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Happy 26th Birthday to me! As I reflect on this year it would be easy to say that it has been one of the hardest years of my life but that is simply not true! I got an amazing new job, made new friends, fostered old friendships, went to Disney World with my favorite people, explored Washington DC, Ohio Bike Week, Put-In-Bay, Geneva on the Lake, got engaged to a wonderful man, and my relationship with my father has been reconciled after two decades of estrangement. Yes this surgery was ugly, tough, and I am still learning new ways to cope every day but this year has had MANY more ups than downs. I am so thankful for all of the good things that 2017 has brought. Let’s party!
Happy 26th Birthday to me! As I reflect on this year it would be easy to say that it has been one of the hardest years of my life but that is simply not true! I got an amazing new job, made new friends, fostered old friendships, went to Disney World with my favorite people, explored Washington DC, Ohio Bike Week, Put-In-Bay, Geneva on the Lake, got engaged to a wonderful man, and my relationship with my father has been reconciled after two decades of estrangement. Yes this surgery was ugly, tough, and I am still learning new ways to cope every day but this year has had MANY more ups than downs. I am so thankful for all of the good things that 2017 has brought. Let’s party!
I’m just a lil girl living in a polka dot world 🔴🔵🔴🔵
I’m just a lil girl living in a polka dot world 🔴🔵🔴🔵
I can have salads again 🙏🏼😭 Thank you, #jpouch. 10/10. Highly recommend.
I can have salads again 🙏🏼😭 Thank you, #jpouch . 10/10. Highly recommend.
2 weeks postpartum. #jpouch #ulcerativecolitis #babyninja2017
Every time I hear of the death of a fellow friend or family member in my cancer community, I get the constant reminder that my time may very well come back again too. I was diagnosed with rectal cancer at the age of 29. According to the American Cancer Society I had a .03% chance of getting this. My insurance approved genetic testing which answered the question as to why... That's when I was diagnosed with Lynch syndrome. This means I have a genetic mutation in my MLH1 gene which puts me at a terrifyingly high risk and predisposition for certain digestive and reproductive cancers. It's always something I have in the back of my mind, but occasionally gets shoved right back up to the front. I urge everybody to listen to your body and get checked out if you don't feel like something is going right... You may be able to catch it sooner and save your own life #lynchsyndromeawareness #jpouch
Every time I hear of the death of a fellow friend or family member in my cancer community, I get the constant reminder that my time may very well come back again too. I was diagnosed with rectal cancer at the age of 29. According to the American Cancer Society I had a .03% chance of getting this. My insurance approved genetic testing which answered the question as to why... That's when I was diagnosed with Lynch syndrome. This means I have a genetic mutation in my MLH1 gene which puts me at a terrifyingly high risk and predisposition for certain digestive and reproductive cancers. It's always something I have in the back of my mind, but occasionally gets shoved right back up to the front. I urge everybody to listen to your body and get checked out if you don't feel like something is going right... You may be able to catch it sooner and save your own life #lynchsyndromeawareness  #jpouch 
#Repost @tattooedpinup82 
Anyone else feeling the effects of thanksgiving meal? ・・・
Current situation: detox tea. My Crohns Disease,  j pouch and semi colon are NOT used to, nor do they appreciate, the Thanksgiving festivities. It just makes me appreciate how much better I feel when I eat clean. It's not about looks,  it's about feeling good and the quality of life 💙 #rectalcancersurvivor #semicolon #jpouch
#Repost  @tattooedpinup82 Anyone else feeling the effects of thanksgiving meal? ・・・ Current situation: detox tea. My Crohns Disease, j pouch and semi colon are NOT used to, nor do they appreciate, the Thanksgiving festivities. It just makes me appreciate how much better I feel when I eat clean. It's not about looks, it's about feeling good and the quality of life 💙 #rectalcancersurvivor  #semicolon  #jpouch 
3 years ago today I was forced to have my colon removed after suffering with Ulcerative Colitis for 8yrs. I wore an Ostomy bag while having 3 surgeries in 9 months and documented the journey in the hope of helping others. Today I am grateful to be alive & healthy as this surgery gave me my life back 💕 The scar on my stomach reminds just how precious life is and motivates me to follow my dreams. As I live my life with a JPouch, I will constantly be a voice to help find a cure for #IBD and spread awareness for others suffering, as I know first hand just how horrible  this disease is. 
#IBD #ibdawareness #ulcerativecolitis #ostomy #jpouch #CCFA #ostomyawareness
3 years ago today I was forced to have my colon removed after suffering with Ulcerative Colitis for 8yrs. I wore an Ostomy bag while having 3 surgeries in 9 months and documented the journey in the hope of helping others. Today I am grateful to be alive & healthy as this surgery gave me my life back 💕 The scar on my stomach reminds just how precious life is and motivates me to follow my dreams. As I live my life with a JPouch, I will constantly be a voice to help find a cure for #IBD  and spread awareness for others suffering, as I know first hand just how horrible this disease is. #IBD  #ibdawareness  #ulcerativecolitis  #ostomy  #jpouch  #CCFA  #ostomyawareness 
This guy’s surgery scars may have faded but he still lives every day without a colon - it’s crazy how the body can adapt. It’s so incredible to see him surfing and getting back to fighting weight. It’s IBD awareness week! Shedding light on those living with Crohns or Ulcerative Colitis - it’s not fun and these people are my heroes! Also it’s #mcm too 😍✨👍🏽 #ibdawarenessweek #ulcerativecolitisandcrohns #jpouch
This guy’s surgery scars may have faded but he still lives every day without a colon - it’s crazy how the body can adapt. It’s so incredible to see him surfing and getting back to fighting weight. It’s IBD awareness week! Shedding light on those living with Crohns or Ulcerative Colitis - it’s not fun and these people are my heroes! Also it’s #mcm  too 😍✨👍🏽 #ibdawarenessweek  #ulcerativecolitisandcrohns  #jpouch 
📅📅✏✏.
@cannagoldlife
@sandiegocannabisfarmersmarket 
@fteoc_infoctr 
@lanorml 
@joerogan 
@therock 
@cb1media 
@thehippielounge710 
@leafoflifecandies1 
@gasmanextracts 
#boneprone201 #420supportgroup #pouchitis #autoimmune #colonless #crohnsdiease #bipolor #osteoarthritis #jpouch
If you ever feel discouraged, remember how fat and angry Prednisone made you and remember how this bird still landed on your hand to eat seeds. Or maybe that was just me. Hey, we've all felt unlovely. Hold out your hand anyway. #ibdwarrior #jpouch #ulcerativecolitis #survivor #loveanyway #ifedabird #prednisone #graceenough
It’s officially winter here where I live! It’s time for snuggles by the fireplace and fun in the snow! It’s pretty chilly outside so I’m layering up. Winter is also a time for dry skin around my ostomy! I notice I get a lot of leaks during the winter. So during this time of year I make sure to keep my skin healthy. I’ve been pretty good at preventing leaks lately. People get more sick in the winter so remember to be strong and fight!  Happy Holidays and Stay warm! 
Xo,
Sophie  #ibd #ibdawareness #crohns #colitis #crohnsandcolitis #crohnsdisease #crohnsawareness  #ulcerativecolitis #ostomy #ostamate #crohnie #inflammatoryboweldisease #jpouch #crohnssupport #crohnswarrior #crohnsfighter #colonoscopy #crohnssucks #crohnslife #crohnie #ccfa #takesteps #humiara #remicade #autoimmunedisease #babeswithbags #teenswithcrohns #IBDcantstopme #nocolonnoproblem #getyourbellyout #nocolonstillrollin 💟
It’s officially winter here where I live! It’s time for snuggles by the fireplace and fun in the snow! It’s pretty chilly outside so I’m layering up. Winter is also a time for dry skin around my ostomy! I notice I get a lot of leaks during the winter. So during this time of year I make sure to keep my skin healthy. I’ve been pretty good at preventing leaks lately. People get more sick in the winter so remember to be strong and fight! Happy Holidays and Stay warm! Xo, Sophie #ibd  #ibdawareness  #crohns  #colitis  #crohnsandcolitis  #crohnsdisease  #crohnsawareness  #ulcerativecolitis  #ostomy  #ostamate  #crohnie  #inflammatoryboweldisease  #jpouch  #crohnssupport  #crohnswarrior  #crohnsfighter  #colonoscopy  #crohnssucks  #crohnslife  #crohnie  #ccfa  #takesteps  #humiara  #remicade  #autoimmunedisease  #babeswithbags  #teenswithcrohns  #IBDcantstopme  #nocolonnoproblem  #getyourbellyout  #nocolonstillrollin  💟
With my second surgery less than 15 days away, I’ve been making a mental list of the items I’ll pack for my hospital stay.
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Last time I way overpacked because I had NO idea what to expect. And to be honest, I’m a serial over-packer. Always have been and probably always will be. 🤷🏻‍♀️
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So here’s a list I wanted to share with you guys!
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Clothing items: loose pajama pants (if you’re getting a stoma, pack lots, because I made a mess on mine a few times while getting the hang of emptying my bag), comfy undies, tanks (see two posts back), big T-shirt’s, soft sports bras, a robe (seriously, I couldn’t have lived without this), slippers (preferably some with a non-slip sole so you can get your laps in 🚶🏻‍♀️).
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Toiletries: shampoo and conditioner (hospitals usually have some, but it’s nice to have your favorite kind from home), body wash, a loofa (a lifesaver, I don’t trust those hospital washcloths 🤮), toothbrush, toothpaste, deodorant, facial wipes, baby wipes, lotion, chapstick, ponytail holders, razor, and shaving cream (I won’t lie, shaving was not easy, but it just helped me to feel more like myself, so that’s why it’s on my list).
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Random: a LONG phone charger (outlets usually aren’t super close to your bed, and the ones that are are usually occupied by machines), book or iPad, coloring book, favorite blanket, your own pillow, hard candy, earbuds, an extension cord, a small hand sanitizer). Also, this time I’m going to bring my own drinks. The hospital didn’t have any of the types of drinks I was allowed to have after surgery (😒), so you better believe I’m taking a couple of packs of G2’s with me!
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#ulcerativecolitis #nocolonstillrollin #uc #inflammatoryboweldisease #ibd #gutitout #lifetakesguts #mayoclinic #colorectalsurgery #ostomy #ostomate #ostomates #ileostomy #girlswithguts #coloplastsensuramio #coloplast #jpouch #jpouchlife #mayoclinic #colectomy #chronicillness #invisibleillness #spoonie #scars #laparoscopicsurgery #roboticsurgery #hospitalstay #packinglist
With my second surgery less than 15 days away, I’ve been making a mental list of the items I’ll pack for my hospital stay. • Last time I way overpacked because I had NO idea what to expect. And to be honest, I’m a serial over-packer. Always have been and probably always will be. 🤷🏻‍♀️ • So here’s a list I wanted to share with you guys! • Clothing items: loose pajama pants (if you’re getting a stoma, pack lots, because I made a mess on mine a few times while getting the hang of emptying my bag), comfy undies, tanks (see two posts back), big T-shirt’s, soft sports bras, a robe (seriously, I couldn’t have lived without this), slippers (preferably some with a non-slip sole so you can get your laps in 🚶🏻‍♀️). • Toiletries: shampoo and conditioner (hospitals usually have some, but it’s nice to have your favorite kind from home), body wash, a loofa (a lifesaver, I don’t trust those hospital washcloths 🤮), toothbrush, toothpaste, deodorant, facial wipes, baby wipes, lotion, chapstick, ponytail holders, razor, and shaving cream (I won’t lie, shaving was not easy, but it just helped me to feel more like myself, so that’s why it’s on my list). • Random: a LONG phone charger (outlets usually aren’t super close to your bed, and the ones that are are usually occupied by machines), book or iPad, coloring book, favorite blanket, your own pillow, hard candy, earbuds, an extension cord, a small hand sanitizer). Also, this time I’m going to bring my own drinks. The hospital didn’t have any of the types of drinks I was allowed to have after surgery (😒), so you better believe I’m taking a couple of packs of G2’s with me! • • • #ulcerativecolitis  #nocolonstillrollin  #uc  #inflammatoryboweldisease  #ibd  #gutitout  #lifetakesguts  #mayoclinic  #colorectalsurgery  #ostomy  #ostomate  #ostomates  #ileostomy  #girlswithguts  #coloplastsensuramio  #coloplast  #jpouch  #jpouchlife  #mayoclinic  #colectomy  #chronicillness  #invisibleillness  #spoonie  #scars  #laparoscopicsurgery  #roboticsurgery  #hospitalstay  #packinglist 
OUR NEW SITE IS LIVE!!! 💜 If you contributed, feel free to share on your social media accounts (please do, actually). 💻 Looking forward to adding so much more, so stay tuned! 👋🏻 If you want to contribute or advertise, please DM or email companionibd@gmail.com. 💌 @bpomish @kristindunreathart @gutlessandglamorous @gaylyn14 @rasheedclarke @emmalchapple @brklynbouncer @rainavsfood @jessicafrano @trinalsip @emilybraun @elenimariaa @ltspaulding @my_intestinal_fortitude @rocking2stomas @luv_to_health_coach @roysamuelgeorge #companionmag #companionmagazine #ulcerativecolitis #ulcerativecolitissurvivor #crohnsdisease #crohnsawareness #ibd #inflammatoryboweldisease #gastroparesis #chronicillness #spoonielife #spoonie #ostomy #jpouch #ileostomy #colostomy #urostomy
OUR NEW SITE IS LIVE!!! 💜 If you contributed, feel free to share on your social media accounts (please do, actually). 💻 Looking forward to adding so much more, so stay tuned! 👋🏻 If you want to contribute or advertise, please DM or email companionibd@gmail.com. 💌 @bpomish @kristindunreathart @gutlessandglamorous @gaylyn14 @rasheedclarke @emmalchapple @brklynbouncer @rainavsfood @jessicafrano @trinalsip @emilybraun @elenimariaa @ltspaulding @my_intestinal_fortitude @rocking2stomas @luv_to_health_coach @roysamuelgeorge #companionmag  #companionmagazine  #ulcerativecolitis  #ulcerativecolitissurvivor  #crohnsdisease  #crohnsawareness  #ibd  #inflammatoryboweldisease  #gastroparesis  #chronicillness  #spoonielife  #spoonie  #ostomy  #jpouch  #ileostomy  #colostomy  #urostomy 
3.1 miles on this Monday. I always do a long run on Sunday, but missed yesterday because I was a cleaning FIEND and went crazy scrubbing grout and making it all sparkling. I was way too tired afterwards to run. But hey 4 hours of cleaning is still exercise right?? Hope so. Cuz that’s all I did on my long run day! I wanted to make sure I kinda made up for it by running tonight’s 5k at my current top speed, and to push myself a tiny bit farther than I did last time before needing a walk break....and I did it! I felt strong during it and feel great that I did that! I’ll get my long run in next Sunday...but until then I’ll just focus on speed and strength! At least I got to try out some new socks!! 😂💁🏼‍♀️
Happy Monday, peeps! 👣💜
3.1 miles on this Monday. I always do a long run on Sunday, but missed yesterday because I was a cleaning FIEND and went crazy scrubbing grout and making it all sparkling. I was way too tired afterwards to run. But hey 4 hours of cleaning is still exercise right?? Hope so. Cuz that’s all I did on my long run day! I wanted to make sure I kinda made up for it by running tonight’s 5k at my current top speed, and to push myself a tiny bit farther than I did last time before needing a walk break....and I did it! I felt strong during it and feel great that I did that! I’ll get my long run in next Sunday...but until then I’ll just focus on speed and strength! At least I got to try out some new socks!! 😂💁🏼‍♀️ Happy Monday, peeps! 👣💜
📅📅✏✏.
@dabstersunion 
@culinaryandcannabis 
@grassposts 
@meditate818 
@shattershotsesh 
#uglysweatersesh 
@hiphopafest
@805oilersfest 
@sesh.up 
#boneprone201 #420supportgroup #pouchitis #autoimmune #crohnsdiease #osteoarthritis #colonless #jpouch
I wasn’t able to eat grapefruit for YEARS because it reacted to one of my medications. I can’t even tell you how delicious this grapefruit is! I still have to limit how much I eat, because too much insoluble fiber is still hard for me to digest, but trust me, I am SAVORING every juicy bite! 
#yogacalls #jpouch #ulcerativecolitis #myyogastory #thejuiceisloose  #savoryourfood #grapefruit #gutitout #nocolonstillrollin
Good afternoon, we got the second half of my bio about the 420 support group for the awesome @1000wattsmmj magazine, thank you again @cindyat1000watts And @cannabis_nurse_navigator for this amazing opportunity to all start working together 😍😍. We already been on the phone making plans for the week. On Wednesday, we will be visiting @worldharvestusa food bank with a few friends. And picking up some much needed groceries for everyone to share, and the rest we pass out to the homeless on skidrow 💖💖. And a huge thank you to @sinistermedicinals for making this possible 😍😍🙏🙏. This Saturday is also a going away party for @leafoflifecandies1 And @hppygriffin with @thehippielounge710 and @thesmokepitevents ✌. And  if I can work out finances, I'll be there, then spend the night in the area, and head over to the 420 support group patient meeting in Desert Hot on Sunday 👍. Only time and money will tell 😄😄. @rguzjr79 @ave420entertainment @pot_brothers_at_law 
@p.jennjohnson
@virgokush
@cannananowater
#boneprone201 #420supportgroup #pouchitis #autoimmune #colonless #crohnsdiease #bipolor #osteoarthritis #osteoarthritis #jpouch @cannabis_patients
Good afternoon, we got the second half of my bio about the 420 support group for the awesome @1000wattsmmj magazine, thank you again @cindyat1000watts And @cannabis_nurse_navigator for this amazing opportunity to all start working together 😍😍. We already been on the phone making plans for the week. On Wednesday, we will be visiting @worldharvestusa food bank with a few friends. And picking up some much needed groceries for everyone to share, and the rest we pass out to the homeless on skidrow 💖💖. And a huge thank you to @sinistermedicinals for making this possible 😍😍🙏🙏. This Saturday is also a going away party for @leafoflifecandies1 And @hppygriffin with @thehippielounge710 and @thesmokepitevents ✌. And if I can work out finances, I'll be there, then spend the night in the area, and head over to the 420 support group patient meeting in Desert Hot on Sunday 👍. Only time and money will tell 😄😄. @rguzjr79 @ave420entertainment @pot_brothers_at_law @p.jennjohnson @virgokush @cannananowater #boneprone201  #420supportgroup  #pouchitis  #autoimmune  #colonless  #crohnsdiease  #bipolor  #osteoarthritis  #osteoarthritis  #jpouch  @cannabis_patients
Took tin tin up crystal peak to get a tree with my sweets all my buddies 👍🏻❤️ #class11 #vw #vwbeetle #chronicillness #colitis #pancolitis #iliostomy #jpouch #tree  #christmastree #love #our first tree #happy #dontletitstopyou #bestrong #behappy #behealthy #befit #beinsired
Took tin tin up crystal peak to get a tree with my sweets all my buddies 👍🏻❤️ #class11 #vw #vwbeetle #chronicillness #colitis #pancolitis #iliostomy #jpouch #tree  #christmastree #love #our first tree #happy #dontletitstopyou #bestrong #behappy #behealthy #befit #beinsired
After a full week of feeling like I was dying, I had no idea strep was so horrible, I am finally back to eating (and feeling) normal. For breakfast I had shrimp and half an avocado 
238 calories 12 F/ 21 P/ 5 C
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#shrimp #avocado #keto #ketodiet #ketoaf #lchf #lowcarb #highfat #ketolife #ketolifestyle #ketogram #weightloss #ketofundido #ketogenic #ketogenicdiet #grainfree #ketoforhealing #grainfreeforhealing #jpouch #ostomy #formerostomate #proteinandproduce #nocarbs #nosugar #ketoforweightloss
After a full week of feeling like I was dying, I had no idea strep was so horrible, I am finally back to eating (and feeling) normal. For breakfast I had shrimp and half an avocado 238 calories 12 F/ 21 P/ 5 C . . . . . #shrimp  #avocado  #keto  #ketodiet  #ketoaf  #lchf  #lowcarb  #highfat  #ketolife  #ketolifestyle  #ketogram  #weightloss  #ketofundido  #ketogenic  #ketogenicdiet  #grainfree  #ketoforhealing  #grainfreeforhealing  #jpouch  #ostomy  #formerostomate  #proteinandproduce  #nocarbs  #nosugar  #ketoforweightloss 
Good morning, it's a fabulous day to be alive and still kicking 🙌🙌. Big thing's coming folks and I hope you climb aboard and join the 420 support group patient meetings, or even better, become a leader that other's can look up to in your community and city. The next 420 support group patient meeting in Desert Hot Springs on December 17th from 1-430ish and December 23rd from 1-430ish in San Diego area 👫👬👭. @rguzjr79 @cannabis_nurse_navigator 
Also looking for a great location for the Los Angeles area and a leader to take charge 👊👊. #boneprone201 #420supportgroup #pouchitis #autoimmune #jpouch #crohnsdiease #bipolor #osteoarthritis #osteoporosis #colonless @ave420entertainment
Good morning, it's a fabulous day to be alive and still kicking 🙌🙌. Big thing's coming folks and I hope you climb aboard and join the 420 support group patient meetings, or even better, become a leader that other's can look up to in your community and city. The next 420 support group patient meeting in Desert Hot Springs on December 17th from 1-430ish and December 23rd from 1-430ish in San Diego area 👫👬👭. @rguzjr79 @cannabis_nurse_navigator Also looking for a great location for the Los Angeles area and a leader to take charge 👊👊. #boneprone201  #420supportgroup  #pouchitis  #autoimmune  #jpouch  #crohnsdiease  #bipolor  #osteoarthritis  #osteoporosis  #colonless  @ave420entertainment
Happy 26th Birthday to me! As I reflect on this year it would be easy to say that it has been one of the hardest years of my life but that is simply not true! I got an amazing new job, made new friends, fostered old friendships, went to Disney World with my favorite people, explored Washington DC, Ohio Bike Week, Put-In-Bay, Geneva on the Lake, got engaged to a wonderful man, and my relationship with my father has been reconciled after two decades of estrangement. Yes this surgery was ugly, tough, and I am still learning new ways to cope every day but this year has had MANY more ups than downs. I am so thankful for all of the good things that 2017 has brought. Let’s party!
Happy 26th Birthday to me! As I reflect on this year it would be easy to say that it has been one of the hardest years of my life but that is simply not true! I got an amazing new job, made new friends, fostered old friendships, went to Disney World with my favorite people, explored Washington DC, Ohio Bike Week, Put-In-Bay, Geneva on the Lake, got engaged to a wonderful man, and my relationship with my father has been reconciled after two decades of estrangement. Yes this surgery was ugly, tough, and I am still learning new ways to cope every day but this year has had MANY more ups than downs. I am so thankful for all of the good things that 2017 has brought. Let’s party!
We’re so excited to have @bpomish contributing to our new site launch. ⭐️ Brandon underwent successful stem cell therapy in Madrid, Spain for his perianal Crohn’s Disease. 💪🏻 Interested in reading his story? 👓 You can when the new Companion site launches tonight! 💻 Show Brandon some support in the comments. 👇🏼 #crohnswarrior #crohnsdisease #crohnsdiseasesucks #stemcelltherapy #madridspain #ulcerativecolitis #ostomy #jpouch #ileostomy #colostomybag #healthiswealth #healthishappiness #uc #survivor #spoonielife #companionmagazine
We’re so excited to have @bpomish contributing to our new site launch. ⭐️ Brandon underwent successful stem cell therapy in Madrid, Spain for his perianal Crohn’s Disease. 💪🏻 Interested in reading his story? 👓 You can when the new Companion site launches tonight! 💻 Show Brandon some support in the comments. 👇🏼 #crohnswarrior  #crohnsdisease  #crohnsdiseasesucks  #stemcelltherapy  #madridspain  #ulcerativecolitis  #ostomy  #jpouch  #ileostomy  #colostomybag  #healthiswealth  #healthishappiness  #uc  #survivor  #spoonielife  #companionmagazine 
Saying hello and good luck to daddy down in Mayo!!!! Good luck with CT scan this morning. Praying for great news and helpful tips. We love you daddy!!! #jpouch #ulcerativecolitis #mayo #support #family #Godisgreat
"Being brave means to know something is scary, difficult, and dangerous, and doing it anyway, because the possibility of winning the fight is worth the chance of losing it." Emilie Autumn

#FightForIt #SilverLining #My #Life #Chronic #Disease #Illness #Warrior #Sick #Pain #Anxiety #Depression #JPouch #UlcerativeColitis #UC #Nausea #EPI #ExocrinePancreaticInsufficiency #Bladder #Melanoma #CervivalCancer #Migraine #JointPain #Anemia #Insomnia #Surgery #Bravery #Follow #Cancer
"Being brave means to know something is scary, difficult, and dangerous, and doing it anyway, because the possibility of winning the fight is worth the chance of losing it." Emilie Autumn #FightForIt  #SilverLining  #My  #Life  #Chronic  #Disease  #Illness  #Warrior  #Sick  #Pain  #Anxiety  #Depression  #JPouch  #UlcerativeColitis  #UC  #Nausea  #EPI  #ExocrinePancreaticInsufficiency  #Bladder  #Melanoma  #CervivalCancer  #Migraine  #JointPain  #Anemia  #Insomnia  #Surgery  #Bravery  #Follow  #Cancer 
Yes 🙌🏼🙌🏼🙌🏼
Yes 🙌🏼🙌🏼🙌🏼
Back to my normally scheduled life....❤️
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Last December, my life was falling apart (so I thought...). I was in the hospital, drugs weren’t working, my boyfriend was in the process of moving out and I felt defeated. That was the beginning of one of my toughest and strongest years. I have proven to myself how strong I can be, how amazing life is and how much better I am today because of it. .
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I missed two annual events last year, while laying in a hospital bed....Japanese tamale day (yes it’s a thing in my family😉) and my company Christmas party. As I was getting ready for a crazy weekend and to redeem myself at these events, I reflected on how much my life has changed in 365 Days.
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Although it was a tough year, I wouldn’t change it because it made me who I am in this moment. (Well....if we had a cure, that would have been nice....still fighting for that cure!!!) #japanesetamaleday #sgwschristmasparty #365days!!
Back to my normally scheduled life....❤️ . Last December, my life was falling apart (so I thought...). I was in the hospital, drugs weren’t working, my boyfriend was in the process of moving out and I felt defeated. That was the beginning of one of my toughest and strongest years. I have proven to myself how strong I can be, how amazing life is and how much better I am today because of it. . . I missed two annual events last year, while laying in a hospital bed....Japanese tamale day (yes it’s a thing in my family😉) and my company Christmas party. As I was getting ready for a crazy weekend and to redeem myself at these events, I reflected on how much my life has changed in 365 Days. . Although it was a tough year, I wouldn’t change it because it made me who I am in this moment. (Well....if we had a cure, that would have been nice....still fighting for that cure!!!) #japanesetamaleday  #sgwschristmasparty  #365days !!
Hi stomies! We've been a little MIA lately, mostly due to the craziness of the holidays. Here's a colon card that can double as a New Year's card as you prep for the holidays - just gotta add the ~. For the non Spanish speakers, Feliz Año Nuevo is happy new year, but feliz ano nuevo is, well, happy new... 😜
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#poop #poopjokes #colon #stomies #stoma #jpouch #frontbutt #ostomy #ostomybag #ileostomy #colostomybag #ibd #ibdawareness #crohnsdisease #ulcerativecolitis #coloncancer #coloncancerawareness #colonsurgery #colitis #greetingcards #bathroomhumor #guthealth #gotguts #gutitout #nocolonstillrollin
Hi stomies! We've been a little MIA lately, mostly due to the craziness of the holidays. Here's a colon card that can double as a New Year's card as you prep for the holidays - just gotta add the ~. For the non Spanish speakers, Feliz Año Nuevo is happy new year, but feliz ano nuevo is, well, happy new... 😜 . . . #poop  #poopjokes  #colon  #stomies  #stoma  #jpouch  #frontbutt  #ostomy  #ostomybag  #ileostomy  #colostomybag  #ibd  #ibdawareness  #crohnsdisease  #ulcerativecolitis  #coloncancer  #coloncancerawareness  #colonsurgery  #colitis  #greetingcards  #bathroomhumor  #guthealth  #gotguts  #gutitout  #nocolonstillrollin 
#Mood now that I’ve finally gotten this new video uploaded. A message to those newly diagnosed or struggling with their diagnosis of a chronic condition! Check it out. #LinkInBio.
#Mood  now that I’ve finally gotten this new video uploaded. A message to those newly diagnosed or struggling with their diagnosis of a chronic condition! Check it out. #LinkInBio .
Hi there 🖐, i hope your having a wonderful night 🌚. After being sick all last week and it's still dragging on with the weather 🔥🌬❄⛈🌨🌧🌫🌝. I also took the time to clear my head a little, I was overwhelmed with everything happening and needed some down time 🤤😷😨😧😴😴😴. Now it's time to start charging up again for a busy important couple weeks coming up 📅📅. Right now, I'm working on a little bio about how the 420 support group got started, and how my life has progressed since.  I'm getting this ready for the @1000wattsmmj magazine 📰. The #420supportgroup and @cannabis_nurse_navigator will be bringing you a different patient members profile during each publication if all goes fantastic 👍. The first one will be about how I started up the support group and a little background about myself 🙌🙌. Thank you @cindyat1000watts And @cannabis_nurse_navigator for this amazing opportunity for me and the support group members 😍😍. And a huge huge thank you to David @the_green_guys for reaching out and helping out wherever he felt he could 💻💻🖥🖥. Right on buddy, much much appreciated 🙏🙏. And also look forward to a long friendship and partnership 💪💪. Lots of wonderful things coming, I'm surprised and blessed everyday I wake up 💖💖💖💖💖. Thank you again @hppygriffin
@leafoflifecandies1
 #boneprone201 #420supportgroup #pouchitis #autoimmune #crohnsdiease #bipolor #osteoarthritis #jpouch #peaceandlove @pot_brothers_at_law @wasslawdog
Hi there 🖐, i hope your having a wonderful night 🌚. After being sick all last week and it's still dragging on with the weather 🔥🌬❄⛈🌨🌧🌫🌝. I also took the time to clear my head a little, I was overwhelmed with everything happening and needed some down time 🤤😷😨😧😴😴😴. Now it's time to start charging up again for a busy important couple weeks coming up 📅📅. Right now, I'm working on a little bio about how the 420 support group got started, and how my life has progressed since. I'm getting this ready for the @1000wattsmmj magazine 📰. The #420supportgroup  and @cannabis_nurse_navigator will be bringing you a different patient members profile during each publication if all goes fantastic 👍. The first one will be about how I started up the support group and a little background about myself 🙌🙌. Thank you @cindyat1000watts And @cannabis_nurse_navigator for this amazing opportunity for me and the support group members 😍😍. And a huge huge thank you to David @the_green_guys for reaching out and helping out wherever he felt he could 💻💻🖥🖥. Right on buddy, much much appreciated 🙏🙏. And also look forward to a long friendship and partnership 💪💪. Lots of wonderful things coming, I'm surprised and blessed everyday I wake up 💖💖💖💖💖. Thank you again @hppygriffin @leafoflifecandies1 #boneprone201  #420supportgroup  #pouchitis  #autoimmune  #crohnsdiease  #bipolor  #osteoarthritis  #jpouch  #peaceandlove  @pot_brothers_at_law @wasslawdog
Peace and love ✌💖. We finally got my pen in hand writing ✏🖋🖋📝📝. The 420 support group is blessed to be working together with @cannabis_nurse_navigator to bring you a profile of a different patient in each publication of @1000wattsmmj 🙌🙌📰📰. We are so thankful for all the people coming  together to create something special and unique. Thank you @cindyat1000watts for this amazing opportunity 🙏. I will be trying to bring you the best from all walks of life, and just wait till you see  what is in the future for our #420supportgroup family members 👫👬👭💖💖.
Coming soon also look for @the_green_guys as we start to  work together ✊✊✊👊. So many new and exciting things coming our way 😍😍. @ave420entertainment @pot_brothers_at_law @wasslawdog @rguzjr79 #boneprone201 #420supportgroup #pouchitis #autoimmune #colonless #crohnsdiease #bipolor #osteoarthritis #osteoarthritis #jpouch
Peace and love ✌💖. We finally got my pen in hand writing ✏🖋🖋📝📝. The 420 support group is blessed to be working together with @cannabis_nurse_navigator to bring you a profile of a different patient in each publication of @1000wattsmmj 🙌🙌📰📰. We are so thankful for all the people coming together to create something special and unique. Thank you @cindyat1000watts for this amazing opportunity 🙏. I will be trying to bring you the best from all walks of life, and just wait till you see what is in the future for our #420supportgroup  family members 👫👬👭💖💖. Coming soon also look for @the_green_guys as we start to work together ✊✊✊👊. So many new and exciting things coming our way 😍😍. @ave420entertainment @pot_brothers_at_law @wasslawdog @rguzjr79 #boneprone201  #420supportgroup  #pouchitis  #autoimmune  #colonless  #crohnsdiease  #bipolor  #osteoarthritis  #osteoarthritis  #jpouch 
Celebrating a successful @spin4crohnscolitis cures event with the best committee around! Now, back to New York for another project for the @crohnscolitisfoundation - wheels up! 
#uc #ulcerativecolitis #crohns #crohnsdisease #ibd #jpouch #ostomy #advocate #advocacy #spin #spin4 #spin4crohnsandcolitiscures #spin4crohnscolitiscures #committee #charity #lavida #lavidacantina #brunch #mimosa #oc #costamesa #orangecounty #crohnsandcolitisfoundation #volunteer #partyonabike #power2cure #wrapparty #friends #thetriangle #lifeisa10
Celebrating a successful @spin4crohnscolitis cures event with the best committee around! Now, back to New York for another project for the @crohnscolitisfoundation - wheels up! #uc  #ulcerativecolitis  #crohns  #crohnsdisease  #ibd  #jpouch  #ostomy  #advocate  #advocacy  #spin  #spin4  #spin4crohnsandcolitiscures  #spin4crohnscolitiscures  #committee  #charity  #lavida  #lavidacantina  #brunch  #mimosa  #oc  #costamesa  #orangecounty  #crohnsandcolitisfoundation  #volunteer  #partyonabike  #power2cure  #wrapparty  #friends  #thetriangle  #lifeisa10 
So normally “nesting” usually fits with pregnancy but I know for sure it also fits with those of us closing in on surgery dates (cue massive amounts of nervous energy)☝🏻
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Before my first surgery, I cleaned until midnight the night before we had to leave for Cleveland. I was SO sore the next day from scrubbing floors and cleaning what seemed like EVERY single window blind. I am never that thorough 🤷🏼‍♀️ I’ve started to feel the itch again as I approach this final surgery (this time I’m getting a head start) ...
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They say “nesting” occurs out of instinct. Mothers want their future baby’s space to be as organized and as safe as it can be - you can’t blame them. I imagine a small piece of them also thinks about how potentially chaotic it may be for the immediate future and knowing that you are coming home to a clean and organized space is one less thing to think about▪️
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And that’s where we overlap. I’m not worried about having a safe space (although I do sometimes think about how terrible it would be to fall post op 🙅🏼‍♀️) but I definitely don’t want to come home to a messy space. I need my mind to be focusing all of its energy on healing my insides instead of wondering why there is dog hair everywhere or why there is still laundry everywhere. I know I must not be the only one in this boat. Give me a shout out if your “nesting” kicks in hard pre op (and this is certainly not just a “girl” thing)👇🏻✔️
So normally “nesting” usually fits with pregnancy but I know for sure it also fits with those of us closing in on surgery dates (cue massive amounts of nervous energy)☝🏻 • Before my first surgery, I cleaned until midnight the night before we had to leave for Cleveland. I was SO sore the next day from scrubbing floors and cleaning what seemed like EVERY single window blind. I am never that thorough 🤷🏼‍♀️ I’ve started to feel the itch again as I approach this final surgery (this time I’m getting a head start) ... • They say “nesting” occurs out of instinct. Mothers want their future baby’s space to be as organized and as safe as it can be - you can’t blame them. I imagine a small piece of them also thinks about how potentially chaotic it may be for the immediate future and knowing that you are coming home to a clean and organized space is one less thing to think about▪️ • And that’s where we overlap. I’m not worried about having a safe space (although I do sometimes think about how terrible it would be to fall post op 🙅🏼‍♀️) but I definitely don’t want to come home to a messy space. I need my mind to be focusing all of its energy on healing my insides instead of wondering why there is dog hair everywhere or why there is still laundry everywhere. I know I must not be the only one in this boat. Give me a shout out if your “nesting” kicks in hard pre op (and this is certainly not just a “girl” thing)👇🏻✔️
Sometimes you’ve just got to swing off lampposts wearing short shorts and a bum bag. 
#bumsoutgunsout #pressupworldrecordattempt #2700pressups #bodypositive #positivebodyimage #crohns #colitis #colectomy #ileostomy #jpouch #ibdfitness #fitness
Diagnosed with #Ulcerativecolitis in 2013. My #UC didn’t respond to the truck load of pills thrown at it. So a year and a half later, when things started getting pretty bad, I began my three surgery “adventure” to wellness (total #colectomy and #ileostomy, then #jpouch creation, then finally  #takedownsurgery late 2015). The most challenging part of this very long (very long) and uncomfortable (very uncomfortable) ordeal, has been raising two young kids with a chronic illness. My daughters were 1 and 3 when I was diagnosed. Now that I’m finally beginning to live a functioning life again, I’m realising I don’t have people in my life who understand my journey. I have my family who helped me and watched me, were beside me as I experienced it, but now, i feel the need to reach out to others like me. I’m looking for my people.
Diagnosed with #Ulcerativecolitis  in 2013. My #UC  didn’t respond to the truck load of pills thrown at it. So a year and a half later, when things started getting pretty bad, I began my three surgery “adventure” to wellness (total #colectomy  and #ileostomy , then #jpouch  creation, then finally #takedownsurgery  late 2015). The most challenging part of this very long (very long) and uncomfortable (very uncomfortable) ordeal, has been raising two young kids with a chronic illness. My daughters were 1 and 3 when I was diagnosed. Now that I’m finally beginning to live a functioning life again, I’m realising I don’t have people in my life who understand my journey. I have my family who helped me and watched me, were beside me as I experienced it, but now, i feel the need to reach out to others like me. I’m looking for my people.
I have spent a few hours reading several of Darrell’s posts. It’s amazing how much wisdom, advice and encouragement we can find in the fiercest warrior. People had suggested to make a book. I think there’s plenty of material to do so. We, cancer patients, can find a lot of  inspiration, comfort and encouragement in this most difficult season of our lives. I post his ideas, but the credit goes to nobody but him. Yes, while we are going through a most difficult path, we can chose to scream in terror or laugh at it and soften the harm that’s been inflicted on us. We suffer, but we can try our best attitude. #DarrellHenry #Darrelisms #CancerSchmancer #Cancer #ColonCancer #ColonCancerMyAss #ElCancer #Krebs #NoColonStillRollin #Ileostomy #Stoma #JPouch #HollisterOstomy #Chemo #Chemotherapy #Quimioterapia #ColdNeuropathy #Oxaliplatin #Xeloda #Avastin #Portacath #Life #TakeLifeByTheHorns #Laughter #WeHappy
I have spent a few hours reading several of Darrell’s posts. It’s amazing how much wisdom, advice and encouragement we can find in the fiercest warrior. People had suggested to make a book. I think there’s plenty of material to do so. We, cancer patients, can find a lot of inspiration, comfort and encouragement in this most difficult season of our lives. I post his ideas, but the credit goes to nobody but him. Yes, while we are going through a most difficult path, we can chose to scream in terror or laugh at it and soften the harm that’s been inflicted on us. We suffer, but we can try our best attitude. #DarrellHenry  #Darrelisms  #CancerSchmancer  #Cancer  #ColonCancer  #ColonCancerMyAss  #ElCancer  #Krebs  #NoColonStillRollin  #Ileostomy  #Stoma  #JPouch  #HollisterOstomy  #Chemo  #Chemotherapy  #Quimioterapia  #ColdNeuropathy  #Oxaliplatin  #Xeloda  #Avastin  #Portacath  #Life  #TakeLifeByTheHorns  #Laughter  #WeHappy 
#Repost @boneprone201 (@get_repost)
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Good morning from beautiful @desert_vineyard 💒. Time for a little spiritual guidance 😉. Today I also start writing the 2nd half of my bio 📄📄. The 420 support group and @cannabis_nurse_navigator have joined up to bring you a profile of different members of our group for articles in the @1000watts magazine 📰📰📙📙. And next week at this time is our next 420 support group patient meeting in Desert Hot Springs on December 17th from 1-430ish 📅. @rguzjr79 @ave420entertainment #boneprone201 #420supportgroup #pouchitis #autoimmune #crohnsdiease #bipolor #osteoarthritis #jpouch
#Repost  @boneprone201 (@get_repost) ・・・ Good morning from beautiful @desert_vineyard 💒. Time for a little spiritual guidance 😉. Today I also start writing the 2nd half of my bio 📄📄. The 420 support group and @cannabis_nurse_navigator have joined up to bring you a profile of different members of our group for articles in the @1000watts magazine 📰📰📙📙. And next week at this time is our next 420 support group patient meeting in Desert Hot Springs on December 17th from 1-430ish 📅. @rguzjr79 @ave420entertainment #boneprone201  #420supportgroup  #pouchitis  #autoimmune  #crohnsdiease  #bipolor  #osteoarthritis  #jpouch 
Hello! I figured social media was due for an update since the last photo I posted I have a tube down my nose. #recovery is slow, but it is happening. I have an appetite again and I’m noticing I don’t feel sick after eating anymore! Staples should come out tomorrow. Dany is quite pleased. #jpouch #ulcerativecolitis #nomorengtube #ohfudge #achristmasstory #dany
Hello! I figured social media was due for an update since the last photo I posted I have a tube down my nose. #recovery  is slow, but it is happening. I have an appetite again and I’m noticing I don’t feel sick after eating anymore! Staples should come out tomorrow. Dany is quite pleased. #jpouch  #ulcerativecolitis  #nomorengtube  #ohfudge  #achristmasstory  #dany 
Good morning from beautiful @desert_vineyard 💒. Time for a little spiritual guidance 😉. Today I also start writing the 2nd half of my bio 📄📄. The 420 support group and @cannabis_nurse_navigator have joined up to bring you a profile of different members of our group for articles in the @1000watts magazine 📰📰📙📙. And next week at this time is our next 420 support group patient meeting in Desert Hot Springs on December 17th from 1-430ish 📅. @rguzjr79 @ave420entertainment #boneprone201 #420supportgroup #pouchitis #autoimmune #crohnsdiease #bipolor #osteoarthritis #jpouch
Good morning from beautiful @desert_vineyard 💒. Time for a little spiritual guidance 😉. Today I also start writing the 2nd half of my bio 📄📄. The 420 support group and @cannabis_nurse_navigator have joined up to bring you a profile of different members of our group for articles in the @1000watts magazine 📰📰📙📙. And next week at this time is our next 420 support group patient meeting in Desert Hot Springs on December 17th from 1-430ish 📅. @rguzjr79 @ave420entertainment #boneprone201  #420supportgroup  #pouchitis  #autoimmune  #crohnsdiease  #bipolor  #osteoarthritis  #jpouch 
Be the best version of you 💋
Be the best version of you 💋
When you spend a lot of time in public restrooms ... gotta give props to the ones that provide air freshener and nice mood lighting. I feel like I'm living in an #entyvio commercial. #bathroom #airfreshener #moodlighting #ibd #ibdsucks #uc #crohns #jpouch #autoimmunedisease #invisibleillness #findacure #ccfa #ibdwarrior #ibdfighter #whenyougottago #nocolonstillrollin #getyourbellyout #girlswithguts
Sunday sunnies with a kitty cameo. 82/100 #100daysoffitness #fitcolumbus #newyogi #yoga #asseenincolumbus #nocolonstillrollin
Efter en helt fantastisk resa där jag har njutit av att må bättre så är man hemma igen och allt elände bryter ut redan efter en dag🙈 hög feber extrem värk i lederna och ligger helt däckad.
#klimatvård #psoriasisartrit #reumatism #reumatiker #ulceröskolit #nocolon #jpouch #chronicpancreatitis #chronicpain #grandpaladiumpuntacana #dominicanrepublic #liversickness #autoimmunedisease
The positive of surviving something that nearly destroyed me, is appreciating everything from a deeper perspective. The raw natural beauty of this world and of course my beautiful babies! Enjoy the day and stay safe 💚 
#nocolonstillrollin
#me
#jpouchsurgery
#appreciate
 #rottweiler
#dogsofinstagram
 #picoftheday #jpouch #winter
#uc #takingtimeout #maketimeforyourself #ucyoudidntbeatme #lab
What bag? 🎒✨
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Some of you may have already seen this in my story but I wanted to share again so that someone stopping by later on knew that ostomy fashion isn’t so bad after all☝🏻
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I will say a good pair of high waisted yoga pants is a girls best friend (bag or no bag)👌🏻 my go-to ones during ostomy life have been a pair from lululemon. They are nice and thick and hold everything in place almost as if I was wearing a support belt ✔️
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The only downside I’ve noticed with wearing snug pants is the the top edges (stitching) of the bag (coloplast two piece) are pressed against my skin and sometimes that can get a little itchy. If I feel it coming on, I’ll usually just tuck my shirt in a bit to create a barrier or just use a little athletics tape around the edges. Simple enough 🤷🏼‍♀️
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Find a great pair for yourself if you don’t already have one and don’t be afraid to tie those tshirts up!✌🏻
What bag? 🎒✨ • Some of you may have already seen this in my story but I wanted to share again so that someone stopping by later on knew that ostomy fashion isn’t so bad after all☝🏻 • I will say a good pair of high waisted yoga pants is a girls best friend (bag or no bag)👌🏻 my go-to ones during ostomy life have been a pair from lululemon. They are nice and thick and hold everything in place almost as if I was wearing a support belt ✔️ • The only downside I’ve noticed with wearing snug pants is the the top edges (stitching) of the bag (coloplast two piece) are pressed against my skin and sometimes that can get a little itchy. If I feel it coming on, I’ll usually just tuck my shirt in a bit to create a barrier or just use a little athletics tape around the edges. Simple enough 🤷🏼‍♀️ • Find a great pair for yourself if you don’t already have one and don’t be afraid to tie those tshirts up!✌🏻
Omg another workout selfie?!? Ahhhhh!!!! Glutes, shoulders & Hams today .... but let’s be real everyday is glute day 🤔😏💪🏼 For Glutes/Hams  I did frogs on the smith machine, leg raises, bent over lunges & good mornings 
Shoulders was dumbbell Y press/front raises, smith machine press & lateral raises 💪🏼
Omg another workout selfie?!? Ahhhhh!!!! Glutes, shoulders & Hams today .... but let’s be real everyday is glute day 🤔😏💪🏼 For Glutes/Hams I did frogs on the smith machine, leg raises, bent over lunges & good mornings Shoulders was dumbbell Y press/front raises, smith machine press & lateral raises 💪🏼
A few of our 420 support group patient meetings and 420 support group  @baronsconfections farm day's 😍😍😍😍. This month will be the 15th month since I started the first #420supportgroup meeting 👫👬👭. Thank you All for helping make it what it is today 🙏🙏. #boneprone201 #420supportgroup #pouchitis #autoimmune #jpouch #crohnsdiease #bipolor #osteoarthritis #osteoporosis
STS selfies with some of my closest friends!
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Today was an incredibly, powerful day (despite the weather)! So grateful for these relationships and to have such inspirational people locking arms with me to build a bigger and better future for ourselves and our community.
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Can’t wait to see what 2018 has for us! 💎❤️
STS selfies with some of my closest friends! . Today was an incredibly, powerful day (despite the weather)! So grateful for these relationships and to have such inspirational people locking arms with me to build a bigger and better future for ourselves and our community. . Can’t wait to see what 2018 has for us! 💎❤️
Everyone meet @rebeccaweiner_ ! ⭐️ A a small, but mighty, Crohn’s warrior. 💪🏻Read her story below! 💜 Show her support in the comments below 💌 and give her a follow!
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Hi! I’m Rebecca and I’m 19. I was diagnosed with Crohn’s in 2007 and have been through it all. I recently had surgery this August, which has helped me to feel a lot better. Art, a positive attitude and supportive friends/family have gotten me through this journey.
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#crohnsdisease #crohnswarrior #crohnsawareness #spoonielife #spoonie #ulcerativecolitis #crohnsandcolitis #survivor #warrior #toughgal #staystrong #positivity #ostomy #jpouch #surgery #healthiswealth
Everyone meet @rebeccaweiner_ ! ⭐️ A a small, but mighty, Crohn’s warrior. 💪🏻Read her story below! 💜 Show her support in the comments below 💌 and give her a follow! . Hi! I’m Rebecca and I’m 19. I was diagnosed with Crohn’s in 2007 and have been through it all. I recently had surgery this August, which has helped me to feel a lot better. Art, a positive attitude and supportive friends/family have gotten me through this journey. . #crohnsdisease  #crohnswarrior  #crohnsawareness  #spoonielife  #spoonie  #ulcerativecolitis  #crohnsandcolitis  #survivor  #warrior  #toughgal  #staystrong  #positivity  #ostomy  #jpouch  #surgery  #healthiswealth 
Never apologize for being an ambitious, confident and strong minded woman.
💋💎
Never apologize for being an ambitious, confident and strong minded woman. 💋💎
Thankful this Christmas season is different than my last three.
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Christmas of 2014 I had not yet been diagnosed with ulcerative colitis, but was in a full blown flare. I remember feeling so weak the entire day and falling asleep on the couch for a couple of hours while all my family was over.
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Christmas of 2015 I was feeling much better, but was starting to see some nasty side effects of Remicade. I had horrible sores all over my face and felt so insecure because of it. I don’t think we took a single photo that year.
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Christmas of 2016 was a rough one as well. I was in a horrible flare. I’d been in Entyvio for one month at that point and was seeing absolutely no improvement. Christmas morning we went to my parents to have breakfast and exchange gifts and I fell asleep in a chair as soon as we got done eating. I remember thinking I wanted to sleep the rest of the day. Instead I plastered on a happy face and took the maximum amount of Imodium I could every few hours. I made it through the day, but we left Christmas dinner at my in-laws early because I was having some serious abdominal pain.
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This Christmas will also be different. We have to leave for Mayo Clinic around noon on Christmas Day because I have to be at the hospital at 5:30am on the 26. Sure, it’s a bummer to not get to spend all day at home, but on the bright side I get the best gift of all- a spiffy J Pouch and a light at the end of this long, tiring, and depressing UC tunnel.
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Hope you all have Merry Christmas and feel your very best! We got this! 💪🏼💩🎄
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#ulcerativecolitis #nocolonstillrollin #uc #inflammatoryboweldisease #ibd #gutitout #lifetakesguts #mayoclinic #colorectalsurgery #ostomy #ostomate #ileostomy #girlswithguts #coloplast #jpouch #jpouchlife #mayoclinic #colectomy #chronicillness #invisibleillness #notalldisabilitiesarevisible #spoonie #scars #christmas #crohnsandcolitisawarenessweek #crohnsandcolitisawareness #laparoscopicsurgery #roboticsurgery
Thankful this Christmas season is different than my last three. • Christmas of 2014 I had not yet been diagnosed with ulcerative colitis, but was in a full blown flare. I remember feeling so weak the entire day and falling asleep on the couch for a couple of hours while all my family was over. • Christmas of 2015 I was feeling much better, but was starting to see some nasty side effects of Remicade. I had horrible sores all over my face and felt so insecure because of it. I don’t think we took a single photo that year. • Christmas of 2016 was a rough one as well. I was in a horrible flare. I’d been in Entyvio for one month at that point and was seeing absolutely no improvement. Christmas morning we went to my parents to have breakfast and exchange gifts and I fell asleep in a chair as soon as we got done eating. I remember thinking I wanted to sleep the rest of the day. Instead I plastered on a happy face and took the maximum amount of Imodium I could every few hours. I made it through the day, but we left Christmas dinner at my in-laws early because I was having some serious abdominal pain. • This Christmas will also be different. We have to leave for Mayo Clinic around noon on Christmas Day because I have to be at the hospital at 5:30am on the 26. Sure, it’s a bummer to not get to spend all day at home, but on the bright side I get the best gift of all- a spiffy J Pouch and a light at the end of this long, tiring, and depressing UC tunnel. • Hope you all have Merry Christmas and feel your very best! We got this! 💪🏼💩🎄 • • • #ulcerativecolitis  #nocolonstillrollin  #uc  #inflammatoryboweldisease  #ibd  #gutitout  #lifetakesguts  #mayoclinic  #colorectalsurgery  #ostomy  #ostomate  #ileostomy  #girlswithguts  #coloplast  #jpouch  #jpouchlife  #mayoclinic  #colectomy  #chronicillness  #invisibleillness  #notalldisabilitiesarevisible  #spoonie  #scars  #christmas  #crohnsandcolitisawarenessweek  #crohnsandcolitisawareness  #laparoscopicsurgery  #roboticsurgery 
In addition to getting the go ahead for my last surgery, my surgeon also walked me through what type of follow up I’ll require after this process is done 🗓✔️
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Because there is a very tiny (we are talking millimeters) portion of my rectum left, which my jpouch is attached to, I need to have biopsies done annually for the rest of my life (keep an eye out for signs of the disease/precancerous cells). In addition, she said it’s usually best for the surgeon who performed your procedures to do the biopsies because it can be difficult to identify that small portion of the rectum (especially if you weren’t the one who created the jpouch). Lastly, she said once you have these surgeries, your surgeon really becomes your main doctor when it comes to your IBD and any symptoms that may arise▪️
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So what does that mean? It means I get to have scopes/biopsies done forever (literally). It would be no different though than if I had kept my colon as after 10 years of having IBD you are required to have annual colonoscopies 🤷🏼‍♀️ Also, I get to see my surgeon and her team EVERY YEAR at a minimum (assuming she continues to be in network for me) 🙌🏻 For those of you who have been following me for a little bit, you know that I was starting to feel sad that maybe I wouldn’t need to see them as often and would instead just see my regular local GI. Instead, it looks like we will have an annual trip to Cleveland (I don’t hate it)👌🏻
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One week guys. This time next week I’ll probably be snuggled up in my hospital bed with my bowels trying to figure out what heck is going on. I’m ready 💪🏻
In addition to getting the go ahead for my last surgery, my surgeon also walked me through what type of follow up I’ll require after this process is done 🗓✔️ • Because there is a very tiny (we are talking millimeters) portion of my rectum left, which my jpouch is attached to, I need to have biopsies done annually for the rest of my life (keep an eye out for signs of the disease/precancerous cells). In addition, she said it’s usually best for the surgeon who performed your procedures to do the biopsies because it can be difficult to identify that small portion of the rectum (especially if you weren’t the one who created the jpouch). Lastly, she said once you have these surgeries, your surgeon really becomes your main doctor when it comes to your IBD and any symptoms that may arise▪️ • So what does that mean? It means I get to have scopes/biopsies done forever (literally). It would be no different though than if I had kept my colon as after 10 years of having IBD you are required to have annual colonoscopies 🤷🏼‍♀️ Also, I get to see my surgeon and her team EVERY YEAR at a minimum (assuming she continues to be in network for me) 🙌🏻 For those of you who have been following me for a little bit, you know that I was starting to feel sad that maybe I wouldn’t need to see them as often and would instead just see my regular local GI. Instead, it looks like we will have an annual trip to Cleveland (I don’t hate it)👌🏻 • One week guys. This time next week I’ll probably be snuggled up in my hospital bed with my bowels trying to figure out what heck is going on. I’m ready 💪🏻
The 💚 of my life = training. The gym is my sanctuary. Keeping as fit and healthy as possible has been fundamental in my recovery.  #gymlife
The 💚 of my life = training. The gym is my sanctuary. Keeping as fit and healthy as possible has been fundamental in my recovery. #gymlife 
Getting better at bag changes. Yes the red thing sticking out of my stomach is my small intestine (it’s called a stoma). It has no feeling/pain when you touch it. Can’t wait to get these staples out 😭. Also I realize this might gross some people out but this is the reality of someone with IBD so if you have any negative comments about this just unfollow. 👍☺️
Getting better at bag changes. Yes the red thing sticking out of my stomach is my small intestine (it’s called a stoma). It has no feeling/pain when you touch it. Can’t wait to get these staples out 😭. Also I realize this might gross some people out but this is the reality of someone with IBD so if you have any negative comments about this just unfollow. 👍☺️
I am completely overwhelmed that there is over 3,000 people following my journey. I have learned so, so much from the stories I have been told, advice I have been given, and support I have received from this community. Every single day I am inspired by the strength and grace of those fighting some of the hardest battles. All that I hoped when starting this account was to share my story in hopes that it would both help and inspire at least one person along the way, but I have gained so much more than that. I hope to continue to raise awareness for Inflammatory Bowel Disease and chronic illnesses so that we can start finding true CURES!
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“Darkness cannot drive out darkness: only light can do that.” Be the light ☀️
I am completely overwhelmed that there is over 3,000 people following my journey. I have learned so, so much from the stories I have been told, advice I have been given, and support I have received from this community. Every single day I am inspired by the strength and grace of those fighting some of the hardest battles. All that I hoped when starting this account was to share my story in hopes that it would both help and inspire at least one person along the way, but I have gained so much more than that. I hope to continue to raise awareness for Inflammatory Bowel Disease and chronic illnesses so that we can start finding true CURES! ______ “Darkness cannot drive out darkness: only light can do that.” Be the light ☀️
Have you heard? We've launched some new #ibdcantstopme tech gear, and put a massive closeout on the original swag. And, we've still got a 10% off all the ibd awareness things through this sunday! Use code ASKME2017 at checkout, ibdawareness dot bigcartel dot com. The more #ibd conversations we start, the better awareness for us all. 
#crohns #colitis #ibdawarenessweek #ibdawareness #shirtsforacause #starttheconversation #awarenessarmy #askmeaboutmyIBD #askme #ostomy #ostomyawareness #jpouch #jpouchpower
Have you heard? We've launched some new #ibdcantstopme  tech gear, and put a massive closeout on the original swag. And, we've still got a 10% off all the ibd awareness things through this sunday! Use code ASKME2017 at checkout, ibdawareness dot bigcartel dot com. The more #ibd  conversations we start, the better awareness for us all. #crohns  #colitis  #ibdawarenessweek  #ibdawareness  #shirtsforacause  #starttheconversation  #awarenessarmy  #askmeaboutmyIBD  #askme  #ostomy  #ostomyawareness  #jpouch  #jpouchpower