The quality, total-person care provided for residents of David's House would not exist without the tireless service of our direct care providers. We can't emphasize this enough—nor the appreciation we have for them! Meet Emily, one of our House 2 direct care staff members in this week's Staff Spotlight. Visit dhmin.org/blog #growingtogether
Mark recently moved in with us and acquired a banjo. Inspired by our most recent Summer Concert Series performance, he's eager to get practicing! We're glad to have Mark here and look forward to many wonderful serenades in the days ahead. #growingtogether
How amazing is this? I was driving to a client and saw this sign. Many children with ASD do not have safety awareness; running in to the street, or wandering, is a major concern for parents. We need more of these signs around!!. Advocacy and awareness are crucial❗️.
As I have said numerous times before, Autism, at it's core, is a disorder of communication. There are roughly four persons that my son can carry a conversation with, and when you dissect those "conversations" you'll find that they aren't really what you think they are. And because of these struggles, we work on pragmatics (social communication). Carrying on a conversation with a beginning, middle, and end; sharing, taking turns, irony, humor, reciprocity, building on what another has said, and so much more. He struggles with self-monitoring and self-correction, also issues we are currently working on.
The son I'm talking about is my youngest. He is verbal, and on the spectrum. One can have language, and still have Autism. One can be...cognitively able, if you will, and still have Autism. Simply because his vocabulary is large doesn't mean he communicates effectively. He does not. He knows words, he doesn't use words. This vulnerability is often overshadowed and/or minimized because many feel he's smart enough to know so many words.
How lovely it would be if I could get so many to understand this in regards to my youngest.
Language does not equal communication. #autism#autismom#mommyblogger#specialneedsadvocate#specialneedsmom#specialneeds#ausome#sensoryprocessingdisorder#themoreyouknow#funnyfaces
I get to go to the top of that building and give a speech on not making advocates out to be heroes. I could throw up. Not because I have to give a speech but because I have to ride an elevator that high.
"On the morning of September 10, 2015 it was with a lot of excitement that my boyfriend and I went to the hospital to meet our little angel for the very first time. The doctors had decided to take our little princess out of my belly since she didn't grow big enough anymore. Suitcases in hand, we crossed the main entrance of the hospital knowing that the next time we would go through it, there would be three of us.
Had I been told almost two years ago, when Raphaëlle was born, that my whole life would take a different turn, I would have believed it right away...Knowing fairly well that a child doesn't only change your life, but your entire world! However, if I had been told that during the first year of my daughter's life, I was going to spend more time at the hospital than in nearly 30 years of my own existence, I wouldn't have believed it. Had I been told that the year to come would bring us the greatest moment and, at the same time, the biggest challenge of our lives, I wouldn't have believed it. Had I been told that our baby would wear newborn clothes for more than 4 months, I wouldn’t have believed it. That every single morning would start by giving 3/4 of this tablet, 1/2 of that one, one millilitre of this medicine; I wouldn't have believed it. That my planner would be filled with medical appointments of all kinds, pretty much every week, I wouldn’t have believed it. That we would have to be assertive and stubborn to get services for our daughter, to fight for insurance and for things that we all believe to be so trivial... I wouldn’t have believed. Had I been told that we would be THE parents, out of more than 20,000 births, who would give birth to a child with Williams syndrome, I wouldn’t have believed it, that’s for sure…
There's no doubt that life can sometimes be very tricky. Sometimes by doing you good, other times by being hard on you. Life can bring the most unlikely situations along our paths, the ones that will change our vision of life forever, the ones that we cannot see coming. It hasn't always been easy, I agree. Simon and I have often been confronted with ourselves, as well as feeling powerless with <<< continued in comments >>
Join us tomorrow evening at House 3 for a performance by Angel Gabriel and the Holy Minerals! Music will begin at 6:30. Seating and light refreshments will be provided. Donations are encouraged. See you soon!