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Well I made it through my shower but fell after. Bumped my head but I am ok. #Superhero #ASWarrior #Spoonie #Anxiety #depression
This is one of my most favorite songs from such a beautiful artist. If you’ve never listened to it please do. I find solace in it, I find strength in it, I find love in it, I find pain in it. **************
During my sauna session tonight this song came on and it made me think about how fortunate I am to have a body that is fighting along side me. Most of the time I feel betrayed by my body. That it hasn’t done the job it signed up for. That it’s failing me. But last night I was able to sweat a good sweat and tonight I sweat again. Might seem like a gross subject to bring up but hey, everybody sweats! Except it’s really hard for us Lymies and my body is finally holding up its end of the deal! ******************
We’re finally attacking the Lyme and Bartonella where oral medication has failed me. I’m herxing like crazy but I’m herxing and I’ve never herxed before. It’s a trial on my body and it’s painful and sometimes I can’t walk or breathe or stand. But my body is able to fight along side me now and it’s refreshing for the spirit. 💚
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#lymedisease #neurolyme #lymewarrior #chroniclymedisease #bartonella #babesia #pots #pcos #eoe #seizures #celiac #hashimotos #thyroid #heavymetaltoxicity #moldtoxicity #chronicpain #invisibleillness #spoonie #migraines #infraredsauna #fucklyme #thiswomanswork @maxwell
This is one of my most favorite songs from such a beautiful artist. If you’ve never listened to it please do. I find solace in it, I find strength in it, I find love in it, I find pain in it. ************** During my sauna session tonight this song came on and it made me think about how fortunate I am to have a body that is fighting along side me. Most of the time I feel betrayed by my body. That it hasn’t done the job it signed up for. That it’s failing me. But last night I was able to sweat a good sweat and tonight I sweat again. Might seem like a gross subject to bring up but hey, everybody sweats! Except it’s really hard for us Lymies and my body is finally holding up its end of the deal! ****************** We’re finally attacking the Lyme and Bartonella where oral medication has failed me. I’m herxing like crazy but I’m herxing and I’ve never herxed before. It’s a trial on my body and it’s painful and sometimes I can’t walk or breathe or stand. But my body is able to fight along side me now and it’s refreshing for the spirit. 💚 ******************* #lymedisease  #neurolyme  #lymewarrior  #chroniclymedisease  #bartonella  #babesia  #pots  #pcos  #eoe  #seizures  #celiac  #hashimotos  #thyroid  #heavymetaltoxicity  #moldtoxicity  #chronicpain  #invisibleillness  #spoonie  #migraines  #infraredsauna  #fucklyme  #thiswomanswork  @maxwell
Fun in the sun with Lida 🌤
Fun in the sun with Lida 🌤
Yesterday is the first day that my entire family (husband, myself, two sons, and daughter-n-love) have ALL been able to get together and do anything, since my birthday at the beginning of this year.  Someone is either always working or is not well.  There is always a conflict.  Yesterday, despite car issues and chronic illnesses we all persevered/made it!  Once, I got home: my Hubby and I fell into bed.  I passed out due to exhaustion.  I had to wake up for my regular med time.  I am just so grateful for my family and the love we have for one another.  XOXOX #bigtex
Yesterday is the first day that my entire family (husband, myself, two sons, and daughter-n-love) have ALL been able to get together and do anything, since my birthday at the beginning of this year. Someone is either always working or is not well. There is always a conflict. Yesterday, despite car issues and chronic illnesses we all persevered/made it! Once, I got home: my Hubby and I fell into bed. I passed out due to exhaustion. I had to wake up for my regular med time. I am just so grateful for my family and the love we have for one another. XOXOX #bigtex 
My boyfriend wants me to have half blonde half black hair again but it kills my hair so idk. I’m digging the blonde bangs but it isn’t the same that’s for sure. 🤷🏻‍♀️ #personal #me #selfie #selfies #pierced #piercing #witchworldwide #blondehair #blackhair #spoonie #spoonies #makeup #cateye #snapchatfilters
Dressed up for a dinner date but after all the mishaps we ended up at Safeway. Dinner and stocking up. Okay, so we were shopping for well over an hour but we got about $200 worth of groceries for $106. If you really pay attention to their sales plus the Just4U app and the manager's specials, you can save even 75% off everything (which we hit once last year, usually we are between 50%-60% on average now). Two items on our receipt were completely free thanks to deals, in fact (a free wood-fired pepperoni pizza and free organic lentil soup). Sweet! Plus, hit the Friday special $5 off $50 AND the 30 cents off per gallon when you hit $100. Can't go wrong with that! 
#TheBazaarTraveler #Safeway #Budget #Spoonie #DateNight #Sales #TGIF
Dressed up for a dinner date but after all the mishaps we ended up at Safeway. Dinner and stocking up. Okay, so we were shopping for well over an hour but we got about $200 worth of groceries for $106. If you really pay attention to their sales plus the Just4U app and the manager's specials, you can save even 75% off everything (which we hit once last year, usually we are between 50%-60% on average now). Two items on our receipt were completely free thanks to deals, in fact (a free wood-fired pepperoni pizza and free organic lentil soup). Sweet! Plus, hit the Friday special $5 off $50 AND the 30 cents off per gallon when you hit $100. Can't go wrong with that! #TheBazaarTraveler  #Safeway  #Budget  #Spoonie  #DateNight  #Sales  #TGIF 
Officially #single again 😣 working on finding the strength to get through this next season of life 🎗

#tired #fightlikeagirl #spoonie #breakupssuck #missingmycat
So it's 2:00 a.m. now 😬. I'm hurting all over and my skin hurts. Fibromyalgia is no fun folks. I mean, when your Skin hurts and nothing has happening to it ( ie. Burns, sunburn, cuts, bruises, wounds...) and your flesh & deep tissue aches so badly... Painsomnia. I do suffer chronically from insomnia and have my entire life. But when This happens, man is it a zinger LOL. I have to joke bc it's so miserable what else can you do to stay positive. #fibromyalgia #fibrowarrior #spoonie #invisibleillness #chronicillness #Endometriosis #endosister #endowarrior
So it's 2:00 a.m. now 😬. I'm hurting all over and my skin hurts. Fibromyalgia is no fun folks. I mean, when your Skin hurts and nothing has happening to it ( ie. Burns, sunburn, cuts, bruises, wounds...) and your flesh & deep tissue aches so badly... Painsomnia. I do suffer chronically from insomnia and have my entire life. But when This happens, man is it a zinger LOL. I have to joke bc it's so miserable what else can you do to stay positive. #fibromyalgia  #fibrowarrior  #spoonie  #invisibleillness  #chronicillness  #Endometriosis  #endosister  #endowarrior 
So I've officially not been to sleep all night. I'm so exhausted but also wide awake. I'm sure at some point I'll crash and end up in bed. Why can't that happen at bedtime instead of when I'm supposed to be up? 😔😪 #fibro #fibrolife #fibroproblems #fibroflare #fibrosucks #fibropain #fibrowarrior #mecfs #myalgicencephalomyelitis #spoonie #spoonielife #spoonieproblems #endo #endosisters #endoflare #adenomyosis #millionsmissing #chronicpain #chronicpaincat #painsomnia #insomnia #nosleep #anxiety #depression #ptsd
So I've officially not been to sleep all night. I'm so exhausted but also wide awake. I'm sure at some point I'll crash and end up in bed. Why can't that happen at bedtime instead of when I'm supposed to be up? 😔😪 #fibro  #fibrolife  #fibroproblems  #fibroflare  #fibrosucks  #fibropain  #fibrowarrior  #mecfs  #myalgicencephalomyelitis  #spoonie  #spoonielife  #spoonieproblems  #endo  #endosisters  #endoflare  #adenomyosis  #millionsmissing  #chronicpain  #chronicpaincat  #painsomnia  #insomnia  #nosleep  #anxiety  #depression  #ptsd 
Apple, pumpkin, peppermint tea.

From harvest fun with friends today, to #EMDR therapy this evening. 
I'm wondering how it will balance when we delve into the boxes, covered in dust, marked do not open. Once a week for 53 minutes I will jump head first into the abyss and hope to stay afloat. I will tear the tape, "Fragile: handle with care," reach in, and grab the splintered glass of my past by the handful. I will bleed my deepest secrets in that dimly lit office. My inner child will scream out in pain while the mother in me feels inept to soothe her. I'll weep for her. She'll weep for me. And then I'll force my eyelids open to the present. To the woman in the chair across from me, smiling gently, reassuringly. And I'll go home.

How will I sleep that night? And cope for the next six days? Staying in the present and raising my kids. Smiling. Talking. Existing. ... She told me it will get worse before it gets better. I'm terrified. She told me I will need others to get through this time. I don't have "others" I have me. She told me I can do this. I doubt her. She told me it could save me. ... but don't I have to survive it first? 
I'm terrified I'll rip these stitches open and then I'll bleed to death. 
#chronicfatigue #cfs #chronicpain #chronicillness #fibromyalgia #ibs #interstitialcystitis #pmdd #hormoneimbalance  #invisibleillness #spoonies #spoonie #spoonielife #anxiety #gad #ptsd #generalizedanxietydisorder #depression #existentialism #existentialist #highlysensitiveperson #hsp #highlysensitive #empath #empathetic
Apple, pumpkin, peppermint tea. From harvest fun with friends today, to #EMDR  therapy this evening. I'm wondering how it will balance when we delve into the boxes, covered in dust, marked do not open. Once a week for 53 minutes I will jump head first into the abyss and hope to stay afloat. I will tear the tape, "Fragile: handle with care," reach in, and grab the splintered glass of my past by the handful. I will bleed my deepest secrets in that dimly lit office. My inner child will scream out in pain while the mother in me feels inept to soothe her. I'll weep for her. She'll weep for me. And then I'll force my eyelids open to the present. To the woman in the chair across from me, smiling gently, reassuringly. And I'll go home. How will I sleep that night? And cope for the next six days? Staying in the present and raising my kids. Smiling. Talking. Existing. ... She told me it will get worse before it gets better. I'm terrified. She told me I will need others to get through this time. I don't have "others" I have me. She told me I can do this. I doubt her. She told me it could save me. ... but don't I have to survive it first? I'm terrified I'll rip these stitches open and then I'll bleed to death. #chronicfatigue  #cfs  #chronicpain  #chronicillness  #fibromyalgia  #ibs  #interstitialcystitis  #pmdd  #hormoneimbalance  #invisibleillness  #spoonies  #spoonie  #spoonielife  #anxiety  #gad  #ptsd  #generalizedanxietydisorder  #depression  #existentialism  #existentialist  #highlysensitiveperson  #hsp  #highlysensitive  #empath  #empathetic 
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It is getting warmer Down Under and this fresh and fruity bowl is making my mornings so much easier!
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BREAKY FRUIT BOWL
Vegan | Gluten Free | Dairy Free | Sugar Free
GF cereals mixed with almonds, cranberries and agave syrup.
Blueberries
Apple and strawberry compote (made by my flatmate @camcrdnl)
Homemade vegan coconut yogurt (*recipe coming soon!)
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#endodiet #endofood #endospoon #endofoodie #endometriosis #endosister #endowarrior #spoonie #endometriosisawareness #invisibleillness #invisibleillnessawareness #healthyfood #healthydiet #vegan #dairyfree #sugarfree #glutenfree #vegetarianrecipes #veganrecipes #plantbased #eathealthy #foodblogfeed #feedfeed #feedfeedvegan #ahealthynut #gloobyfood #letscookvegan #bestofvegan #smoothies_n_co
. It is getting warmer Down Under and this fresh and fruity bowl is making my mornings so much easier! - BREAKY FRUIT BOWL Vegan | Gluten Free | Dairy Free | Sugar Free GF cereals mixed with almonds, cranberries and agave syrup. Blueberries Apple and strawberry compote (made by my flatmate @camcrdnl) Homemade vegan coconut yogurt (*recipe coming soon!) - #endodiet  #endofood  #endospoon  #endofoodie  #endometriosis  #endosister  #endowarrior  #spoonie  #endometriosisawareness  #invisibleillness  #invisibleillnessawareness  #healthyfood  #healthydiet  #vegan  #dairyfree  #sugarfree  #glutenfree  #vegetarianrecipes  #veganrecipes  #plantbased  #eathealthy  #foodblogfeed  #feedfeed  #feedfeedvegan  #ahealthynut  #gloobyfood  #letscookvegan  #bestofvegan  #smoothies_n_co 
• breakfast in bed with a view 😻totally ordered room service; mushroom omelette, raspberries, a mocha and an OJ 👌🏼•
• breakfast in bed with a view 😻totally ordered room service; mushroom omelette, raspberries, a mocha and an OJ 👌🏼•
The weather has been all over the place lately which means I've been super POTSy so I've been rocking my @crazycompression compression socks!! I'm super excited to announce I'm an official Crazy Compression ambassador💕 I'm so stoked to be promoting a brand I love, I've been wearing their compression socks for over a year & the best thing is they are comfortable, supportive & aren't boring AF! They come in the wildest, cutest patterns & colours like this pink tie dye pair 💖💕 They have a 50% off sale on right now, I'd recommend checking it out! #crazyclan #crazycompression #compressionsocks #pink #tiedye #cute #legs #spoonie #chronicallyill #saturday #chronicillness #eds #pots #dysautonomia
The weather has been all over the place lately which means I've been super POTSy so I've been rocking my @crazycompression compression socks!! I'm super excited to announce I'm an official Crazy Compression ambassador💕 I'm so stoked to be promoting a brand I love, I've been wearing their compression socks for over a year & the best thing is they are comfortable, supportive & aren't boring AF! They come in the wildest, cutest patterns & colours like this pink tie dye pair 💖💕 They have a 50% off sale on right now, I'd recommend checking it out! #crazyclan  #crazycompression  #compressionsocks  #pink  #tiedye  #cute  #legs  #spoonie  #chronicallyill  #saturday  #chronicillness  #eds  #pots  #dysautonomia 
TFW you’ve been sleeping so much all week due to migraine attacks that now you can’t fall asleep even though you’re tired and have work in the morning. #migraine #chroniclife #spoonie
TFW you’ve been sleeping so much all week due to migraine attacks that now you can’t fall asleep even though you’re tired and have work in the morning. #migraine  #chroniclife  #spoonie 
Where's your sister? This is the look I got. 💜🐶🐾
Where's your sister? This is the look I got. 💜🐶🐾
Do something new day 2297. The Diwali festival of lights is a 5 day festival for Hindus that is celebration of light over darkness, Goodness over evil, hope over despair . Celebrated around the new moon and includes sharing sweets and gifts.  My friend Sapna  Punjabi-Gupta, came for a visit to celebrate Diwali and brought a gift of hand made sweets, festive light and serving plate. Sapna is a nutritionist, amazing chef and teacher who blends Ayurvedic Wisdom  and western nutritional science. I am honored to call her a friend and teacher. Google her site and discover her world. Thank you thank you dear Sapna. #diwali #friends #spoonielife #sweets #gift #spoonielife #spoonie #spoonielife #spoonies #grateful #gratitude #surprise #newfood #newexperience #dosomething #dosomethingnew #dosomethingeachday #bonniepitmandosomethingnew #chronicpain #chronicillness #chronicpain #celebration #spoonies #invisibleillness
Do something new day 2297. The Diwali festival of lights is a 5 day festival for Hindus that is celebration of light over darkness, Goodness over evil, hope over despair . Celebrated around the new moon and includes sharing sweets and gifts. My friend Sapna Punjabi-Gupta, came for a visit to celebrate Diwali and brought a gift of hand made sweets, festive light and serving plate. Sapna is a nutritionist, amazing chef and teacher who blends Ayurvedic Wisdom and western nutritional science. I am honored to call her a friend and teacher. Google her site and discover her world. Thank you thank you dear Sapna. #diwali  #friends  #spoonielife  #sweets  #gift  #spoonielife  #spoonie  #spoonielife  #spoonies  #grateful  #gratitude  #surprise  #newfood  #newexperience  #dosomething  #dosomethingnew  #dosomethingeachday  #bonniepitmandosomethingnew  #chronicpain  #chronicillness  #chronicpain  #celebration  #spoonies  #invisibleillness 
Check out my stories to watch a quick Essential Oils 101 class.  Remember to hold down the picture so you have time to read all the great information!  I know you will fall in love with oils just like I have.  If you are not currently using Young Living Essential Oils, will you tell me why?  What is your main reason for not getting your Premium Starter Kit and starting your oily life?  I’m super curious!
Check out my stories to watch a quick Essential Oils 101 class. Remember to hold down the picture so you have time to read all the great information! I know you will fall in love with oils just like I have. If you are not currently using Young Living Essential Oils, will you tell me why? What is your main reason for not getting your Premium Starter Kit and starting your oily life? I’m super curious!
If you understand this we need to talk more #spoonie
If you understand this we need to talk more #spoonie 
My new mug, a zebra for a zebra! #zebra #ehlersdanlossyndrome #eds #hypermobility #spoonie
Probably a pretty good preview of what my future life is going to end up looking like at this pace.  41 years old with 6 herniations and 3 other bulges, bad degenerative disc disease, and more! Life sucks.  Oh yah I just sneezed 5 times too prob going to pay for those sneezes for the next week with nerve pain... I got dealt the shit hand of the health life that's for sure.  At least I'm still alive I suppose it could be worse.
Probably a pretty good preview of what my future life is going to end up looking like at this pace. 41 years old with 6 herniations and 3 other bulges, bad degenerative disc disease, and more! Life sucks. Oh yah I just sneezed 5 times too prob going to pay for those sneezes for the next week with nerve pain... I got dealt the shit hand of the health life that's for sure. At least I'm still alive I suppose it could be worse.
An afternoon snack consisting of the bits and pieces I found in the fridge.
I recently bought some rice paper rolls because I liked the idea of a quick and easy ‘wrap’ that wouldn’t make me feel heavy after eating it. 
These certainly delivered and I’ll be making them lots now that I know how amazing they taste! So simple to chop up any salad you may have in the fridge into matchsticks and add a dipping sauce - in my case it was sweet chilli. My tummy is definitely satisfied now 👍🏻
An afternoon snack consisting of the bits and pieces I found in the fridge. I recently bought some rice paper rolls because I liked the idea of a quick and easy ‘wrap’ that wouldn’t make me feel heavy after eating it. These certainly delivered and I’ll be making them lots now that I know how amazing they taste! So simple to chop up any salad you may have in the fridge into matchsticks and add a dipping sauce - in my case it was sweet chilli. My tummy is definitely satisfied now 👍🏻
My #remicade #journey .. just taking it #onedayatatime 
#chrons #chronie #spoonie #warrior we are #strong
Ain't it the truth?! 🙌 Sorry I didn't have a look up for you guys today for 31 days of Halloween! I've had a really bad flare day / night which means couch and bed rest nearly all day 😒 hoping to be able to post some looks for you guys tomorrow! 😘 PS... We recently hit over 1k followers!!! I am beyond excited and so grateful for each and every one of you 💜 Giveaway coming soon! 🤗
Ain't it the truth?! 🙌 Sorry I didn't have a look up for you guys today for 31 days of Halloween! I've had a really bad flare day / night which means couch and bed rest nearly all day 😒 hoping to be able to post some looks for you guys tomorrow! 😘 PS... We recently hit over 1k followers!!! I am beyond excited and so grateful for each and every one of you 💜 Giveaway coming soon! 🤗
Tobias... why are you so weird 😂
Tobias... why are you so weird 😂
Been spending my night watching lots of True Blood 😈😈😈😈😈😈😈😈 #vampire #vampires #trueblood #gothic #gothiclove #spoonie #chronicillness #invisibleillness
I need a new mattress desperately @woobysleep not only because this cutie shares my bed with me and she deserves the best but also because im an #endowarrior with #adrenalinsufficiency who has to do all my #youtube and #twitch work plus my #college work from bed. Look how thin that old one is. Recovering from multiple surgeries in this thing is lame 
#spoonie fam help a sister out and like this? Thanks loves 
#spoonielife #pleaselike #chronicallyill #youtuber #twitchgirl #twitchkitten  #supportsmallstreamers #twitchstreamer #thewoobyway #lifestyleblogger #lifestyle #likes #likesforlikes #love #catsoninstagram #catsofinsta #catmommy #girl #bed #problems  #recovery #help #makeupaddict #giveaway
I need a new mattress desperately @woobysleep not only because this cutie shares my bed with me and she deserves the best but also because im an #endowarrior  with #adrenalinsufficiency  who has to do all my #youtube  and #twitch  work plus my #college  work from bed. Look how thin that old one is. Recovering from multiple surgeries in this thing is lame #spoonie  fam help a sister out and like this? Thanks loves #spoonielife  #pleaselike  #chronicallyill  #youtuber  #twitchgirl  #twitchkitten  #supportsmallstreamers  #twitchstreamer  #thewoobyway  #lifestyleblogger  #lifestyle  #likes  #likesforlikes  #love  #catsoninstagram  #catsofinsta  #catmommy  #girl  #bed  #problems  #recovery  #help  #makeupaddict  #giveaway 
This is the only type of love I want. Living with a chronic illness we don't want drama, we don't want hidden intentions, we don't want to waste the only energy we have to recover on people who don't care enough. I want someone to care. This much. Till then i will be alone. #insicknessandinhealth #chronicfatiguesyndrome #cfs #loveandotherdrugs #jakegyllenhalisfine #myalgicencephalomyelitis #spoonie #love
Went to my doctors appointment the other day and he legit looked at me, listed a bunch of the horrible side effects i’m having them said “so everything’s going okay, so we will keep going with the treatment” 💀💀💀 But I was too exhausted to say anything so let’s see how long I can keep it together. Doctors can be so emotionless and unhelpful 🙄🙄 #lupus #lupussle #lupusnephritis #kidneys #kidneydisease #chronicillness #spoonie #invisibleillness #chronicpain #headaches #migraines #anxiety #chemo #chemoforlupus
Went to my doctors appointment the other day and he legit looked at me, listed a bunch of the horrible side effects i’m having them said “so everything’s going okay, so we will keep going with the treatment” 💀💀💀 But I was too exhausted to say anything so let’s see how long I can keep it together. Doctors can be so emotionless and unhelpful 🙄🙄 #lupus  #lupussle  #lupusnephritis  #kidneys  #kidneydisease  #chronicillness  #spoonie  #invisibleillness  #chronicpain  #headaches  #migraines  #anxiety  #chemo  #chemoforlupus 
Put yourself first.  Period. 💜 #selflove
Put yourself first. Period. 💜 #selflove 
My mouth is missing... kaonashi cameo by @lyxy666  #whatthefuckamidoing #Fuck #dentist #spoonie #depersonalization #pills #highasfuck #nervedamage #selfie #pain #brainfog #noface #kaonashi
Another one bites the dust! 😍😇 @halotopcreamery doesn't last long in this household🍦🏡🍦#birthdaycakeicecream #halotop #icecreamlove #🍦#spoonie #spooniesupport #spoonielife
#100InvisibleDays was eating breakfast outside on the porch and my weekly date with my sweet boyfriend. Friday's are the chillest days for me because it's mostly video games and movies which is always a perfect end to the week. The brakes on my car stopped working so we're trying to get those fixed so that I can actually drive back to athens at some point which kind of sucks. Either way, today my chronic illness looked like lying on a couch watching good movies and playing great video games. Also pictured, my Hunter in Destiny 2 looking amazing. .
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Image description: image one: Abby in a green shirt and jeans sitting cross legged on concrete porch on front of a brick wall and a window smiling. 
Image two: a hunter character from the game Destiny 2.
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#eds #ehlersdanlos #ehlersdanlossyndrome #chronicillness #chronicallyill #spoonie #rsd #crps #complexregionalpainsyndrome #reflexsympatheticdystrophy #POTS #POTsie #posturalorthostatictachycardia #tachycardia #pain #disabled #disability #edstype3 #dysautonomia #dysautonomiaawareness #edsawareness #EDSZebra #migraines #chronicfatigue #chronicmigraines #chronicpain #100InvisibleDays #wheelchair #wheelchairuser
#100InvisibleDays  was eating breakfast outside on the porch and my weekly date with my sweet boyfriend. Friday's are the chillest days for me because it's mostly video games and movies which is always a perfect end to the week. The brakes on my car stopped working so we're trying to get those fixed so that I can actually drive back to athens at some point which kind of sucks. Either way, today my chronic illness looked like lying on a couch watching good movies and playing great video games. Also pictured, my Hunter in Destiny 2 looking amazing. . . . Image description: image one: Abby in a green shirt and jeans sitting cross legged on concrete porch on front of a brick wall and a window smiling. Image two: a hunter character from the game Destiny 2. . . . #eds  #ehlersdanlos  #ehlersdanlossyndrome  #chronicillness  #chronicallyill  #spoonie  #rsd  #crps  #complexregionalpainsyndrome  #reflexsympatheticdystrophy  #POTS  #POTsie  #posturalorthostatictachycardia  #tachycardia  #pain  #disabled  #disability  #edstype3  #dysautonomia  #dysautonomiaawareness  #edsawareness  #EDSZebra  #migraines  #chronicfatigue  #chronicmigraines  #chronicpain  #100InvisibleDays  #wheelchair  #wheelchairuser 
infusion friday 💦 #drinkup #crohns #spoonie #chronicillness
In hospital. Again. Admitted for at least the weekend with more issues in my foot. At least I have a single room and a half decent view. #spoonie #spoonieproblems #chronicillness #spinabifida #osteomyelitis #infection #hospitallife #view #cloudy #nofilter #foot
We're all a little broken.  Each and every one of us is a mosaic of all of our different pieces. It's okay.  But don't you ever forget to forgive yourself like you do other people.  Don't you ever forget to love yourself like you do others.  Be gentle with yourself.
We're all a little broken.  Each and every one of us is a mosaic of all of our different pieces. It's okay.  But don't you ever forget to forgive yourself like you do other people.  Don't you ever forget to love yourself like you do others.  Be gentle with yourself.
Today I went to the dermatologist, the dentist, lunch with my aunt, and then the car dealership for an oil change/airbag diagnostic since my airbag light has been on for six months. Went home, took a nap, went out to dinner with my parents and gf, went to my parents’ friends’ house to take care of their cats while they’re on vacation, and now I’m home. I tried doing some homework but apparently Bangkok’s diamond industry isn’t a lucrative research subject. And now I am in bed dicking around on instagram.
I’m exhausted
#chronicpain #chronicillness #fibro #spoonie #disabled #disability #chronicmigraines #chronicfatigue #chronicheadache #chronicmigraine #chronicheadaches #ibs #bpd
Today I went to the dermatologist, the dentist, lunch with my aunt, and then the car dealership for an oil change/airbag diagnostic since my airbag light has been on for six months. Went home, took a nap, went out to dinner with my parents and gf, went to my parents’ friends’ house to take care of their cats while they’re on vacation, and now I’m home. I tried doing some homework but apparently Bangkok’s diamond industry isn’t a lucrative research subject. And now I am in bed dicking around on instagram. I’m exhausted #chronicpain  #chronicillness  #fibro  #spoonie  #disabled  #disability  #chronicmigraines  #chronicfatigue  #chronicheadache  #chronicmigraine  #chronicheadaches  #ibs  #bpd 
Going into #today I thought I had everything laid out perfectly to keep #anxiety low & sail thru my long errand list. #ocdsucks #agoraphobiasucks  However, upon waking I just knew NOTHING was going to go as I NEEDED it to. The 1st stop was therapy. My session was by far the most difficult 1 I've EVER had with many tears. Feeling super lost & spinning I tried to manage the rest of what I had to. Relying on self to guide the way I stopped to see a good friend of mine. I met him through my Daddy well over a year ago as I was looking for a #tattooer I did all the online stalking I could but he has little to no footprint. I had to #trust my Daddy fully as I booked my first appt. Little did we know I would have nearly 20 hours of his #art in my skin & that we would have become friends. One thing about me is that I don't let people touch me as I don't want any unwelcome transfer of energies to occur. So the fact I have a small handful of artists who I allow to work on my #body is a miracle in & of itself. Each 1 of the 25 tattoos tell #mystory & hold deep #spiritual meaning. I know he's hardly on socials but I must say....Thank you Eric for always lifting my spirits, making me laugh, keeping me on my toes, giving the best hugs, understanding my vision, not judging my recovery process & becoming a #loyal #Tribe member. I look forward to so many more hours of ink time & a kick ass house party soon. 
#spoonie #warrior #wonderwoman #chronicpain #raredisease #psoriaticarthritis  #tachycardia #ptsd #anxiety #recovery #inklife #inkedgirls #inkedboys #friendship #crew #skinhibitions #smile
Going into #today  I thought I had everything laid out perfectly to keep #anxiety  low & sail thru my long errand list. #ocdsucks  #agoraphobiasucks  However, upon waking I just knew NOTHING was going to go as I NEEDED it to. The 1st stop was therapy. My session was by far the most difficult 1 I've EVER had with many tears. Feeling super lost & spinning I tried to manage the rest of what I had to. Relying on self to guide the way I stopped to see a good friend of mine. I met him through my Daddy well over a year ago as I was looking for a #tattooer  I did all the online stalking I could but he has little to no footprint. I had to #trust  my Daddy fully as I booked my first appt. Little did we know I would have nearly 20 hours of his #art  in my skin & that we would have become friends. One thing about me is that I don't let people touch me as I don't want any unwelcome transfer of energies to occur. So the fact I have a small handful of artists who I allow to work on my #body  is a miracle in & of itself. Each 1 of the 25 tattoos tell #mystory  & hold deep #spiritual  meaning. I know he's hardly on socials but I must say....Thank you Eric for always lifting my spirits, making me laugh, keeping me on my toes, giving the best hugs, understanding my vision, not judging my recovery process & becoming a #loyal  #Tribe  member. I look forward to so many more hours of ink time & a kick ass house party soon. #spoonie  #warrior  #wonderwoman  #chronicpain  #raredisease  #psoriaticarthritis  #tachycardia  #ptsd  #anxiety  #recovery  #inklife  #inkedgirls  #inkedboys  #friendship  #crew  #skinhibitions  #smile 
Ever feel like this?? Go to bed, feeling kinda ok, thinking, “Tomorrow I might just be able to take the kids to the park for a bit or meet up with a friend for an afternoon catch-up!” then spend then night in the throes of painsomnia? THEN have to explain that you just don’t have the spoons to expend on activities basically other than breathing?  Sigh. The guilt. It sucks. 😔
#lifeofaspoonie #spoonie #invisibleillness #disappointment  #guilt #mom #momguilt #lgbt #lesbian #disabled #disabledlesbian #420 #mmj  #mmjgirls #mmjmoms #life
Ever feel like this?? Go to bed, feeling kinda ok, thinking, “Tomorrow I might just be able to take the kids to the park for a bit or meet up with a friend for an afternoon catch-up!” then spend then night in the throes of painsomnia? THEN have to explain that you just don’t have the spoons to expend on activities basically other than breathing? Sigh. The guilt. It sucks. 😔 #lifeofaspoonie  #spoonie  #invisibleillness  #disappointment  #guilt  #mom  #momguilt  #lgbt  #lesbian  #disabled  #disabledlesbian  #420  #mmj  #mmjgirls  #mmjmoms  #life 
Yep..... *quand les gens te demandent comment ça va*

#spoonie #pain #tiredness #fibroflare #fibromyalgia
I'm so thankful for incredible friends like these lovely handlers ❤️two days later and I'm still stuck in bed with an inflammation fever and pain, but it was worth it. For an entire evening, I didn't have to deal with my depression and negative thoughts. I crashed and burned after, but it was wonderful being around such genuine and kind people ❤️ find the people who make you feel loved, surround yourself with those who treat you as a human being and not as a "handicapped person". You deserve to be loved unconditionally, not judged or pitied. •••
Check out @cypressavenueworks for awesome paracord and sensory friendly gear!
Free shipping: FREESHIPWEEK
15% off: CAWFRIENDSANDFAMILY
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Follow our Pawtners 🐾
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@helper_dog_fauna @shadow.psd • @gsd_workingk9_sadie • @sherlocktheservicepup • @rascaltheservice • @alu.sdit • @service.dog.sam • @comealongpondy • @sees_her_dog • @bearthe_service_nugget
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#medicalalertservicedog #servicedog #spoonie #chronicillness #ptsdservicedog #servicedog #servicedogintraining #spoonie #ptsd #invisibleillness #chronicillness #tasktrained #ptsd #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #pots #EDS #pnes #mcad #autismservicedog #neurodivergent #mobilityservicedog #chewyinfluencer #Banetheservicedane #cypressavenueworks #cawambassadors #cawsensoryfriendlyteam
I'm so thankful for incredible friends like these lovely handlers ❤️two days later and I'm still stuck in bed with an inflammation fever and pain, but it was worth it. For an entire evening, I didn't have to deal with my depression and negative thoughts. I crashed and burned after, but it was wonderful being around such genuine and kind people ❤️ find the people who make you feel loved, surround yourself with those who treat you as a human being and not as a "handicapped person". You deserve to be loved unconditionally, not judged or pitied. ••• Check out @cypressavenueworks for awesome paracord and sensory friendly gear! Free shipping: FREESHIPWEEK 15% off: CAWFRIENDSANDFAMILY ••• Follow our Pawtners 🐾 - - - @helper_dog_fauna @shadow.psd • @gsd_workingk9_sadie • @sherlocktheservicepup • @rascaltheservice • @alu.sdit • @service.dog.sam • @comealongpondy • @sees_her_dog • @bearthe_service_nugget - - - #medicalalertservicedog  #servicedog  #spoonie  #chronicillness  #ptsdservicedog  #servicedog  #servicedogintraining  #spoonie  #ptsd  #invisibleillness  #chronicillness  #tasktrained  #ptsd  #ehlersdanlossyndrome  #posturalorthostatictachycardiasyndrome  #pots  #EDS  #pnes  #mcad  #autismservicedog  #neurodivergent  #mobilityservicedog  #chewyinfluencer  #Banetheservicedane  #cypressavenueworks  #cawambassadors  #cawsensoryfriendlyteam 
Yes the world is on fire with suffering , but you STILL have to go inside for groceries. .
I try to keep from watching the news too much. So I don't completely freeze in a ball on the floor.  I talk to my brain-- "hey friend, don't worry, things just *seem* more horrible, but in reality they've... always been bad. Capitalism is in crisis, see? Does that make it better?" .
For most of history the human brain was like a condom. It's got a pretty chill life insulated from danger in the wrapper. Unconcerned about the fate of the universe. Then one day the wrapper is opened and then they can panic, for like 10 seconds of fumbling. Then they know their FUCKED. End of worries.
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The Modern World is to the stress centers of the brain, like the asshole who leaves condoms in their wallet. Then he wears it down with activity-- making it another problem vaginas have to deal with. .
Since writing that joke I've been feeling better about my unprotected sex with vaginas. Those female condoms live a very stress free--probably eternal-- life in the back of my bedside drawer.
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#existentialcrisis #neurotic #neuroplasticity #stressed #queercrip #chronicillness #crps #chronicfatiguesyndrome #spoonie #coping #trauma #queer #safesex #migrane #humor #darkhumor #gay #lesbian #news #nuclearwar #disability #fear #healing #physicaltherapy #empath #buttoudontlooksick #invisibleillness #invisibleillnessawareness
Yes the world is on fire with suffering , but you STILL have to go inside for groceries. . I try to keep from watching the news too much. So I don't completely freeze in a ball on the floor. I talk to my brain-- "hey friend, don't worry, things just *seem* more horrible, but in reality they've... always been bad. Capitalism is in crisis, see? Does that make it better?" . For most of history the human brain was like a condom. It's got a pretty chill life insulated from danger in the wrapper. Unconcerned about the fate of the universe. Then one day the wrapper is opened and then they can panic, for like 10 seconds of fumbling. Then they know their FUCKED. End of worries. . The Modern World is to the stress centers of the brain, like the asshole who leaves condoms in their wallet. Then he wears it down with activity-- making it another problem vaginas have to deal with. . Since writing that joke I've been feeling better about my unprotected sex with vaginas. Those female condoms live a very stress free--probably eternal-- life in the back of my bedside drawer. . #existentialcrisis  #neurotic  #neuroplasticity  #stressed  #queercrip  #chronicillness  #crps  #chronicfatiguesyndrome  #spoonie  #coping  #trauma  #queer  #safesex  #migrane  #humor  #darkhumor  #gay  #lesbian  #news  #nuclearwar  #disability  #fear  #healing  #physicaltherapy  #empath  #buttoudontlooksick  #invisibleillness  #invisibleillnessawareness 
It was colder than I expected, the nerve pain in my left arm/hand was INSANE and I had to pee! But....I am a dork and still had a great time with my favourite peeps: @remmuxs, @princetheripper and the man who shall not be named.... 😱 😶because he's not on instagram. 😛#butyoudontlooksick #spoonie #invisibleillness #mentalhealthmatters #multipleillnesses #t1diabetes #cptsd #cannabisismedicine #ketolifestyle #lchf #healingmyself
Day 21: My night routine.

Come home, eat dinner around 9:30, change into pajamas, wash my face:

Oil cleansers, normal cleanse, costs bha blackhead power liquid, wait 20 minutes, wash my hands, put on benzoyl peroxide, and finish off with a snail moisturizing cream.

Then, I gather up my pills, take them, hobble upstairs to bed, and try to sleep!

#spooniechallenge #spoonie #mctd #nightroutine
Day 21: My night routine. Come home, eat dinner around 9:30, change into pajamas, wash my face: Oil cleansers, normal cleanse, costs bha blackhead power liquid, wait 20 minutes, wash my hands, put on benzoyl peroxide, and finish off with a snail moisturizing cream. Then, I gather up my pills, take them, hobble upstairs to bed, and try to sleep! #spooniechallenge  #spoonie  #mctd  #nightroutine 
Thank you for all of the birthday love 😚 It feels so special to have made it through 21 years of life. I even got to celebrate with some delicious (allergen-friendly) mini cupcakes this year! Here's to hoping this is the start of a wonderful year filled with continued healing, growth, confidence, creation, strength, peace, love, connection, abundance, independence, fun, freedom, and happiness. Happy 21st birthday to me 💛
Thank you for all of the birthday love 😚 It feels so special to have made it through 21 years of life. I even got to celebrate with some delicious (allergen-friendly) mini cupcakes this year! Here's to hoping this is the start of a wonderful year filled with continued healing, growth, confidence, creation, strength, peace, love, connection, abundance, independence, fun, freedom, and happiness. Happy 21st birthday to me 💛
Do something new day 2296. Looked into a brain- visualization of brain activity through interactive  games using an EEG it wS amazing - just amazing. Used in brain research you can see snapses flashing and other brain activity. The highlight of the day! (Apologies for the background babble). #bonniepitmandosomethingnew #centerforbrainhealth #lookinside #brainhealth #brainfart #brainonfire #snapses #brain #dosomething #dosomethingeachday #dosomethingnew #somethingnew #newexperience #newviews #newplace #newideas #bonniepitmandosomethingnew #beautiful #insight #somethingnew #movingforward #newmediaart #chronicillness #spoonies #invisibleillness #chronicpain #chronicillness #chronicillness #somethingnew #spoonies #spoonie #spoonielife
Do something new day 2296. Looked into a brain- visualization of brain activity through interactive games using an EEG it wS amazing - just amazing. Used in brain research you can see snapses flashing and other brain activity. The highlight of the day! (Apologies for the background babble). #bonniepitmandosomethingnew  #centerforbrainhealth  #lookinside  #brainhealth  #brainfart  #brainonfire  #snapses  #brain  #dosomething  #dosomethingeachday  #dosomethingnew  #somethingnew  #newexperience  #newviews  #newplace  #newideas  #bonniepitmandosomethingnew  #beautiful  #insight  #somethingnew  #movingforward  #newmediaart  #chronicillness  #spoonies  #invisibleillness  #chronicpain  #chronicillness  #chronicillness  #somethingnew  #spoonies  #spoonie  #spoonielife 
👣🐾 ⛩ the Journey of a Thousand Miles begins with one step ⛩ it's getting to long 15 days no walking I know when the animals on the lake start tracking me down it's been too long 🐼  #budowarriorschools #budo #taijiquan #chigong #wushu #mscommunity. 1: silence #multiple_sclerosis_support #parkinsonsawareness #fibrowarriors #lymefighter #invisibleillness #spoonie #chronicfatigue ☯ don't forget to keep your focus on where you are going refuse to be discouraged by the present circumstances that soon will pass. Downtime allows us to reevaluate our goals and needs, remember that your goals are birthed out of needs and your needs are often seasonal. 🗡
👣🐾 ⛩ the Journey of a Thousand Miles begins with one step ⛩ it's getting to long 15 days no walking I know when the animals on the lake start tracking me down it's been too long 🐼 #budowarriorschools  #budo  #taijiquan  #chigong  #wushu  #mscommunity . 1: silence #multiple_sclerosis_support  #parkinsonsawareness  #fibrowarriors  #lymefighter  #invisibleillness  #spoonie  #chronicfatigue  ☯ don't forget to keep your focus on where you are going refuse to be discouraged by the present circumstances that soon will pass. Downtime allows us to reevaluate our goals and needs, remember that your goals are birthed out of needs and your needs are often seasonal. 🗡
I decided I'd spent enough time in bed in pain so I am downstairs with a hot chocolate and catching up on American Horror Story . -
#notsoslimmingworld #slimmingworlduk #slimmingworldinsta #slimmingworlddiary #slimmingworldfriends slimmingworldfamily #slimmingworldjourney  #ahs #ahscult #hotchocolate #painsomnia #insomnia #fibro #mecfs #myalgicencephalomyelitis #spoonie #endo #adenomyosis #millionsmissing #chronicpain #anxiety #depression #ptsd
I decided I'd spent enough time in bed in pain so I am downstairs with a hot chocolate and catching up on American Horror Story 
#ahs #ahscult #hotchocolate #painsomnia #insomnia #fibro #fibrolife #fibroproblems #fibroflare #fibrosucks #fibropain #fibrowarrior #mecfs #myalgicencephalomyelitis #spoonie #spoonielife #spoonieproblems #endo #endosisters #adenomyosis #millionsmissing #chronicpain #anxiety #depression #ptsd
Thought you’d all like to see a photo of my ass...so here ya go, complete with a Scooby-Do bandaid compliments of a nurse who enjoyed stabbing me way too much. I’m still on the mend and trying really hard to be kind to myself. I’m not weak because of illness. Im not a bad mom or wife or friend because of illness and I can still love myself despite illness. And get this...so can you ✌🏼💜💪🏼🥄
Thought you’d all like to see a photo of my ass...so here ya go, complete with a Scooby-Do bandaid compliments of a nurse who enjoyed stabbing me way too much. I’m still on the mend and trying really hard to be kind to myself. I’m not weak because of illness. Im not a bad mom or wife or friend because of illness and I can still love myself despite illness. And get this...so can you ✌🏼💜💪🏼🥄
👀 Still trying to decide what to do for my last look.. •another rendition of the Gangster Clown
•a pretty Jack O Lantern
•or a Fire & Ice look
hmmmm ??? #PopArt #Halloween #HalloweenMakeup #Costume #CostumeMakeup #PopArtMakeup #Selfie #BlueEyes #MOTD #EOTD #Makeup #MakeupLover #BeautyAddict #MakeupJunkie #MakeupIsMyArt #AllThingsBeauty #MyPassion #Hobby #Photography #MakesMeHappy #KeepsMeSane #SelfTaught #Spoonie #ChronicPain #ChronicIllness #LikeAndFollow #BeBold #ScrewPerfection
👀 Still trying to decide what to do for my last look.. •another rendition of the Gangster Clown •a pretty Jack O Lantern •or a Fire & Ice look hmmmm ??? #PopArt  #Halloween  #HalloweenMakeup  #Costume  #CostumeMakeup  #PopArtMakeup  #Selfie  #BlueEyes  #MOTD  #EOTD  #Makeup  #MakeupLover  #BeautyAddict  #MakeupJunkie  #MakeupIsMyArt  #AllThingsBeauty  #MyPassion  #Hobby  #Photography  #MakesMeHappy  #KeepsMeSane  #SelfTaught  #Spoonie  #ChronicPain  #ChronicIllness  #LikeAndFollow  #BeBold  #ScrewPerfection 
Still OBSESSING over this gorgeous cold shoulder maxi dress. This piece goes from Summer in sandals to Fall with a cardigan and booties. It makes me feel comfortable and cute on even my worst chronic pain day. Want one? Head over to Modern Gypsy @shopatmoderngypsy 
#coldshoulder #coldshoulderdress #maxidress #fall #outfitoftheday #ootd #potd #fashion #dresses #stripes #girlswithtattoos #boutique #boutiqueshopping #moderngypsy #smallbusiness #smallbusinesssaturday #supportsmallbusiness #spoonie #cysters #endowarrior
Still OBSESSING over this gorgeous cold shoulder maxi dress. This piece goes from Summer in sandals to Fall with a cardigan and booties. It makes me feel comfortable and cute on even my worst chronic pain day. Want one? Head over to Modern Gypsy @shopatmoderngypsy #coldshoulder  #coldshoulderdress  #maxidress  #fall  #outfitoftheday  #ootd  #potd  #fashion  #dresses  #stripes  #girlswithtattoos  #boutique  #boutiqueshopping  #moderngypsy  #smallbusiness  #smallbusinesssaturday  #supportsmallbusiness  #spoonie  #cysters  #endowarrior 
While being trapped in my car by the spider it seemed a good time for a selfie shoot. #Superhero #ASWarrior #Spoonie #Anxiety #depression #spider #arachnaphobia #selfieshoot #kissme #kissmetomholland
If you’re a #spoonie who loves a #supportivegroup, come join us! #Games, #giveaways, #conversation, #community, and #exclusivepeeks at #RAPOV #newreleases! And did I mention the #Etsyshop coupon codes & #VIP #FirstLook #Sales !? 🎉💎🙌❤️🎁 #ItTakesAVillage ❤️ #weknowhowtoparty #allthefun #wehaveallthefun ❤️🎉🙌
The pain is evident on my face, I couldn't hide it this time. It's just steadily getting worse.
The good news is, I'm on vacation and got to visit the place I left my heart, @gktwvillage when I was a @makeawishamerica kid.
The pain is evident on my face, I couldn't hide it this time. It's just steadily getting worse. The good news is, I'm on vacation and got to visit the place I left my heart, @gktwvillage when I was a @makeawishamerica kid.
“20. Turquoise Accessories!” These are the turquoise-ish accessories that I wear on a daily basis. ☺️ The first one is my FitBit Charge 2 and is somewhat helpful in managing my condition. It allows be to observe my sleep and sleep quality, number of steps, exercise, track food, and measure my heart rate. Unfortunately the heart rate tracker isn’t the most helpful and accurate, but what can you do. 🤷🏻‍♀️ The second is actually meant to be a hair tie and reads “Fight Chronic Illness.” I totally love it. I’m somewhat picky when it comes to jewelry these days. Everything just feels uncomfortable especially anything with more weight. But this bracelet is almost like nothing is there. And most importantly it reminds me to keep fighting. Every time I look at it, it gives me strength and reminds me that I’m not alone and others are fighting with me. 💪💙 The third piece in the second picture, was purchased in the hospital when I had my TBI. I had looked at it over the times I was in rehab. They took me to the gift shop and I had to pick out things I like to add up the price. I also had to try to find my way to the gift shop myself which was very difficult at the time. Anyways, I kept talking about it and my momma ended up buying it for me. I also picked out the charms. I’m not sure what made me pick out the blue color flower at the time, but it is definitely fitting now. It’s one of the things I wear the most often. Not only does it remind me of my mama, but it also reminds me of my time in the hospital when I was struggling to even walk on my own. Even though I still often require assistance walking, this necklace reminds me of how far I’ve come. It reminds me to have hope. 💙💙💙 #chronicallyill #chronicillness #thedysautonomiaproject #dysautonomiaawareness #dysautonomiaawarenessmonth #dysautonomia #potsawareness #potsie #posturalorthostatictachycardiasyndrome #spoonie #spoonielife #hope #invisibleillness #invisibledisability #keepfighting #chronicillnesswarrior #tbi #braininjury #concussion #postconcussionsyndrome #makenoiseforturquoise #fitbit #disabled #disability #scars #rememberwhereyoucamefrom #blessed #survivor #teal #strength
“20. Turquoise Accessories!” These are the turquoise-ish accessories that I wear on a daily basis. ☺️ The first one is my FitBit Charge 2 and is somewhat helpful in managing my condition. It allows be to observe my sleep and sleep quality, number of steps, exercise, track food, and measure my heart rate. Unfortunately the heart rate tracker isn’t the most helpful and accurate, but what can you do. 🤷🏻‍♀️ The second is actually meant to be a hair tie and reads “Fight Chronic Illness.” I totally love it. I’m somewhat picky when it comes to jewelry these days. Everything just feels uncomfortable especially anything with more weight. But this bracelet is almost like nothing is there. And most importantly it reminds me to keep fighting. Every time I look at it, it gives me strength and reminds me that I’m not alone and others are fighting with me. 💪💙 The third piece in the second picture, was purchased in the hospital when I had my TBI. I had looked at it over the times I was in rehab. They took me to the gift shop and I had to pick out things I like to add up the price. I also had to try to find my way to the gift shop myself which was very difficult at the time. Anyways, I kept talking about it and my momma ended up buying it for me. I also picked out the charms. I’m not sure what made me pick out the blue color flower at the time, but it is definitely fitting now. It’s one of the things I wear the most often. Not only does it remind me of my mama, but it also reminds me of my time in the hospital when I was struggling to even walk on my own. Even though I still often require assistance walking, this necklace reminds me of how far I’ve come. It reminds me to have hope. 💙💙💙 #chronicallyill  #chronicillness  #thedysautonomiaproject  #dysautonomiaawareness  #dysautonomiaawarenessmonth  #dysautonomia  #potsawareness  #potsie  #posturalorthostatictachycardiasyndrome  #spoonie  #spoonielife  #hope  #invisibleillness  #invisibledisability  #keepfighting  #chronicillnesswarrior  #tbi  #braininjury  #concussion  #postconcussionsyndrome  #makenoiseforturquoise  #fitbit  #disabled  #disability  #scars  #rememberwhereyoucamefrom  #blessed  #survivor  #teal  #strength