This is the first time since Bennett's first seizure 3 months ago that we've seen him laugh back and forth like this with us again. He used to do it all the time. Dave and I both had tears of joy in our eyes today when we heard it ❤️. It's been so long since we've seen him so happy and interactive that this felt like a rainbow after a long storm. 🌈 He's come back to us more and more with every day he's been off his Keppra, and no seizures still! 🤞🏻🙌🏻 Praying this streak continues 🙏🏻! #bennettrack#epilepsy#seizures#seizuressuck#keppra#is#the#worsttttt
Hello world!!! Sorry I been mia been sick and fucked up in the head for a while recovering.i finished my treatments and it's been rough most days have been docs and falling apart from seizures. Finally starting to get back control of my body and back to work today lol 😂 sorry for my lateness working all night on emails and taking care of business! Happy to be back to rock the glass #aliceback#beenroughcoupleofdays#braintumor#seizures#hanginginthere
Have you seen the videos circulating of the parents giving their children cannabis to stop their seizures, and how quickly it works? Why is our government so opposed to legalizing cannabis? #CBD#THC#Hemp#Seizures
Living with Epilepsy (having seizures), has changed my life. Would I have picked it on my own? Probably not at first glance. Then again most people that live through a life altering illness that affects the lives of their families would most likely NOT YELL “YES! Pick ME! I want to suffer this , have my children live through and see horrible things!” Scare my family and test EVERYONE around me.
We aren’t built that way. We WANT to pick a normal, happy, better life! Right?! I believe God placed me on a different path. Why have my short people & Sam had to live with this too? See the things they have seen? One that has left me scratching my head, wondering “what the heck?” Shedding tears because of all that goes with it ( the meds, side effects, the limitations placed on my life and those around me, living with the pain....) . Wondering “Why Me?” , I also wonder “Why NOT me?” and it all makes some sense....,when I cut through the crap , I ‘m human, I make mistakes. This is not some kind of punishment. It’s not Sister Karma~ though there may be someone out there hoping otherwise (SORRY!). This is MY STUFF. My load to carry. How ever I do that, with my people close, my faith closer and stronger than any fear~ these struggles I’ve been handed test me. They have taught me much.
I don’t spend my time counting days. The EPILEPSY FOUNDATION makes a big deal out of 1 year seizure free! I have gotten close, even made it 3 days past to have another seizure! That 💔 . I don’t spend time counting down days..... I made it 1 year and some change :) And so it goes ..,.. my life is much different than it was 4 years ago. In many ways, better. Richer. I am aware of things I may have at times taken for granted. NEVER underestimate the ability of an illness or loss to hit you upside the head and bring AWESOME clarity. One.Day.At.A.Time.
Here’s to living your best life no matter what gets thrown your way! How ever many times you get knocked down~ Get back up. One More Time! CHEERS 🥂🍾
I had 2 options today: letting my exhausted body and foggy mind control my day or taking some rest, pushing through, go to the gym and do some exercise whilst listening to recordings I made of my study materials for upcoming exams. Guess what? I chose option 2 and it sure feels good 💪🏻✨
HOW MUCH IS YOUR CHILD WORTH TO YOUR PROVIDER? •
Well, if you don't have your child FULLY vaccinated by the time they are 2 years old (INCLUDING THE FLU VACCINE EACH YEAR) and their practice as a whole misses the 63% vaccine compliance because of it... A LOT. •
LET'S BREAK IT DOWN
If your provider has 63% or more vaccine compliance in the practice, that doctor will receive $400 PER CHILD that is turning 2 that year and is fully vaccinated. •
Let's say, that practice has 100 eligible children turning TWO that year, your provider is given $40,000. If they have 200 eligible children turning TWO that year, $80,000...
YOUR CHILD is costing them THEIR house or car payment for that year if they don't have 63% vaccine compliance. Congrats! •
THIS is why so many pediatricians are "firing" patients lately. This is becoming the norm now. It's sad! Now you know why this phrase, "Every child by two!" has become so popular. •
When I talked to our OLD pediatrician about an alternate vaccine schedule BEFORE her vaccine injury happened, they said we would have to leave their practice if our child wasn't FULLY vaccinated by her 2nd birthday...🤔 wonder why! •
When I knew I wasn't going to have her fully vaccinated by two, I started looking elsewhere. Every practice either said the same as our last pediatrician OR "We have to get our percentage rate up before we can accept alternate schedules or unvaccinated children." At the time I didn't understand it, now it makes sense... #TrueStory folks!
This site will help explain the program more in depth👇🏻
Showing the BCBS program 👇🏻
A study done in 2011 showed "An estimated 43% of US children (32 million) currently have at least 1 of 20 chronic health conditions assessed, increasing to 54.1% when overweight, obesity, or being at risk for developmental delays are included; 19.2% (14.2 million) have conditions resulting in a special health care need, a 1.6 point increase since 2003." I wonder what those numbers would look like right now... 😔Parents, do your research! Greed has turned our children's healthcare into sick-care. #FollowTheMoney •
I'm Christina, & I'm 18 years old. I have had chronic pain since I was 11 months old, and remained a medical mystery up until a few years ago. It was in 2013 when I had seen this really sweet doctor at valley children's in Madera, and he had been handling my case for a few months. He said " have you been to UCSF children's hospital? " and we said no, so he made sure I'd have an appointment there ASAP.
Afterwards, we found out that he recommended that I to go to the pediatric multiple sclerosis center, I was 14 or 15 so they were skeptical. I had scans, MRA's, LP's ( lumbar puncture ) and so much more. But FINALLY on October 6th, 2014, we got the news. I have MS. But the reason they were shocked is because this is something you would see in a person twice my age, and they'd be probably be not in good shape. two years later
Later in June 2016 I got even worse news. I was told that the scans showed that there were 3 inoperable tumors on my spinal cord, but there was no way to treat them, the worry was that if they grow, I could either die or become paralyzed. I get scans every few months to check on the status of them and thankfully, they haven't grown ( but they haven't shrunk either )
I suffer from seizures but we aren't sure if it's from the MS, or the tumors. I get regular EEGS and I do inpatient stays at UCSF😢 I missed two years of school and was barely allowed to graduate.
HR 1313 allows them to do this. Obama passed it before he left office... Employers can use incentives and penalties to "persuade" employees to take preventive health measures.... ALL LEGAL NOW... and Americans are clueless...
Section 3 (a) 2 refers to “workplace wellness programs and programs of health promotion or disease prevention offered by an employer.” The words disease prevention are concerning since not everyone agrees with the use of vaccines to prevent disease.
Section 2 (3) adds to this concern:
(3) in enacting the Patient Protection and Affordable Care Act (Public Law 111–148), Congress intended that employers would be permitted to implement health promotion and prevention programs that provide incentives, rewards, rebates, surcharges, penalties, or other inducements related to wellness programs, including rewards of up to 50 percent off of insurance premiums for employees participating in programs designed to encourage healthier lifestyle choices; •
As well as Section 3 (c);
(c) Rule of construction.—Nothing in subsection (a)(1)(A) shall be construed to prevent an employer that is offering a wellness program to an employee from requiring such employee, within 45 days from the date the employee first has an opportunity to earn a reward, to request a reasonable alternative standard (or waiver of the otherwise applicable standard). Nothing in subsection (a)(1)(A) shall be construed to prevent an employer from imposing a reasonable time period, based upon all the facts and circumstances, during which the employee must complete the reasonable alternative standard. Such a reasonable alternative standard (or waiver of the otherwise applicable standard) is provided for in section 2705(j) (3)(D) of the Public Health Service Act (42 U.S.C. 300 gg–4(j)(3)(D)) (and any regulations promulgated with respect to such section by the Secretary of Labor, the Secretary of Health and Human Services, or the Secretary of the Treasury).
HR 1313 is indeed a threat to anyone employed by a company or large organization that offers a “wellness” program and partners with government and Pharma to “give carrots and apply sticks” to employees who... *continued below*
Just resharing this previous post as a good friend has been having issues in this area lately... Never underestimate the triggering potential of what we expose ourselves to- food, and supplements included. That's not to say there aren't useful holistic options with neural inhibitory properties out there too (I use many of these daily)! It's just always worth doing a little research and fully understanding what you are taking. I'd love to hear some personal experiences, positive and negative! #epilepsy#seizures#corticaldysplasia#focalcorticaldysplasia#epilepsyawareness#therealeword
Bear needs prayers, energy, light, juju...whatever you can send! He had a 3rd seizure this morning, 3am. Finally got him calm & laying down. He went to the vet after the 2nd & had tests ran; everything came back normal. We are going back to another vet in a couple of hours to see if we can find out what’s going on. Might just have to take some medicine to prevent. ❤️🐻
Saturday was our 6th annual ocwalktoremember. We walk to remember, celebrate and walk the steps Grace and Wyatt never got to. It was a beautiful day filled with laughter, love, support from family and friends and remembering. I am so thankful to everyone who took the day to walk with us and support us on our journey without our babies. It wasn’t our plan but God has surely blessed us in this life and in their sweet lives. Hearing each angels name called aloud is my favorite part. All too often we as a society forget about loss, it is easier to forget. To move forward and not look back. BUT for parents it is a devastating thing. Hearing your child’s name called out is such a gift. I always get chills. Matt Micaela Ethan and I walk up to the stage yearly and collect two white roses. Each rose representing those innocent lives gone too soon. Each year I save the petals in a jar. I love the support each family has as they remember. What an absolute gift it is to honor and cherish our children’s lives. #loss#bereavement#childhood#childhoodloss#ocwalktoremember#death#angels#nicu#gonetoosoon#twins#ivh#blood#seizures#pain#suffering#palliativecare#stronger#unitedwerise#grateful#walk#remember#pregnancyloss#miscarriage#stillbirth#infantloss
Lady’s Service Dog Delivery Service makes getting meds for this icky infection WAY more tolerable! I think @cvspharmacy should consider having dogs giving customers their meds! What do you guys think?? 😂
New Vlog posted, btw! (YouTube channel link in my bio)! Sorry it’s from Sunday! I started to get sick over the past few days, but, last night into today I was knocked down for the count and am behind! I have meds now and will be working on getting caught up very soon. In the meantime enjoy and thank you all so much for all the support!! Gentle hugs to every single one of you!
👉🏻Link in bio 🌱
Cannabidiol— #CBD —is a cannabis compound that has significant medical benefits, but does not make people feel “stoned” and can actually counteract the psychoactivity of THC. The fact that CBD-rich #cannabis is non-psychoactive or less psychoactive than THC-dominant strains makes it an appealing option for patients looking for relief from inflammation, #pain , #anxiety , #psychosis , #seizures , #spasms , and other conditions without disconcerting feelings of lethargy or dysphoria.
*happy tears* today was a very high pain day for me and I struggled a lot. This evening was my first class for my coding bootcamp. As I was getting ready I was feeling so nervous (unstable health, most people in it are already well established in careers, I have tubes hanging out of me, a service dog, 1 of 2 girls in the class etc) and when I got in the car dog days of summer was on the radio. This song is very important to my family and I after my uncle passed away from cancer. I just knew that this was a sign that things are going to work out and I am headed in the right direction 💞