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This is not the complete video as Instagram only likes to show 60 seconds and it comes in at 2 minutes and 30 seconds total. But if you go to the link in my profile and visit the blog today you can see the whole beautiful thing, third post down on the blog.

#downrightperfect #dsdn #changethefaceofbeauty #upsyndrome #homiewithanextrachromie #cutebaby #babiesofig #instababies #nothingdownaboutit #lifeisbetterwithyou #t21 #downsyndromeawareness
It's that time of year again.  It's always magical when I have this little guy to decorate the tree with 🌲 
#christmastree #decorations #christmas #helping #downsyndromeawareness #trisomy21 #lifeisbetterwithyou #abeautifillife #fairylights #xmas #magical #santaclausiscomingtotown
• Cuore in arresto, favorisca i sentimenti. 🔗♥️🔐 #duematti #lifeisbetterwithyou #crazyinlove
Oooh so Thankful✨💙😌 @coincidence_ithinknot #sothankful #travellife #bestie #lifeisbetterwithyou #medicinetribe
No one else I’d rather be flying down these hills with! ❄️⛰😁❤️
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#snowboardinglife #breck #prayforsnow #epic #jumppic #lifeisbetterwithyou #myfriendsarecoolerthanyourfriends #friendsarefamily #thankfulforyou
Wahoooo! She screamed down the phone. And then she packed these all away and removed the last sticky tabs off my face. .
For now, I breathe oxygen just the same way as everyone else... No more o2 at night time! (FOR NOW, in the future I may need it again).
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#NoMoreOxygenTherapy #ForNow #FreeOfTubes #TheyWillStillMonitorMe #OtherwiseTheyWouldMissMe #OxygenTherapy #Respiratory #RespiratoryTeam #LCCH
I’m so grateful for all of the wonderful people I have gotten to know this past year.  Tag someone you are grateful for! Happy Thanksgiving Everyone 🦃💜
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#turkeyday #begrateful #thanksgiving #tagafriend #cheers #happythanksgiving #lifeisbetterwithyou
I am excited about Thanksgiving! We celebrated at our house today! It was very enjoyable and yummy! And @dellchy17 joined us! Tomorrow, the celebration continues... 🍁🍊🌽
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#eliasboden #eliasthemodel #cutenessoverload #mylittleman #drooler #bib #fearfullyandwonderfullymade #sweet #smile #winterstribe #favoriteshop #kidsofinsta #kidfashion #distressedjeans #farmfreshdenim #howdoyoufarmfresh #modeling #brandrep #nothingdownaboutit #trisomy21 #downsyndromerocks #downsyndrome #downsyndromeawareness #love #changingtheworld #lifeisbetterwithyou #changingthefaceofbeauty
I am excited about Thanksgiving! We celebrated at our house today! It was very enjoyable and yummy! And @dellchy17 joined us! Tomorrow, the celebration continues... 🍁🍊🌽 . #eliasboden  #eliasthemodel  #cutenessoverload  #mylittleman  #drooler  #bib  #fearfullyandwonderfullymade  #sweet  #smile  #winterstribe  #favoriteshop  #kidsofinsta  #kidfashion  #distressedjeans  #farmfreshdenim  #howdoyoufarmfresh  #modeling  #brandrep  #nothingdownaboutit  #trisomy21  #downsyndromerocks  #downsyndrome  #downsyndromeawareness  #love  #changingtheworld  #lifeisbetterwithyou  #changingthefaceofbeauty 
We saw #coco tonight and loved it!! Ellie watched big brother record his movie review for his YouTube channel and she insisted on doing her own 😂
We saw #coco  tonight and loved it!! Ellie watched big brother record his movie review for his YouTube channel and she insisted on doing her own 😂
Everly failed a few of her breathing test last night and today so they are waiting to extubate her. We are going to start talking with the doctors outside of her room because if she hears their plan she always throws them a curve ball. ⚾️ If you have been praying for Everly, we ask that you specifically ask for her to pass her next few breathing tests so that her Drs feel confident in removing her breathing tube. Getting her breathing tube out is really the next big step in her recovery. The rest of her stats and numbers are looking great. .
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I can't tell you all how blessed we feel to have so many of you rooting Everly on. ✊🏼 Your comments, messages, and prayers are truly appreciated. We feel so blessed to have such an amazing support system. If you are reading this, thank YOU for caring about our girl! 💕 .
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Also, thank you @sarahannec for the cutest bow ever from @modernpiggy! I am obsessed!
Everly failed a few of her breathing test last night and today so they are waiting to extubate her. We are going to start talking with the doctors outside of her room because if she hears their plan she always throws them a curve ball. ⚾️ If you have been praying for Everly, we ask that you specifically ask for her to pass her next few breathing tests so that her Drs feel confident in removing her breathing tube. Getting her breathing tube out is really the next big step in her recovery. The rest of her stats and numbers are looking great. . . I can't tell you all how blessed we feel to have so many of you rooting Everly on. ✊🏼 Your comments, messages, and prayers are truly appreciated. We feel so blessed to have such an amazing support system. If you are reading this, thank YOU for caring about our girl! 💕 . . Also, thank you @sarahannec for the cutest bow ever from @modernpiggy! I am obsessed!
She’s home. And she’s the proud new owner of the cutest little Gtube you ever did see. She rocked her surgery with no complications and was sent home in just over 24 hours - our shortest stay yet!! Excuse me while I spend the next week kissing those insanely sweet tube free cheeks 😍 #sothankful #hazelgrey #hazelthegreat #gtubebaby #lifeisbetterwithyou #theluckyfew
She’s home. And she’s the proud new owner of the cutest little Gtube you ever did see. She rocked her surgery with no complications and was sent home in just over 24 hours - our shortest stay yet!! Excuse me while I spend the next week kissing those insanely sweet tube free cheeks 😍 #sothankful  #hazelgrey  #hazelthegreat  #gtubebaby  #lifeisbetterwithyou  #theluckyfew 
"Xavi-Thiago is 13 months old and a perfect little child. He is doing great! He loves to play, and his smile makes everybody happy! We didn't know that Xavi had Down Syndrome during the pregnancy and when he was born, it was a bit of a shock. I didn't know what to do. Day by day I learnt to love him, and now I think he is very special. My sweet child. Xavi is my biggest blessing." 💙💛✨ @s.adriana_mx #enableawareness #downsyndromeawareness #theluckyfew
"Xavi-Thiago is 13 months old and a perfect little child. He is doing great! He loves to play, and his smile makes everybody happy! We didn't know that Xavi had Down Syndrome during the pregnancy and when he was born, it was a bit of a shock. I didn't know what to do. Day by day I learnt to love him, and now I think he is very special. My sweet child. Xavi is my biggest blessing." 💙💛✨ @s.adriana_mx #enableawareness  #downsyndromeawareness  #theluckyfew 
Life has been crazy the last few months. I’m going down a road I always told myself I never would and to be honest it really sucks. Life has a way of keeping you on your toes. Everything I do is for this little guy. He makes this time in my life worth it. I see him and I remember why I’m doing what I’m doing. As hard as it is sometimes, I will never stop fighting for him. He is my world. He is the reason for my existence. He is who I am. I see this cute face, give him a big squeeze and all my worries seem to disappear for a minute. I feel as if everything will be okay. I am so grateful for Baylor and the spirit he brings into my life. He fills my life with so much joy.
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#thisislife #lifecanbehard #butitsokay #heisincontrol #joy #mamalife #babylife #findjoy #lookforthegood #lookforblessings #everyday #findpeace #lifeisbetterwithyou #blessed #betterwithbaylor #baylorsbuddies #iloveyou
Life has been crazy the last few months. I’m going down a road I always told myself I never would and to be honest it really sucks. Life has a way of keeping you on your toes. Everything I do is for this little guy. He makes this time in my life worth it. I see him and I remember why I’m doing what I’m doing. As hard as it is sometimes, I will never stop fighting for him. He is my world. He is the reason for my existence. He is who I am. I see this cute face, give him a big squeeze and all my worries seem to disappear for a minute. I feel as if everything will be okay. I am so grateful for Baylor and the spirit he brings into my life. He fills my life with so much joy. • • • • • • #thisislife  #lifecanbehard  #butitsokay  #heisincontrol  #joy  #mamalife  #babylife  #findjoy  #lookforthegood  #lookforblessings  #everyday  #findpeace  #lifeisbetterwithyou  #blessed  #betterwithbaylor  #baylorsbuddies  #iloveyou 
Penelope finally got her wish and now lives in Elmo's World!  #happydance #elmo #nothingdownaboutit #theluckyfew #t21 #upsyndrome #downsyndrome #lifeisbetterwithyou
Did you know that ALL ages can design a mug?! Harley designed an extra special mug for his grandma today. ❤️
Did you know that ALL ages can design a mug?! Harley designed an extra special mug for his grandma today. ❤️
When it’s windy, you live around big great trees and you all need to get outside, because there’s no school...Padilla bay is perfect!
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#padillabay #skagitmagic #doubledownmomma #lifeisbetterwithyou 
#tagyoureit #dropandflop #puddle
Though Thanksgiving isn't until tomorrow, I just wanted to take time to thank some special people in my life today. As I sit back and reflect on where I was a year ago today, I wouldn't believe it had I not lived it. I was nowhere near walking, shucks I was barely standing. Words were limited to sounds rather than actual words, thank goodness for sign language!! And any and all arts and crafts projects made me run the other way. But here we are a year later and I am humbled at how much has changed thanks to all the amazing therapists that have worked with me week after week, encouraging me to keep pushing myself. To my speech therapist, physical therapist, occupational therapist and horse therapists, thank you for getting me to where I am today so that I can succeed at anything and all I set my mind to. #thankful #blessed #grateful
Though Thanksgiving isn't until tomorrow, I just wanted to take time to thank some special people in my life today. As I sit back and reflect on where I was a year ago today, I wouldn't believe it had I not lived it. I was nowhere near walking, shucks I was barely standing. Words were limited to sounds rather than actual words, thank goodness for sign language!! And any and all arts and crafts projects made me run the other way. But here we are a year later and I am humbled at how much has changed thanks to all the amazing therapists that have worked with me week after week, encouraging me to keep pushing myself. To my speech therapist, physical therapist, occupational therapist and horse therapists, thank you for getting me to where I am today so that I can succeed at anything and all I set my mind to. #thankful  #blessed  #grateful 
That time she fell asleep on the way to Target and I was too excited to shop to sit in the car until she woke up #itsokayshelovestargettoo #dailydoseofhannahbanana #hannahbanana #lifewithhannahbanana #downsyndromebeauty #theluckyfew #dsacceptance #lifeisbetterwithyou #dsmomma #lifewithhannahbymyside
"Life is like a game of chess. To win you have to make a move. Knowing which move to make comes with IN-SIGHT and knowledge, and by learning the lessons that are acculated along the way. We become each and every piece within the game called life." ~Allan Rufus
"Life is like a game of chess. To win you have to make a move. Knowing which move to make comes with IN-SIGHT and knowledge, and by learning the lessons that are acculated along the way. We become each and every piece within the game called life." ~Allan Rufus
The days of fear and worry are less and less. Some may move through this process more quickly and some never quite make it to the other side. I am thankful that you have changed me. Gretchen you gave me purpose. Not that being Grady’s mother or Cody’s wife wasn’t enough. I have just always known. That I was meant for more. That I was meant to make a difference. And because of you and that beautiful extra chromosome my life has found purpose. #gretchenannefarmer #youcompleteme #lifeisbetterwithyou #changingthefaceofbeauty #morealikethandifferent #nothingdownaboutit #mymagiciscontagious #downsyndrome #handmade #fashionista #toddler #toddlerfashion #mygirl #pigtails #theluckyfew
The days of fear and worry are less and less. Some may move through this process more quickly and some never quite make it to the other side. I am thankful that you have changed me. Gretchen you gave me purpose. Not that being Grady’s mother or Cody’s wife wasn’t enough. I have just always known. That I was meant for more. That I was meant to make a difference. And because of you and that beautiful extra chromosome my life has found purpose. #gretchenannefarmer  #youcompleteme  #lifeisbetterwithyou  #changingthefaceofbeauty  #morealikethandifferent  #nothingdownaboutit  #mymagiciscontagious  #downsyndrome  #handmade  #fashionista  #toddler  #toddlerfashion  #mygirl  #pigtails  #theluckyfew 
#Repost @tenbazaars -  This outfit was made for this sweet boy Levi! He IS going to move mountains and is already moving hearts ❤ Such a gorgeous little guy and so so loved by his proud momma. We love having this opportunity to help spread awareness for Downsyndrome and embracing children like Levi for the beautiful, loving little people they are 💕 
This kid will definately move mountains!!! 😍
outfit by @tenbazaars ( #📷 @downrightbeautiful_levi )

#fashion #slogan #logo #babysofinsta #cute #outfit #goals #downsyndome #dsdn #downrightperfect #downsyndromeawareness #changingthefaceofbeauty #morealikethandifferent #LIFEisbetterwithyou #t21 #team21 #babyboy #proudmom #cutie #justbaby #sharegoodness #momtobe #mommyprince #brandrep #ootdbaby #candidchildhood #thehappynow #childhoodunplugged
#Repost  @tenbazaars - This outfit was made for this sweet boy Levi! He IS going to move mountains and is already moving hearts ❤ Such a gorgeous little guy and so so loved by his proud momma. We love having this opportunity to help spread awareness for Downsyndrome and embracing children like Levi for the beautiful, loving little people they are 💕 This kid will definately move mountains!!! 😍 outfit by @tenbazaars ( #📷 @downrightbeautiful_levi ) #fashion  #slogan  #logo  #babysofinsta  #cute  #outfit  #goals  #downsyndome  #dsdn  #downrightperfect  #downsyndromeawareness  #changingthefaceofbeauty  #morealikethandifferent  #LIFEisbetterwithyou  #t21  #team21  #babyboy  #proudmom  #cutie  #justbaby  #sharegoodness  #momtobe  #mommyprince  #brandrep  #ootdbaby  #candidchildhood  #thehappynow  #childhoodunplugged 
Always take the Scenic Route!
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Sometimes the most scenic roads in life are the detours you didn't mean to take 💙💛
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#tb🔙#maui#hawaii#hyattmaui#theluckyfew#nothingdownaboutit#morealikethandifferent#lifeisbetterwithyou#savedownsyndrome#designergenes
Just left sunshine in the OR! T&A time!
Just left sunshine in the OR! T&A time!
Someone got new glasses today 👓❤️ I think she likes them 😉 #KenleysKrew #Glasses #ShesCute #LoveHer #TheLuckyFew #DownSyndrome 💙💛 #LIFEisbetterwithyou #Blessed #Grateful #CHD #MendedHearts #ZipperClub #MoreAlikeThanDifferent💙💛
simple perfection ❤️
simple perfection ❤️
Having fun with my cousin Elizabeth❤️We're suppose to be helping😬#lifeisbetterwithyou #thanksgiving #cousins #fallfun #beauty
Cheers to a lifetime of adventure by your side my love @gibbensrobert ❤️😍❤️ #grateful #dailyinspiration #mylove #mybestfriend #myrock #love #lifeisbetterwithyou
Missing that nice fall weather we were having. Back in the 90s this week 😒#noahsbigadventure #bean #morealikethandifferent #brothers #lifeisbetterwithyou #downsyndromelove #t21 #dsdn #theluckyfew
A brotherly love throwback to earlier in the summer, when we were hanging out with our youngest brother, Richard! Jez and Richard were born exactly 2 years and 1 day apart and growing up they seemed more like twins, than not, even sharing a birthday for a few years. Richard is the youngest and he couldn't understand why he had to wait a whole day for cake and balloons!

Because of them being so close in age Jez finds it really hard to not compare himself to Richard, and wants to achieve everything Richard does. It can be hard to explain, but we've muddled through Richard learning to drive, going to uni and getting a girlfriend (who is amazing, and puts up with jez's idea that she is a shared gf!!). But occasionally jez remembers he hasn't quite achieved everything Richard has and it really bothers him, so we work hard to celebrate his achievements, luckily Richard hasn't left uni and thus got a job yet, so Jez is ahead with that one!! All the same, Richard is a massively important part of Jez's life and even from Edinburgh, they speak every day. Impressive, when you have finals looming. 😊
A brotherly love throwback to earlier in the summer, when we were hanging out with our youngest brother, Richard! Jez and Richard were born exactly 2 years and 1 day apart and growing up they seemed more like twins, than not, even sharing a birthday for a few years. Richard is the youngest and he couldn't understand why he had to wait a whole day for cake and balloons! Because of them being so close in age Jez finds it really hard to not compare himself to Richard, and wants to achieve everything Richard does. It can be hard to explain, but we've muddled through Richard learning to drive, going to uni and getting a girlfriend (who is amazing, and puts up with jez's idea that she is a shared gf!!). But occasionally jez remembers he hasn't quite achieved everything Richard has and it really bothers him, so we work hard to celebrate his achievements, luckily Richard hasn't left uni and thus got a job yet, so Jez is ahead with that one!! All the same, Richard is a massively important part of Jez's life and even from Edinburgh, they speak every day. Impressive, when you have finals looming. 😊
Got places to go, people to see
Got places to go, people to see
Tomorrow you, my precious Nixin will be 1.. I'm so grateful for you. 
#lifeisbetterwithyou #theluckyfew
Breakfast at the lodge! #lifeisbetterwithyou #familytime
I get to marry this man! He makes my heart burst with happiness and laughter and love! #thanksgiving #birdsofafeather #lifeisbetterwithyou