Continuing diuretics adjustments. Morning labs today had shown his kidney numbers were worse & that he was probably a little too dry. With his sensitivities, we are trying some extra Pedialyte today instead of IV fluids. They are also removing his last dose of Bumex (unless it's needed) just for today to hopefully get him back on track.
Endocrinology came by. They are going to make some adjustments to his steroid wean & mentioned the possibility of going home on a weaning scheduling. Like many other things for Colton, small changes may be needed with steroids as well.
We aren't yet sure if Colton will get a flu shot this year, so mom, dad, & Hayden are all taken care of! Poor Matt had to be the one to take H to get his today. For us, any protection, no matter how small the percentage may end up being, is worth it. Colton is worth it. Hopefully, we can keep the illnesses away through flu season.
Other than that, he's still doing pretty well. We did some tastes of green beans (He enjoyed them. He likes everything though... even mouth rinse & Nystatin! 😂) & he had a blast bouncin on my hip again. He also really liked sitting up in bed today. 😊 💗
#ColtonStrong #tricuspidatresia #hypoplasticrightventricle #tetrologyoffallot #unbalancedavcanal #chd #heartwarrior #hearthero #hirschsprungsdisease #downsyndrome #downsyndromeawareness #dsdn #trisomy21 #t21 #theluckyfew #downrightperfect #littlebrother #tubie #babieswithglasses #glasses #changingthefaceofbeauty #batman
薬も嫌がらずに飲んでくれるし、とーーってもいい子☺️💖 最初は色々な感情でぐちゃぐちゃだったけど、やっぱり自分の子は可愛いわけで😍😍😍 食べちゃいたいくらい可愛くて、親バカ丸出し😂ww
來々の為になる事は、できる限りなんでもしてあげたいので、もし何か情報だったり、知っている事があれば教えて下さい🤚🏻 これからも娘共々宜しくお願いします👨👩👧 どこかで会ったら遊んでね🤗💕 #娘 #9月25日生まれ #ダウン症 #21トリソミー #T21 #合併症 #心室中隔欠損症 #かわいすぎてたまらん #かわいすぎて食べちゃいたいww #今日も元気 😊 #母腰痛悪化 #背中も痛い #膝もやべー #体重がなかなか減らないww
Cuando al fin mi mami y yo nos vimos @cmdparaiso
My @malapropos_mom and I are just watching big sister Daisy binge on Pokémon cartoons. #t21 #pokemom
The first picture I took of Augie in the NICU- he was in the NICU for 22 days- he only needed oxygen for a few days! He has come a long way from 4lbs 4 oz when he was born to 7lbs 4oz now at 8 weeks old!
#upwithdowns #theluckyfew #t21 #preemie #dsdn
This boy loves his food. And his life for that matter. We should let more people with Down syndrome live. Then we can eat with them and all have more fun at dinner. #justsaying
Eli got to go to his friend’s, Ryder, birthday party. It was a rootin tootin good time!!!
Fun day loving on some alpacas and then off to the Groovy Goat for some lunch/arcade time and then a little stroll through OWA to look at the water! (And try to throw his glasses over! 😠) #funday #EmmettSlade (missed Big Bro who’s at his dads this weekend!)
What's up ladies!! I miss this guy when I don't see him for a couple days! And I miss @robinsonam, but thanks for holding it down at home!