Forever humbled by the struggles and stigmas faced by the leprosy patients I saw over the last month at the Marie Adelaide Leprosy Centre and Aga Khan University in Karachi, Sindh, Pakistan.
Leprosy is a mildly contagious disease that can prove to be incredibly disfiguring for those with advanced stages of the disease or those who remain untreated. Since ancient and biblical times, leprosy patients have faced immense amounts of stigma, discrimination and forced isolation and separation from their communities and families as they were historically placed into "leper colonies" and forced to beg in order to survive.
The Centre (originally known as the McLeod Road Leper Colony) which continues to provide free treatment is a legacy left behind by Dr. Ruth Pfau, an inspiring German nun who devoted her entire life to eradicating leprosy from Pakistan. Thankfully today the word "leper" is considered to be offensive and has fallen into disuse. #leprosy#karachi#pakistan
Edem is a farmer, growing maize, corn and other crops. However, since being diagnosed with leprosy farming has not been easy for him. The sand and soil often gets into the ulcers on his feet, making walking difficult. Unfortunately, leprosy has also affected Edem's eyes, and he has become blind in one eye.
Thanks to you, Edem has regained his independence after being given crutches and a wheelchair at Chanchaga Orthopaedic Workshop in Nigeria. #leprosy#Nigeria
This was built in 1916 for the children of the leprosy patients. At first starting at 6months old and later right after birth, the children had to be isolated from their parents and taken care in nursery to prevent contamination of the disease. The parents could visit their children during weekends by seeing them through a glass window.
So this is my second time doing a different chemical peel. I usually do TCA about every 5 weeks. I tried a new one they call The Advanced Peel. I will say it’s not for someone with low pain tolerance. They cannot can you do the peel burns. And it builds and it has to sit. But look at my face! I did it yesterday. This peel brings out the sun damage and melasma from within. The other sort of sloughs it off. I am excited to see how I look after this second one because I saw SO MUCH improvement from just one. More than all my TCA’s. This is definitely a good one! #spatrouvé#wearsunscreen#always#oldladyproblems#mormonmom#lds#utah#detroit#leprosy#itaintpretty#ketomom
#throwback to 2007.
When I first moved to Southwest PA at 18 I joined Pittsburgh’s Leprosy. While I was only in the band for a short amount of time, it was fun as hell and I made some life time friends and gained a few new brothers.
E aí, gente! Tudo bem?! Hoje estou aqui para falar de um assunto MUITO importante: o Janeiro Roxo!
Depois do outubro rosa, novembro azul e dezembro laranja, não podemos deixar de apoiar o Janeiro Roxo! Você sabe do que se trata?
É uma campanha do Ministério da Saúde e associações médicas com propósito de combater a Hanseníase . Antigamente chamada de Lepra, é uma doença infecciosa causada por uma micobactéria chamada Mycobacterium leprae ou bacilo de Hansen ao qual cerca de 90% da população tem capacidade imune natural. Ela é transmitida pelo contato com secreção oral e respiratória de indivíduos infectados. Mas esse contato precisa ser íntimo e prolongado. Existem diversas manifestações clínicas da doença que vão desde manchas no corpo que variam em número e tamanho, podendo ou não, ter alterações na sensibilidade, na sudorese e na distribuição dos pelos até nódulos ou uma pele difusamente espessa e até o acometimento de um nervo isoladamente. O mais importante a ressaltar é o potencial de incapacidade de uma doença tão silenciosa. Dessa forma, a melhor forma de prevenção é o diagnóstico precoce e o tratamento adequado! A medicação é fornecida pelo SUS!
Diagnóstico precoce, tratamento adequado são importante para controle da disseminação da doença e prevenção de incapacidades! Eu apoio Janeiro roxo!
Champa was just 9 years old when she was diagnosed with #leprosy , luckily she was found by one our our community champions when Champa came forward from the crowd and asked to be examined. Because she was found early and given multi-drug therapy she will have no permanent #disabilities . Champa now hopes to become a doctor to help people in the village when she grows up “I could help my friends at school if they have a patch like me”
“In Havana they have it real hard. The hospital some blocks down from where I was staying specializes in Leprosy. That’s some biblical shit right there ain’t it? It was appalling to me this still exists! I would speak with doctors when walking past, on my way to the Sea. I would walk so much, trying to rid these dual thinkings and feelings, always hoping, “Maybe someone will find me. Maybe I can help. Maybe... Maybe I’ll stay and become a doctor too.” My neighbors child had a bug bite that had gotten infected because she wasn’t able to get the proper treatment. I remember kneeling to her and smiling as I wrapped a piece of indigo dyed cloth around her infected finger, kissing her on the forehead while telling her, “Es ok” and you know what? She believed me. I guess I am part doctor come to think about it... And as I remember that child now, I remember why I gravitate towards kids and animals. I don’t have to second guess them. I don’t have to decode, dissect the language. I don’t have to read more into what they say or do because what they say and/or do is what it is. Sometimes I envy this type of directness, although I find myself to be similar, I can also suppress. Suppress thoughts and feelings due to fear of what may happen or what you may think. I don’t suppress as much as I used to and in Cuba, I had let go fully to the point of outer spacing. But the kids don’t mind that and neither do the animals. The kids and animals love letting go because now you’re speaking their language.”
Words from the piece I‘ve been writing and getting together...
My time spent in Cuba.
The most effective way to break the cycle of poverty and the stigma associated with having a family member afflicted with leprosy is by gaining an education. The school at Rising Star educates (pre-K through 12) 300 students, 240 of those students board at the school year around. The majority of the students come from leprosy colonies. #eradicatepoverty#dignity#india#leprosy#risingstaroutreach#rsoexpeditions
On the left side, you see the manager, Mr. Mukesh Sharma, together with a patient of the Rotary SMK Leprosy & TB Care Centre near Jaipur, India. The Care Centre was established in 1997 and houses all kind of disabled people. Mr. Sharma is a beautiful soul with a huge heart and a great sense of humour. I feel honoured to spent one day with him and his team - Mario. #dahw#glra#leprosy#india#storyportrait#inspiration#grateful#namaste