15-year-old Dalton struggled with reading his entire school career, until he received Read Right tutoring at his school. The student who many feared might never read is now reading and understanding what he reads. LINK IN BIO!
Hospital breakfast... Yesterday we had a reality check. After doing great for months and only having a few minor seizures last week, it felt like we were back in Surinam. She had 4 big epileptic seizures back to back in only 6-8 hours. This was daily life in Surinam. I thought we were completely past that. Guess not. I tried not to cry but I hate to see my baby hurting. So many emotions. Because Joya also wants attention and play with me. She knows we have to be extra quiet and carefull but she is 2. So she also wants to play with her sister.
So today we are back in the hospital at the neurologist office. So many hard decisions about new medication and a brain scan that reveals there is still a storm inside her pretty little head.... #Microcephaly#Sika#Warrior#SpecialNeeds#DejasJoy
Check out this babe! @susyparker_ has a beautiful piece of writing on life as an ADHD Mama on the blog today. I can certainly relate as theirs no shortage of labels in this house! ❤️🌈🦄 Hit the Link Tree!
Ismail, 6 years old - #cerebralpalsy#children with #specialneeds . Mengingatkan aku kepada arwah Annisa dan arwah An Nur. Ismail bahagia kerana mendapat sokongan kuat daripada ayah dan ibu serta bapa/ibu saudara juga sepupunya.
Yesterday the BBC very kindly asked if I would give my response on the outcome of the meeting regarding CADU on Dave Monks show.
"Of course, we are pleased to hear CADU will be reinstated in a matter of days but for us, I cannot see any light at the end of the tunnel.
Below is the statement from Essex County Council.
Councillor Dick Madden, Essex County Council’s Cabinet Member for Children and Families, said: “We regret that the Child Assessment and Development Unit (CADU) which was responsible for autism diagnosis had to be temporarily paused, but I’m pleased to say that along with the North East Essex Clinical Commissioning Group, we have found a way ahead. I am sorry for any stress this has caused to any families.
"The County Council and the CCG have agreed to ensure funding is in place for an autism diagnostic service in north Essex until the end of the 17/18 financial year. We are working on the finer points of this, but envisage the service will be provided by Colchester Hospital University Foundation Trust and Virgin Care and will enable us to continue to work together with partners to establish a long-term solution that meets the needs of local families.
"The clinical diagnosis of autism is delivered through the NHS, which is the case across all other areas in Essex, as well as nationally. Our aim is to work with the CCG on a shared solution for north Essex which is consistent with the rest of the county and also reflects the national picture. The CADU service is a historic arrangement and moving forward, there will be an independent review as well as input from families to help shape the future pathway for autism diagnosis in north Essex.
"Our priority is to ensure a service is reinstated as quickly as possible and over the coming days will be agreeing the finer details with partners on when the service will begin and where it will be provided from. We will be in contact with families currently on the waiting list for the CADU service to apologise for the pause in the service, and update them on the latest situation.”
Chucke Cheese's has Sensory Sensitive Sundays Woohoo!!Which includes:
1. Less crowding and noise
2. Dimmed lighting
3. Show and music turned off or down
4. Limited appearances by Chuck E.
5. Food and games are offered for more info and participating locations visit. https://www.chuckecheese.com/deals-offers/sensory-sensitive-sundays #spd#sensoryawarenessmonth#autism#infantstimulation#specialneeds#chuckecheese
After walking dogs all day Elizabeth changed hats (and shoes) and spent the evening walking horses around an arena helping with a local horse therapy program. All animals can contribute so much to our lives and it’s amazing to watch how these horses meet these special needs kids exactly where they’re at and help them gain confidence. We strongly believe it’s important to invest in your community, don’t forget in the busyness of life and work to spend time helping others!! *no pics of kids due to privacy concerns*
To have some speak on Down Syndrome you would think it the end of the world. An infliction that sucks the happiness out of the world. A life long doom of heart ache and desperation. Constant regrets and worries plaguing your days. It couldn't be more then opposite for me. There is not a moment I look upon his face and feel regret. I look at his smile and feel nothing but warmth. I hear him say the phrase mama and feeling nothing but joy. Look into his eyes and feel nothing by overflowing love. With all my faults he forgives and expects nothing less then being engulfed in my embrace. He has brought me rainbows in the midst of storms. He shows me nothing but love and a bright future. I'm so very blessed for having this little dude in my life and I thank God for him every single day. #downsyndrome#downsyndromeawareness#ds#t21#specialneedsma#specialneeds#disabilities#mylove#specialtome
“Variety Hour” fun in our new Adult Expressive Arts Day Program! Our amazing crew of participants and support workers are busily and happily working away on their crochet projects and jam-making. A truly enjoyable and happy day had by all! A special thank you to @crafty_crafty_me_crochet for sharing your time and expertise with us - what a memorable experience together ❤️ #expressivearts#specialneeds#yycdance#yycyoga#yycarts#yycrecreation#yycadultfitness
Hayden is non verbal. We have tried a few different alternative communication techniques and so far this one has proven to be most effective. We have buttons all over our house in specific locations to represent different things that she may want or need. Communication comes in many forms. It may be verbally, signing, picture association, assistive technology like an i pad or a go-talk, and even simple buttons like this. What is important is striving to understand how to communicate with her and finding the method that she likes the best.
We have not ruled out the possibility that she may speak one day, but until then, we will encourage her to use any form of communication that she is able to express her wants or needs to us.
Happy Birthday to the sweetest, silliest, most loving 4 year old we know! 4 years ago today you blessed our world 6 weeks early via emergency c-section and our life has been full of fun surprises ever since. We love you Viena and can't wait to see all the new things you will do this year! #Happybirthday 🎈🎉🎁
“ I have always believed that the way you treat your employees is the way they will treat your customers, and that people flourish when they are praised.” -Sir 🌟 These statements are absolutely true. I ❤️ and appreciate all of my Tabb Healthcare staff! 🙏🏽