an online Instagram web viewer

#ibdawareness medias

Photos

Tonight’s dinner is spaghetti!!! 🍝🍅🌶. I love spaghetti with homemade tomato sauce and of course some meatballs. Bon appetit everyone and enjoy your evening😊 #spaghetti #uitpaulineskeuken #homemade #lovetocook #lovetoeat #cook #dinner #foodporn #food #foodie #nocolonstillrollin #ileostoma #ileostomy #ileostomylife #ileostomygirl #ileostomyfit #crohns #crohnsdisease #ibd #ibdawareness #ibdwarrior #chronicillness #chronicfatigue #chronicpain #staypositive #stillbreathing #positivevibes #positivethinking #kickass
Tonight’s dinner is spaghetti!!! 🍝🍅🌶. I love spaghetti with homemade tomato sauce and of course some meatballs. Bon appetit everyone and enjoy your evening😊 #spaghetti  #uitpaulineskeuken  #homemade  #lovetocook  #lovetoeat  #cook  #dinner  #foodporn  #food  #foodie  #nocolonstillrollin  #ileostoma  #ileostomy  #ileostomylife  #ileostomygirl  #ileostomyfit  #crohns  #crohnsdisease  #ibd  #ibdawareness  #ibdwarrior  #chronicillness  #chronicfatigue  #chronicpain  #staypositive  #stillbreathing  #positivevibes  #positivethinking  #kickass 
#invisibleillnessawarenessweek “you don’t look sick” “your functioning fine” “it’s all in your head”. Most people see the side of me where I have my hair done, some makeup on, and out and about and doing normal things. Friends I don’t know well wouldn’t even guess I had a chronic illness, but turn my body inside out and it tells a different story. Follow me home and see me almost immediately get in to comfy clothes and fall on the couch. See me take a nausea pill and then low dose chemo, see me give myself my weekly shot, see me living in the bathroom for hours or have the heating pad out almost 24-7.  See me struggle finding a safe food to eat that won’t give me intense pain and leave me puking and living in the bathroom and in bed for the next day. You don’t see the doctor appointments, hospital admissions, infusions, tests and procedures and surgeries. Instead you see the happy smiling girl riding her horse and hanging out with friends, the girl I want you to see. •
•
Even though right now I’m in “medical remission” I know it probably won’t last for to long. I’m loving having this feeling of some normalcy in my life again after a year of a very hard road. Even though my feeling great and almost normal is probably someone’s feeling so terrible lol. Most people probably believe I’m “cured” In fact I know a few people who think everything is fixed and when I tell them ill never be “fixed” they get this very confused look. Please don’t ever judge a book by its cover. you never know what kind of battle someone is going though. #invisibleillness
#invisibleillnessawarenessweek  “you don’t look sick” “your functioning fine” “it’s all in your head”. Most people see the side of me where I have my hair done, some makeup on, and out and about and doing normal things. Friends I don’t know well wouldn’t even guess I had a chronic illness, but turn my body inside out and it tells a different story. Follow me home and see me almost immediately get in to comfy clothes and fall on the couch. See me take a nausea pill and then low dose chemo, see me give myself my weekly shot, see me living in the bathroom for hours or have the heating pad out almost 24-7. See me struggle finding a safe food to eat that won’t give me intense pain and leave me puking and living in the bathroom and in bed for the next day. You don’t see the doctor appointments, hospital admissions, infusions, tests and procedures and surgeries. Instead you see the happy smiling girl riding her horse and hanging out with friends, the girl I want you to see. • • Even though right now I’m in “medical remission” I know it probably won’t last for to long. I’m loving having this feeling of some normalcy in my life again after a year of a very hard road. Even though my feeling great and almost normal is probably someone’s feeling so terrible lol. Most people probably believe I’m “cured” In fact I know a few people who think everything is fixed and when I tell them ill never be “fixed” they get this very confused look. Please don’t ever judge a book by its cover. you never know what kind of battle someone is going though. #invisibleillness 
Wasn't going to post this but fuck it! I've been crying here, in fact this was taken 5mins prior to posting this! 
So I'm not very well again...I've lost 1stone 8lbs in the past 3weeks!!! My Crohn's Disease has flared up really badly, I'm not absorbing enough nutrients, losing blood and where I'm solely breastfeeding, thats taking what nutrients I do have, to feed Grayson!  I have to start on injectable immunosuppressants, unfortunately I don't think I'm allowed to breastfeed on them which has broken my heart!!! I know not everyone can breastfeed or choose not to, but where my body fails me so much, I was SO happy and proud of myself for being able to breastfeed and to be doing a good job of it too!
I want the option whether I want to stop, not to be told I can't.
I wont start the meds for another few weeks so until then I'm going to lap up every second with Grayson & our short breastfeeding story!
I just feel a bit let down by my own body and sad I might have to stop something I'm good at and enjoy so much! 😪

I guess not everything goes to plan and I should remember that I need to get myself better otherwise I wont be well enough to look after Grayson which at the end of the day is the most important thing!

#frustrated #crohns #crohnsdisease #ibd #breastfeeding #ibdawareness #sad
Wasn't going to post this but fuck it! I've been crying here, in fact this was taken 5mins prior to posting this! So I'm not very well again...I've lost 1stone 8lbs in the past 3weeks!!! My Crohn's Disease has flared up really badly, I'm not absorbing enough nutrients, losing blood and where I'm solely breastfeeding, thats taking what nutrients I do have, to feed Grayson! I have to start on injectable immunosuppressants, unfortunately I don't think I'm allowed to breastfeed on them which has broken my heart!!! I know not everyone can breastfeed or choose not to, but where my body fails me so much, I was SO happy and proud of myself for being able to breastfeed and to be doing a good job of it too! I want the option whether I want to stop, not to be told I can't. I wont start the meds for another few weeks so until then I'm going to lap up every second with Grayson & our short breastfeeding story! I just feel a bit let down by my own body and sad I might have to stop something I'm good at and enjoy so much! 😪 I guess not everything goes to plan and I should remember that I need to get myself better otherwise I wont be well enough to look after Grayson which at the end of the day is the most important thing! #frustrated  #crohns  #crohnsdisease  #ibd  #breastfeeding  #ibdawareness  #sad 
This is one of my last doses of #humira before I switch to Entyvio in a few weeks. I failed humira, which is unfortunate because it did work well for me for over a year and a half. I feel that many of you who've been/are on #entyvio have had good results. I am stoked the infusions are only 30 minutes though lol! #ulcerativecolitis #crohns #crohnsdisease #ibdawareness #entyvioinfusion #ommp #rso #feco #chronicillness
Day 42/50 #TeamChallengeTourDeIRONMAN
.
Home for 48 hours before our final race at IRONMAN 70.3 Arizona
Good luck to our team of 30 Racing in Orange!
Day 42/50 #TeamChallengeTourDeIRONMAN  . Home for 48 hours before our final race at IRONMAN 70.3 Arizona Good luck to our team of 30 Racing in Orange!
Proof that I finally got into crow pose!! 🦅Even if it was for a split second..it counts! I’ve really been trying to stick to the program and do the yoga, so satisfying! 
#namasteyoga #crowpose #nsv .
.
.
.
.
.
.
.
.
#humpdayyoga #yogapostures #yogadays #flexibilitygoals #physicianassistants #physicianassistant #physicianassistantlife #oncology #healthcareforall #caregiver #whitecoat #clinicdays #workingmoms #physicianassistant #ibdawareness #rnlife #caffeinated #dogmomlife #charlestonstrong  #outdoorfun  #cocktailplease #dessertlover #firstaid #eatrealfoods#postpartumanxiety
Proof that I finally got into crow pose!! 🦅Even if it was for a split second..it counts! I’ve really been trying to stick to the program and do the yoga, so satisfying! #namasteyoga  #crowpose  #nsv  . . . . . . . . . #humpdayyoga  #yogapostures  #yogadays  #flexibilitygoals  #physicianassistants  #physicianassistant  #physicianassistantlife  #oncology  #healthcareforall  #caregiver  #whitecoat  #clinicdays  #workingmoms  #physicianassistant  #ibdawareness  #rnlife  #caffeinated  #dogmomlife  #charlestonstrong  #outdoorfun  #cocktailplease  #dessertlover  #firstaid  #eatrealfoods #postpartumanxiety 
Today I spent the morning having another short synacthen test. Obviously the first issue was that they couldn’t cannulate me, no surprise there! Finally they did and then I had to have a injection which stung so bad, I nearly collapsed. Oh welll all done, hoping for some better results this time and then hopefully I can stop steroids 🤞🏼🤞🏼🤞🏼🤞🏼
Today I spent the morning having another short synacthen test. Obviously the first issue was that they couldn’t cannulate me, no surprise there! Finally they did and then I had to have a injection which stung so bad, I nearly collapsed. Oh welll all done, hoping for some better results this time and then hopefully I can stop steroids 🤞🏼🤞🏼🤞🏼🤞🏼
#alwayssmiling is my motto. Why? Because it makes life better. You get back what you put out. The very act of #smiling stimulates positivity in yourself and others. Obviously I am not grinning like the Cheshire Cat 24/7 but it's a mindset. My other motto is #nevergiveup which speaks for itself. But hmmm this #humpday was pretty damned mountainous, with lava on top (in the form of an inflamed colon). 🌋 Oh it was a struggle but I got there in the end... to the smile that is. I made my student & clients laugh and I rounded out the sunshine hours with a walk with The Husb & the pooch. 💪😁🐶 #exerciseismedicine #striving #spoonielife #goals #ibd #gutsy
#alwayssmiling  is my motto. Why? Because it makes life better. You get back what you put out. The very act of #smiling  stimulates positivity in yourself and others. Obviously I am not grinning like the Cheshire Cat 24/7 but it's a mindset. My other motto is #nevergiveup  which speaks for itself. But hmmm this #humpday  was pretty damned mountainous, with lava on top (in the form of an inflamed colon). 🌋 Oh it was a struggle but I got there in the end... to the smile that is. I made my student & clients laugh and I rounded out the sunshine hours with a walk with The Husb & the pooch. 💪😁🐶 #exerciseismedicine  #striving  #spoonielife  #goals  #ibd  #gutsy 
Morning guys 🌞🌞🌞 can we just take a second and appreciate two things:
1. Hospital clothes isn’t very fashionable- but let’s be honest, I rock this these boxers 😝
2. My magic cream is doing its magic and I can pee with a minimum off pain 💪💪💪💪#ileostomy #ostomate #ostomy #crohns #crohnswarrior #crohnsjourney #ibd #ibdvisible #ibdawareness #hospitalclothes #rockinit #happyhumpday #wednesday #thirdday #letsmakeitagoodone #fingerscrossed #stoma #stomi
Morning guys 🌞🌞🌞 can we just take a second and appreciate two things: 1. Hospital clothes isn’t very fashionable- but let’s be honest, I rock this these boxers 😝 2. My magic cream is doing its magic and I can pee with a minimum off pain 💪💪💪💪#ileostomy  #ostomate  #ostomy  #crohns  #crohnswarrior  #crohnsjourney  #ibd  #ibdvisible  #ibdawareness  #hospitalclothes  #rockinit  #happyhumpday  #wednesday  #thirdday  #letsmakeitagoodone  #fingerscrossed  #stoma  #stomi 
Oh... just some yumminess the bestie @asprinkleinthyme cooked up for me while we experiment with the AIP diet.
Oh... just some yumminess the bestie @asprinkleinthyme cooked up for me while we experiment with the AIP diet.
Day 286:  Despite being half #crohns  un-friendly for me, I am thankful for this first dinner my daughter @emmagracecruz cooked in our new place! @chenier1901 #cookinginchenier
Day 286: Despite being half #crohns  un-friendly for me, I am thankful for this first dinner my daughter @emmagracecruz cooked in our new place! @chenier1901 #cookinginchenier 
That old Australian Tourism advertisement starring Lara Bingle springs to mind: "Where the bloody hell are you?" For whatever reason, no-one has presented at the exercise clinic this morning. I am turning over my legs on the recumbent bike having checked emails and completed what admin I can on my phone. My gut is very sore and upset this morning; it is a struggle to stay upbeat on days like this, so if my clients are feeling anything like me, I can empathise! ⛅👓🚲 #spoonielife #tryingtosmile #nevergiveup #ibd #gutsy #exerciseismedicine
That old Australian Tourism advertisement starring Lara Bingle springs to mind: "Where the bloody hell are you?" For whatever reason, no-one has presented at the exercise clinic this morning. I am turning over my legs on the recumbent bike having checked emails and completed what admin I can on my phone. My gut is very sore and upset this morning; it is a struggle to stay upbeat on days like this, so if my clients are feeling anything like me, I can empathise! ⛅👓🚲 #spoonielife  #tryingtosmile  #nevergiveup  #ibd  #gutsy  #exerciseismedicine 
The area around Daphne, AL & Mobile Bay is really nice. I only run around the small Boardwalk Area by my hotel by there's a trail that goes for a few miles. --------------->> #run #runner #running
#runnersofinstagram
#marathon #marathontraining
#a1amarathon #halfmarathon
#crossfit #crossfitendurance
#concept2rower #rowing
#brooksrunning #nobullproject
#ulcerativecolitis #crohnsdisease
#ibdawareness #cure4ibd
#teamchallenge #tcfamily
#crohnsandcolitisfoundation #ccfa
#garminfitness #garminvivoactive
#roguefitness #homegym #fitlife
#instarunners #fitness #healthy
The area around Daphne, AL & Mobile Bay is really nice. I only run around the small Boardwalk Area by my hotel by there's a trail that goes for a few miles. --------------->>#run  #runner  #running  #runnersofinstagram  #marathon  #marathontraining  #a1amarathon  #halfmarathon  #crossfit  #crossfitendurance  #concept2rower  #rowing  #brooksrunning  #nobullproject  #ulcerativecolitis  #crohnsdisease  #ibdawareness  #cure4ibd  #teamchallenge  #tcfamily  #crohnsandcolitisfoundation  #ccfa  #garminfitness  #garminvivoactive  #roguefitness  #homegym  #fitlife  #instarunners  #fitness  #healthy 
This is what my life looks like. Puréed food, water + limitless (anti-inflammatory), bone broth. Partttttayyyyyyyy 🎉
This is what my life looks like. Puréed food, water + limitless (anti-inflammatory), bone broth. Partttttayyyyyyyy 🎉
The doctor will see you now 😂😂😂 today has been difficult 👎👎👎 still in quite a lot of pain in my lady parts, but yesterday I got this magic cream and it does take some of the pain. But trust me, I know something is dead wrong down there. .
.
#Tut is not to happy about this waiting game. I’m on an emergency list, therefore no one can say exactly when I will be looked at. And therefore I’m not allowed to eat between 00:00 and 16:00. I’m not a happy camper😰😰😰 they didn’t have time for me today, so fingers crossed tomorrow will be my lucky day 😝 #ileostomy #ostomate #ostomy #crohns #crohnswarrior #crohnsjourney #ibd #ibdawareness #ibdvisible #stoma #thedoctorwillseeyounow #hospital #tuesday
The doctor will see you now 😂😂😂 today has been difficult 👎👎👎 still in quite a lot of pain in my lady parts, but yesterday I got this magic cream and it does take some of the pain. But trust me, I know something is dead wrong down there. . . #Tut  is not to happy about this waiting game. I’m on an emergency list, therefore no one can say exactly when I will be looked at. And therefore I’m not allowed to eat between 00:00 and 16:00. I’m not a happy camper😰😰😰 they didn’t have time for me today, so fingers crossed tomorrow will be my lucky day 😝 #ileostomy  #ostomate  #ostomy  #crohns  #crohnswarrior  #crohnsjourney  #ibd  #ibdawareness  #ibdvisible  #stoma  #thedoctorwillseeyounow  #hospital  #tuesday 
Congrats to my baby bro @hrvysymr, super proud.  Thanks for being so supportive. Couldn’t ask for a better brother ❤️😘
Congrats to my baby bro @hrvysymr, super proud. Thanks for being so supportive. Couldn’t ask for a better brother ❤️😘
That meal prep life. 🙌🏻🙌🏻🙌🏻 I used to not be able to have raw veggies. It was just a big no-no. Once my IBS kicked in I basically ate easily digestible carbs (oats, cereal, gf bread, gf pasta), and slowly over time learned by reintroducing different veggies what works and what didn’t. This was life before Low Fodmap was a thing. Now with my wellness elixir I’ve balanced out my body, and that unruly gut, and can go raw pretty much all the time. Say yes! .
.
. .
#ibs
#irritablebowel
#irritablebowelsyndrome
#ibd
#irritableboweldisease
#ibsawareness
#ibdawareness
#ibssucks 
#ibsdiaries 
#ibsdiet 
#ibsrecipe
#ibdsucks 
#ibddiet 
#ibswarrior 
#ibdwarrior 
#ibsfriendly 
#ibdfriendly
#ibsfighter
#ibdfighter 
#ibsmoments
#guthealth
#guthealthy
#guthealthiskey 
#lowfodmapdiet 
#lowfodmapliving
#lowfodmapfriendly
That meal prep life. 🙌🏻🙌🏻🙌🏻 I used to not be able to have raw veggies. It was just a big no-no. Once my IBS kicked in I basically ate easily digestible carbs (oats, cereal, gf bread, gf pasta), and slowly over time learned by reintroducing different veggies what works and what didn’t. This was life before Low Fodmap was a thing. Now with my wellness elixir I’ve balanced out my body, and that unruly gut, and can go raw pretty much all the time. Say yes! . . . . #ibs  #irritablebowel  #irritablebowelsyndrome  #ibd  #irritableboweldisease  #ibsawareness  #ibdawareness  #ibssucks  #ibsdiaries  #ibsdiet  #ibsrecipe  #ibdsucks  #ibddiet  #ibswarrior  #ibdwarrior  #ibsfriendly  #ibdfriendly  #ibsfighter  #ibdfighter  #ibsmoments  #guthealth  #guthealthy  #guthealthiskey  #lowfodmapdiet  #lowfodmapliving  #lowfodmapfriendly 
❤️ From @natalieannhayden's recent blog post. She is so inspiring and shares her story with so much vulnerability and transparency. She is a role model in the IBD community. 
Link in her bio for more. 
#makeitvisible #crohnsdisease #ibd #ibdawareness #ibdcommunity
💯☝️
💯☝️
Goodmorning with a cappuccino made with lactose free milk and some cinnamon on top. Yummm. Today is not a very good day so I’m going to watch The Good Place on Netflix and recharge my battery. As a spoonie it’s important to listen to your body🙌🏼. And mine is screaming take a break!!!! Hahaha. Have a nice day everyone. #cappuccino #coffee #coffeetime #coffeelover #netflix #thegoodplace #spoonie #relaxing #recharge #nocolonstillrollin #ileostoma #ileostomy #ileostomylife #ileostomygirl #ileostomyfit #crohns #crohnsdisease #ibd #ibdawareness #ibdwarrior #chronicillness #chronicfatigue #chronicpain #staypositive #stillbreathing #positivevibes #positivethinking #kickass
Goodmorning with a cappuccino made with lactose free milk and some cinnamon on top. Yummm. Today is not a very good day so I’m going to watch The Good Place on Netflix and recharge my battery. As a spoonie it’s important to listen to your body🙌🏼. And mine is screaming take a break!!!! Hahaha. Have a nice day everyone. #cappuccino  #coffee  #coffeetime  #coffeelover  #netflix  #thegoodplace  #spoonie  #relaxing  #recharge  #nocolonstillrollin  #ileostoma  #ileostomy  #ileostomylife  #ileostomygirl  #ileostomyfit  #crohns  #crohnsdisease  #ibd  #ibdawareness  #ibdwarrior  #chronicillness  #chronicfatigue  #chronicpain  #staypositive  #stillbreathing  #positivevibes  #positivethinking  #kickass 
A gift for my team at work to say thank you for covering my work while I was off sick for a week thanks to #crohnsdisease 
This amazing bouquet is made up of 7 delicious cupcakes. Thank you @dilicakes you're amazing ❤
.
.
.
.
.
.
.
.
.
.
#dilicakes #cupcakes #cupcakebouquet #wellington #happiness #positivevibes #positivity #thankyou #teamawesome #crohnsdisease #ibdawareness #crohns #ibd #spoonie #autoimmunedisease
A dream of performing on Broadway moved me to NYC 15 years ago to study Experimental Theatre at NYU. The diagnosis of Ulcerative Colitis shortly thereafter shifted my focus to a "behind the scenes" career in media entertainment with reliable health insurance. The toll of the disease on my postpartum body transitioned me into the health and wellness space. My love of musical theatre has never dwindled; what a pleasure to watch Broadway stars perform in memory of fellow patient and actor Nancy LaMott at the Crohn's and Colitis Foundation's Broadway's Got Guts. #yogimom #yogaeverydamnday #ulcerativecolitis #entyviowarrior #ccfa #ibdawareness #newyorkcityliving
A dream of performing on Broadway moved me to NYC 15 years ago to study Experimental Theatre at NYU. The diagnosis of Ulcerative Colitis shortly thereafter shifted my focus to a "behind the scenes" career in media entertainment with reliable health insurance. The toll of the disease on my postpartum body transitioned me into the health and wellness space. My love of musical theatre has never dwindled; what a pleasure to watch Broadway stars perform in memory of fellow patient and actor Nancy LaMott at the Crohn's and Colitis Foundation's Broadway's Got Guts. #yogimom  #yogaeverydamnday  #ulcerativecolitis  #entyviowarrior  #ccfa  #ibdawareness  #newyorkcityliving 
Intention of the week:
✨Breathe Deep✨

Slow breaths in and even slower breaths out. The nurses always comment on how low my heart rate is when they're hooking up my IV and taking my vitals before a procedure. I've learned that stressing out and getting anxious before a heavy week of procedures or testing doesn't help. I always try to be the calm in my own storm and it helps a lot.
I sat on my mat yesterday flowing slowly and breathing deeply as I asked for my practice to reveal the intentions and mantras I would need most heading into this hectic week of procedures and testing and here's what came to me:

I am stronger than I think.
I believe I will get better. 
Deep breaths.

Even when life is moving at a rapid pace, stop to take some deep breaths and smell the flowers. It'll only help 💕

This Wednesday on the blog I'll be sharing some of my tips and tricks to get you through tricky medical appointments and tests like long MRI's and uncomfortable procedures.

I know I'll be taking deep breaths all week, where will you find the time to slow down in the chaos and just breathe?
Intention of the week: ✨Breathe Deep✨ Slow breaths in and even slower breaths out. The nurses always comment on how low my heart rate is when they're hooking up my IV and taking my vitals before a procedure. I've learned that stressing out and getting anxious before a heavy week of procedures or testing doesn't help. I always try to be the calm in my own storm and it helps a lot. I sat on my mat yesterday flowing slowly and breathing deeply as I asked for my practice to reveal the intentions and mantras I would need most heading into this hectic week of procedures and testing and here's what came to me: I am stronger than I think. I believe I will get better. Deep breaths. Even when life is moving at a rapid pace, stop to take some deep breaths and smell the flowers. It'll only help 💕 This Wednesday on the blog I'll be sharing some of my tips and tricks to get you through tricky medical appointments and tests like long MRI's and uncomfortable procedures. I know I'll be taking deep breaths all week, where will you find the time to slow down in the chaos and just breathe?
Day 285:  Nice welcome home package from @chenier1901 - new beginnings for health and happiness!  #chenier
Day 285: Nice welcome home package from @chenier1901 - new beginnings for health and happiness! #chenier 
And that's a wrap! Hope it helps me sleep better tonight. Being regular people sick with a fever for five days, while in a Crohn's flare, sleeping an hour and a half, then working a full day sucks!!
*
*
#shebelievedshecouldsoshedid #remission #crohnsdisease #ibdcantstopme #arthritis #spoonie #spooniesunite #spoonieforlife #invisibleillness #sickbutinvisible #chronicillness #ibd #arthritissucks #autoimmunedisease #ibdawareness #IBDvisible #entyvio
I have ridden the 3 Dams Cycling Challenge SIX  times and am in the BWA Hall of Fame for my efforts. I struggle with a chronic medical condition so I am pretty proud of my achievement. This year, I have decided to take on a new challenge. I have never completed a trail running event before but just signed up for the five-race Perth Summer Series (gulp!) I am in the middle of a nasty ulcerative colitis flare and some might say I am silly committing to something new and difficult in the middle of a health crisis. Maybe I am. My husband rolled his eyes. But I need goals, I need to strive, I need to get out there and challenge myself, feel normal. I will not succumb to being an invalid. I will be sensible in my training management - my rival is this disease, not other healthy competitors. 🌄🏃✔ #nevergiveup #alwayssmiling #exerciseismedicine #trailrunning #perthsummertrailseries
I have ridden the 3 Dams Cycling Challenge SIX times and am in the BWA Hall of Fame for my efforts. I struggle with a chronic medical condition so I am pretty proud of my achievement. This year, I have decided to take on a new challenge. I have never completed a trail running event before but just signed up for the five-race Perth Summer Series (gulp!) I am in the middle of a nasty ulcerative colitis flare and some might say I am silly committing to something new and difficult in the middle of a health crisis. Maybe I am. My husband rolled his eyes. But I need goals, I need to strive, I need to get out there and challenge myself, feel normal. I will not succumb to being an invalid. I will be sensible in my training management - my rival is this disease, not other healthy competitors. 🌄🏃✔ #nevergiveup  #alwayssmiling  #exerciseismedicine  #trailrunning  #perthsummertrailseries 
Day 40/50 #TeamChallengeTourDeIRONMAN
.
A few #IMKona rules
1. Swim....yes even me
2. Relax a little
3. Have Acai at Basik post Alii drive run
💟 Doing my first Crohn’s walk this weekend!! 💟My job is actually doing a “Pay it Forward Day” so I am so excited this Crohn’s walk was here in Tampa!! So excited to walk and raise awareness!! .
.
.
.
.
#courtneyscrohns #crohns #crohnsdisease #spoonie #biologics #ibd #ibdawareness #chronicpain #chronicillness #invisibledisease #spoonie #spoonielife #crohnslife #crohnsawareness #crohnswarrior #crohns #remicade #autoimmunedisease #autoimmunestrong #invisibleillness #ibdvisible #girlswithguts #ileostomyreversal #ileostomy #stoma #ostomy #ostomate #spooniestrong #ostomyawareness  #lifetakesguts #ccfa
💟 Doing my first Crohn’s walk this weekend!! 💟My job is actually doing a “Pay it Forward Day” so I am so excited this Crohn’s walk was here in Tampa!! So excited to walk and raise awareness!! . . . . . #courtneyscrohns  #crohns  #crohnsdisease  #spoonie  #biologics  #ibd  #ibdawareness  #chronicpain  #chronicillness  #invisibledisease  #spoonie  #spoonielife  #crohnslife  #crohnsawareness  #crohnswarrior  #crohns  #remicade  #autoimmunedisease  #autoimmunestrong  #invisibleillness  #ibdvisible  #girlswithguts  #ileostomyreversal  #ileostomy  #stoma  #ostomy  #ostomate  #spooniestrong  #ostomyawareness  #lifetakesguts  #ccfa 
Smoothie-love!!! Quite frankly my favourite meal of the day at the moment. Quick, easy, tasty and healthy ❤️.
.
May you all have a happy and healthy day.
.
(AIP day 142)
. .
#selfcare #grateful #hermitdemschönenleben 
#healyourgut #glutenfree #dairyfree #mealsnotmeds #fermentedfoods #healyourselfwithfood #destress #breathe #gowithyourgut #paleo #refinedsugarfree
#ced #ulcerativecolitis  #colitisulcerosa #colitis #crohns #morbuscrohn #autoimmunepaleo #gowithyourgut #wahlsprotocol #aipprotocol #aip #weightloss #gesundabnehmen  #autoimmunedisease #ibdawareness #mindful #mindfulhealthyhappy
Smoothie-love!!! Quite frankly my favourite meal of the day at the moment. Quick, easy, tasty and healthy ❤️. . May you all have a happy and healthy day. . (AIP day 142) . . #selfcare  #grateful  #hermitdemschönenleben  #healyourgut  #glutenfree  #dairyfree  #mealsnotmeds  #fermentedfoods  #healyourselfwithfood  #destress  #breathe  #gowithyourgut  #paleo  #refinedsugarfree  #ced  #ulcerativecolitis  #colitisulcerosa  #colitis  #crohns  #morbuscrohn  #autoimmunepaleo  #gowithyourgut  #wahlsprotocol  #aipprotocol  #aip  #weightloss  #gesundabnehmen  #autoimmunedisease  #ibdawareness  #mindful  #mindfulhealthyhappy 
Life can be tough especially when making big decisions. My blog this week talks about the massive decision I have made and what happened when I was being sick with my Stoma. 😷 Read it here: https://semicolon563.wordpress.com/blog/ 💩😊
Life can be tough especially when making big decisions. My blog this week talks about the massive decision I have made and what happened when I was being sick with my Stoma. 😷 Read it here: https://semicolon563.wordpress.com/blog/ 💩😊
Hello guys 💜 you know how one day you can cope with the pain, and then next day, crash?!?! That’s what happened this weekend and here I am in a bed at my favourite hospital😉😰 why? I have these fistulas, and the last three weeks they have been going crazy. Which has resulted in at least four massive wounds in my lady parts and behind😱😱😱😱 now doctors will have a look at them and most likely do a bit more cutting down there😔😔😔 also I’m not drinking as I should because peeing hurts so, so much and doctors hate when I’m not getting my fluids. My blood pressure is way too low 👎👎👎👎 by tomorrow I should know much more💜💜💜 #ostomy #ileostomy #crohns #morbuscrohn #stoma #ibd #ibdawareness #morning #ibdvisible #painisreal #hospital #monday #spoonie #crohnwarrior #crohnie #crohnslife
Hello guys 💜 you know how one day you can cope with the pain, and then next day, crash?!?! That’s what happened this weekend and here I am in a bed at my favourite hospital😉😰 why? I have these fistulas, and the last three weeks they have been going crazy. Which has resulted in at least four massive wounds in my lady parts and behind😱😱😱😱 now doctors will have a look at them and most likely do a bit more cutting down there😔😔😔 also I’m not drinking as I should because peeing hurts so, so much and doctors hate when I’m not getting my fluids. My blood pressure is way too low 👎👎👎👎 by tomorrow I should know much more💜💜💜 #ostomy  #ileostomy  #crohns  #morbuscrohn  #stoma  #ibd  #ibdawareness  #morning  #ibdvisible  #painisreal  #hospital  #monday  #spoonie  #crohnwarrior  #crohnie  #crohnslife 
NEW BLOG POST: "If you’ve battled inflammatory bowel disease for any amount of time you have a story. Your story has the power to lift up others and show them they are not alone. It’s so easy to isolate ourselves and pretend that we’re feeling fantastic, when in all actuality our insides are inflamed and constantly leaving us in pain. As I looked out in the crowd, wearing a dress, standing tall with my hair curled—looking like a completely healthy person. I said—little would you know looking at me, that this morning at 2 a.m. I was stuck in the bathroom in excruciating pain, on the brink of throwing up. Those are the moments nobody sees, that we need to talk about." Link to the full article in my profile.☝🏻
NEW BLOG POST: "If you’ve battled inflammatory bowel disease for any amount of time you have a story. Your story has the power to lift up others and show them they are not alone. It’s so easy to isolate ourselves and pretend that we’re feeling fantastic, when in all actuality our insides are inflamed and constantly leaving us in pain. As I looked out in the crowd, wearing a dress, standing tall with my hair curled—looking like a completely healthy person. I said—little would you know looking at me, that this morning at 2 a.m. I was stuck in the bathroom in excruciating pain, on the brink of throwing up. Those are the moments nobody sees, that we need to talk about." Link to the full article in my profile.☝🏻
So excited for my lunches this week. Seasonal veg, nutrient rich and colourful. It's been awhile .. 👩🏼‍🍳🍴 Mackerel • Kale • Squash • Beetroot #allthecolours #autumn #seasonaleating
So excited for my lunches this week. Seasonal veg, nutrient rich and colourful. It's been awhile .. 👩🏼‍🍳🍴 Mackerel • Kale • Squash • Beetroot #allthecolours  #autumn  #seasonaleating 
For a lot of people meal planning is something they do to get fitter or healthier. They can pretty much use a free take+make plan and tweak it to their needs. If it doesn’t happen, they can manage to head to a restaurant pretty easily. They might be a bit set back in their results, but it’s not anything threatening. But for those of us with an unruly gut, there is no other option. Because even though it make take us a long time to search for those “gluten free, vegan, Low Fodmap, Low Carb, please god no garlic or onions” recipes, as soon as we eat out for a dinner that we weren’t prepared for, it can set us back for days. Not in our results but in our LIFE. If you want a quick sample of what Low Fodmap looks like in a day, check out the free Eat To Live guide. Link in bio. I give you a sample meal plan in there. What are your other fave resources for IBS-friendly meal plans? .
.
. .
#ibs
#irritablebowel
#irritablebowelsyndrome
#ibd
#irritableboweldisease
#ibsawareness
#ibdawareness
#ibssucks 
#ibsdiaries 
#ibsdiet 
#ibsrecipe
#ibdsucks 
#ibddiet 
#ibswarrior 
#ibdwarrior 
#ibsfriendly 
#ibdfriendly
#ibsfighter
#ibdfighter 
#ibsmoments
#guthealth
#guthealthy
#guthealthiskey 
#lowfodmapdiet 
#lowfodmapliving
#lowfodmapfriendly
For a lot of people meal planning is something they do to get fitter or healthier. They can pretty much use a free take+make plan and tweak it to their needs. If it doesn’t happen, they can manage to head to a restaurant pretty easily. They might be a bit set back in their results, but it’s not anything threatening. But for those of us with an unruly gut, there is no other option. Because even though it make take us a long time to search for those “gluten free, vegan, Low Fodmap, Low Carb, please god no garlic or onions” recipes, as soon as we eat out for a dinner that we weren’t prepared for, it can set us back for days. Not in our results but in our LIFE. If you want a quick sample of what Low Fodmap looks like in a day, check out the free Eat To Live guide. Link in bio. I give you a sample meal plan in there. What are your other fave resources for IBS-friendly meal plans? . . . . #ibs  #irritablebowel  #irritablebowelsyndrome  #ibd  #irritableboweldisease  #ibsawareness  #ibdawareness  #ibssucks  #ibsdiaries  #ibsdiet  #ibsrecipe  #ibdsucks  #ibddiet  #ibswarrior  #ibdwarrior  #ibsfriendly  #ibdfriendly  #ibsfighter  #ibdfighter  #ibsmoments  #guthealth  #guthealthy  #guthealthiskey  #lowfodmapdiet  #lowfodmapliving  #lowfodmapfriendly 
Every day I fight, but every day I smile... LOOK:
Eyes- Palette 1 & 4 (Chipoer as transition shade, arrogant for lid, brave for the crease/outer v, lower lash line is purposeful with Epic mascara and elated for under the brow bone 
Brunette Brow Palette 
Organza concealer
Behold setting powder
Esteem Lash Serum 
Epic Mascara 
3D Fiber Lashes+ 
Bisque B.B. cream 
Glorious Primer 
Behold Setting Spray 
Dark brown eye liner 
Supportive blush
Hermosa Bronzer (PS: 
thanks @thegreatbm for the awesome hoodie.) #BeObsessivelyGrateful #ObsessivelyGrateful #Grateful #IBDWarrior #GirlsWithGuts #TheGreatBM #IBD #crohns #revolarmoments #ibdblogger #younique #youniquecorporate #allyounique #yellow #ibdawareness @younique_corporate #beautyblogger
Every day I fight, but every day I smile... LOOK: Eyes- Palette 1 & 4 (Chipoer as transition shade, arrogant for lid, brave for the crease/outer v, lower lash line is purposeful with Epic mascara and elated for under the brow bone Brunette Brow Palette Organza concealer Behold setting powder Esteem Lash Serum Epic Mascara 3D Fiber Lashes+ Bisque B.B. cream Glorious Primer Behold Setting Spray Dark brown eye liner Supportive blush Hermosa Bronzer (PS: thanks @thegreatbm for the awesome hoodie.) #BeObsessivelyGrateful  #ObsessivelyGrateful  #Grateful  #IBDWarrior  #GirlsWithGuts  #TheGreatBM  #IBD  #crohns  #revolarmoments  #ibdblogger  #younique  #youniquecorporate  #allyounique  #yellow  #ibdawareness  @younique_corporate #beautyblogger 
Story of my life. Zero appetite and constantly nauseous. It’s hard to stay positive when your body fails you #crohnsdisease #crohns #ibdawareness #crohnie #frustrated #remicade #treatmentsucks #ihatefeelingsickeveryday #crohnssucks
“I wanna walk the doggies”, “Bella..No, stop sniffing, come on” “Good job girls” 
Just as I am trying to get a video..Enter Meltdown!
The leashes got crossed and that was that 🤦🏻‍♀️ It was cute while it lasted though 😊
#littledogwalker #missindependence .
.
.
.
.
.
.
.
.
#walkthedogs #leashed #toddlermeltdown #enjoythemoments #dogwalkinglife #furmomlife #physicianassistant #ibdawareness #rnlife #caffeinated #dogmomlife #charlestonstrong  #outdoorfun  #cocktailplease #dessertlover #firstaid #eatrealfoods#postpartumanxiety  #medicalmama #travelstyle
#coastaltown #coastalliving
“I wanna walk the doggies”, “Bella..No, stop sniffing, come on” “Good job girls” Just as I am trying to get a video..Enter Meltdown! The leashes got crossed and that was that 🤦🏻‍♀️ It was cute while it lasted though 😊 #littledogwalker  #missindependence  . . . . . . . . . #walkthedogs  #leashed  #toddlermeltdown  #enjoythemoments  #dogwalkinglife  #furmomlife  #physicianassistant  #ibdawareness  #rnlife  #caffeinated  #dogmomlife  #charlestonstrong  #outdoorfun  #cocktailplease  #dessertlover  #firstaid  #eatrealfoods #postpartumanxiety  #medicalmama  #travelstyle  #coastaltown  #coastalliving 
Day 39/50 #TeamChallengeTourDeIRONMAN
.
Beyond humbled after riding just a small portion of the Queen K. So much respect for everyone that takes on #IMKona 🤙
#Crohnies4Nora is now making #Crohns related #jewlery

#gofundmedonations accepted 
#paypal donations accepted 
Go to www.facebook.com/crohnies4nora for more information on how to get yours! ............
#spoonielife 
#chronicpain 
#purpleribbon 
#awareness #crohnsawareness 
#ibd 
#ibdawareness
So I didn't get a chance to post this on Friday, but Friday was my year anniversary of taking Humira for my ulcerative colitis. A year ago I took my first four starter injections into my stomach in a square pattern around my belly button. My ulcerative colitis was so severe that my GI doctor skipped all of the other medication options and went straight to biologic therapy. I was fearful that my body would fail the medication, one of the strongest options out there for my disease, and that I would have to either drive to an infusion center for medication to be put in me via an IV or worse- that I would lose my large intestine. At first it seemed like I was failing it, until February when my doctor upped my dosage to weekly injections from the biweekly injections I was originally on. By June I felt better than I had in a year, and today (most days) I can't even tell that I'm considered a "chronically ill" person. I'm very grateful for this medication, though the side effects and risks can be horrifying and I'll be on it for the rest of my life (or until my body rejects it), this medication has given me my new "normal" life. 🙌🏻💜💪🏻💉
So I didn't get a chance to post this on Friday, but Friday was my year anniversary of taking Humira for my ulcerative colitis. A year ago I took my first four starter injections into my stomach in a square pattern around my belly button. My ulcerative colitis was so severe that my GI doctor skipped all of the other medication options and went straight to biologic therapy. I was fearful that my body would fail the medication, one of the strongest options out there for my disease, and that I would have to either drive to an infusion center for medication to be put in me via an IV or worse- that I would lose my large intestine. At first it seemed like I was failing it, until February when my doctor upped my dosage to weekly injections from the biweekly injections I was originally on. By June I felt better than I had in a year, and today (most days) I can't even tell that I'm considered a "chronically ill" person. I'm very grateful for this medication, though the side effects and risks can be horrifying and I'll be on it for the rest of my life (or until my body rejects it), this medication has given me my new "normal" life. 🙌🏻💜💪🏻💉
Guest Post⏰: in honor of Pregnancy & Infant Loss Awareness Day my friend Jess has shared her story about pregnancy, loss, and the possible correlation with undiagnosed thyroid issues. Head to the blog to read her  whole story! #linkinbio
Guest Post⏰: in honor of Pregnancy & Infant Loss Awareness Day my friend Jess has shared her story about pregnancy, loss, and the possible correlation with undiagnosed thyroid issues. Head to the blog to read her whole story! #linkinbio 
this was my first day back at the gym after my 2nd small bowel resection. i did a brisk walk on the treadmill for 30-min, and i clocked in just over a mile and a half.

from all of the lying down and sitting during recovery, I've developed upper crossed syndrome. so i did some stretching for this. I'll post some info and pics about my workout in another post. stay tuned!
.
.
.
#fit #healthy #fitfam #fitness #crohnsdisease #crohnslife #crohns #weightloss #love #selflove #colitis #ibdfamily #ibd #ibdawareness #anxiety #GetHealthy #HealthyLife #healthylifestyle #healthy #happy #GetFit
this was my first day back at the gym after my 2nd small bowel resection. i did a brisk walk on the treadmill for 30-min, and i clocked in just over a mile and a half. from all of the lying down and sitting during recovery, I've developed upper crossed syndrome. so i did some stretching for this. I'll post some info and pics about my workout in another post. stay tuned! . . . #fit  #healthy  #fitfam  #fitness  #crohnsdisease  #crohnslife  #crohns  #weightloss  #love  #selflove  #colitis  #ibdfamily  #ibd  #ibdawareness  #anxiety  #GetHealthy  #HealthyLife  #healthylifestyle  #healthy  #happy  #GetFit 
As a Crohn's sufferer I REALLY appreciate a well decorated/ quirky bathroom! So I loved this toilet backdrop at Kuala Lumpur airport ✈🚽🤗 #crohns #colitis #ibd #crohnsawareness #colitisawareness #ibdawareness #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #health #wellbeing #chronicillness #invisibleilnness #toilet #airport
My life be like. 😂😂 #repost from @lifewithcrohns
My life be like. 😂😂 #repost  from @lifewithcrohns
I ❤️ Smoked Pepper Salmon lol (Costco has it for cheap btw!) sandwich is sourdough toast+homemade pesto+cherry tomatoes+cucumber+green onion. GF/DF goodness! 
#crohns #crohnsdisease #crohnsawareness #crohnsfighter #crohnswarrior #crohnssucks #crohnslife #crohnsandcolitis #ibd #ibdawareness #cd #chronie #chronicillness #dairyfree #glutenfree #vegan #vegetarian #salmon #smokedsalmon #sourdough #chives #toast #pesto #tomato #cherrytomatos
I’ve been getting a lot of messages that I just need to change my diet and do certain exercises to cure my IBD. That is amazing if that has worked for you BUT I have tried so many remedies that have not worked for me. Different things will work for different people!! There is still NO CURE for IBD so let’s help try to spread awareness so that one day the world will be IBD free! #ibd #crohns #ulcerativecolitis #tubie #ostomy #spoonie #chronicillness #invisibleillness #remicade #ibdproblems #colitis #autoimmune #anxiety  #spoonieproblems #jpouch #IBS #humira #entyvio #gutitout #prednisone #ibdwarriors #autoimmunedisease #ibdadvocate #worldibdday2017 #ibdawareness #ibdlife #colonoscopy #flareup #ibdvisible
I’ve been getting a lot of messages that I just need to change my diet and do certain exercises to cure my IBD. That is amazing if that has worked for you BUT I have tried so many remedies that have not worked for me. Different things will work for different people!! There is still NO CURE for IBD so let’s help try to spread awareness so that one day the world will be IBD free! #ibd  #crohns  #ulcerativecolitis  #tubie  #ostomy  #spoonie  #chronicillness  #invisibleillness  #remicade  #ibdproblems  #colitis  #autoimmune  #anxiety  #spoonieproblems  #jpouch  #IBS  #humira  #entyvio  #gutitout  #prednisone  #ibdwarriors  #autoimmunedisease  #ibdadvocate  #worldibdday2017  #ibdawareness  #ibdlife  #colonoscopy  #flareup  #ibdvisible 
Assim é a jornada de quem tem Doença Inflamatória Intestinal. "O Crohn pode até ganhar uma batalha, mas jamais vamos nos entregar a ponto  dele vencer essa guerra." JAMAIS! 
Força, foco e fé @karlaivana .
.

@Regranned from @karlaivana - "Não posso permitir que os obstáculos sejam superiores do que a minha capacidade de contorna-los. 
A trégua entre a noite e o dia, é o intervalo que me garante as forças renovadas para prosseguir. 
Um novo dia é tempo de recomeçar com perseverança." 🙏🏻 By Leonor
.
Mais um dia internada em tratamento 💉💊😷, por enquanto sem previsão de alta. Obrigada Pai pela força que tens me dado para seguir em frente nessa luta diária. 💪🏻
Quem é portador de uma doença auto imune sabe muito bem o quanto é difícil lidar com todos os problemas que esta nos traz, há dias em que estamos super bem e já em outros não temos força nem para levantar da cama, são nesses dias que ela tenta nos dominar... As vezes ela até consegue e é quando paramos, respiramos fundo, pedimos ao Pai para que não nos deixe desanimar e Ele faz com retiremos forças de onde nem imaginávamos ter, pois Ele não nos abandona e o Crohn pode até ganhar uma batalha, mas jamais vamos nos entregar a ponto  dele vencer essa guerra. 👊🏻
.
.
#foco #força #fé #perseverança #cura  #saude #crohn #doençadecrohn #crohns #crohnsdisease #vivendocomcrohn #livingwithcrohns #crohnsfighter #crohnsgirl #crohnswarrior #instacrohns #crohnslife #invisibleillness #dii #ibd #ibdwarrior #ibdawareness #spoonie #pain #autoimune #autoimunedisease #superação #onedayatatime #thanksgod #thanksgodforall 🙏🏻
Assim é a jornada de quem tem Doença Inflamatória Intestinal. "O Crohn pode até ganhar uma batalha, mas jamais vamos nos entregar a ponto dele vencer essa guerra." JAMAIS! Força, foco e fé @karlaivana . . @Regranned from @karlaivana - "Não posso permitir que os obstáculos sejam superiores do que a minha capacidade de contorna-los. A trégua entre a noite e o dia, é o intervalo que me garante as forças renovadas para prosseguir. Um novo dia é tempo de recomeçar com perseverança." 🙏🏻 By Leonor . Mais um dia internada em tratamento 💉💊😷, por enquanto sem previsão de alta. Obrigada Pai pela força que tens me dado para seguir em frente nessa luta diária. 💪🏻 Quem é portador de uma doença auto imune sabe muito bem o quanto é difícil lidar com todos os problemas que esta nos traz, há dias em que estamos super bem e já em outros não temos força nem para levantar da cama, são nesses dias que ela tenta nos dominar... As vezes ela até consegue e é quando paramos, respiramos fundo, pedimos ao Pai para que não nos deixe desanimar e Ele faz com retiremos forças de onde nem imaginávamos ter, pois Ele não nos abandona e o Crohn pode até ganhar uma batalha, mas jamais vamos nos entregar a ponto dele vencer essa guerra. 👊🏻 . . #foco  #força  #fé  #perseverança  #cura  #saude  #crohn  #doençadecrohn  #crohns  #crohnsdisease  #vivendocomcrohn  #livingwithcrohns  #crohnsfighter  #crohnsgirl  #crohnswarrior  #instacrohns  #crohnslife  #invisibleillness  #dii  #ibd  #ibdwarrior  #ibdawareness  #spoonie  #pain  #autoimune  #autoimunedisease  #superação  #onedayatatime  #thanksgod  #thanksgodforall  🙏🏻
So today, after a few months of going out with someone, I finally told them about my IBD ...after a morning of wondering if my gut will behave, and if it doesn’t, will I have time to get home before it happens 💩 ...not exactly the thoughts I wanted to have while spending a night with the person I like 👫 
How do you handle new relationship? How long until you open up about your condition? .
.
.
.
.
.
#Chronicillness #embarrassingillness
#silentsuffering #uc #ulcerativecolitis #ibd #lifewithIBD #dailystruggles #colitiswarrior #ibdwarrior #uc #ibdawareness #colitis #livingwithcolitis #livingwithibd #relationships #relationshipproblems #autoimmune #autoimmunedisease
So today, after a few months of going out with someone, I finally told them about my IBD ...after a morning of wondering if my gut will behave, and if it doesn’t, will I have time to get home before it happens 💩 ...not exactly the thoughts I wanted to have while spending a night with the person I like 👫 How do you handle new relationship? How long until you open up about your condition? . . . . . . #Chronicillness  #embarrassingillness  #silentsuffering  #uc  #ulcerativecolitis  #ibd  #lifewithIBD  #dailystruggles  #colitiswarrior  #ibdwarrior  #uc  #ibdawareness  #colitis  #livingwithcolitis  #livingwithibd  #relationships  #relationshipproblems  #autoimmune  #autoimmunedisease 
Feeling sick as 😷🤧
Not Crohn's Colitis related... however my Imuran (immunosuppressant) may have something to do with it.
Think I've got another sinus infection 🙄the right side of my face is so painful. Thought I had a high tolerance to pain after everything my #ibd had put me through but this is something else.
Had to leave work early, bath and bed. Had some leftover pain meds from my #stoma op so hopefully I'll get some rest and head to my GP in the morning.
Have been busy lately so think I'm just run down too. Even through I felt like shit yesterday I had a day at the races with friends which was lovely but I probably should have stayed in bed. 
After missing out and feeling shit from Crohn's I just want to make the most of everyday 💜 #stomalife #ostomy #ostomyawareness #feelingsick #sinusitis #sinusinfection #crohnsdisease #crohnscolitis #crohnsandcolitisawareness #ileostomy #ostomate #nocolonstillrollin #invisibleillnessawareness #invisibleillness #imuran #ibd #ibdawareness #crohnie
Feeling sick as 😷🤧 Not Crohn's Colitis related... however my Imuran (immunosuppressant) may have something to do with it. Think I've got another sinus infection 🙄the right side of my face is so painful. Thought I had a high tolerance to pain after everything my #ibd  had put me through but this is something else. Had to leave work early, bath and bed. Had some leftover pain meds from my #stoma  op so hopefully I'll get some rest and head to my GP in the morning. Have been busy lately so think I'm just run down too. Even through I felt like shit yesterday I had a day at the races with friends which was lovely but I probably should have stayed in bed. After missing out and feeling shit from Crohn's I just want to make the most of everyday 💜 #stomalife  #ostomy  #ostomyawareness  #feelingsick  #sinusitis  #sinusinfection  #crohnsdisease  #crohnscolitis  #crohnsandcolitisawareness  #ileostomy  #ostomate  #nocolonstillrollin  #invisibleillnessawareness  #invisibleillness  #imuran  #ibd  #ibdawareness  #crohnie 
"Não posso permitir que os obstáculos sejam superiores do que a minha capacidade de contorna-los. 
A trégua entre a noite e o dia, é o intervalo que me garante as forças renovadas para prosseguir. 
Um novo dia é tempo de recomeçar com perseverança." 🙏🏻 By Leonor
.
Mais um dia internada em tratamento 💉💊😷, por enquanto sem previsão de alta. Obrigada Pai pela força que tens me dado para seguir em frente nessa luta diária. 💪🏻
Quem é portador de uma doença auto imune sabe muito bem o quanto é difícil lidar com todos os problemas que esta nos traz, há dias em que estamos super bem e já em outros não temos força nem para levantar da cama, são nesses dias que ela tenta nos dominar... As vezes ela até consegue e é quando paramos, respiramos fundo, pedimos ao Pai para que não nos deixe desanimar e Ele faz com retiremos forças de onde nem imaginávamos ter, pois Ele não nos abandona e o Crohn pode até ganhar uma batalha, mas jamais vamos nos entregar a ponto  dele vencer essa guerra. 👊🏻
.
.
#foco #força #fé #perseverança #cura  #saude #crohn #doençadecrohn #crohns #crohnsdisease #vivendocomcrohn #livingwithcrohns #crohnsfighter #crohnsgirl #crohnswarrior #instacrohns #crohnslife #invisibleillness #dii #ibd #ibdwarrior #ibdawareness #spoonie #pain #autoimune #autoimunedisease #superação #onedayatatime #thanksgod #thanksgodforall 🙏🏻
"Não posso permitir que os obstáculos sejam superiores do que a minha capacidade de contorna-los. A trégua entre a noite e o dia, é o intervalo que me garante as forças renovadas para prosseguir. Um novo dia é tempo de recomeçar com perseverança." 🙏🏻 By Leonor . Mais um dia internada em tratamento 💉💊😷, por enquanto sem previsão de alta. Obrigada Pai pela força que tens me dado para seguir em frente nessa luta diária. 💪🏻 Quem é portador de uma doença auto imune sabe muito bem o quanto é difícil lidar com todos os problemas que esta nos traz, há dias em que estamos super bem e já em outros não temos força nem para levantar da cama, são nesses dias que ela tenta nos dominar... As vezes ela até consegue e é quando paramos, respiramos fundo, pedimos ao Pai para que não nos deixe desanimar e Ele faz com retiremos forças de onde nem imaginávamos ter, pois Ele não nos abandona e o Crohn pode até ganhar uma batalha, mas jamais vamos nos entregar a ponto dele vencer essa guerra. 👊🏻 . . #foco  #força  #fé  #perseverança  #cura  #saude  #crohn  #doençadecrohn  #crohns  #crohnsdisease  #vivendocomcrohn  #livingwithcrohns  #crohnsfighter  #crohnsgirl  #crohnswarrior  #instacrohns  #crohnslife  #invisibleillness  #dii  #ibd  #ibdwarrior  #ibdawareness  #spoonie  #pain  #autoimune  #autoimunedisease  #superação  #onedayatatime  #thanksgod  #thanksgodforall  🙏🏻
Just hanging out at the run turn around with my favorite pro @andy_potts 🤣
.
Day 38/50 #TeamChallengeTourDeIRONMAN
Much needed biannual trim! My hairdresser commented on how much hair I was losing as she was combing it 😕 Thank goodness I still have a lot!
❤︎
❤︎
#ibd #ibdwarrior #ibdawareness #inflammatoryboweldisease #ulcerativecolitis #潰瘍性大腸炎 #crohnsandcolitis #autoimmunedisease #chronicillness #hairloss #haircut #ヘアカット #カット #ハーフ
Have no fear! Crohn's Man is here! Who's hungry?

Such amazing work from @crusadeforcrohns I am always blown away! Go and follow them immediately! And check out their amazing website. You might* even learn something!
(*You definitely will)

#steroids #kickIBD #crohns #crohnsdisease #colitis #ulcerativecolitis #crusadeforcrohns #crusadeforcrohnsandcolitis #thismovieisshit #tmis #crohnsman #crohnsmancomics #ibd #ibdwarrior #ibdawareness #savetheday
#tbt to the day before my Stoma when I was probably the most nervous I have ever been. I had no idea how much it would change my life or how I’d adapt. Writing a blog has helped me express some feelings about it but also use my experience to help others. Please follow my new twitter account for my blog and all things IBD! @semicolon563 ❤️💩
#tbt  to the day before my Stoma when I was probably the most nervous I have ever been. I had no idea how much it would change my life or how I’d adapt. Writing a blog has helped me express some feelings about it but also use my experience to help others. Please follow my new twitter account for my blog and all things IBD! @semicolon563 ❤️💩
Our last #CampGot2Go event of 2017 is happening this weekend in #richmondhill at the Lake St George Field Centre. As the campers explore the wilderness, we want to say thank you to all the donors, sponsors, and volunteers who make our camps for kids and teens with #IBD possible. Hope you’re having as much fun this weekend as these campers!
.
.
📷: @anitabot
.
.
#crohns #crohnsdisease #colitis #ulcerativecolitis #IBDawareness #ibdwarrior #camp #ontario #woods #forest #nature #hike #chronicillness #invisibleillness
Our last #CampGot2Go  event of 2017 is happening this weekend in #richmondhill  at the Lake St George Field Centre. As the campers explore the wilderness, we want to say thank you to all the donors, sponsors, and volunteers who make our camps for kids and teens with #IBD  possible. Hope you’re having as much fun this weekend as these campers! . . 📷: @anitabot . . #crohns  #crohnsdisease  #colitis  #ulcerativecolitis  #IBDawareness  #ibdwarrior  #camp  #ontario  #woods  #forest  #nature  #hike  #chronicillness  #invisibleillness