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Smiley 😍😍😍 the eyes are blue today! She’s keeping me on my toes in every way. Meeting is off until tomorrow. We couldn’t get all our team together today. She is trying out the twice a day shot at a very low dose. We could know very quickly it’s a horrible idea or it could take days to get her dosing just right or know if it’s working at all. Mark spoke to the company doing the trial on the pump and they would love to have Kitty! So if all else fails we have that in our back pocket. It is just a trial, so she would not get to keep it until it became available. If that’s the road we ended up on I pray it became available very quickly!!! #upsyndrome #theluckyfew #heartwarrior #trisomy21 #downsyndrome #Kittystrong #IHateHIHA
Smiley 😍😍😍 the eyes are blue today! She’s keeping me on my toes in every way. Meeting is off until tomorrow. We couldn’t get all our team together today. She is trying out the twice a day shot at a very low dose. We could know very quickly it’s a horrible idea or it could take days to get her dosing just right or know if it’s working at all. Mark spoke to the company doing the trial on the pump and they would love to have Kitty! So if all else fails we have that in our back pocket. It is just a trial, so she would not get to keep it until it became available. If that’s the road we ended up on I pray it became available very quickly!!! #upsyndrome  #theluckyfew  #heartwarrior  #trisomy21  #downsyndrome  #Kittystrong  #IHateHIHA 
Turns out, she still hates glasses. Even when her vision is blurry from the drops the doctor prescribed. HATES them. We spent a good portion of today fighting with her to keep them on. I even put my glasses on and she threw those off my face too! 😂🤦🏼‍♀️ worth it for these faces though. There is no doubt this two year old is super expressive and full of personality! .
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#downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #mystory #babiesofinstagram #instakids #instababy #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #instaphoto #photooftheday #blueeyes #babyglasses
Turns out, she still hates glasses. Even when her vision is blurry from the drops the doctor prescribed. HATES them. We spent a good portion of today fighting with her to keep them on. I even put my glasses on and she threw those off my face too! 😂🤦🏼‍♀️ worth it for these faces though. There is no doubt this two year old is super expressive and full of personality! . . . #downsyndrome  #downsyndromelove  #downsyndromerocks  #downsyndromeawareness  #t21  #trisomy21  #upsyndrome  #morealikethandifferent  #nothingdownaboutit  #theluckyfew  #mystory  #babiesofinstagram  #instakids  #instababy  #instatoddler  #toddler  #toddlerlife  #toddlerfashion  #toddlerlifestyle  #instaphoto  #photooftheday  #blueeyes  #babyglasses 
A few things to update about today.

Last night Colton received some Albumin for low blood pressures. He ended the night very positive after already being fluid overloaded. Now he is up almost a whole kilo (of fluid) & is working harder to breathe. He is also desatting very quickly when he is without oxygen for short periods of time. (Sneaking his cannula out or switching between his mask & cannula.) They are working on getting the fluid off. This roller coaster of fluid is the most frustrating thing for Matt & I to have to deal with.

Unfortunately, his PICC line went bad today & had to come out. Tomorrow, they hope to put another PICC line in. 
One of his labs this morning was for his thyroid. I'm still waiting on all the numbers & more details, but they said one of his numbers was WAY off & even being sick wouldn't change a number this much - I asked. He needs to be started on Synthroid (just like you sis). Future testing is going to determine whether this is tempory or actual hypothyroidism.

Colton's been having a rough time since the night of his sleep study, but somehow still finds joy in little things. Today Mommy & Daddy switched boys. It's always hard for us to make the switch, but it was good to see the boys interact with each other. ❤ .
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#ColtonStrong #tricuspidatresia #hypoplasticrightventricle #tetrologyoffallot #unbalancedavcanal #chd #heartwarrior #hearthero #hirschsprungsdisease  #downsyndrome #downsyndromeawareness #dsdn #trisomy21 #t21 #theluckyfew #downrightperfect #littlebrother #bigbrother #tubie #babieswithglasses #glasses #fournado #changingthefaceofbeauty #pawpatrol
A few things to update about today. Last night Colton received some Albumin for low blood pressures. He ended the night very positive after already being fluid overloaded. Now he is up almost a whole kilo (of fluid) & is working harder to breathe. He is also desatting very quickly when he is without oxygen for short periods of time. (Sneaking his cannula out or switching between his mask & cannula.) They are working on getting the fluid off. This roller coaster of fluid is the most frustrating thing for Matt & I to have to deal with. Unfortunately, his PICC line went bad today & had to come out. Tomorrow, they hope to put another PICC line in. One of his labs this morning was for his thyroid. I'm still waiting on all the numbers & more details, but they said one of his numbers was WAY off & even being sick wouldn't change a number this much - I asked. He needs to be started on Synthroid (just like you sis). Future testing is going to determine whether this is tempory or actual hypothyroidism. Colton's been having a rough time since the night of his sleep study, but somehow still finds joy in little things. Today Mommy & Daddy switched boys. It's always hard for us to make the switch, but it was good to see the boys interact with each other. ❤ . . #ColtonStrong  #tricuspidatresia  #hypoplasticrightventricle  #tetrologyoffallot  #unbalancedavcanal  #chd  #heartwarrior  #hearthero  #hirschsprungsdisease Â  #downsyndrome  #downsyndromeawareness  #dsdn  #trisomy21  #t21  #theluckyfew  #downrightperfect  #littlebrother  #bigbrother  #tubie  #babieswithglasses  #glasses  #fournado  #changingthefaceofbeauty  #pawpatrol 
Looking through old photos while I settle this girl back to bed (I’m convinced that all moms do this).
Finding some real gems😭😂🤣
#likethisone
#andthisone
#thehair
#thecheeks
#ohmygoodnesscheeks
Potty training is still going good for this cookie monster but not without it's occasional accidents. Last week he took a dump right in the middle of our living room floor, put his pants back on, stepped in the poopy and then proceeded to walk through most of the upstairs (I love having hardwood floors!). We give him a cookie every time his tells us he needs to go potty and it has really been the trick to get him to go. He is trying and I'm super proud of him.
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#downsyndromelove #downsyndrome #downsyndromeawareness #downsyndromerocks #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #mystory #babiesofinstagram #changingthefaceofbeauty #instababy #toddlersofinstagram #downrightperfect
Potty training is still going good for this cookie monster but not without it's occasional accidents. Last week he took a dump right in the middle of our living room floor, put his pants back on, stepped in the poopy and then proceeded to walk through most of the upstairs (I love having hardwood floors!). We give him a cookie every time his tells us he needs to go potty and it has really been the trick to get him to go. He is trying and I'm super proud of him. - - - - #downsyndromelove  #downsyndrome  #downsyndromeawareness  #downsyndromerocks  #t21  #trisomy21  #upsyndrome  #morealikethandifferent  #nothingdownaboutit  #theluckyfew  #mystory  #babiesofinstagram  #changingthefaceofbeauty  #instababy  #toddlersofinstagram  #downrightperfect 
"Mummy why do you have to put this silly baby gates up. I want to pull the christmas tree down" 😁 yes the christmas tree is #georgeproof . It needs to be. Feel free to hashtag any photos where you have had to George Proof your house as you have a destructive child. On a more positive note George has had a great day. He was such a good boy last night as Mummy has hurt her knee and ended up at hospital till nearly 2am. Least its not broken but got to go for a ct scan as they suspect knee ligament damage. The cocadamol is working a treat 😂👍 #christmas #christmastree #lights #decorations #smile #smilelikegeorge #goodbaby #bravo #downsyndrome #downsyndromeawareness #downsyndromerocks #downsyndromelove #downsyndrom #downsyndroom #downsendromu #sindromededown #trisomy21 #t21 #upsyndrome #nothingdownaboutit #morealikethandiffent #specialneeds #cutiepie #cutenessoverload #gorgeousgeorge #beautifulbaby #chubbycheeks #chunkymonkey #downsnobounds
"Mummy why do you have to put this silly baby gates up. I want to pull the christmas tree down" 😁 yes the christmas tree is #georgeproof  . It needs to be. Feel free to hashtag any photos where you have had to George Proof your house as you have a destructive child. On a more positive note George has had a great day. He was such a good boy last night as Mummy has hurt her knee and ended up at hospital till nearly 2am. Least its not broken but got to go for a ct scan as they suspect knee ligament damage. The cocadamol is working a treat 😂👍 #christmas  #christmastree  #lights  #decorations  #smile  #smilelikegeorge  #goodbaby  #bravo  #downsyndrome  #downsyndromeawareness  #downsyndromerocks  #downsyndromelove  #downsyndrom  #downsyndroom  #downsendromu  #sindromededown  #trisomy21  #t21  #upsyndrome  #nothingdownaboutit  #morealikethandiffent  #specialneeds  #cutiepie  #cutenessoverload  #gorgeousgeorge  #beautifulbaby  #chubbycheeks  #chunkymonkey  #downsnobounds 
夫が、取引先から
晩白柚を頂いてきた。
娘が「おもーい!」と言いながら
持ち上げては落とす!
ボールだと思ってるっぽい。
やめて〜
#downsyndrome #trisomy21 #t21 #ダウン症
夫が、取引先から 晩白柚を頂いてきた。 娘が「おもーい!」と言いながら 持ち上げては落とす! ボールだと思ってるっぽい。 やめて〜 #downsyndrome  #trisomy21  #t21  #ダウン症 
O Homem-Aranha (Spider-Man) esqueceu o filho dele aqui 🕷🕸🙈
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Não posso virar as costas um segundo 🤦🏻‍♀️ Valha-me Deus 🙏🏻
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Rolem o dedo para o lado, mais 📸
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#lepetitdaviluca #lepetitprince #omeninoaranha #homemaranha #spiderman #deusnosacuda #davisendodavi #artesdedavi #daviarteiro #sindromededown #downsindrome #trissomia21 #trisomie21 #trisomy21 #t21
Peace from Venice! This little town is awesome! It’s just amazing and you need to take a bout tour through the canals and especially you have to see the island Murano & Burano 🏘🏠
Peace from Venice! This little town is awesome! It’s just amazing and you need to take a bout tour through the canals and especially you have to see the island Murano & Burano 🏘🏠
Yaaahhh hidungku masih kalah mancung sama Papa????!!!! #zaidanrabbani 
#zaid 
#my
#nose
#mlingsep
#downsyndrome 
#trisomy21 
#withpapa
#umur3bln
Dalam tidur pun aku pinter gaya kan? 
Entah aku lagi mimpi merenung dengan masa depanku??? Atau mimpi lagi terpukau dengan bidadari yang cantik dan baik hati yg selalu disebelahku dan merawatku dengan cinta kasih sayang tiada batas, membelaiku sambil mendoakanku, aahh... cantik dan penyayangnya bidadari itu.... Tangannya lembut dan hangat... Terlihat tersenyum manis terus, aku tidak pernah melihat dia menangis... Tapi kalo cerewet sih sering.... Haahhh cerewet??? Kok??? Pasti bidadarinya ada yg gangguin nih.... Aku kan manis... Siapa yg berani gangguin bidadariku yaa ??? 😱😷👶👶 #zaid
#kecil
#gapailahmimpi
#setinggilangit
#oraetlabora
#downsyndrome
#trisomy21
#umur7-8hari
Dalam tidur pun aku pinter gaya kan? Entah aku lagi mimpi merenung dengan masa depanku??? Atau mimpi lagi terpukau dengan bidadari yang cantik dan baik hati yg selalu disebelahku dan merawatku dengan cinta kasih sayang tiada batas, membelaiku sambil mendoakanku, aahh... cantik dan penyayangnya bidadari itu.... Tangannya lembut dan hangat... Terlihat tersenyum manis terus, aku tidak pernah melihat dia menangis... Tapi kalo cerewet sih sering.... Haahhh cerewet??? Kok??? Pasti bidadarinya ada yg gangguin nih.... Aku kan manis... Siapa yg berani gangguin bidadariku yaa ??? 😱😷👶👶 #zaid  #kecil  #gapailahmimpi  #setinggilangit  #oraetlabora  #downsyndrome  #trisomy21  #umur7 -8hari
Zaidan waktu umur belum 1 bulan... Setelah disinar aku jadi hitam ya, hehe... Hidungku juga nggak minimalis banget kan??? Aku keren dari kecil... #zaid
#kecil
#hitam
#ganteng
#belumtau
#downsyndrome
#downsyndromecutie 
#trisomy21
#potads
#ADS 
#adshebatkalsel
Skänk oss du julens brud , julfröjders aning . Tänd dina vita ljus Sankta Lucia ❤CHANGING THE FACE OF BEAUTY 🙌🏼❤#jagärlucia #spridljusintefördommar #sanktalucia #luciamorgon #lucia #downsyndrome #downssyndrom #autism #intesåkonstigt #changingthefaceofbeauty #trisomy21 #downrightperfect
Dieses erste Motiv aus meiner Vernissage in Jülich muss ich euch unbedingt zeigen ;) Glück kennt keine Behinderung !!! #trisomy21 #trisomie21 #t21 #inklusion #love #liebe #jennyklestilphotography #glueckkenntkeinebehinderung
It's official! I have a race committee & race logo for our upcoming #rockyoursocksrun coming on March 17, 2018. A benefit run for the Down Syndrome Association of the Mid Columbia. An opportunity for others to rocks their socks in honor of Down Syndrome day on March 21 & to show awareness, acceptance & support to individuals born with Down Syndrome. It also gives my daughter the opportunity to live an active lifestyle, compete & realize that anything is possible!! More details to come in January!  #awarenessrun #downsyndrome #trisomy21 #running #races #acceptance #tolerance #support #anythingispossible #activelifestyle #fitfamily #momoffour #trilife #triathalete #ironman #downsyndromeday #family
It's official! I have a race committee & race logo for our upcoming #rockyoursocksrun  coming on March 17, 2018. A benefit run for the Down Syndrome Association of the Mid Columbia. An opportunity for others to rocks their socks in honor of Down Syndrome day on March 21 & to show awareness, acceptance & support to individuals born with Down Syndrome. It also gives my daughter the opportunity to live an active lifestyle, compete & realize that anything is possible!! More details to come in January! #awarenessrun  #downsyndrome  #trisomy21  #running  #races  #acceptance  #tolerance  #support  #anythingispossible  #activelifestyle  #fitfamily  #momoffour  #trilife  #triathalete  #ironman  #downsyndromeday  #family 
Meet ENRIQUE! He’s one of our young members! His Mom wanted him to begin a fitness routine! Over the last couple of months he has attended our #kidsfitness classes, He has increased his muscle tone, his agility, his balance, his core strength, his energy levels, listens better to directions and his endurance! His mom reports he now has an A in PE! During recess he is mainstreamed and he can out run many of his school mates! His pediatrician is impressed with his progress! He also signed up to do the Spartan Kids race in Jan 2018! Passion for fitness starts at every age! The best gift you can give your kids is to teach them how to care for themselves! At #breckenfit we work with all fitness levels and help YOU and YOUR FAMILY implement and achieve your fitness goals! A fitness lifestyle will last a lifetime! Come In or Call US at (951) 299-7637! ✅✅✅✅✅✅
#kids #mommylife #kidsgym #ie #riverside #downsyndrome #trisomy21 #familyfirst #fitkids #fitkidsrock #dadlife #spartankids #fitfamilylife #fitfamily #livetoday #breckenfitpersonaltrainingschool #childhoodobesity #awareness #fitness #activeliving #workouttime #weightlossjourney #weightloss #wellness #better #betteryou
Meet ENRIQUE! He’s one of our young members! His Mom wanted him to begin a fitness routine! Over the last couple of months he has attended our #kidsfitness  classes, He has increased his muscle tone, his agility, his balance, his core strength, his energy levels, listens better to directions and his endurance! His mom reports he now has an A in PE! During recess he is mainstreamed and he can out run many of his school mates! His pediatrician is impressed with his progress! He also signed up to do the Spartan Kids race in Jan 2018! Passion for fitness starts at every age! The best gift you can give your kids is to teach them how to care for themselves! At #breckenfit  we work with all fitness levels and help YOU and YOUR FAMILY implement and achieve your fitness goals! A fitness lifestyle will last a lifetime! Come In or Call US at (951) 299-7637! ✅✅✅✅✅✅ #kids  #mommylife  #kidsgym  #ie  #riverside  #downsyndrome  #trisomy21  #familyfirst  #fitkids  #fitkidsrock  #dadlife  #spartankids  #fitfamilylife  #fitfamily  #livetoday  #breckenfitpersonaltrainingschool  #childhoodobesity  #awareness  #fitness  #activeliving  #workouttime  #weightlossjourney  #weightloss  #wellness  #better  #betteryou 
Get the Brilliant Learning free Jumpstart Guide! Plus access to our Private Member Community.

Just click the #linkinbio and then click the image at the top right corner.  #getstartednow  #brilliantlearning #ourkidscan #autismworld #downsyndrome #autismlife #trisomy21 #autismmom #autismdads
No matter which way I send this girl down the slide, she insists on turning herself around head first 😬 She is our dare devil child 😳
No matter which way I send this girl down the slide, she insists on turning herself around head first 😬 She is our dare devil child 😳
Play time today! Today we played with the Lamaze Moose with different textures and sounds! Ryan wasn’t completely interested, but was enough to make me happy. Lol. I guess he is only one month old. He was putting it in his mouth, which is a good thing with play time! He’s also getting his neck strength little by little. 🙌🏼 Of course, the toy matched the shirt. 😉😂💙
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#212121 #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #dsdn #iheartT21 #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #brandrepsearch #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21 #t21journey #theluckyfew #trisomy21
Play time today! Today we played with the Lamaze Moose with different textures and sounds! Ryan wasn’t completely interested, but was enough to make me happy. Lol. I guess he is only one month old. He was putting it in his mouth, which is a good thing with play time! He’s also getting his neck strength little by little. 🙌🏼 Of course, the toy matched the shirt. 😉😂💙 • • • • • #212121  #betterwithyou  #chromosomallyenhanced  #downrightcute  #downrightcute21  #downrightperfect  #downsyndrome  #downsyndromeawareness  #downsyndromebaby  #downsyndromecutie  #downsyndromelife  #downsyndromelove  #downsyndromemom  #downsyndromepride  #DS  #dsdn  #iheartT21  #homiewithanextrachromie  #justlikeyou  #lifeisbetterwithyou  #brandrepsearch  #ryanplus1  #morealikethandifferent  #rockingmyextrachromosome  #t21  #t21journey  #theluckyfew  #trisomy21 
In A World 🌍 Where You Can Be Anything 😄😊 Be Kind 😍😘 To People With Down Syndrome 💙💛
#downsyndrome #t21 #trisomy21 #downrightperfect #downsyndromerocks #downsyndromeawareness #downsyndromelove #theluckyfew #nothingdownaboutit #upsyndrome #morealikethandifferent
Today's physio... it's time to order a Happy Strap and get shoes fitted. I'm finding alternative ways to do thongs and that's not good for my body.
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#PhysioTherapy #FunNotPhysio #GettingStrong #HappyStrap WellAndAble #GetYourArseIntoGearMummy #ExtraChromosomeExtraCute #LifeIsBetterWithYou #CutieWithT21 #Trisomy21 #BrisbaneKids #KidsOfInstagram  #ItTakesAVillage
カンタ画伯
久しぶりに家でお絵かきしたよ♩
偶然に引けた線とコツコツした点✏︎
今しかできない作品がかわいい☺︎
・
・
続いていた鼻風邪は
ついに金曜38.0°から37.5°前後の熱が出て
シナジスついでにお医者さんに診てもらって
鼻水が良くなる あま〜いシロップを飲んで
お家でゆっくりとしていたら
ようやくよくなりました🌸
・
今日は朝から15時まで
カンタ一人で療育園の日
元気に登園できてよかった🚶🏻‍♂️
・
母は夕方からの雪に備えて
タイヤ交換してきます⛄️
いよいよ❄️❄️❄️
・
#❄️ #お絵かき #絵本
#trisomy21 #21トリソミー
#downsyndrome #ダウン症
#生後18ヶ月 #1歳6ヵ月
カンタ画伯 久しぶりに家でお絵かきしたよ♩ 偶然に引けた線とコツコツした点✏︎ 今しかできない作品がかわいい☺︎ ・ ・ 続いていた鼻風邪は ついに金曜38.0°から37.5°前後の熱が出て シナジスついでにお医者さんに診てもらって 鼻水が良くなる あま〜いシロップを飲んで お家でゆっくりとしていたら ようやくよくなりました🌸 ・ 今日は朝から15時まで カンタ一人で療育園の日 元気に登園できてよかった🚶🏻‍♂️ ・ 母は夕方からの雪に備えて タイヤ交換してきます⛄️ いよいよ❄️❄️❄️ ・ #❄️ #お絵かき  #絵本  #trisomy21  #21トリソミー  #downsyndrome  #ダウン症  #生後18ヶ月  #1æ­³6ヵ月 
絵本を読みながら
日向ぼっこしてると
パンが届いたよ🍞♩
おひさまがあたたかい🌸
・
#縁側 #しんせつなともだち
#trisomy21 #21トリソミー
#downsyndrome #ダウン症
#生後18ヶ月 #1歳6ヶ月
いつもいつもお手伝いを頑張ってくれてありがとう😊
昨日は疲れてソファーで寝ちゃったパパを起こしてくれて、頑張った!と言いながら何度もハグしていました(笑)

パパの怪我に黙って絆創膏を貼ってくれたり、パパの食器片付けてくれたり…

弟だけじゃなく、パパのお世話もしてくれるなんて、世話焼きお姉さん❤︎
息切れしない程度に頑張って‼️ #21トリソミー #ダウン症ガール #ダウン症 #downsyndrome #trisomy21 #世話焼きお姉さん #4歳児 #0歳5ヶ月
いつもいつもお手伝いを頑張ってくれてありがとう😊 昨日は疲れてソファーで寝ちゃったパパを起こしてくれて、頑張った!と言いながら何度もハグしていました(笑) パパの怪我に黙って絆創膏を貼ってくれたり、パパの食器片付けてくれたり… 弟だけじゃなく、パパのお世話もしてくれるなんて、世話焼きお姉さん❤︎ 息切れしない程度に頑張って‼️ #21トリソミー  #ダウン症ガール  #ダウン症  #downsyndrome  #trisomy21  #世話焼きお姉さん  #4歳児  #0æ­³5ヶ月 
Turns out, she still hates glasses. Even when her vision is blurry from the drops the doctor prescribed. HATES them. We spent a good portion of today fighting with her to keep them on. I even put my glasses on and she threw those off my face too! 😂🤦🏼‍♀️ worth it for these faces though. There is no doubt this two year old is super expressive and full of personality! .
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#downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #mystory #babiesofinstagram #instakids #instababy #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #instaphoto #photooftheday #blueeyes #babyglasses
Turns out, she still hates glasses. Even when her vision is blurry from the drops the doctor prescribed. HATES them. We spent a good portion of today fighting with her to keep them on. I even put my glasses on and she threw those off my face too! 😂🤦🏼‍♀️ worth it for these faces though. There is no doubt this two year old is super expressive and full of personality! . . . #downsyndrome  #downsyndromelove  #downsyndromerocks  #downsyndromeawareness  #t21  #trisomy21  #upsyndrome  #morealikethandifferent  #nothingdownaboutit  #theluckyfew  #mystory  #babiesofinstagram  #instakids  #instababy  #instatoddler  #toddler  #toddlerlife  #toddlerfashion  #toddlerlifestyle  #instaphoto  #photooftheday  #blueeyes  #babyglasses 
One of our children, who shall remain nameless (hint: not the 2 year old!) went through a bad tantrum phase. It was hard on all of us and lasted longer than I would think is typical, but luckily it’s much better now. I read a few books on the topic and this suggestion was a game changer: 
Sit side by side instead of looking directly at them. It’s less confrontational and they calm down more easily. 
Even though he doesn’t have full fledged tantrums anymore, we still do this for any correctional talks. And never one to be left out, a little sidekick wedged her way in to get some of the talk too. 😂
(By the way, if anyone’s interested I can give the full tantrum-reducing steps that we took from the book. It wasn’t anything crazy but it worked well for us!) .
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#littlesister #siblinglove #downsyndrome #nothingdownaboutit #trisomy21 #theluckyfew #ilovelu
One of our children, who shall remain nameless (hint: not the 2 year old!) went through a bad tantrum phase. It was hard on all of us and lasted longer than I would think is typical, but luckily it’s much better now. I read a few books on the topic and this suggestion was a game changer: Sit side by side instead of looking directly at them. It’s less confrontational and they calm down more easily. Even though he doesn’t have full fledged tantrums anymore, we still do this for any correctional talks. And never one to be left out, a little sidekick wedged her way in to get some of the talk too. 😂 (By the way, if anyone’s interested I can give the full tantrum-reducing steps that we took from the book. It wasn’t anything crazy but it worked well for us!) . . . #littlesister  #siblinglove  #downsyndrome  #nothingdownaboutit  #trisomy21  #theluckyfew  #ilovelu 
Minha mamã costuma dizer que eu gosto muito de festa. Antes de receber alta da UTI, minha titia Binha e minha «dinda» Bruna sempre ficavam arrumando meu berço e limpando o meu quarto. Todos os dias, era o mesmo ritual, na expectativa da minha chegada ao novo lar. Até que o dia chegou: foi minha primeira festa! Minha chegada em casa foi uma grande festa, titia Binha e "dinda" Bruna organizou tudo, fizeram bolo, docinhos e sagadinhos e tantas outras comidas, ornamentaram com bolas e cartazes e, tia Licia, tio Neto e vovô ajudaram na montagem. Meu primo Felipe também fazia as fotos. Relembrar essa chegada foi demais...e, veio meu primeiro Natal, recebi a visita de um Papai Noel muito especial: meu primo Lipinho (de Papai Noel só para mim). Uma diversidade de comidas, mas, eu só mamava.

#angelinasophia  #sindromededown#singularidadedown#downsyndromeawareness#downsyndrome#t21#downsyndromelove##trisomy21#mystory
Minha mamã costuma dizer que eu gosto muito de festa. Antes de receber alta da UTI, minha titia Binha e minha «dinda» Bruna sempre ficavam arrumando meu berço e limpando o meu quarto. Todos os dias, era o mesmo ritual, na expectativa da minha chegada ao novo lar. Até que o dia chegou: foi minha primeira festa! Minha chegada em casa foi uma grande festa, titia Binha e "dinda" Bruna organizou tudo, fizeram bolo, docinhos e sagadinhos e tantas outras comidas, ornamentaram com bolas e cartazes e, tia Licia, tio Neto e vovô ajudaram na montagem. Meu primo Felipe também fazia as fotos. Relembrar essa chegada foi demais...e, veio meu primeiro Natal, recebi a visita de um Papai Noel muito especial: meu primo Lipinho (de Papai Noel só para mim). Uma diversidade de comidas, mas, eu só mamava. #angelinasophia  #sindromededown #singularidadedown #downsyndromeawareness #downsyndrome #t21 #downsyndromelove ##trisomy21 #mystory 
" macam sedap je kaki ni " kata Khalisya kepada acu. #wannurinkhalisya #trisomy21
It’s been a rough evening. Ryker hasn’t been tolerating pain or hunger very well. He’s been sleeping on and off, however when he’s awake he doesn’t stop crying I hope tomorrow is a better day and he gets his much needed rest. 
#babyboy #ourson #rykerstark #nicubaby #downsyndrome #nothingdownaboutit #trisomy21 #t21 #iloveyou #tothemoonandback #myworld #downrightperfect #homiewithanextrachromie #9monthsold #theluckyfew #dsdn #smiles #bigeyes  #nooxygentank #daddyandson #smiles #model #futuremodel #ladiesman #mamasboy #lifeisbetterwithyou #chubbycheeks #toofunny #family #congenitalheartdefect #openheartsurgery @theellenshow
It’s been a rough evening. Ryker hasn’t been tolerating pain or hunger very well. He’s been sleeping on and off, however when he’s awake he doesn’t stop crying I hope tomorrow is a better day and he gets his much needed rest. #babyboy  #ourson  #rykerstark  #nicubaby  #downsyndrome  #nothingdownaboutit  #trisomy21  #t21  #iloveyou  #tothemoonandback  #myworld  #downrightperfect  #homiewithanextrachromie  #9monthsold  #theluckyfew  #dsdn  #smiles  #bigeyes  #nooxygentank  #daddyandson  #smiles  #model  #futuremodel  #ladiesman  #mamasboy  #lifeisbetterwithyou  #chubbycheeks  #toofunny  #family  #congenitalheartdefect  #openheartsurgery  @theellenshow
昨日のまこさん🎶
【認知クラスの巻〜📝】
クラスの最後に、その日に学んだ事を発表してくれます🤗
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絵本を読んで、動物の人形で本の内容を再現してくれるのですが、
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まこさんがゾウになってる感じですね😆
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ま「みんなゾウと友だちになりました〜〜💐」
先生「仲良く遊んだの?」
ま「仲良く遊びました〜🎶」
先生「よくできました💮おしまい^^」
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楽しい授業で、まこさん良かったね❤️
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#downsyndrome #downsyndromebeauty #downsyndromeawareness #trisomy21 #t21 #t21love #t21journey #ダウン症のまこさん🎶 #ダウン症 #トリソミー21 #21トリソミー #チーム21親バカ大会 #療育#絵本好き #韓国で障がい児子育て #ソウル #韓国生活 #障がい児子育て #楽しい
昨日のまこさん🎶 【認知クラスの巻〜📝】 クラスの最後に、その日に学んだ事を発表してくれます🤗 ✨ 絵本を読んで、動物の人形で本の内容を再現してくれるのですが、 ✨ まこさんがゾウになってる感じですね😆 ✨ ま「みんなゾウと友だちになりました〜〜💐」 先生「仲良く遊んだの?」 ま「仲良く遊びました〜🎶」 先生「よくできました💮おしまい^^」 ✨ 楽しい授業で、まこさん良かったね❤️ ✨ #downsyndrome  #downsyndromebeauty  #downsyndromeawareness  #trisomy21  #t21  #t21love  #t21journey  #ダウン症のまこさん ðŸŽ¶ #ダウン症  #トリソミー21  #21トリソミー  #チーム21親バカ大会  #療育 #絵本好き  #韓国で障がい児子育て  #ソウル  #韓国生活  #障がい児子育て  #楽しい 
OMG 😍🎄 we are so excited for our very first Christmas with this little guy that completes our family of 6! .
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👕 by @krosedesignco 
Use discount code GRAYSON15 for your custom needs! .
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👖 by @all_torn_up_apparel .
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#graysonwillmovemountains #brandrep #brandrepsearch #downrightperfect #upsyndrome #downsyndrome #downsyndromeparent #downsyndromeawarness #dsdn #t21 #theluckyfew #nothingdownaboutit #lifeisbetterwithyou #morealikethandifferent #babiesofinstagram #shouttheirworth #trisomy21 #downmagazine
OMG 😍🎄 we are so excited for our very first Christmas with this little guy that completes our family of 6! . . . 👕 by @krosedesignco Use discount code GRAYSON15 for your custom needs! . . 👖 by @all_torn_up_apparel . . #graysonwillmovemountains  #brandrep  #brandrepsearch  #downrightperfect  #upsyndrome  #downsyndrome  #downsyndromeparent  #downsyndromeawarness  #dsdn  #t21  #theluckyfew  #nothingdownaboutit  #lifeisbetterwithyou  #morealikethandifferent  #babiesofinstagram  #shouttheirworth  #trisomy21  #downmagazine 
Im soo proud of my girl. She got B in science 😍😍😍 #trisomy21 #downsyndromegirl #reportday #masterinscience #sherocksit #sekolahalambali #holisticeducation
Zach is pure joy. 
Link in bio | gozak.org
Zach is pure joy. Link in bio | gozak.org
A few things to update about today.

Last night Colton received some Albumin for low blood pressures. He ended the night very positive after already being fluid overloaded. Now he is up almost a whole kilo (of fluid) & is working harder to breathe. He is also desatting very quickly when he is without oxygen for short periods of time. (Sneaking his cannula out or switching between his mask & cannula.) They are working on getting the fluid off. This roller coaster of fluid is the most frustrating thing for Matt & I to have to deal with.

Unfortunately, his PICC line went bad today & had to come out. Tomorrow, they hope to put another PICC line in. 
One of his labs this morning was for his thyroid. I'm still waiting on all the numbers & more details, but they said one of his numbers was WAY off & even being sick wouldn't change a number this much - I asked. He needs to be started on Synthroid (just like you sis). Future testing is going to determine whether this is tempory or actual hypothyroidism.

Colton's been having a rough time since the night of his sleep study, but somehow still finds joy in little things. Today Mommy & Daddy switched boys. It's always hard for us to make the switch, but it was good to see the boys interact with each other. ❤ .
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#ColtonStrong #tricuspidatresia #hypoplasticrightventricle #tetrologyoffallot #unbalancedavcanal #chd #heartwarrior #hearthero #hirschsprungsdisease  #downsyndrome #downsyndromeawareness #dsdn #trisomy21 #t21 #theluckyfew #downrightperfect #littlebrother #bigbrother #tubie #babieswithglasses #glasses #fournado #changingthefaceofbeauty #pawpatrol
A few things to update about today. Last night Colton received some Albumin for low blood pressures. He ended the night very positive after already being fluid overloaded. Now he is up almost a whole kilo (of fluid) & is working harder to breathe. He is also desatting very quickly when he is without oxygen for short periods of time. (Sneaking his cannula out or switching between his mask & cannula.) They are working on getting the fluid off. This roller coaster of fluid is the most frustrating thing for Matt & I to have to deal with. Unfortunately, his PICC line went bad today & had to come out. Tomorrow, they hope to put another PICC line in. One of his labs this morning was for his thyroid. I'm still waiting on all the numbers & more details, but they said one of his numbers was WAY off & even being sick wouldn't change a number this much - I asked. He needs to be started on Synthroid (just like you sis). Future testing is going to determine whether this is tempory or actual hypothyroidism. Colton's been having a rough time since the night of his sleep study, but somehow still finds joy in little things. Today Mommy & Daddy switched boys. It's always hard for us to make the switch, but it was good to see the boys interact with each other. ❤ . . #ColtonStrong  #tricuspidatresia  #hypoplasticrightventricle  #tetrologyoffallot  #unbalancedavcanal  #chd  #heartwarrior  #hearthero  #hirschsprungsdisease Â  #downsyndrome  #downsyndromeawareness  #dsdn  #trisomy21  #t21  #theluckyfew  #downrightperfect  #littlebrother  #bigbrother  #tubie  #babieswithglasses  #glasses  #fournado  #changingthefaceofbeauty  #pawpatrol 
Today is the first day of Hanukkah! May your holiday season be filled with love and light💛💙💛💙
Today is the first day of Hanukkah! May your holiday season be filled with love and light💛💙💛💙
New blog post: This One Moment. "Sometimes Down syndrome is the easiest thing about life. (I once thought that no problem would ever be bigger than her diagnosis. I was wrong.) And sometimes...Down syndrome provides a window to a new view I haven't considered before. A view that I really needed but didn't even think to ask for. Sometimes this view narrows ALL THE THINGS to the one breathtaking moment right in front of me that I would have otherwise missed. Grateful." #lifeisbetterwithyou #theluckyfew #trisomy21 #downsyndromerocks (link in profile)
New blog post: This One Moment. "Sometimes Down syndrome is the easiest thing about life. (I once thought that no problem would ever be bigger than her diagnosis. I was wrong.) And sometimes...Down syndrome provides a window to a new view I haven't considered before. A view that I really needed but didn't even think to ask for. Sometimes this view narrows ALL THE THINGS to the one breathtaking moment right in front of me that I would have otherwise missed. Grateful." #lifeisbetterwithyou  #theluckyfew  #trisomy21  #downsyndromerocks  (link in profile)
I have always wanted a real live baby doll and I’ve finally got one!! 💛💕👶🏼😍. .
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#myheart #nothingdownabouther #nothingdownaboutit #dsawareness #downsyndrome #downrightperfect #ds #trisomy21 #dsbaby #321 #changingthefaceofbeauty #morealikethandifferent #theluckyfew #t21 #purehappiness #babyfever #babygirl #babymodel #igbaby #instababy #babyfashion #fashion #instagrambabies #daughtergoals #tubiebaby #babydoll #pearls #brandrep #inspiration #motherhood @thebump @downsyndromerockingout
I have always wanted a real live baby doll and I’ve finally got one!! 💛💕👶🏼😍. . . . #myheart  #nothingdownabouther  #nothingdownaboutit  #dsawareness  #downsyndrome  #downrightperfect  #ds  #trisomy21  #dsbaby  #321  #changingthefaceofbeauty  #morealikethandifferent  #theluckyfew  #t21  #purehappiness  #babyfever  #babygirl  #babymodel  #igbaby  #instababy  #babyfashion  #fashion  #instagrambabies  #daughtergoals  #tubiebaby  #babydoll  #pearls  #brandrep  #inspiration  #motherhood  @thebump @downsyndromerockingout
One kid who refuses to go inside, one kid who refuses to stay outside, but they make it work.
#sisters
One kid who refuses to go inside, one kid who refuses to stay outside, but they make it work. #sisters 
It has been an amazing 2 years of love, giggles and growth. You are becoming such a beautiful toddler and I look forward to all your new accomplishments. Happy Birthday, Mommy and Daddy love you.
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#love #happybaby #upsyndrome #downsyndrome #awareness #trisomy21 #mystory #igtoddler #toddlerlife #penelopestrong #morealikethandifferent #theluckyfew #lifewithdownsyndrome #dsastx #downrightperfect #nothingdownaboutit #specialneedsfamily #mommysgirl #daddysgir #happybirthday #two #birthdaygirl
It has been an amazing 2 years of love, giggles and growth. You are becoming such a beautiful toddler and I look forward to all your new accomplishments. Happy Birthday, Mommy and Daddy love you. . #love  #happybaby  #upsyndrome  #downsyndrome  #awareness  #trisomy21  #mystory  #igtoddler  #toddlerlife  #penelopestrong  #morealikethandifferent  #theluckyfew  #lifewithdownsyndrome  #dsastx  #downrightperfect  #nothingdownaboutit  #specialneedsfamily  #mommysgirl  #daddysgir  #happybirthday  #two  #birthdaygirl 
#transformationtuesday
3 months on the left, 10 months on the right- It’s amazing how much he’s grown! 😍 Feels like the first picture was just yesterday!
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#downsyndrome #downsyndromerocks #downsyndromeawareness #downsyndromelove #mamasboy #boymom #babyboy #family #lifeisbetterwithyou #moments #momentslikethese #letthembelittle #babiesofinstagram #babiesofig #photooftheday #theluckyfew #morealikethandifferent #nothingdownaboutit #trisomy21 #shouttheirworth #10monthsold #babieswithstyle #love #t21 #dsdn #homiewithanextrachromie #changingthefaceofbeauty
#transformationtuesday  3 months on the left, 10 months on the right- It’s amazing how much he’s grown! 😍 Feels like the first picture was just yesterday! . . . . . . . . . . . . . . . . . . #downsyndrome  #downsyndromerocks  #downsyndromeawareness  #downsyndromelove  #mamasboy  #boymom  #babyboy  #family  #lifeisbetterwithyou  #moments  #momentslikethese  #letthembelittle  #babiesofinstagram  #babiesofig  #photooftheday  #theluckyfew  #morealikethandifferent  #nothingdownaboutit  #trisomy21  #shouttheirworth  #10monthsold  #babieswithstyle  #love  #t21  #dsdn  #homiewithanextrachromie  #changingthefaceofbeauty 
Yesterday Jax went for his Christmas haircut and was an absolute doll while his hairdresser chopped his locks as always 😍❤ Looking so grown up now!!! 😍❤ #perfectlyjaxonjude #ourjourney #astoldbymummy #jaxonjude #christmashaircut #ourhero #showingushowitsdone #trisomy21 #t21 #downsyndrome #ds #SEN #ourphighter #idiopathicpulmonaryarterialhypertension #IPAH #pulmonaryhypertension #PH #phsucks #doourbesttoalwaysfindthejoyinourjourney #liveforthemoment #pulmonaryhypertensionawareness #becauseitmatters #prayforacure #alwayshope #alwaysbelieve
Yesterday Jax went for his Christmas haircut and was an absolute doll while his hairdresser chopped his locks as always 😍❤ Looking so grown up now!!! 😍❤ #perfectlyjaxonjude  #ourjourney  #astoldbymummy  #jaxonjude  #christmashaircut  #ourhero  #showingushowitsdone  #trisomy21  #t21  #downsyndrome  #ds  #SEN  #ourphighter  #idiopathicpulmonaryarterialhypertension  #IPAH  #pulmonaryhypertension  #PH  #phsucks  #doourbesttoalwaysfindthejoyinourjourney  #liveforthemoment  #pulmonaryhypertensionawareness  #becauseitmatters  #prayforacure  #alwayshope  #alwaysbelieve 
One of the most wonderful characteristics Dianna has is the ability to be captivated by something that would not hold the attention of most others her age for as long. I hope this will be a lifelong blessing.
Sometimes I think this is the characteristic that so many look down on in those who have Down syndrome or others who have different abilities. The world wants everyone to grow up and be independent and 'give back' to society.
I say that this is one of her greatest gifts to society, a lesson in slowing down, enjoying the little things, and having a childlike view of everything for much longer.
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#LifeIsBetterWithYou
#ThroughTheEyesofAChild
#DownSyndromeIsBeautiful
#AneXtraBlessing
One of the most wonderful characteristics Dianna has is the ability to be captivated by something that would not hold the attention of most others her age for as long. I hope this will be a lifelong blessing. Sometimes I think this is the characteristic that so many look down on in those who have Down syndrome or others who have different abilities. The world wants everyone to grow up and be independent and 'give back' to society. I say that this is one of her greatest gifts to society, a lesson in slowing down, enjoying the little things, and having a childlike view of everything for much longer. . . . #LifeIsBetterWithYou  #ThroughTheEyesofAChild  #DownSyndromeIsBeautiful  #AneXtraBlessing 
Sleepovers in mummy's room because we needed to use the air conditioning. Apparently because I climbed while she's trying to sleep, this is the safest way to co-sleep. 88% humidity should be illegal. Hehe!
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#Humid #DrippingWithSweat #AirConditioning #CoSleep #CoSleepMeansNoSleep #ThisWasMuchBetter #ExtraChromosomeExtraCute #LifeIsBetterWithYou #CutieWithT21 #Trisomy21 #BrisbaneKids #KidsOfInstagram #JustMummyAndMe #JustTheTwoOfUs
Lily had speech therapy today and put on quite a show for her therapist. She stood in the middle of the room singing songs and dancing. She then “read” a few books, picked up her therapist’s purse, gave it to her and said “bye bye” while walking her to the door! This child really is something else! 😂 #lilygrace #shestheboss #whenshesdoneshesdone #cutiepatootie #downsyndrome #upsyndrome #nothingdownaboutit #theluckyfew #trisomy21 #alllifeisprecious
Lily had speech therapy today and put on quite a show for her therapist. She stood in the middle of the room singing songs and dancing. She then “read” a few books, picked up her therapist’s purse, gave it to her and said “bye bye” while walking her to the door! This child really is something else! 😂 #lilygrace  #shestheboss  #whenshesdoneshesdone  #cutiepatootie  #downsyndrome  #upsyndrome  #nothingdownaboutit  #theluckyfew  #trisomy21  #alllifeisprecious 
He miiiight have thought I was trying to feed him 😂😂😂
He miiiight have thought I was trying to feed him 😂😂😂