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#ostomy medias

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It is such a relief with the air clear of the smoke - as well as looking up and seeing snow on the mountains... finally damping out months of fires - and looking pretty amazing at the same time! Autumn is solidly here... 🍁🍃🍁 #montanagirl #montana #somers #rockymountains #flathead #autumn #mountains #allgoodthings #crohns #spoonie #ileostomy #ostomy #surgery #chronicpain #needacure #needabreak
Dresden Half Marathon completed over the weekend with the running club tour. Great run with a great route! Throughly enjoyed it! Love city also! New PB, but felt was on for a sub 1:45, but tired badly on the last 3 miles for some reason...🤔
#dresden #dresdenmarathon #dresdenhalfmarathon #halfmarathon #running #runnersofinstagram #runnerscommunity #runnerslife #runnerslife #training #getfit #uc #ulcerativecolitis #ostomy #ostomyathletes
I've decided to submit with this photo and another one for 2018 calendar entries of @stomawise.  Honestly it was a big step showing my bag to the world.. it's my reality, it's my new life and I am happy and thankful for having this bag which really saved my life, so why should I be ashamed of showing it? I am trying to live my life as normal as possible, and most of time it's normal...my bag doesn't prevent me to do the things that I like. I keep my smile on my face and I am happy, first step to be happy is the acceptance.
#stomawise #2018calendarentries #abcd @stoma #colostomy #empowering #ostomy #life #happy #crohns #colits #doencadecrohn #ostomybag
#ostomyconnection
I've decided to submit with this photo and another one for 2018 calendar entries of @stomawise. Honestly it was a big step showing my bag to the world.. it's my reality, it's my new life and I am happy and thankful for having this bag which really saved my life, so why should I be ashamed of showing it? I am trying to live my life as normal as possible, and most of time it's normal...my bag doesn't prevent me to do the things that I like. I keep my smile on my face and I am happy, first step to be happy is the acceptance. #stomawise  #2018calendarentries  #abcd  @stoma #colostomy  #empowering  #ostomy  #life  #happy  #crohns  #colits  #doencadecrohn  #ostomybag  #ostomyconnection 
One year ago today, I spent the entire day in bed. I had woken up at 5:30AM with diarrhea that occurred every 10 minutes for two hours straight. My stomach felt like it was on fire, and I couldn’t even stand up straight because of the pain. After taking more than the recommended amount of Imodium, things finally calmed down, though my pain still wouldn’t let up. I kept sending frantic emails to my professors letting them know that I wouldn’t be in class the next day, fully convinced that I had gotten food poisoning. The biggest worry on my mind at that point was that I was missing a day of training for my race that weekend, and that spending the day in bed would mean I wouldn’t perform as well. I went to bed that night praying that I would wake up feeling well enough to go to the gym and get some homework done, but since I could barely stomach the half of a banana and single cup of chicken broth that I force-fed myself as my only food for the entire day, things didn’t look promising. But hey, I was feeling optimistic, even though I had managed to take a grand total of 100 steps all day ... #mollyollyostomy #ileostomy #ostomy #chronicillness #invisibleillness #spoonie #nocolonstillrollin #ostomates #stoma #ittakesguts #girlswithguts #chronicallymotivated #posturalorthostatictachycardiasyndrome #POTS #dysautonomia #EDS #EhlersDanlosSyndrome
One year ago today, I spent the entire day in bed. I had woken up at 5:30AM with diarrhea that occurred every 10 minutes for two hours straight. My stomach felt like it was on fire, and I couldn’t even stand up straight because of the pain. After taking more than the recommended amount of Imodium, things finally calmed down, though my pain still wouldn’t let up. I kept sending frantic emails to my professors letting them know that I wouldn’t be in class the next day, fully convinced that I had gotten food poisoning. The biggest worry on my mind at that point was that I was missing a day of training for my race that weekend, and that spending the day in bed would mean I wouldn’t perform as well. I went to bed that night praying that I would wake up feeling well enough to go to the gym and get some homework done, but since I could barely stomach the half of a banana and single cup of chicken broth that I force-fed myself as my only food for the entire day, things didn’t look promising. But hey, I was feeling optimistic, even though I had managed to take a grand total of 100 steps all day ... #mollyollyostomy  #ileostomy  #ostomy  #chronicillness  #invisibleillness  #spoonie  #nocolonstillrollin  #ostomates  #stoma  #ittakesguts  #girlswithguts  #chronicallymotivated  #posturalorthostatictachycardiasyndrome  #POTS  #dysautonomia  #EDS  #EhlersDanlosSyndrome 
In bed with the worst pressure migraine and just finished dealing with a stoma bag leak that showed an upsetting new development around my stoma...
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Looks like an ulcer is starting to form or it’s a fistula - either way this isn’t looking too good for me and probably means going to hospital.
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I’m so upset and stressed. It’s so sore too.
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If it is another ulcer like the one I had NY 2016 I don’t know I could do and go through all that again it was horrible. I hate this, I hate your body decaying right before your eyes. I just hate all of this some days.
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So scared and already called my stoma nurse who is talking with palliative care. In the meantime I’m trying my best to rest my head feels under pressure and I am so tired.
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#cancer #ostomy #onedayatatime #stomaissues #pressuremigraine #terrified #whatnow #exhausted @chatterbox_city heat pack wheat free
In bed with the worst pressure migraine and just finished dealing with a stoma bag leak that showed an upsetting new development around my stoma... . Looks like an ulcer is starting to form or it’s a fistula - either way this isn’t looking too good for me and probably means going to hospital. . I’m so upset and stressed. It’s so sore too. . If it is another ulcer like the one I had NY 2016 I don’t know I could do and go through all that again it was horrible. I hate this, I hate your body decaying right before your eyes. I just hate all of this some days. . Dammit . So scared and already called my stoma nurse who is talking with palliative care. In the meantime I’m trying my best to rest my head feels under pressure and I am so tired. . . . #cancer  #ostomy  #onedayatatime  #stomaissues  #pressuremigraine  #terrified  #whatnow  #exhausted  @chatterbox_city heat pack wheat free
Meet the leadership team of the CIDA Foundation that helped create and implement the one-of-its-kind Health Advocacy Summit! (Pictured left to right) 
Hannah von Werder: Social Media Liaison
Janesh Karnati: Community Relations 
Sneha Dave: Executive Director and Founder
Jennifer Meyer: Regional Coordinator 
Shahin Saberi: Regional Coordinator 
Rosie Maharjan: Media Executive (not pictured)
Meet the leadership team of the CIDA Foundation that helped create and implement the one-of-its-kind Health Advocacy Summit! (Pictured left to right) Hannah von Werder: Social Media Liaison Janesh Karnati: Community Relations Sneha Dave: Executive Director and Founder Jennifer Meyer: Regional Coordinator Shahin Saberi: Regional Coordinator Rosie Maharjan: Media Executive (not pictured)
When your client has colon surgery and asks if you can make Ostomy Bag covers out of Lilly fabrics. You find a pattern and voila' the kutest Ostomy covers around!
When your client has colon surgery and asks if you can make Ostomy Bag covers out of Lilly fabrics. You find a pattern and voila' the kutest Ostomy covers around!
First day with the kids is over  and OH MY LORD! 10 year olds have so much energy!!! So much fun though! .
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#camp #volunteer #volunteering #chronicillness #seriousfun #otw #activitycamp #ileostomy #ostomy #crohns #colitis
Swipe for some G N A R L Y pictures of my belly 🤙🏻
Here’s the update 😂 I’m back in the hospital, which is great cause I emailed my teachers last week saying I would be in class today 😂😅 Anywayyyyyyy. I noticed a little bit of redness around Stella when I changed my bag on Friday evening. I’ve had some itchiness lately where my bag sticks to my skin but I was kinda like whatever, I’m probably just irritated because my skin isn’t used to being suffocated yet, it’s fine. Saturday, I had a bit of a sore throat, I just figured I was getting a cold. On Sunday though, I woke up and hopped in the shower to get cleaned up and change my bag, and I had a full blown rash so I texted my mom a picture, and she came back from church super quick and took me to the hospital cause I mean, I could NOT put another bag on that and I needed some serious help 😂 Anyway. Turns out I have some kind of yeasty, fungally, nasty crap in my body, and because I’ve been on some heavy antibiotics lately, my body couldn’t fight it. But yeah, so the nurses here are helping my skin get some air, and I finally got some food in my belly after 43 hours so now I’m calmed down and sane enough to make this post 😂😂 •
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 #QandA #ileostomy #babeswithbags #ostomyawareness #getyourbellyout #nocolonstillrollin #spoonie #crohnsdisease #ulcerativecolitis #chronicillness #crohnsandcolitis #jpouch #stellathestoma #ostomy #colectomy #askmeaboutmystoma #loveyourstoma #diversityindefecation #hollister #teenswithuc #teenswithcrohns #invisibleillness
Swipe for some G N A R L Y pictures of my belly 🤙🏻 Here’s the update 😂 I’m back in the hospital, which is great cause I emailed my teachers last week saying I would be in class today 😂😅 Anywayyyyyyy. I noticed a little bit of redness around Stella when I changed my bag on Friday evening. I’ve had some itchiness lately where my bag sticks to my skin but I was kinda like whatever, I’m probably just irritated because my skin isn’t used to being suffocated yet, it’s fine. Saturday, I had a bit of a sore throat, I just figured I was getting a cold. On Sunday though, I woke up and hopped in the shower to get cleaned up and change my bag, and I had a full blown rash so I texted my mom a picture, and she came back from church super quick and took me to the hospital cause I mean, I could NOT put another bag on that and I needed some serious help 😂 Anyway. Turns out I have some kind of yeasty, fungally, nasty crap in my body, and because I’ve been on some heavy antibiotics lately, my body couldn’t fight it. But yeah, so the nurses here are helping my skin get some air, and I finally got some food in my belly after 43 hours so now I’m calmed down and sane enough to make this post 😂😂 • • • #QandA  #ileostomy  #babeswithbags  #ostomyawareness  #getyourbellyout  #nocolonstillrollin  #spoonie  #crohnsdisease  #ulcerativecolitis  #chronicillness  #crohnsandcolitis  #jpouch  #stellathestoma  #ostomy  #colectomy  #askmeaboutmystoma  #loveyourstoma  #diversityindefecation  #hollister  #teenswithuc  #teenswithcrohns  #invisibleillness 
More photos from our #OstomyDay2017 winner @mollyollyostomy #Iamresilient at our Durham ostomy 5k location. 
Ostomy Awareness Day 2017 ! To celebrate, I spent the morning at the Run for Resilience 5K, which is an annual walk to raise awareness for ostomies. What an amazing event. I got to show off Olly to the world, talk to a ton of fellow ostomates about their stories (shoutout to @stolencolon and @stealthbelt VP, @collinjarvis !), and celebrate the surgery that gave me my life back. There is such a strong ostomy community out there, and seeing so many people come together today, from ostomates to family members to nurses to everyone in between, was truly awe-inspiring. One of the coolest parts of the day was that looking around, I couldn’t tell who was an ostomate and who wasn’t. Us ostomates look just like everyone else, and we can do anything we put our minds to. 
Speaking of which, I managed to walk the whole 5K without stopping, AND I ran the last few feet in to the finish line. I have crossed a lot of finish lines in the last few years, but today’s finish was particularly sentimental. I remember lying in my hospital bed, setting this 5K as my goal and thinking it was impossible. But today, I crossed that finish line with my head held high and some of my favorite people by my side cheering me on. My parents and my honorary sister / brother-in-law / niece / nephew all walked with me every step of the way, just like they have for the last three months. I’ll be back next year to run the whole thing (I refuse to let POTS stop me !) and I’m already counting the days until Ostomy Awareness Day 2018. #mollyollyostomy #ileostomy #ostomy#chronicillness #invisibleillness#spoonie #nocolonstillrollin #ostomates#stoma #OstomyDay2017#OstomyAwareness @uoaa_ #POTS#posturalorthostatictachycardiasyndrome #dysautonomia #EDS#EhlersDanlosSyndrome
More photos from our #OstomyDay2017  winner @mollyollyostomy #Iamresilient  at our Durham ostomy 5k location. Ostomy Awareness Day 2017 ! To celebrate, I spent the morning at the Run for Resilience 5K, which is an annual walk to raise awareness for ostomies. What an amazing event. I got to show off Olly to the world, talk to a ton of fellow ostomates about their stories (shoutout to @stolencolon and @stealthbelt VP, @collinjarvis !), and celebrate the surgery that gave me my life back. There is such a strong ostomy community out there, and seeing so many people come together today, from ostomates to family members to nurses to everyone in between, was truly awe-inspiring. One of the coolest parts of the day was that looking around, I couldn’t tell who was an ostomate and who wasn’t. Us ostomates look just like everyone else, and we can do anything we put our minds to.  Speaking of which, I managed to walk the whole 5K without stopping, AND I ran the last few feet in to the finish line. I have crossed a lot of finish lines in the last few years, but today’s finish was particularly sentimental. I remember lying in my hospital bed, setting this 5K as my goal and thinking it was impossible. But today, I crossed that finish line with my head held high and some of my favorite people by my side cheering me on. My parents and my honorary sister / brother-in-law / niece / nephew all walked with me every step of the way, just like they have for the last three months. I’ll be back next year to run the whole thing (I refuse to let POTS stop me !) and I’m already counting the days until Ostomy Awareness Day 2018. #mollyollyostomy  #ileostomy  #ostomy #chronicillness  #invisibleillness #spoonie  #nocolonstillrollin  #ostomates #stoma  #OstomyDay2017 #OstomyAwareness  @uoaa_ #POTS #posturalorthostatictachycardiasyndrome  #dysautonomia  #EDS #EhlersDanlosSyndrome 
My bestie @nie_raby always seems to just know even from across the ocean... Yes, the last point does say 'to bond over food and toilet'. Having IBD means being prudish about all things bowels, poo and toilet goes out the window. Finding those special people who are totally unfazed by your unfiltered outbursts about all things toilet related and join you in your unapologetic terrible toilet humour, can make those frequent embarrassing moments so much more tolerable. Let's face it we all poo and no doubt have had at least one embarrassing tale to tell, so perhaps it's about time we put the prudish social conditioning to one side and open the conversation about all things gutsy...
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#bestfriends #besties #love #pootalk #toilethumour #vulnerability #strength #thankful #selfawareness #resilience #inspiration #instagood #crohns #warrior #crohnsdisease #crohnsdiseaseawareness #spoonie #invisibleillness #colitis #ibd #autoimmunedisease #ostomy #fistula #intestinalfailure #shortbowel #stillwinning #instasupport #instalove #instadaily
My bestie @nie_raby always seems to just know even from across the ocean... Yes, the last point does say 'to bond over food and toilet'. Having IBD means being prudish about all things bowels, poo and toilet goes out the window. Finding those special people who are totally unfazed by your unfiltered outbursts about all things toilet related and join you in your unapologetic terrible toilet humour, can make those frequent embarrassing moments so much more tolerable. Let's face it we all poo and no doubt have had at least one embarrassing tale to tell, so perhaps it's about time we put the prudish social conditioning to one side and open the conversation about all things gutsy... - - - - - - #bestfriends  #besties  #love  #pootalk  #toilethumour  #vulnerability  #strength  #thankful  #selfawareness  #resilience  #inspiration  #instagood  #crohns  #warrior  #crohnsdisease  #crohnsdiseaseawareness  #spoonie  #invisibleillness  #colitis  #ibd  #autoimmunedisease  #ostomy  #fistula  #intestinalfailure  #shortbowel  #stillwinning  #instasupport  #instalove  #instadaily 
A grey and rainy day spent in Landskrona with the cutest little baby Julie and her mum has been so nice! It's amazing how cute a small person can be and how calming it can be to just hang out! ❤
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#lifeocharlotte #nature #greyday #babycuddles #invisibleillness #calm #ileostomy #ulcerousecolitis #ostomy #nocolonstillrollin #oneofthosedays #oldfriends #beautiful #niceday #littlethings
Carnival 2017 🎉🎊 My friends often ask me if there's anything I can or can't wear. I love high waisted jeans and shorts which helps, but I always wear tight clothing with no problems as my ostomy is in a good position. In fact, you can't see my #ostomy at all 💁 #wheresmyostomy .
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#girl #ootd #carnival #nottinghill #tan #vacation #summer #sun #tbt #nofilter #ulcerativecolitis #colitis #uc #chrons #ileostomy #ostomy #stoma #girl #bikini #chronicillness #invisibledisability #inspiration #life #ccuk #health #wellness #illness #wheresmyostomy
Carnival 2017 🎉🎊 My friends often ask me if there's anything I can or can't wear. I love high waisted jeans and shorts which helps, but I always wear tight clothing with no problems as my ostomy is in a good position. In fact, you can't see my #ostomy  at all 💁 #wheresmyostomy  . . . #girl  #ootd  #carnival  #nottinghill  #tan  #vacation  #summer  #sun  #tbt  #nofilter  #ulcerativecolitis  #colitis  #uc  #chrons  #ileostomy  #ostomy  #stoma  #girl  #bikini  #chronicillness  #invisibledisability  #inspiration  #life  #ccuk  #health  #wellness  #illness  #wheresmyostomy 
@collinjarvis after finishing the @scotiabank Toronto Waterfront half marathon in 6th place overall out of nearly 11,000 participants! Finish time was 69:07, just shy of his ostomy half marathon world record! Just another example of the incredible things that are possible with an #ostomy 🏃🏼
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Tell us what you did this weekend that made you feel #stealthbeltstrong in the comments below! •
#stealthbelt #goanywheredoanything #nocolonstillrollin #colostomy #ileostomy #uoaa #ostomysupport #ostomyawareness #ostomybelt #ostomyathletes #ibd #iamresilient
@collinjarvis after finishing the @scotiabank Toronto Waterfront half marathon in 6th place overall out of nearly 11,000 participants! Finish time was 69:07, just shy of his ostomy half marathon world record! Just another example of the incredible things that are possible with an #ostomy  🏃🏼 • Tell us what you did this weekend that made you feel #stealthbeltstrong  in the comments below! • #stealthbelt  #goanywheredoanything  #nocolonstillrollin  #colostomy  #ileostomy  #uoaa  #ostomysupport  #ostomyawareness  #ostomybelt  #ostomyathletes  #ibd  #iamresilient 
Date night from the other night. Love being able to enjoy a night out without having to come home early in pain!
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#whatbag #ileostomy #ostomy #datenight #crohns #crohnsdisease #ibd #stoma #lobster #crab #boil
Today I had enough, so I said when. The complete negligence and lack of true care from CCF’s transplant team is deplorable and unfortunately I will be seeking treatment out of state. ✌🏼 When I can better collect my thoughts, I’ll share my story on my blog. We both know all the truth I can tell... ‘Cause you brought the flames 🔥 and you put me through hell
I had to learn how to fight for myself
And we both know all the truth I could tell
I'll just say this is "I wish you farewell" #cipo #cipoawareness #negligence #tpn #tpndependent #motilitydisorder #chronicillnessfighter #chronicillness #invisibleillnessawareness #ostomate #ostomy #ileostomy #nocolonstillrollin #ihadenough #webothknowallthetruthicouldtell 👊🏼 #regardinghenry
Today I had enough, so I said when. The complete negligence and lack of true care from CCF’s transplant team is deplorable and unfortunately I will be seeking treatment out of state. ✌🏼 When I can better collect my thoughts, I’ll share my story on my blog. We both know all the truth I can tell... ‘Cause you brought the flames 🔥 and you put me through hell I had to learn how to fight for myself And we both know all the truth I could tell I'll just say this is "I wish you farewell" #cipo  #cipoawareness  #negligence  #tpn  #tpndependent  #motilitydisorder  #chronicillnessfighter  #chronicillness  #invisibleillnessawareness  #ostomate  #ostomy  #ileostomy  #nocolonstillrollin  #ihadenough  #webothknowallthetruthicouldtell  👊🏼 #regardinghenry 
Happy Birthday to our editor, and the man that sat on a toilet in the middle of Toronto to raise awareness for Crohn’s and colitis. We 💜 you, @rasheedclarke! #ucsurvivor #crohnsdisease #ulcerativecolitis #ostomy #jpouch #ibd #inflammatoryboweldisease #happybirthday
Seriously doctors offices need to step up their game. As much time as we waste sitting there staring at the white walls,  could they not leave us some entertainment. Their would be happier patients instead of ones pissed they showed up 15 min early for their appt and wait for the doctor for another hour or sometimes even two. Give us an Xbox or something. It's 2017 how bout a 19 inch TV at least? 
Also how bout some bottled water? Snack would be nice to. 
Whos suggestion box can I put all these great ideas I have in?! #doctor #doctorsoffice #appointment #doctorappointment #crohns #ileostomy #crohnslife #crohnicillness #crohnie #nocolonstillrollin #sicklife #badass #ostomy #ostomychick
Seriously doctors offices need to step up their game. As much time as we waste sitting there staring at the white walls, could they not leave us some entertainment. Their would be happier patients instead of ones pissed they showed up 15 min early for their appt and wait for the doctor for another hour or sometimes even two. Give us an Xbox or something. It's 2017 how bout a 19 inch TV at least? Also how bout some bottled water? Snack would be nice to. Whos suggestion box can I put all these great ideas I have in?! #doctor  #doctorsoffice  #appointment  #doctorappointment  #crohns  #ileostomy  #crohnslife  #crohnicillness  #crohnie  #nocolonstillrollin  #sicklife  #badass  #ostomy  #ostomychick 
Questions: for people that have been on multiple biologics , have they become less effective as you change medicines? Do you keep building up antibodies to the medicines?  #ibd #crohns #ulcerativecolitis #tubie #ostomy #spoonie #chronicillness #invisibleillness #remicade #ibdproblems #colitis #autoimmune #anxiety  #spoonieproblems #jpouch #IBS #humira #entyvio #gutitout #prednisone #ibdwarriors #autoimmunedisease #ibdadvocate #worldibdday2017 #ibdawareness #ibdlife #colonoscopy #flareup #ibdvisible
Questions: for people that have been on multiple biologics , have they become less effective as you change medicines? Do you keep building up antibodies to the medicines? #ibd  #crohns  #ulcerativecolitis  #tubie  #ostomy  #spoonie  #chronicillness  #invisibleillness  #remicade  #ibdproblems  #colitis  #autoimmune  #anxiety  #spoonieproblems  #jpouch  #IBS  #humira  #entyvio  #gutitout  #prednisone  #ibdwarriors  #autoimmunedisease  #ibdadvocate  #worldibdday2017  #ibdawareness  #ibdlife  #colonoscopy  #flareup  #ibdvisible 
💙💩A lot of people see ostomies as a negative thing, and maybe feel sorry for people who have them.... but I can say wholeheartedly, (even with all the other crap my body is putting me through) I have never felt more myself in my whole life than I do now. And the possible negatives of living with a stoma are nothing compared to all the positives 🍓💩💙
💙💩A lot of people see ostomies as a negative thing, and maybe feel sorry for people who have them.... but I can say wholeheartedly, (even with all the other crap my body is putting me through) I have never felt more myself in my whole life than I do now. And the possible negatives of living with a stoma are nothing compared to all the positives 🍓💩💙
🙏🏼💛✨🍃Have you ever wished you knew how to #recognize #signs from #Spirit? Have you ever wondered how to recognize #signsfromabove ? Have you ever received a sign from a loved one in #Spirit? • Then I invite you to join my NEW FB GROUP! • “Recognizing The Language Of Spirit” • Link to join is in bio! Come on over and be a part of a BEAUTIFUL community of supportive, kind and fun loving individuals! I hope to see you there as I’d LOVE to have you #joinus 🙏🏼🍃💛✨#spiritjunkie
🙏🏼💛✨🍃Have you ever wished you knew how to #recognize  #signs  from #Spirit ? Have you ever wondered how to recognize #signsfromabove  ? Have you ever received a sign from a loved one in #Spirit ? • Then I invite you to join my NEW FB GROUP! • “Recognizing The Language Of Spirit” • Link to join is in bio! Come on over and be a part of a BEAUTIFUL community of supportive, kind and fun loving individuals! I hope to see you there as I’d LOVE to have you #joinus  🙏🏼🍃💛✨#spiritjunkie 
"At the end of the day, all you need is hope and strength. #HOPE that it will get better, and #STRENGTH to #HoldOn until it does." -unknown
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#truth #onedayatatime #youarenotalone
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#keepgoing #chronicallyill #chronicillness #ibd #survivor #mentalhealth #spoonie #invisibleillness #migraine #crohns #chronicpain #autoimmune #nevergiveup #autoimmunedisease #hope #eds #ehlersdanlos #ostomy #staystrong #fibromyalgia #crohnsdisease #havehope #invisibledisease #dysautonomia
📷: Google (artist unknown)
"At the end of the day, all you need is hope and strength. #HOPE  that it will get better, and #STRENGTH  to #HoldOn  until it does." -unknown . #truth  #onedayatatime  #youarenotalone  . . . . . . . . . . . . . . #keepgoing  #chronicallyill  #chronicillness  #ibd  #survivor  #mentalhealth  #spoonie  #invisibleillness  #migraine  #crohns  #chronicpain  #autoimmune  #nevergiveup  #autoimmunedisease  #hope  #eds  #ehlersdanlos  #ostomy  #staystrong  #fibromyalgia  #crohnsdisease  #havehope  #invisibledisease  #dysautonomia  📷: Google (artist unknown)
Meet Paddy, my beloved heating pad. We are very close — literally, since we are attached for most of the day. As you can probably tell, I love naming things: Bertha = my IUD, Wanda = my old hot water bottle, Portia = my port, Stella = my future stoma. I got Paddy back in February after I had used my hot water bottle so much that I ended up with erythema ab igne, a fancy name for burn marks on my abdomen and thighs that are still somewhat visible. I try to lessen my exposure to heat because it obviously doesn’t help with the rash. It isn’t easy though, since Paddy is one of the only things that makes living with chronic pain bearable. While it doesn’t necessarily alleviate my abdominal pain, the heat is quite a comforting distraction.  It’s always cozy curling up into a blanket cocoon with Paddy wrapped around, while my dog keeps me company and looks out for any “abnormal” behavior (which for her includes sneezing... 🙄😂).
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(In case you’re wondering, the heating pad is XpressHeat XL by Sunbeam.)
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#heatingpad #chronicpain #ostomate #ileostomy #ostomy #stoma #girlswithguts #ostomyawareness #chronicillness #invisibleillness #spoonie #chronicallymotivated #eds #ehlersdanlossyndrome #zebrastrong #dysautonomia #orthostatichypotension #mastcellactivationsyndrome #endometriosis #endowarrior #klippelfeilsyndrome
Meet Paddy, my beloved heating pad. We are very close — literally, since we are attached for most of the day. As you can probably tell, I love naming things: Bertha = my IUD, Wanda = my old hot water bottle, Portia = my port, Stella = my future stoma. I got Paddy back in February after I had used my hot water bottle so much that I ended up with erythema ab igne, a fancy name for burn marks on my abdomen and thighs that are still somewhat visible. I try to lessen my exposure to heat because it obviously doesn’t help with the rash. It isn’t easy though, since Paddy is one of the only things that makes living with chronic pain bearable. While it doesn’t necessarily alleviate my abdominal pain, the heat is quite a comforting distraction. It’s always cozy curling up into a blanket cocoon with Paddy wrapped around, while my dog keeps me company and looks out for any “abnormal” behavior (which for her includes sneezing... 🙄😂). ⠀⠀⠀⠀⠀⠀⠀⠀⠀ (In case you’re wondering, the heating pad is XpressHeat XL by Sunbeam.) ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #heatingpad  #chronicpain  #ostomate  #ileostomy  #ostomy  #stoma  #girlswithguts  #ostomyawareness  #chronicillness  #invisibleillness  #spoonie  #chronicallymotivated  #eds  #ehlersdanlossyndrome  #zebrastrong  #dysautonomia  #orthostatichypotension  #mastcellactivationsyndrome  #endometriosis  #endowarrior  #klippelfeilsyndrome 
☀️ HICKMAN LINE SCARS ☀️
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The dressing that I had to wear for 24-48 hours after my Hickman line was removed is off and all I am left with is a little scar (and another story to tell).
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The anticipation of having my Hickman line removed has always been worse than the actual removal. The doctor will first cut the stitches, then you will lie flat on your back, take a deep breath, and on your exhale, hum, and the doctor pulls the line out. I always feel a slight bit of pressure on my collar bone where the line was tunneled under the skin to, as well. The doctor then holds a lot (a LOT) of pressure on the area for 10-15 minutes to ensure there is no bleeding. As scary as the procedure always seems, it is never as bad as it sounds! And it is over before you know it ☺️
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Being central line free feels so nice! It is always scary at first, though, because I worry about becoming dehydrated and needing the line again, but I just have to let go of my worries and trust my body!
☀️ HICKMAN LINE SCARS ☀️ . The dressing that I had to wear for 24-48 hours after my Hickman line was removed is off and all I am left with is a little scar (and another story to tell). . The anticipation of having my Hickman line removed has always been worse than the actual removal. The doctor will first cut the stitches, then you will lie flat on your back, take a deep breath, and on your exhale, hum, and the doctor pulls the line out. I always feel a slight bit of pressure on my collar bone where the line was tunneled under the skin to, as well. The doctor then holds a lot (a LOT) of pressure on the area for 10-15 minutes to ensure there is no bleeding. As scary as the procedure always seems, it is never as bad as it sounds! And it is over before you know it ☺️ . Being central line free feels so nice! It is always scary at first, though, because I worry about becoming dehydrated and needing the line again, but I just have to let go of my worries and trust my body!
It's funny how amazing you can Play happy... I think black an white is the best for this smile pic. .. The truth is another one... It's frustrating that this year everything goes Bad... My doc will take another medicin than stellara... It's the only way to come out of this big hole... Everyone with #ced / #ibd are a wonder... We can look so wonderful health and beautyful but deep in us.. We are so sick  physically and mentally... I hope that you are all fine. I get so many beautyful Massages from you with encouragements.. You're wonderful thank you!!. Thank you so much for everything #girl #morbuscrohn #stoma#stomalife #stoma #autoimmunewarrior #autpimmunedisease #dontgiveup #fellowcrohnie #blackandwhite #blackandgrey #darkeyes #eyes #fakesmile #ibd #ibdwarrior #ileostomylife #ileostomy #ileostoma #ileostomylove #ostomyawareness #ostomy #ostomates #ostomate #ostomylife #ostomylove #cedfighter #nevergiveup
It's funny how amazing you can Play happy... I think black an white is the best for this smile pic. .. The truth is another one... It's frustrating that this year everything goes Bad... My doc will take another medicin than stellara... It's the only way to come out of this big hole... Everyone with #ced  / #ibd  are a wonder... We can look so wonderful health and beautyful but deep in us.. We are so sick physically and mentally... I hope that you are all fine. I get so many beautyful Massages from you with encouragements.. You're wonderful thank you!!. Thank you so much for everything #girl  #morbuscrohn  #stoma #stomalife  #stoma  #autoimmunewarrior  #autpimmunedisease  #dontgiveup  #fellowcrohnie  #blackandwhite  #blackandgrey  #darkeyes  #eyes  #fakesmile  #ibd  #ibdwarrior  #ileostomylife  #ileostomy  #ileostoma  #ileostomylove  #ostomyawareness  #ostomy  #ostomates  #ostomate  #ostomylife  #ostomylove  #cedfighter  #nevergiveup 
Note from me to you! Live fearless ❤ #ostomy #postivequotes #ostomybag #ostomyblogger
O semblante tranquilo de quem teve alta após 18 dias de internada!
Página virada. Upei! Deu-se início à uma nova campanha na minha vida rs
Houveram diversas intercorrências. Foi um leão por dia, um dia de cada vez. Adaptação da alimentação, muitas dietas zero até ocorrer aceitação e recuperação do Godofredo, meu intestino lindelgado kkkk
Mas quem tem família e amigos tem tudo, e nunca estive só. De acordo com a equipe de enfermagem do HUGG, eu era a menina dos acompanhantes infinitos kkkk
Obrigada família e amigos por ficarem e estarem sempre comigo, pelo amor, ajuda, carinho e cuidado. Obrigada pela torcida dos demais que não puderam me visitar, mas que todos os dias me mandavam mensagem pra saber como eu estava.
Ivan, momeu, obrigada por tudo. Não tenho palavras pra expressar o quanto te amo e o quanto sou grata por tudo que você fez e faz por mim todos os dias. Na saúde e na doença 🙏💜
Sogrãe, minha sogra mãe, te amo muito. Que pessoa incrível você é. Obrigada por tudo ❤
Ba, obrigada por todas as suas pesquisas, você é ótima nisso 💙
Gratidão pela equipe de médicos e de enfermagem do HUGG que cuidaram tão bem de mim, aquele tratamento humanizado que todo hospital deveria ter. 
Por fim, podem me convidar para churrascaria, rodízios e afins viu? 
Hahaha
Não foi fácil, mas acabou. Ileostomizada temporariamente, saudável e feliz! "I'm a survivor, i'm not gon give up 
I'm not gon stop, i'm gon work harder 
I'm a survivor, i'm gonna make it 
I will survivor, keep on survivin' "

#medicinapreventiva #cirurgiaprofilatica #survivor #ileostomizada #ileostomia #ileostomiareversivel #ostomy #ostomybag #ostomia #ostomiasemtabu #fé #faith  #resiliencia #resilience #perseverança #orgulhosus #hugg
O semblante tranquilo de quem teve alta após 18 dias de internada! Página virada. Upei! Deu-se início à uma nova campanha na minha vida rs Houveram diversas intercorrências. Foi um leão por dia, um dia de cada vez. Adaptação da alimentação, muitas dietas zero até ocorrer aceitação e recuperação do Godofredo, meu intestino lindelgado kkkk Mas quem tem família e amigos tem tudo, e nunca estive só. De acordo com a equipe de enfermagem do HUGG, eu era a menina dos acompanhantes infinitos kkkk Obrigada família e amigos por ficarem e estarem sempre comigo, pelo amor, ajuda, carinho e cuidado. Obrigada pela torcida dos demais que não puderam me visitar, mas que todos os dias me mandavam mensagem pra saber como eu estava. Ivan, momeu, obrigada por tudo. Não tenho palavras pra expressar o quanto te amo e o quanto sou grata por tudo que você fez e faz por mim todos os dias. Na saúde e na doença 🙏💜 Sogrãe, minha sogra mãe, te amo muito. Que pessoa incrível você é. Obrigada por tudo ❤ Ba, obrigada por todas as suas pesquisas, você é ótima nisso 💙 Gratidão pela equipe de médicos e de enfermagem do HUGG que cuidaram tão bem de mim, aquele tratamento humanizado que todo hospital deveria ter. Por fim, podem me convidar para churrascaria, rodízios e afins viu? Hahaha Não foi fácil, mas acabou. Ileostomizada temporariamente, saudável e feliz! "I'm a survivor, i'm not gon give up I'm not gon stop, i'm gon work harder I'm a survivor, i'm gonna make it I will survivor, keep on survivin' " #medicinapreventiva  #cirurgiaprofilatica  #survivor  #ileostomizada  #ileostomia  #ileostomiareversivel  #ostomy  #ostomybag  #ostomia  #ostomiasemtabu  #fé  #faith  #resiliencia  #resilience  #perseverança  #orgulhosus  #hugg 
Some of you guys already know, I can't live without my shapewear! 🤗

These undies are not the most sexy, comfy or pretty, but for me they are my world! 🌐

When I started to wear these shapewear undies the possibilities were endless in regards to the clothes I could wear again.
No more 'bag bulging' above jeans, no more annoying heavy bag on my belly. 
Even no more noises from my ileostomy because air doesn't have to room (works the same way as placing your hand over your ostomy when it makes sound). You can buy these undies at almost every lingerie store and Primark and such! I wear them pretty tight, but not oncomfortabel tight!
Some of you guys already know, I can't live without my shapewear! 🤗 These undies are not the most sexy, comfy or pretty, but for me they are my world! 🌐 When I started to wear these shapewear undies the possibilities were endless in regards to the clothes I could wear again. No more 'bag bulging' above jeans, no more annoying heavy bag on my belly. Even no more noises from my ileostomy because air doesn't have to room (works the same way as placing your hand over your ostomy when it makes sound). You can buy these undies at almost every lingerie store and Primark and such! I wear them pretty tight, but not oncomfortabel tight!
I honestly can’t even explain how tired I am at the minute. Fatigue is like all the energy in your body has leaked out and been replaced by lead weights.  Doing one thing at the minute means days in bed recovering and man, it is getting me down. Im lucky I work from home and can lay on the sofa whilst I work but I’m really struggling and so fed up. No one seems to have  any answers to why I feel so drained nor can they offer a solution.  I wish I could explain to anyone who thinks people with fatigue are lazy, I try to explain to my husband (who doesn’t think I’m lazy!!!) by asking him to imagine a stinking hangover teamed with having just run a marathon... #fatigue sucks 😩 #IBD #ulcerativecolitis #ostomy #ileostomy #tiredaf #tiredallthetime
I honestly can’t even explain how tired I am at the minute. Fatigue is like all the energy in your body has leaked out and been replaced by lead weights. Doing one thing at the minute means days in bed recovering and man, it is getting me down. Im lucky I work from home and can lay on the sofa whilst I work but I’m really struggling and so fed up. No one seems to have any answers to why I feel so drained nor can they offer a solution. I wish I could explain to anyone who thinks people with fatigue are lazy, I try to explain to my husband (who doesn’t think I’m lazy!!!) by asking him to imagine a stinking hangover teamed with having just run a marathon... #fatigue  sucks 😩 #IBD  #ulcerativecolitis  #ostomy  #ileostomy  #tiredaf  #tiredallthetime 
Woke up not wanting to workout then took a look at my check in photo to my coach.  Less than 4 weeks left so guess what I’m doing now?? Yup getting the workout in!  #BeYourOwnMotivation #doitforyou #mondaymotivation #monday #fitnessamerica #loveyourbodynomatterwhat #lifeinanostomy #ostomy #savagenotaverage
Only one more day until the crowdfunder is launched on @crowdfunderuk 💥🚀🌎
✨ So you may ask what is it all about, well Jasmine Stacey Collection has reached a point whereby we need added funding to be able to continue what we love to do best which is design, manufacture and empower men/women with stoma's, stretch marks and any body confidence issues. ✨ We are a brand which focuses on body positivity in lingerie looking at comfort, intimacy and luxury fabrics to ensure your experience makes you feel 1 million dollars and acts a springboard to your acceptance journey. ✨I am releasing two new collections tomorrow for pre-order at a whopping 50% off with some really special experiences thrown in.
Only one more day until the crowdfunder is launched on @crowdfunderuk 💥🚀🌎 ✨ So you may ask what is it all about, well Jasmine Stacey Collection has reached a point whereby we need added funding to be able to continue what we love to do best which is design, manufacture and empower men/women with stoma's, stretch marks and any body confidence issues. ✨ We are a brand which focuses on body positivity in lingerie looking at comfort, intimacy and luxury fabrics to ensure your experience makes you feel 1 million dollars and acts a springboard to your acceptance journey. ✨I am releasing two new collections tomorrow for pre-order at a whopping 50% off with some really special experiences thrown in.
At the gym! 💪🏼👊🏼✊🏼🏋🏻‍♀️ Still getting use to this facial hair! I swear, when I look in the mirror, for a split second I see my dad who passed away on Sep. 5 1996. Well, 2 more weeks and I’ll be back to my clean-cut boyish looking self again 😏😉 #gym #gymtime #crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #ostomates #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness  #superstoma #stomalife #ostomyawareness
At the gym! 💪🏼👊🏼✊🏼🏋🏻‍♀️ Still getting use to this facial hair! I swear, when I look in the mirror, for a split second I see my dad who passed away on Sep. 5 1996. Well, 2 more weeks and I’ll be back to my clean-cut boyish looking self again 😏😉 #gym  #gymtime  #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #ostomates  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Happy Monday! New blog!

Link in bio or check out https://baggedandbeautiful.blogspot.com/
Happy Monday! New blog! Link in bio or check out https://baggedandbeautiful.blogspot.com/
Yup! U can’t exactly have the “lemons” immediately, right? Lol! 😁🤷🏻‍♂️ They have to come from somewhere! #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
@Regranned from @brooklyn.greetings -  Still recovering, but things are coming together. You might say they're bagged. 💩💩💩
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#poop #poopjokes #colon #stomies #stoma #jpouch #frontbutt #ostomy #ostomybag #ileostomy #colostomybag #ibd #ibdawareness #crohnsdisease  #greetingcards #bathroomhumor #guthealth #gotguts #gutitout #nocolonstillrollin  #Tiffieldtwins2  #regrann  #billy2 #ileostomy #barbiebutt #crohns #stoma #panprotocolectomy
@Regranned from @brooklyn.greetings - Still recovering, but things are coming together. You might say they're bagged. 💩💩💩 . . . #poop  #poopjokes  #colon  #stomies  #stoma  #jpouch  #frontbutt  #ostomy  #ostomybag  #ileostomy  #colostomybag  #ibd  #ibdawareness  #crohnsdisease  #greetingcards  #bathroomhumor  #guthealth  #gotguts  #gutitout  #nocolonstillrollin  #Tiffieldtwins2  #regrann  #billy2  #ileostomy  #barbiebutt  #crohns  #stoma  #panprotocolectomy 
Sad but true. A smart person is willing to accept hard concrete proof and evidence but a stupid person believes they're right and everyone else is wrong. It’s just not worth stooping to their level and have a headache later  #billmurray #billmurrayquotes #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
Sad but true. A smart person is willing to accept hard concrete proof and evidence but a stupid person believes they're right and everyone else is wrong. It’s just not worth stooping to their level and have a headache later #billmurray  #billmurrayquotes  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Happy birthday to me! 🥂🎈🎉
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My birthday is today & got the day off work. Yay! I had delicious birthday cake yesterday (thanks Mum!), amazing Korean Crab Soufflé for breaky (thanks @doublecrossespressobar), got an Alice in Wonderland tarot deck (thanks Hubby) and blue skies (thanks universe!)
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The last year was full of ups and downs, but the main event was my total colectomy and getting my freedom back. Forever grateful!
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Although I had a very low key birthday - my real present is going to going to Japan this New Year. SUPER excited is an understatement 😊
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#ostomy #ileostomy #ostomyawareness #ostomate #ibd #ibs #uc #ulcerativecolitis #crohns #crohnsandcolitis #nocolonstillrollin #gutitout #ibdwarrior #staystrong #staypositive #gratitude #birthday #birthdaycake #bluesky #aliceinwonderland #wonderlandtarot #souffle #breaky #cafelife #sydney
Happy birthday to me! 🥂🎈🎉 ••• My birthday is today & got the day off work. Yay! I had delicious birthday cake yesterday (thanks Mum!), amazing Korean Crab Soufflé for breaky (thanks @doublecrossespressobar), got an Alice in Wonderland tarot deck (thanks Hubby) and blue skies (thanks universe!) ••• The last year was full of ups and downs, but the main event was my total colectomy and getting my freedom back. Forever grateful! ••• Although I had a very low key birthday - my real present is going to going to Japan this New Year. SUPER excited is an understatement 😊 ••• #ostomy  #ileostomy  #ostomyawareness  #ostomate  #ibd  #ibs  #uc  #ulcerativecolitis  #crohns  #crohnsandcolitis  #nocolonstillrollin  #gutitout  #ibdwarrior  #staystrong  #staypositive  #gratitude  #birthday  #birthdaycake  #bluesky  #aliceinwonderland  #wonderlandtarot  #souffle  #breaky  #cafelife  #sydney 
Bagless stoma + drying yourself on a bath rug= no bueno. 🙈😥😒💩 #ostomyproblems #whyme #ostomy #ostomates #colostomy
My early #mcm. I never take for granted having a husband that not only prays for me but with me. Where 2 or more are gathered in his name God is there. Going in for some big medical decisions tomorrow. Very nervous but I see Gods mercy in my life every time those blue eyes smile back at me, those big arms wrap me up and he prays over me with a kiss on the forehead and Amen. #blessed
My early #mcm . I never take for granted having a husband that not only prays for me but with me. Where 2 or more are gathered in his name God is there. Going in for some big medical decisions tomorrow. Very nervous but I see Gods mercy in my life every time those blue eyes smile back at me, those big arms wrap me up and he prays over me with a kiss on the forehead and Amen. #blessed 
👉 BRAIN MRI w/without contrast - 2 nurses - 4 IV attempts 🙄
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I'm not claustrophobic, but yikes I forgot how tight things feel with the head straps & cage around you for an hour during imaging 😝
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We left at 530am to drive 2hrs in rush hour. Only to arrive & almost have my test canceled 😳 No one told me that hospital policy requires patients with 12 or more drug allergies to be pre-medicated 24hrs ahead of time... BUT I'm glad that I'm the type of patient who doesn't take no for an answer 🤷🏻‍♀️🤣 because I managed to talk the radiology tech into paging Neuro for special approval. Although I was not technically "pre-medicated" with the required Prednisone/Benedryl - my daily meds already consist of steroids for my current #crohns flare & antihistamines for #mastcell management. The tech was so nice about it though & was happy I spoke up.
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I initially went to this new neurologist for a 2nd opinion consult on my recent #dysautonomia #POTS #autonomicneuropathy diagnoses. He was super sweet & thorough. And agreed with the prior neurologist. He also wanted the brain MRI to make sure we weren't missing anything given my • increased migraines • ringing/clogged ears • eye pressure • vision changes (double/blurred/floaters)... My right eye also temporarily drooped & my pupil went inward (like a lazy eye) - which was so random/strange.
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Anyways, I anxiously waited 9 days for the results. BUT I'm happy the MRI came back normal 🤗 #lifeofaspoonie #anotherdayanotherdoctor
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#chronicallyill #potssyndrome #potsie #survivor #spoonie #invisibledisease #crohnsdisease #migraine #autoimmunedisease #migraines #ostomy #fibromyalgia #chronicpain #nocolonstillrollin #invisibleillness #chronicillness #hospital #mentalhealth #ibd #autoimmune #eds #ehlersdanlos#posturalorthostatictachycardiasyndrome
📷: @crohns_spoonie
👉 BRAIN MRI w/without contrast - 2 nurses - 4 IV attempts 🙄 . I'm not claustrophobic, but yikes I forgot how tight things feel with the head straps & cage around you for an hour during imaging 😝 . We left at 530am to drive 2hrs in rush hour. Only to arrive & almost have my test canceled 😳 No one told me that hospital policy requires patients with 12 or more drug allergies to be pre-medicated 24hrs ahead of time... BUT I'm glad that I'm the type of patient who doesn't take no for an answer 🤷🏻‍♀️🤣 because I managed to talk the radiology tech into paging Neuro for special approval. Although I was not technically "pre-medicated" with the required Prednisone/Benedryl - my daily meds already consist of steroids for my current #crohns  flare & antihistamines for #mastcell  management. The tech was so nice about it though & was happy I spoke up. . I initially went to this new neurologist for a 2nd opinion consult on my recent #dysautonomia  #POTS  #autonomicneuropathy  diagnoses. He was super sweet & thorough. And agreed with the prior neurologist. He also wanted the brain MRI to make sure we weren't missing anything given my • increased migraines • ringing/clogged ears • eye pressure • vision changes (double/blurred/floaters)... My right eye also temporarily drooped & my pupil went inward (like a lazy eye) - which was so random/strange. . Anyways, I anxiously waited 9 days for the results. BUT I'm happy the MRI came back normal 🤗 #lifeofaspoonie  #anotherdayanotherdoctor  . . . . . . . . . . . #chronicallyill  #potssyndrome  #potsie  #survivor  #spoonie  #invisibledisease  #crohnsdisease  #migraine  #autoimmunedisease  #migraines  #ostomy  #fibromyalgia  #chronicpain  #nocolonstillrollin  #invisibleillness  #chronicillness  #hospital  #mentalhealth  #ibd  #autoimmune  #eds  #ehlersdanlos #posturalorthostatictachycardiasyndrome  📷: @crohns_spoonie
@wegohealth The 5th Annual Patient Advocacy Summit begins tomorrow...
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#awardsdinner #insideoutostomy #ostomy #patient #ostomate #winning #shockedbuthappy #ileostomy #blogger #healthadvocate #ostomates #stoma
Last week I got a call from my surgeon’s nurse to schedule my second surgery. While the day after Christmas isn’t an ideal surgery date because it means we will be making the 6 hour drive to Mayo Clinic on Christmas Day, my family is very supportive and willing to make it work! I asked the nurse to put me on the waiting list, so we’re praying that a surgery date will become available earlier in December and my surgeon will be willing to move my surgery up a little bit allowing us to be home for Christmas. ❤️ #ulcerativecolitis #nocolonstillrollin #uc #inflammatoryboweldisease #ibd #gutitout #lifetakesguts #mayoclinic #colorectalsurgery #ostomy #ostomate #ostomates #ileostomy #girlswithguts #coloplastsensuramio #coloplast #jpouch #jpouchlife #homeforchristmas
Last week I got a call from my surgeon’s nurse to schedule my second surgery. While the day after Christmas isn’t an ideal surgery date because it means we will be making the 6 hour drive to Mayo Clinic on Christmas Day, my family is very supportive and willing to make it work! I asked the nurse to put me on the waiting list, so we’re praying that a surgery date will become available earlier in December and my surgeon will be willing to move my surgery up a little bit allowing us to be home for Christmas. ❤️ #ulcerativecolitis  #nocolonstillrollin  #uc  #inflammatoryboweldisease  #ibd  #gutitout  #lifetakesguts  #mayoclinic  #colorectalsurgery  #ostomy  #ostomate  #ostomates  #ileostomy  #girlswithguts  #coloplastsensuramio  #coloplast  #jpouch  #jpouchlife  #homeforchristmas 
One year ago today, I ran 10 miles in training for my upcoming Spartan Race in Dallas. I was planning on flying out to Texas five days later to race with Thomas, so I knew I needed a new racing shirt. I went out to buy a shirt, and texted Thomas that I looked really bloated, almost like I was pregnant. I chalked it up to weird body perceptions, and didn’t think much of it. I went home and ate dinner, not feeling good at all in my stomach, again attributing it to nervousness and stress. I told Thomas that night that I didn’t feel great, but that I wasn’t worried because I never got stomach bugs. Little did I know that October 22 would become a day that will always have significance to me, because it’s the day that my digestive system truly started to fail me. 
I had limped along for two decades, but a perfect storm had been brewing and just waiting for the right time to strike. For the next sixteen days, I’ll be remembering what happened this time last year, and I figured it would be the right time to talk a little bit about the “incident” that started it all. There are some real gems of pictures (as well as a pretty solid post-anesthesia video) coming your way in the coming days. So don’t worry - I’m not back in the hospital - I’m just trying to share a story that a lot of you haven’t heard before. Stay tuned ... #mollyollyostomy #ileostomy #ostomy #chronicillness #invisibleillness #spoonie #nocolonstillrollin #ostomates #stoma #girlswithguts #ittakesguts #chronicallymotivated #posturalorthostatictachycardiasyndrome #POTS #dysautonomia #EDS #EhlersDanlosSyndrome
One year ago today, I ran 10 miles in training for my upcoming Spartan Race in Dallas. I was planning on flying out to Texas five days later to race with Thomas, so I knew I needed a new racing shirt. I went out to buy a shirt, and texted Thomas that I looked really bloated, almost like I was pregnant. I chalked it up to weird body perceptions, and didn’t think much of it. I went home and ate dinner, not feeling good at all in my stomach, again attributing it to nervousness and stress. I told Thomas that night that I didn’t feel great, but that I wasn’t worried because I never got stomach bugs. Little did I know that October 22 would become a day that will always have significance to me, because it’s the day that my digestive system truly started to fail me. I had limped along for two decades, but a perfect storm had been brewing and just waiting for the right time to strike. For the next sixteen days, I’ll be remembering what happened this time last year, and I figured it would be the right time to talk a little bit about the “incident” that started it all. There are some real gems of pictures (as well as a pretty solid post-anesthesia video) coming your way in the coming days. So don’t worry - I’m not back in the hospital - I’m just trying to share a story that a lot of you haven’t heard before. Stay tuned ... #mollyollyostomy  #ileostomy  #ostomy  #chronicillness  #invisibleillness  #spoonie  #nocolonstillrollin  #ostomates  #stoma  #girlswithguts  #ittakesguts  #chronicallymotivated  #posturalorthostatictachycardiasyndrome  #POTS  #dysautonomia  #EDS  #EhlersDanlosSyndrome 
WARNING ⚠️ GRAPHIC PHOTO ⚠️ Well maybe not because the lighting really sucks in my bathroom 😂 Since some people have shown off their stomas I’d thought I’d share mine since I have a bag change and I’m fresh outta the shower! As u can somewhat see I have to shave around the area on my abdomen for every other bag change because of my “man hairs” lol! Some of the doctors that I have seen have said my stoma looks really big. Never really gave it much thought but I’ve been like “whatever” about for 10 years because it’s always looked the same to me. Not an easy picture for me to share but I’m feeling the fear and I’m gonna do it anyways 💪🏼✊🏼👊🏼 Also, I like how some of u out there have given nicknames for ur stomas 😊 Never really gave mine much thought. Oh well 🤷🏻‍♂️#crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness #instacrohns
WARNING ⚠️ GRAPHIC PHOTO ⚠️ Well maybe not because the lighting really sucks in my bathroom 😂 Since some people have shown off their stomas I’d thought I’d share mine since I have a bag change and I’m fresh outta the shower! As u can somewhat see I have to shave around the area on my abdomen for every other bag change because of my “man hairs” lol! Some of the doctors that I have seen have said my stoma looks really big. Never really gave it much thought but I’ve been like “whatever” about for 10 years because it’s always looked the same to me. Not an easy picture for me to share but I’m feeling the fear and I’m gonna do it anyways 💪🏼✊🏼👊🏼 Also, I like how some of u out there have given nicknames for ur stomas 😊 Never really gave mine much thought. Oh well 🤷🏻‍♂️#crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness  #instacrohns 
Can't believe it!!!! Massive thanks to @inkabella_tattoo_penarth;  the best,  coolest tattoo artist ever. This will be filmed too for their new YouTube channel so go check it out after Halloween. Can't fooking wait!!! 🤘😊 One very happy crohnie.

#chronicillness #crohnssucks #crohns #crohnsdisease #panproctocolectomy #ileostomy #illness #ibd #ostomyawareness #ostomy #stoma #spoonie #noarsehole #nocolonstillrollin #tattoo #tattoos #slimer #ghostbusters #onehappymuthafucka
Can't believe it!!!! Massive thanks to @inkabella_tattoo_penarth; the best, coolest tattoo artist ever. This will be filmed too for their new YouTube channel so go check it out after Halloween. Can't fooking wait!!! 🤘😊 One very happy crohnie. #chronicillness  #crohnssucks  #crohns  #crohnsdisease  #panproctocolectomy  #ileostomy  #illness  #ibd  #ostomyawareness  #ostomy  #stoma  #spoonie  #noarsehole  #nocolonstillrollin  #tattoo  #tattoos  #slimer  #ghostbusters  #onehappymuthafucka 
Ready to take on step 2 of the jpouch process 💪🏻
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Arrival time is 6 am tomorrow and boy am I’m ready to get this over with - only thing to do until then is take a bunch of antibiotics and wait...
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Hoping for no unexpected hiccups and that everything goes smoothly🤞🏻I’ll be sure to provide updates as soon as I can!
Ready to take on step 2 of the jpouch process 💪🏻 . Arrival time is 6 am tomorrow and boy am I’m ready to get this over with - only thing to do until then is take a bunch of antibiotics and wait... . Hoping for no unexpected hiccups and that everything goes smoothly🤞🏻I’ll be sure to provide updates as soon as I can!
Why do you work out?

My main goal isn't to look in certain way, it is to feel the feelings of having control over my body. That I can shape my mind and muscles to do things that isn't mainstream.

At the moment my training is a bit back to where I was about 10 years ago. I had a fitness inspired dream before all that got wrecked with Crohn's disease. 
However this new journey has only started and the body I start with now is built from 95% mountainbiking. So I am a bit curious what consistent weight training will result in. Hopefully there will be some response.. Most of all, my training is a really small part of my life right now, but it makes a huge difference in the quality of life.
It’s the transformation of the mind that is really interesting!

#nofilter 
#startsomewhere #fitness #gym #upperbodyday #inked #inkedup #guyswithink #blackandgreytattoos #inkedfather #sleevetattoo #dragon #crohnsdisease #tattoos #ink #crohnsfitness #crohnssjukdom #crohnsdiseaseawareness #ostomy #ostomyawareness #stomi #stomiochträning #singledad #ensamståendepappa #saknarminabarn #livetärspännande #minväg #träning #hakulpåvägen #barakör
Why do you work out? My main goal isn't to look in certain way, it is to feel the feelings of having control over my body. That I can shape my mind and muscles to do things that isn't mainstream. At the moment my training is a bit back to where I was about 10 years ago. I had a fitness inspired dream before all that got wrecked with Crohn's disease. However this new journey has only started and the body I start with now is built from 95% mountainbiking. So I am a bit curious what consistent weight training will result in. Hopefully there will be some response.. Most of all, my training is a really small part of my life right now, but it makes a huge difference in the quality of life. It’s the transformation of the mind that is really interesting! #nofilter  #startsomewhere  #fitness  #gym  #upperbodyday  #inked  #inkedup  #guyswithink  #blackandgreytattoos  #inkedfather  #sleevetattoo  #dragon  #crohnsdisease  #tattoos  #ink  #crohnsfitness  #crohnssjukdom  #crohnsdiseaseawareness  #ostomy  #ostomyawareness  #stomi  #stomiochträning  #singledad  #ensamståendepappa  #saknarminabarn  #livetärspännande  #minväg  #träning  #hakulpåvägen  #barakör 
Finally Got To Walk For Myself & My Fellow Crohn’s & Colitis Warriors To Help Find A Cure ✊🏼💜💪🏼 Shouts To My Baby Sis & Step Pops For Coming To Support 💕 #TakeStepsTampa #Crohns #Colitis #Ostomy #Love #Support
Bath, bubbles & book! Bliss when someone has done it for u! 👌😍 #bath #bubblebath #book #bookworm #martinacole #relax #metime #peaceful  #lucky #happy #invisibleillness #chronicillness #ileostomy #ostomy #ostomate
Bonne nuit la #crohnsfamily! Plein de courage pour cette nouvelle semaine. Pour moi c’est repos à la maison! Toujours en maladie due à la complication 3 de ma stomie que vous connaîtrez bientôt! 
#goodnight les p’tis choux 🌸
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#afa #ibd #fightcrohns #stomie #ileostomy #stomy
#mici #vaincrelesmici #maladiedecrohn #maladiedemerde #crohn #crohnsgirl #crohnie #crohndisease #crohnfighter #crohnsdisease #crohnsmom #crohnslife #crohnfighteuse #likeforlike #like4like #maladie #ostomy #ostomybag #ostomygirl #ostomylife
Bonne nuit la #crohnsfamily ! Plein de courage pour cette nouvelle semaine. Pour moi c’est repos à la maison! Toujours en maladie due à la complication 3 de ma stomie que vous connaîtrez bientôt! #goodnight  les p’tis choux 🌸 . . . . . #afa  #ibd  #fightcrohns  #stomie  #ileostomy  #stomy  #mici  #vaincrelesmici  #maladiedecrohn  #maladiedemerde  #crohn  #crohnsgirl  #crohnie  #crohndisease  #crohnfighter  #crohnsdisease  #crohnsmom  #crohnslife  #crohnfighteuse  #likeforlike  #like4like  #maladie  #ostomy  #ostomybag  #ostomygirl  #ostomylife 
I missed the best years of my life to Ulcerative Colitis. While all my friends were getting University degrees and travelling the world I was fighting a losing battle with body. Since regaining my health after surgery my priority has been to just have fun. I wanted a year dedicated purely to saying ‘yes’ to everything I once couldn’t. Lately, I’ve been receiving comments from strangers saying they wish they were me. At first it really upset me because I knew I was being judged on what I looked like without any knowledge of what I’ve been through. Now I just remind myself not to take it personally - people make assumptions based on the chapter of your life they walk in on. Little do they know I'm hiding a bag of poo under my clothes! Having an invisible illness has really taught me to never judge anyone on how they appear, and to never wish you were anyone but yourself. We’re all fighting our own silent battles that others know nothing about.
I missed the best years of my life to Ulcerative Colitis. While all my friends were getting University degrees and travelling the world I was fighting a losing battle with body. Since regaining my health after surgery my priority has been to just have fun. I wanted a year dedicated purely to saying ‘yes’ to everything I once couldn’t. Lately, I’ve been receiving comments from strangers saying they wish they were me. At first it really upset me because I knew I was being judged on what I looked like without any knowledge of what I’ve been through. Now I just remind myself not to take it personally - people make assumptions based on the chapter of your life they walk in on. Little do they know I'm hiding a bag of poo under my clothes! Having an invisible illness has really taught me to never judge anyone on how they appear, and to never wish you were anyone but yourself. We’re all fighting our own silent battles that others know nothing about.
Things are busy at #JordansSquad Headquarters!! I’m SO thankful for everyone’s love and support throughout this journey!🙏🏼♥️💛💙 Shirts are in and getting sorted as we speak!! If you ordered, please don’t forget to send us your address. Our PayPal is: Sammy.ng@hotmail.com 💙💛♥️ #CIPO #CIPOawareness #JordansJourney #SuperThanks #Strongerthanherillness #StrongerTogether #chronicillness #chronicillnessfighter #tpn #tpndependent #ostomate #ostomy #nocolonstillrollin #invisibleillness #invisibleillnessawareness 💪🏼♥️💛💙
Things are busy at #JordansSquad  Headquarters!! I’m SO thankful for everyone’s love and support throughout this journey!🙏🏼♥️💛💙 Shirts are in and getting sorted as we speak!! If you ordered, please don’t forget to send us your address. Our PayPal is: Sammy.ng@hotmail.com 💙💛♥️ #CIPO  #CIPOawareness  #JordansJourney  #SuperThanks  #Strongerthanherillness  #StrongerTogether  #chronicillness  #chronicillnessfighter  #tpn  #tpndependent  #ostomate  #ostomy  #nocolonstillrollin  #invisibleillness  #invisibleillnessawareness  💪🏼♥️💛💙