Down syndrome Awareness Month, Day 31: I cant believe the month is already coming to a close! We are so grateful to have so many people that support Easton, and love him for exactly who he is. I thank all of you for taking the time out of your busy day to read all these posts. So many of you have sent me the kindest messages. You have no idea how much they mean to me. •
This time last year I was scared to death of the new path my life was taking. Fast forward to today and I feel so happy to be on this journey. Is it scary sometimes? Heck yes. Being a parent in general is pretty terrifying, but it’s also the BEST job in the entire world. I feel so blessed and honored to be Easton’s mom. I never envisioned myself being a “special needs” mom. I never thought I would have a child with Down syndrome. I never thought I would be posting every day for a whole month to educate people about my son. It has been a crazy, amazing, life changing ride so far. I can’t wait to see what else life holds for us. I can honestly say that I now look forward to the future and smile. ☺️
Down syndrome Awareness Month, Day 25: I just love this piece of writing. It still brings tears to my eyes. Easton is fearfully and wonderfully made- just like you and I. He’s exactly who he should be. 💛
"We’ve got an issue here ”the quality control angel called out. “What’s the problem?” asked God, in a voice that already seemed to calm the concern. “It looks like an extra chromosome – one, two – yes, right here, an extra one.” .
Now smiling, God answered, “That’s not a quality concern. It is a distinction. The manual addresses it. You’re new on the line, aren’t you?” “Why yes, this is my first day,” apologized the angel – searching through the manual for any reference to this. “I’ll talk you through it…there are just a few assembly modifications. First, locate the hug sensors. Do you see the dial?” “Yes, right here. Oh, I think I tickled him.” “Turn it up.” “How much?” “All the way.” “Done.” “Now locate the two smile triggers – they are located on either side of that cute little button nose.” “I found them.” “Adjust them a little closer to the surface. Closer, closer, perfect!” “Is that it?” Asked the obedient angel. “Almost,” answered God. Now, very gently, open his heart. That’s it. Measure two, no, make it three extra scoops of love.” “Will it fit? He's so tiny!” “Oh, these little hearts stretch incredibly. It will fit.” “Done. Is that it?” .
“One more thing. Move him from the random distribution belt to the select premium belt. These little ones aren’t given to just anyone.” “There. He's done and ready to go,” announced the angel.
God stepped over, as if to inspect the handiwork of this new angel on the line. But that wasn’t His intent. Instead, He picked up this little one and held him close to His heart. Holding him for so long the angel became concerned. “Is he alright? Did I do everything as you instructed?” Still holding him close, God said, “He's perfect. I just find it hard to let these special ones go, for they are Heaven to hold.” And He gently kissed his cheek and sent him on his way. .
*This is an extremely personal post.*
Down Syndrome Awareness Month, Day 17: It is estimated that 90% of people with a prenatal diagnosis of Down syndrome have their pregnancies terminated. NINETY PERCENT. Let that sink in for a second.....That. Is. Huge. There are countries that are proudly proclaiming they have “eradicated Down syndrome”. Sickening. This is my LEAST favorite fact, because it hurts my heart so much. I am certainly not put here on this earth to judge. That is not my job. However, I do feel as though God made me Easton’s mom for many reasons. One of those reasons being to share my story. So, I would be lying if I said that when I found out Easton would have Trisomy 21, that the thought of termination didn’t cross my mind. It did. I am SO ashamed to even type that sentence, much less say it out loud. Easton is the love of my life. He has changed it for the better. I would never trade him for the world. But, when I found out about his diagnosis, I was scared. It’s that simple. I. Was. Scared. I was scared of what my life would look like with a child with a disability. I was scared of his health concerns. I was also so misinformed about Down syndrome. I didn’t know that much about it. So yes, the thought crossed my mind for a second. So if it crossed yours as well, you are not alone.
Once I got my emotions in control (a little), I decided to reach out. I reached out to other moms on Instagram. I was able to talk with them, and see what their lives are like with their child that has Down syndrome. I got to see that their lives are BEAUTIFUL. Their lives are filled with so much joy and love. All children are a blessing. Is it challenging at times? Of course. But doesn’t every GREAT thing in life come with some challenges? •
Easton is almost 9 months old now, and I can’t imagine this world without him. I hope and pray that other moms see that this life is beautiful. I hope they get through the scared and unbelievably emotional part, to see that this is NOT a death sentence. The world would be a better place if more people with an extra chromosome were given the chance of LIFE. •• Easton was 1 day old in this photo.••