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Iately.. i’ve been driving around with my doors locked.. sunroof open but guards up.. removing myself from any situation at the first sign or inkling of a red flag.. a red flag for me is a disrespect committed against me.. a person can ‘not’ know they did a thing that made me feel a feeling I didn’t like.. & they can continue about their lives unbothered. 
I‘m always the one left feeling all of the things so.. if I remove myself it’s because I have the sharpest tongue & an affinity for words & when mixed together, you get an asshole.. I’m an asshole when I’m hurt, & I make no apologies cause at this point.. well really, at ‘no’ point have I ever deserved hurt.. I’ve had too much of it.. y’all can keep the rest.
This is why I don’t make a good friend.. don’t choose me.. choose the better people. Choose the sane folks.
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Book Preorders available in my Etsy shop. Link in Bio. .
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#dannilittle #tiwoaum #poetry #book #invisibleillness #crohns #feelings #suicide #depression #writings #musings #pain #crohnsdisease #crohns #ibd #trauma #bodypositive #art #ostomy  #stoma #scars #blackgirlmagic #woc #strength #courage #wocwriters
Iately.. i’ve been driving around with my doors locked.. sunroof open but guards up.. removing myself from any situation at the first sign or inkling of a red flag.. a red flag for me is a disrespect committed against me.. a person can ‘not’ know they did a thing that made me feel a feeling I didn’t like.. & they can continue about their lives unbothered. I‘m always the one left feeling all of the things so.. if I remove myself it’s because I have the sharpest tongue & an affinity for words & when mixed together, you get an asshole.. I’m an asshole when I’m hurt, & I make no apologies cause at this point.. well really, at ‘no’ point have I ever deserved hurt.. I’ve had too much of it.. y’all can keep the rest. This is why I don’t make a good friend.. don’t choose me.. choose the better people. Choose the sane folks. . . Book Preorders available in my Etsy shop. Link in Bio. . . . #dannilittle  #tiwoaum  #poetry  #book  #invisibleillness  #crohns  #feelings  #suicide  #depression  #writings  #musings  #pain  #crohnsdisease  #crohns  #ibd  #trauma  #bodypositive  #art  #ostomy  #stoma  #scars  #blackgirlmagic  #woc  #strength  #courage  #wocwriters 
Gaining a little weight, scars are slowly stretching, and feeling so good... but I seem to have misplaced my buttocks. It’s been missing for a while, and it was somehow replaced with a weird skin flap that rests on the back of my thighs like a limp beaver tail. 🤨 Not suitable for sitting on hard surfaces or filling out leggings, so if you see a cute round butt, please return it to its worried owner. 😂😂
Gaining a little weight, scars are slowly stretching, and feeling so good... but I seem to have misplaced my buttocks. It’s been missing for a while, and it was somehow replaced with a weird skin flap that rests on the back of my thighs like a limp beaver tail. 🤨 Not suitable for sitting on hard surfaces or filling out leggings, so if you see a cute round butt, please return it to its worried owner. 😂😂
I am absolutely exhausted. I’m yet to fall asleep because my pain hasn’t settled despite having some pretty big dosages of pain meds through the night and I am really over this pain.... I’m trying to sleep but it hurts. I’ve never had this pain before and it is really really bad like up there with some of the worst pain I’ve had. ✨
I’m just utterly scared as it feels bad. What if this is the start of the end? I’m scared, I’m tired and I’m frustrated with myself at feeling unresolved with my affairs. Will I ever feel like “okay everything is right now?”... I’m tired, I’m sore, I’m in agony and I’m irritable. Palliative care are coming today. I feel like they’re going to tell me to go to hospital but don’t want to. I just want to be comfortable. I want this pain to ease, even enough to sleep. I can’t walk it hurts. Sitting it hurts. Laying down it hurts. I feel it’s getting worse. ✨
And I’m scared.... wonder what my scan will show, that has me even more scared too.... hoping to get sleep today between visits and calls.❤️ wish me luck and strength to get through today, I really am holding out hope that tomorrow will be a better day. Thanks for listening and for being kind to me it is a comfort to know I’m loved and supported. Today we try the new pain meds regime, pall care visiting and showing how to make up new medications, hoping to get a date for my scan too... hoping I avoid hospital and that I still have a little bit more time. .
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 #cancer #ostomy #pain #scared #dyingat26 #palliativecare
I am absolutely exhausted. I’m yet to fall asleep because my pain hasn’t settled despite having some pretty big dosages of pain meds through the night and I am really over this pain.... I’m trying to sleep but it hurts. I’ve never had this pain before and it is really really bad like up there with some of the worst pain I’ve had. ✨ I’m just utterly scared as it feels bad. What if this is the start of the end? I’m scared, I’m tired and I’m frustrated with myself at feeling unresolved with my affairs. Will I ever feel like “okay everything is right now?”... I’m tired, I’m sore, I’m in agony and I’m irritable. Palliative care are coming today. I feel like they’re going to tell me to go to hospital but don’t want to. I just want to be comfortable. I want this pain to ease, even enough to sleep. I can’t walk it hurts. Sitting it hurts. Laying down it hurts. I feel it’s getting worse. ✨ And I’m scared.... wonder what my scan will show, that has me even more scared too.... hoping to get sleep today between visits and calls.❤️ wish me luck and strength to get through today, I really am holding out hope that tomorrow will be a better day. Thanks for listening and for being kind to me it is a comfort to know I’m loved and supported. Today we try the new pain meds regime, pall care visiting and showing how to make up new medications, hoping to get a date for my scan too... hoping I avoid hospital and that I still have a little bit more time. . . . . #cancer  #ostomy  #pain  #scared  #dyingat26  #palliativecare 
I have only just restarted my account but hopefully a lot of people will see this. 
To all of you who are struggling whether it be physical illness, mental illness, emotional pain anything well done for fighting. Well done for hanging in there when it feels like you’ve got nothing left to give the world. You are much stronger than you’ll ever realise. You’ve experienced and suffered with more than majority of people would of done in their lifetime. 
You are strong. 
You are awesome. 
You are a fighter. 
You are loved. ❤️
#spoonie #chronicpain #chronicillness #mentalhealth #mentalillness #battle #fight #EUPD #depression #anxiety #paranoia #OCD #struggling #warriors #fighters #survivors #ostomy #colostomy #ostomate #loved
I have only just restarted my account but hopefully a lot of people will see this. To all of you who are struggling whether it be physical illness, mental illness, emotional pain anything well done for fighting. Well done for hanging in there when it feels like you’ve got nothing left to give the world. You are much stronger than you’ll ever realise. You’ve experienced and suffered with more than majority of people would of done in their lifetime. You are strong. You are awesome. You are a fighter. You are loved. ❤️ #spoonie  #chronicpain  #chronicillness  #mentalhealth  #mentalillness  #battle  #fight  #EUPD  #depression  #anxiety  #paranoia  #OCD  #struggling  #warriors  #fighters  #survivors  #ostomy  #colostomy  #ostomate  #loved 
IBD & hair loss (& gain!) 💇‍♀️
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IBD & medication side effects can cause hair loss. Another reason why IBD is much more than just a gastrointestinal disease. I never realised how bad my hair loss got, until I slowly developed an thin unintentional mullet a couple years ago! I have no idea if it was imuran, 6MP, entyvio, infliximab, prednisone, stress or lack of nutrients that caused this. Surgery can cause hair loss, my hair dresser told me this was a normal reaction. Shame this hair loss isn’t able to be targeted - eg on my legs 😂
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6 months on from surgery I’m grateful my hair is starting to grow back! But my eyebrows aren’t - swipe for the before makeup shot 😖
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Has any Ostomate tried cosmetic tattoo eyebrows? Feathering or micro-blading?
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Side note: I use organic Ere Perez makeup products (foundation, eyebrow pencil, mascara, eye liner) and love them ❤️
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#ostomy #ileostomy #ostomyawareness #ostomate #ibd #ibs #uc #ibdlife #ulcerativecolitis #crohnsandcolitis #nocolonstillrollin #ibdwarrior #staystrong #staypositive #ibdlife #spoonie #spooniefam #ostomyawareness #invisibleillness #ibdawareness #selfie #autoimmune #happy #gratitude #grateful #positivity #mindful #makeup #eyebrows #ereperez #makeupselfie #nomakeup
IBD & hair loss (& gain!) 💇‍♀️ • IBD & medication side effects can cause hair loss. Another reason why IBD is much more than just a gastrointestinal disease. I never realised how bad my hair loss got, until I slowly developed an thin unintentional mullet a couple years ago! I have no idea if it was imuran, 6MP, entyvio, infliximab, prednisone, stress or lack of nutrients that caused this. Surgery can cause hair loss, my hair dresser told me this was a normal reaction. Shame this hair loss isn’t able to be targeted - eg on my legs 😂 • 6 months on from surgery I’m grateful my hair is starting to grow back! But my eyebrows aren’t - swipe for the before makeup shot 😖 • Has any Ostomate tried cosmetic tattoo eyebrows? Feathering or micro-blading? • Side note: I use organic Ere Perez makeup products (foundation, eyebrow pencil, mascara, eye liner) and love them ❤️ ••• #ostomy  #ileostomy  #ostomyawareness  #ostomate  #ibd  #ibs  #uc  #ibdlife  #ulcerativecolitis  #crohnsandcolitis  #nocolonstillrollin  #ibdwarrior  #staystrong  #staypositive  #ibdlife  #spoonie  #spooniefam  #ostomyawareness  #invisibleillness  #ibdawareness  #selfie  #autoimmune  #happy  #gratitude  #grateful  #positivity  #mindful  #makeup  #eyebrows  #ereperez  #makeupselfie  #nomakeup 
It’s a good thing I had the day yesterday to focus on school work because today was spent either napping or at an appointment. My arthritis is still bothering me and it flares the most at night. It starts around 3am and I find that there is no position that will alleviate the pain in my back. My mind is dead tired but my body is screaming to get out of bed. I woke up to see my acupuncturist, came home to sleep, went to physical therapy, came back home to sleep and now I need to get ready for my class tonight. Napping is a very essential part of my day!
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#invisibleillness #ibd #ibdwarrior #ibdawareness #ibdadvocate #ostomy #ostomate #ostomyawareness #stoma #ileostomy #ulcerativecolitis #crohns #pyodermagangrenosum #arthritis #nocolonstillrollin #ittakesguts #girlswithguts #spoonie
It’s a good thing I had the day yesterday to focus on school work because today was spent either napping or at an appointment. My arthritis is still bothering me and it flares the most at night. It starts around 3am and I find that there is no position that will alleviate the pain in my back. My mind is dead tired but my body is screaming to get out of bed. I woke up to see my acupuncturist, came home to sleep, went to physical therapy, came back home to sleep and now I need to get ready for my class tonight. Napping is a very essential part of my day! . . . #invisibleillness  #ibd  #ibdwarrior  #ibdawareness  #ibdadvocate  #ostomy  #ostomate  #ostomyawareness  #stoma  #ileostomy  #ulcerativecolitis  #crohns  #pyodermagangrenosum  #arthritis  #nocolonstillrollin  #ittakesguts  #girlswithguts  #spoonie 
Photo one was while I was in hospital it began to open. Three and four show it as it starts to get bigger. 5 is underneath the scar is stretching and is opening in a second place. 6th photo is where it stretched to a point they had to cut it open. What you can see there is my internal stitches. 7th photo is the top of my incision and my stoma when it was formed. 8th photo is how it looks now. It finally closed up halfway through December (5and a half months on) however still has odd scabbing in the middle and rubs a lot. 9 and 10 shows how indebted my tummy is now when I stand. I call it my ‘front bum’ as much as I may joke it really has ruined what little body confidence I had (if any) i do feel ruined and like a monster. 
However this surgery saved my life. I am grateful for my life but I hate feeling like this. 
#spoonie #chronicillness #ostomy #colostomy #ostomate #stoma #surgery #emergencysurgery #bowel #sepsissurvivor #wound #openwound #progression #graphic
Photo one was while I was in hospital it began to open. Three and four show it as it starts to get bigger. 5 is underneath the scar is stretching and is opening in a second place. 6th photo is where it stretched to a point they had to cut it open. What you can see there is my internal stitches. 7th photo is the top of my incision and my stoma when it was formed. 8th photo is how it looks now. It finally closed up halfway through December (5and a half months on) however still has odd scabbing in the middle and rubs a lot. 9 and 10 shows how indebted my tummy is now when I stand. I call it my ‘front bum’ as much as I may joke it really has ruined what little body confidence I had (if any) i do feel ruined and like a monster. However this surgery saved my life. I am grateful for my life but I hate feeling like this. #spoonie  #chronicillness  #ostomy  #colostomy  #ostomate  #stoma  #surgery  #emergencysurgery  #bowel  #sepsissurvivor  #wound  #openwound  #progression  #graphic 
Here is my little update. I feel amazing.  I have moved up to a low fiber diet, I am showering on my own, and I have changed and emptied the ostomy 🙂 Life. Is. Good. The staff at Riverside have been great and there is rumors of maybe going home tomorrow. There is a small issue with swallowing but the surgery team is working on it. Thank you for all the thoughts and prayers. This is just a small step to a much better life! Don’t be afraid to tell your story. It’s all about the journey!! #jpouch #uc #ostomy
Here is my little update. I feel amazing. I have moved up to a low fiber diet, I am showering on my own, and I have changed and emptied the ostomy 🙂 Life. Is. Good. The staff at Riverside have been great and there is rumors of maybe going home tomorrow. There is a small issue with swallowing but the surgery team is working on it. Thank you for all the thoughts and prayers. This is just a small step to a much better life! Don’t be afraid to tell your story. It’s all about the journey!! #jpouch  #uc  #ostomy 
Having a #stoma doesn’t always mean giving up your hobbies ⚽️ our protective Stoma Shield Belt come in high and low dome profile and protects from accidental knocks and bumps. #sash #sashstomabelt #colostomy #ileostomy #urostomy #ostomy #ostomate #stomabag #ostomyproblems #parastomalhernia #ibd #chrons #colitis #bowelcancer
It’s crazy knowing that there’s just 1 week between these photos.. Today I decided to get up and make myself feel a little better by putting on a bit of makeup. My boyfriend Jake took me out for a walk 😂🐶 I thought it would be nice to get out of the house and to be more active. No one would even know that I’d had surgery just a week ago.. that’s why it’s called invisible illness, and that’s what I’m most passionate in raising awareness of. You have NO idea what someone has to go through.. So always try your best to be nice, kind & supportive to everyone around you ☺️ You never know what’s behind closed doors!
It’s crazy knowing that there’s just 1 week between these photos.. Today I decided to get up and make myself feel a little better by putting on a bit of makeup. My boyfriend Jake took me out for a walk 😂🐶 I thought it would be nice to get out of the house and to be more active. No one would even know that I’d had surgery just a week ago.. that’s why it’s called invisible illness, and that’s what I’m most passionate in raising awareness of. You have NO idea what someone has to go through.. So always try your best to be nice, kind & supportive to everyone around you ☺️ You never know what’s behind closed doors!
Just met my surgeon for my post-op appointment in LBK (he flies to Lubbock once a month which is huge for me!!). Everything is on track and everything I’m experiencing is normal. I was also given a bunch of tips for pouching! What’s the point for the running Huck pictures? 1) cuteness 2)When my surgeon asked me if I was walking I told him “yes, all the time: I have a dog that always wants/needs to go outside!” He laughed and said “Good! I’m going to take note of that and suggest that for people recovering to get them walking. Get a small energetic dog! I like that!” #aussieandanostomy
Just met my surgeon for my post-op appointment in LBK (he flies to Lubbock once a month which is huge for me!!). Everything is on track and everything I’m experiencing is normal. I was also given a bunch of tips for pouching! What’s the point for the running Huck pictures? 1) cuteness 2)When my surgeon asked me if I was walking I told him “yes, all the time: I have a dog that always wants/needs to go outside!” He laughed and said “Good! I’m going to take note of that and suggest that for people recovering to get them walking. Get a small energetic dog! I like that!” #aussieandanostomy 
Don´t let your stoma change your lifestyle!
#Stomabags #Ostomy
https://goo.gl/hHVNFq

#ostomy #ibd #ostomybag #ostomylife #ileostomy  #ostomate #ostomyawareness #stoma
“I didn’t want this. I don’t want any of this.”
Those were the only words that I could get out as I sat in front of my mom with tears streaming down my face several evenings ago.
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When I began my blog and Instagram, my goal was to inspire and spread as much positivity as possible. With that being said, I also feel as if it is important for me to also share the not-so-positive times. The times when the weight of my illness becomes too much for, even someone who is positive most of the time, to bear. My battle with Inflammatory Bowel Disease has changed my body in a permanent way; I will never see my body without an ileostomy again. I have come a long way in accepting my journey, but, just as with any loss, I still grieve. Sometimes I am overwhelmed with a sickening, helpless feeling, a feeling that breaks my heart in a million pieces. I have no alternative options, no j-pouch to try for again; the changes that have occurred to my body are now a permanent part of me.
Permanent. Forever.
Most days I accept these changes with an open heart, using my journey to raise awareness and help others as much as possible. But I am only human and some days, it is just too much for me.
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You could research for hours, days, and months about what to expect after a life-changing surgery, but nothing will ever prepare you for the emotional impact that comes with such a change. But please know that It DOES get better. I have promised myself that, even on the days when I feel the most sadness, I will find the light. And if I can’t find it, I will be the light.
“I didn’t want this. I don’t want any of this.” Those were the only words that I could get out as I sat in front of my mom with tears streaming down my face several evenings ago. ___ When I began my blog and Instagram, my goal was to inspire and spread as much positivity as possible. With that being said, I also feel as if it is important for me to also share the not-so-positive times. The times when the weight of my illness becomes too much for, even someone who is positive most of the time, to bear. My battle with Inflammatory Bowel Disease has changed my body in a permanent way; I will never see my body without an ileostomy again. I have come a long way in accepting my journey, but, just as with any loss, I still grieve. Sometimes I am overwhelmed with a sickening, helpless feeling, a feeling that breaks my heart in a million pieces. I have no alternative options, no j-pouch to try for again; the changes that have occurred to my body are now a permanent part of me. Permanent. Forever. Most days I accept these changes with an open heart, using my journey to raise awareness and help others as much as possible. But I am only human and some days, it is just too much for me. ___ You could research for hours, days, and months about what to expect after a life-changing surgery, but nothing will ever prepare you for the emotional impact that comes with such a change. But please know that It DOES get better. I have promised myself that, even on the days when I feel the most sadness, I will find the light. And if I can’t find it, I will be the light.
Bientôt reprise du sport 🏊🏋
#crohn #cancer #ostomy #stomie  #colostomy #colostomie #moche #ugly
Yes, yes and yes! I do everything I can, to be as ‘normal’ as I can be but it is definitely difficult at times! #qotd#ibd#ostomy
Yes, yes and yes! I do everything I can, to be as ‘normal’ as I can be but it is definitely difficult at times! #qotd #ibd #ostomy 
Ma petite fille heureuse 😍 ou folle? Ou les deux? La folie c’est de famille! 
Un petit post juste mignon aujourd’hui. Pas de Crohn, rien d’autre juste elle quoi! #amoredimamma (Demain, je reparlerai de monsieur Crohn).
Belle soirée mes chats 😽🌸
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 #ostomy #ostomylife #ileostomy #maladiedecrohn #crohn #crohnfighteuse #crohnfighter #maladiechronique
My current life motto •Healing Vibes Only•
Forever loving this shirt from @gloryvsguts Etsy page ✌🏻
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#ileostomy #crohnsdisease #nocolonstillrollin #ostomate #ostomy #ostomybag #ostomyawareness #stoma #healingvibesonly
About 2.5 years ago now I was diagnosed with Erythema Nodosum.
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For those that don’t know it’s a rare skin condition that causes pain red lumps (nodules) that radiate heat on your skin usually your legs. Mine occurred on both my shins and my right arm. It happened shortly after a really bad strep throat diagnosis and really storing clindamycin.
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When I was admitted to Peterborough ER they thought it was serum sickness from the clindamycin, literally getting sick from being sick, sounds like a Crohn’s thing to do 🙄 .
The next day the lovely doctor diagnosed me with Erythema Nodosum. Which I’ve been told is quite rare and doctors either see it only once or never. It’s also supposed to be a one time thing, they heal you up and that’s it never again .
Now we’ve all been naive in thinking Crohn’s would be kind to us for once and then quickly reminded that’s not how our lives work.
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So now I have reoccurring EN, thankful I don’t get the painful nodules but I do get the everlasting arthritis symptoms. Thank god for pain meds right now. In this cold winter weather I’ve been waking up every day with horrible arthritis pain and just simple closing my hands is a task all in itself. The arthritis manifests itself in my feet and hands mostly but also in my knees and hips on occasion
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#ileostomy #crohnsdisease #nocolonstillrollin #ostomate #ostomy #ostomybag #ostomyawareness #stoma #erythemanodosum
About 2.5 years ago now I was diagnosed with Erythema Nodosum. . For those that don’t know it’s a rare skin condition that causes pain red lumps (nodules) that radiate heat on your skin usually your legs. Mine occurred on both my shins and my right arm. It happened shortly after a really bad strep throat diagnosis and really storing clindamycin. . When I was admitted to Peterborough ER they thought it was serum sickness from the clindamycin, literally getting sick from being sick, sounds like a Crohn’s thing to do 🙄 . The next day the lovely doctor diagnosed me with Erythema Nodosum. Which I’ve been told is quite rare and doctors either see it only once or never. It’s also supposed to be a one time thing, they heal you up and that’s it never again . Now we’ve all been naive in thinking Crohn’s would be kind to us for once and then quickly reminded that’s not how our lives work. . So now I have reoccurring EN, thankful I don’t get the painful nodules but I do get the everlasting arthritis symptoms. Thank god for pain meds right now. In this cold winter weather I’ve been waking up every day with horrible arthritis pain and just simple closing my hands is a task all in itself. The arthritis manifests itself in my feet and hands mostly but also in my knees and hips on occasion . • • • • #ileostomy  #crohnsdisease  #nocolonstillrollin  #ostomate  #ostomy  #ostomybag  #ostomyawareness  #stoma  #erythemanodosum 
•VACASTOMA•
My family is skiing, me and Stoma just relaxing. 
This year me and Stoma takin it slow cus its feels best that way. 
Maby we be skiing next time. 
I love skiing but since my accident im scared. 
Guys, whats your hobby? 
Any snow sports? 
#ostomy #ostomybag #ostomylife #ostomyawareness #stomi #stomiliv #stomipåse #stoma #stomu #stomalaukku #stomie #stomia #στομίας #オストミー 
#造口術 #ostomiji #stomijne #стомы #ostomía #ostomi #minresaräknas #sweden #sverige #vimedbarn #älskarlivet #lovelife #livelife #lovelifethefullest #snowsports
•VACASTOMA• My family is skiing, me and Stoma just relaxing. This year me and Stoma takin it slow cus its feels best that way. Maby we be skiing next time. I love skiing but since my accident im scared. Guys, whats your hobby? Any snow sports? #ostomy  #ostomybag  #ostomylife  #ostomyawareness  #stomi  #stomiliv  #stomipåse  #stoma  #stomu  #stomalaukku  #stomie  #stomia  #στομίας  #オストミー  #造口術  #ostomiji  #stomijne  #стомы  #ostomía  #ostomi  #minresaräknas  #sweden  #sverige  #vimedbarn  #älskarlivet  #lovelife  #livelife  #lovelifethefullest  #snowsports 
There's a certain feeling of excitement when you unbox an order of ostomy supplies 😂😂 That said, this is nearly $350 later.
There's a certain feeling of excitement when you unbox an order of ostomy supplies 😂😂 That said, this is nearly $350 later.
Another week, another installment of ‘Melissa Marshall’s Bag of Tricks and Ostomy Tips’. Today’s topic? Flying with your ostomy. Click the link in our bio to read the latest post✈️
#ostomy #ostomate #ostomyBag #ostomylife #getyourbellyout #ostomyblog #blog #health #travel #invisibleillness #tsa #cancersurvivor #ostomates #traveling #ostomyawareness #colorectalcancer
#tuesdaysthoughts💭 "Strength doesn't come from what you CAN do. It comes from overcoming the things you once thought you couldn't." If dancing was once a hobby of yours, and you're thinking you can longer go out and have a great time, think again! Dust off your heels, boots or kicks and dance do your melody! 
#whatbag #ostomy #stoma #ileostomy #kickthedustup #drinkinhand #countrygirl #shakeitforme #dance #justdance #overcomefear #anxiety #stressrelief #lifequotes  #crohnsdisease #colitis #Autoimmunedisease #supporteachother #dancewithme #mentalhealthawareness #
#tuesdaysthoughts 💭 "Strength doesn't come from what you CAN do. It comes from overcoming the things you once thought you couldn't." If dancing was once a hobby of yours, and you're thinking you can longer go out and have a great time, think again! Dust off your heels, boots or kicks and dance do your melody! #whatbag  #ostomy  #stoma  #ileostomy  #kickthedustup  #drinkinhand  #countrygirl  #shakeitforme  #dance  #justdance  #overcomefear  #anxiety  #stressrelief  #lifequotes  #crohnsdisease  #colitis  #Autoimmunedisease  #supporteachother  #dancewithme  #mentalhealthawareness  #
Pflasterentferner-Spray von Rossmann. Ich glaube, dass das eine gute Alternative zu den teuren Produkten der Stomafirmen ist. Keine 5€ hat es gekostet. Beim nächsten Plattenwechsel probiere ich es aus und werde mal berichten wie es ist. #stoma #pflasterentferner #spray #remover #ostomate #ostomy #morbuscrohn #ced #crohnsdisease #ibd #followme 💕💕💕
Reposting something my new #ostomate friend @agent_crohns shared!! Isn’t this the truth! I’m sure everyone’s intentions were/are good but it’s honestly freaking exhausting hearing all the suggestions from outsiders who think they have a cure (not to mention that just about every piece of advice was conflicting)Like I am sure Activia yogurt cured your mild diarrhea but girl what I have is a whole different beast. A huge beast at that. What was the craziest suggestion you were ever told? .
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#ostomy #ostomate #colectomy #jpouch #ibd #chronicdisease #ileostomy #gutitout #nocolonstillrollin #gutless #recovery #chronic #UC #UlcerativeColitis #stoma  #ostomyawareness #storiesofgutlessglory #girlswithguts
Reposting something my new #ostomate  friend @agent_crohns shared!! Isn’t this the truth! I’m sure everyone’s intentions were/are good but it’s honestly freaking exhausting hearing all the suggestions from outsiders who think they have a cure (not to mention that just about every piece of advice was conflicting)Like I am sure Activia yogurt cured your mild diarrhea but girl what I have is a whole different beast. A huge beast at that. What was the craziest suggestion you were ever told? . . #ostomy  #ostomate  #colectomy  #jpouch  #ibd  #chronicdisease  #ileostomy  #gutitout  #nocolonstillrollin  #gutless  #recovery  #chronic  #UC  #UlcerativeColitis  #stoma  #ostomyawareness  #storiesofgutlessglory  #girlswithguts 
I’ve often had people ask me how I stay so strong amidst the challenges I face. I try my best to be a resilient person, but I don’t have some sort of “secret” as to how I stay sane and positive (for the most part). For me, having my boyfriend by my side while watching a comedy (in this case, The Office!) has always been a wonderful distraction. Love and laughter are truly the best medicines. ❤️
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#boyfriend #theoffice #ostomate #ileostomy #ostomy #stoma #girlswithguts #ostomyawareness #chronicillness #invisibleillness #spoonie #chronicallymotivated #eds #ehlersdanlossyndrome #zebrastrong #asthma #dysautonomia #orthostatichypotension #pots #mastcellactivationsyndrome #endometriosis #endowarrior #klippelfeilsyndrome
I’ve often had people ask me how I stay so strong amidst the challenges I face. I try my best to be a resilient person, but I don’t have some sort of “secret” as to how I stay sane and positive (for the most part). For me, having my boyfriend by my side while watching a comedy (in this case, The Office!) has always been a wonderful distraction. Love and laughter are truly the best medicines. ❤️ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #boyfriend  #theoffice  #ostomate  #ileostomy  #ostomy  #stoma  #girlswithguts  #ostomyawareness  #chronicillness  #invisibleillness  #spoonie  #chronicallymotivated  #eds  #ehlersdanlossyndrome  #zebrastrong  #asthma  #dysautonomia  #orthostatichypotension  #pots  #mastcellactivationsyndrome  #endometriosis  #endowarrior  #klippelfeilsyndrome 
Don’t forget to follow my blog posts! I’m an open book, and love sharing my journey& life to all ♥️—Link in bio 😘 #beautifullymade #insideandout #blogger #openbook #ostomyawareness #ostomate #ostomates #ostomylife #fashion #ostomyfitness #style #ostomy #invisibledisease #autoimmunedisease #UC #ulcerativecolitis
We love hearing from YOU! This review is from a long-time customer's mom.  Her little girl is absolutely adorable and we are so happy to be a part of their story! ⠀
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Tell us YOUR Gus Gear story - - email to info@gusgear.net or message us so we can share your story!⠀
#GusGearLove⠀
#testimonial⠀
#sharethelove⠀
#gusgear #ostomy #tubie ⠀⠀⠀⠀⠀⠀
#ileostomy #colostomy #centrallines #gtube #jtube #gjtube⠀⠀⠀⠀⠀
#chronicillness #shortgutsowhat #shortgutsyndrome #shortgut #broviac #hickman #TPN #sbs #raredisease #gastroparesis #HPN #gastroschisis #hirschsprungsdisease #nec #invisibleillness #specialneedsmom #spoonie #medicallycomplex
We love hearing from YOU! This review is from a long-time customer's mom. Her little girl is absolutely adorable and we are so happy to be a part of their story! ⠀ ⠀ Tell us YOUR Gus Gear story - - email to info@gusgear.net or message us so we can share your story!⠀ #GusGearLove ⠀ #testimonial ⠀ #sharethelove ⠀ #gusgear  #ostomy  #tubie  ⠀⠀⠀⠀⠀⠀ #ileostomy  #colostomy  #centrallines  #gtube  #jtube  #gjtube ⠀⠀⠀⠀⠀ #chronicillness  #shortgutsowhat  #shortgutsyndrome  #shortgut  #broviac  #hickman  #TPN  #sbs  #raredisease  #gastroparesis  #HPN  #gastroschisis  #hirschsprungsdisease  #nec  #invisibleillness  #specialneedsmom  #spoonie  #medicallycomplex 
Post 2 of 2:... continuing on ✨
Ahhh what a day today and yesterday have been.
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So tomorrow palliative care are coming for a home visit and will be demonstrating how to make up my new pain meds and hopefully they’ll know more about when my scan is... they’re trying to squeeze me in ASAP so just matter of when.
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Today I’ve had bad pain so been sleeping. Not long woke and about to go try and sit up for a bit I’m sore from laying down.
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Pain was that bad since this afternoon that I can’t even walk without bawling, even sitting it’s so painful. I’m just hurting so bad it feels like my tumour is strangling my kidney and leg and hip and feels like it’s crushing me on the inside... I am in absolute agony.
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I’m just so scared. I hate feeling my body deteriorating like this and I feel like it’s scary waiting for what will happen the next day on bad days like today - I’m scared of what’s next.
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Sorry for being quiet I’ve just been trying to process it all and trying to hide and sleep it’s just a little overwhelming right now.
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Russ is struggling he is being so strong when I’m around but I know it’s hard on him. When it’s just me in those appointments I kind of quickly go over what was chatted about and gloss over it and I guess it’s different hearing the updates from me than hearing it for himself. So I’ve been giving him his space too.
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It’s just a little hard. ✨
Like we aren’t in denial that I’m dying just some days we realise how precious the good days are. I’m glad for making it on Sunday though, my poor brother breaking his arm and needing surgery wasn’t ideal but I’m just really grateful for those few hours chatting with them. It was a nice day out.
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I’ll update when I know more on the scan. ✨
Lots of love and thanks for the support Talya xx
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#cancer #ostomy #justalongupdate #scared #alwayshopefortomorrow #palliativecare #dyingat26 #cancersucks
Post 2 of 2:... continuing on ✨ Ahhh what a day today and yesterday have been. ✨ So tomorrow palliative care are coming for a home visit and will be demonstrating how to make up my new pain meds and hopefully they’ll know more about when my scan is... they’re trying to squeeze me in ASAP so just matter of when. ✨ Today I’ve had bad pain so been sleeping. Not long woke and about to go try and sit up for a bit I’m sore from laying down. ✨ Pain was that bad since this afternoon that I can’t even walk without bawling, even sitting it’s so painful. I’m just hurting so bad it feels like my tumour is strangling my kidney and leg and hip and feels like it’s crushing me on the inside... I am in absolute agony. ✨ I’m just so scared. I hate feeling my body deteriorating like this and I feel like it’s scary waiting for what will happen the next day on bad days like today - I’m scared of what’s next. ✨ Sorry for being quiet I’ve just been trying to process it all and trying to hide and sleep it’s just a little overwhelming right now. ✨ Russ is struggling he is being so strong when I’m around but I know it’s hard on him. When it’s just me in those appointments I kind of quickly go over what was chatted about and gloss over it and I guess it’s different hearing the updates from me than hearing it for himself. So I’ve been giving him his space too. ✨ It’s just a little hard. ✨ Like we aren’t in denial that I’m dying just some days we realise how precious the good days are. I’m glad for making it on Sunday though, my poor brother breaking his arm and needing surgery wasn’t ideal but I’m just really grateful for those few hours chatting with them. It was a nice day out. ✨ I’ll update when I know more on the scan. ✨ Lots of love and thanks for the support Talya xx . . . . #cancer  #ostomy  #justalongupdate  #scared  #alwayshopefortomorrow  #palliativecare  #dyingat26  #cancersucks 
Check out our brand new website launched today! 
Grab yourself a bargain at our clearance sale!!! #ostomy #stoma #urology #colostomy #ileostomy #stomaunderwear #highwaisted #mens #ladies #sale #newwebsite
In a world where you can be anything, be kind.
In a world where you can be anything, be kind.
I wanted to give you all a HUGE THANK YOU for all your support these last few days!
It means the absolute world to me💜
We are not alone in this and I think every one of you are so strong.
I hope you all have a fantastic positive Tuesday💜
ps. Yes I was watching Bob’s Burgers 😉😎☝🏻
I wanted to give you all a HUGE THANK YOU for all your support these last few days! It means the absolute world to me💜 We are not alone in this and I think every one of you are so strong. I hope you all have a fantastic positive Tuesday💜 ps. Yes I was watching Bob’s Burgers 😉😎☝🏻
⚔️ inspire ⚔️ Have a shot from the best day of my life. My wedding day. A day I never thought I would see ever. I always thought 'who would want to spend the rest of their life with me' . Growing up I have had my fair share of health issues. Mostly to do with bowel conditions. Doctors didn't even know why or what was wrong. I found a partner in crime in @covensupreme who fell in love with me even with my flaws. She has made me stronger than I could ever have imagined. So in September I took the jump and went in for a colostomy. And it has changed our lives. No matter what is 'wrong' with you. There is always someone out there for you. Live your life happy and full of positivity. I've always been a happy go lucky all round weirdo. But now I can do it even more so. Love the life you have and keep your head up. Thanks to @stoma_style for my sick bag cover. It went down a treat. •••••••••••••••••••••••••••••••••••••••••
⚔ΒΣΛЯDΣDVILLΛΙИS.IЯΣLΛИD⚔
•••••••••••••••••••••••••••••••••••••••••
#beardedvillains #beardedvillainsireland #bvic #homenationsvillains
#beardedvillainseurope #bveurope #beardedvillainsworldwide #riseofthebrotherhood #villainsalute #stayvillain #staybearded #stayloyal #respect #loyaltymakesyoufamily #loyalvillain #irishchapter #irishvillains #riseoftheirishchapter #beardedforlife #oneshiponebrotherhood #bvicvillain #bvicvillainsalute #beardsofinstagram #bvfamily #colostomybag #colostomy #rockoutwithyourbagout #ostomy #stoma #bagforlife🚽 •••••••••••••••••••••••••••••••••••••••••
My Brotherhood - @beardedvillains
My President - @von_knox
My Chapter - @beardedvillains.ireland
Captain - @owenmccann
Co.Captain - @lotso_mma
Enforcement Officer - @bilbobaggins83
Scout - @mike.walker.65
Scout - @bearded_mutt
Merch - @oreaganxxv
⚔️ inspire ⚔️ Have a shot from the best day of my life. My wedding day. A day I never thought I would see ever. I always thought 'who would want to spend the rest of their life with me' . Growing up I have had my fair share of health issues. Mostly to do with bowel conditions. Doctors didn't even know why or what was wrong. I found a partner in crime in @covensupreme who fell in love with me even with my flaws. She has made me stronger than I could ever have imagined. So in September I took the jump and went in for a colostomy. And it has changed our lives. No matter what is 'wrong' with you. There is always someone out there for you. Live your life happy and full of positivity. I've always been a happy go lucky all round weirdo. But now I can do it even more so. Love the life you have and keep your head up. Thanks to @stoma_style for my sick bag cover. It went down a treat. ••••••••••••••••••••••••••••••••••••••••• ⚔ΒΣΛЯDΣDVILLΛΙИS.IЯΣLΛИD⚔ ••••••••••••••••••••••••••••••••••••••••• #beardedvillains  #beardedvillainsireland  #bvic  #homenationsvillains  #beardedvillainseurope  #bveurope  #beardedvillainsworldwide  #riseofthebrotherhood  #villainsalute  #stayvillain  #staybearded  #stayloyal  #respect  #loyaltymakesyoufamily  #loyalvillain  #irishchapter  #irishvillains  #riseoftheirishchapter  #beardedforlife  #oneshiponebrotherhood  #bvicvillain  #bvicvillainsalute  #beardsofinstagram  #bvfamily  #colostomybag  #colostomy  #rockoutwithyourbagout  #ostomy  #stoma  #bagforlife 🚽 ••••••••••••••••••••••••••••••••••••••••• My Brotherhood - @beardedvillains My President - @von_knox My Chapter - @beardedvillains.ireland Captain - @owenmccann Co.Captain - @lotso_mma Enforcement Officer - @bilbobaggins83 Scout - @mike.walker.65 Scout - @bearded_mutt Merch - @oreaganxxv
Tried for a quick 5k today and was going ok till the last bit, when I almost died. Had to stop cause I couldn’t keep going. Ran out of steam and I convinced myself there wasn’t enough distance left on the route to make up the remaining half k (not true). #badattitude 😭🤷🏽‍♂️ #ileum4eva #ulcerativecolitis #colitis #crohnsdisease #crohns #crohnsandcolitisuk #jpouch #stoma #ostomy #colostomy #ibd #inflammatoryboweldisease #ileostomy #nocolonnoproblem #colonfreezone #raiseawareness #instarunners #irun #marathontraining #marathon #running #run #viennacitymarathon #toughmudder #training #justgiving #sponsor #linkinbio
Tried for a quick 5k today and was going ok till the last bit, when I almost died. Had to stop cause I couldn’t keep going. Ran out of steam and I convinced myself there wasn’t enough distance left on the route to make up the remaining half k (not true). #badattitude  😭🤷🏽‍♂️ #ileum4eva  #ulcerativecolitis  #colitis  #crohnsdisease  #crohns  #crohnsandcolitisuk  #jpouch  #stoma  #ostomy  #colostomy  #ibd  #inflammatoryboweldisease  #ileostomy  #nocolonnoproblem  #colonfreezone  #raiseawareness  #instarunners  #irun  #marathontraining  #marathon  #running  #run  #viennacitymarathon  #toughmudder  #training  #justgiving  #sponsor  #linkinbio 
Preparando la colección de bandas de baño para ostomias. Pensando en el veranito, que ganas. www.missbowel.com  ##ostomizados #ostomizadas #ostomy #ostomias #ostomate #ostomiasinlimites #ostomiasintabu #ostomybag #bolsaostomias
Today is the today I get back to the gym 💪
I’m gunna stay away from abs for a bit longer but it’s time to get fit again.
I can’t wait!
Operation beach bag body is underway 👙 ..
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#ileostomy #ostomate #ostomy #ostomyfitness #stomabag #stoma #ileostomyfitness #adidas #thisgirlcan #fitness #ucawareness #ibd #nocolonstillrollin
When your bag cover matches your top😎🙌🏻
🔻
So after my surgery (one in June, & one in July) I was so weak & couldn’t do much (I was 68lbs!) so I started making bag covers for my bags.
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I think it was a healing thing for me and to help accept it, so then for my birthday I got a sewing machine (sept) and now it’s actually something I enjoy and never knew I was capable of!
🔻
I’ll make another post later with some covers I made😊
When your bag cover matches your top😎🙌🏻 🔻 So after my surgery (one in June, & one in July) I was so weak & couldn’t do much (I was 68lbs!) so I started making bag covers for my bags. 🔻 I think it was a healing thing for me and to help accept it, so then for my birthday I got a sewing machine (sept) and now it’s actually something I enjoy and never knew I was capable of! 🔻 I’ll make another post later with some covers I made😊
All next photos are very graphic⚠️ Ileostomy pictures (with complications) up close (very close) so don't swipe if you don't want to see such a thing!!! .
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I wanted to show you guys some problems I had in the past, and some that are pretty recent. Just so you can see it's not always rainbows and unicorns but most things can be overcome! ❤
I put the numbers of the explanation on the pictures! .
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1. 
Fistula's around my ileostomy! On this pic one hole is obvious but there were 5 at one point! The fistulas disappeared when I started Humira 😥.
Also you can see a Crohn's ulcur, eating up my bowel! They had to remove more small intestine to stop this from spreading.

2. 
Discoloration of the ileostomy, solved on it's own after a while! 
3. 
My skin responded to the stitches, this happened about 4 weeks after my surgery! I solved it by using aquacell! 
4.
This is how my skin responded to extreme heat during summer! 
By using the Cavilon 3M barrier cream it's all solved.

5.
My skin has some problems with te edges of the wafer/flange (of the sensura mio in particularly) I used to trim off some edges but only when I started using Cavilon 3M barrier cream it totally solved!

6.
A few days after my surgery, stitches are still there, but the intestine didn't want to properly attach to the skin and heal! 
It took some time, but it solved on it's own! 
7.
Psoriasis under my wafer/flange. 
This pic is from a week ago, I couldn't get it away for months by using natural products so I decided to use some steriod cream. My skin is already cleared up big time! .
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This is absolutely not meant to be a "you have to do this/you have to try this" post!
With this post I just wanted to let you all see that skin and ostomy problems are pretty common. 
They are not fun at all, and of course a downside to owning an ostomy.
But all I learned trough this is that you have to keep hope, calm and common sense! 😗
All next photos are very graphic⚠️ Ileostomy pictures (with complications) up close (very close) so don't swipe if you don't want to see such a thing!!! . . I wanted to show you guys some problems I had in the past, and some that are pretty recent. Just so you can see it's not always rainbows and unicorns but most things can be overcome! ❤ I put the numbers of the explanation on the pictures! . . 1. Fistula's around my ileostomy! On this pic one hole is obvious but there were 5 at one point! The fistulas disappeared when I started Humira 😥. Also you can see a Crohn's ulcur, eating up my bowel! They had to remove more small intestine to stop this from spreading. 2. Discoloration of the ileostomy, solved on it's own after a while! 3. My skin responded to the stitches, this happened about 4 weeks after my surgery! I solved it by using aquacell! 4. This is how my skin responded to extreme heat during summer! By using the Cavilon 3M barrier cream it's all solved. 5. My skin has some problems with te edges of the wafer/flange (of the sensura mio in particularly) I used to trim off some edges but only when I started using Cavilon 3M barrier cream it totally solved! 6. A few days after my surgery, stitches are still there, but the intestine didn't want to properly attach to the skin and heal! It took some time, but it solved on it's own! 7. Psoriasis under my wafer/flange. This pic is from a week ago, I couldn't get it away for months by using natural products so I decided to use some steriod cream. My skin is already cleared up big time! . . This is absolutely not meant to be a "you have to do this/you have to try this" post! With this post I just wanted to let you all see that skin and ostomy problems are pretty common. They are not fun at all, and of course a downside to owning an ostomy. But all I learned trough this is that you have to keep hope, calm and common sense! 😗
This has been me all weekend. And now. 
Make plans to exercise, do housework etc
You wake up. Your entire body hurts, your mind is very foggy and you cannot see or think clearly. Then you wonder why are you even awake. I often just lie on the floor staring at the ceiling for ages no idea why just do. 
Hands up if it’s one of these days for you?
#spoonie #chronicpain #chronicillness #ostomy #ostomate #productive #yourday #mentalhealth #mentalillness #brainfog #EUPD #depression #eupd #anxiety #paranoia #pain #tired #exhausted
This has been me all weekend. And now. Make plans to exercise, do housework etc You wake up. Your entire body hurts, your mind is very foggy and you cannot see or think clearly. Then you wonder why are you even awake. I often just lie on the floor staring at the ceiling for ages no idea why just do. Hands up if it’s one of these days for you? #spoonie  #chronicpain  #chronicillness  #ostomy  #ostomate  #productive  #yourday  #mentalhealth  #mentalillness  #brainfog  #EUPD  #depression  #eupd  #anxiety  #paranoia  #pain  #tired  #exhausted 
4/5th July 2017
This is the first time I saw my face. Think it was maybe 11pm or 1am I can’t remember. I’d lost two stone in a couple of weeks. I could no longer walk or sit up myself. Was on TPN and still had a high fever. I now had 26 staples and a colostomy. 
Photo 2 - Couple of days later 
I got help and got assisted to the bathroom finally. I hated having a catheter. I saw myself in the mirror. I definitely looked like death. 
Photo 3 - Several weeks later maybe a month
I did an article for Colostomy UK for colostomy awareness day. I look confident here but I’m really really not. 
#spoonie #chronicillness #ostomy #ostomate #colostomy #sepsis #sepsissurvivor #hospital #surgery #bowel # emergencysurgery #scary #colostomyday
4/5th July 2017 This is the first time I saw my face. Think it was maybe 11pm or 1am I can’t remember. I’d lost two stone in a couple of weeks. I could no longer walk or sit up myself. Was on TPN and still had a high fever. I now had 26 staples and a colostomy. Photo 2 - Couple of days later I got help and got assisted to the bathroom finally. I hated having a catheter. I saw myself in the mirror. I definitely looked like death. Photo 3 - Several weeks later maybe a month I did an article for Colostomy UK for colostomy awareness day. I look confident here but I’m really really not. #spoonie  #chronicillness  #ostomy  #ostomate  #colostomy  #sepsis  #sepsissurvivor  #hospital  #surgery  #bowel  # emergencysurgery #scary  #colostomyday 
Photo 1 - 19th June 2017
I had my bowel resection to resolve my reoccurring rectal prolapse. The hospital OD me on morphine causing me to become unconscious and stop breathing. This photo was about 10hours after I went for surgery. 
Photo 2 - 19th June 2017 (night)
I lost ALOT of blood and needed two blood transfusions. 
Photo 3 - 20th June 2017
People said I looked like a different person after having them. I felt like one too!
Photo 4 - 4/5th July 2017
I woke up to find I have a central line. 28th June I was rushed into hospital by ambulance. I was told my bowel has come open and I had been leaking into my abdomen for several days. I needed emergency surgery. The next day I was taken down. This photo was the first I remember. I had been put into a medically induced coma as I had severe sepsis and almost lost my life..... I spent my birthday in this coma....
#spoonie #ostomy #colostomy #bowel #ostomate #chronicillness #hospital #surgery #illness #scary #transfusion
Photo 1 - 19th June 2017 I had my bowel resection to resolve my reoccurring rectal prolapse. The hospital OD me on morphine causing me to become unconscious and stop breathing. This photo was about 10hours after I went for surgery. Photo 2 - 19th June 2017 (night) I lost ALOT of blood and needed two blood transfusions. Photo 3 - 20th June 2017 People said I looked like a different person after having them. I felt like one too! Photo 4 - 4/5th July 2017 I woke up to find I have a central line. 28th June I was rushed into hospital by ambulance. I was told my bowel has come open and I had been leaking into my abdomen for several days. I needed emergency surgery. The next day I was taken down. This photo was the first I remember. I had been put into a medically induced coma as I had severe sepsis and almost lost my life..... I spent my birthday in this coma.... #spoonie  #ostomy  #colostomy  #bowel  #ostomate  #chronicillness  #hospital  #surgery  #illness  #scary  #transfusion 
@Regranned from @pouch_by_pouch -  @pink_bits celebrating beautiful strong bodies! 
Thank you xx

#stoma #ileostomy #pouch #ostomy #ostomyawareness #ostomate #stomaproud #pinkbits - #regrann  #bjjwiki
*Finger Snaps
Practice Practice Practice.. I’ve been studying people my entire life.. lately I’ve been focusing more on the theatrical side of my performance.. gonna sink deeper into this piece.. gonna make folks feel it, more. 😘🖤✨
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Buy my book ☺️🤗💛✨
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I stole this vid from @brasshole81 Thank you for allowing me the opportunity to perform at #taponpalooza it meant a lot. #thebaltimoregallery 
#dannilittle #tiwoaum #poetry #book #invisibleillness #crohns #feelings #suicide #depression #writings #musings #pain #crohnsdisease #crohns #ibd #trauma #bodypositive #art #ostomy  #stoma #scars #blackgirlmagic #woc #strength #courage
*Finger Snaps Practice Practice Practice.. I’ve been studying people my entire life.. lately I’ve been focusing more on the theatrical side of my performance.. gonna sink deeper into this piece.. gonna make folks feel it, more. 😘🖤✨ . . Buy my book ☺️🤗💛✨ . . I stole this vid from @brasshole81 Thank you for allowing me the opportunity to perform at #taponpalooza  it meant a lot. #thebaltimoregallery  #dannilittle  #tiwoaum  #poetry  #book  #invisibleillness  #crohns  #feelings  #suicide  #depression  #writings  #musings  #pain  #crohnsdisease  #crohns  #ibd  #trauma  #bodypositive  #art  #ostomy  #stoma  #scars  #blackgirlmagic  #woc  #strength  #courage 
Major nom! Spicy beetroot, lettuce and a wrap with a bowl of tomato soup. Beyond hitting the spot! This Tuesday started out quite bad and now it’s turning around! Bring on yogalates later and I’ll be Zen’d the f out!
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#fitness #healthy #workout #dietchefuk #weightloss #gymlife #igfitness #irunthisbody #motivation #instagood #mindfulness #girlgains #girlswholift #dietchef #ulcerativecolitisfighter #colitiswarrior #ostomy #miltonkeynes #fitfam #fitgirl #thisgirlcan #mk #sheddingforthewedding #happyme #momswithink #redheadsdoitbetter #fitspo #yogalates #fitlife #fattofit
Major nom! Spicy beetroot, lettuce and a wrap with a bowl of tomato soup. Beyond hitting the spot! This Tuesday started out quite bad and now it’s turning around! Bring on yogalates later and I’ll be Zen’d the f out! ... ... ... #fitness  #healthy  #workout  #dietchefuk  #weightloss  #gymlife  #igfitness  #irunthisbody  #motivation  #instagood  #mindfulness  #girlgains  #girlswholift  #dietchef  #ulcerativecolitisfighter  #colitiswarrior  #ostomy  #miltonkeynes  #fitfam  #fitgirl  #thisgirlcan  #mk  #sheddingforthewedding  #happyme  #momswithink  #redheadsdoitbetter  #fitspo  #yogalates  #fitlife  #fattofit 
💜 Do you live in the Midlands UK? 💜
Would you like to meet up with other ostomates? IBD Warriors? Come and join us on the 24th Feb for a yummy Carvery!
**See second pic for more details**
#ileostomy #ibd #ostomy #midlands #mealout #family #advocate
💜 Do you live in the Midlands UK? 💜 Would you like to meet up with other ostomates? IBD Warriors? Come and join us on the 24th Feb for a yummy Carvery! **See second pic for more details** #ileostomy  #ibd  #ostomy  #midlands  #mealout  #family  #advocate 
What about this beautiful combination, 3 for £18! 
Phone us on 01417630991 or email sales@vblush.com 
#ostomy #ostomyfashion #ostomyunderwear #confidence #fashion
No refunds or exchanges
LEARNING............
Many years ago my yoga teacher gave me these beautiful words. They touched me deeply then and still give me goosebumps when I read them today. With my blog soon to launch it seems appropriate to share them with you.......I hope you enjoy them 🙏💕🙏💕
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I always thought the poem was called ‘Learning’ and I never knew the author. Today I found out it is actually called ‘After A While’ by Veronica A Shaffstall. 
#positivethoughts #healthblog #selflove #poetry #crohns #crohnsdisease #crohnsandcolitisuk #boweldisease #ileostomy #ostomy #wellness #healthylifestyle #digestivehealth #theladyandthebag #digestion #travel #food #healthblog
LEARNING............ Many years ago my yoga teacher gave me these beautiful words. They touched me deeply then and still give me goosebumps when I read them today. With my blog soon to launch it seems appropriate to share them with you.......I hope you enjoy them 🙏💕🙏💕 . . . I always thought the poem was called ‘Learning’ and I never knew the author. Today I found out it is actually called ‘After A While’ by Veronica A Shaffstall. #positivethoughts  #healthblog  #selflove  #poetry  #crohns  #crohnsdisease  #crohnsandcolitisuk  #boweldisease  #ileostomy  #ostomy  #wellness  #healthylifestyle  #digestivehealth  #theladyandthebag  #digestion  #travel  #food  #healthblog 
Didn't think I looked too bad this morning but nothing like being told you look like shit! Love this jacket from Asda and still rocking the high waisted jeans from Pep & Co 
#whatostomateswear #stoma #ostomy #highwaisted #pepandco #georgeatasda #bekind #thinkgoodthoughts #roalddahl
Heute werde ich das erste mal die Wohnung verlassen und nicht zu einem meiner Arzttermine oder nur zum einkaufen! Nein! Zum Arzttermin meiner Freundin 😂 trotzdem habe ich mich mal vernünftig gekleidet. Ich glaub das ist gut fürs Gemüt! Kleid ist die neue Jeans! Und man sieht auch kaum das Stoma. #ready #goodmorning #morbuscrohn #ced #crohnsdisease #ibd #bauchhelden #stoma #ostomate #ostomy #dress #acitywalk #followme 💕💕💕
Chest flys. Tuesday is chest day. A short video after some heavy lifting. I always find it hard to do videos without looking so bate 😂😂
Chest flys. Tuesday is chest day. A short video after some heavy lifting. I always find it hard to do videos without looking so bate 😂😂
Being off work means... 1. Sorting through a mountain of clothes.
2. Messy hair
3. Odd Socks 
Gunna be a fun day 😐

#ostomy #bagwhatbag #ileostomy #nocolonstillrollin #offwork #ostomate #stoma #stomabag #whatstoma #uc #ibd #chronicillness
@pink_bits celebrating beautiful strong bodies! 
Thank you xx

#stoma #ileostomy #pouch #ostomy #ostomyawareness #ostomate #stomaproud #pinkbits
Goon sack on a paddle board.
Drone shot by @coreyjmills .
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#sup #standuppaddle #surf #sun #water #sky #photography #drone #dji #fuckcrohns #crohns #crohnsdisease #ostomy #ostomate #autoimmunedisease #livin #keepitnorth
Happy dance from the beautifully joyful @pouch_by_pouch 😍😍
Also, hello new followers! Welcome, I’m So happy you’re here ☺️ .
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#pinkbits #art #illustration #design  #feminist #pastel #pink #ostomy #pouch #stoma #jejunostomy
Choosing joy and much as I can! The right attitude and frame of mind really makes all the difference.... but is also ok to be sad and upset every once and a while too! .
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#ostomy #ostomate #colectomy #jpouch #ibd #chronicdisease #ileostomy #gutitout #nocolonstillrollin #gutless #recovery #chronic #UC #UlcerativeColitis #stoma  #ostomyawareness #storiesofgutlessglory #girlswithguts
Shoutout to my sweet aunt @teemactoo for suggesting these! I’ve been missing fruits and veggies and these really help! Easy to process and delish!
Shoutout to my sweet aunt @teemactoo for suggesting these! I’ve been missing fruits and veggies and these really help! Easy to process and delish!
Not to be cheesy, but our STOMASPAN is the best Stoma protection in all the land 😏🧀 Get yours at stomaspan.com !!! #TheBigCheese  #seatbelt #ostomy #WeveGotYourBag
I tried to provide Sheldon with some Monday motivation to get out of the bathroom today with my “you’re grate” socks..
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He said my socks were cheesy & he was staying put. 🧀😺 @sockittomeinc
I tried to provide Sheldon with some Monday motivation to get out of the bathroom today with my “you’re grate” socks.. .. He said my socks were cheesy & he was staying put. 🧀😺 @sockittomeinc
I have to say..the middle book will not be of use to me lol
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#ileostomy #ostomy #ostomylife #ostomate #nocolonstillrollin #babeswithbags #poopbags #dating #selfhelpbooks #bookstorefinds
Between August 28th & September 1st I don’t remember much. My mom tells me they had me pretty well sedated for the most part. She also tells me I even spoke to her 🤷🏼‍♀️ guess I’ll never know
I lost a dramatic amount of weight. I started at 125lbs and dropped to 80lbs. I lost all my muscle mass. 
This is me shortly after being brought to CCU September 1st relearning how to walk. 
Unfortunately that is no exaggeration, I literally lost all ability to move my lower limbs from my waist down. The most I could lift my feet was about an inch off the bed. 
After gaining back my hydromorphine pain pump and with some help from my lovely physiotherapist David I got my ass out of bed and did two laps around the CCU nurses desk
Now I can proudly say I’ve had to learn how to walk twice in my life. 
You truly never realize how strong you are until you have to relearn even the simplest of tasks and when life tries to pull you down and you need to push back 💪🏻
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#ileostomy #crohnsdisease #nocolonstillrollin #ostomate #ostomy #ostomybag #ostomyawareness #stoma
Between August 28th & September 1st I don’t remember much. My mom tells me they had me pretty well sedated for the most part. She also tells me I even spoke to her 🤷🏼‍♀️ guess I’ll never know I lost a dramatic amount of weight. I started at 125lbs and dropped to 80lbs. I lost all my muscle mass. This is me shortly after being brought to CCU September 1st relearning how to walk. Unfortunately that is no exaggeration, I literally lost all ability to move my lower limbs from my waist down. The most I could lift my feet was about an inch off the bed. After gaining back my hydromorphine pain pump and with some help from my lovely physiotherapist David I got my ass out of bed and did two laps around the CCU nurses desk Now I can proudly say I’ve had to learn how to walk twice in my life. You truly never realize how strong you are until you have to relearn even the simplest of tasks and when life tries to pull you down and you need to push back 💪🏻 . . . . . . . #ileostomy  #crohnsdisease  #nocolonstillrollin  #ostomate  #ostomy  #ostomybag  #ostomyawareness  #stoma 
After spending 90% of my summer ‘17 in and out of Etobicoke General Hospital, my GI, wonderful surgeon, myself & family decided I was going to have emergency surgery to have my colon removed. 
I ended having a subtotal colectomy to remove 90% of my colon. My surgeon successfully saved the last 10% of my colon and rectum with the hopes of a reversal surgery. 
August 26th 2017 was the day Steve came into my life.
August 28th was the beginning of a long downward spiral. I was rushed in emergency surgery with the Chief of Surgery late that night with fatal peritonitis. They did not know the cause and were it was coming from but the right side of my abdomen, where Steve is, was quickly filling up with multiple puss pockets. They took out as much as they could and placed a tube above my hip to continue to drain any excess. 
This picture was taken September 1st 2017, two days before my big brothers wedding, I was rushed to CCU with sepsis. I was hooked up to IVs, heart monitors, I had an ART line placed in my left wrist and a TPN line placed under my clavicle. 
Thank god for hydromorphine 💪🏻💉
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#ileostomy #crohnsdisease #nocolonstillrollin #ostomate #ostomy #ostomybag #ostomyawareness #stoma
After spending 90% of my summer ‘17 in and out of Etobicoke General Hospital, my GI, wonderful surgeon, myself & family decided I was going to have emergency surgery to have my colon removed. I ended having a subtotal colectomy to remove 90% of my colon. My surgeon successfully saved the last 10% of my colon and rectum with the hopes of a reversal surgery. August 26th 2017 was the day Steve came into my life. August 28th was the beginning of a long downward spiral. I was rushed in emergency surgery with the Chief of Surgery late that night with fatal peritonitis. They did not know the cause and were it was coming from but the right side of my abdomen, where Steve is, was quickly filling up with multiple puss pockets. They took out as much as they could and placed a tube above my hip to continue to drain any excess. This picture was taken September 1st 2017, two days before my big brothers wedding, I was rushed to CCU with sepsis. I was hooked up to IVs, heart monitors, I had an ART line placed in my left wrist and a TPN line placed under my clavicle. Thank god for hydromorphine 💪🏻💉 . . . . . . #ileostomy  #crohnsdisease  #nocolonstillrollin  #ostomate  #ostomy  #ostomybag  #ostomyawareness  #stoma 
👋🏻 Hi fellow & future ostomates, Crohn’s warriors & general humans. 
I want to start this page to document my journey with Crohn’s and a new ostomate. I want this page to be a place people can come for advice or to provide me with advice when needed. 
I started my Crohn’s journey at the young age of 9 and my Ostomy journey with Steve at 25 in August 26th 2017. 
Throughout this page I will document the never ending rollercoaster it has been adjusting to Steve and my new body. .
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#ileostomy #crohnsdisease #nocolonstillrollin #ostomate #ostomy #ostomybag #ostomyawareness #stoma
👋🏻 Hi fellow & future ostomates, Crohn’s warriors & general humans. I want to start this page to document my journey with Crohn’s and a new ostomate. I want this page to be a place people can come for advice or to provide me with advice when needed. I started my Crohn’s journey at the young age of 9 and my Ostomy journey with Steve at 25 in August 26th 2017. Throughout this page I will document the never ending rollercoaster it has been adjusting to Steve and my new body. . . . . #ileostomy  #crohnsdisease  #nocolonstillrollin  #ostomate  #ostomy  #ostomybag  #ostomyawareness  #stoma 
5# No More Secrets Team Member
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Cinematographer - Nazia Khan
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A photographer and film maker from Kolkata, is based in Mumbai at the moment.
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The immense urge of capturing moments and converting it into art, is what motivates her to photograph.
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Documenting time through her camera is her art form, whether it’s portraits, a landscape or an architectural photography.
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As a storyteller, traveller; she captures the journey and the culture we are in and have been through.
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Every photo has a story to tell of that particular time and space; to lock that space in that particular time which will remain with us to understand it in a deeper sense later; she captures the moments of her journey.
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@tepantorerpaar is the meaning (in a way) of her name in Bangla, which means beyond horizons.
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#NoMoreSecrets #NoShame#Ostomy #India #Mumbai #Maharashtra #Kolkata #Cinematographer #DOP #Film #Filmmaker #Documentary #Photographer #BnW #DontTaxMyStoma
5# No More Secrets Team Member . Cinematographer - Nazia Khan . A photographer and film maker from Kolkata, is based in Mumbai at the moment. . The immense urge of capturing moments and converting it into art, is what motivates her to photograph. . Documenting time through her camera is her art form, whether it’s portraits, a landscape or an architectural photography. . As a storyteller, traveller; she captures the journey and the culture we are in and have been through. . Every photo has a story to tell of that particular time and space; to lock that space in that particular time which will remain with us to understand it in a deeper sense later; she captures the moments of her journey. . @tepantorerpaar is the meaning (in a way) of her name in Bangla, which means beyond horizons. . . . . . . . #NoMoreSecrets  #NoShame #Ostomy  #India  #Mumbai  #Maharashtra  #Kolkata  #Cinematographer  #DOP  #Film  #Filmmaker  #Documentary  #Photographer  #BnW  #DontTaxMyStoma 
At the end of this week it will be exactly 5 months since my #ostomy #takedown & I’ve had my #Jpouch. Life has been GREAT! I haven’t thought about a hospital, my energy is back up & my #PTSD & #anxiety are sooo much better. That is until this morning when I woke up with swollen clenched fists. My #arthritis that was brought on by my #ulcerativecolitis is back this winter. I was hoping with the removal of my colon, it would go away too but nope. It was definitely discouraging & painful. Ugh. 😩
At the end of this week it will be exactly 5 months since my #ostomy  #takedown  & I’ve had my #Jpouch . Life has been GREAT! I haven’t thought about a hospital, my energy is back up & my #PTSD  & #anxiety  are sooo much better. That is until this morning when I woke up with swollen clenched fists. My #arthritis  that was brought on by my #ulcerativecolitis  is back this winter. I was hoping with the removal of my colon, it would go away too but nope. It was definitely discouraging & painful. Ugh. 😩
two hundred and fifteen
days.
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days watching monitors and pokes,
eating bad cafeteria food (if food at all),
praying audacious prayers,
dreaming of our imaginary home.
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five thousand and sixty
hours.
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hours wishing we could all sleep in one bed,
fighting off midnight fears,
journaling newly learnt medical jargon,
praying for normalcy.
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three hundred and nine thousand,
and six hundred
seconds.
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sitting unmoved by this bed you’ve grown up in,
doing anything for you to feel our love.
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if time is money
then we will gladly pay by the millions.
and you are worth every penny,
our darling boy.
🖤
two hundred and fifteen days. . days watching monitors and pokes, eating bad cafeteria food (if food at all), praying audacious prayers, dreaming of our imaginary home. . . five thousand and sixty hours. . hours wishing we could all sleep in one bed, fighting off midnight fears, journaling newly learnt medical jargon, praying for normalcy. . . three hundred and nine thousand, and six hundred seconds. . sitting unmoved by this bed you’ve grown up in, doing anything for you to feel our love. . . if time is money then we will gladly pay by the millions. and you are worth every penny, our darling boy. 🖤
‼️SOS‼️tried using the Adapt skin protectant wipes and OH GOD I think I had more than a slight reaction to them.. swipe to see the blisters, not pretty!! It was the only thing I changed in my routine and it has to be the cause... just changed my bag yesterday and this was definitely NOT there 😫😡☹️😐 luckily I had a few Smith&Nephew ones left in my emergency bag... I’ll definitely be calling McKesson FIRST THING tomorrow and praying they carry my old wipes 😢✌🏼 .
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#ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #barbiebutt #mcv #vcu #richmond #rva #life #livinglife #lovinglife
‼️SOS‼️tried using the Adapt skin protectant wipes and OH GOD I think I had more than a slight reaction to them.. swipe to see the blisters, not pretty!! It was the only thing I changed in my routine and it has to be the cause... just changed my bag yesterday and this was definitely NOT there 😫😡☹️😐 luckily I had a few Smith&Nephew ones left in my emergency bag... I’ll definitely be calling McKesson FIRST THING tomorrow and praying they carry my old wipes 😢✌🏼 . . . . . #ibd  #ibdawareness  #ibdwarrior  #crohns  #crohnsdisease  #cdiff  #ileostomy  #permanentileostomy  #ostomy  #ostomate  #ostomyawareness  #chronicillness  #chronicpain  #invisibleillness  #stoma  #meatballthestoma  #proctocolectomy  #barbiebutt  #mcv  #vcu  #richmond  #rva  #life  #livinglife  #lovinglife 
I sometimes get emotional thinking that I am alive to get the opportunity to father this little guy. I shouldn’t be here, and by extension, he shouldn’t be either. 
#stomastrong #crohns #ileostomy #ostomy
I sometimes get emotional thinking that I am alive to get the opportunity to father this little guy. I shouldn’t be here, and by extension, he shouldn’t be either. #stomastrong  #crohns  #ileostomy  #ostomy 
I’ve spent all day being so fatigued, I think my doctors appt tired me out😂😱, so I thought this is a good way to relax. Nostalgia😎
I’ve spent all day being so fatigued, I think my doctors appt tired me out😂😱, so I thought this is a good way to relax. Nostalgia😎
New bag feels🙌🏻❤️😱👊🏻
New bag feels🙌🏻❤️😱👊🏻
Twenty Books 📖 • The Beginning. .
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February 25th is the date. Now Go Fund Me. Or Preorder.. Or buy some shit. 
Support my crazy. .💛✨
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#dannilittle #tiwoaum #poetry #book #invisibleillness #crohns #feelings #suicide #depression #writings #musings #pain #crohnsdisease #crohns #ibd #trauma #bodypositive #art #ostomy  #stoma #scars #blackgirlmagic #woc #strength #courage #healing #truth