I just uploaded a new video! ✨Exciting Deliveries 😄✨
Another not great week physically, but I got a lot of exciting post and I managed to sort out the problems I was having with my doctors about my antiemetic prescription, so it wasn't all bad 😊👍🏻 (link in bio)
It's funny, some days when I read these words in the comments of my posts...I believe you all. I am humbled, grateful and confident. And then there are those days when I read them and wonder how on earth you see, feel and think those things about me. •
I am a life coach for women and many call me crazy for being so open. They warn me that it will negatively impact my income. You know what....maybe it already has but, I don't care. Because I may not be the most successful life coach in the industry (yet). I may not have as many followers as others but, what I do have is my integrity. I have the heart. And I have the willingness to break before you. Does that mean I am incapable of helping others? No. It means that from day one my clients have a deep level of trust and comfort in my presence because they know regardless of the situation...I understand and empathize with where they are in life. •
So, honesty? •
All day I have had this giant lump in my throat whenever I think too much or go to speak. It feels as though I am about to cry but, nothing comes out. I am too tired to cry. I am too frustrated to scream. I am disheartened by many... yet grateful for those who have stuck by me. I do not feel comfortable in my own skin today. Why? Because this body has not felt like it used to and it tends to feel foreign these days. Today, I am tired of trying to be the right kind of sick for others. Today, I am tired...and while it has taken me all day to even begin to get comfortable with all of this...I am trying. For those who have someone in your life going through a difficult season...you don't have to "understand" to show genuine empathy. For those of you who are tired of reading my posts about lyme...please just unfriend me, I won't mind. For those of you sticking by me...thank you. For those of you needing a life coach...please see my heart and know that if there is one thing I can guarantee...it is that I am not just a person behind the words of a post. I am genuine. I am honest. I see you. I hear you. And I care. I will be there...not just for those high moments of success, you see I will be there through it all.
Health update: This has been a tough week y'all.😱😱😱 It started with a still progressively worsening case of #costochondritis (inflammation of cartilage that connects ribs to sternum), which makes it incredibly painful to breathe, swallow and move.😖 Then I had a hard fall on my tailbone, making it even more painful to move.😲 And now I've caught a bad cold with a sore throat making swallowing even worse along with coughing spells that leave me excruciatingly gasping for air and wheezing and stabbing chest pains.😧 O2D2 and I are constant companions again. Since I can't speak my life has turned into a massive game of charades, which is equally exasperating and hilarious.😂 But being "regular people sick" on top of all my crazy #lyme symptoms I deal with every day is agony and I'm really struggling to hang on right now. If you would, prayers are greatly appreciated. I really don't want to spend another birthday in the hospital next week if things keep getting worse.
When making #bonebroth , there IS such thing as too much jiggle!! When chilled, the ideal bone broth will be gelatinous in texture, which is a sign of how much collagen is in the broth. If you chill your broth and there’s no jiggle, that means there is little to no collagen in the broth. And we want collagen bc it’s great for your skin, hair, nails, and gut— just to name a few things!
I made this chicken broth from 4 lbs of chicken necks and 2 lbs of chicken feet. The chicken feet are great for getting lots of collagen in to your broth, but as you can see from this video, I have too much collagen in here! I probably used double the amount of chicken feet I should have. Too much collagen = not that tasty.
I added this broth to a rotisserie chicken carcass broth I made in my slow cooker, and now it is 👌🏻👌🏻!!!
mini health update: been really sick lately. I'm not keeping food down very well. Throwing up all the time. Every joint in my body hurts, im coughing, I'm weak, & more. Don't want to sound like I'm complaining, just in a lot of pain. And I feel super fuzzy. I went to the chiropractor just now, which is always super helpful. I got labs done yesterday to see where my blood counts are to try and figure out what's wrong
🙌🏼🙌🏼🙌🏼 Today I’m packing up my things because tomorrow I’m heading off to Breakspear for 6 weeks! It’s crazy to think the next time I will be home will be in December and just in time for Christmas 🎄🎅🏼 I’m going to be doing a cell repair programme to repair lots of neurological damage caused by Lyme Disease, Epstein-Barr Virus / Glandular Fever & multiple toxins including heavy metal poisoning. I will explain things in more detail along the way! Fingers crossed this means that by Christmas I’ll hopefully be feeling a bit better 🙋🏼
#Repost @drelenafrid (@get_repost)
While in #Toronto had the pleasure of getting together with Sue and Jennifer from @lyme.hope - who are doing amazing work for patients with #LymeDisease in #Canada . #Girlpower#DrFrid#DrElenaFrid
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Wonderful to have dinner with #drelenafrid while she is in Toronto speaking at a medical conference. She is a neurologist by background, practicing in New York City and speaking out about tick-borne disease, autoimmune encephalitis and neurologic implications - helping to educate other physicians. We are so appreciative of everything she is doing to help Lyme sufferers. 💚💚
This week I started a new protocol called the Patricia Kane protocol. It’s an IV cocktail consisting of Phosphatidylcholine, Phenylbutyrate, Glutathione, and Folinic Acid. I’m so toxic the test dose almost killed me so my specialist wants to know all of my supplements readily available (his office is 5 hours away) to hopefully get some of this crap out of me. I knew I had all of these, but seeing them lined up made it really hit home how strange it is to have this much of anything in my pantry that isn’t food. .
Let the weekend commence. Date night in with my favorites and rocking all things comfy. •
I was thinking about how I can't wait to start feeling a little less exhausted so I can start up a healing yoga practice again...holding onto goals like this extra close these days as so much of what I love feels out of reach. One day, in the hopefully near future, I will start my mornings with tea and time on my mat (with @the_southern_yogi's ebook) as the sun rises. But, for now I shall honor my body, continue to hold space for healing and grip tightly onto my goals of returning to normalcy.
Oh, heels. The oft forgotten and usually extinct creature in the world of chronic illness. A few nights ago, I got to wear you while meeting a friend for dinner.... Which makes me all kinds of 🙌🏻👊🏻😉👌🏻. Just 5 years ago, Lyme had disseminated into my entire body and was attacking my nervous system. Severe neuropathy, pain, hypersensitivity and circulatory problems in my right foot had me in a wheelchair.
During this time, I couldn't even put weight on my right leg, or it felt like a drill was coming up through my foot. Sometimes the constant feeling of termites eating through my foot would increase and make it too painful to even put a shoe on. So yeah, heels were out of the question.
Seriously, the fact that I was that bad off 5 years ago, yet drove myself IN HEELS to dinner the other night should be an encouragement to all of you #chronicillness peeps who are in that deep, dark place and feel like you will never get out of it. I was there. But through lots of fighting and hard work, wellness is possible!! Keep pushing. 💜💜💜
Well, my Lego building plans were derailed. I have ended up in my chair because my energy just did not last today. I ended up dismantling the whole car and washing the pieces, as it was just too gross to clean the way I was. And now I rest... mostly because I have no choice in the matter. 😩 It's very frustrating to have to live like this... Having so much you want to do, but you just physically can't. #SoMuchForWork#spoonie#LymeDisease#bartonella#babesia#coping#exhausted#Lego#afol
When you look at your reflection and wonder how the f**k did it become like this? Is this really your life? I don’t even recognise myself anymore… But we are back in business. I’m still standing and it ain’t going to stop me from getting closer to health 💪🏼 This is my normality and reality, but hopefully it is a battle that will be eventually won, even if I have to live with the battle scars. At least I can add multitasking to my CV. I think by now all of us are more than qualified to take on anything after this hellhole of a journey. You forget when you just live day by day what normal life is like, but as a friend tells me you have survived, you can do anything after this.
My Everything brought home a few birthday surprises for me this morning! We watched the newest episode of Project Runway and ate dairy free and GF cupcakes from Molly's Gluten Free Bakery. I have no pics because we devoured them too fast 😂 A simple, yet beautiful celebration, and next weekend is Tim Burton's Nightmare Before Christmas with the Milwaukee Symphony Orchestra 😁
I have no emotions about turning 38. I feel like I have a full life ahead of me, I understand more about what I want, and I have true lust and passion for the present and future.
The birds are often missing from our downtown neighborhood, but they are singing outside our window today. The yard went to seed and called their attention. Private birthday chorus just for me and the cats lol. #lymelife#lymeslayer#lymedisease#Lyme#itsmybirthday#imnotold#yourmindsetis#LYMEWARRIOR#chronicallyawesome#celebratethelittlethings#myeverything#birthdayflowers
Ready for the weekend 🙋🏼💁🏼 A couple of days ago I went for lunch with @emma2jones and ordered off the gluten free menu (obviously) ate the food and suddenly felt soooo much more poorly having the same reaction as when I eat gluten so I went and asked the staff if the food had gluten in it and they said no but I was convinced it did because it was either gluten or I had developed a new food problem 🤔🙄 until they came back a few minutes later saying it did! I’ve been in bed the last couple of days recovering from the incident 😭😩 The social services came round today and the man who came has a wife with an ‘ME / CFS’ diagnosis and said I remind him of her - I said she should look into Lyme disease 😂 I can’t help but wonder how many thousands of people diagnosed with ME/CFS actually have Lyme 🙈
Today is about zenning... After an emergency endoscopy 2 days ago, I am feeling totally defeated. It's hard to keep having setback after setback in my journey. So today I am working on Legos and planning some of my Christmas endeavors... For now, this Lego Ferrari needs some TLC and brought back to life! Under the dust and grime it is in perfect condition! Hopefully I have all the sticker pieces in the lot I got 🤞
Some weeks go slow and some fly by. This week has flown by but, it has been filled with a thick and low hanging cloud of stress. I have felt overwhelmed, torn, grateful and trapped in this limbo of anticipation and reality. I have always internalized stress, fear and worry and usually that comes out in thr form of an anxiety attack and a cold sore. Well, I have gotten better at sharing and releasing my stress but, my skin still freaks out. I am only human after all. So tonight I have a hot date at home with my favorite human, a delicious warm kale salad, a glass of @rowdymermaidkombucha, and a little self care time with mu favorite face mask by @naturaculina and @the_southern_yogi. Feeling the Friday feels and taking life one wave at a time. Sending you positive energy today and always ✌🏻
Although my diagnosis is recent, I have unknowingly battled Lyme Disease for 35 years! I am overwhelmed, but feeling so blessed to have a treatment plan in place. I will never be free of Lyme, but I will improve! I have to! #lymedontkillmyvibe#lymelife#lymedisease