Today didn’t go as well as we would have hoped. Sadly Emma did not pass her swallow study. She aspirated the pudding thick food which we were hoping she would be able to eat by mouth again. The good news is that she had a cough when she aspirated which means she is realizing it’s happening which doesn’t happen with liquids. So we are hopeful that once she regains her energy and stamina that she will be able to pass the test next time which for now will be in about another year or if she seems to regain some of her functions. So at this point to keep Emma as healthy as possible she is to have nothing by mouth. Hard to see happen but her health is our number one priority. #embracelifeemma#lissencephaly#epilepsy#aspirating#lifesaclimb#nevergiveup#smoothisbeautiful
One year ago we made the hardest but best decision for Emma. On this day a year ago Emma got her G-tube because she was silently aspirating on all liquids no matter how thick. Yes I cried for days before and after. But now after seeing how our last 8 months have gone I honestly don’t know what we would have done without it. I believe we would have been living in the hospital. Back in April when she would sleep for over 20 hours we were still able to keep her body hydrated and give her the nutrients we body needed until she could recover from all the seizures. This day saved her life.
Today Emma had an appointment with her neurologist that is over her ketogenic diet. We had a lot to discuss and we all agreed it was time to wean Emma off the diet. After almost 6 months we have seen zero change in her seizures in regards to the diet. She handled it well as far as her body goes with labs, but we are concerned that she’s not adjusting as far as energy goes. She is on a med to help with that by helping her burn the fat as energy but not sure that it’s working for her. Tomorrow we will start the wean and then drop half a ratio every 2 weeks or so depending on how she adjusts each time. We hope that we start to see glimpses of our Emma return as we start to wean and we hope her body handles it well. Praying that we made the right decision. These decisions and choices are so hard for me and Brandon to make, but we leap together and pray it’s right. Please pray with us. On a side note cutest little bunny right?!?!?! #lissencephaly#embracelifeemma#smoothisbeautiful#epilepsy#anothernewnormal#hatethesedecisions#praying#lifesaclimb#cbd#faceofcannabis
“Life’s a climb, but the view is great”✨ Sometimes when we’re facing challenges in our lives (whether it’s school, relationships, mental health, or anything else), it can be difficult to imagine the wonderful things waiting ahead of us. This week, focus on something you’ve been struggling with and look at it from a positive perspective! What’s waiting for you at the end will be worth it😊 #wellnesswednesday
It's crazy how fast life changes. One day it's one way and you wake up and it's a whole new story. But nothing worse than staying stuck somewhere you don't belong. Life can throw some crazy things at you, but sometimes your world has to be shaken up , changed , and rearranged to relocate us to the place we're meant to be . #feelingood#sickbutstillgoing#lifesaclimb#mondayvibes#selfienation
It's not how you fell, what you struggled with or the time it took to get there. It's about how you overcame the roadblocks that will make the ending result that much SWEETER! @katietietchen_ I'm beyond impressed with your drive and determination. Keep getting better bc you are UNSTOPPABLE!!! 💙🐾🖤#bulldognation#selftaughttumbler#kickbutt#lifesaclimb
From laughs to cries to frustrations and joy! My friend @tanetka_m you're getting married TOMORROW! You're going to be one of the most beautiful brides I will ever see! From brunette to blonde you're still the same funny best friend a girl could ask for with the best craziest dance moves! Today's your last day as Miss and you'll be Mrs. I'm so excited to be a part of this amazing journey with you! I still can't tell you what an answer to prayer you've been in my life! Here's to calling you Mrs Yaremkiv! One more day!!!!! I love you!!!!!!
#weddingvibes#family#gettinhitched 👰🏼 #misstomrs#mrsyaremkiv#friendsforever#newseason#lifesaclimb#theviewisgreat#imgonnacrymyfaceoff
This cutie is happy to report that her ears are looking great! They still have some fluid which is to be expected at this point but there is no infection 🤗. We will follow up again in two weeks just to be sure. But we are so excited to get Emma back to her old self. Prayers that it happens soon we really miss her smiles and her laugh. Overall I am so happy with how Emma is now responding to us with her eyes again. She’s not just looking through us like before. Her eyes engage with you and track again it’s awesome. We feel we are on the right track thank you CBD oil 💜🌷 #embracelifeemma#epilepsy#lissencephaly#cbdoil#progress#gettingbetter#lifesaclimb#prayers
Different kind of #transformationtuesday these photos are taken almost exactly a year apart to the day and in variations of the same outfit. In one picture I thought I was getting married and I thought I knew exactly how my life was going to play out (left 2016) in the other (right 2017) I have been on my own for almost 8 months and still sometimes feel lost and confused. But one thing I know for sure is I am not that girl anymore and I don't know who I'm going to be in another year but I sure as hell not going backwards! #weightlossjourney#workinprogress#loveyourself#lifesaclimb#nevergiveup#neverlookback#weightlosswarrior