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Give yourself credit for the days you've made it through when you thought you couldn't. #motivationalmonday #sayings #wordsofwisdom #quoteoftheday #invisableillness
I’m so touched seeing Santa has already given some warriors my book this Christmas 🎄✨ I still have a wow!. OMG! Ekk! I can’t believe it! Moment thinking that people around the world has and will be opening MY book on xmas morning!! It’s so unreal and amazing and exciting and even nervy. 
I’m so glad I wrote this and put it out into the world.  Writing, publishing and basically doing it all minus help with editing while I was mostly house bound with a major M.E. relapse was hard work but it kept me going. 
And I wanted to share my story and what worked for me in a simple small bedside book which is great for anyone wanting to begin yoga but are too scared because of payback and PEM. 
I couldn’t do a yoga routine as a teen, I just picked and mixed poses as and when I needed during the days and night and carried them out on my bed. This book is just that. When your body needs yoga, pick up the book and chose the yoga pose your body needs. 
I kept it simple and up to you to make your own yoga practice but the book has some routines if you want to carry them out also (short ones). I think this Christmas morning I shall have an emotional moment again, my life and my work fills my heart 
#myalgicencephalomyelitis #yogamybedandme #mecfs #cfsme #cfs #chronicfatigue #chronicfatiguesyndrome #spoonieyoga #spoonie #fibromyalgia #lymedisease #invisableillness #chronicillness #millionsmissing #unrest
I’m so touched seeing Santa has already given some warriors my book this Christmas 🎄✨ I still have a wow!. OMG! Ekk! I can’t believe it! Moment thinking that people around the world has and will be opening MY book on xmas morning!! It’s so unreal and amazing and exciting and even nervy. I’m so glad I wrote this and put it out into the world. Writing, publishing and basically doing it all minus help with editing while I was mostly house bound with a major M.E. relapse was hard work but it kept me going. And I wanted to share my story and what worked for me in a simple small bedside book which is great for anyone wanting to begin yoga but are too scared because of payback and PEM. I couldn’t do a yoga routine as a teen, I just picked and mixed poses as and when I needed during the days and night and carried them out on my bed. This book is just that. When your body needs yoga, pick up the book and chose the yoga pose your body needs. I kept it simple and up to you to make your own yoga practice but the book has some routines if you want to carry them out also (short ones). I think this Christmas morning I shall have an emotional moment again, my life and my work fills my heart #myalgicencephalomyelitis  #yogamybedandme  #mecfs  #cfsme  #cfs  #chronicfatigue  #chronicfatiguesyndrome  #spoonieyoga  #spoonie  #fibromyalgia  #lymedisease  #invisableillness  #chronicillness  #millionsmissing  #unrest 
The joys of being ill. Sweeties every morning, mid morning and night #chronsdisease #tablets #gay #bellyproblems #invisableillness
Love is .......finding that person that will be there for you in a crisis ! #invisableillness
Love is .......finding that person that will be there for you in a crisis ! #invisableillness 
Yeah NO WAY they can see me now!! Hide and seek champion 2017🥇🏆🥁... #itsnotme #roughcollies #roughcollieofinstagram #invisableillness #blendingintothebackground
I never knew the extent of my anxiety until I read others stories. Growing up I was always so thankful I didn't have many medical issues... so thankful that I was "normal". Turns out... I was never normal but by telling myself that I was I actually swept a lot of issues under a rug without even realizing it. The older I get the more I realize certain things I do arn't natural, it's a side effect to a social anxiety disorder. I'd really like to revisit my past and see where and how this was developed because it seems like it came out of nowhere while simultaneously it's always felt like this. I thought I was "normal" because I thought the feelings of anxiety was just life. Now I can't wait to figure out what life is like without this monster. Is this where I say the first step is admitting?  #invisableillness #mentalhealth #roadtorecovery
I never knew the extent of my anxiety until I read others stories. Growing up I was always so thankful I didn't have many medical issues... so thankful that I was "normal". Turns out... I was never normal but by telling myself that I was I actually swept a lot of issues under a rug without even realizing it. The older I get the more I realize certain things I do arn't natural, it's a side effect to a social anxiety disorder. I'd really like to revisit my past and see where and how this was developed because it seems like it came out of nowhere while simultaneously it's always felt like this. I thought I was "normal" because I thought the feelings of anxiety was just life. Now I can't wait to figure out what life is like without this monster. Is this where I say the first step is admitting? #invisableillness  #mentalhealth  #roadtorecovery 
Fibro Frog in Mykonos 🐸 Credit: @whereismymat  #fibrofrog #bakasana #crowpose #fibromyalgia #fibrowarrior #invisableillness #awareness #yoga #strength #yogi #balance
Some people may know you have an invisible illness but they don’t understand what it’s like! It for 1 is not like having an invisible friend that really isn’t there.... IT IS ALL TOO REAL #diabetessucks #diabetes #autoimmunedisease #invisableillness #type1diabetes #type1life #type1mom #dparent #type1strong #type1family #type1warrior #youdontlooksick #givediabetesthefinger #putthatinyourpumpandprimeit #mysuperherowearsaninsulinpump #runningoninsulin #insulinaddict
Some people may know you have an invisible illness but they don’t understand what it’s like! It for 1 is not like having an invisible friend that really isn’t there.... IT IS ALL TOO REAL #diabetessucks  #diabetes  #autoimmunedisease  #invisableillness  #type1diabetes  #type1life  #type1mom  #dparent  #type1strong  #type1family  #type1warrior  #youdontlooksick  #givediabetesthefinger  #putthatinyourpumpandprimeit  #mysuperherowearsaninsulinpump  #runningoninsulin  #insulinaddict 
This is what an invisible illness looks like right before a 5km wet, muddy, challenging 35 station obstacle course: 🚨 medic alert rubber wrist band
📟 pump in pocket one (on my thigh) 📱phone in pocket two (on my other thigh)
🍬 lollies in pocket three (on my waist) 🖱Dexcom on my arm
🤴🏼 my number one supporter and love of my life by my side
👩🏻‍🏫 a brain that’s constantly running through the possible situations that could happen, questioning ‘have I prepared right’ ‘what if...’... nervous about the bigger challenge of #t1d but pumped for awesome fun all the same! 💪🏼😄
(Oh but of course this also leads to a big shot of adrenaline to my system... and so ‘HELLO high Blood sugar!’... forgot about that at the time... you know, when I was trying to have fun ☹️🤣🙃#diabeticlife )
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#obstaclehell #getoutside #dirty #sweat #fitlife #play #love #health #livewell #move #fitness #invisableillness #fitnessjourney #type1strong #warriorup #dexcom #medtronic #jdrf #strongertogether #yay #fighter #ican #youvsyou #justdoit #diabetes
This is what an invisible illness looks like right before a 5km wet, muddy, challenging 35 station obstacle course: 🚨 medic alert rubber wrist band 📟 pump in pocket one (on my thigh) 📱phone in pocket two (on my other thigh) 🍬 lollies in pocket three (on my waist) 🖱Dexcom on my arm 🤴🏼 my number one supporter and love of my life by my side 👩🏻‍🏫 a brain that’s constantly running through the possible situations that could happen, questioning ‘have I prepared right’ ‘what if...’... nervous about the bigger challenge of #t1d  but pumped for awesome fun all the same! 💪🏼😄 (Oh but of course this also leads to a big shot of adrenaline to my system... and so ‘HELLO high Blood sugar!’... forgot about that at the time... you know, when I was trying to have fun ☹️🤣🙃#diabeticlife  ) . . #obstaclehell  #getoutside  #dirty  #sweat  #fitlife  #play  #love  #health  #livewell  #move  #fitness  #invisableillness  #fitnessjourney  #type1strong  #warriorup  #dexcom  #medtronic  #jdrf  #strongertogether  #yay  #fighter  #ican  #youvsyou  #justdoit  #diabetes 
Love is .......finding that person that will be there for you in a crisis ! #invisableillness
Love is .......finding that person that will be there for you in a crisis ! #invisableillness 
I’m so touched seeing Santa has already given some warriors my book this Christmas 🎄✨ I still have a wow!. OMG! Ekk! I can’t believe it! Moment thinking that people around the world has and will be opening MY book on xmas morning!! It’s so unreal and amazing and exciting and even nervy. 
I’m so glad I wrote this and put it out into the world.  Writing, publishing and basically doing it all minus help with editing while I was mostly house bound with a major M.E. relapse was hard work but it kept me going. 
And I wanted to share my story and what worked for me in a simple small bedside book which is great for anyone wanting to begin yoga but are too scared because of payback and PEM. 
I couldn’t do a yoga routine as a teen, I just picked and mixed poses as and when I needed during the days and night and carried them out on my bed. This book is just that. When your body needs yoga, pick up the book and chose the yoga pose your body needs. 
I kept it simple and up to you to make your own yoga practice but the book has some routines if you want to carry them out also (short ones). I think this Christmas morning I shall have an emotional moment again, my life and my work fills my heart 
#myalgicencephalomyelitis #yogamybedandme #mecfs #cfsme #cfs #chronicfatigue #chronicfatiguesyndrome #spoonieyoga #spoonie #fibromyalgia #lymedisease #invisableillness #chronicillness #millionsmissing #unrest
I’m so touched seeing Santa has already given some warriors my book this Christmas 🎄✨ I still have a wow!. OMG! Ekk! I can’t believe it! Moment thinking that people around the world has and will be opening MY book on xmas morning!! It’s so unreal and amazing and exciting and even nervy. I’m so glad I wrote this and put it out into the world. Writing, publishing and basically doing it all minus help with editing while I was mostly house bound with a major M.E. relapse was hard work but it kept me going. And I wanted to share my story and what worked for me in a simple small bedside book which is great for anyone wanting to begin yoga but are too scared because of payback and PEM. I couldn’t do a yoga routine as a teen, I just picked and mixed poses as and when I needed during the days and night and carried them out on my bed. This book is just that. When your body needs yoga, pick up the book and chose the yoga pose your body needs. I kept it simple and up to you to make your own yoga practice but the book has some routines if you want to carry them out also (short ones). I think this Christmas morning I shall have an emotional moment again, my life and my work fills my heart #myalgicencephalomyelitis  #yogamybedandme  #mecfs  #cfsme  #cfs  #chronicfatigue  #chronicfatiguesyndrome  #spoonieyoga  #spoonie  #fibromyalgia  #lymedisease  #invisableillness  #chronicillness  #millionsmissing  #unrest 
It's not #fibro that keeps me awake it's the #starsigns 😂😂😂😂😂 #jokes lol I'm an #aquarius 😍 #fibromyalgia #chronicillness #invisableillness
Went on a Chirstmas adventure with servicedog Bailee. When you feel good  its amazing what you can accomplish! 
Got some Chirstmas shopping done.... the key word being some. Will have to venture out again tommrow.
#MerryChirstmas #servicedog #seizurealert #seizureresponse #epilepsy #invisableillness
When my girl feels good! This is what goes on!
 We went on a Chirstmas adventure! 
Look how handsome I am in my chirstmas hat!  A little treat at the end! #Pupcup #servicedog #merrychirstmas #seizurealert #seizurereponse #epilepsy #invisableillness
Got my watchman @tubby_the_maine ❤❤ his eye is quarter open watching me bless him he's not been attached the last few days when  it had flares but tonight he's back ❤❤ #fibro #fibromyalgia #chronicillness #invisableillness #cat #cats #catsofinstagram #tubs #tubby #furrybaby #maine #mainecoon #mainecooncat #mainecoonofinstagram
Really struggling with my left had today I don't mind not being able to walk far but not my hands I really need them #fibrosucks big time today 😣 #tubby is looking after me hiding in the background #cat #cats #catsofinstagram #tubs #tubby #furrybaby #maine #mainecoon #mainecooncat #mainecoonofinstagram #fibro #fibromyalgia #chronicillness #invisableillness
Kellyn is a 17 year old with Fibromyalgia, IBS, Addison’s Disease, Chronic migraines, Dysautonomia and recently has lost feeling in her legs. Team Hugs thinks you are a WARRIOR, Kellyn!  Hugs to you!💗. #fibromyalgia #ibs #addisonsdisease #migraine #dysautonomia #brightensomeonesday #chronic #chronicpain #fighter #invisableillness #teamhugcarepackages #sickkids #warriorkids
Perception has got me thinking this morning. People don’t often enough put themselves in the shoes of others before passing judgement or inflicting harm weather physical or emotional. People will make you feel less than them or not worthy of the same kind of love or respect because you are a little different than them or weaker than them, or might not have a bark like they do. #perception #equality #bully #invisableillness #emotionallydrained #donthurtothers #weareallequal #eatplantsnotfriends #fuckyourfeelings #stophurtingeachother #vegan #pigsaredogstoo #eatclean #noexcuses #livestrong #getheard #nobodycares #albaparis #murder #youwouldnteatyourdog #savealife #hugsomeonewhosehurting #sameperson #animallovers #compassion
Perception has got me thinking this morning. People don’t often enough put themselves in the shoes of others before passing judgement or inflicting harm weather physical or emotional. People will make you feel less than them or not worthy of the same kind of love or respect because you are a little different than them or weaker than them, or might not have a bark like they do. #perception  #equality  #bully  #invisableillness  #emotionallydrained  #donthurtothers  #weareallequal  #eatplantsnotfriends  #fuckyourfeelings  #stophurtingeachother  #vegan  #pigsaredogstoo  #eatclean  #noexcuses  #livestrong  #getheard  #nobodycares  #albaparis  #murder  #youwouldnteatyourdog  #savealife  #hugsomeonewhosehurting  #sameperson  #animallovers  #compassion 
Today I feel awful 😢 I hurt everywhere .... my body feels like it's been ran over & then reversed back over again multipul times 😢 #fibrosucks
#fibromyalgia #chronicillness #invisableillness
Fibro and cfs are both really stupid conditions, no wonder none of us really understand them.

https://m.facebook.com/story.php?story_fbid=898034783696957&id=244060669094375

#fibroawareoz #fibromyalgiaawareness #fibromyalgia #chronicillness #chronicfatigue #chronicpain #invisableillness #CFS #cantwork #askforhelp #painmanagement #dontgiveup #chronicpainsurvivor #spoonie #disability #fibrowarrior #fibrofighter #spoons #support #believeme #approvedillness #brainfog #insomnia #encouragement #explainingnotcomplaining
Fibro and cfs are both really stupid conditions, no wonder none of us really understand them. https://m.facebook.com/story.php?story_fbid=898034783696957&id=244060669094375 #fibroawareoz  #fibromyalgiaawareness  #fibromyalgia  #chronicillness  #chronicfatigue  #chronicpain  #invisableillness  #CFS  #cantwork  #askforhelp  #painmanagement  #dontgiveup  #chronicpainsurvivor  #spoonie  #disability  #fibrowarrior  #fibrofighter  #spoons  #support  #believeme  #approvedillness  #brainfog  #insomnia  #encouragement  #explainingnotcomplaining 
I have an important announcement......... I’m moving! We’re moving across down. The HOA where we are living wants people paint their houses and Mom dosent want to because it’s expensive so she thinks that moving would be a better option. We are renting a house with a pool! I’m excited for change but Dad because my friends are here and this is the last house my dad was at before he passed. We will leave behind many memories and many great people. It’s only like 15 Mom away from where we live now so it’s not that far. I’m excited for change and for a pool! Swimming helps a lot for MS. It’s what got me out of my first exacerbation. I could walk to the store form our new house. It also has tile so that means it’ll be cooler in the summer because heat and MS don’t mix well at all. The rent is really low compared to what we’re paying now. I’m excited for what’s to come! Sorry for not being so active. We are packing because we have to be out by January 2nd. I also get trig my #tysabri on Wednesday (thank god).. I really need it! So Christmas is around the corner so Happy holidays! #ms #multiplesclerosis #pediatricms #teenswithms #invisableillness #invisabledisease #spoonie #kidsgetmstoo #moving
I have an important announcement......... I’m moving! We’re moving across down. The HOA where we are living wants people paint their houses and Mom dosent want to because it’s expensive so she thinks that moving would be a better option. We are renting a house with a pool! I’m excited for change but Dad because my friends are here and this is the last house my dad was at before he passed. We will leave behind many memories and many great people. It’s only like 15 Mom away from where we live now so it’s not that far. I’m excited for change and for a pool! Swimming helps a lot for MS. It’s what got me out of my first exacerbation. I could walk to the store form our new house. It also has tile so that means it’ll be cooler in the summer because heat and MS don’t mix well at all. The rent is really low compared to what we’re paying now. I’m excited for what’s to come! Sorry for not being so active. We are packing because we have to be out by January 2nd. I also get trig my #tysabri  on Wednesday (thank god).. I really need it! So Christmas is around the corner so Happy holidays! #ms  #multiplesclerosis  #pediatricms  #teenswithms  #invisableillness  #invisabledisease  #spoonie  #kidsgetmstoo  #moving 
Road to Discovery is dusting yourself off & picking yourself up off the ground.....so tiring feeling defeated at the moment #invisableillness #cfs #cfsme #onedayatatime #bravery #strongwomen #tired #goodvibesonly #ruokay #mindset
Life is an ebb and flow; One day might be good. The next might be terribly bad. Lately I've been having more bad days then good. It effects my ability to work, focus on school, sleep, and apparently eat. I try everything from yoga, exercise, muscle relaxers, pain meds (Tramadol), CBD oil and topical gel...
Some days, like last Sunday. I was golden! I had a great hike. I didn't hurt and I was ok. Fast forward to today where I haven't been able to do anything but lay in bed and try to keep my mind off of things. My entire upper body feels like it's being pulled apart, I didn't sleep at all, I can't eat, and my entire body feels like it can't hold or support me. This is the second time this week I have been bed ridden....
I'm not looking for pity or using it as an excuse. I feel like the first year or so of any chronic diagnosis is the hardest. Finding things that work for me and things that don't. Currently I'm trying to find a good pillow so I can sleep through the whole damn night and not wake up in pain. And give up gluten...
When I have days like this, I count my blessings. I hug my foster siblings. I tell my parents and close friends how much I love them and appreciate their support. I think about how thankful I am for having a boyfriend who is so patient and understanding. And I pray that God will help me find some solutions because I hate letting this Dystonia dictate my life. 
One of my idols that I have found, @james_sutliff, makes it a point to post showing the difficult he faces in everyday life and it means so much to see him showing the vulnerability. I refuse to be one of those people who only post the good, especially living with a invisible illness like Dystonia. But these posts are just as much for me. To remind me on bad days, why I need to keep my head up, even when my entire body is literally pulling it down (Dystonia pun-bad joke😂😑). My attitude will be stronger then any pain or progression this disease decides to take. Because that's where I want my true strength to shine through. 💙🧘💜
#livestrong 
#invisableillness 
#lifewithdystonia
Life is an ebb and flow; One day might be good. The next might be terribly bad. Lately I've been having more bad days then good. It effects my ability to work, focus on school, sleep, and apparently eat. I try everything from yoga, exercise, muscle relaxers, pain meds (Tramadol), CBD oil and topical gel... Some days, like last Sunday. I was golden! I had a great hike. I didn't hurt and I was ok. Fast forward to today where I haven't been able to do anything but lay in bed and try to keep my mind off of things. My entire upper body feels like it's being pulled apart, I didn't sleep at all, I can't eat, and my entire body feels like it can't hold or support me. This is the second time this week I have been bed ridden.... I'm not looking for pity or using it as an excuse. I feel like the first year or so of any chronic diagnosis is the hardest. Finding things that work for me and things that don't. Currently I'm trying to find a good pillow so I can sleep through the whole damn night and not wake up in pain. And give up gluten... When I have days like this, I count my blessings. I hug my foster siblings. I tell my parents and close friends how much I love them and appreciate their support. I think about how thankful I am for having a boyfriend who is so patient and understanding. And I pray that God will help me find some solutions because I hate letting this Dystonia dictate my life. One of my idols that I have found, @james_sutliff, makes it a point to post showing the difficult he faces in everyday life and it means so much to see him showing the vulnerability. I refuse to be one of those people who only post the good, especially living with a invisible illness like Dystonia. But these posts are just as much for me. To remind me on bad days, why I need to keep my head up, even when my entire body is literally pulling it down (Dystonia pun-bad joke😂😑). My attitude will be stronger then any pain or progression this disease decides to take. Because that's where I want my true strength to shine through. 💙🧘💜 #livestrong  #invisableillness  #lifewithdystonia 
So today has been the 5th time I've had to go to hospital in the last year due to endometriosis and other conditions this devil of a disease can cause. This condition causes me pain everyday, some days are bearable, some days I can't move, shower, eat and do normal simple things. Invisible chronic illnesses are such a serious issue. Just because I look young, healthy, laughing and having a good time, doesn't mean I'm not on a 7 on the pain scale. I'm supporting trials in my local hospital in Leicester to help educate people on endometriosis and hopefully help towards a more stable cure. So please my friends be patient, hopefully after this second surgery I'll be fighting fit! #invisableillness #endometriosis #endometriosisawareness #chronicillness #endowarrior #endosisters #endometriosisuk #endoaware #endo
So today has been the 5th time I've had to go to hospital in the last year due to endometriosis and other conditions this devil of a disease can cause. This condition causes me pain everyday, some days are bearable, some days I can't move, shower, eat and do normal simple things. Invisible chronic illnesses are such a serious issue. Just because I look young, healthy, laughing and having a good time, doesn't mean I'm not on a 7 on the pain scale. I'm supporting trials in my local hospital in Leicester to help educate people on endometriosis and hopefully help towards a more stable cure. So please my friends be patient, hopefully after this second surgery I'll be fighting fit! #invisableillness  #endometriosis  #endometriosisawareness  #chronicillness  #endowarrior  #endosisters  #endometriosisuk  #endoaware  #endo 
Well this is the truth it's just after 2am I'm knackered and I can't sleep 🤔🤔🤔🤔 always the darn way #fibroproblems
#fibromyalgiaproblems #fibro #fibromyalgia #chronicillness #invisableillness
"If more of us valued food and cheer and song above hoarded gold, it would be a merrier world." - J.R.R. Tolkien

Today we prioritized meal prep. Nothing has been dragging me down more than having to use what little energy I have to cook dinner. It's also hard when I have very little appetite and nothing tatses good to me. I'm thankful for my husband.

We've mostly been eating the same dishes every day for years and unsurprisingly I'm tired of some of them. I still love morning banana shakes and chocolate protien bites. I'll post the recipes again soon.

The next few weeks will have me really try to overhaul and minimize all things food. Should be interesting to document.

How do you keep yourself fed?
"If more of us valued food and cheer and song above hoarded gold, it would be a merrier world." - J.R.R. Tolkien Today we prioritized meal prep. Nothing has been dragging me down more than having to use what little energy I have to cook dinner. It's also hard when I have very little appetite and nothing tatses good to me. I'm thankful for my husband. We've mostly been eating the same dishes every day for years and unsurprisingly I'm tired of some of them. I still love morning banana shakes and chocolate protien bites. I'll post the recipes again soon. The next few weeks will have me really try to overhaul and minimize all things food. Should be interesting to document. How do you keep yourself fed?
The joys of being ill. Sweeties every morning, mid morning and night #chronsdisease #tablets #gay #bellyproblems #invisableillness
I moan alot but today I'm really #grateful we aren't loaded (we don't work due to health issues) so things are tight we do our best tho but today I got a Christmas card with a 'nice chunk of money' to go towards Xmas food from mum dad & my late grandad well we went shopping (we didnt want to not get a turkey crown) I can't express in words how grateful we are we got things we wouldn't normal get due to not affording them ❤ it came when we needed it ❤ now this momma is sore #fibro #fibromyalgia #chronicillness #invisableillness #begrateful #myparentsrock #mygrandadrocks #imissgrandad #wewillhaveagoodchristmas ❤
I moan alot but today I'm really #grateful  we aren't loaded (we don't work due to health issues) so things are tight we do our best tho but today I got a Christmas card with a 'nice chunk of money' to go towards Xmas food from mum dad & my late grandad well we went shopping (we didnt want to not get a turkey crown) I can't express in words how grateful we are we got things we wouldn't normal get due to not affording them ❤ it came when we needed it ❤ now this momma is sore #fibro  #fibromyalgia  #chronicillness  #invisableillness  #begrateful  #myparentsrock  #mygrandadrocks  #imissgrandad  #wewillhaveagoodchristmas  ❤
Well done to @ASDA in #Gosport for this great sign #notalldisabilitysarevisable @invisibledisabilities #invisableillness
And for the #fibro a #chewbacca bed warmer 😍😍😍😍 down 2 £8 from £16 😍😍 will be nice and toasty warm 
#fibromyalgia 
#chronicillness 
#invisableillness
Cause #ittakesgutz
Well don't I look rough #fatigue has well & truly set in .... feel like a #bagofshit fighting to stay away which is really hard starting to really hurt now too 
#fibro 
#fibromyalgia 
#chronicillness 
#invisableillness
Look at that spike! Steak bake pasty for lunch was the culprit 🙊 #bloodsugar #freestylelibre #flashglucosemonitoring #type1life #type1diabetes #invisableillness #insulindependent #diabetic #iamgreaterthanthehighsandlows
Sat in my usual position at grandma's feeling bit better today I think the meds being up is helping if I do too much tho I pay for it lol hot flushes are at bay so far too my hips being a pain in the ass lol 
#fibro
#fibromyalgia 
#chronicillness 
#invisableillness
Sat in my usual position at grandma's feeling bit better today I think the meds being up is helping if I do too much tho I pay for it lol hot flushes are at bay so far too my hips being a pain in the ass lol #fibro  #fibromyalgia  #chronicillness  #invisableillness 
#medicinecoststoomuch
No should be penalised for being ill. And when I think of how rich these pharmaceutical companies are, I have to wonder why, when they are in this field of expertise, they don't cut into their own profits a bit to help out those who struggle to pay these overblown prices.
So many politicians have no idea of what the reality is for most people who just don't have the income to match their expenses medically ... and what it's like to juggle a mountain of bills, food and an expensive script ... living every day should not be so hard.Not in this day and age (don't even get me started on power bills, car registration and the price of meat and vegetables etc).
Have some compassion, think for a moment what if it were you ... instead of driving around a car that costs the same as a house for a poorer person, use that income you really don't need to ease the suffering of someone who truly needs your help.Those on pensions are not having the easy life by not working, in fact my hubby has permission to supplement ours, he works very hard physically to cover our rent,  few hours a week ... So our pension gets cut a little but in the end we are better off.
Just my JOB stockings costs a small fortune and they only last about three months before they begin to get ragged, with holes in the heels from being worn each day.Thats also not counting a whole lot of extras we get no income to cover, mostly creams and products I need to buy constantly at the pharmacy.
If I lived alone I don't even know how I would manage, in every way.
I'd probably have to live very poor, I don't see how I would manage at all as I can't do a thing without pain now.
I know I'm not alone in this.
#fibroawareoz #fibromyalgiaawareness #fibromyalgia #chronicillness #chronicfatigue #chronicpain #invisableillness #CFS #cantwork #askforhelp #painmanagement #dontgiveup #chronicpainsurvivor #spoonie #disability #fibrowarrior #fibrofighter #spoons #support #believeme #approvedillness #brainfog #insomnia #encouragement #explainingnotcomplaining
#medicinecoststoomuch  No should be penalised for being ill. And when I think of how rich these pharmaceutical companies are, I have to wonder why, when they are in this field of expertise, they don't cut into their own profits a bit to help out those who struggle to pay these overblown prices. So many politicians have no idea of what the reality is for most people who just don't have the income to match their expenses medically ... and what it's like to juggle a mountain of bills, food and an expensive script ... living every day should not be so hard.Not in this day and age (don't even get me started on power bills, car registration and the price of meat and vegetables etc). Have some compassion, think for a moment what if it were you ... instead of driving around a car that costs the same as a house for a poorer person, use that income you really don't need to ease the suffering of someone who truly needs your help.Those on pensions are not having the easy life by not working, in fact my hubby has permission to supplement ours, he works very hard physically to cover our rent, few hours a week ... So our pension gets cut a little but in the end we are better off. Just my JOB stockings costs a small fortune and they only last about three months before they begin to get ragged, with holes in the heels from being worn each day.Thats also not counting a whole lot of extras we get no income to cover, mostly creams and products I need to buy constantly at the pharmacy. If I lived alone I don't even know how I would manage, in every way. I'd probably have to live very poor, I don't see how I would manage at all as I can't do a thing without pain now. I know I'm not alone in this. #fibroawareoz  #fibromyalgiaawareness  #fibromyalgia  #chronicillness  #chronicfatigue  #chronicpain  #invisableillness  #CFS  #cantwork  #askforhelp  #painmanagement  #dontgiveup  #chronicpainsurvivor  #spoonie  #disability  #fibrowarrior  #fibrofighter  #spoons  #support  #believeme  #approvedillness  #brainfog  #insomnia  #encouragement  #explainingnotcomplaining 
So I found out something new today.
I always thought getting out of breath was to do with my EDS but I found out its not.!!
Breathlessness affects me in many ways walking and even baths. When i have baths i  get out of breath and have to lay on the floor from feeling dizzy 😵  Cold baths are only thing that helps me where i don't feel like dieing in the baths. EDS is so complex and there is still many things i don't understand about my condition but i am still learning.
#bath
#coldbath
#eds
#ehlersdanlossyndromeawarenessmonth
#ehlersdanlostype3 #hypermobilitysucks #hypermobility #breathe#breathe #breathingexercises #chronicillness #chronicpain #jounrey #life #invisableillnessawareness #invisableillness
So I found out something new today. I always thought getting out of breath was to do with my EDS but I found out its not.!! Breathlessness affects me in many ways walking and even baths. When i have baths i get out of breath and have to lay on the floor from feeling dizzy 😵 Cold baths are only thing that helps me where i don't feel like dieing in the baths. EDS is so complex and there is still many things i don't understand about my condition but i am still learning. #bath  #coldbath  #eds  #ehlersdanlossyndromeawarenessmonth  #ehlersdanlostype3  #hypermobilitysucks  #hypermobility  #breathe #breathe  #breathingexercises  #chronicillness  #chronicpain  #jounrey  #life  #invisableillnessawareness  #invisableillness 
DAY 16 *Most Helpful Advice *

Im gonna keep this one short and sweet;
DON'T JUDGE WHAT YOU DON'T KNOW

there's 2 pictures of me only months a part. I'm ill in both of them but it's in different forms, doesn't mean it's gone away magically or I'm cured. It's just the way these weird invisible illnesss work... What's the best advice for you? 💖💫 #potd #justaspoonful #spoonieChristmaschallenge #hospital #4months #hospital #invisible #invisableillness #most #helpful #advice #dontjudge #mosthelpfuladvice #Instagram
DAY 16 *Most Helpful Advice * Im gonna keep this one short and sweet; DON'T JUDGE WHAT YOU DON'T KNOW there's 2 pictures of me only months a part. I'm ill in both of them but it's in different forms, doesn't mean it's gone away magically or I'm cured. It's just the way these weird invisible illnesss work... What's the best advice for you? 💖💫 #potd  #justaspoonful  #spoonieChristmaschallenge  #hospital  #4months  #hospital  #invisible  #invisableillness  #most  #helpful  #advice  #dontjudge  #mosthelpfuladvice  #Instagram 
I've noticed this to be a common thread among #spoonies, #chronicillness #invisableillness people, passionate, loval, caring people that just want things to work out and get better for everyone.
I have no idea how but yesterday I managed to scratch my eye, I thought a eyelash was just stuck but turns out it’s not (silver living to working where I do can be told what’s wrong with you in minutes haha) but my eye keeps weeping and irritating me so got some saline flushes from work to wash out my eyes till the docs open on Monday but hopefully by then it will have healed 🤞🏻
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#crohns #crohnsdisease #chronicillness #ileostomy #inflammatoryboweldisease #invisableillness #ibd #spoonie #stoma #surgery #autoimmunedisease
I have no idea how but yesterday I managed to scratch my eye, I thought a eyelash was just stuck but turns out it’s not (silver living to working where I do can be told what’s wrong with you in minutes haha) but my eye keeps weeping and irritating me so got some saline flushes from work to wash out my eyes till the docs open on Monday but hopefully by then it will have healed 🤞🏻 . #crohns  #crohnsdisease  #chronicillness  #ileostomy  #inflammatoryboweldisease  #invisableillness  #ibd  #spoonie  #stoma  #surgery  #autoimmunedisease 
I suppose I'd better at least try to get some sleep, after my grand total of 1hr and 47 minutes sleep was rudely interupted by Stanley 's untimely explosion. 
Stripping and remaking the bed, having a bath & changing your ostomy bag in the early hours,  have a habit of waking one up! 
Right laugh 😕😩😫😪
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#shithappens #ibd #ibdwarrior #boweldisease #autoimmunedisease #congenitalbonedisorder #liverfailure #thyroiddisease #osteoarthritis #spondylarthritis #ostomyawareness #ostomate #ostomy #stanleythestoma #lifewithstanley #stoma #ileostomy #butyoudontlooksick #invisableillness #chronicfatigue #femalehairloss #baglife #baglady #nocolonstillrollin #gutlessglamourpuss #restrictedbowel #spoonie #insomniac
I suppose I'd better at least try to get some sleep, after my grand total of 1hr and 47 minutes sleep was rudely interupted by Stanley 's untimely explosion. Stripping and remaking the bed, having a bath & changing your ostomy bag in the early hours, have a habit of waking one up! Right laugh 😕😩😫😪 * * #shithappens  #ibd  #ibdwarrior  #boweldisease  #autoimmunedisease  #congenitalbonedisorder  #liverfailure  #thyroiddisease  #osteoarthritis  #spondylarthritis  #ostomyawareness  #ostomate  #ostomy  #stanleythestoma  #lifewithstanley  #stoma  #ileostomy  #butyoudontlooksick  #invisableillness  #chronicfatigue  #femalehairloss  #baglife  #baglady  #nocolonstillrollin  #gutlessglamourpuss  #restrictedbowel  #spoonie  #insomniac 
I got my bone scan done tuesday and 3 of my vains blew in both arms so they had to do the right hand and boy did that hurt like a mf .I was having a panic attack while the scan was happening but I tried to hold it in as soon as possible and I just wanted to leave .the scan showed that inflammation in my left knee and a bit in my right but none in my ankles .I went to my doctor yesterday and it was a waste of time bc all he did was tell me what I already knew and upped my dosage of gabepentin to 600mg 3x a day (I was on 400mg before) and its making feel like a zombie .we are going to up the dose every month so that sucks .
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I woke up sick with a sore throat ,pressure in my nose ,and I couldn't move without feeling so much pain and it hurts bad to take my meds .I was gagging the whole time but I got them down .I slept all day today and I'm still tired but ill probably sleep again in around a hour or so .what ive notice is that im loosing alot of weight which is good and bad .last month I was 168 and now this month I'm 140 so I think it was the MAG-OX that made me gain weight but ive been off of it for since last.month .
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Im not in a good place mentally .i just feel down and done with everything.im tired of not getting awnsers and feeling like shit all the time .im tired of taking so much meds and being treated like im a doll. Im just tired for the life i didnt sign up for and i just dont want to do it but i have no choice .till next time
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#pain #crps #spoonie #ugh #invisableillness
I got my bone scan done tuesday and 3 of my vains blew in both arms so they had to do the right hand and boy did that hurt like a mf .I was having a panic attack while the scan was happening but I tried to hold it in as soon as possible and I just wanted to leave .the scan showed that inflammation in my left knee and a bit in my right but none in my ankles .I went to my doctor yesterday and it was a waste of time bc all he did was tell me what I already knew and upped my dosage of gabepentin to 600mg 3x a day (I was on 400mg before) and its making feel like a zombie .we are going to up the dose every month so that sucks . - I woke up sick with a sore throat ,pressure in my nose ,and I couldn't move without feeling so much pain and it hurts bad to take my meds .I was gagging the whole time but I got them down .I slept all day today and I'm still tired but ill probably sleep again in around a hour or so .what ive notice is that im loosing alot of weight which is good and bad .last month I was 168 and now this month I'm 140 so I think it was the MAG-OX that made me gain weight but ive been off of it for since last.month . - Im not in a good place mentally .i just feel down and done with everything.im tired of not getting awnsers and feeling like shit all the time .im tired of taking so much meds and being treated like im a doll. Im just tired for the life i didnt sign up for and i just dont want to do it but i have no choice .till next time - #pain  #crps  #spoonie  #ugh  #invisableillness 
Hello everyone! I have created this account for people to fallow my medical journey. I am sharing all this for you guys can fully see what's going on, to help other people with chronic illnesses, and mostly importantly  to spread awareness. I am just going to give you guys a little bit of my story. I have been sick for almost 8 years anywhere from just being lethargic to failure to thrive and all in-between. No doctor could figure it out they would just diagnose me with things it could be anywhere from anxiety to fibromyalgia. It took 7 years to actually get a true  diagnoses. Just this last January (2017) my life changed over night. Thanks to a student advocate who said he isn't a doctor but thinks he knows what I have and gave us information on something called Postural Orthostatic Tachycardia Syndrome (POTS). My mom spend days trying to find a doctor in AZ that specializes in POTS eventually she found one. I went and saw that doctor he walked in talked to me for about 5 minutes and said I don't even have to test you, you obviously have it.  A few weeks later I was getting surgery to get a permit iv aka a port (for hydration at first). Since January to now I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) , Ehlers-Danlos syndromes (EDS) , Dysautonomia, Mast Cell Activation Disorder (MCAD), and little things that come along with that. All of these illnesses are known as invisible and rare illnessess. Since July I have been having terrible stomach issues. There is currently no GI with  Dysautonomia specialist in AZ. Friday December 15th I am leaving to go see a specialist in Milwaukee!! I am so excited and hope you guys are as excited to come along with me!! P.S I will make another post more about Milwaukee! #Chronicillness #Dysautonomia #eds #Chronicillnesswarrior #fighter #pots #eds #invisableillness
Hello everyone! I have created this account for people to fallow my medical journey. I am sharing all this for you guys can fully see what's going on, to help other people with chronic illnesses, and mostly importantly to spread awareness. I am just going to give you guys a little bit of my story. I have been sick for almost 8 years anywhere from just being lethargic to failure to thrive and all in-between. No doctor could figure it out they would just diagnose me with things it could be anywhere from anxiety to fibromyalgia. It took 7 years to actually get a true diagnoses. Just this last January (2017) my life changed over night. Thanks to a student advocate who said he isn't a doctor but thinks he knows what I have and gave us information on something called Postural Orthostatic Tachycardia Syndrome (POTS). My mom spend days trying to find a doctor in AZ that specializes in POTS eventually she found one. I went and saw that doctor he walked in talked to me for about 5 minutes and said I don't even have to test you, you obviously have it. A few weeks later I was getting surgery to get a permit iv aka a port (for hydration at first). Since January to now I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) , Ehlers-Danlos syndromes (EDS) , Dysautonomia, Mast Cell Activation Disorder (MCAD), and little things that come along with that. All of these illnesses are known as invisible and rare illnessess. Since July I have been having terrible stomach issues. There is currently no GI with Dysautonomia specialist in AZ. Friday December 15th I am leaving to go see a specialist in Milwaukee!! I am so excited and hope you guys are as excited to come along with me!! P.S I will make another post more about Milwaukee! #Chronicillness  #Dysautonomia  #eds  #Chronicillnesswarrior  #fighter  #pots  #eds  #invisableillness