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As a parent, I learn new things every day. I mean EVERY day. Things I learned this time: 1. My 5 year old can "Spiderman" climb up 5 feet to reach things on top of a bookcase. 2. My five year old can open "child-proof" pill bottles. 3. Mommy can have a heart attack real quick when finding empty bottles. 
So... we're at the hospital getting things checked out! Don't worry, he's fine, just upset that he had to have his blood drawn! #Hulk no like needles!

Every new day with this kid just makes me stronger! #heartmama

#keegansheart #halfheartwonder #chd #chdwarrior #hlhs #littlewarrior #zipperclub #chicksdigscars #rockyourscar
As a parent, I learn new things every day. I mean EVERY day. Things I learned this time: 1. My 5 year old can "Spiderman" climb up 5 feet to reach things on top of a bookcase. 2. My five year old can open "child-proof" pill bottles. 3. Mommy can have a heart attack real quick when finding empty bottles. So... we're at the hospital getting things checked out! Don't worry, he's fine, just upset that he had to have his blood drawn! #Hulk  no like needles! Every new day with this kid just makes me stronger! #heartmama  #keegansheart  #halfheartwonder  #chd  #chdwarrior  #hlhs  #littlewarrior  #zipperclub  #chicksdigscars  #rockyourscar 
We had so much fun watching Emma Jean @e_jean14 perform as Cruella DeVille in 101 Dalmations today. Davey was so into it and so excited to watch Emma! She had to go on the stage herself when it was over. Maybe we have a future performer on our hands?! Greats job Emm!!!! We love you! #dailydoseofdavey #ddd #heartsfordaveyjean #mommysgirl #bestillmyheart #sheamazesmeeveryday #pleasestaylittle #nevergrowup #movingmountains #itsthelittlethings #blowsmeaway #sweetgirl #theappledoesntfallfarfromthetree #mymiraclegirl #mywhy #myheart #myworld #myeverything  #heartmom #chdawareness #rockyourscar #heartwarrior #22q #tof #apv #asl #typicallyatypical #differentnotless #perfectlyimperfect 
#dontlettheworlddecidewhatsbeautiful
We had so much fun watching Emma Jean @e_jean14 perform as Cruella DeVille in 101 Dalmations today. Davey was so into it and so excited to watch Emma! She had to go on the stage herself when it was over. Maybe we have a future performer on our hands?! Greats job Emm!!!! We love you! #dailydoseofdavey  #ddd  #heartsfordaveyjean  #mommysgirl  #bestillmyheart  #sheamazesmeeveryday  #pleasestaylittle  #nevergrowup  #movingmountains  #itsthelittlethings  #blowsmeaway  #sweetgirl  #theappledoesntfallfarfromthetree  #mymiraclegirl  #mywhy  #myheart  #myworld  #myeverything  #heartmom  #chdawareness  #rockyourscar  #heartwarrior  #22q  #tof  #apv  #asl  #typicallyatypical  #differentnotless  #perfectlyimperfect  #dontlettheworlddecidewhatsbeautiful 
Mommy finally got to take Davey to horse therapy @theheartofthehorsetherapyranch today! She did so good! Can't wait until we have horses of our own someday! She's a natural! Soooo much fun. And what a great program. We are so blessed to be a part of it! #dailydoseofdavey #ddd #heartsfordaveyjean #mommysgirl #bestillmyheart #sheamazesmeeveryday #pleasestaylittle #nevergrowup #movingmountains #itsthelittlethings #blowsmeaway #sweetgirl #theappledoesntfallfarfromthetree #mymiraclegirl #mywhy #myheart #myworld #myeverything  #heartmom #chdawareness #rockyourscar #heartwarrior #22q #tof #apv #asl #typicallyatypical #differentnotless #perfectlyimperfect 
#dontlettheworlddecidewhatsbeautiful
Mommy finally got to take Davey to horse therapy @theheartofthehorsetherapyranch today! She did so good! Can't wait until we have horses of our own someday! She's a natural! Soooo much fun. And what a great program. We are so blessed to be a part of it! #dailydoseofdavey  #ddd  #heartsfordaveyjean  #mommysgirl  #bestillmyheart  #sheamazesmeeveryday  #pleasestaylittle  #nevergrowup  #movingmountains  #itsthelittlethings  #blowsmeaway  #sweetgirl  #theappledoesntfallfarfromthetree  #mymiraclegirl  #mywhy  #myheart  #myworld  #myeverything  #heartmom  #chdawareness  #rockyourscar  #heartwarrior  #22q  #tof  #apv  #asl  #typicallyatypical  #differentnotless  #perfectlyimperfect  #dontlettheworlddecidewhatsbeautiful 
We had fun celebrating Jeffrey's 4th birthday! Lona the wild lady, Jeffrey the "bad" boy biker, and Keegan the speed demon had tons of fun racing down the street!

#cousintime #cousinsforlife #funwithcousins #noroadstoworryabout #letthemnbefree #letthemrunwild #keegansheart #halfheartwonder #chd #chdwarrior #hlhs #littlewarrior #zipperclub #chicksdigscars #rockyourscar #mykidisagoober
#nailingthisparentingthing
Is it still abuse if they tape their own mouth shut😂🤣 #sillymillie  #mylittlelove #rockyourscar #chdwarrior
Bruce wakes up again after having been Hulk... Ohhh the after Halloween meltdown! And before he even got a single piece of candy! 
#Halloween2017 #Hulk #candyhangover #nailingthisparentingthing #keegansheart #halfheartwonder #chd #chdwarrior #hlhs #littlewarrior #zipperclub #chicksdigscars #rockyourscar
Today's workout brought to you by T. rex and Hip Hop BBQ on Pandora.  There's snow falling outside my window so I had to pull out all the stops to get up and motivated. 
60 minutes cardio ✔️💪🏻👊🏻
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#nevermissamonday #weightloss #weightlossjourney #cardio #workout #fitness #health #healthy #fitmom #workhard #motivation #hiphop #chd #zipperclub #rockyourscar
This sweet girl is EIGHT months old and so very busy! I can't seem to get a photo of her holding still anymore! She has developed so much in the last month, some of her mannerisms and reactions seem very "toddleresque" and I don't know how to handle it. She's waving all the time and giving high-fives. She even said "hi" (while waving) to her GI doctor this week. We were all stunned! She  brings so much joy to all those around her. I hope she knows how much she is loved! #shirleyanne #shirleysgrandadventure #truncusarteriosus #8monthsold #eightmonthsold
This sweet girl is EIGHT months old and so very busy! I can't seem to get a photo of her holding still anymore! She has developed so much in the last month, some of her mannerisms and reactions seem very "toddleresque" and I don't know how to handle it. She's waving all the time and giving high-fives. She even said "hi" (while waving) to her GI doctor this week. We were all stunned! She brings so much joy to all those around her. I hope she knows how much she is loved! #shirleyanne  #shirleysgrandadventure  #truncusarteriosus  #8monthsold  #eightmonthsold 
SCARS ARE BEAUTIFUL.//💚 "I'm doing this to show every child, every adult, boy and girl that no matter what scars you have you are ABSOLUTELY BEAUTIFUL the way you are! It took me forever to show off my scar when I was 10 after my first surgery. I'm here, I'm ready, let me tell you my story. In know I'm beautiful the way I am. My scars tell a story, show off that I'm strong and a Warrior." Ashley Nuxoll .
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#scarsarebeautifulproject #scarsarebeautiful #chdwarrior #chdawareness #conqueringchd #livingwithCHD #fckchd #openheartsurgery #heartsurgery #selfportrait #photographylife #zipperclub #vancouver #vancity #chdawareness #rockyourscar #ivisionthisnevervisionless #chronicillness
SCARS ARE BEAUTIFUL.//💚 "I'm doing this to show every child, every adult, boy and girl that no matter what scars you have you are ABSOLUTELY BEAUTIFUL the way you are! It took me forever to show off my scar when I was 10 after my first surgery. I'm here, I'm ready, let me tell you my story. In know I'm beautiful the way I am. My scars tell a story, show off that I'm strong and a Warrior." Ashley Nuxoll . . . . . . #scarsarebeautifulproject  #scarsarebeautiful  #chdwarrior  #chdawareness  #conqueringchd  #livingwithCHD  #fckchd  #openheartsurgery  #heartsurgery  #selfportrait  #photographylife  #zipperclub  #vancouver  #vancity  #chdawareness  #rockyourscar  #ivisionthisnevervisionless  #chronicillness 
Our pediatrician didn't realize that she closes her eyes to listen until she saw #josieduck pretending to be her. 😆 Thankful that Josie is learning from the best!#josieduckyear3 #pediatrics #heartwarrior #rockyourscar
Another successful year at the American Heart and Stroke association's Heart Walk! Can't believe this is our 4th year in a row. Amazing how fast time goes by. We are so blessed to be a part of such a wonderful organization that gives so much back to our heart warriors both young and old! #dailydoseofdavey #ddd #heartsfordaveyjean #mommysgirl #bestillmyheart #sheamazesmeeveryday #pleasestaylittle #nevergrowup #movingmountains #itsthelittlethings #blowsmeaway #sweetgirl #theappledoesntfallfarfromthetree #mymiraclegirl #mywhy #myheart #myworld #myeverything  #heartmom #chdawareness #rockyourscar #heartwarrior #22q #tof #apv #asl #typicallyatypical #differentnotless #perfectlyimperfect 
#dontlettheworlddecidewhatsbeautiful
Another successful year at the American Heart and Stroke association's Heart Walk! Can't believe this is our 4th year in a row. Amazing how fast time goes by. We are so blessed to be a part of such a wonderful organization that gives so much back to our heart warriors both young and old! #dailydoseofdavey  #ddd  #heartsfordaveyjean  #mommysgirl  #bestillmyheart  #sheamazesmeeveryday  #pleasestaylittle  #nevergrowup  #movingmountains  #itsthelittlethings  #blowsmeaway  #sweetgirl  #theappledoesntfallfarfromthetree  #mymiraclegirl  #mywhy  #myheart  #myworld  #myeverything  #heartmom  #chdawareness  #rockyourscar  #heartwarrior  #22q  #tof  #apv  #asl  #typicallyatypical  #differentnotless  #perfectlyimperfect  #dontlettheworlddecidewhatsbeautiful 
With @tommyriles at Saving tiny Hearts Society gala. Raising money for congenital heart defect research. Heart heroes rock! #rockyourscar #heartdefectawareness @lifeofdad @savingtinyhearts
With @tommyriles at Saving tiny Hearts Society gala. Raising money for congenital heart defect research. Heart heroes rock! #rockyourscar  #heartdefectawareness  @lifeofdad @savingtinyhearts
Two years ago today! Happy heartaversary sweet boy ❤️ #chdwarrior #hearthero #toughasnails #rockyourscar #zipperclub #heartday #tinywarrior #myhero
Guess who’s back!?
Baby girl finally free of tubes! It has been a long road here and to think this girl is two months old and has endured so much this past week. Heart surgery, life support, breathing tube, SVT runs, & so much swelling. She accomplished over every hurdle that came her way. Wasn’t easy and the girl still has a lot to accomplish to be back to “normal” but I know God is in her corner and she will continue to show the world the grace of god and the power he holds! #rockyourscar #girlpower #warriorprincess #chd #tetbaby #picubaby #nicubaby
Guess who’s back!? Baby girl finally free of tubes! It has been a long road here and to think this girl is two months old and has endured so much this past week. Heart surgery, life support, breathing tube, SVT runs, & so much swelling. She accomplished over every hurdle that came her way. Wasn’t easy and the girl still has a lot to accomplish to be back to “normal” but I know God is in her corner and she will continue to show the world the grace of god and the power he holds! #rockyourscar  #girlpower  #warriorprincess  #chd  #tetbaby  #picubaby  #nicubaby 
SCARS ARE BEAUTIFUL.//💚 "For those who don’t know I was born with Congenital Heart Disease, (Pulmonary Valve Stenosis) I underwent open heart surgery in March and here it is September and I feel amazing!!! Since surgery I’ve bragged to anyone who will listen, about how amazing life feels now, compared to then. For so long I was in a way killing myself, by not taking care of myself. I felt crazy for feeling ‘sick/tired/out of breath/etc...’ my cardiologist was and has been my absolute rock and support through everything and in the process helped me get where I am today. Along with A LOT, A LOT of amazing people in my life. Through the last 7 months I’ve grown so much, and I’ve enjoyed life 10x more than I ever have in my life!! Purely due to physically being healthier and the people who have enriched it!! Through my surgery I’ve realized how important it is for me to be the best mother, person, friend, sister, daughter I can be, BUT...more importantly..the best person for myself! Through that I’ve started my dream, met a lot of amazing people along the way, seen absolutely beautiful things!! I know moving forward I’m going to continue to be passionate, crazy, clumsy, silly and over all enjoy life with as little regret as possible! I want to remind everyone that life is so important to be lived, even when you’re scared!!! Scars are Beautiful and I love mine! It’s my prize and my badge! It reminds me of everything I had to go through to get here!!!" @mchoyle .
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#scarsarebeautiful #scarsarebeautifulproject #openheartsurgery #zipperclub #fckchd #1in100 #hearttransplant #chdawareness #chdwarrior #rockyourscar #chronicillness #invisibleillnessawareness #invisibleillness #vancouver #vancity #rolemodel #bodygoals #bodypositive #positivebodyimage #selfportrait #portraitphotography #vancouverphotographer #portraitphotographer #worldwide #newyorkcity #london #seattle #losangeles
SCARS ARE BEAUTIFUL.//💚 "For those who don’t know I was born with Congenital Heart Disease, (Pulmonary Valve Stenosis) I underwent open heart surgery in March and here it is September and I feel amazing!!! Since surgery I’ve bragged to anyone who will listen, about how amazing life feels now, compared to then. For so long I was in a way killing myself, by not taking care of myself. I felt crazy for feeling ‘sick/tired/out of breath/etc...’ my cardiologist was and has been my absolute rock and support through everything and in the process helped me get where I am today. Along with A LOT, A LOT of amazing people in my life. Through the last 7 months I’ve grown so much, and I’ve enjoyed life 10x more than I ever have in my life!! Purely due to physically being healthier and the people who have enriched it!! Through my surgery I’ve realized how important it is for me to be the best mother, person, friend, sister, daughter I can be, BUT...more importantly..the best person for myself! Through that I’ve started my dream, met a lot of amazing people along the way, seen absolutely beautiful things!! I know moving forward I’m going to continue to be passionate, crazy, clumsy, silly and over all enjoy life with as little regret as possible! I want to remind everyone that life is so important to be lived, even when you’re scared!!! Scars are Beautiful and I love mine! It’s my prize and my badge! It reminds me of everything I had to go through to get here!!!" @mchoyle . . . . . . . #scarsarebeautiful  #scarsarebeautifulproject  #openheartsurgery  #zipperclub  #fckchd  #1in100  #hearttransplant  #chdawareness  #chdwarrior  #rockyourscar  #chronicillness  #invisibleillnessawareness  #invisibleillness  #vancouver  #vancity  #rolemodel  #bodygoals  #bodypositive  #positivebodyimage  #selfportrait  #portraitphotography  #vancouverphotographer  #portraitphotographer  #worldwide  #newyorkcity  #london  #seattle  #losangeles 
In honor of #worldheartday here's a throwback picture of Shirley just a couple of days before she was discharged from the hospital. We are constantly amazed by how far she has come. #seattlechildrens #shirleyanne #shirleysgrandadventure #truncusarteriosus
Penelope rocking her scar and looking as cute as can be! It’s World Heart Day and lets shine some light on those who are affected by CHD. #worldheartday #rockyourscar ❤️
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#penelopemila #mysupergirl #heartwarrior #chd #chdawareness #mylittlelove #letthembelittle #uniteinmotherhood #candidchildhood #magicofchildhood #simplychildren #our_everyday_moments #thehappynow #motherhood #momlife #momswithcameras #heartmama #honestmotherhood #motherhoodrising #livingasimplelife #mycaliforniadreamgirl #cc_blackandwhite
Penelope rocking her scar and looking as cute as can be! It’s World Heart Day and lets shine some light on those who are affected by CHD. #worldheartday  #rockyourscar  ❤️ • • • • • • #penelopemila  #mysupergirl  #heartwarrior  #chd  #chdawareness  #mylittlelove  #letthembelittle  #uniteinmotherhood  #candidchildhood  #magicofchildhood  #simplychildren  #our_everyday_moments  #thehappynow  #motherhood  #momlife  #momswithcameras  #heartmama  #honestmotherhood  #motherhoodrising  #livingasimplelife  #mycaliforniadreamgirl  #cc_blackandwhite 
Happy world heart day from my warrior😚 #chdwarrior #rockyourscar @hopeful_hearts_foundation @wearredorgonaked
Shirley is SEVEN months old (+ a few days)! She weighs 14lbs 10oz and measures about 24 inches long. She's now able to sit up on her own for short periods of time! Her two lower front teeth are just barely starting to poke through and she's chewing on EVERYTHING! Lucky for us, she doesn't seem to be bothered by teething, so far. She's so curious... always reaching for whatever I'm holding and carefully observing the world around her. One of her favorite things to do is lean against the backrest of our sofa and peer out the front window at the trees, birds, and passersby. Every time something moves she'll chatter or squeal, and then look over at me to make sure I saw it too! She continues to be one of the happiest babies around and I just LOVE being her mom.
Shirley is SEVEN months old (+ a few days)! She weighs 14lbs 10oz and measures about 24 inches long. She's now able to sit up on her own for short periods of time! Her two lower front teeth are just barely starting to poke through and she's chewing on EVERYTHING! Lucky for us, she doesn't seem to be bothered by teething, so far. She's so curious... always reaching for whatever I'm holding and carefully observing the world around her. One of her favorite things to do is lean against the backrest of our sofa and peer out the front window at the trees, birds, and passersby. Every time something moves she'll chatter or squeal, and then look over at me to make sure I saw it too! She continues to be one of the happiest babies around and I just LOVE being her mom.
Heart Warrior tees and onesies are restocked in new styles and in larger kid sizes 🙌🏽#heartwarrior
Heart Warrior tees and onesies are restocked in new styles and in larger kid sizes 🙌🏽#heartwarrior 
SCARS ARE BEAUTIFUL.//💚 When we joined up with @sixtimesopen and did a photoshoot.  All four of us have the same scar down our chest. But each one of us has a different story behind it.  In a world full of oranges, we decided to be pineapples 🍍 @jonathansdownes @wrighty398 @constant_reader_healer @brigittazatko (📷: @davidsdownes) .
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#scarsarebeautifulproject #scarsarebeautiful #zipperclub #openheartsurgery #chdawareness #1in100 #fckchd #fckcancer #portraitphotography #hearttransplant #heartsurgery #wearredorgonaked #positivebodyimage #cancersucks #fightcancer #rockyourscar #chronicillness #chronicpain #rolemodels #realrolemodel #candidchildhood #vancity #vancouverphotographer #newcastle #vancouverphotography #london #photoshoot #cancerawareness
SCARS ARE BEAUTIFUL.//💚 When we joined up with @sixtimesopen and did a photoshoot. All four of us have the same scar down our chest. But each one of us has a different story behind it. In a world full of oranges, we decided to be pineapples 🍍 @jonathansdownes @wrighty398 @constant_reader_healer @brigittazatko (📷: @davidsdownes) . . . . . . . #scarsarebeautifulproject  #scarsarebeautiful  #zipperclub  #openheartsurgery  #chdawareness  #1in100  #fckchd  #fckcancer  #portraitphotography  #hearttransplant  #heartsurgery  #wearredorgonaked  #positivebodyimage  #cancersucks  #fightcancer  #rockyourscar  #chronicillness  #chronicpain  #rolemodels  #realrolemodel  #candidchildhood  #vancity  #vancouverphotographer  #newcastle  #vancouverphotography  #london  #photoshoot  #cancerawareness 
#kidsnight at @mellowmushroomblacksburg was a hit! Keegan was a T-Rex the whole time and Zac, who was the best server we've had in a while, was great with our Keegaroo. #rwar #keegansheart #halfheartwonder #chd #chdwarrior #hlhs #littlewarrior #zipperclub #chicksdigscars #rockyourscar
Miss Emmie and her "BUGEYES" 
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#heartwarrior #rockyourscar #chd #teamemmie #survivor #heartmom
How amazing is this y'all?! Michael Montgomery from the Green Bay Packers is here today @mendedlittleheartsnational encouraging those who have congenital heart defects (like my 5 year old daughter does.) There is hope after open heart surgery!! I sent my husband a picture of the autograph for Teagan and see his response in picture 3 😂 Thank you @iam96gb for being a Godly man, full of encouragement, and raising awareness for congenital heart disease 💜
How amazing is this y'all?! Michael Montgomery from the Green Bay Packers is here today @mendedlittleheartsnational encouraging those who have congenital heart defects (like my 5 year old daughter does.) There is hope after open heart surgery!! I sent my husband a picture of the autograph for Teagan and see his response in picture 3 😂 Thank you @iam96gb for being a Godly man, full of encouragement, and raising awareness for congenital heart disease 💜
Ya'll!!! I'm in Houston with this pretty chic selling books. @mrsamy_mg
Ya'll!!! I'm in Houston with this pretty chic selling books. @mrsamy_mg
❤️❤️❤️❤️ Vsd patch is still sealed- yay!
ASD still closed with no leaks- yay!
Aortic Stenosis-  Sub-aortic membrane (causing restriction) no growth. Obstruction has slightly worsened. Pressure is higher than last time but still within functional limits. No need for medication or intervention at this time. He said no real worry just monitor for any heart symptoms and come back sooner if needed.
Warned me that apnea can cause cardiac issues (pulmonary hypertension) although there is no concern for that at this time. 
So it's not exactly what I would have wanted (ya know- a fully repaired, healthy, strong functional heart that no longer requires cardiology visits lol) it is welcome news. Wyatt seems to love his cardiologist. He waved, shook hands and was full of smiles the entire 2 hours we were in the office. He didn't even give the tech a hard time when she did his echo 🙌🏻 #nailedit #myhearthero #CHDwarrior #anotheroneinthebooks #mendedheart #rockyourscar #chicksdigscars
❤️❤️❤️❤️ Vsd patch is still sealed- yay! ASD still closed with no leaks- yay! Aortic Stenosis- Sub-aortic membrane (causing restriction) no growth. Obstruction has slightly worsened. Pressure is higher than last time but still within functional limits. No need for medication or intervention at this time. He said no real worry just monitor for any heart symptoms and come back sooner if needed. Warned me that apnea can cause cardiac issues (pulmonary hypertension) although there is no concern for that at this time. So it's not exactly what I would have wanted (ya know- a fully repaired, healthy, strong functional heart that no longer requires cardiology visits lol) it is welcome news. Wyatt seems to love his cardiologist. He waved, shook hands and was full of smiles the entire 2 hours we were in the office. He didn't even give the tech a hard time when she did his echo 🙌🏻 #nailedit  #myhearthero  #CHDwarrior  #anotheroneinthebooks  #mendedheart  #rockyourscar  #chicksdigscars 
SCARS ARE BEAUTIFUL.//💚 "

My name is Melissa and I'm from Broomall, Pennsylvania. I have been rocking my scars for 20 years! I was diagnosed  with cardiomyopathy when I was 2 1/2 and went into heart failure when I was 7. I had a life saving heart transplant in 1997. In 2011 my heart began to get weak once again and I had a defibrillator placed. I also had my mitral valve replaced. The surgery did not work as planned so in 2015 I went back in to heart failure and was lucky enough to receive my second heart transplant. My new heart has been doing very well since and I look forward to one day soon  meeting my donor's family!" @missayy7 .
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#scarsarebeautiful #scarsarebeautifulproject #openheartsurgery #hearttransplant #organdonation #zipperclub #rockyourscar #chdawareness #1in100 #behindthescars #chicksdigscars #positivebodyimage #stigmafree #childhoodunplugged #selflove #candidchildhood #invisibleillness #chronicillness #congenitalheartdefect #pennsylvania #pennsylvaniaphotographer #portraitphotography #nyc #vancouver #vancity #vancouverphotographer
SCARS ARE BEAUTIFUL.//💚 " My name is Melissa and I'm from Broomall, Pennsylvania. I have been rocking my scars for 20 years! I was diagnosed with cardiomyopathy when I was 2 1/2 and went into heart failure when I was 7. I had a life saving heart transplant in 1997. In 2011 my heart began to get weak once again and I had a defibrillator placed. I also had my mitral valve replaced. The surgery did not work as planned so in 2015 I went back in to heart failure and was lucky enough to receive my second heart transplant. My new heart has been doing very well since and I look forward to one day soon meeting my donor's family!" @missayy7 . . . . . . . #scarsarebeautiful  #scarsarebeautifulproject  #openheartsurgery  #hearttransplant  #organdonation  #zipperclub  #rockyourscar  #chdawareness  #1in100  #behindthescars  #chicksdigscars  #positivebodyimage  #stigmafree  #childhoodunplugged  #selflove  #candidchildhood  #invisibleillness  #chronicillness  #congenitalheartdefect  #pennsylvania  #pennsylvaniaphotographer  #portraitphotography  #nyc  #vancouver  #vancity  #vancouverphotographer 
Morning contemplations with Keegs... "If I only have half a heart, can I still be a whole ninja?" #bwahaha #lovethiskid #mykidisagoober
#nailingthisparentingthing #keegansheart #halfheartwonder #chd #chdwarrior #hlhs #littlewarrior #zipperclub #chicksdigscars #rockyourscar
SCARS ARE BEAUTIFUL.//💚 Meet Stacy Ann Walker from Connecticut and has Aortic Stenosis. However, she did not know she had Rheumatic heart disease until 6 years ago when she was pregnant with her daughter. During her pregnancy she went into heart failure. As a result, her daughter was born premature and Stacy had to have two open heart surgeries; Mitral and tricuspid valve repair in 2012 and Mitral valve replacement in 2016. Now, she is working on an upcoming podcast called The Heart Life and is a major advocate and voice for people getting their hearts tested heart disease, not matter what age a person may be. I couldn't agree with Stacy more. Getting your heart tested for Heart disease is very important,especially if you are a woman and want to have children.  Many may not know this but woman With Heart disease are very high risk for pregnancy and some are never allowed to get pregnant. @the_heart_life .
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#scarsarebeautiful #scarsarebeautifulproject #openheartsurgery #zipperclub #fckchd #rockyourscar #chestscar #wearredorgonaked #1in100 #heartmom #nyc #brooklyn #connecticutlife #connecticut #jamaican #campaignlife #realrolemodel #momlife #rolemodel #brooklynphotography #vancouver #vancity #vancitybuzz #vancitynow #newyorkcity #brooklynphotographer
SCARS ARE BEAUTIFUL.//💚 Meet Stacy Ann Walker from Connecticut and has Aortic Stenosis. However, she did not know she had Rheumatic heart disease until 6 years ago when she was pregnant with her daughter. During her pregnancy she went into heart failure. As a result, her daughter was born premature and Stacy had to have two open heart surgeries; Mitral and tricuspid valve repair in 2012 and Mitral valve replacement in 2016. Now, she is working on an upcoming podcast called The Heart Life and is a major advocate and voice for people getting their hearts tested heart disease, not matter what age a person may be. I couldn't agree with Stacy more. Getting your heart tested for Heart disease is very important,especially if you are a woman and want to have children. Many may not know this but woman With Heart disease are very high risk for pregnancy and some are never allowed to get pregnant. @the_heart_life . . . . . . #scarsarebeautiful  #scarsarebeautifulproject  #openheartsurgery  #zipperclub  #fckchd  #rockyourscar  #chestscar  #wearredorgonaked  #1in100  #heartmom  #nyc  #brooklyn  #connecticutlife  #connecticut  #jamaican  #campaignlife  #realrolemodel  #momlife  #rolemodel  #brooklynphotography  #vancouver  #vancity  #vancitybuzz  #vancitynow  #newyorkcity  #brooklynphotographer 
Happy Heartiversary, Ryder! We are so thankful for the miracle of your life and for your ray-of-sunshine smile and laugh. This world is brighter because you are in it! ❤️ #chd #chdwarrior #beadsofcourage #heartmom #rockyourscar
SCARS ARE BEAUTIFUL.//💚 today I am doing a special feature for SAB... this is Matt. Over the past weekend he participated in the Great North Run in Newcastle, U.K.  He may have came in last place, but he caught the worlds attention and was named the "true winner" that day. Why is Matt so incredible?  Matt Hadden, 28, suffers from terminal bone cancer but still completed the half marathon with his prosthetic leg.  He has gone under intensive chemotherapy and even underwent a leg amputation.  Even with being faced with life's biggest challenges, he doesn't let his spirits get down and makes sure he lives life to the fullest, no matter what. I was more than fortunate to meet this incredible man back in May and photograph him for @scarsarebeautifulproject. He is a true role model and a hero to many!!! @constant_reader_healer .
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#scarsarebeautiful #scarsarebeautifulproject #cancersucks #fckcancer #newcastle #greatnorthrun #realrolemodel #hero #rolemodel #chemotherapy #chicksdigscars #rockyourscar #zipperclub #livelifetothefullest #campaignlife #bonecancer #cancerfight #fightforlife #fckchd #openheartsurgery #loveyourself #loveyourlife #worldwide #uk #london #sixtimesopen #wearredorgonaked @sixtimesopen @the_bhf @themightysite @youngpeople_chronicillnesses
SCARS ARE BEAUTIFUL.//💚 today I am doing a special feature for SAB... this is Matt. Over the past weekend he participated in the Great North Run in Newcastle, U.K. He may have came in last place, but he caught the worlds attention and was named the "true winner" that day. Why is Matt so incredible? Matt Hadden, 28, suffers from terminal bone cancer but still completed the half marathon with his prosthetic leg. He has gone under intensive chemotherapy and even underwent a leg amputation. Even with being faced with life's biggest challenges, he doesn't let his spirits get down and makes sure he lives life to the fullest, no matter what. I was more than fortunate to meet this incredible man back in May and photograph him for @scarsarebeautifulproject. He is a true role model and a hero to many!!! @constant_reader_healer . . . . . . #scarsarebeautiful  #scarsarebeautifulproject  #cancersucks  #fckcancer  #newcastle  #greatnorthrun  #realrolemodel  #hero  #rolemodel  #chemotherapy  #chicksdigscars  #rockyourscar  #zipperclub  #livelifetothefullest  #campaignlife  #bonecancer  #cancerfight  #fightforlife  #fckchd  #openheartsurgery  #loveyourself  #loveyourlife  #worldwide  #uk  #london  #sixtimesopen  #wearredorgonaked  @sixtimesopen @the_bhf @themightysite @youngpeople_chronicillnesses
Thank you so much, Michelle @rebellious_designs_michelle_mc for hosting our Heart Moms paint night! What a fun, relaxing thing to do while we talk about some of the most stressful things in life! Ha! Love you all! Thank you for coming tonight!
#heartwarrior #chdawareness #chd #rockyourscar #heartfamilies #HFCC #heartmamas #heartbabies #countyourblessings #tomorrowisneverpromised #blessed #madeforthislife
I keep telling myself " I won't post anymore today." 😂lies😂 this little girl has the best smile💕 #rockyourscar #hlhs #heartwarrior
Guess who lost his first tooth yesterday!?! It only just started wiggling and Mr. Do-It-Himself just pulled it right out! His realization that a tooth under the pillow at night equals $1 under the pillow in the morning was one of the cutest reactions. Can't believe my kid is big enough to be losing teeth already! #keegansheart #halfheartwonder #chd #chdwarrior #hlhs #littlewarrior #zipperclub #chicksdigscars #rockyourscar #toothfairy #1sttooth #toothless
Pool day before work #phoenix #poolside #itshot #rockyourscar @gelly3333 where you at? @sweetheart683 #glock #partnersincrime
I think Finn will be the most upset our summer travels are over😉. #ladiesman #hegottheallwhitememo #rockyourscar
I'm not crying, you're crying. Juniper had her first day of school today. Today she lived in honor of a little girl who will never have a first day of school but who gave our girl hers. Today she lived for two. Today she reminded all of her doctors, nurses, therapists, friends at Berlin Heart and @donatelifeco, that what they do for a living, matters. The milestones will keep coming and they will keep reminding us to stop and think about a life that almost never was, a life that ended too soon and the selfless parents behind it all. Thank you donor family for giving our family another first with our girl. #becauseofanorgandonor #organdonation
I'm not crying, you're crying. Juniper had her first day of school today. Today she lived in honor of a little girl who will never have a first day of school but who gave our girl hers. Today she lived for two. Today she reminded all of her doctors, nurses, therapists, friends at Berlin Heart and @donatelifeco, that what they do for a living, matters. The milestones will keep coming and they will keep reminding us to stop and think about a life that almost never was, a life that ended too soon and the selfless parents behind it all. Thank you donor family for giving our family another first with our girl. #becauseofanorgandonor  #organdonation 
Can't believe my baby will be 2 in a week! #LIFEisbetterwithyou #2yearold #changingthefaceofbeauty #heartwarrior #rockyourscar
First week of school is behind us. And I can't believe how well my little boy with half a heart did! 
If you are a new follower then let me introduce you to my "why Doterra." I wrote this last week on my personal account:
This little boy right here is turning 5 AND starting kindergarten! If you look up HLHS, survival rates by the age of 5 are wretched. In fact, I sobbed until I couldn't breath when I read the statistic just a few short days after he survived his first open heart surgery. We barely had time to catch our breath and feel relief that he survived.  We hadn't even considered yet, what  rest of his life would look like.... and the reality was earth shattering. His first year was sad, slow, with only little morsels of hope. But then one day he started to fight, we started to see the fire burning in him. We started to see his joy. And he took off- in his own time, in his own way, and with definite style, he has fought to be here. 
I didn't think he'd be here today. I really didn't. But now I look at him and think "how could this kid not survive?" This little boy knit together in my womb by a God who loves and knows him more intimately than I ever will. How precious the heartache has become to me! How thankful I am for every day of it! How good is our God! 
Bennet's cardiologist, the man who walked into a frantic, panicked NICU when Bennet was 1 day old and calmly diagnosed my son while I cried on the floor, called me recently to say this "well christie, we have certainly come a long way from that moment at the hospital 5 years ago. Congratulations mama, let him fly" 
And that's what I pray I will do. Let him fly. I just might need to be reminded every now and then #saundertopia #bennyray #hlhs #heartwarrior#chd #chdwarrior #rockyourscar #chdawareness
First week of school is behind us. And I can't believe how well my little boy with half a heart did! If you are a new follower then let me introduce you to my "why Doterra." I wrote this last week on my personal account: This little boy right here is turning 5 AND starting kindergarten! If you look up HLHS, survival rates by the age of 5 are wretched. In fact, I sobbed until I couldn't breath when I read the statistic just a few short days after he survived his first open heart surgery. We barely had time to catch our breath and feel relief that he survived. We hadn't even considered yet, what rest of his life would look like.... and the reality was earth shattering. His first year was sad, slow, with only little morsels of hope. But then one day he started to fight, we started to see the fire burning in him. We started to see his joy. And he took off- in his own time, in his own way, and with definite style, he has fought to be here. I didn't think he'd be here today. I really didn't. But now I look at him and think "how could this kid not survive?" This little boy knit together in my womb by a God who loves and knows him more intimately than I ever will. How precious the heartache has become to me! How thankful I am for every day of it! How good is our God! Bennet's cardiologist, the man who walked into a frantic, panicked NICU when Bennet was 1 day old and calmly diagnosed my son while I cried on the floor, called me recently to say this "well christie, we have certainly come a long way from that moment at the hospital 5 years ago. Congratulations mama, let him fly" And that's what I pray I will do. Let him fly. I just might need to be reminded every now and then #saundertopia  #bennyray  #hlhs  #heartwarrior #chd  #chdwarrior  #rockyourscar  #chdawareness