I didn't think going from specialist to pediatrician would be the way to get the lysosomal blood test for metachromatic leukodystrophy was the way we should go.
Kay's pediatrician seemed like she didn't have any sort of clue about this disease or anything while we were talking to her.
Fortunately, the visit wasn't such a lost cause. We got her a referral for genetic counseling as well as physical, occupational, and speech therapy with an audiology exam.
That's a tall order to fill in the short couple months we have left here in Texas. #problemsofamilitaryfamily
This hasn't been an easy journey to figure out what's going on with our daughter but every day brings us closer than the last. I've learned that's the only way I can get through this, one day at a time. There's no point in worrying about what the future brings for her, it only steals being present with her now. @kayshopeforacure #thereishope#ihavetobelieve
İyi düşün, kimse için kalbinde kötülüğe yer açma kalbin bu kadar değersiz değil unutma. Sev, hatta körkütük aşık ol karşılık beklemeden sevmekte güzel onu sonuna kadar yaşa kalbin hala çarptığı için sevin hatta. Gülümse, sırtındaki yüklere inat cevrende seni üzmek icin fırsat kollayanlara inat hatta bazen kendine bile inat. Etrafındaki kötü insanlarla arana bi duvar ör mesela, duvarın ardına geçmelerine izin verme. Kimsenin seni negatifliğiyle boğmasına enerjini düşürmesine kalbini hırpalamasına da izin verme. 'Yapamazsın, başaramazsın' diyenlere cevap dahi verme sadece yap ve göster. Ve bu hayatta kendinden başka limanın olmadığını bilip, en çokta kendini sev. Bir başarıyı, bir aşkı başkaları için değil kendin için iste. Kendin için yaşa bu hayatı ve nefes aldığın sürece istediğin neyse peşinden durmaksızın koş. Kim bilir belki o zorlu tünelin sonunda seni bekleyen güzel seyler vardır.. #thereishope ❤
A 5 day course of antibiotics can suppress as much as a third of your gut bacteria, and although many of the diminished species recover, NOT all do... Nurturing and caring for your microbiome is a lot easier than trying to replace them when they are gone. Prebiotics and Probiotics are a very much needed in our modern lifestyle and environment. I happen to know where you can get the best quality of both of these, ask me!!! #antibiotics#guthealth#plexus#thereishope
You CAN do "it". You CAN overcome fear, you CAN learn to manage anxiety, you CAN get through this difficult time, and you CAN reach out for help. If you need a little help,or a lot of help, we are here to listen and support you. Call or txt 602-248-8336 (TEEN). #YoureNotAlone#YouCanDoIt#ThereIsHope#Anxiety#Depression#Fear
So many emotions flood me when I look at this before pic. I remember how that felt - exhausted, sad, angry. I felt trapped in my own body and even though I had this great life going on around me, I was barely present. A new baby, an amazing son and an incredible man that has always loved me no matter what. But none of that mattered, what I was battling inside over shadowed all of that. 😳
Fast forward to today! I took this after picture this morning because a friend and business partner said I want YOUR transformation and story! I was terrified, but how could I say no? And maybe I'm not where I want to be yet, but look how far I have come! I no longer feel hopeless, I feel full of life and energy! I'm a better mother, partner and friend! I spend my days playing, laughing and growing as a person as opposed to sitting on the couch. And because of this journey I am so compelled to be open and transparent, because I know that there are other moms, dads, people in general that are struggling. And if my story can touch even one of those lives and inspire them to get started on their own journey, then to me that is a huge success. 🙌
#PTSDAwareness#thereishope#gethelp ... Did you know that self harm, suicidal thoughts and suicide ideation can also be symptoms directly attributed to trauma? These are extremely serious symptoms and must not be ignored! If you or someone you know experience these heightened and severe symptoms GET HELP IMMEDIATELY!! The National Suicide Prevention Lifeline is available 24 hours a day, all 7 days a week, everyday! Call the NSPL at 18002738255 or call Emergency 911..........#NationalPTSDAwarenessDay#strengthcourageandpower#call911#live
Today I learned of 2 very different women who have something in common: both are grieving the loss of their beloved mothers.
One lost her mother after a long, valiant battle with cancer. This young woman prayed & prayed, crying out to God on behalf of her mama. But her mom passed away despite her desperate pleas for healing. She's hurting, angry at & running from God, barely hanging on by a very slim, frail ribbon of hope & faith.
The other woman's mother passed away unexpectedly, at a rather young age. No time for desperate prayers or final farewells. She's hurting, too; yet in her anguish, she's running TOWARDS God, clinging tightly to the hem of Jesus' garment for the healing of her broken heart, hanging on to the ribbon of hope & faith that she's allowed to become her lifeline, believing it to be strong enough to hold HER in the days ahead.
Two very different women. Two very different responses to their great losses. One chooses to believe that God TOOK her mother. The other chooses to believe that God HAS her mother. See the difference here? One sees God robbing her of her mother; one sees God calling her mother to the place where she (and we all) truly belong: home with Him.
In this life, we will experience pain, suffering & loss. Jesus confirms this in the gospel: 'Here on earth you will have many trials & sorrows.' (John 16:33, NLT)
But we have choices. We can see God as uncaring, cruel & selfish, taking away what/who 'belongs' to us, deaf & blind to our desperate pleas & heartfelt prayers. We can choose to thumb our noses at God, turn our backs on Him & run in the opposite direction. Or we can see Him as our caring Father, loving & kind; Whose ways & thoughts are unlike ours; Who, yes, gives & takes away for reasons only He knows & we will one day know when we're face-to-face with Him. We can choose to believe He is 'El Roi,' the God Who does indeed see us & hears our sometimes whispered, shouted or wept pleas for help & healing. We can choose to turn, to reach out, to run towards Him in our grief, our pain, our suffering, no matter if our faith is strong or fragile. How will YOU choose in troubling times & seasons of loss & sorrow?
It's difficult not to lose faith in humanity when we are constantly seeing all of the terrible things that people are doing to one another, as well as to the planet. But it's important to remember that there are still many amazing people out there willing to fight for love and justice. No one is perfect, but that does not mean that everyone is bad. Don't let the media fool you into thinking that everyone is evil and out to get you. It's not good to be naive, but it also isn't good to live in fear and negativity. A few bad people do not make the entire group bad. Good deeds are still happening everyday, even if the media isn't covering it 💚✌🌍🌊🙏
After you get done staring at her incredible legs 😜, check this out... Lisa Willcox is a Cancer surviving athlete with a background in human nutrition. Definitely worth the quick read!
Lisa shares 👇🏼
I hear it all the time, "I already eat clean and exercise daily, so WHY would I need Plexus?!?!" Prior to Plexus I spent my weekends catching up on sleep, always felt achy at the end of the day, never felt satisfied until I had something sweet to eat after dinner and relied on an antacid almost daily to deal with my belly bloat.
Because of my background in human nutrition/food science and being a college athlete I knew these "issues" were not going to be resolved through diet and exercise, so I began researching the importance of #guthealth and BINGO there was hope!! Being a thyroid Cancer survivor I am extremely picky (as I should be) about supplements so after researching every ingredient in the Plexus products, I was SOLD!! #plantbased#allnatural#noartificaldyes#noartificalsweeteners
What I didn't realize is the financial opportunity that came with the amazing health benefits!! Not only do I get to offer that #hope to those in desperate need like I was, but now I get to make my families wildest dreams come true thanks to Plexus!!! #gethealthywithamanda#gethealthywithme#loveherstory#cansersurvivor#athlete#background#humannutrition#quickread#eatclean#exercisedaily#foodscience#collegeathlete#thereishope#bingo#thyroidcancer#supplements#summer#wow
Prayer still works. I think that is something in this day of technology and fast-paced lifestyle where people are streaming their weekly service into the home so they can prepare Sunday dinner and do the laundry or listen on the way to a kid's tournament on the Facebook. Prayer works people! Stop, breath, get EVERYTHING, and I am a single mom, so I know asking you to clear your mind is not an easy task. It actually take practice! But God, He, is the Man! How many times have we come home late or missed the first few minutes of a kid's game for "the man" in the business sense of the word? So, what crazy sense does it make that we the people of this world can not make time for OUR MAN? The Lord and Savior!
But here is where it gets harder... and I, I did not want to even accept it myself. You don't have to keep praying the same prayer over and over. GOD already knows our needs. It is only for our relationship that he awaits for us to seek him. He only wants a continued relationship it does not have to be a broken record. It's like when your teenager comes home from school every day. You meet him with a living hug and a plate of cookies or hummus, and ask how was your day. Each day he replies fine. So does God continually provide for us, yet sometime we just give him very little in return like a broken record, even though he already know.
Here comes the Grande Finale. You go to your quiet place, possibly your war room, I'll discuss another day, and you get to that place and you get a direct connection with God! You know like when you dial a contact on your cell and you so go and earnestly pray. Now what? He still. God will give you an answer. It my not have been what you were looking for. But God gave you the next answer. #mysonhasangelwingslifeaftersuicide#1800273TALK#thereishope#mysoniaanangel#ifanythingbekind#youarenotalone