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Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible #invisiblesickness #breakthestigma #breakthesilence #education #mentalhealthawareness #mentalhealth #mentaldisorders #mentaldiseases #mentalissues #mentalillness #psychicpain #neurological #ignorance #specialneeds #unhappy #unloved #tired #empty #warriors #mentalhealthwarriors #teachers #Dragoncoaching #zorgverlener #ambulantbegeleider
Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible  #invisiblesickness  #breakthestigma  #breakthesilence  #education  #mentalhealthawareness  #mentalhealth  #mentaldisorders  #mentaldiseases  #mentalissues  #mentalillness  #psychicpain  #neurological  #ignorance  #specialneeds  #unhappy  #unloved  #tired  #empty  #warriors  #mentalhealthwarriors  #teachers  #Dragoncoaching  #zorgverlener  #ambulantbegeleider 
Ya know when your bike chain gets stuck and you try to pedal but you just get that stubborn grinding gears thing. Thats how my joints/body feel almost everyday. I struggle with PMDD and on top of that the last few months I’ve gotten more sick, having to quit my job and my school work is suffering. Some days I stay in bed and sleep all day simply bc I don’t have the energy to do anything and I’m in so much pain. Some days I’m stuck in the bathroom sick as a dog. We’re not sure what is causing all these symptoms bc I cant get into a specialist until mid December. This was a super rough week for me And as it gets colder out and my pain gets worse I just want to send love and peace to all of my friends out there struggling with invisible illness no matter how big or small just remember that you are not alone. Just because we don’t look sick doesn’t mean it isn’t real. THIS IS NO WAY A POST FOR SYMPATHY OR PITY, but for awareness and support. Keep fighting brothers and sisters.  These illnesses do not define us. Don’t give up. ☮️💜💪🏼☀️much much love. #pmddawareness #invisiblesickness #dontgiveup
Ya know when your bike chain gets stuck and you try to pedal but you just get that stubborn grinding gears thing. Thats how my joints/body feel almost everyday. I struggle with PMDD and on top of that the last few months I’ve gotten more sick, having to quit my job and my school work is suffering. Some days I stay in bed and sleep all day simply bc I don’t have the energy to do anything and I’m in so much pain. Some days I’m stuck in the bathroom sick as a dog. We’re not sure what is causing all these symptoms bc I cant get into a specialist until mid December. This was a super rough week for me And as it gets colder out and my pain gets worse I just want to send love and peace to all of my friends out there struggling with invisible illness no matter how big or small just remember that you are not alone. Just because we don’t look sick doesn’t mean it isn’t real. THIS IS NO WAY A POST FOR SYMPATHY OR PITY, but for awareness and support. Keep fighting brothers and sisters. These illnesses do not define us. Don’t give up. ☮️💜💪🏼☀️much much love. #pmddawareness  #invisiblesickness  #dontgiveup 
Ima gettin' there... 🤷🏽‍♂️😓😅 #invisiblesickness  #hyperthyroidism #getmeros solid 120 💪🏽💪🏽💪🏽
These benches were the home to many conversations, contemplating life; its joys, sorrows, yesterdays/todays and all of the tomorrow's. The three of us would leave no stone unturned, in search of answers to haunting ideas, memories and what lays ahead. The troubled mind of a man that seemed to have it all, proved to be too much for our loved one. As much as we talked openly, cried, laughed and empathized, we could not control the inevitability of what was to come. We were successful once, bringing peace and calmness to a shattered soul, but the terror behind the smile, proved too powerful. The two of us now, reminisce about our lives that will never be whole again, missing our beloved Randy. 🎶I wish I could take the pain away, if you can make it through the night there's a brighter day, everything will be alright if you hold on, it's a struggle everyday, gotta roll on - Tupaq #bellletstalk, #endthestigma, #invisiblesickness, #letloveheal
These benches were the home to many conversations, contemplating life; its joys, sorrows, yesterdays/todays and all of the tomorrow's. The three of us would leave no stone unturned, in search of answers to haunting ideas, memories and what lays ahead. The troubled mind of a man that seemed to have it all, proved to be too much for our loved one. As much as we talked openly, cried, laughed and empathized, we could not control the inevitability of what was to come. We were successful once, bringing peace and calmness to a shattered soul, but the terror behind the smile, proved too powerful. The two of us now, reminisce about our lives that will never be whole again, missing our beloved Randy. 🎶I wish I could take the pain away, if you can make it through the night there's a brighter day, everything will be alright if you hold on, it's a struggle everyday, gotta roll on - Tupaq #bellletstalk , #endthestigma , #invisiblesickness , #letloveheal 
My explanation of what it's like living with a chronic illness. I try to stay positive. To be honest y'all; it's fucking frustrating. Especially on days like today where a random flare up yesterday, triggered the beginning of an episode today. My disorder is genetic. And there are no cures, and not a lot of things that can help aside from heavy duty narcotics which, isn't really how I want to live my life*I would say quality of life isn't good, for me, on heavy meds*. This post isn't to whine, I just want to keep trying to make chronic illnesses visible! You are not alone! Yes, this fucking sucks. And we will get through it. 
#dystonia #myoclonusdystonia #chronicillness #invisiblesickness #blackgirlmagic
My explanation of what it's like living with a chronic illness. I try to stay positive. To be honest y'all; it's fucking frustrating. Especially on days like today where a random flare up yesterday, triggered the beginning of an episode today. My disorder is genetic. And there are no cures, and not a lot of things that can help aside from heavy duty narcotics which, isn't really how I want to live my life*I would say quality of life isn't good, for me, on heavy meds*. This post isn't to whine, I just want to keep trying to make chronic illnesses visible! You are not alone! Yes, this fucking sucks. And we will get through it. #dystonia  #myoclonusdystonia  #chronicillness  #invisiblesickness  #blackgirlmagic 
Yesssssss.. why oh whyyy!! Grrrr! Desperately need to know the reasons now #livingwithsymptoms #3yearsandcounting #whencanwebreakup #thyroidawareness #invisiblesickness
That moment when you feel so bad you have to try and look the opposite. #invisiblesickness #isitfridayyet
As my sickness kicks back in I'm finding human connection to become harder and harder. Trying to carry on a conversation and think clearly seems even more exhausting.
My #introvertself is in overdrive as my health is trying to go downhill 🏂fast. 
Giving up is never an option and I'm loving the strength I'm feeling from this new 21 day challenge. 
Even though I've been crazy busy and overwhelmed and exhausted, it's been the ONLY thing I feel any control over and the ONLY thing currently giving me the emotional, mental and physical health to push through the unknown sickness.

Just because others can't see our struggles on the outside, doesn't make them any less real. 
I'm here to say that whatever #invisiblesickness your dealing with alone, you don't have too. There's so many of us also struggling. And coming together to take ahold of our health and our lives. 
Much love ❤️- Friend, Mentor, Coach Mel.
As my sickness kicks back in I'm finding human connection to become harder and harder. Trying to carry on a conversation and think clearly seems even more exhausting. My #introvertself  is in overdrive as my health is trying to go downhill 🏂fast. Giving up is never an option and I'm loving the strength I'm feeling from this new 21 day challenge. Even though I've been crazy busy and overwhelmed and exhausted, it's been the ONLY thing I feel any control over and the ONLY thing currently giving me the emotional, mental and physical health to push through the unknown sickness. Just because others can't see our struggles on the outside, doesn't make them any less real. I'm here to say that whatever #invisiblesickness  your dealing with alone, you don't have too. There's so many of us also struggling. And coming together to take ahold of our health and our lives. Much love ❤️- Friend, Mentor, Coach Mel.
#truestory #facts #thisisme #fibromyalgia
#truthbetold #overcomer 
@juan_rekers with @repostsaveapp ・・・ Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible #invisiblesickness #breakthestigma #breakthesilence #education #mentalhealthawareness #mentalhealth #mentaldisorders #mentaldiseases #mentalissues #mentalillness #psychicpain #neurological #ignorance #specialneeds #unhappy #unloved #tired #empty #warriors #mentalhealthwarriors #teachers  #zorgverlener #ambulantbegeleider
#truestory  #facts  #thisisme  #fibromyalgia  #truthbetold  #overcomer  @juan_rekers with @repostsaveapp ・・・ Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible  #invisiblesickness  #breakthestigma  #breakthesilence  #education  #mentalhealthawareness  #mentalhealth  #mentaldisorders  #mentaldiseases  #mentalissues  #mentalillness  #psychicpain  #neurological  #ignorance  #specialneeds  #unhappy  #unloved  #tired  #empty  #warriors  #mentalhealthwarriors  #teachers  #zorgverlener  #ambulantbegeleider 
Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible #invisiblesickness #breakthestigma #breakthesilence #education #mentalhealthawareness #mentalhealth #mentaldisorders #mentaldiseases #mentalissues #mentalillness #psychicpain #neurological #ignorance #specialneeds #unhappy #unloved #tired #empty #warriors #mentalhealthwarriors #teachers #Dragoncoaching #zorgverlener #ambulantbegeleider
Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible  #invisiblesickness  #breakthestigma  #breakthesilence  #education  #mentalhealthawareness  #mentalhealth  #mentaldisorders  #mentaldiseases  #mentalissues  #mentalillness  #psychicpain  #neurological  #ignorance  #specialneeds  #unhappy  #unloved  #tired  #empty  #warriors  #mentalhealthwarriors  #teachers  #Dragoncoaching  #zorgverlener  #ambulantbegeleider 
While living with Ulcerative Colitis, I get so scared sometimes.. but I try to enjoy my life no matter what! You really don’t know what is going to happen in the future. So this is my new life starting.. I moved to different city in Turkey(from Ankara to Izmir) it is my favorite city! The weather is warmer thn Ankara so I won’t feel cold! Thanks god❤️😇 Most important thing while dealing with chronic illnesses is that you have to MOTIVATE yourself. Because people who don’t have any chronic illnesses will talk 💩 who think they have an idea about everything but they don’t.. so in order not be upset, just motivate yourself and your body! Your body is yours. Listen to it, talk with it! You will do great❤️❤️ I believe in you 👍🏼 #uc #chronicillness #pain #remission #flareup #bleeding #bathroom #newlife #ulcerativecolitis #girlwithulcerativecolitis #nopainnogain #chrons #ibd #inflammatoryboweldisease #disease #invisiblesickness #motivate #raiseawareness #listentoyourbody #loveyourself
While living with Ulcerative Colitis, I get so scared sometimes.. but I try to enjoy my life no matter what! You really don’t know what is going to happen in the future. So this is my new life starting.. I moved to different city in Turkey(from Ankara to Izmir) it is my favorite city! The weather is warmer thn Ankara so I won’t feel cold! Thanks god❤️😇 Most important thing while dealing with chronic illnesses is that you have to MOTIVATE yourself. Because people who don’t have any chronic illnesses will talk 💩 who think they have an idea about everything but they don’t.. so in order not be upset, just motivate yourself and your body! Your body is yours. Listen to it, talk with it! You will do great❤️❤️ I believe in you 👍🏼 #uc  #chronicillness  #pain  #remission  #flareup  #bleeding  #bathroom  #newlife  #ulcerativecolitis  #girlwithulcerativecolitis  #nopainnogain  #chrons  #ibd  #inflammatoryboweldisease  #disease  #invisiblesickness  #motivate  #raiseawareness  #listentoyourbody  #loveyourself 
Cholestyramine (CSM)🔼
CSM is the most commonly prescribed pharmaceutical for mold exposure detoxification. CSM is a bile acid sequestrant, which binds bile in the gastrointestinal tract to prevent its reabsorption. It also works as a mycotoxin (mold toxin) binding agent.

CSM can be compounded to contain no sugar & is available by prescription only in two forms. Currently as shown above I am taking the non compounded version.
Side effects are dependent upon the individual. It makes me nauseous & I have zero appetite as well as my symptoms are worse now. Some people say they feel no different however I have a difficult time tolerating it, as well as my family.
Dosage should be 16 grams total per day, taken 4g=4x's daily. Mix with water or juice. It is important to remember, You must take CSM two hours before or after any nutritional supplements or medications, as it will bind these as well. Do not take within 30 minutes of food or drink.
(Welchol is a similar binding agent and may be prescribed instead of CSM however it's more expensive & some insurance doesn't cover it.) There are Natural binding agents that have been successful as well however Shoemaker suggest CSM or Welchol.

Here are some other Natural options:
*Chlorella-I like Biopure's Chlorella Pyrenoidosa-an excellent natural binder which is harder to digest then chlorella vulgaris but works better as a binder. Chlorella Vulgaris does not bind nearly as well and should be used more as a nutrient supplement because of its high levels of essential amino acids and the fact that it's molecular structure is similar to mothers milk. *Zeolite -Water is often used in the mining process. Choose a mold-free version. I like Zeobind by Biopure
*Activated Charcoal *Bentonite Clay ⬇️
Cholestyramine (CSM)🔼 CSM is the most commonly prescribed pharmaceutical for mold exposure detoxification. CSM is a bile acid sequestrant, which binds bile in the gastrointestinal tract to prevent its reabsorption. It also works as a mycotoxin (mold toxin) binding agent. CSM can be compounded to contain no sugar & is available by prescription only in two forms. Currently as shown above I am taking the non compounded version. Side effects are dependent upon the individual. It makes me nauseous & I have zero appetite as well as my symptoms are worse now. Some people say they feel no different however I have a difficult time tolerating it, as well as my family. Dosage should be 16 grams total per day, taken 4g=4x's daily. Mix with water or juice. It is important to remember, You must take CSM two hours before or after any nutritional supplements or medications, as it will bind these as well. Do not take within 30 minutes of food or drink. (Welchol is a similar binding agent and may be prescribed instead of CSM however it's more expensive & some insurance doesn't cover it.) There are Natural binding agents that have been successful as well however Shoemaker suggest CSM or Welchol. Here are some other Natural options: *Chlorella-I like Biopure's Chlorella Pyrenoidosa-an excellent natural binder which is harder to digest then chlorella vulgaris but works better as a binder. Chlorella Vulgaris does not bind nearly as well and should be used more as a nutrient supplement because of its high levels of essential amino acids and the fact that it's molecular structure is similar to mothers milk. *Zeolite -Water is often used in the mining process. Choose a mold-free version. I like Zeobind by Biopure *Activated Charcoal *Bentonite Clay ⬇️
Ya know when your bike chain gets stuck and you try to pedal but you just get that stubborn grinding gears thing. Thats how my joints/body feel almost everyday. I struggle with PMDD and on top of that the last few months I’ve gotten more sick, having to quit my job and my school work is suffering. Some days I stay in bed and sleep all day simply bc I don’t have the energy to do anything and I’m in so much pain. Some days I’m stuck in the bathroom sick as a dog. We’re not sure what is causing all these symptoms bc I cant get into a specialist until mid December. This was a super rough week for me And as it gets colder out and my pain gets worse I just want to send love and peace to all of my friends out there struggling with invisible illness no matter how big or small just remember that you are not alone. Just because we don’t look sick doesn’t mean it isn’t real. THIS IS NO WAY A POST FOR SYMPATHY OR PITY, but for awareness and support. Keep fighting brothers and sisters.  These illnesses do not define us. Don’t give up. ☮️💜💪🏼☀️much much love. #pmddawareness #invisiblesickness #dontgiveup
Ya know when your bike chain gets stuck and you try to pedal but you just get that stubborn grinding gears thing. Thats how my joints/body feel almost everyday. I struggle with PMDD and on top of that the last few months I’ve gotten more sick, having to quit my job and my school work is suffering. Some days I stay in bed and sleep all day simply bc I don’t have the energy to do anything and I’m in so much pain. Some days I’m stuck in the bathroom sick as a dog. We’re not sure what is causing all these symptoms bc I cant get into a specialist until mid December. This was a super rough week for me And as it gets colder out and my pain gets worse I just want to send love and peace to all of my friends out there struggling with invisible illness no matter how big or small just remember that you are not alone. Just because we don’t look sick doesn’t mean it isn’t real. THIS IS NO WAY A POST FOR SYMPATHY OR PITY, but for awareness and support. Keep fighting brothers and sisters. These illnesses do not define us. Don’t give up. ☮️💜💪🏼☀️much much love. #pmddawareness  #invisiblesickness  #dontgiveup 
UPDATE about my journey with Ulcerative Colitis! Just came back from my MRI, going to start my entyvio infusion soon.. Sorry the video cuts in the end! I just want to say that I hope you guys are feeling great and I am sending you lots of kisses😘 #uc #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #invisiblesickness #pain #remission #infusion #mri #entyvioinfusion #doctor #hospital #nurse #sickness #chronic
Ima gettin' there... 🤷🏽‍♂️😓😅 #invisiblesickness  #hyperthyroidism #getmeros solid 120 💪🏽💪🏽💪🏽
it is CROHN’S AND COLITIS AWARENESS WEEK 💜 1. Medications that I am using (also remicade infusion) 2. Things I used to love before UC 😃 If you don’t know me, my name is Elif and I am Ulcerative Colitis warrior since 2015! I have been fighting with this invisible sickness like crazy! We have ups and downs! Our favorite place to hang out is the BATHROOM 💩💩 she shows her love for me by having cramps or bleeding.. 💜 she just adores me! I know! She loves my gut so much that she bleeds a lot! 😂 so this my love story! I am not single, sorry guys! I am in love with my Ulcerative Colitis. We have a weird relationshit, I mean relationship 💩- I am always here for you! LET’S RAISE OUR AWARENESS! #crohns #colitis #ulcerativecolitis #ibdawarenessweek #awareness #raiseawareness #shareawareness #invisiblesickness #pain #remission #flareup #nopainnogain #loveyourself #happy #fun #sad #love #doctor #hospital
it is CROHN’S AND COLITIS AWARENESS WEEK 💜 1. Medications that I am using (also remicade infusion) 2. Things I used to love before UC 😃 If you don’t know me, my name is Elif and I am Ulcerative Colitis warrior since 2015! I have been fighting with this invisible sickness like crazy! We have ups and downs! Our favorite place to hang out is the BATHROOM 💩💩 she shows her love for me by having cramps or bleeding.. 💜 she just adores me! I know! She loves my gut so much that she bleeds a lot! 😂 so this my love story! I am not single, sorry guys! I am in love with my Ulcerative Colitis. We have a weird relationshit, I mean relationship 💩- I am always here for you! LET’S RAISE OUR AWARENESS! #crohns  #colitis  #ulcerativecolitis  #ibdawarenessweek  #awareness  #raiseawareness  #shareawareness  #invisiblesickness  #pain  #remission  #flareup  #nopainnogain  #loveyourself  #happy  #fun  #sad  #love  #doctor  #hospital 
While dealing with Ulcerative Colitis,Cronhs or IBD it’s really important to keep your feet warm 😌 whenever I get a cold from my feet, I really have a bad pain! Keep your feet warm! 😂❤️ #uc #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #pain #warm #remission #flareup #bleeding #doctor #hospital #home #nurse #invisiblesickness #sickness #chronic #chronicpain #chronicsickness #crohns #crohnsandcolitisfoundationofamerica
Having #CIRS makes me susceptible to moldy, water damaged buildings & chemicals, more so than the regular person. Actually 24% of the population are also like me in that we have a distinctive gene (HLA-DR) that makes us not able to make the antibodies to remove mold toxins & biotoxins from our body systems. I was super excited to get my @cambridgemask today! So....next time you see someone in the grocery store with one of these, just remember, Don't Judge, I am not contagious, I am actually protecting myself, from You😉. YAY for pretty & safe masks!
#spooniefamily #fibromyalgiaawareness  #chronicillness #Spoonie #mycotoxins #butyoudontlooksick #CIRS
#moldawareness #LUPUS #moldtoxicity #fibromyalgiawarrior #chronicpain #invisibleillness #biotoxicity #spooniestrong #Mycotoxicosis 
#lyme #spoonie #fibromyalgia #POTS #invisiblesickness
#CHRONICFATIGUESYNDROME #stigmafighter
#endthestigma #chronicinflammatoryresponsesyndrome #stachybotrys #blackmold #mold #moldpoisoning
Having #CIRS  makes me susceptible to moldy, water damaged buildings & chemicals, more so than the regular person. Actually 24% of the population are also like me in that we have a distinctive gene (HLA-DR) that makes us not able to make the antibodies to remove mold toxins & biotoxins from our body systems. I was super excited to get my @cambridgemask today! So....next time you see someone in the grocery store with one of these, just remember, Don't Judge, I am not contagious, I am actually protecting myself, from You😉. YAY for pretty & safe masks! #spooniefamily  #fibromyalgiaawareness  #chronicillness  #Spoonie  #mycotoxins  #butyoudontlooksick  #CIRS  #moldawareness  #LUPUS  #moldtoxicity  #fibromyalgiawarrior  #chronicpain  #invisibleillness  #biotoxicity  #spooniestrong  #Mycotoxicosis  #lyme  #spoonie  #fibromyalgia  #POTS  #invisiblesickness  #CHRONICFATIGUESYNDROME  #stigmafighter  #endthestigma  #chronicinflammatoryresponsesyndrome  #stachybotrys  #blackmold  #mold  #moldpoisoning 
Maybe you've recently read my story about how toxic mold has changed my life forever. I have been chronically ill for over the past year with symptoms ranging from psychological, endocrine, G.I., neurologically, respiratory, and basically excruciating pain throughout my body from poisonous mycotoxins in Mold. Part of the reason that more people are getting ill is because of this right here, we are pumping these chemicals into our soil therefore mutating our fungus. Biologically we are changing the DNA of mold's, making them produce super toxins. Our mother earth has been gracious and kind enough to offer us everything that we have ever needed and humans still work at destroying her with poisonous chemicals so we can fill and line our pockets with more green pieces of paper. #greedkills To my followers, please start paying attention to our environment. Our bodies and our babies are not immunologically ready for all of these chemicals, pesticides and GMO's let alone biotoxins. Start paying attention and start having a voice. I really wish I had paid attention sooner. I don't know if that would've change the course of my life which has left me very sick and in a world of unknowns, but I am very passionate about letting everyone know exactly what's going on behind the curtain. I certainly don't want any of you to experience what I have gone through. Some of you already are and you know exactly how this changes your life forever. Love and light⭐️
Maybe you've recently read my story about how toxic mold has changed my life forever. I have been chronically ill for over the past year with symptoms ranging from psychological, endocrine, G.I., neurologically, respiratory, and basically excruciating pain throughout my body from poisonous mycotoxins in Mold. Part of the reason that more people are getting ill is because of this right here, we are pumping these chemicals into our soil therefore mutating our fungus. Biologically we are changing the DNA of mold's, making them produce super toxins. Our mother earth has been gracious and kind enough to offer us everything that we have ever needed and humans still work at destroying her with poisonous chemicals so we can fill and line our pockets with more green pieces of paper. #greedkills  To my followers, please start paying attention to our environment. Our bodies and our babies are not immunologically ready for all of these chemicals, pesticides and GMO's let alone biotoxins. Start paying attention and start having a voice. I really wish I had paid attention sooner. I don't know if that would've change the course of my life which has left me very sick and in a world of unknowns, but I am very passionate about letting everyone know exactly what's going on behind the curtain. I certainly don't want any of you to experience what I have gone through. Some of you already are and you know exactly how this changes your life forever. Love and light⭐️
My spoonie friends & anyone whose curious..please take the test! For the past year and a half I thought that I just magically got fibromyalgia for no reason. Was it my PTSD? What caused it? So often here in Western medicine we treat the symptom and not the cause. As you know fibromyalgia itself only means a "grouping of symptoms". The root cause of my fibromyalgia & other symptoms was mycotoxins from toxic mold. If you've been exposed to mold at some point in your life whether it be a Home you lived in, an office you worked in or a school that you attended, you very much have the possibility to have an illness called CIRS. This is the clinical name for mold Toxicity. It is my opinion that so many people, especially with fibromyalgia are suffering unknowingly with this. I always questioned what made me wake up one day and feel like I was 90 years old. What gave me fibromyalgia? How did this happen to me when I was in the best shape of my life? If you're like me and you question your own illness I beg of you to take this test. It's a step in the right direction. Feel free to read my story in my bio you don't have to donate but it's the only place that I have listed exactly what happened to me and my family. Help me educate the world about this rarely talked about invisible illness called CIRS. And as you can see my speech is better today! The house really made it terrible😔
My spoonie friends & anyone whose curious..please take the test! For the past year and a half I thought that I just magically got fibromyalgia for no reason. Was it my PTSD? What caused it? So often here in Western medicine we treat the symptom and not the cause. As you know fibromyalgia itself only means a "grouping of symptoms". The root cause of my fibromyalgia & other symptoms was mycotoxins from toxic mold. If you've been exposed to mold at some point in your life whether it be a Home you lived in, an office you worked in or a school that you attended, you very much have the possibility to have an illness called CIRS. This is the clinical name for mold Toxicity. It is my opinion that so many people, especially with fibromyalgia are suffering unknowingly with this. I always questioned what made me wake up one day and feel like I was 90 years old. What gave me fibromyalgia? How did this happen to me when I was in the best shape of my life? If you're like me and you question your own illness I beg of you to take this test. It's a step in the right direction. Feel free to read my story in my bio you don't have to donate but it's the only place that I have listed exactly what happened to me and my family. Help me educate the world about this rarely talked about invisible illness called CIRS. And as you can see my speech is better today! The house really made it terrible😔
Had so much fun while chatting with @thrivebyfood ! It was so helpful to talk with someone who has UC or who used to! 😍❤️😘 I am so happy that we had time to chat and talk about everything! Thank you for your kind post! Looking forward to talk to you guys as well! Let’s all keep in touch 😘😘😍❤️☘️ #uc #ulcerativcolitis #crohns #ibd #inflammatoryboweldisease #invisiblesickness #illness #chronic #chronicpain #warrior #survivor #pain #remission #flareup
Had so much fun while chatting with @thrivebyfood ! It was so helpful to talk with someone who has UC or who used to! 😍❤️😘 I am so happy that we had time to chat and talk about everything! Thank you for your kind post! Looking forward to talk to you guys as well! Let’s all keep in touch 😘😘😍❤️☘️ #uc  #ulcerativcolitis  #crohns  #ibd  #inflammatoryboweldisease  #invisiblesickness  #illness  #chronic  #chronicpain  #warrior  #survivor  #pain  #remission  #flareup 
Just a girl who deals with Ulcerative Colitis 🙋🏼☘️ no matter how much pain you have, try to do stuff that you love so as to motivate yourself ❤️ or you can talk with me! Or you can just dance ☘️🙋🏼😉 #uc #ulcerativecolitis #ibd #inflammatoryboweldisease #crohns #chronic #chronicpain #illness #sickness #invisiblesickness #pain #survivor #warrior #raiseawareness #awareness #nopainnogain
Logan's surgery went well. Had to remove 9" of colon and his appendix 😞 BUT! He's strong, he's recovering, and he has lots of people rooting for him. So, THANK YOU! All your prayers and good vibes did their job. ❤️😘
Logan's surgery went well. Had to remove 9" of colon and his appendix 😞 BUT! He's strong, he's recovering, and he has lots of people rooting for him. So, THANK YOU! All your prayers and good vibes did their job. ❤️😘
Please read my story on my page link. Give if you can. Pass along. Most importantly, EDUCATE YOURSELF.  I was misdiagnosed with FIBROMYALGIA, ME/CFS, Myofascial Pain Disorder. They only diagnosed the symptoms not the root! Please spread knowledge-it's power!
Please read my story on my page link. Give if you can. Pass along. Most importantly, EDUCATE YOURSELF. I was misdiagnosed with FIBROMYALGIA, ME/CFS, Myofascial Pain Disorder. They only diagnosed the symptoms not the root! Please spread knowledge-it's power!
Thank you to everyone who has contributed and shared my Mold Toxicity story on GoFundMe. Everyone's generosity has been amazing and heartfelt. 
But my family still needs your help. 
We have raised enough money for one of us to start treatment in Virginia, that person would be me, as I have been affected the most, and we fear that some of the damages will be permanent neurologically. It is of the upmost importance that my 2 children & husband can get into treatment as well. 
The cost of this treatment is an upwards of $2500. ($1000 per adult & $500 under 14 yrs.) I just left Labcorp and completed a lengthy list of labwork needed, however my heart still aches for my family is still sick too. It was hard for me to go first, as a mother my instinct is to sacrifice myself for my children however that will do the no good as I am the sickest. Mold Toxicity destroys your immune system ravaging your body with a combination of pathogens. Mycotoxins are similar to snake or spider venom which is inside our bodies & brains reeking havoc. This can even be deadly, so believe me I wish that I actually did have Fibromyalgia instead of this! 
Even since leaving the house I am at my worst, barely sleeping due to chronic pain in my back, ribs, chest and arms. My stuttering is terrible, my word finding difficult & my anxiety at an all time high. We have procured a place to stay with family and we are grateful for that. I have come to terms with accepting the complete loss of 99% of our personal possessions yet I am still stressed & very emotional from this tragedy that will very much take us a long time to recover from. 
We will still need to get a home sometime in the future as well as furniture & everything else to start over but it is more important for us to get healthy first. 
Please share our story & help if you can, every amount helps us get closer to getting better. 
Much Love & Light! PJ
Thank you to everyone who has contributed and shared my Mold Toxicity story on GoFundMe. Everyone's generosity has been amazing and heartfelt. But my family still needs your help. We have raised enough money for one of us to start treatment in Virginia, that person would be me, as I have been affected the most, and we fear that some of the damages will be permanent neurologically. It is of the upmost importance that my 2 children & husband can get into treatment as well. The cost of this treatment is an upwards of $2500. ($1000 per adult & $500 under 14 yrs.) I just left Labcorp and completed a lengthy list of labwork needed, however my heart still aches for my family is still sick too. It was hard for me to go first, as a mother my instinct is to sacrifice myself for my children however that will do the no good as I am the sickest. Mold Toxicity destroys your immune system ravaging your body with a combination of pathogens. Mycotoxins are similar to snake or spider venom which is inside our bodies & brains reeking havoc. This can even be deadly, so believe me I wish that I actually did have Fibromyalgia instead of this! Even since leaving the house I am at my worst, barely sleeping due to chronic pain in my back, ribs, chest and arms. My stuttering is terrible, my word finding difficult & my anxiety at an all time high. We have procured a place to stay with family and we are grateful for that. I have come to terms with accepting the complete loss of 99% of our personal possessions yet I am still stressed & very emotional from this tragedy that will very much take us a long time to recover from. We will still need to get a home sometime in the future as well as furniture & everything else to start over but it is more important for us to get healthy first. Please share our story & help if you can, every amount helps us get closer to getting better. Much Love & Light! PJ
I was misdiagnosed with Fibromyalgia over a year ago. My symptoms started with hand pain and fatigue. Then gradually changed to pain all over, with all the classic Fibromyalgia symptoms. I had almost every one. If you go back on my IG you'll see I've been advocating Fibromyalgia awareness and stigma fighting for a bit. ⬇️
I was misdiagnosed with Fibromyalgia over a year ago. My symptoms started with hand pain and fatigue. Then gradually changed to pain all over, with all the classic Fibromyalgia symptoms. I had almost every one. If you go back on my IG you'll see I've been advocating Fibromyalgia awareness and stigma fighting for a bit. ⬇️
Chilling with my remicade💪🏼 as you  all know, my bleeding did not stop.. according to my doctors We have to give one last try to remicade infusion! If this doesn’t work I will be starting the Entyvio Infusion! I am going to sleep now😂 big kissess😘 #ulcerativecolitis #ibd #inflammatoryboweldisease #uc #crohns #colitis #ulcerativecolitisremission #remicadeinfusion #invisiblesickness #sickness #pain
When you are on your flare up, and it keeps bleeding and bleeding and bleeding.. it feels like you are in a horror movie 😂💩 KEEP BLEEDING KEEP BLEEDING LOVE ❤️ This is the best way to describe how we are dealing with ulcerative colitis,crohns or ibd - funny,painful,scary,crazy and weird 😂💩 get your shit together baby 💩 I mean literally. #dealingwith #ulcerativecolitis #uc #crohns #ibd #inflammatoryboweldisease #halloween #scare #scary #nopainnogain #funny #fun #behappy #flareup #remission #invisiblesickness #sickness #chronicillness
When you are on your flare up, and it keeps bleeding and bleeding and bleeding.. it feels like you are in a horror movie 😂💩 KEEP BLEEDING KEEP BLEEDING LOVE ❤️ This is the best way to describe how we are dealing with ulcerative colitis,crohns or ibd - funny,painful,scary,crazy and weird 😂💩 get your shit together baby 💩 I mean literally. #dealingwith  #ulcerativecolitis  #uc  #crohns  #ibd  #inflammatoryboweldisease  #halloween  #scare  #scary  #nopainnogain  #funny  #fun  #behappy  #flareup  #remission  #invisiblesickness  #sickness  #chronicillness 
Another day at the hospital and another blood test 💉 of course I close my eyes because it hurts 😂 the nurse knows me really well. She can now easily find my vein and get the blood 🚀 so we did some test to see what is going on with my inflammation etc. because even though I used Entocort Enema it didn't work on me! My bleeding did not stop. My doctor will have a meeting if I should continue with my remicade infusion or start the new "entyvio infusion" if so, on 3rd of November 2017 I will either get Remicade or Entyvio Infusion.. we will see ❤️ #entyvioinfusion #entvyio #remicade #infusion #uc #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #disease #sickness #pain #bloodtest #doctor #nurse #patient #invisiblesickness
Another day at the hospital and another blood test 💉 of course I close my eyes because it hurts 😂 the nurse knows me really well. She can now easily find my vein and get the blood 🚀 so we did some test to see what is going on with my inflammation etc. because even though I used Entocort Enema it didn't work on me! My bleeding did not stop. My doctor will have a meeting if I should continue with my remicade infusion or start the new "entyvio infusion" if so, on 3rd of November 2017 I will either get Remicade or Entyvio Infusion.. we will see ❤️ #entyvioinfusion  #entvyio  #remicade  #infusion  #uc  #ulcerativecolitis  #crohns  #ibd  #inflammatoryboweldisease  #disease  #sickness  #pain  #bloodtest  #doctor  #nurse  #patient  #invisiblesickness 
After my blood sample test, I am having a beautiful Turkish breakfast at my favorite place! Because I am on my flare up I can't eat tomatoes, so those are for my mom 😂🙈 living with ulcerative colitis! #ulcerative #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #inflammation #flareups #remission #invisiblesickness #sickness #pain #nopainnogain
Hello my loves! ❤️ Today I wanted to share a boomerang with you guys 😂🙈 even though I am on my flare up right now, I still try to smile don't give a 💩about my bleeding! thanks god, I don't have any pain or cramps! Don't have to wake up from sleep to go to the bathroom❤️ - Well I have one question for you guys! My doctor told me that Remicade Infusion might not be working on me so he said we can try "Entyvio Infusion" has anyone ever used it before? Because in Turkey they have used it only on 3-4 patients.. they really don't know about its side effects etc. Can you give information about it😘 thank you my loves! Keep on going❤️ SMILE #Smile #behappy #entyvioinfusion #entyvio #infusion #remission #flareup #chronic #chronicpain #pain #cramps #bleeding #uc #ulcerativecolitis #colon #guts #sickness #invisiblesickness #crohns #ibd
Hello my loves! ❤️ Today I wanted to share a boomerang with you guys 😂🙈 even though I am on my flare up right now, I still try to smile don't give a 💩about my bleeding! thanks god, I don't have any pain or cramps! Don't have to wake up from sleep to go to the bathroom❤️ - Well I have one question for you guys! My doctor told me that Remicade Infusion might not be working on me so he said we can try "Entyvio Infusion" has anyone ever used it before? Because in Turkey they have used it only on 3-4 patients.. they really don't know about its side effects etc. Can you give information about it😘 thank you my loves! Keep on going❤️ SMILE #Smile  #behappy  #entyvioinfusion  #entyvio  #infusion  #remission  #flareup  #chronic  #chronicpain  #pain  #cramps  #bleeding  #uc  #ulcerativecolitis  #colon  #guts  #sickness  #invisiblesickness  #crohns  #ibd 
That moment when you feel so bad you have to try and look the opposite. #invisiblesickness #isitfridayyet
In case you have missed what's happening, My family & I are homeless. Our children separated from us. 
We've lost everything but a few bags of clothing & a few very small salvaged items as everything is contaminated.
Our home is poisoned with Toxic Mold & Mycotoxins. Today we had to suit up head to toe in gear to protect us from the toxic air that made all of us so terribly sick we couldn't bear to stay in the home we loved. We grabbed what little we could take & had to rehome our pets. I had to throw away pictures, all my makeup, medicines, frames, all our food, spices, sundries. Pillows, books, clothes I cannot wash, items that are sentimental. We still have to destroy our beds & all our furniture as it's toxic. It's heartbreaking. We have pretty much nothing but we do have each other & that I am grateful for. 
If you had told me 2 weeks ago I would lose just about everything I own & would be homeless, I wouldn't of believed you.
#spooniefamily #fibromyalgiaawareness  #chronicillness #Spoonie ##mycotoxins #butyoudontlooksick #neurologicalproblems
#moldawareness #moldillnessisreal #moldtoxicity #fibromyalgiawarrior #chronicpain #invisibleillness #biotoxicity #spooniestrong #Mycotoxicosis 
#homeless #spoonie #fibromyalgia #Anxiety #invisiblesickness
#ptsdawareness #stigmafighter
#endthestigma #stopthestigma #breakthestigma #stachybotrys #blackmold #mold #moldpoisoning
In case you have missed what's happening, My family & I are homeless. Our children separated from us. We've lost everything but a few bags of clothing & a few very small salvaged items as everything is contaminated. Our home is poisoned with Toxic Mold & Mycotoxins. Today we had to suit up head to toe in gear to protect us from the toxic air that made all of us so terribly sick we couldn't bear to stay in the home we loved. We grabbed what little we could take & had to rehome our pets. I had to throw away pictures, all my makeup, medicines, frames, all our food, spices, sundries. Pillows, books, clothes I cannot wash, items that are sentimental. We still have to destroy our beds & all our furniture as it's toxic. It's heartbreaking. We have pretty much nothing but we do have each other & that I am grateful for. If you had told me 2 weeks ago I would lose just about everything I own & would be homeless, I wouldn't of believed you. #spooniefamily  #fibromyalgiaawareness  #chronicillness  #Spoonie  ##mycotoxins  #butyoudontlooksick  #neurologicalproblems  #moldawareness  #moldillnessisreal  #moldtoxicity  #fibromyalgiawarrior  #chronicpain  #invisibleillness  #biotoxicity  #spooniestrong  #Mycotoxicosis  #homeless  #spoonie  #fibromyalgia  #Anxiety  #invisiblesickness  #ptsdawareness  #stigmafighter  #endthestigma  #stopthestigma  #breakthestigma  #stachybotrys  #blackmold  #mold  #moldpoisoning 
My dear friends, I wanted to share something with you guys.. well these photos were taking on May 15th 2017. It was my prom night. Finally graduating from University. I really had difficulties while going to the school and having exams while I was on my flare ups😞 I always dreamt about my prom night.. wanted to wear the beautiful dress.. however before that day, I had my baddest flare up.. I couldn't breath,walk.. I was so scared. I lost lots of blood! I lost lots of weight.. I felt so horrible.. but I still wanted to go that prom. Even though I used the bathroom 20 times a day! I got up, did my hair and make up and dressed up! Went to that prom❤️ I felt so beautiful! Even though the dress got big because I lots weight😞 even though I didn't have any date, I managed to talk, and even dance! Even though I had to rest every 5 minutes❤️ another important thing is that while at my prom I didn't even go to the bathroom! Not even once! I WAS SO HAPPY 😍as you can see, I tried my best! I will fight with this stupid invisible sickness 👍🏼 because we are warriors! And survivors! #prom #promnight #doctor #health #ulcerativecolitis #colitis #crohns #ibd #inflammatoryboweldisease #invisiblesickness #sickness #pain #flareups #bleeding #cramps #enjoy #warrior #fight #survivor
My dear friends, I wanted to share something with you guys.. well these photos were taking on May 15th 2017. It was my prom night. Finally graduating from University. I really had difficulties while going to the school and having exams while I was on my flare ups😞 I always dreamt about my prom night.. wanted to wear the beautiful dress.. however before that day, I had my baddest flare up.. I couldn't breath,walk.. I was so scared. I lost lots of blood! I lost lots of weight.. I felt so horrible.. but I still wanted to go that prom. Even though I used the bathroom 20 times a day! I got up, did my hair and make up and dressed up! Went to that prom❤️ I felt so beautiful! Even though the dress got big because I lots weight😞 even though I didn't have any date, I managed to talk, and even dance! Even though I had to rest every 5 minutes❤️ another important thing is that while at my prom I didn't even go to the bathroom! Not even once! I WAS SO HAPPY 😍as you can see, I tried my best! I will fight with this stupid invisible sickness 👍🏼 because we are warriors! And survivors! #prom  #promnight  #doctor  #health  #ulcerativecolitis  #colitis  #crohns  #ibd  #inflammatoryboweldisease  #invisiblesickness  #sickness  #pain  #flareups  #bleeding  #cramps  #enjoy  #warrior  #fight  #survivor 
Thank you for all the lovely thoughts & messages. My husband & I can no longer stay in our home as our symptoms are drastic at this point due to the level of mycotoxins in the air. While the testing will probably be inconclusive since their really is no gold standard, I must listen to my body as it is screaming at me. We have concluded that all of our furniture & the majority of our belongings are toxic as well. Our health is more important. My son and I have tested positive for biotoxins yesterday. Please send light. ⭐️. #spooniefamily #fibromyalgiaawareness  #chronicillness #Spoonie #PTSD #butyoudontlooksick #stopthinkingyouknoweverything
#moldawareness #lymediseaseawareness #moldtoxicity #fibromyalgiawarrior #chronicpain #invisibleillness #addictionrecovery #spooniestrong #Mycotoxicosis 
#unexplainedweightgain #spoonie #fibromyalgia #Anxiety #invisiblesickness
#ptsdawareness #stigmafighter
#endthestigma #stopthestigma #breakthestigma #stachybotrys #blackmold #mold
Thank you for all the lovely thoughts & messages. My husband & I can no longer stay in our home as our symptoms are drastic at this point due to the level of mycotoxins in the air. While the testing will probably be inconclusive since their really is no gold standard, I must listen to my body as it is screaming at me. We have concluded that all of our furniture & the majority of our belongings are toxic as well. Our health is more important. My son and I have tested positive for biotoxins yesterday. Please send light. ⭐️. #spooniefamily  #fibromyalgiaawareness  #chronicillness  #Spoonie  #PTSD  #butyoudontlooksick  #stopthinkingyouknoweverything  #moldawareness  #lymediseaseawareness  #moldtoxicity  #fibromyalgiawarrior  #chronicpain  #invisibleillness  #addictionrecovery  #spooniestrong  #Mycotoxicosis  #unexplainedweightgain  #spoonie  #fibromyalgia  #Anxiety  #invisiblesickness  #ptsdawareness  #stigmafighter  #endthestigma  #stopthestigma  #breakthestigma  #stachybotrys  #blackmold  #mold 
I managed to squeeze behind the cabinets & get this picture when we pulled back our stove last week. It's an opening where the paint came off our wall, & shows the mold in which my landlords deny exists. My health is diminishing as I awoke to my husband also in excruciating pain & severe muscle cramping in his legs, we moved onto our porch last night & slept on the floor. We have no place to go, as we don't want to get anyone else contaminated & sick & our landlords & real estate company refuse to help us get a hotel. They are trying to say that I refused to allow the water remediation company on the premises which is a lie. I only asked them if it was safe to open the wall since we all have been sick & we do not know the mold spores count or species & THEY decided not to do any work besides dehumidify the area. It's getting ugly now & I am shocked by the lack of compassion. Once again No One takes my illness seriously or my sons or my husbands onset of symptoms. Both of us have this chronic heartburn, fatigue, anxiety, & feel our lungs are burning. My pain is shooting up my back, my jaw, legs, hips, elbows & arms. I stuttered so bad yesterday at work I could barely get my speech correct. I'm just happy my kids are out of the house. Yesterday the real estate company rebutted our claims of possible mold toxicity by saying, "every house has mold". Yes, there are mold spores everywhere in the air but you shouldn't have mold like this in your walls! We have had to hire an environmental scientist ourselves to test as I feel the trust is broken w/the owners and realty company as they have drawn a line in the sand with their lack of concern for our health & the fact that they accuse me of lying. As always I document truth. The only thing they have offered is that we can terminate our lease and move out today. We don't even know if we can take our belongings as they may be contaminated, nor do we have 3k lying around to go drop a deposit & 1st month on another house. WTF! This collective thought that MOLD is not dangerous needs to end! Mold is TOXIC & even deadly to 1 in 4 people. So tired of hearing people tell me it's not serious, & that I shouldn't be concerned. 😷😫
I managed to squeeze behind the cabinets & get this picture when we pulled back our stove last week. It's an opening where the paint came off our wall, & shows the mold in which my landlords deny exists. My health is diminishing as I awoke to my husband also in excruciating pain & severe muscle cramping in his legs, we moved onto our porch last night & slept on the floor. We have no place to go, as we don't want to get anyone else contaminated & sick & our landlords & real estate company refuse to help us get a hotel. They are trying to say that I refused to allow the water remediation company on the premises which is a lie. I only asked them if it was safe to open the wall since we all have been sick & we do not know the mold spores count or species & THEY decided not to do any work besides dehumidify the area. It's getting ugly now & I am shocked by the lack of compassion. Once again No One takes my illness seriously or my sons or my husbands onset of symptoms. Both of us have this chronic heartburn, fatigue, anxiety, & feel our lungs are burning. My pain is shooting up my back, my jaw, legs, hips, elbows & arms. I stuttered so bad yesterday at work I could barely get my speech correct. I'm just happy my kids are out of the house. Yesterday the real estate company rebutted our claims of possible mold toxicity by saying, "every house has mold". Yes, there are mold spores everywhere in the air but you shouldn't have mold like this in your walls! We have had to hire an environmental scientist ourselves to test as I feel the trust is broken w/the owners and realty company as they have drawn a line in the sand with their lack of concern for our health & the fact that they accuse me of lying. As always I document truth. The only thing they have offered is that we can terminate our lease and move out today. We don't even know if we can take our belongings as they may be contaminated, nor do we have 3k lying around to go drop a deposit & 1st month on another house. WTF! This collective thought that MOLD is not dangerous needs to end! Mold is TOXIC & even deadly to 1 in 4 people. So tired of hearing people tell me it's not serious, & that I shouldn't be concerned. 😷😫
Prior to my current situation with #mold, I was unaware that #moldtoxicity symptoms mirror those of Fibromyalgia. 
My research has been on full blast. If you are suffering from 5 or more of these symptoms and have gotten little to no relief with your Fibro meds and treatment, I urge you to investigate further. 
Most regular doctors are Not fully educated on the effects of mold. 
Not all people are affected as it depends on your genetic makeup, however 1 in 4 people have the markers that would be affected toxically from mold. 
We had been told there was no mold in our house so I accepted that it was Fibromyalgia, now I am not sure. We are still waiting to get test results for our home but I have been getting sicker by the day since the wall in question was disturbed. 
Check out the article link on my page and start researching! 
No one will help you get better besides yourself. I was told by my sons pediatrician that mold toxicity doesn't exist! That is a pure uneducated lie. This is the super invisible illness, so what harm will it do to read further. I wish I had sooner. Much love and light! ⭐️✨⭐️
Prior to my current situation with #mold , I was unaware that #moldtoxicity  symptoms mirror those of Fibromyalgia. My research has been on full blast. If you are suffering from 5 or more of these symptoms and have gotten little to no relief with your Fibro meds and treatment, I urge you to investigate further. Most regular doctors are Not fully educated on the effects of mold. Not all people are affected as it depends on your genetic makeup, however 1 in 4 people have the markers that would be affected toxically from mold. We had been told there was no mold in our house so I accepted that it was Fibromyalgia, now I am not sure. We are still waiting to get test results for our home but I have been getting sicker by the day since the wall in question was disturbed. Check out the article link on my page and start researching! No one will help you get better besides yourself. I was told by my sons pediatrician that mold toxicity doesn't exist! That is a pure uneducated lie. This is the super invisible illness, so what harm will it do to read further. I wish I had sooner. Much love and light! ⭐️✨⭐️
Hello guys! As I told you before, I had some bleeding but no pain or cramps etc. we did lots of tests with my doctor! We have no idea what is going on.. So my doctor told me to start this new medication. Which is called "Entocort Enema" --> Entocort Enema (budesonide) belongs to a group of medicines called ‘corticosteroids’. Entocort Enema is used to treat inflammation and ulcers in the large intestine (colon) and rectum. This is known as ulcerative colitis. So this new medication is new for me.. I have been using it for 4 days now, and in the mornings from 8am till 1pm I don't see any blood but at the afternoon I see bleeding.. I have no idea what is going on 😂 still don't have any cramps or pain. Before using it I used to go to the bathroom 7 times a day 💩 but now it is 4-5 times a day.. HAS ANYONE USED THIS ENTOCORT ENEMA BEFORE? If so, did it work.. #ulcerativecolitis #ulcerativecolitislife #ulcerativecolitisremission #flareups #pain #crohns #chronic #illness #sickness #invisiblesickness #entocort #entocortenema #enema #ibd #inflammatoryboweldisease #livingwith #ulcerative #colitis
Hello guys! As I told you before, I had some bleeding but no pain or cramps etc. we did lots of tests with my doctor! We have no idea what is going on.. So my doctor told me to start this new medication. Which is called "Entocort Enema" --> Entocort Enema (budesonide) belongs to a group of medicines called ‘corticosteroids’. Entocort Enema is used to treat inflammation and ulcers in the large intestine (colon) and rectum. This is known as ulcerative colitis. So this new medication is new for me.. I have been using it for 4 days now, and in the mornings from 8am till 1pm I don't see any blood but at the afternoon I see bleeding.. I have no idea what is going on 😂 still don't have any cramps or pain. Before using it I used to go to the bathroom 7 times a day 💩 but now it is 4-5 times a day.. HAS ANYONE USED THIS ENTOCORT ENEMA BEFORE? If so, did it work.. #ulcerativecolitis  #ulcerativecolitislife  #ulcerativecolitisremission  #flareups  #pain  #crohns  #chronic  #illness  #sickness  #invisiblesickness  #entocort  #entocortenema  #enema  #ibd  #inflammatoryboweldisease  #livingwith  #ulcerative  #colitis 
Driving home with my husband, I stare out & see nothing but everything as my mind streams incessant bedlam. Sleep has been sporadic with little rest; my reality spills into my subconscious & I yearn for my previous stability & standard.
I pause to wonder why the universe has chosen to treat me so unkindly this past year and a half, and why must we always be given such obstacles? Have I not sacrificed & given enough of myself & is this an answer or another questionable fork in my road of life?⬇️
Driving home with my husband, I stare out & see nothing but everything as my mind streams incessant bedlam. Sleep has been sporadic with little rest; my reality spills into my subconscious & I yearn for my previous stability & standard. I pause to wonder why the universe has chosen to treat me so unkindly this past year and a half, and why must we always be given such obstacles? Have I not sacrificed & given enough of myself & is this an answer or another questionable fork in my road of life?⬇️
Hello guys! A little note from a girl with Ulcerative Colitis ❤️: lots of people are dealing with chronic illnesses and invisible sicknesses like I do.. lots of people tell me that I look fine & normal from outside because I never give up smiling and being happy❤️ but you get used to the pain that you suffer and try to live your life in a good way.. because of this reason I don't keep people who has negative energy and try to ruin my life or others.. why I do even have to be friends with them? When I can be happy & surround myself with positive things ☘️ and also Thanks to you guys, I am much more happier 😍 loving my life, living my life - never give up 💪🏼 #ulcerativecolitis #uc #ibd #inflammatoryboweldisease #chrons #guts #invisiblesickness #chronic #chronicpain #chronicillness #pain #suffer #warrior #survivor #happy #behappy #nevergiveup #loveyourself
Hello guys! A little note from a girl with Ulcerative Colitis ❤️: lots of people are dealing with chronic illnesses and invisible sicknesses like I do.. lots of people tell me that I look fine & normal from outside because I never give up smiling and being happy❤️ but you get used to the pain that you suffer and try to live your life in a good way.. because of this reason I don't keep people who has negative energy and try to ruin my life or others.. why I do even have to be friends with them? When I can be happy & surround myself with positive things ☘️ and also Thanks to you guys, I am much more happier 😍 loving my life, living my life - never give up 💪🏼 #ulcerativecolitis  #uc  #ibd  #inflammatoryboweldisease  #chrons  #guts  #invisiblesickness  #chronic  #chronicpain  #chronicillness  #pain  #suffer  #warrior  #survivor  #happy  #behappy  #nevergiveup  #loveyourself 
I really don't know how many blood tests I have given in this past few weeks! Even though it hurts alot, I try to stay calm 😂my doctors and I are trying to figure out, what is going on with me! According my results I am not on my flare up, but I have bleeding and rushing to the bathroom.. sometimes I have cramps🤦🏼‍♀️ so another day at the hospital! Chilling and killing lol😂 #nocolonstillrollin #ulcerativecolitis #ulcerativecolitisandcrohns #ulcerativecolitisremission #flareups #sickness #invisiblesickness #pain #ibd #inflammatoryboweldisease #bloodtest #hospital #doctor #nurse
I really don't know how many blood tests I have given in this past few weeks! Even though it hurts alot, I try to stay calm 😂my doctors and I are trying to figure out, what is going on with me! According my results I am not on my flare up, but I have bleeding and rushing to the bathroom.. sometimes I have cramps🤦🏼‍♀️ so another day at the hospital! Chilling and killing lol😂 #nocolonstillrollin  #ulcerativecolitis  #ulcerativecolitisandcrohns  #ulcerativecolitisremission  #flareups  #sickness  #invisiblesickness  #pain  #ibd  #inflammatoryboweldisease  #bloodtest  #hospital  #doctor  #nurse 
Hello my sweet IG family! 🖤 well as you know, I was at the hospital and did some tests.. so here are the results: I had sigmoidoscopy without any anesthesia or any prep.. 😣 it was not "that painful" but I was crying alot 🙁 we had to do it like this because my bleeding was increasing day by day and my doctor told me that he has to figure it out ASAP! Omg.. it was horrible.. according to my #sigmoidoscopy I have flare ups! I had #pathology and waiting for their results😞 I am going to the bathroom 5-6times a day.. as you can see living with Ulcerative colitis is hard but still trying to enjoy it! I am chilling with my PJs and my water 😂 #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #nocolonstillrollin #colon #intestines #invisiblesickness #sickness #health #water #diet #flareups #remission #survivor #warrior #fight #raiseawareness
Hello my sweet IG family! 🖤 well as you know, I was at the hospital and did some tests.. so here are the results: I had sigmoidoscopy without any anesthesia or any prep.. 😣 it was not "that painful" but I was crying alot 🙁 we had to do it like this because my bleeding was increasing day by day and my doctor told me that he has to figure it out ASAP! Omg.. it was horrible.. according to my #sigmoidoscopy  I have flare ups! I had #pathology  and waiting for their results😞 I am going to the bathroom 5-6times a day.. as you can see living with Ulcerative colitis is hard but still trying to enjoy it! I am chilling with my PJs and my water 😂 #ulcerativecolitis  #crohns  #ibd  #inflammatoryboweldisease  #nocolonstillrollin  #colon  #intestines  #invisiblesickness  #sickness  #health  #water  #diet  #flareups  #remission  #survivor  #warrior  #fight  #raiseawareness 
Yesterday, I went to the hospital because my bleeding won't stop and it was increasing day by day.. I was so scared.. I had #colonoscopy and we found out I have my flare ups again.. but my doctor told me that body is rejecting something because a human body can't change this quickly.. so actually we really don't know what is going on. So today we did some blood test etc. we will find out what is going on! And also waiting for my #pathology results🙏 god bless all of us ❤️ #uc #ulcerativecolitis #remission #flareups #sickness #invisiblesickness #crohns #ibd #inflammatoryboweldisease #sad #pain #fedup #health #hospital #doctor
Yesterday, I went to the hospital because my bleeding won't stop and it was increasing day by day.. I was so scared.. I had #colonoscopy  and we found out I have my flare ups again.. but my doctor told me that body is rejecting something because a human body can't change this quickly.. so actually we really don't know what is going on. So today we did some blood test etc. we will find out what is going on! And also waiting for my #pathology  results🙏 god bless all of us ❤️ #uc  #ulcerativecolitis  #remission  #flareups  #sickness  #invisiblesickness  #crohns  #ibd  #inflammatoryboweldisease  #sad  #pain  #fedup  #health  #hospital  #doctor 
So.. well I am not feeling very well.. I am really going crazy😞 as I told you guys, My doctor told me that I have haemorrhoids.. but this stupid bleeding is going crazy.. and day after day it is increasing and I am really freaking out! 😶 and Also I have some weird stuff going on with my body.. and I really don't know😓 tomorrow I am going to call my doctor and see what is going on! I really need your support this time 🙏 #support #friendship #love #motivation #ibd #inflammatoryboweldisease #living #uc #ulcerativecolitis #crohns #pain #remission #flareups #sickness #invisiblesickness #nothappy #needenergy #energy #doctor #hospital
So.. well I am not feeling very well.. I am really going crazy😞 as I told you guys, My doctor told me that I have haemorrhoids.. but this stupid bleeding is going crazy.. and day after day it is increasing and I am really freaking out! 😶 and Also I have some weird stuff going on with my body.. and I really don't know😓 tomorrow I am going to call my doctor and see what is going on! I really need your support this time 🙏 #support  #friendship  #love  #motivation  #ibd  #inflammatoryboweldisease  #living  #uc  #ulcerativecolitis  #crohns  #pain  #remission  #flareups  #sickness  #invisiblesickness  #nothappy  #needenergy  #energy  #doctor  #hospital 
Today we wear orange socks in order to support #depressionsforeningen's work and to spread the word that we need to talk about depression. And we need to accept it for the disease it is! Especially in the work place, where stress and depression are invisible diseases and are thus difficult to handle and talk about the same way we talk about a broken leg. Both need time to heal. I don't own any orange socks anymore; I have outworn them. Instead I share with you some of my orange books.
#depressionsucks every day of the year. Every hour. Every minute. Don't give it the silence treatment.
🌻
#tasnakken #depression #invisiblesickness #orangebooks #awarenessday #depressionawareness #shareyourlove #speakup #talkaboutit #helpafriend #helpacolleague #reachout #bookphotography #bookstagram #cherryblossomreads
Today we wear orange socks in order to support #depressionsforeningen 's work and to spread the word that we need to talk about depression. And we need to accept it for the disease it is! Especially in the work place, where stress and depression are invisible diseases and are thus difficult to handle and talk about the same way we talk about a broken leg. Both need time to heal. I don't own any orange socks anymore; I have outworn them. Instead I share with you some of my orange books. #depressionsucks  every day of the year. Every hour. Every minute. Don't give it the silence treatment. 🌻 #tasnakken  #depression  #invisiblesickness  #orangebooks  #awarenessday  #depressionawareness  #shareyourlove  #speakup  #talkaboutit  #helpafriend  #helpacolleague  #reachout  #bookphotography  #bookstagram  #cherryblossomreads 
Another day at the hospital for my blood test 👍🏼 and nurse trying to find my vein😘 you can see how nervous I am 🙈 Living with Ulcerative Colitis ☘️ #uc #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #bowel #guts #invisiblesickness #sickness #chronic #chronicillness #bloodtest #hospital
Today, I received a beautiful motivation card from @breannascards ! She made my day! Motivation is really important for our immune system❤️👍🏼 so while fighting with my Ulcerative Colitis, I always try to motivate myself.. I know it is hard! But try it! You will feel better ☘️😘 #support #motivation #uc #ulcerativecolitis #invisiblesickness #dontgiveup #keepfighting #friendship #happy #crohns #ibd #inflammatoryboweldisease #sickness #raiseawareness #alwayshere #nopainnogain
Today, I received a beautiful motivation card from @breannascards ! She made my day! Motivation is really important for our immune system❤️👍🏼 so while fighting with my Ulcerative Colitis, I always try to motivate myself.. I know it is hard! But try it! You will feel better ☘️😘 #support  #motivation  #uc  #ulcerativecolitis  #invisiblesickness  #dontgiveup  #keepfighting  #friendship  #happy  #crohns  #ibd  #inflammatoryboweldisease  #sickness  #raiseawareness  #alwayshere  #nopainnogain 
Typical Turkish Breakfast ❤️ but there few things that I can't eat or drink because of my Ulcerative Colitis. And they are;  Orange juice, strawberry jam, hot dog, salami .. but it looks yummy 😋 living with ulcerative colitis ❤️ #uc #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #boweldisease #disease #health #food #love #happiness #enjoy #breakfast #diet #ulcerativecolitisdiet #invisiblesickness #colitis #happy
So hello guys! as I told you in my earlier posts that I was scared because I saw some bleeding and I went to see my doctor! So here are the results; I did some blood test and we found out that everything is great but I have haemorrhoid(piles) starting.. so because of this he gave me some cream, and other medication. Ps: at the end of the video I am trying to say --> Thank you guys alot for your support ❤️🌹 I don't know how to thank you😘😘 #uc #ulcerativecolitis #girlwith #ulcerativecolitis #ulcerativecolitisdiet #remission #flareup #cramps #crohns #crohnsdisease #life #sickness #health #invisiblesickness #ibd #inflammatoryboweldisease #haemorrhoids #boweldisease #diease
So hello guys! as I told you in my earlier posts that I was scared because I saw some bleeding and I went to see my doctor! So here are the results; I did some blood test and we found out that everything is great but I have haemorrhoid(piles) starting.. so because of this he gave me some cream, and other medication. Ps: at the end of the video I am trying to say --> Thank you guys alot for your support ❤️🌹 I don't know how to thank you😘😘 #uc  #ulcerativecolitis  #girlwith  #ulcerativecolitis  #ulcerativecolitisdiet  #remission  #flareup  #cramps  #crohns  #crohnsdisease  #life  #sickness  #health  #invisiblesickness  #ibd  #inflammatoryboweldisease  #haemorrhoids  #boweldisease  #diease 
I am a warrior! I am an Ulcerative Colitis warrior! Fighting with this invisible sickness💪🏼❤️ #uc #ulcerativecolitis #ibd #inflammatoryboweldisease #invisiblesickness #sickness #crohns #gut #fight #warrior #survivor #pain #remission #flareups #power
So here it is.. girl with Ulcerative Colitis struggling with nurse finding her vein so that she could get some blood for her blood test 😂👍🏼 because of using lots of medications, it is hard for nurses to find my vein.. it hurts like 💩 !! - well cross your fingers! I will wait for my results, and we will see what is going on with my Ulcerative Colitis! #ulcerativecolitis #girlwithulcerativecolitis #hanginthere #love #live #laugh #bloodtest #bloodsampletest #ibd #inflammatoryboweldisease #crohns #colitis #guts #fun #nurse #hospital #partyhard #lfl #invisiblesickness #sickness #raiseawareness
So here it is.. girl with Ulcerative Colitis struggling with nurse finding her vein so that she could get some blood for her blood test 😂👍🏼 because of using lots of medications, it is hard for nurses to find my vein.. it hurts like 💩 !! - well cross your fingers! I will wait for my results, and we will see what is going on with my Ulcerative Colitis! #ulcerativecolitis  #girlwithulcerativecolitis  #hanginthere  #love  #live  #laugh  #bloodtest  #bloodsampletest  #ibd  #inflammatoryboweldisease  #crohns  #colitis  #guts  #fun  #nurse  #hospital  #partyhard  #lfl  #invisiblesickness  #sickness  #raiseawareness