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Happy 26th Birthday to me! As I reflect on this year it would be easy to say that it has been one of the hardest years of my life but that is simply not true! I got an amazing new job, made new friends, fostered old friendships, went to Disney World with my favorite people, explored Washington DC, Ohio Bike Week, Put-In-Bay, Geneva on the Lake, got engaged to a wonderful man, and my relationship with my father has been reconciled after two decades of estrangement. Yes this surgery was ugly, tough, and I am still learning new ways to cope every day but this year has had MANY more ups than downs. I am so thankful for all of the good things that 2017 has brought. Let’s party!
Happy 26th Birthday to me! As I reflect on this year it would be easy to say that it has been one of the hardest years of my life but that is simply not true! I got an amazing new job, made new friends, fostered old friendships, went to Disney World with my favorite people, explored Washington DC, Ohio Bike Week, Put-In-Bay, Geneva on the Lake, got engaged to a wonderful man, and my relationship with my father has been reconciled after two decades of estrangement. Yes this surgery was ugly, tough, and I am still learning new ways to cope every day but this year has had MANY more ups than downs. I am so thankful for all of the good things that 2017 has brought. Let’s party!
::: 25 weeks! :::
This week: we finally left hospital, moved back in with the in-laws, visited home (here) to water the garden & dust & tidy & prepare for moving home hopefully next week, I cooked for the first time in months, burnt my hand but also made a beautiful meal, I had normal pregnancy back aches & sore feet, I had sleepless hours and I slept the whole night through (my first time in months! 8 hours straight -bliss!), I was interviewed by two reporters, I couldn't answer some of your calls, I savoured a meal at the local country pub with my love and our pup watching the sunset purple and the kangaroos on the hill, I savoured eating in general, I suffered pain when I accidentally ate poppy seeds and they scraped through my intestines, I received the first amazing meals from dear friends who have gotten together and rostered a schedule to help feed us each week, I walked at the creek with my loves and watched Toff swimming with the ducks, I've had many naps, I've had times where I've been too anxious to nap or do much, I finished a loom weaving and started another one, I've done many squats and physio exercises, I've been too tired to do anything, I've grounded myself barefoot outside, I've stroked sage, salvia and thyme leaves, I've hung out in my garden just staring at the colours, I've felt the baby kicking stronger each day, I've done qigong in the morning sun, I cried by myself in a dark room, I had a panic attack as the shock of being colon-less catches up with me, I've felt safe and hopeful in my love's arms, I've felt every emotion under the sun.
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And I'm so grateful to be here feeling it all!
::: 25 weeks! ::: This week: we finally left hospital, moved back in with the in-laws, visited home (here) to water the garden & dust & tidy & prepare for moving home hopefully next week, I cooked for the first time in months, burnt my hand but also made a beautiful meal, I had normal pregnancy back aches & sore feet, I had sleepless hours and I slept the whole night through (my first time in months! 8 hours straight -bliss!), I was interviewed by two reporters, I couldn't answer some of your calls, I savoured a meal at the local country pub with my love and our pup watching the sunset purple and the kangaroos on the hill, I savoured eating in general, I suffered pain when I accidentally ate poppy seeds and they scraped through my intestines, I received the first amazing meals from dear friends who have gotten together and rostered a schedule to help feed us each week, I walked at the creek with my loves and watched Toff swimming with the ducks, I've had many naps, I've had times where I've been too anxious to nap or do much, I finished a loom weaving and started another one, I've done many squats and physio exercises, I've been too tired to do anything, I've grounded myself barefoot outside, I've stroked sage, salvia and thyme leaves, I've hung out in my garden just staring at the colours, I've felt the baby kicking stronger each day, I've done qigong in the morning sun, I cried by myself in a dark room, I had a panic attack as the shock of being colon-less catches up with me, I've felt safe and hopeful in my love's arms, I've felt every emotion under the sun. ... And I'm so grateful to be here feeling it all!
•Is my bag permanent? -YES
•Did I choose to have a bag? -NO
•Did I thought my life would end if I got one? -YES

And, did it? 
NOT EVEN CLOSE!

Although I had several  complications after my first ileostomy surgery, and still have strictures, the alternative was way waaaaayyy worse! ⬇️ Before ileostomy I got out of bed and had to use the restroom until I was totally empty, it took me hours. After being empty I ate as little as possible to get trough the day without having to go over and over again! Of course my energy level was about zero. I'm not talking about some days, this was everyday life for me, I never had 'normal stool'.
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If I could do it over again, I would CHOOSE my bag, and way sooner!
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Why didn't I?
Doctors talk about it like it's a dead sentence.
It affects your life getting one they say, but what if your quality of life is already really bad? 
Doctors should not talk about it like it's the end of the world, a last resort. 
It was the beginning of a whole better world for me and I know so many of you also think about it this way right?! 💜

#ileostomy #crohns
•Is my bag permanent? -YES •Did I choose to have a bag? -NO •Did I thought my life would end if I got one? -YES And, did it? NOT EVEN CLOSE! Although I had several complications after my first ileostomy surgery, and still have strictures, the alternative was way waaaaayyy worse! ⬇️ Before ileostomy I got out of bed and had to use the restroom until I was totally empty, it took me hours. After being empty I ate as little as possible to get trough the day without having to go over and over again! Of course my energy level was about zero. I'm not talking about some days, this was everyday life for me, I never had 'normal stool'. . If I could do it over again, I would CHOOSE my bag, and way sooner! . Why didn't I? Doctors talk about it like it's a dead sentence. It affects your life getting one they say, but what if your quality of life is already really bad? Doctors should not talk about it like it's the end of the world, a last resort. It was the beginning of a whole better world for me and I know so many of you also think about it this way right?! 💜 #ileostomy  #crohns 
🏥 Thank you for all the good luck wishes! I had a good report yesterday! My large and small intestine show NO inflammation! The pictures were so pretty lol, who ever thought it that would be something I would say. No cobblestoning or strictures or fistulas! My colon looked so healthy! 👏🏻 My dr did a couple biopsies to see if there is any microscopic evidence of Crohn’s but otherwise, such good news! #Remicade is working!!! 💯❗️The only thing that was unexpected is the nurses said I was calling my doctor by his first name and that I also called him “Babe” when I was coming out of anesthesia! 🤪❤️👨🏻‍⚕️💕😂
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#courtneyscrohns #crohns #crohnsdisease #spoonie #biologics #ibd #ibdawareness #chronicpain #chronicillness #invisibledisease #spoonie #spoonielife #crohnslife #crohnsawareness #crohnswarrior #crohns #remicade #autoimmunedisease #autoimmunestrong #invisibleillness #ibdvisible #girlswithguts #ileostomyreversal #ileostomy #stoma #ostomy #ostomate #spooniestrong #ostomyawareness  #lifetakesguts #colonoscopy
🏥 Thank you for all the good luck wishes! I had a good report yesterday! My large and small intestine show NO inflammation! The pictures were so pretty lol, who ever thought it that would be something I would say. No cobblestoning or strictures or fistulas! My colon looked so healthy! 👏🏻 My dr did a couple biopsies to see if there is any microscopic evidence of Crohn’s but otherwise, such good news! #Remicade  is working!!! 💯❗️The only thing that was unexpected is the nurses said I was calling my doctor by his first name and that I also called him “Babe” when I was coming out of anesthesia! 🤪❤️👨🏻‍⚕️💕😂 . . . . #courtneyscrohns  #crohns  #crohnsdisease  #spoonie  #biologics  #ibd  #ibdawareness  #chronicpain  #chronicillness  #invisibledisease  #spoonie  #spoonielife  #crohnslife  #crohnsawareness  #crohnswarrior  #crohns  #remicade  #autoimmunedisease  #autoimmunestrong  #invisibleillness  #ibdvisible  #girlswithguts  #ileostomyreversal  #ileostomy  #stoma  #ostomy  #ostomate  #spooniestrong  #ostomyawareness  #lifetakesguts  #colonoscopy 
Like Ellie, do you want to fund vital research and get your Star of hope? . . .
⛤ Text HOPE to 70500 to give £10 ⛤

100% of all donations will fund pioneering research. There is no known cure for Crohn’s or Colitis - our research gives real hope but we urgently need your help. Thank you 💜 (Texts cost your donation plus one standard rate message. The charity will receive 100% of the donation. Always get the bill payer's permission. UK only)

#IBDhope #crohns #colitis #IBD #crohnsandcolitisuk #research #researchgivesmehope #crohnsawareness #colitisawareness #IBDawareness #starofhope #IBDstar #christmasstar  #crohnsdisease #ulcerativecolitis
Like Ellie, do you want to fund vital research and get your Star of hope? . . . ⛤ Text HOPE to 70500 to give £10 ⛤ 100% of all donations will fund pioneering research. There is no known cure for Crohn’s or Colitis - our research gives real hope but we urgently need your help. Thank you 💜 (Texts cost your donation plus one standard rate message. The charity will receive 100% of the donation. Always get the bill payer's permission. UK only) #IBDhope  #crohns  #colitis  #IBD  #crohnsandcolitisuk  #research  #researchgivesmehope  #crohnsawareness  #colitisawareness  #IBDawareness  #starofhope  #IBDstar  #christmasstar  #crohnsdisease  #ulcerativecolitis 
Sometimes a girl just needs a great big bowl of pasta 🍝. GF of course. BUT ya know what I mean?! 🙋🏻‍♀️
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Home made tomato sauce with ground chicken. This sauce was epic. 💥The perfect meal to cozy up to with all this snow ❄️ we’ve been getting lately. What’s your fav comfort food?!? 👇🏻
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#balancedbykayla #ulcerativecolitis #crohnsdisease #uc #candidacleanse #inflammatoryboweldisease #ibs #ibd #colonoscopy #celiac #ibdawareness #ulcerativecolitisawareness #holisticnutrition #bioenergetics #biohacking #allergies #guthealth #microbiome #BIE #bioenergeticintoleranceelimination #energywork #kwawesome
Sometimes a girl just needs a great big bowl of pasta 🍝. GF of course. BUT ya know what I mean?! 🙋🏻‍♀️ . . Home made tomato sauce with ground chicken. This sauce was epic. 💥The perfect meal to cozy up to with all this snow ❄️ we’ve been getting lately. What’s your fav comfort food?!? 👇🏻 . . #balancedbykayla  #ulcerativecolitis  #crohnsdisease  #uc  #candidacleanse  #inflammatoryboweldisease  #ibs  #ibd  #colonoscopy  #celiac  #ibdawareness  #ulcerativecolitisawareness  #holisticnutrition  #bioenergetics  #biohacking  #allergies  #guthealth  #microbiome  #BIE  #bioenergeticintoleranceelimination  #energywork  #kwawesome 
I got the best visitors for dinner tonight ❤️ #hospitalstayssuck #crohnsfighter #ibdawareness
Surgery is next Friday, this is where my stoma will be. I’m super excited to feel better finally but I’m also really nervous since this will be my first big surgery! 💜 #ostomy #ibdawareness #ulcerativecolitis  #chronsandcolitis
George St-Pierre a UFC Fighter has just confirmed he needs to take time away from the sport to try and focus on getting his Ulcerative Colitis under control. Just goes to show this disease brings down the toughest of people! Wishing him all the best in his health journey and getting himself back up there doing what he loves. Can I just say.. What a tough bloke!! Having this disease and doing such an extreme sport would have to be tremendously hard so my hat goes off to him! 💪🏼👊🏼💜#fighttheflare #ibdawareness
#crohnsandcolitis #ibdwarriors #findacure #crohnsandcolitisawareness #ulcerativecolitis #crohns #crohnsdisease #invisibledisease
George St-Pierre a UFC Fighter has just confirmed he needs to take time away from the sport to try and focus on getting his Ulcerative Colitis under control. Just goes to show this disease brings down the toughest of people! Wishing him all the best in his health journey and getting himself back up there doing what he loves. Can I just say.. What a tough bloke!! Having this disease and doing such an extreme sport would have to be tremendously hard so my hat goes off to him! 💪🏼👊🏼💜#fighttheflare  #ibdawareness  #crohnsandcolitis  #ibdwarriors  #findacure  #crohnsandcolitisawareness  #ulcerativecolitis  #crohns  #crohnsdisease  #invisibledisease 
Well so much for that hope for good lab work. My hospital standard is seeing your HGB around a 12 as a "normal low". Blood transfusion (2 units) and iron infusion tomorrow, they really jumped on this.

Also, a series of brain thoughts after seeing this along with the other results that came back.

The good news, I really am getting better at picking up when my body is sending a significant "F you!" to me. 😂😩
Well so much for that hope for good lab work. My hospital standard is seeing your HGB around a 12 as a "normal low". Blood transfusion (2 units) and iron infusion tomorrow, they really jumped on this. Also, a series of brain thoughts after seeing this along with the other results that came back. The good news, I really am getting better at picking up when my body is sending a significant "F you!" to me. 😂😩
::: 25 weeks! :::
This week: we finally left hospital, moved back in with the in-laws, visited home (here) to water the garden & dust & tidy & prepare for moving home hopefully next week, I cooked for the first time in months, burnt my hand but also made a beautiful meal, I had normal pregnancy back aches & sore feet, I had sleepless hours and I slept the whole night through (my first time in months! 8 hours straight -bliss!), I was interviewed by two reporters, I couldn't answer some of your calls, I savoured a meal at the local country pub with my love and our pup watching the sunset purple and the kangaroos on the hill, I savoured eating in general, I suffered pain when I accidentally ate poppy seeds and they scraped through my intestines, I received the first amazing meals from dear friends who have gotten together and rostered a schedule to help feed us each week, I walked at the creek with my loves and watched Toff swimming with the ducks, I've had many naps, I've had times where I've been too anxious to nap or do much, I finished a loom weaving and started another one, I've done many squats and physio exercises, I've been too tired to do anything, I've grounded myself barefoot outside, I've stroked sage, salvia and thyme leaves, I've hung out in my garden just staring at the colours, I've felt the baby kicking stronger each day, I've done qigong in the morning sun, I cried by myself in a dark room, I had a panic attack as the shock of being colon-less catches up with me, I've felt safe and hopeful in my love's arms, I've felt every emotion under the sun.
...
And I'm so grateful to be here feeling it all!
::: 25 weeks! ::: This week: we finally left hospital, moved back in with the in-laws, visited home (here) to water the garden & dust & tidy & prepare for moving home hopefully next week, I cooked for the first time in months, burnt my hand but also made a beautiful meal, I had normal pregnancy back aches & sore feet, I had sleepless hours and I slept the whole night through (my first time in months! 8 hours straight -bliss!), I was interviewed by two reporters, I couldn't answer some of your calls, I savoured a meal at the local country pub with my love and our pup watching the sunset purple and the kangaroos on the hill, I savoured eating in general, I suffered pain when I accidentally ate poppy seeds and they scraped through my intestines, I received the first amazing meals from dear friends who have gotten together and rostered a schedule to help feed us each week, I walked at the creek with my loves and watched Toff swimming with the ducks, I've had many naps, I've had times where I've been too anxious to nap or do much, I finished a loom weaving and started another one, I've done many squats and physio exercises, I've been too tired to do anything, I've grounded myself barefoot outside, I've stroked sage, salvia and thyme leaves, I've hung out in my garden just staring at the colours, I've felt the baby kicking stronger each day, I've done qigong in the morning sun, I cried by myself in a dark room, I had a panic attack as the shock of being colon-less catches up with me, I've felt safe and hopeful in my love's arms, I've felt every emotion under the sun. ... And I'm so grateful to be here feeling it all!
Doctor went ahead and prescribed B12 shots. I'm so ready to stop feeling so exhausted all the time! You know it's bad when taking a shower makes you tired. Haha! Pitiful. 🙃 Meet with the nurse Friday for her to show me how to do the injections. 
One shot per day for seven days, one shot once a week for three weeks, then once a month thereafter. I have to say, I'm a bit apprehensive about the size of this needle though. 😱 Meh oh well, I'll get over it...small price to pay to feel more normal again. Can't wait to say goodbye to that heard of elephants that's been sitting and pushing against my body. 😜 
#shebelievedshecouldsoshedid #remission #crohnsdisease #ibdcantstopme #arthritis #spoonie #spooniesunite #spoonieforlife #invisibleillness #sickbutinvisible #chronicillness #ibd #arthritissucks #autoimmunedisease #ibdawareness #IBDvisible #entyvio
Doctor went ahead and prescribed B12 shots. I'm so ready to stop feeling so exhausted all the time! You know it's bad when taking a shower makes you tired. Haha! Pitiful. 🙃 Meet with the nurse Friday for her to show me how to do the injections. One shot per day for seven days, one shot once a week for three weeks, then once a month thereafter. I have to say, I'm a bit apprehensive about the size of this needle though. 😱 Meh oh well, I'll get over it...small price to pay to feel more normal again. Can't wait to say goodbye to that heard of elephants that's been sitting and pushing against my body. 😜 #shebelievedshecouldsoshedid  #remission  #crohnsdisease  #ibdcantstopme  #arthritis  #spoonie  #spooniesunite  #spoonieforlife  #invisibleillness  #sickbutinvisible  #chronicillness  #ibd  #arthritissucks  #autoimmunedisease  #ibdawareness  #IBDvisible  #entyvio 
⚠️WARNING⚠️ graphic colon picture ahead! This picture is for anyone who has ever looked at me and thought, you don’t LOOK sick! Well...it’s official, this grouch is sticking with her pouch for life! On Tuesday, I had my colon, anus, and rectum removed and based on the looks of my colon in the second picture, my surgeon and I are feeling like this was the right decision. After a long day in the OR, I had a pretty good first night and was able to rest comfortably thanks to my wonderful nurses. Day one post op also went well...after getting over my initial fear of getting up and moving around, I was able to get washed up and took 5 walks around the halls, feeling more confident with each trip! I feel like my pain is present but manageable. Still on a clear liquid diet, but haven’t experienced any pain or nausea with eating, so I am hopeful that my next step is getting back to eating solids! Current mindset: one day at a time! 💜💩✨but seriously...look at the state of that colon...good riddance! It looks like some sort of nasty sci-fi reptile, but for some reason I can’t look away! 😝#nocolonstillrollin
⚠️WARNING⚠️ graphic colon picture ahead! This picture is for anyone who has ever looked at me and thought, you don’t LOOK sick! Well...it’s official, this grouch is sticking with her pouch for life! On Tuesday, I had my colon, anus, and rectum removed and based on the looks of my colon in the second picture, my surgeon and I are feeling like this was the right decision. After a long day in the OR, I had a pretty good first night and was able to rest comfortably thanks to my wonderful nurses. Day one post op also went well...after getting over my initial fear of getting up and moving around, I was able to get washed up and took 5 walks around the halls, feeling more confident with each trip! I feel like my pain is present but manageable. Still on a clear liquid diet, but haven’t experienced any pain or nausea with eating, so I am hopeful that my next step is getting back to eating solids! Current mindset: one day at a time! 💜💩✨but seriously...look at the state of that colon...good riddance! It looks like some sort of nasty sci-fi reptile, but for some reason I can’t look away! 😝#nocolonstillrollin 
Happy hump day! I have been thinking about this statement a lot lately... I just started doing some soft stretches to ease back into exercise. Literally just sitting on my butt legs out reaching to the sky then touching my toes and a few cat cow’s (on hands and knees arching back in and out) seriously only repeat the stretch 4 times. But my abs have been HURTING and last night it was waking me up and the past couple of afternoons it has been worst after I get off work.. and I have a desk job! It is very discouraging because I am terrified of making my internal inflammation worse and having another blockage. Also scared because every little pain or twinge makes me worry I’m about to have another blockage... I’m also still super worried about everything I eat and have not been introducing any new things... I don’t want to live my life in fear but man I hated that effing NG tube up my nose! ...how to worry less... that is today’s question! .
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#ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #barbiebutt #mcv #vcu #richmond #rva #life #livinglife #lovinglife
Happy hump day! I have been thinking about this statement a lot lately... I just started doing some soft stretches to ease back into exercise. Literally just sitting on my butt legs out reaching to the sky then touching my toes and a few cat cow’s (on hands and knees arching back in and out) seriously only repeat the stretch 4 times. But my abs have been HURTING and last night it was waking me up and the past couple of afternoons it has been worst after I get off work.. and I have a desk job! It is very discouraging because I am terrified of making my internal inflammation worse and having another blockage. Also scared because every little pain or twinge makes me worry I’m about to have another blockage... I’m also still super worried about everything I eat and have not been introducing any new things... I don’t want to live my life in fear but man I hated that effing NG tube up my nose! ...how to worry less... that is today’s question! . . . . . #ibd  #ibdawareness  #ibdwarrior  #crohns  #crohnsdisease  #cdiff  #ileostomy  #permanentileostomy  #ostomy  #ostomate  #ostomyawareness  #chronicillness  #chronicpain  #invisibleillness  #stoma  #meatballthestoma  #proctocolectomy  #barbiebutt  #mcv  #vcu  #richmond  #rva  #life  #livinglife  #lovinglife 
Usually I’d splurge on my birthday...but not this year 👊🏻
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I want to treat my body right. 
I want to feel my best. 
I want to know what I’m putting inside me.
I want to live, in the best way I know how.
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These Lucy-friendly deserts (lolz🤷🏽‍♀️) are only made with almond and coconut flour, nuts, dates, and some organic local honey! .
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And trust me, 10% of the time, I do splurge 😛 
#teamabetteryoufitness
Usually I’d splurge on my birthday...but not this year 👊🏻 . . I want to treat my body right. I want to feel my best. I want to know what I’m putting inside me. I want to live, in the best way I know how. . . These Lucy-friendly deserts (lolz🤷🏽‍♀️) are only made with almond and coconut flour, nuts, dates, and some organic local honey! . . And trust me, 10% of the time, I do splurge 😛 #teamabetteryoufitness 
So after 7 and a half years of being diagnosed with chronic crohns disease and being in my latest flare which has lasted 9 months and is still ongoing, I decided to document my story so far and help others in the same situation. #crohns #crohnsdisease #crohnslife #crohnssucks #crohnsawareness #ibdawareness #crohnsdiseasesucks
Happy Tummy🌱💚
Happy Tummy🌱💚
Arm day and the tenth trip to the bathroom are basically the same thing right? #crohnsiscray #armday
Arm day and the tenth trip to the bathroom are basically the same thing right? #crohnsiscray  #armday 
I forget, folks don't see my smile when I wear this. So I probably just look like I'm intently and awkwardly staring at them.

Standard lab work up today. Iron and anemia, where you at? Hopefully no where visible in my results...
I forget, folks don't see my smile when I wear this. So I probably just look like I'm intently and awkwardly staring at them. Standard lab work up today. Iron and anemia, where you at? Hopefully no where visible in my results...
Sorry for the graphic pic, although I know it's nothing the fam hasn't  seen before :).....this is when you go from I "think" I have pouchitis (watery stool, bathroom trips double sometimes triple, only emptying 1/2 of a pouch worth of stool, pouch pain ow, swollen lymph nodes in neck, feeling physically drained comparable to a physical fight, runny nose/cold symptoms, and of course blood)  to yeah it's like 90% pouchitis. Those symptoms are how pouchitis develops for me, almost exactly. It was just a few days ago I was saying "it may be  either a cold or pouchitis". A heads up for those who are learning their j pouch what to look for. Pouchitis is common, I've had it once before and it goes away with antibiotics, don't fret friend's.  Doctor called back as I was writing this :) #crohnslife #crohns #crohnsdisease #colitis #ibd #health #wellness #ibdawareness  #ibdawarenessweek
#chronsdisease #crohnswarrior  #invisibleillness #wellness #health #keepfighting #strong #community#autoimmune #colitiswarrior #ibs #stomach #humira
Sorry for the graphic pic, although I know it's nothing the fam hasn't seen before :).....this is when you go from I "think" I have pouchitis (watery stool, bathroom trips double sometimes triple, only emptying 1/2 of a pouch worth of stool, pouch pain ow, swollen lymph nodes in neck, feeling physically drained comparable to a physical fight, runny nose/cold symptoms, and of course blood) to yeah it's like 90% pouchitis. Those symptoms are how pouchitis develops for me, almost exactly. It was just a few days ago I was saying "it may be either a cold or pouchitis". A heads up for those who are learning their j pouch what to look for. Pouchitis is common, I've had it once before and it goes away with antibiotics, don't fret friend's. Doctor called back as I was writing this :) #crohnslife  #crohns  #crohnsdisease  #colitis  #ibd  #health  #wellness  #ibdawareness  #ibdawarenessweek  #chronsdisease  #crohnswarrior  #invisibleillness  #wellness  #health  #keepfighting  #strong  #community #autoimmune  #colitiswarrior  #ibs  #stomach  #humira 
Thank you to all the patients, families and supporters who have donated to help find a cure, and a MAJOR thank you to Chris Pedicone who goes above and beyond. Today I got to help deliver a large check to Cincinnati Children's Hospital Medical Center from CURE for IBD - Crohn's & Colitis Research Foundation for more research and work towards a cure. #cureforibd #curesforibdsooner

They were so kind and we even got heart shaped Christmas ornaments to take home, made by the Cincinnati Children's Champions.

Note: we took a serious photo but we also took one with a print out of Chris's face I brought with me so he could be with us for the day. 🤣 
DONATE. RESEARCH. CURE. 
https://cureforibd.donordrive.com/index.cfm?fuseaction=donorDrive.personalCampaign&participantID=1064
Thank you to all the patients, families and supporters who have donated to help find a cure, and a MAJOR thank you to Chris Pedicone who goes above and beyond. Today I got to help deliver a large check to Cincinnati Children's Hospital Medical Center from CURE for IBD - Crohn's & Colitis Research Foundation for more research and work towards a cure. #cureforibd  #curesforibdsooner  They were so kind and we even got heart shaped Christmas ornaments to take home, made by the Cincinnati Children's Champions. Note: we took a serious photo but we also took one with a print out of Chris's face I brought with me so he could be with us for the day. 🤣 DONATE. RESEARCH. CURE. https://cureforibd.donordrive.com/index.cfm?fuseaction=donorDrive.personalCampaign&participantID=1064
I had my third Infusion yesterday (first was in the hospital, second was two weeks after that). When I had my second infusion, I was still in fairly bad shape: I was on a low-fiber diet, I wasn’t exercising, I wasn’t leaving the house, and I barely moved from my bed. After starting to add more foods to my diet, I was able to find more energy. I have since found my way back into the gym and started working hard (especially to get rid of this prednisone fat)! Along with the changes in my body, I have noticed drastic changes in my mood. Today has been a million times better than my last post-infusion day, which I spent wallowing on the couch and in and out of a deep sleep all day. While I was still groggy today and managed to pass out on the couch a bit, there has been a huge difference in my mental state. Additionally, I am back on 50mg dose of Prednisone at the moment, but the side effects from those disgusting little bastards are not impacting me as heavily as they did the first time around. I am not finding myself in as many bouts of unexplainable depression, nor am I struggling with rage as much as I had. While the side effects are still present (brain fog and insomnia), I believe I have to thank the gym for the place I am at mentally now. Yes, I have achieved where I am at all on my own, but being able to move my body and get out of the house has made an unbelievable difference in my well being. Of course, there are moments when my colitis likes to me remind it’s not going anywhere and there are moments in which I have to listen to what my body is telling me; but life is so much better than it was a month ago!!! In addition to being in the gym again, I am more confident in my body than I ever have been before (even at my leanest), which is shocking considering my body has betrayed me so much so recently. 😆 There is quite a bit of fat I need to lose and muscle I need to gain back, but I am in love with the process all over again. I am finding myself more confident because I feel as though my body has been through absolute hell, but it is still kickin’; I AM STILL KICKIN’! 👊🏻
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📷: Post Workout selfie! 🤳🏻
I had my third Infusion yesterday (first was in the hospital, second was two weeks after that). When I had my second infusion, I was still in fairly bad shape: I was on a low-fiber diet, I wasn’t exercising, I wasn’t leaving the house, and I barely moved from my bed. After starting to add more foods to my diet, I was able to find more energy. I have since found my way back into the gym and started working hard (especially to get rid of this prednisone fat)! Along with the changes in my body, I have noticed drastic changes in my mood. Today has been a million times better than my last post-infusion day, which I spent wallowing on the couch and in and out of a deep sleep all day. While I was still groggy today and managed to pass out on the couch a bit, there has been a huge difference in my mental state. Additionally, I am back on 50mg dose of Prednisone at the moment, but the side effects from those disgusting little bastards are not impacting me as heavily as they did the first time around. I am not finding myself in as many bouts of unexplainable depression, nor am I struggling with rage as much as I had. While the side effects are still present (brain fog and insomnia), I believe I have to thank the gym for the place I am at mentally now. Yes, I have achieved where I am at all on my own, but being able to move my body and get out of the house has made an unbelievable difference in my well being. Of course, there are moments when my colitis likes to me remind it’s not going anywhere and there are moments in which I have to listen to what my body is telling me; but life is so much better than it was a month ago!!! In addition to being in the gym again, I am more confident in my body than I ever have been before (even at my leanest), which is shocking considering my body has betrayed me so much so recently. 😆 There is quite a bit of fat I need to lose and muscle I need to gain back, but I am in love with the process all over again. I am finding myself more confident because I feel as though my body has been through absolute hell, but it is still kickin’; I AM STILL KICKIN’! 👊🏻 . . 📷: Post Workout selfie! 🤳🏻
Cheeeers to one month off steroids🥂 not going to lie, been the moodiest cow at times and probably super hard to live with but thankyou for putting up with me! Also lost 13Ilbs in 4 weeks eeek so happy!❤️😊
Cheeeers to one month off steroids🥂 not going to lie, been the moodiest cow at times and probably super hard to live with but thankyou for putting up with me! Also lost 13Ilbs in 4 weeks eeek so happy!❤️😊
Getting into the festive spirit and wearing a red skater dress from @primark, black tights and black ankle boots
#ootd #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags
What was the first thought that popped into your head when you saw this? What were you hoping I’d say? What were you wanting to know more about? Drop it below and I shall answer!!! .
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#ibs
#irritablebowel
#irritablebowelsyndrome
#ibd
#irritableboweldisease
#ibsawareness
#ibdawareness
#ibssucks 
#ibsdiaries 
#ibsdiet 
#ibsrecipe
#ibdsucks 
#ibddiet 
#ibswarrior 
#ibdwarrior 
#ibsfriendly 
#ibdfriendly
#ibsfighter
#ibdfighter 
#ibsmoments
#guthealth
#guthealthy
#guthealthiskey 
#lowfodmapdiet 
#lowfodmapliving
#lowfodmapfriendly
What was the first thought that popped into your head when you saw this? What were you hoping I’d say? What were you wanting to know more about? Drop it below and I shall answer!!! . . . . #ibs  #irritablebowel  #irritablebowelsyndrome  #ibd  #irritableboweldisease  #ibsawareness  #ibdawareness  #ibssucks  #ibsdiaries  #ibsdiet  #ibsrecipe  #ibdsucks  #ibddiet  #ibswarrior  #ibdwarrior  #ibsfriendly  #ibdfriendly  #ibsfighter  #ibdfighter  #ibsmoments  #guthealth  #guthealthy  #guthealthiskey  #lowfodmapdiet  #lowfodmapliving  #lowfodmapfriendly 
Prednisone is pretty fucked up! 💊

In the left pic I came out of a prednisone boost, it was already many many months after, but I still didn't recognize my body. 
And you know what the most fucked up part of it all is?
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When I look at my right picture from recently, all I can think is "Well yeah, the lighting is just way better, I know how to pose a bit, but I look exactly te same!" Prednisone gave me big time body dysmorphia, and not only about my body, also about my face! 
For years and years I was so ashamed of my huge head, which was already far gone, but I still saw and even see it regularly! One day I will post a (very bad quality unfortunately) picture of my prednisone face at it's worse. Maybe you'll understand why this affected me so much especially because it was for such a long period of time at such a young age (12 years old, 80mg pred) and in highschool being told you are a monster, a pig, yeah that stayed in my head.

And most of you will think, well you should see a specialist about that. NO! I'm doing this at my own paste, in my own way, and EVERY day I'm getting better in coming to terms with myself! ❤
DON'T JUDGE PLEASE! 
This is my journey, which will be a life long one I assume, but I don't care, I fight, I win! THE END! 💯

Why I tell you guys all this? The side affects from drugs should not be underestimated, definitely not for children who can't choose with full concent knowing what it means taking the medications that are prescribed by doctors!
Prednisone is pretty fucked up! 💊 In the left pic I came out of a prednisone boost, it was already many many months after, but I still didn't recognize my body. And you know what the most fucked up part of it all is? . . When I look at my right picture from recently, all I can think is "Well yeah, the lighting is just way better, I know how to pose a bit, but I look exactly te same!" Prednisone gave me big time body dysmorphia, and not only about my body, also about my face! For years and years I was so ashamed of my huge head, which was already far gone, but I still saw and even see it regularly! One day I will post a (very bad quality unfortunately) picture of my prednisone face at it's worse. Maybe you'll understand why this affected me so much especially because it was for such a long period of time at such a young age (12 years old, 80mg pred) and in highschool being told you are a monster, a pig, yeah that stayed in my head. And most of you will think, well you should see a specialist about that. NO! I'm doing this at my own paste, in my own way, and EVERY day I'm getting better in coming to terms with myself! ❤ DON'T JUDGE PLEASE! This is my journey, which will be a life long one I assume, but I don't care, I fight, I win! THE END! 💯 Why I tell you guys all this? The side affects from drugs should not be underestimated, definitely not for children who can't choose with full concent knowing what it means taking the medications that are prescribed by doctors!
I believe in the sun
even when it is not shining
And I believe in love,
even when there’s no one there.
And I believe in God,
even when he is silent.

I believe through any trial,
there is always a way
But sometimes in this suffering
and hopeless despair
My heart cries for shelter,
to know someone’s there
But a voice rises within me, saying hold on
my child, I’ll give you strength,
I’ll give you hope. Just stay a little while.

I believe in the sun
even when it is not shining
And I believe in love
even when there’s no one there
But I believe in God
even when he is silent
I believe through any trial
there is always a way.

May there someday be sunshine
May there someday be happiness
May there someday be love
May there someday be peace….” – Uknown
I believe in the sun even when it is not shining And I believe in love, even when there’s no one there. And I believe in God, even when he is silent. I believe through any trial, there is always a way But sometimes in this suffering and hopeless despair My heart cries for shelter, to know someone’s there But a voice rises within me, saying hold on my child, I’ll give you strength, I’ll give you hope. Just stay a little while. I believe in the sun even when it is not shining And I believe in love even when there’s no one there But I believe in God even when he is silent I believe through any trial there is always a way. May there someday be sunshine May there someday be happiness May there someday be love May there someday be peace….” – Uknown
3 years of complete stagnation via illness, well if being bed ridden is considered stagnant. I was getting on the fire Dept in NY and NC (dream job decisions) when the flare from hell decided to dawn upon me. I went from a bodybuilder at 195lbs and 14% body fat to a 110 lb frail, barely mobile, blood losing, shit spewing, food rejecting ghost of a man.. I delayed the use of biologicals for so long  in fear of their side effects. When those failed I delayed the removal of my large intestine as long as possible, these delays caused me to get close to death before the medication or surgery were absolutely required. So here I am almost 30 and starting at square one, it scares the heck out of me...but if I'm already at the bottom  I presume the only way to go is up, just have some figuring out to do, does anyone with a j pouch think certain occupations are off limits for us? If so I'd love to hear 
#crohnslife #crohns #crohnsdisease #colitis #ibd #health #wellness #ibdawareness  #ibdawarenessweek
#chronsdisease #crohnswarrior  #invisibleillness #wellness #health #keepfighting #strong #community#autoimmune #colitiswarrior #ibs #stomach#humira#remicade#infusion#illness
3 years of complete stagnation via illness, well if being bed ridden is considered stagnant. I was getting on the fire Dept in NY and NC (dream job decisions) when the flare from hell decided to dawn upon me. I went from a bodybuilder at 195lbs and 14% body fat to a 110 lb frail, barely mobile, blood losing, shit spewing, food rejecting ghost of a man.. I delayed the use of biologicals for so long in fear of their side effects. When those failed I delayed the removal of my large intestine as long as possible, these delays caused me to get close to death before the medication or surgery were absolutely required. So here I am almost 30 and starting at square one, it scares the heck out of me...but if I'm already at the bottom I presume the only way to go is up, just have some figuring out to do, does anyone with a j pouch think certain occupations are off limits for us? If so I'd love to hear #crohnslife  #crohns  #crohnsdisease  #colitis  #ibd  #health  #wellness  #ibdawareness  #ibdawarenessweek  #chronsdisease  #crohnswarrior  #invisibleillness  #wellness  #health  #keepfighting  #strong  #community #autoimmune  #colitiswarrior  #ibs  #stomach #humira #remicade #infusion #illness 
Saw this and I thought it would give you all a laugh! #ibd #ibdawareness #crohnsdisease #bloatedbelly
Does anybody meditate? Do you feel it helps you? How did you start doing it? I've been meaning to give it a whirl this and yoga... Any info on either fam?

#crohnslife #crohns #crohnsdisease #colitis #ibd #health #wellness #ibdawareness  #ibdawarenessweek
#chronsdisease #crohnswarrior  #invisibleillness #wellness #health #keepfighting #strong #community#autoimmune #colitiswarrior #ibs #stomach #humira
🏥 Thank you for all the good luck wishes! I had a good report yesterday! My large and small intestine show NO inflammation! The pictures were so pretty lol, who ever thought it that would be something I would say. No cobblestoning or strictures or fistulas! My colon looked so healthy! 👏🏻 My dr did a couple biopsies to see if there is any microscopic evidence of Crohn’s but otherwise, such good news! #Remicade is working!!! 💯❗️The only thing that was unexpected is the nurses said I was calling my doctor by his first name and that I also called him “Babe” when I was coming out of anesthesia! 🤪❤️👨🏻‍⚕️💕😂
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#courtneyscrohns #crohns #crohnsdisease #spoonie #biologics #ibd #ibdawareness #chronicpain #chronicillness #invisibledisease #spoonie #spoonielife #crohnslife #crohnsawareness #crohnswarrior #crohns #remicade #autoimmunedisease #autoimmunestrong #invisibleillness #ibdvisible #girlswithguts #ileostomyreversal #ileostomy #stoma #ostomy #ostomate #spooniestrong #ostomyawareness  #lifetakesguts #colonoscopy
🏥 Thank you for all the good luck wishes! I had a good report yesterday! My large and small intestine show NO inflammation! The pictures were so pretty lol, who ever thought it that would be something I would say. No cobblestoning or strictures or fistulas! My colon looked so healthy! 👏🏻 My dr did a couple biopsies to see if there is any microscopic evidence of Crohn’s but otherwise, such good news! #Remicade  is working!!! 💯❗️The only thing that was unexpected is the nurses said I was calling my doctor by his first name and that I also called him “Babe” when I was coming out of anesthesia! 🤪❤️👨🏻‍⚕️💕😂 . . . . #courtneyscrohns  #crohns  #crohnsdisease  #spoonie  #biologics  #ibd  #ibdawareness  #chronicpain  #chronicillness  #invisibledisease  #spoonie  #spoonielife  #crohnslife  #crohnsawareness  #crohnswarrior  #crohns  #remicade  #autoimmunedisease  #autoimmunestrong  #invisibleillness  #ibdvisible  #girlswithguts  #ileostomyreversal  #ileostomy  #stoma  #ostomy  #ostomate  #spooniestrong  #ostomyawareness  #lifetakesguts  #colonoscopy 
Sometimes a girl just needs a great big bowl of pasta 🍝. GF of course. BUT ya know what I mean?! 🙋🏻‍♀️
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Home made tomato sauce with ground chicken. This sauce was epic. 💥The perfect meal to cozy up to with all this snow ❄️ we’ve been getting lately. What’s your fav comfort food?!? 👇🏻
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#balancedbykayla #ulcerativecolitis #crohnsdisease #uc #candidacleanse #inflammatoryboweldisease #ibs #ibd #colonoscopy #celiac #ibdawareness #ulcerativecolitisawareness #holisticnutrition #bioenergetics #biohacking #allergies #guthealth #microbiome #BIE #bioenergeticintoleranceelimination #energywork #kwawesome
Sometimes a girl just needs a great big bowl of pasta 🍝. GF of course. BUT ya know what I mean?! 🙋🏻‍♀️ . . Home made tomato sauce with ground chicken. This sauce was epic. 💥The perfect meal to cozy up to with all this snow ❄️ we’ve been getting lately. What’s your fav comfort food?!? 👇🏻 . . #balancedbykayla  #ulcerativecolitis  #crohnsdisease  #uc  #candidacleanse  #inflammatoryboweldisease  #ibs  #ibd  #colonoscopy  #celiac  #ibdawareness  #ulcerativecolitisawareness  #holisticnutrition  #bioenergetics  #biohacking  #allergies  #guthealth  #microbiome  #BIE  #bioenergeticintoleranceelimination  #energywork  #kwawesome 
I need these glasses in my life || 👌🏼
I need these glasses in my life || 👌🏼
Morning loved ones ❤️
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Busy 🐝 today, first appointment with my surgeon. Just a check up to make sure everything is as it should be 🤞 and then: job interview ❤️ 💪
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I really want this job. It is an office job, but with daily contact with customers. Do I get the best of both ❤️😍
So wish me luck at 13:00 💪🤞
........
And bag, what bag? No worries, it's still there ❤️😘😍
.......
#ileostomy#ostomate #crohnswarrior #crohnsjourney #crohns #ibd #ibdawareness #ibdvisible#feelinggood #happyhumpday #wednesday #body #bodypositive
Morning loved ones ❤️ ...... Busy 🐝 today, first appointment with my surgeon. Just a check up to make sure everything is as it should be 🤞 and then: job interview ❤️ 💪 ...... I really want this job. It is an office job, but with daily contact with customers. Do I get the best of both ❤️😍 So wish me luck at 13:00 💪🤞 ........ And bag, what bag? No worries, it's still there ❤️😘😍 ....... #ileostomy #ostomate  #crohnswarrior  #crohnsjourney  #crohns  #ibd  #ibdawareness  #ibdvisible #feelinggood  #happyhumpday  #wednesday  #body  #bodypositive 
IBD-viikko innosti myös piirtämään. Kiitos aivan upeasta teoksesta @erikbkarlsson 💜👏🏼🌸 #ibdfi #ibdviikko #ibdawarenessweek #ibdawareness
Viikon repostissa rohkea Henna-Maria, joka levittää avanne- ja IBD-tietoutta somessa ja omassa blogissaan 💪 ❤️ Kiitos jakamisesta @hennamariar!
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Vaikka IBD-viikko on virallisesti ohi, meillä IBDläisillä on IBD-viikko joka viikko 😀 Tämän pikkuisen pussin ansiosta voin matkustaa, juhlia ja ylipäänsä lähteä kotoa! Käy lukemassa mun tarinaa reunapaikka.fi blogista, linkki biossa. #reunapaikka #breakthestigma #ostomyawareness #ibdfi #ibdawareness #ileostomy #crohnintauti #crohnsdisease #pikkujoulureissu #repost #avanne #avannetietoisuus
Viikon repostissa rohkea Henna-Maria, joka levittää avanne- ja IBD-tietoutta somessa ja omassa blogissaan 💪 ❤️ Kiitos jakamisesta @hennamariar! • • • Vaikka IBD-viikko on virallisesti ohi, meillä IBDläisillä on IBD-viikko joka viikko 😀 Tämän pikkuisen pussin ansiosta voin matkustaa, juhlia ja ylipäänsä lähteä kotoa! Käy lukemassa mun tarinaa reunapaikka.fi blogista, linkki biossa. #reunapaikka  #breakthestigma  #ostomyawareness  #ibdfi  #ibdawareness  #ileostomy  #crohnintauti  #crohnsdisease  #pikkujoulureissu  #repost  #avanne  #avannetietoisuus 
#latergram from last week’s infusion. The sunrise was just starting when I took this shot from the 7th floor 💪☀️I took it as a good omen #sunrise #7thfloor #anschutzmedicalcampus #uchealth #ibd #ibdawareness #perspective #positivevibes #gratitude
Making faux art photography of my ER room ceiling. I call this piece “pain meds & boredom number 63”. The original name was going to be “line occluded, the tale of the infinitely beeping IV pump”. 😛😷♥️
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#crohns #crohnsdisease #crohnsawareness #ibd #ibdawareness #crohnie #crohnielife #lifewithibd #lifewithcrohnsdisease #dowhatchagottado #chronicpain #loveyournurses #nursesarethebest #crohnscomplications #er #hospitallife #hospital #chicago
Making faux art photography of my ER room ceiling. I call this piece “pain meds & boredom number 63”. The original name was going to be “line occluded, the tale of the infinitely beeping IV pump”. 😛😷♥️ . . . . . . . #crohns  #crohnsdisease  #crohnsawareness  #ibd  #ibdawareness  #crohnie  #crohnielife  #lifewithibd  #lifewithcrohnsdisease  #dowhatchagottado  #chronicpain  #loveyournurses  #nursesarethebest  #crohnscomplications  #er  #hospitallife  #hospital  #chicago 
from @severine_darkora -  Stoma Facts! Did you know... Gas passes freely from the stoma which means it makes a good amount of noise, sometimes at the most inappropriate of times.

#ulcerativecolitis #colitis
#crohns #crohnsdisease #ibd #inflammatoryboweldisease #ibdawareness #stoma #ostomy  #Tiffieldtwins2  #regrann  #billy2 #ileostomy #barbiebutt #crohns #stoma #panprotocolectomy #barbiebutt
I need Your all’s advice.

I see this need for Spouse/significant other Support Groups and Education of those suffering with IBD. 
I started a blog a few months back but haven’t been active lin pursing it as I’m not sure it’s the route to go!

Should I keep pursing the blog?

Do you all see this need too? 
Any feedback would be fantastic! 💜

#ibdawareness #crohnsdisease #crohnswife #crohnsjourney #crohnsawareness #crohnsandcolitisfoundationofamerica
Last year I posted my Grain Free Cherry Amaretto Cookies for the holidays and they are a favorite on the blog and in my family!
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Has anyone started planning their Christmas menu yet? 🎄These are easy, delish and paleo, well minus the Amaretto 😏
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#girlinhealing #buzzfeedfood #foodgawker #feedfeed #f52grams #huffposttaste #foods4thought #foodandwine #foodbloggerpro #foodblogfeed #foodbloggernation #wholefoods @thefeedfeed #cherry #amaretto #cherrycookies #grainfreebaking
Last year I posted my Grain Free Cherry Amaretto Cookies for the holidays and they are a favorite on the blog and in my family! . . Has anyone started planning their Christmas menu yet? 🎄These are easy, delish and paleo, well minus the Amaretto 😏 . . #girlinhealing  #buzzfeedfood  #foodgawker  #feedfeed  #f52grams  #huffposttaste  #foods4thought  #foodandwine  #foodbloggerpro  #foodblogfeed  #foodbloggernation  #wholefoods  @thefeedfeed #cherry  #amaretto  #cherrycookies  #grainfreebaking 
•
Chronic Disease ✖
Chronic Ambition ✔
#reframe 
#lookoutworld 
#aintnothinstoppinme
It’s been a year and 4 months since I’ve posted on this account 😱 to make a very long and scary story short, I have suffered with Ulcerative Colitis for about ten years. I was steroid dependent for most of them, they told me I needed surgery and get my colon removed, but I refused because I was scared. In May (2017) I was sent by emergency ambulance to the Cleveland clinic because my meds stopped working and I was slowly dying. They said I was days away from my insides rupturing and killing me. So I woke up with a ileostomy but my pain was gone. In August I went back to get the rest of my rectum removed and basically sew up my B-hole, to completely wipe out my chances of infection or colon cancer. So my ileostomy is permanent. But it saved my life, his name is Stomo Baggins, and I’m grateful to be alive and healthy. I’ve been active on my bookstagram account, which is linked in my bio, but I’d love to get back to making ASMR content here. Especially since we have the stories now!
Thanks to everyone who still follows me after all this time! ❤️
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#stoma #ileostomy #uc #ulcerativecolitis #invisibleillness #IBD #chronicillness #survivor #ibdwarrior #inflamatoryboweldisease #colitis #ibdawareness #boweldisease  #ibdwarrior #ibdawareness #uc #ulcerativecolitis
It’s been a year and 4 months since I’ve posted on this account 😱 to make a very long and scary story short, I have suffered with Ulcerative Colitis for about ten years. I was steroid dependent for most of them, they told me I needed surgery and get my colon removed, but I refused because I was scared. In May (2017) I was sent by emergency ambulance to the Cleveland clinic because my meds stopped working and I was slowly dying. They said I was days away from my insides rupturing and killing me. So I woke up with a ileostomy but my pain was gone. In August I went back to get the rest of my rectum removed and basically sew up my B-hole, to completely wipe out my chances of infection or colon cancer. So my ileostomy is permanent. But it saved my life, his name is Stomo Baggins, and I’m grateful to be alive and healthy. I’ve been active on my bookstagram account, which is linked in my bio, but I’d love to get back to making ASMR content here. Especially since we have the stories now! Thanks to everyone who still follows me after all this time! ❤️ 🌿 🌿 🌿 #stoma  #ileostomy  #uc  #ulcerativecolitis  #invisibleillness  #IBD  #chronicillness  #survivor  #ibdwarrior  #inflamatoryboweldisease  #colitis  #ibdawareness  #boweldisease  #ibdwarrior  #ibdawareness  #uc  #ulcerativecolitis 
Every time #ulcerativecolitis knocks me down my awesome trainer Kevin helps get me back in shape! After a rough summer, this fall has been going quite well! 👍#TrainerOfTheYear
Every time #ulcerativecolitis  knocks me down my awesome trainer Kevin helps get me back in shape! After a rough summer, this fall has been going quite well! 👍#TrainerOfTheYear 
Good evening my lovelies. 💖💙 Thought I'd show my face seeing as I've been quiet over the past couple of days. I hope everyone is good and life is being gentle to each and every one of you. 💖💙💖💙
#ostomate #ostomy #ileostomy #stoma #stanleystoma #baglady #bagwhatbag #ibd #boweldisease #autoimmunedisease #osteoarthritis #spondylarthritis #thyroiddisease #liverfailure #invisibleillness #chronicillness #spoonie #dontjudgeabookbyitscover #baglady #ostomyawareness #ibdawareness #humira #femalehairloss #deficiencies #warrior #ibdwarrior
Good evening my lovelies. 💖💙 Thought I'd show my face seeing as I've been quiet over the past couple of days. I hope everyone is good and life is being gentle to each and every one of you. 💖💙💖💙 #ostomate  #ostomy  #ileostomy  #stoma  #stanleystoma  #baglady  #bagwhatbag  #ibd  #boweldisease  #autoimmunedisease  #osteoarthritis  #spondylarthritis  #thyroiddisease  #liverfailure  #invisibleillness  #chronicillness  #spoonie  #dontjudgeabookbyitscover  #baglady  #ostomyawareness  #ibdawareness  #humira  #femalehairloss  #deficiencies  #warrior  #ibdwarrior 
Fun fact: New Canadian law enforces that that individuals under 25 will have free medication. I have finally made a decision on my treatment, it may not be the best one but it's something that I want to try. I will be starting the injections (humira). The injections are usually $700 each but since this new law, I won't have to pay it myself and that sounds pretty sweet. My decision was definitely not based on the new law but it was because surgery is something that I want to have as the last option because it's not going to be easy living with those types of conditions and it's not irreversible. So I want to try this medication out even though I know the side effects of this may not be the best, I've heard people who got lupus because of it. I want to try it out because I'm sick of being sick hahaha. If this doesn't work, ill have to move onto something else. Let's hope it does work InshaAllah 💜
Fun fact: New Canadian law enforces that that individuals under 25 will have free medication. I have finally made a decision on my treatment, it may not be the best one but it's something that I want to try. I will be starting the injections (humira). The injections are usually $700 each but since this new law, I won't have to pay it myself and that sounds pretty sweet. My decision was definitely not based on the new law but it was because surgery is something that I want to have as the last option because it's not going to be easy living with those types of conditions and it's not irreversible. So I want to try this medication out even though I know the side effects of this may not be the best, I've heard people who got lupus because of it. I want to try it out because I'm sick of being sick hahaha. If this doesn't work, ill have to move onto something else. Let's hope it does work InshaAllah 💜