Back Day!!!! I’m really surprised at how much my lats in particular have grown ... love seeing new muscle growth it’s such an ADDICTION!!!! 💪🏼🙌🏼 *wide grip rows
*Deadlifts (which yes I am a trainer but dang I suck at these but I actually did pretty well!) *wide grip lat pull downs *wide grip lat pull over
Finished with a strip set for biceps 💪🏼
Only 5 more days until the 1st annual Health Advocacy Summit and we can hardly wait! There is some new information on the website about the delegates, speakers, and schedule, so feel free to check it out and learn more about the Summit and CIDA. Plus, registration for the event is still open! Website link in bio!!
Meet Louis, one of the guest speakers for CIDA's Health Advocacy Summit. Louis is a health care policy expert with over 27 years of experience. He oversees the strategy and day-to-day operations for all health care clients of The Corydon Group. He has been a well-known fixture at the Indiana Statehouse since he was named legislative liaison for the Indiana Health Professions Bureau (now the Professional Licensing Agency) in 1989 under Governor Evan Bayh. In 1991, Lou left state government and began lobbying for the Indiana State Medical Association, one of Indiana’s most prominent health associations. Since 1997, Lou has been a contract lobbyist specializing in representing health-related clients and has one of the best track records of success of any government affairs professional – having developed and maintained key relationships on both sides of the political aisle for over two decades. We are so excited to see you at the summit!
A new post is up on my blog about my recovery so far! The results of my pathology report from my surgery came back this week, revealing severe, acute pouchitis, cryptitis, abscesses, and severe ulceration within my j-pouch.
It is hard when something you were so hopeful for becomes a loss. I never anticipated to lose my j-pouch, let alone so quickly. But the decision was made with my current and future health in mind and I am so thankful for it. It is only forward from here ☀️
Meet Lulu, one of the delegates for CIDA's Health Advocacy Summit! She is a student from Avon High School in Avon, Indiana. In her spare time, she likes to read or workout. Lulu was so excited for the summit because she would get to meet new people and learn more about CIDA, but unfortunately, she has a scheduling conflict and is unable to make it anymore. We will miss you and hope to meet you soon Lulu!
It's been 2 weeks since I made my pro debut in Natural bodybuilding.. This pic was taken the day after on Oct 1st.. I truly love the art of bodybuilding.. This pic shows me reflecting, in a way that captures my thoughts of my journey and how perseverance represents a huge aspect of my journey.. I remember even thinkin in this pic, that I overcame, conquered, and accomplished my goal despite having crazy roadblocks in my way.. The last 7 years have tested me, my biggest test was battling for my life in 2012 and not knowing if I would live or die in the hospital.. I allowed myself to listen to God and to show me what to do.. so I listened and fought and fought and overcame my illness.. Several years later I accomplished what I set out to do even prior to getting sick.. win my pro card, do a pro show, and live to serve and help others through their own personal journey in life. This pic also shows that bodybuilding saved me.. I wouldn't be alive if it wasnt for bodybuilding, and for the Lord's love and strength.. Always keep the faith, trust the Lord, and you'll be at peace through the good.. and the bad in life.. Stay strong! I repeat those simple 2 words daily.. in mind, body, and spirit. #naturalbodybuilding#artofbodybuilding#aesthetics#symmetry#theologyofthebody#catholicbodybuilding#bodybuildingart#naturalathlete#malesculpture#mindbodyspirit#nocolonstillrollin#jpouch#jpoucher
“We’ll cross that bridge when we get there”🚸✔️
Feeling like this entire year can be summed up in that simple phrase. Here’s a few of the “bridges” that I’ve crossed this year ...
▪️trying biologic infusions
▪️trying a fecal transplant
▪️finding out about the precancerous cells
▪️committing to surgery
▪️finding a surgeon
▪️deciding to go with Cleveland Clinic ▪️completing surgery #1
▪️getting acquainted with my ileostomy
▪️getting the high grade dysplasia results
▪️finding out my doctor was switching hospitals
▪️getting set up at the new hospital
▪️scheduling surgery #2
Have a few more “bridges” to go this year but I’m ready for them. Until then I’ll just appreciate places like this and be thankful I’ve made it this far 🌲🙌🏻
Meet Megan, one of the delegates of CIDA's Health Advocacy Summit! Megan is a freshman this year at the University of Indianapolis and is a Public Health/ Pre-Occupational Therapy major. She enjoys baking, singing, reading, dancing and crocheting, and is a member of Salt n Light Women's Mentoring Group and Kinesiology Club at school. As far as accomplishments go, Megan was a 10-year 4-H member, took ballet classes for 14 years, and graduated from high school with academic honors. However, she also considers going to college an accomplishment, because living on your own with a chronic illness is difficult. She is excited about this summit because it will help her learn to advocate for herself now that she's an adult, she will be able to meet other college kids with chronic illnesses, and because Public Health does quite a bit with advocacy so this could help her with her future studies as well!
Finally got a date 🗓✔️
What a process. Never thought following my surgeon to a new hospital would be this hectic 🙈 After all the administrative hassle though, we have a date.
I’ll be heading to Cleveland for a pre op consult this week to make sure I’m surgery ready and to get blood work done. Then I’ll be coming all the way back to NY to finish up the work week and help host my brother’s wife-to-be’s bridal shower 💍✨ Then it will be BACK to Cleveland on Sunday in preparation for surgery day 🚗
Only loose end to tie up is insurance. I do know the hospital is in network but just need to confirm my surgeon will be billing the same way🤞🏻
I’m ready for you step 2 💪🏻💥
The hospital gown from yesterday. I kind of liked this one! On the big scale of tests, an MRE is a really easy one, but every test brings anxiety. Going through tests and procedures before social media was so lonely. Having the #IBDFamily come along and offer advice and encouragement is such an improvement over the isolation I felt during my first decade after diagnosis. Thanks for being there for me and for your continued trust in me as I work to educate us all about #IBD . #jpouch#MRE#ulcerativecolitis
Hello Friends--excited to announce the launch of my new blog--Beautifully Made: inside & out...here you'll find my personal journey of life, health (my Ulcerative Colitis journey), and passion (fashion, & event planning). Still learning the ropes of blogging so forgive me for the lag time of post. Hope you enjoy it and would love feedback:) xoxo https://beautifullymadeinsideout.wordpress.com/. #UC#ulcerativecolitis#jpouch#ileostomy#ostomybag#fashion#eventplanning#tischhospital#nyulangone
Herd immunity is so important, guys. Being immunocompromised means that I will get sick more often and more severe than the average human. This is the reality many people with autoimmune diseases have to live with on the daily. Some of us cannot physically tolerate flu shots or will be able to fight off the inevitably mutated influenza virus come Spring.
One year, when all the flu shots were recalled, I got the flu. The flu caused dehydration, which then caused my J-Pouch to flare up, ultimately landing me in the hospital for a week. A full week, people! Because of the mundane annual flu!
Now, I'll be the first to admit that I should have been culled from the population decades ago considering how severe my Ulcerative Colitis symptoms were. I can't make you give a 🦆 about me or the rest of us. But, if you do have a 🦆 to spare, please, do not go to work, run errands, or touch every freaking thing in sight if you are even the slightest bit sick. How functional you feel has no bearing on how contagious you are.
And for 🦊 sake, cover your mouth with the inside of your elbow when you cough or sneeze! Do not use your hand! We wear face masks and bathe in hand sanitizer because y'all nasty!
The worst thing I've ever had to endure out of all my surgeries and complications. I wouldn't wish an ng tube on my worst enemy. Having caught a bug last week inevitably I ended up with a bowel obstruction on Monday. I can usually ride them out at home but the pain with this one was getting worse after 9 hours so I rang an ambulance. Scans and xrays showed my bowel might have been kinked or blocked and they said if the ng tube didn't work then I'd have to be opened up. I honestly would have taken the surgery over the tube if id known how awful it would be. But after 24 hours the tube eased the pain and after 4 days I was allowed to eat again. I'm still tender, swollen, crampy and weak but at least I'm out of hospital. My surgeon says this won't have set my reversal back thankfully. I just need to be careful when I have a bug from now on and not overdo things.
Today marks the 6th year anniversary of j-pouch surgery. (Google it) I didn’t realize how sick my body was most of my life from UC and was afraid to go under the knife. Since then I have seen significant improvements and do not regret my decision. Happy #jpouch day. #crohnsdisease#ulcerativecolitis#gotguts
So many memories in this one photo! TBT to 5 months after my first ileostomy reversal, to being 109 pounds, to my first public outing (let alone a bridesmaid in a wedding) since training my jpouch, to feeling pain I had never felt before but feeling loved. This was the beginning of a long lifetime journey to recovery and making a new normal for the life that was taken so fast from me. The moment captured my intense love that I knew could never be taken away... this child, my daughter and my hero stood by my side from the moment I got sick and never showed any mercy to my illness but looked it in the eyes and said bring it! #tbt#momlife#daughter#love#bridesmaid#fitmom#fitandhealthy#fit#colitis#chronicillness#nocolonstillrollin#fightlikeawarrior#warrior#jpouch
Meet Deanna, one of the delegates for CIDA's Health Advocacy Summit! Deanna Hedges is a freshman at Indiana University from Greentown, IN studying Non-Profit Management and Leadership. She has been diagnosed with Hashimoto’s thyroiditis and has some undiagnosed stomach issues. Some of her favorite things to do are swim; play tennis; play ukulele, cello, and piano; crochet; and embroider. Deanna is involved with the Civic Leader Center at IU as well as IU CHAARG. She is a National Merit Finalist and started her own non-profit called Whales for Wells that raised over $3000 for Living Water International. She has shared her struggles with illness and her creation of Whales for Wells at the UMC Bishop’s Laity Day, the Student Leadership Academy, the Indiana United Methodist Annual Conference, and That Thing at Epworth Forest. Deanna is excited for the summit because she wants to meet other people who have gone through similar experiences and to help those who are struggling with their chronic illness.
So it's now only ten days to go until my Iliostomy reversal surgery. Yikes! Compared to living with UC for six years, the past five months living with a stoma and a bag have been incredible. It's time to take on the pouch though.
Had my Pre-op assessment at the John Radcliffe yesterday where I once again got my Nutricia iso drinks. Can't believe it was only May since I last had these bad boys. 🤢
However, what with no longer having a large colon and all that, I won't need to do a day of taking bowel prep drinks. AND I can eat anything I want until midnight the day before. ANYTHING! This is basically heaven for a former ulcerative colitis fighter whose had more colonoscopies (and flexi-sigs whilst we're at it) to last ten lifetimes. So screw you EZ Prep! I'm done with you.
J-pouch. You'll be my next challenge. Through the ups. And the downs. I will own this.
Let's do it.
Being a mom is tough. I'm not really complaining... more like acknowledging a fact. I love this creature so much! And some days she's inconsolable (which drives me crazy). Like living with #inflammatoryboweldisease , everyone has an opinion on how you should care for/raise a baby... but at the end of the day, you know your baby best. You know what works for you and what doesn't. She's a good baby overall. Very happy and loves to chat it up with me 😍😍😍! Then there are those moments when I just wish she'd sleep! She's teaching me a lot about myself and I'm realizing that despite the fact that I'm an adult, I still don't have all the answers. My confidence has taken a beating and I'm very unsure of myself and my ability to parent... but I'm ok. And I will survive this. After all, I've dealt with much worse. #stronger#jpouch#babyninja2017#IBDninja#ulcerativecolitis#mommyramblings#motherhood#firsttimemom
Week twelve on the twelfth!
When I realised it had been 3 months today, I started to think about what noticeable improvements I've had over this time and it's been awesome to see there definitely have been some!
I am now including veges back in my diet! Previously they would irritate the pouch and cause me to go a lot more so I ended up just eating meat and carbs! I'm still limited with what veges and how much of them I can eat but it's a great start 🥗
This week I have just started being able to sit down again to pee.... now that is a success worth celebrating!! 3 months of a standing/hovering position was not ideal but it was the only way I could isolate my bladder and go number ones without also going number twos. But so far it appears I am now able to go number ones like normal and not number twos if I don't actually need to 💦
My average dates with the toilet are now about 11 times in 24 hours which includes 2 through the night. At 4 weeks I had got down to about 15 and at 6 weeks that then got to about 13 - both included 3 times during the night. So progress there has been pretty slow but there has been some! Hopefully that means by my 6 month mark things will be working like a dream ✌️