Down syndrome awareness day #14
I’ve missed a few days but heres today’s post.
Today’s post will about be about one of Karolyne’s biggest struggles which is low muscle tone, or hypotonia. I stole this explanation from a friend as I thought it was pretty good. “Hypotonia makes gross and fine motor skills harder for her to accomplish. Low muscle tone isn’t the same as strength. It actually relates to the connections or signals between the brain and muscles. These signals are weak when a person has low muscle tone.
As to how it feels, one person equated it to working all day in the yard and, later after laying down, your muscles not wanting to work or move when you attempt to get up. Another example would be trying to run while in waist deep water. “ I think about the energy and determination that takes for her to learn to reach milestones that otherwise come naturally for other kids; like tummy time, sitting up, crawling, speaking clearly, etc. It makes me celebrate those milestones so much more. I am also in amazement of the miracle of the human body and how everything is perfectly designed to work together. I will not take for granted the health that I’ve been given and will continue to be in awe of how amazing this little girl is. She will continue to overcome and we will continue to celebrate her.
The winner of our fall giveaway will be announced this Thursday, October 12 at 11 am. You still have a chance at that $75 @robinettesapplehaus gift card! Details below ⬇️
1. Follow David's House on Instagram
2. Like this photo
3. Tag three friends in the comments who don't follow David's House
4. BONUS: repost this photo using the hashtag #dhfallgiveaway to have your name entered an additional three times into the drawing
Get to it, friends!
The ALEX Method was something I had come up with very early on (even though I did not have a name for it). I watched the way school districts were speaking to the special ed students, the way corporations were speaking about them, the way law enforcement saw them. I took this idea of adaptive language and created what a Life Skills Consultant is. From there it had grown, and I've created some curriculum around this method. You can follow me @HeyLoriKay to learn more, or you can watch on Wednesday when I speak with Marla more about this method and how businesses can incorporate
Down syndrome awesomeness day #9
Our hope is for someone who receives a diagnosis like ours, to come across this and find comfort and realize there’s so much to look forward to. And so much to be gained.
Repost from @standforlifemovement:
"We first shared our story before we met Karolyne. We found out early in our pregnancy that she would have Down Syndrome. I still remember the sadness we felt as we mourned the loss of a child that we had made up in our mind. We felt anxiety and fear of what this would mean for us and for our future. If I could go back to those moments knowing what I know now, these are some truths I would tell myself :
1. You will love this baby more than you ever thought possible. When you look at her, you won’t see Down Syndrome. You will see a beautiful little girl full of joy. There will be absolutely nothing you will want to change about her.
2. Your marriage will change, but not in the way you fear. You will be more grateful for your husband when you notice how proud he is to be your little one's dad. You will fall more in love with him every time when he comes home, picks her up and tells her how much he missed her and how beautiful she is.
3. Yes, you will have some really hard days. You will also have little time to yourself, and will constantly worry about her future. That’s ok. Those hard days and worries don’t even begin to compare to the joy that she will bring to your life.
4. You will not be alone in this journey. There will be a whole community that you never knew existed. You will have an incredible bond; you will not judge or compete with each other. You will lean on and cheer each other on.
5. You may think you have a lot to teach your daughter, but trust me, she will teach you so much more. She will slowly start to transform you into the person that you were intended to be. Let it happen and enjoy the crazy beautiful ride." - Odila #standforlife#youngfamilyupdate#oursweetkarolyne
Most of y'all might know me (@heylorikay) as Tim Harris life coach. For over two years I worked exclusively with Tim being his life skills consultant and running his business. This year I started taking on more clients and creating more programs based on my method (which you learn about later). I get to advocate for people with disabilities and help them advocate for themselves. My job as a Life Skills Consultant is to help the individual become as independent as they want. I do this by working closely with the individual, their family, caregivers, employees, job coaches, and anyone else in their lives. I use real-world situations and create a safe environment for them to think independently. I'll share later on about what those real-world situations look like
An awe-inspiring moment it was spending time with the kids of the Aboom School for Special Needs in Cape Coast last weekend. ...from medical screening - face painting - dancing competitions😂😂
Everything about them is indeed special.
All appreciation to our sponsors and volunteers @phoenixinsuregh @magicmaltgh @mideagh @spectacular_optics @official_doctorsact.ghana @rgbekoe @wop3car @moorepictures @playandlearnfoundation and Speed Medical Centre for their charitable acts and for believing in the future of these children.
Our profound gratitude to you for every effort you put into making this day a memorable one for the kids, parents and staff of the Aboom Special school.
We're deeply grateful for all who joined us for our Celebration of 30 Years. David's House exists today because of God's faithfulness and the support of people like you. Thanks for making yesterday so special!
View photos from the event at dhmin.org/blog
Down syndrome awareness day #7
Had a great time hanging out with these sweet mommas at a fund raising event for Karolyne’s school last night. We feel so blessed to have her attend a school that not only provides quality early childhood education to children with disabilities but which also includes typical children. Inclusion is so important. Research has shown that inclusive education substantially increases academic performance and the rate of employment for individuals with Intellectual Disabilities. But inclusion doesn’t just benefit children with disabilities. Typical children learn early on to be more inclusive and compassionate. They are also more knowledgeable about down syndrome or other disabilities as they have grown up around it. Now who wouldn’t want children with those qualities? So thankful for these moms. Those with a child with DS because you get it and you are my people. Those with typical kiddos because you believe in inclusion and make that a possibility at our school. Our kiddos will learn so much from each other. So much love and respect to all you mommas! ✊🏼 #inclusion#inclusionworks#inclusionisthenewcool#yellowroomrocks#downsyndromeawarenessmonth#downsyndromeawareness
Down syndrome awareness day #6 .
The expression on Karolyne’s face is the response I wish everyone had when they find out she has DS. Excitement followed by a congratulations would be ideal. Too much? I don’t think so. But fine, I’ll be realistic and settle for any positive response. Or even better, questions about what its like. While I know that there’s no ill intentions. The one response I dread is “Oh, I’m sorry.” Trust me, there’s nothing to be sorry about. Does it come with extra challenges? Absolutely. But who said parenting was easy? I certainly never met a parent who thought so. Our family is not sorry at all. She has brought so much love and laughter to our lives. And she’s definitely is not sorry or suffering. Just look at that face! #purejoy#saycongratulations#smile#askquestions#anyquestion#questionsarenotoffensive#beinformed#downsyndromeawarenessmonth
@standforlifemovement #standforlife @fatty2084
Board members Dave and Shayne Underwood helped get our grounds lookin' pretty for our Celebration of 30 Years this weekend. We appreciate their service (and yours as well, Clyde).
Join us on Sunday from 2 PM - 4 PM as we celebrate the past 30 years of care for adults with special needs. RSVP link in profile. See you soon!
Down syndrome awareness day #5 . Want to share this beautiful story as is strikingly similar to ours (less the miscarriage). Repost: “After we lost our first baby to miscarriage at eight weeks, we were thrilled to find out we were pregnant again. This time, our eight week ultrasound was much different and showed a beautiful, wiggling baby with a strong heartbeat. We were so relieved!
Our doctor informed us of a simple blood test that was available that tested for genetic abnormalities, and could tell us the gender of our baby at 12 weeks. We were not concerned about any genetic issues, and the thought of finding out the gender so easily and quickly was exciting, so we did the test. Little did we know how our world was about to change.
When my doctor called, I knew something was wrong: our beautiful baby boy tested 99 percent positive for Down Syndrome. We were devastated. We had never been around anyone with Down Syndrome and had no idea what to expect. As we researched, we quickly found that 93 percent of babies prenatally diagnosed with Down Syndrome are aborted. This information was appalling. We immediately knew that God had given us this child because there was no way we would ever consider terminating his pregnancy. This baby was a precious life that deserved to live. No matter what the future held, he was our baby, and we would do everything we could for him.
Due to our lack of awareness, we once mourned because our baby had Down Syndrome. Now, we are so incredibly honored to have him as our son. There have been a few setbacks—three weeks in the NICU and open heart surgery—but there hasn’t been anything that modern medicine and our faith in God did not get us through. Our sweet Joshua is now two years old and is the greatest blessing of our lives. He is healthy, smart, and has the kindest heart you could imagine. He has an infectious laugh, he is as playful and rambunctious as any little boy should be, and he brings joy to everyone around him." - Emily #standforlife "
David's House co-founders Jay and Lois DeBoer reflect on the joy, pain and faithfulness of God experienced throughout the past 30 years of ministry in our new blog post. Read their story and view an accompanying 30th anniversary video at dhmin.org/blog
We invite you to join us this Sunday, October 8 for our Celebration of 30 Years! RSVP link in profile.
#charitablecause#notforprofitbutforpeople Yesterday, I took the plunge after years of dreaming about how I can empower other parents walking a similar journey as ours💙🎉 So there you go! Introducing the Joy and Joe special needs parenting support group. This is completely different to any group you've seen or heard about. Please read on to learn more and kindly tag any parent you consider eligible to join this new business network👋 Everyone is welcome irrespective of where you're based in the world 💙🌎 The Joy and Joe Special needs parenting support group is a group whose objective is to provide emotional and enterprenueral support for parents of children with special needs. This Facebook group is an offshoot of the joy and Joe family page ❤ https://www.facebook.com/joyandjoefamily/
This group is going to be hopefully more than your regular special needs group, we are hoping to raise entrepreneurs from parent carers. We believe that with the right support, there’s a unique business idea waiting to be birthed within everyone ❤
We understand that as parents of children with special needs, the focus is often on the child but in this group, we want to let you know that we care about you, the parent carer. We believe that you can not pour from an empty cup so within this group we will endeavor to support one another.
Within this group, parents will support each other ❤
This is a non-judgmental zone.
Join us this Sunday, October 8 from 2 PM - 4 PM as we officially celebrate the past 30 years of quality, total-person care provided for adults with special needs! Light refreshments and guided tours will be provided with a special prayer and dedication of our new administration building at 3 PM. RSVP at the link in our profile.
Thanks to @woodtv for featuring us on their special @artprize Daybreak show this morning! We’re so thankful to have been given the opportunity to share about the awesome things God is doing through David’s House. #artprize9
I almost didn't post anything today, but we need more light in this dark world. This beautiful story came to me all the way from Holland from an amazing 20 year old after she bought a Holland Tour Guide tee for a little boy that holds a very special place in her heart. Here is her story: "For it to make sense I need to rewind all the way back to Fall 2015 - that is when this whole new (extra special) world opened up for me. I came across ThatDadBlog’s Instagram page and from there things changed quickly. I loved reading about these kids rocking an extra chromosome. I have always had a big heart for kids with special needs and I have known from a very young age that I want to work with them. [I tutored a boy at my school for one and half years - I taught him how to read and he taught me so many valuable things in return] I looked forward to posts learning about the developments of these kids, especially on speech (that is my HUGE passion, but not the point here). I kept on getting inspired by all the parents sharing about their kid(s) and I felt so much love in my heart for these kiddos. I started talking to the parents and learning about them even more. I felt part of this ‘community’ and it felt so wonderful and special. After some time, I found a family that were in the process of adopting a little brother and I found out they had two girls with Down Syndrome already. So inspiring. As I learned about their family and the adoption process they were in, I came across more families who just got home with their child or who were also in the process or who had adopted years ago. I felt so touched by what these people were doing. It was so inspiring! After a while I just couldn’t keep myself from taking a look at Reece’s Rainbow. Adoption has been on my mind for a long time, but special needs adoption was new to me. However, I saw miracles unfolding in front of my eyes (on a screen but still) and I was SO inspired and touched. God is powerful. My first experience on Reece’s Rainbow was tough. My heart broke for all these precious children. As I scrolled down looking at their faces, tears started rolling down my face. Continued in comments...
Time for another giveaway! Follow the instructions below and you could win a $75 @robinettesapplehaus gift card to cordially welcome the cool weather 🍂
1. Follow David's House on Instagram (if you haven't yet, of course)
2. Like this photo
3. Tag three friends in the comments who don't follow David's House
4. BONUS: repost this photo with @repost.app using the hashtag #dhfallgiveaway to have your name entered an additional three times to the drawing
We'll randomly select a winner on Thursday, October 12 at 11 am. You can smell those donuts already, can't you? 🍩
Set your alarm clocks a bit earlier for tomorrow, West Michigan friends: we'll be making a special @artprize appearance on the @woodtv Daybreak program to share about David's House! You'll probably see one or two familiar faces... #artprize9
This month is #DownSyndromeAwarenessMonth ! 💛💙 As I've said on here before I make bracelets a lot and I have been making bracelets of the awareness colors for causes in general for 4 years now. For Down Syndrome Awareness Month I decided to make a bracelet of the Down Syndrome awareness colors. 1 in every 700 babies each year are born with Down Syndrome. Yellow and blue are the awareness colors for Down Syndrome and I love all children and people with Down Syndrome, especially the ones I've met and am good friends with. I am so proud to support and accept all children and people with Down Syndrome, especially the people with Down Syndrome I am friends with, the people with Down Syndrome on Born This Way which is favorite show, and my future students with Down Syndrome that I may possibly have as a future Life Skills teacher. I am also of course proud to wear this bracelet and have changed my profile picture to the Down Syndrome Awareness FB profile picture frame💙💛🎗 #downsyndrome#downsyndromeawareness#downsyndromeacceptance#downsyndromeawarenessribbon#yellowandblue#specialneedsadvocate#wearyellowandblue#supportdownsyndrome
#happybirthday to us dearie we know how to just #connect !!!!😘
Thank you for always just helping to #learn and relearn
There's something about Sept 26 ladies @serenawilliams and @oodee2609
We're all #daddysgirls#welovewhatwedo#wewontstop we're #relentless and #unapologetic#proudhumanitarian#specialneedsadvocate#servicetohumanity#love#impact#Repost @tobilobaajayi (@get_repost)
Akhere, @agathaobiageliaghedomemorial and I are birthday mates.
We however have more than our birthdays in common.
She's my go to girl when I am frustrated with work, she works in the field, so she gets it.
An Educator, so I can rant to her about how her fellow educators are just not getting it😊
She makes me laugh. When we catch up, it's a laughter fest.
She has energy. I just look at her and marvel.
My birthday mate of life, @adelolaedema said we were trending on her timeline on our birthday.
I celebrate you and the gift that you are to humanity.
Have a fabulous year.
Happy Birthday Akhere.