When you think of the typical behaviour of a 2 & 1/2 year old you usually think of the 'terrible twos'. Defiance, boundary pushing, tantrums, racing off whenever they get the chance and 'no' being the word of choice. That is Elva to a tee. Her typically chromosomed big sister though? Polar opposite at that age. Had we been looking to pathologise her behaviour it would have been considered very abnormal. But big sister has the luxury and privilege of growing up without a disability and diagnosis that leads to behaviour being scrutinised and pathologised, so she was simply a 'well-behaved kid'. Fact is, all kids are different. All people are different. Elva's differences are simply exaggerated by the fact that she has a diagnosis that is written all over her face. We're all different, but our differences pale compared to our similarities. We all bleed. We all love, laugh, feel pain and get hurt. We all deserve respect.
And another! @moromini is spoiling us tonight. The Great Escape - I love this cut and the mismatched cuffs. Anyone have a favourite yet? There is one more print coming 😉 #moromini#organickids#organiccotton
With Elva's fine motor skills progressing nicely and her gross motor skills having mostly caught up to her similar age peers our main focus for therapy over the past 8 months has been speech.
One of the most challenging aspects of parenting Elva are the frequent discoveries that show me repeatedly that I constantly underestimate her.
This evening we were sitting on the couch and Elva started saying something that she has said to me many times and I have mostly pandered to as being her own little 'Elvish' language. Only this time it hit me. She was saying 'look'. The second I repeated it back to her her face lit up, and then she started showing me as many things as she could. 'Look! Look! LOOK!'. She was SO excited. And it broke my heart a little bit.
She is always ahead of where I am when it comes to her development, and that must be so frustrating for her.
She may have the disability, but out of the two of us I am the slow learner.
This gorgeous photo is a re-post from @moromini while we wait for their amazing new collection that's coming out soon!
There is still some great stuff in our sale collection, such as the gorgeous lynx!
Bodysuit available in size 6-9 months
Overalls in size nb - 2 months
Dress in size 2-3 years
Shirt in size 2-3 years
Down Syndrome Awareness Month
Imagine for a moment that you are expecting a baby. You have undergone your first trimester screening, because your doctor sent you off to do it. You know it tests for potential issues the baby may have, but not much more. You have been called into your doctor's office at short notice, and he is looking very serious. You sit with baited breath as he peers gravely over his glasses at you, and with a sad shake of his head he says 'Unfortunately your pregnancy has come back positive for the cancer gene. We have booked you in for termination tomorrow.' Wait, what?
While Down syndrome is not a disease in the usual sense, many of the reasons it is seen as a heartbreaking diagnosis are actually symptoms that can, or could, be addressed if they were to be more adequately studied. But instead of putting funding into bettering the lives of people with Down syndrome, all the money is funnelled into prenatal testing. The prenatal testing that is then packaged up and sold as 'bringing an end to Down syndrome' in many countries.
Let's be clear. This is not a cure. This testing doesn't switch off the negative impacts of the extra genetic material, or even prevent these chromosomal anomalies from occurring at conception (though that's another discussion). It's intended and most common purpose is to detect babies with Down syndrome in-utero so that they can be prevented from living.
Imagine if we took all the cancer research funding and dumped it into genetic research with the only purpose being to detect and destroy babies who will one day develop cancer. Imagine that we that cancer arose from spontaneous genetic mutation, so it was impossible to 'breed out' in a true eugenics sense, so we just implemented this test and applied pressure to terminate instead. Imagine if we labelled that the cure to cancer. Imagine.
The measure of a society is shown in how it treats it's most vulnerable. And who is more vulnerable than the unborn disabled infant?
Well it would appear we have the pox!!!
That's all 6 who have now had them.
All out the way while young.
She's managing them with copious amounts of boob and a side of boob. #chickenpox#dontpanic#moromini
A new brand for us from the lovely Theresa at @cardamomkids
Came perfectly packaged and with super customer service. @moromini lynx bodysuit. Looking forward to seeing it paired up with Sia's new m&s pinefore. #moromini#organic#supportyourindies
We delivered an order this week for a customer whose kiddo will only wear two outfits - both from us. So she picked up some more so that he'd have more choice. Great news is that he's decided that this circus print from @moromini is also good to wear! I love hearing that kids really do love wearing our clothes ❤️❤️❤️
📸 is a #tbt to my tiny human wearing this sold out circus print