Wow, I couldn't even believe it has been one whole week since the surgery! (One week down, 11 more to go #spicacast )Im actually surprised how fast it went!
We'll be back at #bcchildrenshospital next week so they can check her incisions and remove the dressings.
I'm feeling much more confident carrying her and changing her diaper. I'm thanking God she hasn't had a blow-out 💩
The weather is supposed to get super hot by the weekend (36°🔥) so we'll be hiding inside in the A/C ❄️ and I'm so thankful my mom has come to give us a hand till we get more comfortable with the cast (she's the best)
I'm just putting the finishing touches on some blog posts and I can't wait to share them with you ❤️
‼️DISCUSSION TIME ‼️ I want to know who sits like this, aka my genie sit (a modified version of a butterfly stretch for hip flexors), or sits criss-cross applesauce (lol I love pediatrics)! Can you also do a butterfly stretch? (Bring you feet together into a diamond shape and slowly bring your nose to your toes while holding the stretch). *scroll left on the picture to see a much more cheery girl do a butterfly stretch!* I can do all of these, as you see pictured, but these are VERY complicated movements for most Ceeps 🗣👣. And it's TOTALLY VALID if you cannot do these! Trust me, it took me years to master!! What do I credit, personally? My dad's intense soccer coaching/ stretching regime haha (he'd always make me do some version of a hip flexor stretch to stay as flexible as possible!), and my chiropractor. My chiropractor has treating my since I was 3! I also always make hip flexor stretches a priority when I'm teaching my spin classes! 🚴🏻♀️ I sit like this a lot of the time now (in moderation- only about 15 to 20 minutes at a time, because I do have to extend my hips and knees frequently). This sit stretches my lovely hip flexors and helps with the tightness when not done for too long (because we all know I can easily snap back like a crashed slinky at any moment with my tightness)!!! 😂
*Stretches yield the best results when completed on sturdy, flat surfaces. I'm sitting on a fluffy bed here, only because 1) I didn't actually realize I was stretching right away (hehe those are the BEST stretches in my opinion*), and 2) this was years of practice in the making to get to this point. Please do not try to master a stretch this way on your own. My experience should not be taken for medical advice. I am just sharing a glimpse into my life with cerebral palsy here.* 💚
I am a firm believer that a team based approach to health care is the best way to treat a patient (and the patient is always the center of our plans). My undergrad career exposed me to working with so many other professionals with the best interest for our future patients in mind, together. Shoutout to all the chiropractors/ future chiros and their mutual love for hip health!
Who wants a FREE Skull tank ? I feel like giving something away 😁 To enter the raffle for this tank, just like the post and tag two friends in the comments. You must do both to win. We will announce the winner tomorrow at noon. Good luck !
So many things are in the works for this fall and 2018! A Gala for special needs to perform, @bellamoxidance convention day for a sponsored special needs group. We'd love to have your help in getting these things going. If you would like to donate to assist in travel costs, convention costs, and class costs to help these amazing dancers have the opportunity to dance please check out our website! All donations directly benefit special needs 😊 #Idefi#specialneeds#dance
Yes!!! I've been dying for these for forever!! @menpodcast interviewed @thorny20 a few weeks back on episode 27......straight up, im not one to be "inspired" by too many people. I just feel most people are just doing what's best for them and their families to their abilities and that's all equally to be respected but Robert Thornton is on another level. You can feel the real ness radiate of this guy when you're near him. He wants to help people. That's it. That's all. No ulterior motives and it's obvious. The pure joy he obviously gets from helping people and strength of heart and sacrifice he makes just makes you want to drop what you're doing and find someone to help. .
These two shirts are from 2 of his not for profit companies @papercloudsapparel and @cloudcoveredstreets. Paper Clouds are all shirts with designs made by special needs kids and also packaged and prepared by special needs as well. Cloud covered streets is an apparel and homeless outreach program that helps give supplies to the homeless and needy. But it's so much more than that. I'm running out of room here but go check them out, I'll tag them here and in the picture. It's an amazing cause run by an amazing man that I genuinely look up to. Donate, purchase a shirt, repost this (I don't think I've ever asked for a repost, it's not something I generally ask).....just do anything to help him on his mission. If nothing else thanks for the support and love ya savages!!! 🇺🇸.
💣Truth Bomb Thursday💣Being a parent is really tough. Being a working parent is tough AF. Raising girls who will become women is extraordinarily difficult. It's a constant battle between fostering their independence and strength while battling constant outside influences affecting body image, self-confidence, and self-worth. All while allowing them to become their true and best selves within the confines of respect and boundaries as a child and as a decent human.
Add to that a child with a disability who will inherently grow up "at risk" for depression, withdrawal, self-confidence issues, and even suicide as the umbrella prognosis goes for kids with intellectual disabilities. And then throw in a big sister who on her own assumes a huge responsibility for the care, safety, support, and love of her little sister. To be quite honest, most nights I go to bed in near-tears feeling as if I've failed them both in one way or another.
I spoke a few weeks ago at @fit_mama_whit women's retreat about "giving up guilt," and it's something I have to very consciously do. I carry an enormous amount of guilt as a mother- guilt that I did something to cause Neely's CP, guilt that I was unable to give Hannah a "normal" sister, guilt that I left a decent job with benefits to begin a new career with neither income nor benefits. And at that weekend, I was asked specifically HOW I let go of that guilt. I'm not sure I was really able to answer it, and it's bothered me since then.
Do you bury yourself in it? Do you write down those feelings of guilt on a sheet of paper and send them soaring to the sky tied to a balloon? I'm not sure I really even know the answer. Maybe time removes it. Maybe new guilt replaces the old.
Regardless, until you face those feelings in whatever way works for you, you can't move forward. You have to acknowledge those feelings. And then you have to give yourself permission to let them go. If not, that guilt will weigh you down like a million pounds. Release it. When you do, the entire universe will conspire in your favor to set you on the right path towards your purpose, arming you with the exact tools you need to achieve all of your dreams and goals.
On our Vetericyn Facebook page at 6pm PST, tonight, we are interviewing Capital City K9 Service Program. They are a family based organization whose mission is to work as a team to help everyone who has the need for a Service Dog. Whether you were a veteran who has PTSD from your time in service, or you are looking for a Service Dog to mitigate a child's disability.
We had an absolutely miserable trip to walmart yesterday. Katie is always a horrible shopper. You hear that kid crying & screaming at the top of their lungs? Yep. That's us. Manageable at 2, not so much at 12. And nothing helps. Tried it all, from ipad to earphones. Even filling the cart up with toys doesnt work. She does much better in the less loud/busy Target atmosphere, but alas sometimes you need WM. This particular WM doesn't have the #carolinecart for some reason either, which sucks. She always does better in the caroline cart. The Target next door & nearby by Harris Teeter do. HELLO?? #walmart at Edinburgh in #chesapeakeva . (For goodness sake we even have one here in the middle of nowhere at Food Lion!) This means hauling a nearly 100 pound 12 yr old into the back of a cart if I need anything from there. The cart also managed to snag a hole in a brand new dress she was wearing. I think yesterday put a period to it anyway. She had a big growth spurt the last few months and while shes still not an incredibly big kid (small for her age) I don't feel comfortable with her in it any longer. She usually sits in the toddler cart, but there were none and they aren't safe either as they don't buckle around her. Anyway, perhaps not the best parenting skills, but in an attempt to curb her melt down, I grabbed a new toy for her. She has thoroughly enjoyed this crazy thing! I thought it was cute, up until she put an Oreo in it and I was like O.M.G!!!!!!!! What did you doooo?? (see what I did there? come on, it was punny) #specialneedskids#specialneeds#specialneedsfamilies#cpkids
It's FACES time, and if this little face doesn't melt your heart, well then we don't know what will. Miss Olivia is as spunky as the day is long, AND rumor has it she can recite every line of Meet ClaraBelle Blue from memory! In true 5-year-old fashion, Olivia wants you tho know that she has curly hair (just like ClaraBelle Blue), Her parents have this to say about their sweet girl: Olivia is a very determined little girl who has never let her Spina Bifida define her or hold her back. She goes rollerskating, does gymnastics, plays baseball, and can maneuver just about anywhere she wants to be. She is very compassionate and wants to be sure that others are happy and feeling good! We just adore Miss Olivia, and think you will too!
Went out on a @cloudcoveredstreets mission helping the homeless while wearing my Logan Skull design ! Order yours and proceeds go to Opportunity Works, a program that teaches real life skills to adults with special needs. Help us help them be as independent as possible. Make your clothing matter !
Thanks for all the feedback and responses to our t-shirt survey yesterday. Watch to see us randomly pick the shirt winner! Spoiler, it was @jschmidt00 Chances to vote on actual designs and win more free shirts coming soon #pursuepurpose
Yep! But we should still listen anyway since people's voices matter. Educate and support not belittle. 👌Using EBP when determining intervention is essential as it helps us provide the most effective care to our patients/clients. Keep spreading #slplove 💕. Have a wonderful #Thursday afternoon!
Meme cred: speechirl.com
I think I'm in love with this romper! It turned out so so well, I really hope Ann & Isabel love it as much as I do 💙 A full product profile will be on our Instagram stories soon!!! Take a look at all our rompers have to offer! 💙
A friend sent this to me yesterday, it got me thinking that if others are seeing my love I have for my daughter then she has to as well right?! It is so hard as a parent of a special needs child. They see things differently, hear things differently, feel things differently and react to things differently.
My hope is that she fully grasps how much I love her, how much joy she adds to my life and that I wouldn't want her any other way.
Yes the struggles are real. I get sad when I see differences from others her age, I get frustrated when she doesn't get something I'm talking with her about and yes my body gets tired from having to lift or hold her up or help with things that in the typical world comes with ease.
However, at the end of the day I am so thankful for everything she is. I forget about the tough times and the frustrations and smile at what and who she is. She is growing into a beautiful young lady. And that makes me smile.
Simply put, she is the best thing that has ever happened to me to!
I Love My Daughter
A seat with pockets?? How cool and "handy"! This bolster chair has pockets that give hands a place to hide away. Helps reduce disruption in the classroom or clinic by offering a secure outlet for restless kids to place their hands. Tuck fidgets inside the pockets for additional sensory integration. (Fidgets sold separately.) Part of our SensaSoft collection, featuring a unique and exclusive design, highly durable material and European craftsmanship. Designed to stand up to frequent use. #linkinprofile https://funandfunction.com/sensasoft-pocket-seat.html #empoweringdifferent
Thursday Meet and Greet:
Meet Raquel Miller, the practice director of Professional VisionCare. Raquel is instrumental in creating programs, events and training to move the practice forward so that we can care for more families. One aspect of her job is to care for the staff members and she has done an outstanding job of it. She helped create the idea of Not Your Ordinary Eye Doctor and has planned and implemented service projects, staff get togethers and community involvement events. You might not get to see Raquel everyday, but if you are seeing a happy, healthy staff member, it is probably because of Raquel's influence. Raquel often jokes that she has born in the wrong time period, but we sure are glad she is with us now!