First New Years Resolution in the books: attend @mrmetrology’s work Christmas party in the red dress I bought before catching meningitis. With careful pacing, antibiotics, lots of naps, and help from friends, I made it until the disco lights appeared. One serious victory on the road to recovery & my first trip out of the house in a month! Besides to the GP. Does the GP count? This year I set resolutions by the month to help me regain my strength but they’re gentle fluid goals. 2018 Be kind to yourself.
Actually got out of the house today- for a trip back to the GP with a secondary infection. But @mrmetrology took me the long way home so I could get a bit of a view of the countryside shrouded in fog. Then we picked up my antibiotics because we are romantic like that. This is a minor setback on the road to recovery but it does help me sleep better (insomnia being an after effect of the meningitis) and it puts me on antibiotics. So now it’s back to resting, lots of fluids, and listening to Enya because I’m going to beat this. And I wouldn’t be getting better without the gentle care of @mrmetrology who makes me smoothies, gets my medicine, and chauffeurs me around.
Because matching sloth t-shirts!! We are on the mend here at Harper’s of England and that marks a fabulous start to the New Year. Miss A is healing so well from her osteochondroma surgery she may hardly have a scar. She’s back to school without crutches. I’m three weeks post meningitis and I don’t sleep all the time anymore and I don’t have to crawl from the post lumbar puncture headache. I’ve found fruit smoothies for breakfast help me start on the right foot to keep the daily headaches controlled. I also frequently put ice packs on my head and eyes by the end of the day. My body feels increasingly strong but my memory and critical thinking skills are taking an extended holiday. The tender mercy is that means I don’t feel like I’ve been sick that long! That also means I can repeat myself. The day I was released from hospital I bought the whole family sloth t-shirts because I knew it would be a different kind of holiday- one that we would be taking slow.
#2018 My podcast #MeningitisNews is now on #Spotify ! 🙌🙌🙌 .
.Please SUBSCRIBE to our podcast on ITUNES, https://itunes.apple.com/us/podcast/meningitis-news/id1237888344
New episodes every SUNDAY at 12pm.
Now selling tickets for Feb and March Baby & Child First Aid classes held in Gerrards Cross! Come and have a chinwag (Australian for 'conversation'), and a biccie (Australian for 'biscuit') while I teach you how to save lives. Yes- learning how to save lives in a relaxed, friendly environment that has the same community feel as Ramsay Street (that's the fictional cul-de-sac from Neighbours, in case you were wondering). Tickets £20/ per person for a 2 hour class. Link to event in bio ☝🏻or comment below with any questions. Hope to see you there. Sammy x
So I'm not having a good day today and before anyone gets sick of sob story's this isn't about that and isn’t because I’m a victim of any kind. Sometimes its showing people your human and everyday is different. I simply want to say... this is for the people that are struggling, for the people that have gone through it or even the people that are struggling with any illness that is so frustrating and exhausting, that you struggle with each day and that isn't so blatantly obvious to the rest of the world. Sometimes it helps to know someone understands... So since meningitis and a bunch of other stuff took hold of me my life hasn't been the same and my side effects hold me down everyday and this week and especially today its a bad day... my iron and b12 are down and i have a kidney infection so I'm completely exhausted, struggling with any daily tasks/chores/work, struggling to even wake up and get my self out of bed in the morning and all making my side effects and physical ailments weak and sore.
Like a lead weight around my ankles and shoulders while a thousand birds peck and fly around my head. How many people do we look at, do we judge or ignore, that look “normal” but are completely breaking down inside every day... All this while i say yes I'm fine are you?!!! #Meningitisihateyoutoday#yesareyou#yesimfineareyou#meningitis#meningitisnow#meningitisawareness#meningitissucks @meningitis_now @meningitis_research #sepsis#sepsissurvivor#mastoiditis#pneumonia#chained#weightedshoulders#deadweight
Becoming a #grandma has truly giving me a new outlook on life. The past 8 years have been a rollercoaster ride for me personally and I am sure my family too. No one ever expects to get a life changing illness at 32 years old and never be the same. This little man blesses my days and gives me hope when theres days I find myself without any. I know there are others struggling with #ChronicIllnesses who much like myself have come too hiding from the world rather than try explaining the many reasons why your life have changed so much yet people would never know looking at you. #invisibleillnessawareness#creatingchange#meningitisawareness#braininjurysurvivor#newyearnewgoals
In one year from today, my life was going to change in seven days. I stillcan’t believe it and I feel like the anxiety is building in me when I think about it, but I force myself to relive it. I don’t have control of that.
This morning I looked at the “on This day” and caught myself zooming in on pictures- why? I’m looking for signs that I missed last year. The truth is I’m thankful that we still have her but I am still so sad I missed any slightest signs. Maybe her skin changed colors, maybe he eyes got puffy, maybe she was mottled... but there was nothing. No signs until the day she was admitted to the hospital. Nothing warned me that any of this was about to happen.
In one week, one year ago, my daughter wasn’t a normal baby anymore- she became a warrior. #meningitissurvivor#meningitisAwareness#hydrocephalus#corticalvisualimpairment#cerebralpalsy#cerebralpalsyawareness#deaf#shunt @yoocandoanything @youcaring @meningitis_now @meningitis_research
@meningitis_now received our donation, because of your wonderful support in our raffle. Hugest thank you to you all for this, without you and our wonderful Elf (who donated our beautiful Beret Boys for free), this wouldn't have been possible. Let's continue to spread the word and wonderful work Meningitis Now do. One day we too truly hope their vision of "no one in the UK dying from Meningitis" could be a reality xxx #meningitissucks#zachdidnthavearash#dontwaitforarash#knowthesymptoms#meningitisawareness
We’re proud to announce Erik Schaffer, founder of #AStepAheadProsthetics , will be appearing on @thedoctorstv yet again! Tune in tomorrow to watch Erik help another person with #limbloss to live life without limitations!
Check your local listings: http://photos.thedoctorstv.com/when-its-on/
With the party season upon us, it’s time to familiarise ourselves with our bodies! What may seem like a terrible hangover, or even flu, or even just being “run down” from all the Christmas shopping, Work, partying and family life - we often forget to look at other possibilities of our symptoms.
If you have a fever, a stiff neck and feeling unwell, please consider that you may have meningitis. Even more so if symptoms include nausea, photophobia and dizziness, this is often dismissed as a hangover.
Know your body and never wait for a rash! I was dismissed by three doctors as I didn’t have a rash, it nearly cost me my life.
Know the signs this winter season and stay safe.
For more information, check out Meningitis Now.
Please share this to help spread the word to your loved ones. Thank you xx
This is a beautiful little boy called Oliver. He was a normal, healthy, happy little 6year old enjoying all the things that 6year olds do. Oliver tragically died of Meningitis B on 24th October this year. The loss and heartbreak is hard to put into words. It's sounds like a cliche but you never think these things will happen to the people you know&care about. The point of this post is to do 2 things:
1. Please if you're able to then donate to Meningitis Now who are fighting to make the vaccine available for all - not just those born since 2015 and also please sign their petition. ▶️http://mnow.co.uk/2mmXqsb
2. To make parents aware that if their children were born before 2015 then they aren't vaccinated and you will have to pay privately (£220) to the get them protected against this devastating disease. ▶️http://oliver-hall.muchloved.com
Taking part in the Great North Run 2017 kept me going after losing my little Claudia. I had a huge come down after completing it, but I’m starting to refocus and build a life. I would give anything to have her here, laughing and running around. But I’m glad that with some incredible support so much was raised in her memory.
Many thanks to @meningitis_now for everything ❤️🦖
Tonight is full of mixed emotions.
Today on giving Tuesday, I will be giving 100% of my bandana sales to the National Meningitis Association in honor of my little brother who we lost on February 11th, 2015.
Andrew was only 19 years old and a student at UNC Charlotte studying engineering when he contracted meningitis and past away suddenly within days. He was brilliant, funny, innovative and driven. His mind amazed me. Whenever we had time to spend together we could talk for hours about anything and everything. He was constantly researching and learning about how things worked. Had he been given the chance, I know he could have changed the world.
Holidays are especially tough for my family and I. He should be there with us and it hurts everyday that he can't be. I miss him every single day. He is the reason I make, he is the reason I've decided to take huge risks and follow my dreams because you never know what will happen tomorrow.
So in honor of my little brother, I will be giving to the National Meningitis Foundation to help spread awareness to this terrible disease to prevent anyone else from having to go through the pain of losing a loved one.
Meningitis and septicaemia can take lives suddenly and quickly. In Jennifer’s case , Out of such a tragedy others now live. Because Jennifer had signed up as an organ donor and her parents, Edwina and Jamie agreed , this resulted in the lives of 5 people being saved . One of which was a child under 5 years old.
Jennifer’s mum Edwina tells her story and explains how organ donation helped comfort her following the loss of her beautiful daughter :