.
https://dsc.donorpages.com/BuddyWalk2017/MeghanFortier/
.
#nothingdownaboutit #buddywalk2017 #downsyndromeawareness #downsyndromebeauty #t21 #t21beauty #homiewithanextrachromie #ilovesomeonewithdownsyndrome #princessmiu
๐Ÿ“ฎMAIL TIME! I took this a few weeks ago & forgot to share. ๐Ÿคทโ€โ™€๏ธ The @whartoncenter is doing their FIRST EVER sensory friendly performances! ๐Ÿ™Œ We got our tickets and can't wait for the first show. But even before that, we have a regular show at the Wharton to celebrate Liam's birthday (shhh...it's a surprise). We get compare! @michiganstateu ๐Ÿ˜ โ€ข
โ€ข
#spartanwill #artsandautism #sensoryfriendly #catandthehat #autism #trisomy13 #empoweringdifferent #differentanddope #rareandrad #homiewithanextrachromie #msu #whartoncenter #performingarts
๐Ÿ“ฎMAIL TIME! I took this a few weeks ago & forgot to share. ๐Ÿคทโ€โ™€๏ธ The @whartoncenter is doing their FIRST EVER sensory friendly performances! ๐Ÿ™Œ We got our tickets and can't wait for the first show. But even before that, we have a regular show at the Wharton to celebrate Liam's birthday (shhh...it's a surprise). We get compare! @michiganstateu ๐Ÿ˜ โ€ข โ€ข #spartanwill  #artsandautism  #sensoryfriendly  #catandthehat  #autism  #trisomy13  #empoweringdifferent  #differentanddope  #rareandrad  #homiewithanextrachromie  #msu  #whartoncenter  #performingarts 
& sometimes our pictures turn out like this ๐Ÿ˜‚ #swipeleft
& sometimes our pictures turn out like this ๐Ÿ˜‚ #swipeleft 
Watching you grow has been my greatest pleasure. If I knew things would be this good, I would have never shed a single tear.
Watching you grow has been my greatest pleasure. If I knew things would be this good, I would have never shed a single tear.
New hair and I โค๏ธ it soooo much thank you @head2nails  we โค๏ธyou!! #newhaircut #homiewithanextrachromie #morealikethandifferent #theluckyfew #t21 #theamazingamelia
Now that's a lot of hair for a baby...๐Ÿ™ˆ๐Ÿ˜‚๐Ÿ’‡๐Ÿผ #haircutnumber4 @head2nails  #homiewithanextrachromie #morealikethandifferent #theluckyfew #t21 #theamazingamelia
Its Tuesday again!!! The blog hop for Down Syndrome bloggers and readers is up! The featured post this week, is a must read by @tinaps3 about alternative therapy for our T21 kiddos. If you are a blogger link up, having troubles? Just DM me. If you are a reader, pop on over and take a look. Link in my profile.... this happens every Tuesday. ๐Ÿ˜†

#cedars_story #downrightperfect #downsyndromeawareness #downsyndrome #mommybloggers #mommyblogger #momblogger #theluckyfew #nothingdownaboutit #morealikethandifferent #upsyndrome #homiewithanextrachromie
#lifeisbetterwithyou
Its Tuesday again!!! The blog hop for Down Syndrome bloggers and readers is up! The featured post this week, is a must read by @tinaps3 about alternative therapy for our T21 kiddos. If you are a blogger link up, having troubles? Just DM me. If you are a reader, pop on over and take a look. Link in my profile.... this happens every Tuesday. ๐Ÿ˜† #cedars_story  #downrightperfect  #downsyndromeawareness  #downsyndrome  #mommybloggers  #mommyblogger  #momblogger  #theluckyfew  #nothingdownaboutit  #morealikethandifferent  #upsyndrome  #homiewithanextrachromie  #lifeisbetterwithyou 
[9.25.17] Mom wasn't too happy when she found my brother playing in my water bowl! As for me, I was just bummed that I didn't see him in time to join the party and make even more of a mess! #boysanddogs #makingamess #homemadesplashpad #downsyndrome #downsyndromememes #homiewithanextrachromie #trevandnev
This little man is my hero. He has been through so much. He's supposed to have another heart surgery on Wednesday but has a nasty infection & it may get cancelled again...praying that this new antibiotic kicks it asap so he can stay on track for this surgery & get it behind us!!
This little man is my hero. He has been through so much. He's supposed to have another heart surgery on Wednesday but has a nasty infection & it may get cancelled again...praying that this new antibiotic kicks it asap so he can stay on track for this surgery & get it behind us!!
Guess who is 2 months old!! We are sleeping through the night more often than not, we like to touch and grab anything we can get our hands on, we love cuddle time, tummy time, and dive-bombing are head on mommy's collar bones!! Time is just flying by
.
#downsyndrome #downrightperfect #theluckyfew #dsdn #homiewithanextrachromie #uniquelyperfect #nothingdownaboutit #beautifulconditions #ssparents #lifeisbetterwithyou #upsyndrome #twomoms
Brand new in the #etsyshop just in time for #downsyndromeawarenessmonth this #pewter #heart has an #awareness ribbon cast into it. #swarovski #crystals are hand set in the #downsyndrome blue and yellow.  In the center of the ribbon you can elect to have the individualโ€™s #birthstone set. Finish the pendant with the recipients own name or #childsname itโ€™s a special #personalized #gift for the person you know who has or loves someone with an #extrachromosome #downsyndromemom #downsyndromerocks #trisomy21 #handmadejewelry #handmadeaccessory #handmade #handmadeisbetter #custom #etsy #etsyseller #etsyjewelry #etsyfinds #etsygifts #homiewithanextrachromie
Brand new in the #etsyshop  just in time for #downsyndromeawarenessmonth  this #pewter  #heart  has an #awareness  ribbon cast into it. #swarovski  #crystals  are hand set in the #downsyndrome  blue and yellow. In the center of the ribbon you can elect to have the individualโ€™s #birthstone  set. Finish the pendant with the recipients own name or #childsname  itโ€™s a special #personalized  #gift  for the person you know who has or loves someone with an #extrachromosome  #downsyndromemom  #downsyndromerocks  #trisomy21  #handmadejewelry  #handmadeaccessory  #handmade  #handmadeisbetter  #custom  #etsy  #etsyseller  #etsyjewelry  #etsyfinds  #etsygifts  #homiewithanextrachromie 
Okay our PT said to not put him in this seat but I just couldn't resist for one second as I moved it to the storage room. He looks like such a little man!
Okay our PT said to not put him in this seat but I just couldn't resist for one second as I moved it to the storage room. He looks like such a little man!
A much needed cuteness distraction this morning! A boy and his dog ๐Ÿ’™๐Ÿ’› #homiewithanextrachromie #nothingdownabouthim #downsideup #theluckyfew
The evolution of drama ๐Ÿ˜‚๐Ÿคฆ๐Ÿผโ€โ™€๏ธ thanks Aunt Sammi for my cute shirt ๐Ÿ˜˜ @_saylorr
------
#downsyndrome #downsyndromeawareness #t21 #homiewithanextrachromie #nothingdownaboutit #theluckyfew #gtube #tubiebaby #babyboy #babylove #babysmiles #naturebaby #babiesofig #babiesofinstagram #toddler #childhoodunplugged #thebeautyingenes #loveisblind #lovehasnobounds #oscarwinner #asl #babysignlanguage #lifeisbetterwithyou
The evolution of drama ๐Ÿ˜‚๐Ÿคฆ๐Ÿผโ€โ™€๏ธ thanks Aunt Sammi for my cute shirt ๐Ÿ˜˜ @_saylorr ------ #downsyndrome  #downsyndromeawareness  #t21  #homiewithanextrachromie  #nothingdownaboutit  #theluckyfew  #gtube  #tubiebaby  #babyboy  #babylove  #babysmiles  #naturebaby  #babiesofig  #babiesofinstagram  #toddler  #childhoodunplugged  #thebeautyingenes  #loveisblind  #lovehasnobounds  #oscarwinner  #asl  #babysignlanguage  #lifeisbetterwithyou 
Thank you for the beautiful photo @kaliana_love_!  What a beautiful way to start the week! ๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜#Regram #reevestees #homiewithanextrachromie #getcomfortablewithdifference #homieswithextrachromies #genesandtshirts
What you and Jungkook will do in the room?
ยฉ mine โ•ฐmention and tag me if u repostโ•ฎ๐Ÿ“ท
-
-
{โ™ฃ}follow me @jungkookieslove for more updatesโ˜†
{โ™ฃ}tags your friends๐Ÿ“Œ
{โ™ฃ}goal;5k
-
-
#romance #instalove #couplevideo #loveposts #videooftheday #funnyvideo #pignose #pigsofinstagram #lovepigs #funnyanimals #animalvids #sunday #petsofinstagram #iglook #theluckyfew #t21 #nikebaby #upwithdowns #downrightperfect #heartsofull #nothingdownaboutit #homiewithanextrachromie #wonderfullymade #perfectlymade #dsdn #handsomechillin #babyboy #facemask #monday #kisses
What you and Jungkook will do in the room? ยฉ mine โ•ฐmention and tag me if u repostโ•ฎ๐Ÿ“ท - - {โ™ฃ}follow me @jungkookieslove for more updatesโ˜† {โ™ฃ}tags your friends๐Ÿ“Œ {โ™ฃ}goal;5k - - #romance  #instalove  #couplevideo  #loveposts  #videooftheday  #funnyvideo  #pignose  #pigsofinstagram  #lovepigs  #funnyanimals  #animalvids  #sunday  #petsofinstagram  #iglook  #theluckyfew  #t21  #nikebaby  #upwithdowns  #downrightperfect  #heartsofull  #nothingdownaboutit  #homiewithanextrachromie  #wonderfullymade  #perfectlymade  #dsdn  #handsomechillin  #babyboy  #facemask  #monday  #kisses 
He likes weird things ๐Ÿ˜‚ he also likes to sit on my bed playing with socks as you can see ๐Ÿ˜ฃ๐Ÿ˜‚๐Ÿ˜‰ #jax #downsyndromeawareness #homiewithanextrachromie
I think this pretty much sums up what kind of day it's going to be....๐Ÿ™„๐Ÿ™ˆ#noeatingtoday #lotsofcrying #silentreflux #fussyfeeder #morealikethandifferent #homiewithanextrachromie #t21 #theluckyfew #theamazingamelia
A big thank you for everyone who donated and also came out to help team #miraclemiles and the @kcdsg , also what a shock to see our little #posterchild during the walk. #milesjonnaylor #homiewithanextrachromie #stepupwalk #dsgofkc
He is pretty proud that he's finally big enough for his big boy tub! ๐Ÿ›
#downsyndrome #upsyndrome #morealikethandifferent #homiewithanextrachromie #nothingdownaboutit #theluckyfew #lifeisbetterwithyou #SoS #dsdn #lifewithds
More from the Okee Dokee Brothers the other night. Watch the whole thing...you won't be sorry ๐Ÿ˜‚๐Ÿ˜‚ #okeedokeebrothers #homiewithanextrachromie #hesgotmoves #kidcandance #nothingdownaboutit
I'm NOTORIOUS for overpacking and have very little shame in my game. I also procrastinate when it comes to packing which is probably why I overpack. Now that we have a little one I decided to start packing a week and a half early. I'm also super excited for Greyson's first trip to the place I love to call home. Anyone have any tips on traveling with an infant on a red eye? Asking for a friend ๐Ÿ˜...
I'm NOTORIOUS for overpacking and have very little shame in my game. I also procrastinate when it comes to packing which is probably why I overpack. Now that we have a little one I decided to start packing a week and a half early. I'm also super excited for Greyson's first trip to the place I love to call home. Anyone have any tips on traveling with an infant on a red eye? Asking for a friend ๐Ÿ˜...
Tried to grab as many of our walk team as we could! Go Everett's Army! #StepUpKC17
Tried to grab as many of our walk team as we could! Go Everett's Army! #StepUpKC17 
Jude is so smart and so funny! ๐Ÿ˜‚. He always keeps us laughing, plus he knows he is funny which makes it even funnier.  We love this boy! โค๏ธ #judedude ๐Ÿ˜›
.
.
.
.
#funnyboy #spreadhappiness #toddlersofinstagram #downsyndrome #ds #upsyndrome #trisomy21 #nothingdownaboutit #theluckyfew #homiewithanextrachromie
2 of Everett's biggest fans! #StepUpKC17
Perfect day celebrating our loved ones with Down Syndrome in Kansas City! #StepUpKC17
Perfect day celebrating our loved ones with Down Syndrome in Kansas City! #StepUpKC17 
@flex_lewis @allybelle79 @gatorfitness247 @chasethebeastgates @changingthefaceofbeauty #ifbbpro #npc #bodybuilding #downsmagazine #downscantstopme #downsyndromeawareness #homiewithanextrachromie #theoriginaldownsyndromebodybuilder #nothingdownabouthim @boostoxygen @boostoxygenuk @ryderwear
Jeremy's been reviewing @bbcstrictly on his instagram stories, give it a watch if you fancy a chuckle!! โœจ๐Ÿ•บ๐Ÿ’ƒโœจ
Jeremy's been reviewing @bbcstrictly on his instagram stories, give it a watch if you fancy a chuckle!! โœจ๐Ÿ•บ๐Ÿ’ƒโœจ
It's Leighton's 2nd tubie anniversary! Today 2 years ago he was admitted to UMD for congestive heart failure and got his first feeding tube and has been on one ever since. Thank god for modern medicine but hopefully we will kick the tube in a few years ๐Ÿ˜œ
------
#downsyndrome #downsyndromeawareness #t21 #homiewithanextrachromie #nothingdownaboutit #theluckyfew #gtube #tubiebaby #babyboy #babylove #babysmiles #naturebaby #babiesofig #babiesofinstagram #toddler #childhoodunplugged #thebeautyingenes #loveisblind #lovehasnobounds #oscarwinner #asl #babysignlanguage #lifeisbetterwithyou
It's Leighton's 2nd tubie anniversary! Today 2 years ago he was admitted to UMD for congestive heart failure and got his first feeding tube and has been on one ever since. Thank god for modern medicine but hopefully we will kick the tube in a few years ๐Ÿ˜œ ------ #downsyndrome  #downsyndromeawareness  #t21  #homiewithanextrachromie  #nothingdownaboutit  #theluckyfew  #gtube  #tubiebaby  #babyboy  #babylove  #babysmiles  #naturebaby  #babiesofig  #babiesofinstagram  #toddler  #childhoodunplugged  #thebeautyingenes  #loveisblind  #lovehasnobounds  #oscarwinner  #asl  #babysignlanguage  #lifeisbetterwithyou 
Sundayโ€™s are for Jesus, Snacks, and Afternoon Naps๐Ÿ’™๐Ÿ’™ #sundayswag #homiewithanextrachromie #nothingdownaboutit #downsyndrome #churchflow #heartwarrior #zipperclub
Moo casually assaulting mummy and enjoying it๐Ÿ˜‚ and @emmy_x_price lurking in the background ๐Ÿ™ˆ#hairpulling #giggles #chattykathy #morealikethandifferent %#homiewithanextrachromie #t21 #theluckyfew #theamazingamelia
We're early birds- Awake at 5:30. Although today we're in a tent, at the zoo, sitting beside a bombass campfire. ๐Ÿ˜Another big day ahead. I'm confident we can do it though!
โ€ข
โ€ข
#sensorykid #autism #sensoryprocessingdisorder #trisomy13 #trisomy13warrior #autismawareness #shhh #campingindoors #campingwithkids #lovelansing #potterparkzoo #autismfamilies #everyoneissleeping #lovehislaugh #adventureswithliamloowho #homiewithanextrachromie #sensorylights #sensorydiet
We're early birds- Awake at 5:30. Although today we're in a tent, at the zoo, sitting beside a bombass campfire. ๐Ÿ˜Another big day ahead. I'm confident we can do it though! โ€ข โ€ข #sensorykid  #autism  #sensoryprocessingdisorder  #trisomy13  #trisomy13warrior  #autismawareness  #shhh  #campingindoors  #campingwithkids  #lovelansing  #potterparkzoo  #autismfamilies  #everyoneissleeping  #lovehislaugh  #adventureswithliamloowho  #homiewithanextrachromie  #sensorylights  #sensorydiet 
Last night I went out for supper with friends, Jeremy was home alone. Strictly is back on so Jeremy was pretty happy watching that and cooking a cottage pie that mum made earlier! It wasn't until we woke up this morning that we discovered not only did he eat the cottage pie but also a baked potato, and a bag of oven chips... As well as raiding the house for crisps and various other excitements which we are yet to notice. This being a problem because Jeremy is an insulin dependent diabetic who's blood sugar level is mainly affected by carbs!

When Jeremy lived in independent living he ran his own menu and ended up putting on 2 stone of weight through his midnight feasts and questionable portion size and we've worked hard to lose the weight and keep it off.

The tricky thing is where we draw the line, because, he is an adult, he can make his own choices, but we're not exactly sure he has the capacity to realise the consequences of his actions. Some days he can comprehend.. And some days definitely not.. So as his family we're left in a difficult position of having to try to lead him to make good life choices, but not always being able to make them for him.

It's really hard, and we spend a huge amount of time working often against him, but in his best interest. For example, Jeremy now will have no food in his flat, apart from his breakfast for the next day. Every evening mum has to issue him with 2 pieces of bread for the next day (or whatever he had chosen, but in a sensible portion). The thing is, that we can manage this. We're now a few months into weekly menus for lunch and breakfast (he eats supper with us in the house) but what about all those in Jeremy's shoes, who live alone, who's carers aren't in the position to act in their best interests?! It boggles my mind and makes me think, however hard we have it, someone always had it tougher. X
Last night I went out for supper with friends, Jeremy was home alone. Strictly is back on so Jeremy was pretty happy watching that and cooking a cottage pie that mum made earlier! It wasn't until we woke up this morning that we discovered not only did he eat the cottage pie but also a baked potato, and a bag of oven chips... As well as raiding the house for crisps and various other excitements which we are yet to notice. This being a problem because Jeremy is an insulin dependent diabetic who's blood sugar level is mainly affected by carbs! When Jeremy lived in independent living he ran his own menu and ended up putting on 2 stone of weight through his midnight feasts and questionable portion size and we've worked hard to lose the weight and keep it off. The tricky thing is where we draw the line, because, he is an adult, he can make his own choices, but we're not exactly sure he has the capacity to realise the consequences of his actions. Some days he can comprehend.. And some days definitely not.. So as his family we're left in a difficult position of having to try to lead him to make good life choices, but not always being able to make them for him. It's really hard, and we spend a huge amount of time working often against him, but in his best interest. For example, Jeremy now will have no food in his flat, apart from his breakfast for the next day. Every evening mum has to issue him with 2 pieces of bread for the next day (or whatever he had chosen, but in a sensible portion). The thing is, that we can manage this. We're now a few months into weekly menus for lunch and breakfast (he eats supper with us in the house) but what about all those in Jeremy's shoes, who live alone, who's carers aren't in the position to act in their best interests?! It boggles my mind and makes me think, however hard we have it, someone always had it tougher. X
Doing well with his sandwich some days he struggles more but he loves his food so never gives up lol ๐Ÿ˜‚๐Ÿท๐ŸŒฏ๐Ÿช๐Ÿผ #jax #downsyndromeawareness #homiewithanextrachromie
When you are at a country girl's wedding,  you have to know how to fit in.

#downsyndrome #theluckyfew #nothingdownaboutit #babiesofig #instababies #cutebaby #morealikethandifferent #lifeisbetterwithyou #homiewithanextrachromie #babyboy
โ˜€๏ธ
โ˜€๏ธ
Lunch date with little Miss Sophia, always playtime with this jellybean. #homiewithanextrachromie
Isaac's dream came true today-he met the Okee Dokee Brothers! He faithfully listens to them every morning at breakfast and in the van. He had the time of his life โค  #okeedokeebrothers #biggestfan #homiewithanextrachromie