Ok yesterday was a really rough day (more below) but one thing went right... I went 5 hours without my feeding tube beeping from having air in the line!! So I thought it would be funny to have feeding tube challenge to see who can have the record of longest time without beeps 😂 so post or comment below with your record!
Yesterday was quite honestly a day with with a lot of frustration and tears. I think the whole cancer thing finally hit me and it's just so frustrating to move so far backwards when you finally felt like you were moving in the right direction....but then my @freyliving shirt came in the mail and it was the perfect reminder that I've already done so much that I thought I couldn't I know I'll be able to get through this too 💪 (talk about this more on today's vlog-link in bio)
This baby and these little pigtails kill me with cuteness 💖 Maeve has been doing OK. Her seizures have definitely lessened a little bit, but her breathing hasn't been so good since yesterday. She is pretty happy through it all though.
Cannabis Can Treat Post-Vaccination Seizures
Meet Eric Prine. He was born a healthy baby boy in 1992. His parents, Ronnie and Jennifer, took him to the doctor for a standard round of vaccinations. Soon after, Eric began experiencing constant seizures which were happening so frequently he was no longer even crying or displaying the usual behavior of an infant. Sadly for the parents, the massive hospital bills forced them to declare bankruptcy.
Ronnie and Jennifer also had to sell the house they built in Mississippi. In 2004, the family moved to Denver so that Jennifer could find employment as a nurse while Ronnie took on the role as caregiver for their suffering child.
By 21, Eric had stopped showing signs of normal development; at that age, he still looked like a 5 year old. At this time, it seemed that the family’s hopes were going up in smoke: Chloral hydrate, which was being used to suppress Eric’s seizures, was being discontinued. Ronnie took it upon himself to research on other alternatives, and found a YouTube video of Charlotte Figi and Zaki Johnson, two kids whose epileptic seizures were significantly reduced thanks to a cannabis strain called Charlotte’s Web.
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We've been practicing holding items while walking. He's been doing great with this task! What tasks have you guys been working on?
This is what living with seizures is like.. taking loads of medication knowing that it may not work, knowing it may have horrific side effects, it’s heartache and fear, it’s life threatening, it’s sleepless nights and hours spent by bedside, it’s anxiety and grief, it’s pure exhaustion and mental fatigue, it’s relying on others, it’s guilt and loss of friends, It’s time lost from work and school, it’s loss of life. #seizures#seizureawareness
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Oncology appointment today went well 👍 will have a full update on tomorrow's vlog. Right now we are really hoping my bloodwork shows that I'm nutritionally stable enough for surgery so 🤞
Danny Stanton, a beautiful soul. A bright light dimmed too soon, yet has illuminated the hearts and spirits of millions through the Danny Did Foundation! Today, let us say a prayer for the family. 🙏🏼 Remember to enjoy your life. Danny did! 💜
Mar. 2, 2005 - Dec. 12, 2009
A mother and scientist, Catherine Jacobson urges policymakers to create thoughtful #policies for patients with severe #seizures , like her son Ben. It's time to treat medical #cannabis like medicine! https://goo.gl/QNpbcR
Wanted to share how integrating CBD into Maxi's daily intake has decreased her seizures and arthritis pain, and improved her quality of life. She is one happy girl 🐶😇❤ #cbd#cbdfordogs#seizures @therabispet
If you have never heard or read the transcripts of his speech given at UC Berkeley in 1962, "The Ultimate Revolution"... it's fascinating! You should check it out! I haven't read his book, Brave New World, but after watching a few interviews and listening to his speeches, his book seems very intriguing! Has anyone else read it yet? It's crazy to see so many people "call it" decades ago and we still fell into the "trap", for lack of better words.