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Definition: Lie|be; [li:be] ♥️ • unbeschreibliches Gefühl des sich Wohlfühlens. • die stärkste Zuneigung &‘ Wertschätzung, die ein Mensch einem anderen entgegenzubringen in der Lage ist. • ein ergreifendes Gefühl, das uns körperlich als auch geistig an einen besonderen Menschen bindet. • den passenden Deckel zum Topf gefunden haben. • ein unsichtbares Band, das zwei Herzen verbindet. • unsichtbarer Stoff, der unser Leben vollkommen macht. • schlägt jeden Willen, baut Brücken, macht unglaublich glücklich &‘ zufrieden. 
#couplegoals #couple #relationshipgoals #relationship #relationshipquotes #boyfriend #enjoythelittlethings #enjoythemoment #love #lovequotes #allineedisyou #definitionliebe #autoimmunedisease #sponie #ibd #colitisulcerosa #colitisulcerosafighter #ulcerativecolitis #ulcerativecolitisfighter #ulcerativecolitisawareness #ulcerativecolitiswarrior
Definition: Lie|be; [li:be] ♥️ • unbeschreibliches Gefühl des sich Wohlfühlens. • die stärkste Zuneigung &‘ Wertschätzung, die ein Mensch einem anderen entgegenzubringen in der Lage ist. • ein ergreifendes Gefühl, das uns körperlich als auch geistig an einen besonderen Menschen bindet. • den passenden Deckel zum Topf gefunden haben. • ein unsichtbares Band, das zwei Herzen verbindet. • unsichtbarer Stoff, der unser Leben vollkommen macht. • schlägt jeden Willen, baut Brücken, macht unglaublich glücklich &‘ zufrieden. #couplegoals  #couple  #relationshipgoals  #relationship  #relationshipquotes  #boyfriend  #enjoythelittlethings  #enjoythemoment  #love  #lovequotes  #allineedisyou  #definitionliebe  #autoimmunedisease  #sponie  #ibd  #colitisulcerosa  #colitisulcerosafighter  #ulcerativecolitis  #ulcerativecolitisfighter  #ulcerativecolitisawareness  #ulcerativecolitiswarrior 
Están siendo unos días putos, muy putos!!! El brote está siendo cada vez más agresivo.. problemillas de piel, llagas en la boca, y mucho malestar... Se me había olvidado lo que era estar así de jodida!!! Pero hay que seguir luchando y ojalá un día encuentren una cura para esta dichosa enfermedad. Hasta entonces... EGURRE!! #fuckcolitisulcerosa #ulcerativecolitisfighter #ulcerativecolitisawareness #ulcerativecolitis #autoinmunedisease #autoinmunewarrior #chronsandcolitis #keepfifhting #colitisawareness #paleoliving #paleodiet #PALEOLIFESTYLE
Están siendo unos días putos, muy putos!!! El brote está siendo cada vez más agresivo.. problemillas de piel, llagas en la boca, y mucho malestar... Se me había olvidado lo que era estar así de jodida!!! Pero hay que seguir luchando y ojalá un día encuentren una cura para esta dichosa enfermedad. Hasta entonces... EGURRE!! #fuckcolitisulcerosa  #ulcerativecolitisfighter  #ulcerativecolitisawareness  #ulcerativecolitis  #autoinmunedisease  #autoinmunewarrior  #chronsandcolitis  #keepfifhting  #colitisawareness  #paleoliving  #paleodiet  #PALEOLIFESTYLE 
Preparing for my next procedure no food for me and keeping busy painting tardis money box. #ulcerativecolitisfighter #tardis #colonoscopyprep
August 2015 ➡️ August 2016
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These two pictures are a year apart. Before my diagnosis of severe Ulcerative Colitis, I was a runner, I loved to kayak and paddle board, I enjoyed going to football games and spending time with friends, and I was a full time undergrad student. My symptoms came on fast. In a matter of a month, I went from a healthy 20-something to lying in a hospital bed hooked up to fluids and biologics and steroids and doctors at the foot of my bed explaining my disease to me.
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My life continued to change quickly and drastically. In only 4 months after my diagnosis I became critically ill. I was not responding to any medications and had a secondary infection of C. Diff. I never, ever expected to end up at only 72 pounds and in critical condition with surgery as my only option to save my life. I never expected to then have 3 more surgeries. I never expected to lose almost all of my hair. I never expected to end up with a permanent ileostomy.
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But here is the thing: I still love running and kayaking and paddle boarding and football games and spending time with my friends. My illness has changed my perspective on life, but it has not changed those things that bring me joy in life. I may not be able to run or kayak right now, but someday I will again. My illness has taken a lot from me, but it has also taught me patience, love, compassion, strength, bravery, and so much more.
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And no matter how challenging the last year and a half has been, I would not trade the tears, the laughter, the successes and failures, the fear, or the lessons for anything 💜 Live your life to the fullest and embrace every second: everything can change before you know it.
August 2015 ➡️ August 2016 . These two pictures are a year apart. Before my diagnosis of severe Ulcerative Colitis, I was a runner, I loved to kayak and paddle board, I enjoyed going to football games and spending time with friends, and I was a full time undergrad student. My symptoms came on fast. In a matter of a month, I went from a healthy 20-something to lying in a hospital bed hooked up to fluids and biologics and steroids and doctors at the foot of my bed explaining my disease to me. . My life continued to change quickly and drastically. In only 4 months after my diagnosis I became critically ill. I was not responding to any medications and had a secondary infection of C. Diff. I never, ever expected to end up at only 72 pounds and in critical condition with surgery as my only option to save my life. I never expected to then have 3 more surgeries. I never expected to lose almost all of my hair. I never expected to end up with a permanent ileostomy. . But here is the thing: I still love running and kayaking and paddle boarding and football games and spending time with my friends. My illness has changed my perspective on life, but it has not changed those things that bring me joy in life. I may not be able to run or kayak right now, but someday I will again. My illness has taken a lot from me, but it has also taught me patience, love, compassion, strength, bravery, and so much more. . And no matter how challenging the last year and a half has been, I would not trade the tears, the laughter, the successes and failures, the fear, or the lessons for anything 💜 Live your life to the fullest and embrace every second: everything can change before you know it.
It is ok to fall down, to feel defeated, to cry- but whatever you do, never give up. There is always hope and light and happiness. The darkness will not last forever ☀️
It is ok to fall down, to feel defeated, to cry- but whatever you do, never give up. There is always hope and light and happiness. The darkness will not last forever ☀️
T O M A T O E S🍅 it took me almost 8 years to realise that I have a mild allergy to my all time favourite vegetable/fruit - tomatoes. If someone would’ve said to me that I will no longer be able to eat them, I would’ve said ‘come on what BS this is’. I remember, I used to eat a lot of tomatoes and of course it would interfere with my gut but l have never thought that tomatoes caused my symptoms to worsen. I’ve learned during those years what products are bad to me. And I’m so happy to be able to stay in remission by simply eating gut friendly food☀️ #autoimmunedisease #allergy #awareness #chronicillness #inflammatoryboweldisease #guthealth #ibd #foods #fighter #knowyourbody #ulcerativecolitis #ulcerativecolitisfighter #ulcerativecolitisawareness #ulcerativecolitisremission #tomatoes #canteat #colitissucks #staystrong
T O M A T O E S🍅 it took me almost 8 years to realise that I have a mild allergy to my all time favourite vegetable/fruit - tomatoes. If someone would’ve said to me that I will no longer be able to eat them, I would’ve said ‘come on what BS this is’. I remember, I used to eat a lot of tomatoes and of course it would interfere with my gut but l have never thought that tomatoes caused my symptoms to worsen. I’ve learned during those years what products are bad to me. And I’m so happy to be able to stay in remission by simply eating gut friendly food☀️ #autoimmunedisease  #allergy  #awareness  #chronicillness  #inflammatoryboweldisease  #guthealth  #ibd  #foods  #fighter  #knowyourbody  #ulcerativecolitis  #ulcerativecolitisfighter  #ulcerativecolitisawareness  #ulcerativecolitisremission  #tomatoes  #canteat  #colitissucks  #staystrong 
This morning I was all geared up to go to the gym and last minute I decided I’d opt for the great outdoors. Who can blame me when its a stunning autumn morning and this is on our doorstep?! Also super chuffed that the @nikesportswear top @fatlad2fitdad77 bought me finally fits nicely! Needless to say it was quite breezy so was hidden with a hoodie but still. Even the miserable dog walkers didn’t get me down this morning! Thought people on a Sunday morning with their pooches are supposed to be friendly! Cheer up people! Really enjoyed that. #fitness #healthy #workout #nike #weightloss #weightlosstransformation #igfitness #instafollow #motivation #instagood #jstnutrition #girlgains #girlswholift #skinnycoffeebabes #ulcerativecolitisfighter #colitiswarrior #ostomy #miltonkeynes #fitfam #fitgirl #thisgirlcan #ibd #sheddingforthewedding #anxiety #ptsd #womensfitness #momswithink #gymlife #fitlife #fattofit
This morning I was all geared up to go to the gym and last minute I decided I’d opt for the great outdoors. Who can blame me when its a stunning autumn morning and this is on our doorstep?! Also super chuffed that the @nikesportswear top @fatlad2fitdad77 bought me finally fits nicely! Needless to say it was quite breezy so was hidden with a hoodie but still. Even the miserable dog walkers didn’t get me down this morning! Thought people on a Sunday morning with their pooches are supposed to be friendly! Cheer up people! Really enjoyed that. #fitness  #healthy  #workout  #nike  #weightloss  #weightlosstransformation  #igfitness  #instafollow  #motivation  #instagood  #jstnutrition  #girlgains  #girlswholift  #skinnycoffeebabes  #ulcerativecolitisfighter  #colitiswarrior  #ostomy  #miltonkeynes  #fitfam  #fitgirl  #thisgirlcan  #ibd  #sheddingforthewedding  #anxiety  #ptsd  #womensfitness  #momswithink  #gymlife  #fitlife  #fattofit 
I had an amazing time at the @weareoscarmike fundraiser charity ball last night in Chicago, Illinois. Got to meet other members of the Oscar Mike team and more importantly, I got the chance to fellowship with others for a GREAT cause. The ocr community has truly changed my life for the better. #health #fitness #spartanrace #usmcvet #alphamale #cornfedspartans #operationenduringwarrior #weareoscarmike #strongasoak #ocrtraining #alkebulan #mississippi #countryboy #woundedwarriors #charityball #menshealthmagazine #obstaclecourseracing #blessed #ulcerativecolitis #ulcerativecolitisfighter #silkies #rangerpanties
I had an amazing time at the @weareoscarmike fundraiser charity ball last night in Chicago, Illinois. Got to meet other members of the Oscar Mike team and more importantly, I got the chance to fellowship with others for a GREAT cause. The ocr community has truly changed my life for the better. #health  #fitness  #spartanrace  #usmcvet  #alphamale  #cornfedspartans  #operationenduringwarrior  #weareoscarmike  #strongasoak  #ocrtraining  #alkebulan  #mississippi  #countryboy  #woundedwarriors  #charityball  #menshealthmagazine  #obstaclecourseracing  #blessed  #ulcerativecolitis  #ulcerativecolitisfighter  #silkies  #rangerpanties 
I had an amazing time at the @weareoscarmike fundraiser charity ball last night in Chicago, Illinois. Got to meet other members of the Oscar Mike team and more importantly, I got the chance to fellowship with others for a GREAT cause. The ocr community has truly changed my life for the better. #health #fitness #spartanrace #usmcvet #alphamale #cornfedspartans #operationenduringwarrior #weareoscarmike #strongasoak #ocrtraining #alkebulan #mississippi #countryboy #woundedwarriors #charityball #menshealthmagazine #obstaclecourseracing #blessed #ulcerativecolitis #ulcerativecolitisfighter
I had an amazing time at the @weareoscarmike fundraiser charity ball last night in Chicago, Illinois. Got to meet other members of the Oscar Mike team and more importantly, I got the chance to fellowship with others for a GREAT cause. The ocr community has truly changed my life for the better. #health  #fitness  #spartanrace  #usmcvet  #alphamale  #cornfedspartans  #operationenduringwarrior  #weareoscarmike  #strongasoak  #ocrtraining  #alkebulan  #mississippi  #countryboy  #woundedwarriors  #charityball  #menshealthmagazine  #obstaclecourseracing  #blessed  #ulcerativecolitis  #ulcerativecolitisfighter 
I had an amazing time at the @weareoscarmike fundraiser charity ball last night in Chicago, Illinois. Got to meet other members of the Oscar Mike team and more importantly, I got the chance to fellowship with others for a GREAT cause. The ocr community has truly changed my life for the better. #health #fitness #spartanrace #usmcvet #alphamale #cornfedspartans #operationenduringwarrior #weareoscarmike #strongasoak #ocrtraining #alkebulan #mississippi #countryboy #woundedwarriors #charityball #menshealthmagazine #obstaclecourseracing #blessed #ulcerativecolitis #ulcerativecolitisfighter
I had an amazing time at the @weareoscarmike fundraiser charity ball last night in Chicago, Illinois. Got to meet other members of the Oscar Mike team and more importantly, I got the chance to fellowship with others for a GREAT cause. The ocr community has truly changed my life for the better. #health  #fitness  #spartanrace  #usmcvet  #alphamale  #cornfedspartans  #operationenduringwarrior  #weareoscarmike  #strongasoak  #ocrtraining  #alkebulan  #mississippi  #countryboy  #woundedwarriors  #charityball  #menshealthmagazine  #obstaclecourseracing  #blessed  #ulcerativecolitis  #ulcerativecolitisfighter 
So I’ve never ever done a side by side, ever (well that I remember) but left is me Feb ‘13 and right is me Sept ‘17. That wasn’t even at my heaviest on the right but to date from then until now I’ve lost 2st 11lbs. I need to give myself credit for that as at the minute I’m beating myself up after gaining some weight again. Seeing them side by side is like wowsers, never realised the difference. Def saw myself as the 2013 version even to this day. A little bit chuffed actually. #fitness #healthy #workout #freedomfitness #weightloss #weightlosstransformation #igfitness #instafollow #motivation #instagood #jstnutrition #girlgains #girlswholift #skinnycoffeebabes #ulcerativecolitisfighter #colitiswarrior #ostomy #miltonkeynes #fitfam #fitgirl #thisgirlcan #ibd #sheddingforthewedding #anxiety #ptsd #womensfitness #momswithink #gymlife #fitlife #fattofit
So I’ve never ever done a side by side, ever (well that I remember) but left is me Feb ‘13 and right is me Sept ‘17. That wasn’t even at my heaviest on the right but to date from then until now I’ve lost 2st 11lbs. I need to give myself credit for that as at the minute I’m beating myself up after gaining some weight again. Seeing them side by side is like wowsers, never realised the difference. Def saw myself as the 2013 version even to this day. A little bit chuffed actually. #fitness  #healthy  #workout  #freedomfitness  #weightloss  #weightlosstransformation  #igfitness  #instafollow  #motivation  #instagood  #jstnutrition  #girlgains  #girlswholift  #skinnycoffeebabes  #ulcerativecolitisfighter  #colitiswarrior  #ostomy  #miltonkeynes  #fitfam  #fitgirl  #thisgirlcan  #ibd  #sheddingforthewedding  #anxiety  #ptsd  #womensfitness  #momswithink  #gymlife  #fitlife  #fattofit 
⚪️ HICKMAN TROUBLE ⚪️
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We made an unexpected, last minute trip to Johns Hopkins today after talking to Interventional Radiology about my Hickman. The last two weeks one of the lumens has not been flushing and we have been unable to run fluids. Interventional Radiology looked at the line and determined that it needed to come out, so orders were placed and it was removed.
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This was definitely unexpected and much earlier than we anticipated removing it, but you can never be too careful with central lines. I am thankful that it was able to be removed with no complications. It served its purpose while I needed it and now it is time to go off on my own ☺️ (special thanks to my nurse for wrapping me up in a cocoon of warm blankets)
⚪️ HICKMAN TROUBLE ⚪️ . We made an unexpected, last minute trip to Johns Hopkins today after talking to Interventional Radiology about my Hickman. The last two weeks one of the lumens has not been flushing and we have been unable to run fluids. Interventional Radiology looked at the line and determined that it needed to come out, so orders were placed and it was removed. . This was definitely unexpected and much earlier than we anticipated removing it, but you can never be too careful with central lines. I am thankful that it was able to be removed with no complications. It served its purpose while I needed it and now it is time to go off on my own ☺️ (special thanks to my nurse for wrapping me up in a cocoon of warm blankets)
Every day I read social media there is something going on, good news, bad news, people loving or criticizing each other, people competing (especially in the yoga world) without realizing that you only get to live once. There are a lot of people out there suffering with chronic diseases that try their best to have a normal life, so we don’t fall in depression. 
I’ve been leaving with UC for about 5 years, I don’t talk about it so much because I don’t like people to feel sorry about me, but there are days that I just feel so bad about me, how I look if I’m too skinny or look sick and ugly. I try my best to have a normal life and just listen to my body and that’s one of the reasons I practice yoga to enjoy the today because we are not sure of the tomorrow. 
#yoga #ulcerativecolitis #chronicillness #life #skinny #feelsick #depressionsucks #peace #years #feeldown #betterlife #relaxing #moment #yogamat #yogaforeveryone #yogaforever #ulcerativecolitisremission #ulcerativecolitisproblems #ulcerativecolitisawareness #ulcerativecolitiswarrior #ulcerativecolitisfighter
Every day I read social media there is something going on, good news, bad news, people loving or criticizing each other, people competing (especially in the yoga world) without realizing that you only get to live once. There are a lot of people out there suffering with chronic diseases that try their best to have a normal life, so we don’t fall in depression. I’ve been leaving with UC for about 5 years, I don’t talk about it so much because I don’t like people to feel sorry about me, but there are days that I just feel so bad about me, how I look if I’m too skinny or look sick and ugly. I try my best to have a normal life and just listen to my body and that’s one of the reasons I practice yoga to enjoy the today because we are not sure of the tomorrow. #yoga  #ulcerativecolitis  #chronicillness  #life  #skinny  #feelsick  #depressionsucks  #peace  #years  #feeldown  #betterlife  #relaxing  #moment  #yogamat  #yogaforeveryone  #yogaforever  #ulcerativecolitisremission  #ulcerativecolitisproblems  #ulcerativecolitisawareness  #ulcerativecolitiswarrior  #ulcerativecolitisfighter 
CLC MEMBER FEATURE: Hi, from Denmark! My name is Jonas and I’m 29 years old. In 2008, I was diagnosed with Ulcerative colitis. A few months after this diagnosis, I suffered from salmonella. My colon was too infected and a stoma was the only option. I had just finished high school and had my whole life in front of me. I asked myself, “What will I do now?”
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I was told that I should go through 3 operations so I could get rid of the stoma. But spoiler alert: It didn’t go that well. Today I have been through 6 bigger operations in my stomach and countless smaller ones; my stoma is still here and now I don’t have a navel.
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From the beginning, I have been very positive. The stoma saved my life - it didn’t steal my life. The first few years was about experimenting with my stoma, my new life and myself. I needed to find myself and what I was capable of. I began to train, eat cleaner, and think of myself. This was the beginning of a new life for me.
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I have come very far. I could have given up and stayed on my couch and done nothing, but hell no! Today I am in control - it’s not the stoma who decides where my life is going, but me! Of course, this positive thinking did not happen overnight. I have worked very hard to get to where I am.
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Today, I want to inspire others and tell my story about my stoma. Don’t make it a taboo, because it’s not; it saves people’s lives and we are still normal. I’m happy that I have my stoma and I have decided to keep it (instead of trying to get rid off it again).
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Thanks for listening! I hope that one day you can all say, “I decide over my life, not any sickness.” My goal is to be me (not a different me, because I have a stoma) but a new me, because of these new experiences. @jonasjuhlerolsen #chronicloveclub
CLC MEMBER FEATURE: Hi, from Denmark! My name is Jonas and I’m 29 years old. In 2008, I was diagnosed with Ulcerative colitis. A few months after this diagnosis, I suffered from salmonella. My colon was too infected and a stoma was the only option. I had just finished high school and had my whole life in front of me. I asked myself, “What will I do now?” • I was told that I should go through 3 operations so I could get rid of the stoma. But spoiler alert: It didn’t go that well. Today I have been through 6 bigger operations in my stomach and countless smaller ones; my stoma is still here and now I don’t have a navel. • From the beginning, I have been very positive. The stoma saved my life - it didn’t steal my life. The first few years was about experimenting with my stoma, my new life and myself. I needed to find myself and what I was capable of. I began to train, eat cleaner, and think of myself. This was the beginning of a new life for me. • I have come very far. I could have given up and stayed on my couch and done nothing, but hell no! Today I am in control - it’s not the stoma who decides where my life is going, but me! Of course, this positive thinking did not happen overnight. I have worked very hard to get to where I am. • Today, I want to inspire others and tell my story about my stoma. Don’t make it a taboo, because it’s not; it saves people’s lives and we are still normal. I’m happy that I have my stoma and I have decided to keep it (instead of trying to get rid off it again). • Thanks for listening! I hope that one day you can all say, “I decide over my life, not any sickness.” My goal is to be me (not a different me, because I have a stoma) but a new me, because of these new experiences. @jonasjuhlerolsen #chronicloveclub 
A new post is up on my blog about my recent appointment with the orthopaedic specialist for my osteoporosis treatment and a recovery update! Happy Thursday, everyone ☀️
A new post is up on my blog about my recent appointment with the orthopaedic specialist for my osteoporosis treatment and a recovery update! Happy Thursday, everyone ☀️
Pavo+trigo sarraceno+espinacas. Hoy sin aceite de oliva en crudo porque he pasado muy mala noche (en el wc). Estoy echa un trasto, luego igual toca un poco de gym para hacer algo de máquina. #nopuedocorrer #fascitisplantar #fascitis #reposo #motivacion #positivemind  #nevergiveup  #colitisawareness #colitissucks #ulcerativecolitisfighter #ulcerativecolitissucks #colitisulcerosa #chronsandcolitis #autoinmunedisease #autoinmunewarrior #cu #paleo #paleolife #comidareal #realfood #eatrealfood #eatingclean #vidasana #cerrandopico #mentesanacuerposano
Pavo+trigo sarraceno+espinacas. Hoy sin aceite de oliva en crudo porque he pasado muy mala noche (en el wc). Estoy echa un trasto, luego igual toca un poco de gym para hacer algo de máquina. #nopuedocorrer  #fascitisplantar  #fascitis  #reposo  #motivacion  #positivemind  #nevergiveup  #colitisawareness  #colitissucks  #ulcerativecolitisfighter  #ulcerativecolitissucks  #colitisulcerosa  #chronsandcolitis  #autoinmunedisease  #autoinmunewarrior  #cu  #paleo  #paleolife  #comidareal  #realfood  #eatrealfood  #eatingclean  #vidasana  #cerrandopico  #mentesanacuerposano 
“And I finally realized, that all the feeling, wasn’t meant to be numbed out, but felt. Even when it hurt. That was the time to wrap my arms around myself even more.” Embrace by Simi Fromen. | Goodmorning lovely sunshines 😘 Just for your information: every Tuesday I will upload a new blog 🖌 | 📸 by @shotbyrader
“And I finally realized, that all the feeling, wasn’t meant to be numbed out, but felt. Even when it hurt. That was the time to wrap my arms around myself even more.” Embrace by Simi Fromen. | Goodmorning lovely sunshines 😘 Just for your information: every Tuesday I will upload a new blog 🖌 | 📸 by @shotbyrader
This year has been the hardest for me on my health. I was diagnosed with Ulcerative colitis about 6 years ago. Ulcerative Colitis is an Autoimmune disease that attacks the large intestine. (Colon) It causes inflammation with many horrible symptoms. It's been hard on me and my family. I feel like a rat lab trying all this medications to see what works for me. Some have worked for some time then they lose effectiveness. My Gastroenterologist has recommended to take biologics with many side effects including developing some form of cancer it doesn't give any good alternatives. I have tried many supplements to my diet and even CBD oil it helps with the symptoms but what I want is a full remission to be able to feel normal again. This disease has taking over my life completely. I can't socialize much I missed so many important events, birthdays, wedding and gatherings because of it. I can't have it control my life anymore!
#InPainEveryday #UlcerativeColitisFighter #Hope #CantGiveUp #AutoImmuneDisease
This year has been the hardest for me on my health. I was diagnosed with Ulcerative colitis about 6 years ago. Ulcerative Colitis is an Autoimmune disease that attacks the large intestine. (Colon) It causes inflammation with many horrible symptoms. It's been hard on me and my family. I feel like a rat lab trying all this medications to see what works for me. Some have worked for some time then they lose effectiveness. My Gastroenterologist has recommended to take biologics with many side effects including developing some form of cancer it doesn't give any good alternatives. I have tried many supplements to my diet and even CBD oil it helps with the symptoms but what I want is a full remission to be able to feel normal again. This disease has taking over my life completely. I can't socialize much I missed so many important events, birthdays, wedding and gatherings because of it. I can't have it control my life anymore! #InPainEveryday  #UlcerativeColitisFighter  #Hope  #CantGiveUp  #AutoImmuneDisease 
Evening run done.
These past few days has been terrible for me- health wise.
A few days ago I reached out to my fellow prayer warriors to pray for me. 
It’s been rough and very discouraging. Seems like no matter what I can’t get this disease under control. Earlier this year I could run sub 9s and sometimes sub 8s now I can barely do a sub 10. It always seems like I take 2 steps forward and have to take 5 steps back. I’m getting so tired of being sick all the time. I get my treatment next week; I really hope it kicks in fast.  #alphamale #usmcvet #alkebulan #fitness #health #vibramfivefingers #runnersofinstagram #fitdad #vibramfivefingers #nikerunclub #underarmour #aesthetics #blackmen  #ulcerativecolitis #applewatch #ulcerativecolitisfighter #ebonyfitness #blackfitness #weightlossjourney #handsome  #AppleAirPods #ocrtraining #spartanracetraining #marathontraining  #applewatchfitness  #runnerscommunity #strongasoak
Evening run done. These past few days has been terrible for me- health wise. A few days ago I reached out to my fellow prayer warriors to pray for me. It’s been rough and very discouraging. Seems like no matter what I can’t get this disease under control. Earlier this year I could run sub 9s and sometimes sub 8s now I can barely do a sub 10. It always seems like I take 2 steps forward and have to take 5 steps back. I’m getting so tired of being sick all the time. I get my treatment next week; I really hope it kicks in fast. #alphamale  #usmcvet  #alkebulan  #fitness  #health  #vibramfivefingers  #runnersofinstagram  #fitdad  #vibramfivefingers  #nikerunclub  #underarmour  #aesthetics  #blackmen  #ulcerativecolitis  #applewatch  #ulcerativecolitisfighter  #ebonyfitness  #blackfitness  #weightlossjourney  #handsome  #AppleAirPods  #ocrtraining  #spartanracetraining  #marathontraining  #applewatchfitness  #runnerscommunity  #strongasoak 
🔥🔥🔥🔥 gettin them probiotics in my life #kombucha #ulcerativecolitisfighter 🖕🏾👾💩
🎃 PUMPKIN PICKIN’ 🎃
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I ventured out of the house to go pumpkin picking with my sister! I am still really sore, but it was so nice to get out of the house AND not have to worry about finding a restroom. So excited to carve/ paint some pumpkins!
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Happy Wednesday! ☀️
🎃 PUMPKIN PICKIN’ 🎃 . I ventured out of the house to go pumpkin picking with my sister! I am still really sore, but it was so nice to get out of the house AND not have to worry about finding a restroom. So excited to carve/ paint some pumpkins! . Happy Wednesday! ☀️
I’d like to thank my IG buddy, Lisa for helping me create the logo for the little blog I’m putting together about my new normal as an Ostomate! I had such a good time texting her about this! She’s the best! Go check her out, she’s got a great blog about keepin’ it THUGLIFE while raising a family! Thank you again, Lisa! 😁
#ulcerativecolitis #uc #ulcerativecolitisfighter #ibd #ibdwarrior #irritablebowelsyndrome #spoonie #spoonielife #invisibledisease #autoimmune #autoimmunedisease #babe_wita_bag #ostomy #ostomate #ileostomy #nocolonstillrollin #babeswithbags #nevertrustabigbagandasmile
I’d like to thank my IG buddy, Lisa for helping me create the logo for the little blog I’m putting together about my new normal as an Ostomate! I had such a good time texting her about this! She’s the best! Go check her out, she’s got a great blog about keepin’ it THUGLIFE while raising a family! Thank you again, Lisa! 😁 #ulcerativecolitis  #uc  #ulcerativecolitisfighter  #ibd  #ibdwarrior  #irritablebowelsyndrome  #spoonie  #spoonielife  #invisibledisease  #autoimmune  #autoimmunedisease  #babe_wita_bag  #ostomy  #ostomate  #ileostomy  #nocolonstillrollin  #babeswithbags  #nevertrustabigbagandasmile 
So I spoke about my recent struggles with ptsd and decided that maybe noting things down when they happen might help stop the overthinking. Yet again flashbacks started this morning and really, I’m just needing to take control. My mom found me this adorable notebooks ages ago. I have a bit of a thing for cute notebooks, have them everywhere but this has to be one of my favourites. You can’t go wrong with cherry print! So I’ve decided that this little gem is to be my mind on paper god help it. Between my ptsd counselling and a wonderful little book by Helen Kennerley, maybe I might feel like an awesome version of the old me. #ptsd #mentalhealth #healthy #mentalworkout #writing #feels #igfitness #instafollow #motivation #instagood #girlgains #ulcerativecolitisfighter #colitiswarrior #ostomy #miltonkeynes #fitfam #fitgirl #thisgirlcan #ibd #anxiety #cbt #womensfitness #momswithink #stationery #cherryprint #notebooks
So I spoke about my recent struggles with ptsd and decided that maybe noting things down when they happen might help stop the overthinking. Yet again flashbacks started this morning and really, I’m just needing to take control. My mom found me this adorable notebooks ages ago. I have a bit of a thing for cute notebooks, have them everywhere but this has to be one of my favourites. You can’t go wrong with cherry print! So I’ve decided that this little gem is to be my mind on paper god help it. Between my ptsd counselling and a wonderful little book by Helen Kennerley, maybe I might feel like an awesome version of the old me. #ptsd  #mentalhealth  #healthy  #mentalworkout  #writing  #feels  #igfitness  #instafollow  #motivation  #instagood  #girlgains  #ulcerativecolitisfighter  #colitiswarrior  #ostomy  #miltonkeynes  #fitfam  #fitgirl  #thisgirlcan  #ibd  #anxiety  #cbt  #womensfitness  #momswithink  #stationery  #cherryprint  #notebooks 
“A beautiful day begins with a beautiful mindset. When you wake up, take a second to think about what privilege it is to simply be alive and healthy. The moment you start acting like life is blessing. I assure it will start to feel like one. Time spent appreciating, is time worth living.” Goodmorning ❤️ Have you seen my website yet? Check the link in my bio! 🙌🏽 | 📸 by @shotbyrader
“A beautiful day begins with a beautiful mindset. When you wake up, take a second to think about what privilege it is to simply be alive and healthy. The moment you start acting like life is blessing. I assure it will start to feel like one. Time spent appreciating, is time worth living.” Goodmorning ❤️ Have you seen my website yet? Check the link in my bio! 🙌🏽 | 📸 by @shotbyrader
I find myself often apologizing to people when I have to excuse myself, especially during a flare up. It can be embarrassing. I feel the title of this chapter summarizes how I think people see me during a flare up. Over time I have found myself feeling less shame about my disease and I have found being open about it has eliminated stigma. Follow my journey for laughs, information, and advice. -
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#ulcerativecolitis #flareup #flaredown #bathroomproblems #noshame #ulcerativecolitisfighter #crohnsdisease #crohnsandcolitisfoundationofamerica #colitissucks
I find myself often apologizing to people when I have to excuse myself, especially during a flare up. It can be embarrassing. I feel the title of this chapter summarizes how I think people see me during a flare up. Over time I have found myself feeling less shame about my disease and I have found being open about it has eliminated stigma. Follow my journey for laughs, information, and advice. - - - - - - #ulcerativecolitis  #flareup  #flaredown  #bathroomproblems  #noshame  #ulcerativecolitisfighter  #crohnsdisease  #crohnsandcolitisfoundationofamerica  #colitissucks 
Je t'aime @sopranopsy4 
Dans ton concert, tu as parle des personnes qui combattent une maladie. Moi j'ai combattu la mienne. Quand je n'allais pas bien j'écoutais tes chansons et ça me donnait envie de me battre merci à toi. Tu es si humain et naturel, reste comme tu es ❣️
Je t'aime @sopranopsy4 Dans ton concert, tu as parle des personnes qui combattent une maladie. Moi j'ai combattu la mienne. Quand je n'allais pas bien j'écoutais tes chansons et ça me donnait envie de me battre merci à toi. Tu es si humain et naturel, reste comme tu es ❣️
❗️ATTENTION - NEWSSS❗️”You may stumble and fall, you may do it again, and again, and again, and that’s okay. It really is. Just never forget, to get back up and keep going. Always, always, keep going.” - words by Susanne Blumer. Hey there lovely Sunshines ❤️ I know it’s been a while since I’ve really written something underneath my instagram posts. As you might have noticed I deleted all my old posts. I had a three weeks social media break before I did that and started over slowly. I have no regrets, I am happy I did that. I am less addicted to my phone, which is nice considering it occupied my mind a lot. I was finally able to think straight. My dream of writing, sharing my stories, pictures, outfits and things I love was fading for a while. I didn’t knew anymore if it was still something I really wanted, because there are so many who blog or vlog or being an influencer. How could I ever stand out in the crowd? Despite the chaos and the uncertainty in my mind, the dream is still there. There’s so much going on in that creative mind of mine that I’m still feeling the urge to share my thoughts in my own creative way, hoping to inspire you with sharing it all. Although I cannot specify myself in a fitgirl, foodie or bookworm or anything else, I have stopped caring about that. I am all at once and I am an unique human being, as every one else is unique in their own way. Today I almost give on the dream, untill I felt like it was giving up on myself. And I would never want to give up on myself. So here it is: check the link in my bio for my very first own website, where I will write and share everything I love with you ❤️ P.S.: It’s in Dutch and English 🇳🇱🇬🇧 Instagram stays in English 😊| 📸 shot by @shotbyrader
❗️ATTENTION - NEWSSS❗️”You may stumble and fall, you may do it again, and again, and again, and that’s okay. It really is. Just never forget, to get back up and keep going. Always, always, keep going.” - words by Susanne Blumer. Hey there lovely Sunshines ❤️ I know it’s been a while since I’ve really written something underneath my instagram posts. As you might have noticed I deleted all my old posts. I had a three weeks social media break before I did that and started over slowly. I have no regrets, I am happy I did that. I am less addicted to my phone, which is nice considering it occupied my mind a lot. I was finally able to think straight. My dream of writing, sharing my stories, pictures, outfits and things I love was fading for a while. I didn’t knew anymore if it was still something I really wanted, because there are so many who blog or vlog or being an influencer. How could I ever stand out in the crowd? Despite the chaos and the uncertainty in my mind, the dream is still there. There’s so much going on in that creative mind of mine that I’m still feeling the urge to share my thoughts in my own creative way, hoping to inspire you with sharing it all. Although I cannot specify myself in a fitgirl, foodie or bookworm or anything else, I have stopped caring about that. I am all at once and I am an unique human being, as every one else is unique in their own way. Today I almost give on the dream, untill I felt like it was giving up on myself. And I would never want to give up on myself. So here it is: check the link in my bio for my very first own website, where I will write and share everything I love with you ❤️ P.S.: It’s in Dutch and English 🇳🇱🇬🇧 Instagram stays in English 😊| 📸 shot by @shotbyrader
🍩 DOCTORS & DONUTS 🍩
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Started this morning early with an appointment for my osteoporosis! We went over several different options on how to treat my severe osteoporosis that will work best with my current state of health and altered digestive system. This was my first appointment with the specialist and I really liked her! Finding great doctors is a great feeling.
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After my appointment my mom and I stopped to get some of the best donuts from Peace, Love, and Little Donuts! Yum! 😋 Happy Tuesday!
🍩 DOCTORS & DONUTS 🍩 . Started this morning early with an appointment for my osteoporosis! We went over several different options on how to treat my severe osteoporosis that will work best with my current state of health and altered digestive system. This was my first appointment with the specialist and I really liked her! Finding great doctors is a great feeling. . After my appointment my mom and I stopped to get some of the best donuts from Peace, Love, and Little Donuts! Yum! 😋 Happy Tuesday!
It’s always fun exploring flora, check out my blog post in the link
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#flora #guthealth #ulcerativecolitisfighter #ulcerativecolitis #crohnsandcolitisfoundationofamerica #crohnsdisease #crohns #blogger #me #mensstyle #beard
Got up at 5 am to go workout, didn’t feel too well. Laid back down and went back to sleep. Promised myself I’d at l get a workout in this evening. My next treatment is about a week and a half away; my body desperately needs it. #alphamale #usmcvet #alkebulan #fitness #health #vibramfivefingers #runnersofinstagram #fitdad #applewatch #underarmour #gymselfie #aesthetics #blackmen  #ulcerativecolitis #gym #menshealthmagazine #ulcerativecolitisfighter #ebonyfitness #blackfitness #weightlossjourney #handsome #countryboy #mississippi #ocrtraining #spartanracetraining #marathontraining #weightlifting #applewatchfitness  #runnerscommunity
Got up at 5 am to go workout, didn’t feel too well. Laid back down and went back to sleep. Promised myself I’d at l get a workout in this evening. My next treatment is about a week and a half away; my body desperately needs it. #alphamale  #usmcvet  #alkebulan  #fitness  #health  #vibramfivefingers  #runnersofinstagram  #fitdad  #applewatch  #underarmour  #gymselfie  #aesthetics  #blackmen  #ulcerativecolitis  #gym  #menshealthmagazine  #ulcerativecolitisfighter  #ebonyfitness  #blackfitness  #weightlossjourney  #handsome  #countryboy  #mississippi  #ocrtraining  #spartanracetraining  #marathontraining  #weightlifting  #applewatchfitness  #runnerscommunity 
This is one of my favorite quotes. Many of us are going through things that just do not always make sense right now. We are thrown into journeys that we never anticipated experiencing, leaving us feeling really lost at times. But there IS a meaning behind all of this. You may not understand right now, or next month, or even next year. But eventually it will all make sense. Until then: stay strong, surround yourself with the ones you love, and never stop fighting 💜
This is one of my favorite quotes. Many of us are going through things that just do not always make sense right now. We are thrown into journeys that we never anticipated experiencing, leaving us feeling really lost at times. But there IS a meaning behind all of this. You may not understand right now, or next month, or even next year. But eventually it will all make sense. Until then: stay strong, surround yourself with the ones you love, and never stop fighting 💜
🖤 GIRL BOSS 🖤
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Loving this sweater from @shop.bash ! Keeping up with your goals and dreams while battling a chronic illness is never easy. In fact, battling a chronic illness and recovering are full time jobs! The last year, I have been working towards my master’s degree through hospital stays, ambulance rides, and 4 surgeries. I never thought I would be able to still pursue my degree while being so sick, but I just take it one day at a time and do the best that I can.
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My health will always come first, but that doesn’t stop me from pursuing my goals! Happy Monday, everyone! ☀️
🖤 GIRL BOSS 🖤 . Loving this sweater from @shop.bash ! Keeping up with your goals and dreams while battling a chronic illness is never easy. In fact, battling a chronic illness and recovering are full time jobs! The last year, I have been working towards my master’s degree through hospital stays, ambulance rides, and 4 surgeries. I never thought I would be able to still pursue my degree while being so sick, but I just take it one day at a time and do the best that I can. . My health will always come first, but that doesn’t stop me from pursuing my goals! Happy Monday, everyone! ☀️
Since being diagnosed with UC I haven't been able to eat cake for my birthday. However this year, I not only got one cake, I got TWO! (And one had two sides so basically it was three cakes.) They were both #glutenfree, #grainfree and #scd compliant. I cannot believe the kindness of my friends for taking the time and effort to make these. Not to mention they are witch themed! I am so beyond grateful. Thank you thank you thank you! Oh did I mention they were SO delicious? Because they were. The good witch/bad witch cake is a strawberry basil cake with strawberries on one side and blueberries on the other (made by @jenvankaam), and the other one is a vanilla cake with buttercream frosting (made by @laurenanderhands). They were both inspired by @againstallgrain recipes. .
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#glutenonthefritz #glutenfree #grainfree #scd #scddiet #scdlegal #specificcarbohydratediet #paleo #autoimmunepaleo #autoimmunefighter #autoimmunefriendly #ulcerativecolitis #ulcerativecolitisfriendly #ulcerativecolitisfighter #birthday #birthdaycake #paleocake #paleobirthdaycake #mncooking
Since being diagnosed with UC I haven't been able to eat cake for my birthday. However this year, I not only got one cake, I got TWO! (And one had two sides so basically it was three cakes.) They were both #glutenfree , #grainfree  and #scd  compliant. I cannot believe the kindness of my friends for taking the time and effort to make these. Not to mention they are witch themed! I am so beyond grateful. Thank you thank you thank you! Oh did I mention they were SO delicious? Because they were. The good witch/bad witch cake is a strawberry basil cake with strawberries on one side and blueberries on the other (made by @jenvankaam), and the other one is a vanilla cake with buttercream frosting (made by @laurenanderhands). They were both inspired by @againstallgrain recipes. . . . . #glutenonthefritz  #glutenfree  #grainfree  #scd  #scddiet  #scdlegal  #specificcarbohydratediet  #paleo  #autoimmunepaleo  #autoimmunefighter  #autoimmunefriendly  #ulcerativecolitis  #ulcerativecolitisfriendly  #ulcerativecolitisfighter  #birthday  #birthdaycake  #paleocake  #paleobirthdaycake  #mncooking 
💗 THANKFUL 💗
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I was going through the pictures on my phone and found this one that I took with my nurse the day I was discharged. Angie was completing her orientation week in the Spring when I was in the hospital for obstructions and she was my nurse again this Fall. I am so thankful for the nurses like Angie who truly go above and beyond for their patients.
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Thank you, nurses!!
💗 THANKFUL 💗 . I was going through the pictures on my phone and found this one that I took with my nurse the day I was discharged. Angie was completing her orientation week in the Spring when I was in the hospital for obstructions and she was my nurse again this Fall. I am so thankful for the nurses like Angie who truly go above and beyond for their patients. . Thank you, nurses!!
A new post is up on my blog about my recovery so far! The results of my pathology report from my surgery came back this week, revealing severe, acute pouchitis, cryptitis, abscesses, and severe ulceration within my j-pouch.
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It is hard when something you were so hopeful for becomes a loss. I never anticipated to lose my j-pouch, let alone so quickly. But the decision was made with my current and future health in mind and I am so thankful for it. It is only forward from here ☀️
A new post is up on my blog about my recovery so far! The results of my pathology report from my surgery came back this week, revealing severe, acute pouchitis, cryptitis, abscesses, and severe ulceration within my j-pouch. . It is hard when something you were so hopeful for becomes a loss. I never anticipated to lose my j-pouch, let alone so quickly. But the decision was made with my current and future health in mind and I am so thankful for it. It is only forward from here ☀️
Resumen de hoy: tristeza y rabia!!! Y yo pensando que la fascitis iba mejor.. me equivocaba pero bien. Malas sensaciones de por si y además esto.  Reposo y a pensar únicamente en curarme. BKT Zamudio huts! #positivemind  #nevergiveup  #colitisawareness #colitissucks #ulcerativecolitisfighter #ulcerativecolitissucks #colitisulcerosa #chronsandcolitis #autoinmunedisease #autoinmunewarrior #cu #paleo #paleolife #bkt #bktzamudio
So today my better half completed his first 10k charity run. He’s raised over £860 for @willen_hospice and I cannot be more proud of him. Our families were there cheering him on and I can’t express how proud I am of him. In April he couldn’t run 90 seconds, today he completed 10k in 1 hour 8 mins. I’ve seen his confidence soar and seeing his determination and will power, it’s just made me love him more. Well done my amazing man #sheddingforthewedding #fitness #healthy #workout #freedomfitness #weightloss #weightlosstransformation #igfitness #instafollow #motivation #instagood #strava #girlgains #girlswholift #skinnycoffeebabes #ulcerativecolitisfighter #colitiswarrior #ostomy #miltonkeynes #fitfam #fitgirl #thisgirlcan #ibd #skinnycoffeeclub #anxiety #ptsd #womensfitness #momswithink #gymlife #fitlife
So today my better half completed his first 10k charity run. He’s raised over £860 for @willen_hospice and I cannot be more proud of him. Our families were there cheering him on and I can’t express how proud I am of him. In April he couldn’t run 90 seconds, today he completed 10k in 1 hour 8 mins. I’ve seen his confidence soar and seeing his determination and will power, it’s just made me love him more. Well done my amazing man #sheddingforthewedding  #fitness  #healthy  #workout  #freedomfitness  #weightloss  #weightlosstransformation  #igfitness  #instafollow  #motivation  #instagood  #strava  #girlgains  #girlswholift  #skinnycoffeebabes  #ulcerativecolitisfighter  #colitiswarrior  #ostomy  #miltonkeynes  #fitfam  #fitgirl  #thisgirlcan  #ibd  #skinnycoffeeclub  #anxiety  #ptsd  #womensfitness  #momswithink  #gymlife  #fitlife 
🍁 OUT FOR A WALK 🍁
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Went outside to soak up some sunshine and go for a walk with this little guy! It is so nice to get some fresh air and exercise. Every walk is helping me to get stronger!
🍁 OUT FOR A WALK 🍁 . Went outside to soak up some sunshine and go for a walk with this little guy! It is so nice to get some fresh air and exercise. Every walk is helping me to get stronger!
"Choose everyday to forgive yourself. You are human, flawed, and most of all worthy to love." - by Alison Malee.
"Choose everyday to forgive yourself. You are human, flawed, and most of all worthy to love." - by Alison Malee.
Still not feeling that well but I had to get outside to get some fresh air. Spotted some nice chalk art on the trail’s blacktop. It’s autumn but it sure doesn’t feel like it here in this part of Mississippi; still super hot. #countryboy #outdooradventures #naturetrail #mississippi #greenwoodms #health #fitness #autumn #ulcerativecolitis #ulcerativecolitisfighter #yazoorivertrail #superman
☀️ TWO WEEKS POST-OP ☀️
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Today makes two weeks since my j-pouch removal surgery and although it has not been easy, I am so, so thankful. Each day brings less pain and more strength as I rest and walk.
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It is still hard to process everything that has happened in the last three weeks, but I do know that this is all part of my journey. I strive to greet each day with an open mind, positivity, and hope, regardless of how the day before may have gone. When I start to feel disheartened by my current situation I remind myself of just how far I have come the last year and a half. From severe, life-threatening ulcerative colitis to a temporary ileostomy, to a loop ileostomy, to a j-pouch, to chronic pouchitis, to a permanent ileostomy, I have grown with every new challenge.
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Happy Friday, everyone ☀️
☀️ TWO WEEKS POST-OP ☀️ . Today makes two weeks since my j-pouch removal surgery and although it has not been easy, I am so, so thankful. Each day brings less pain and more strength as I rest and walk. . It is still hard to process everything that has happened in the last three weeks, but I do know that this is all part of my journey. I strive to greet each day with an open mind, positivity, and hope, regardless of how the day before may have gone. When I start to feel disheartened by my current situation I remind myself of just how far I have come the last year and a half. From severe, life-threatening ulcerative colitis to a temporary ileostomy, to a loop ileostomy, to a j-pouch, to chronic pouchitis, to a permanent ileostomy, I have grown with every new challenge. . Happy Friday, everyone ☀️
The colonoscopy lies behind me and what should I say: It seems to be Crohns and not culitis 😩😠 During the first colo at the doctors office at the end of August they were only able to take a quick look into my colon (~ 30 cm). Today at the hospital the Prof checked the whole thing and there is partly a very bad inflammation, then there is nothing, then the thing is on fire 🔥 Fuuuuuu Next step: A gastroscopy on Monday, cortisone and every 14 days an injection (don’t ask me what...we’ll discuss about that next week) #morbuscrohn #crohn #crohnsawareness #crohnsandcollitis #ulcerativecolitis #colitisulcerosa #ulcerativecolitiswarrior #ulcerativecolitisfighter #krankenhaus #hospital #ziekenhuis #memyselfandi #fuuuuuuu #mimimi #damnit #snapchat #snapchatfilter #selfie #selfietime
The colonoscopy lies behind me and what should I say: It seems to be Crohns and not culitis 😩😠 During the first colo at the doctors office at the end of August they were only able to take a quick look into my colon (~ 30 cm). Today at the hospital the Prof checked the whole thing and there is partly a very bad inflammation, then there is nothing, then the thing is on fire 🔥 Fuuuuuu Next step: A gastroscopy on Monday, cortisone and every 14 days an injection (don’t ask me what...we’ll discuss about that next week) #morbuscrohn  #crohn  #crohnsawareness  #crohnsandcollitis  #ulcerativecolitis  #colitisulcerosa  #ulcerativecolitiswarrior  #ulcerativecolitisfighter  #krankenhaus  #hospital  #ziekenhuis  #memyselfandi  #fuuuuuuu  #mimimi  #damnit  #snapchat  #snapchatfilter  #selfie  #selfietime 
Hospital diaries 🍀No. 13 Remicade Day. I make it fun 😎🌸 Is this helpful or Im feeling good periodically 🤔 I dont know cuz Sometimes I feel great but latley not so good, and I know there is no cure for Ulcerative colitis but we have to fight to win 🙏🏾 💪🏽 Sending ❤️ love to my warriors outthere fighting ❤️
P.S. Don’t give up 💓🌸 #ulcerativecolitis#ulcerativecolitissurvivor#ulcerativecolitisfighter#warrior#ibd
Hospital diaries 🍀No. 13 Remicade Day. I make it fun 😎🌸 Is this helpful or Im feeling good periodically 🤔 I dont know cuz Sometimes I feel great but latley not so good, and I know there is no cure for Ulcerative colitis but we have to fight to win 🙏🏾 💪🏽 Sending ❤️ love to my warriors outthere fighting ❤️ P.S. Don’t give up 💓🌸 #ulcerativecolitis #ulcerativecolitissurvivor #ulcerativecolitisfighter #warrior #ibd 
Pic is from this summer, but it describes pretty well how I'm feeling right about now, which damn well deserves a #selfie!
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I will NOT apologize for explicit language or my long personal ego-rant in this post, so if that's not your cup of tea: Scroll on. If you're however curious about what can make a grumpy-cat impersonator happy: Read on.
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I am, at the time being - for the very first time in over SIX GODDAMN YEARS -, officially free of any fucking inflammation!
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6 years... It took almost 6 motherfucking years with physical pain, mental exhaustion, little control over my own life and the overarching and growing fear of surgery looming like a freaking boogeyman in the corner of my mind before the UC finally decided to give me a fucking break for a while! Best part? Surgery is completely off the table for the time being! The "irreversible" damages to my colon has actually healed pretty well, almost to the point of "normal"!
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The Remsima works, and I can FINALLY try a maintenance interval of every 8 weeks instead of infusions every freaking month.
Sure, I'm not cured. Sure, fatigue still has the ability to stomp me to the curb like that scene in American History X. Sure, having an allergic reaction to the Remsima, combined with a low-functioning immune-system  at all times ain't always fun. There are still things I'll have to be aware of like sleep and nutrition, and of course the UC and its hidden sideeffects may still kick in whenever and wherever it wants somewhere down the line. That just comes with the package. I know I can deal with it.
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BUT, I got a freaking break! All of that is nothing compared to the alternative, and I'll gladly take it for as long as it lasts! It may be a couple of days, weeks, months, or years - but I will embrace whatever break I can get, however short it might be! At the very least, the highly probable surgery is something I can relax about for the time being. Yeah, I know it doesn't have to be all that bad, but I'm just not ready for it. Some day, but not today.
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For now, I feel like I can BE normal most of the time, not only ACT normal ('ish. Who wants to be completely normal, anyway?). That's good enough for me.
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Rant ove
Pic is from this summer, but it describes pretty well how I'm feeling right about now, which damn well deserves a #selfie ! - I will NOT apologize for explicit language or my long personal ego-rant in this post, so if that's not your cup of tea: Scroll on. If you're however curious about what can make a grumpy-cat impersonator happy: Read on. - I am, at the time being - for the very first time in over SIX GODDAMN YEARS -, officially free of any fucking inflammation! - 6 years... It took almost 6 motherfucking years with physical pain, mental exhaustion, little control over my own life and the overarching and growing fear of surgery looming like a freaking boogeyman in the corner of my mind before the UC finally decided to give me a fucking break for a while! Best part? Surgery is completely off the table for the time being! The "irreversible" damages to my colon has actually healed pretty well, almost to the point of "normal"! - The Remsima works, and I can FINALLY try a maintenance interval of every 8 weeks instead of infusions every freaking month. Sure, I'm not cured. Sure, fatigue still has the ability to stomp me to the curb like that scene in American History X. Sure, having an allergic reaction to the Remsima, combined with a low-functioning immune-system at all times ain't always fun. There are still things I'll have to be aware of like sleep and nutrition, and of course the UC and its hidden sideeffects may still kick in whenever and wherever it wants somewhere down the line. That just comes with the package. I know I can deal with it. - BUT, I got a freaking break! All of that is nothing compared to the alternative, and I'll gladly take it for as long as it lasts! It may be a couple of days, weeks, months, or years - but I will embrace whatever break I can get, however short it might be! At the very least, the highly probable surgery is something I can relax about for the time being. Yeah, I know it doesn't have to be all that bad, but I'm just not ready for it. Some day, but not today. - For now, I feel like I can BE normal most of the time, not only ACT normal ('ish. Who wants to be completely normal, anyway?). That's good enough for me. - Rant ove
No more isolation at the hospital 😊 But a colonoscopy tomorrow morning. Just drank this really disgusting shit...fuck, we can fly to the moon but making medication that tastes like chocolate, ice cream, cookies etc is not possible? #frankfurt #frankfurtginnheim #ginnheimerspargel #skyline #frankfurtskyline #mainhattan #frankfurtsmmain #roomwithaview #ced #ibd #colitisulcerosa #ulcerativecolitis #ulcerativecolitissucks #ulcerativecolitisfighter #ulcerativecolitiswarrior #sky #heaven #himmel
No more isolation at the hospital 😊 But a colonoscopy tomorrow morning. Just drank this really disgusting shit...fuck, we can fly to the moon but making medication that tastes like chocolate, ice cream, cookies etc is not possible? #frankfurt  #frankfurtginnheim  #ginnheimerspargel  #skyline  #frankfurtskyline  #mainhattan  #frankfurtsmmain  #roomwithaview  #ced  #ibd  #colitisulcerosa  #ulcerativecolitis  #ulcerativecolitissucks  #ulcerativecolitisfighter  #ulcerativecolitiswarrior  #sky  #heaven  #himmel 
So happy to be home 🏡 after a 24 hr delay. Hanging with my loves and friends 😊🐶 Grateful! ❤️ #livingwithpurpose #purposefulliving  #ibdtravels #ibdwarrior #ulcerativecolitisfighter #lovebeingmyownceo #traveladventures
I'm on stelara right now and I don't think it's working for me, lost 14lbs in a week😞😬#crohnsdisease #crohns #ulcerativecolitis #ulcerativecolitisfighter #crohns_fighters #destruction #survivor #destroyer #stelara #stelarainjection
Last night my dad and I went to Restaurant Alma to celebrate my birthday. They have a set three course menu. Usually fancy places like this aren't doable for me. However, not only did they have a gluten free menu, they also had a vegetarian, vegan, and dairy free menu to select from. Was it one of the greatest meals I've ever have? I'm going to say yes. I had something called a sfumato, and while I still don't really know what it is, I didn't want to ever stop eating it. And they had a gluten free and dairy free dessert selection too! I had the panna cotta. Thank you, Restaurant Alma! You made this bday gal rull rull happy! .
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#glutenonthefritz #glutenfree #grainfree #dairyfree #vegitarian #scd #scdlegal #scddiet #specificcarbohydratediet #paleo #autoimmunepaleo #autoimmunefighter #autoimmunefriendly #ulcerativecolitis #ulcerativecolitisfighter #ulcerativecolitisfriendly #sfumato #pannacotta #restauantalma #mncooking
Last night my dad and I went to Restaurant Alma to celebrate my birthday. They have a set three course menu. Usually fancy places like this aren't doable for me. However, not only did they have a gluten free menu, they also had a vegetarian, vegan, and dairy free menu to select from. Was it one of the greatest meals I've ever have? I'm going to say yes. I had something called a sfumato, and while I still don't really know what it is, I didn't want to ever stop eating it. And they had a gluten free and dairy free dessert selection too! I had the panna cotta. Thank you, Restaurant Alma! You made this bday gal rull rull happy! . . . . . #glutenonthefritz  #glutenfree  #grainfree  #dairyfree  #vegitarian  #scd  #scdlegal  #scddiet  #specificcarbohydratediet  #paleo  #autoimmunepaleo  #autoimmunefighter  #autoimmunefriendly  #ulcerativecolitis  #ulcerativecolitisfighter  #ulcerativecolitisfriendly  #sfumato  #pannacotta  #restauantalma  #mncooking 
A short hello and a short update: I‘ve been moved to a different hospital on Monday. Since then I‘m on isolation 😫 Feeling like a prisoner. WiFi connection is 💩, the food is 💩, I sleep a lot because of the medication 😴 I will have an appointment with the head physician as soon as I’m off the isolation; Google says he is the best gastroenterologist in Germany so let’s give him a try 🤗 #ulcerativecolitiswarrior #ulcerativecolitisfighter #ulcerativecolitissucks #colitisulcerosa #ulcerativecolitis #ced #ibd #markuskrankenhaus #frankfurt #frankfurtammain #frankfurtginnheim #memyselfandi #selfie #sick #ill #krankenhaus #hospital #ziekenhuis #mimimimimi
A short hello and a short update: I‘ve been moved to a different hospital on Monday. Since then I‘m on isolation 😫 Feeling like a prisoner. WiFi connection is 💩, the food is 💩, I sleep a lot because of the medication 😴 I will have an appointment with the head physician as soon as I’m off the isolation; Google says he is the best gastroenterologist in Germany so let’s give him a try 🤗 #ulcerativecolitiswarrior  #ulcerativecolitisfighter  #ulcerativecolitissucks  #colitisulcerosa  #ulcerativecolitis  #ced  #ibd  #markuskrankenhaus  #frankfurt  #frankfurtammain  #frankfurtginnheim  #memyselfandi  #selfie  #sick  #ill  #krankenhaus  #hospital  #ziekenhuis  #mimimimimi 
"I don't want a lover that tries to tame me. I don't want someone who holds on me tightly either. I need someone who understands that I am my own person. An individual who has a life outside of love, and even though love is important, so is my personal space. It's okay for me to want solitude, and I refuse to apologize or feel bad about it just to comfort your insecurities. Healthy relationships don't work that way." - by Yasmin A. Gomez (words with yaz).
"I don't want a lover that tries to tame me. I don't want someone who holds on me tightly either. I need someone who understands that I am my own person. An individual who has a life outside of love, and even though love is important, so is my personal space. It's okay for me to want solitude, and I refuse to apologize or feel bad about it just to comfort your insecurities. Healthy relationships don't work that way." - by Yasmin A. Gomez (words with yaz).
Vergiss alle Gründe, weshalb du scheitern könntest und konzentriere dich auf den Grund, warum du es schaffen wirst!👌🏽💪🏼💜 #ulcerativecolitis #ulcerativecolitisproblems #ulcerativecolitisfighter #ulcerativecolitisawareness #ulcerativecolitiswarrior #autoimmunedisease #chronicillness #chronicpain #ibd #sponie#colitisulcerosa #colitisulcerosafighter #staystrong #strenght #hope #trust
Candied walnuts! So easy to make. 1 cup raw walnuts, 1 teaspoon cinnamon, 3 TB honey, and a pinch of salt. Mix them all together in a bowl and then put the mixture on a baking sheet. Set the oven for 350 F and bake for 15-20 minutes and tossing occasionally. I haven't had kettle corn in over 3 years, but honestly the taste and texture was basically the same to me. A great treat for a fall day! .
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#glutenonthefritz #glutenfree #grainfree #soyfree #dairyfree #scd #scddiet #scdlegal #specificcarbohydratediet #paleo #autoimmunepaleo #autoimmunefighter #autoimmunefriendly #ulcerativecolitis #ulcerativecolitisfighter #ulcerativecolitisfriendly #candiedwalnuts #paleocandiedwalnuts #mncooking #snacks
Candied walnuts! So easy to make. 1 cup raw walnuts, 1 teaspoon cinnamon, 3 TB honey, and a pinch of salt. Mix them all together in a bowl and then put the mixture on a baking sheet. Set the oven for 350 F and bake for 15-20 minutes and tossing occasionally. I haven't had kettle corn in over 3 years, but honestly the taste and texture was basically the same to me. A great treat for a fall day! . . . . #glutenonthefritz  #glutenfree  #grainfree  #soyfree  #dairyfree  #scd  #scddiet  #scdlegal  #specificcarbohydratediet  #paleo  #autoimmunepaleo  #autoimmunefighter  #autoimmunefriendly  #ulcerativecolitis  #ulcerativecolitisfighter  #ulcerativecolitisfriendly  #candiedwalnuts  #paleocandiedwalnuts  #mncooking  #snacks 
I’M GOING HOME 💜
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It has been a long last week and a half full of many ups and downs, but today I finally get to go home and I could not be more excited. Here’s to a new beginning with my ileostomy and the road to full recovery and a healthy life.
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Thanks for everything, Johns Hopkins.
I’M GOING HOME 💜 . It has been a long last week and a half full of many ups and downs, but today I finally get to go home and I could not be more excited. Here’s to a new beginning with my ileostomy and the road to full recovery and a healthy life. . Thanks for everything, Johns Hopkins.
And when I close my eyes, clap the heels of the slippers together three times and repeat the phrase „There is no place like home“...then I‘ll be back at Kansas with Toto, my aunt and my uncle 😂 👠  #wizardofoz #wizardofozfan #zauberervonoz #rubyslippers #shoes #fashion #krankenhaus #hospital #ziekenhuis #colitisulcerosa #ulcerativecolitis #ulcerativecolitiswarrior #ulcerativecolitisfighter #frankfurtammain #frankfurt #frankfurtnordend
So as Sunday mornings go, this one was pretty lovely after a solid 7 hours sleep! Nice cup of @skinnycoffeeclub the gym and a nice 4.5k overlooking Willen. Feeling pretty good for a super busy Sunday #sheddingforthewedding #fitness #healthy #workout #freedomfitness #weightloss #weightlosstransformation #igfitness #instafollow #motivation #instagood #strava #girlgains #girlswholift #skinnycoffeebabes #ulcerativecolitisfighter #colitiswarrior #ostomy #miltonkeynes #fitfam #fitgirl #thisgirlcan #ibd #skinnycoffeeclub #anxiety #ptsd #womensfitness #momswithink #gymlife #fitlife
So as Sunday mornings go, this one was pretty lovely after a solid 7 hours sleep! Nice cup of @skinnycoffeeclub the gym and a nice 4.5k overlooking Willen. Feeling pretty good for a super busy Sunday #sheddingforthewedding  #fitness  #healthy  #workout  #freedomfitness  #weightloss  #weightlosstransformation  #igfitness  #instafollow  #motivation  #instagood  #strava  #girlgains  #girlswholift  #skinnycoffeebabes  #ulcerativecolitisfighter  #colitiswarrior  #ostomy  #miltonkeynes  #fitfam  #fitgirl  #thisgirlcan  #ibd  #skinnycoffeeclub  #anxiety  #ptsd  #womensfitness  #momswithink  #gymlife  #fitlife 
Got a little carried away in the gym earlier. I am SORE. Took a long relaxing shower before leaving the gym and enjoyed the walk home. Unfortunately it’s starting to feel like I might be going into another Ulcerative Colitis flare up. I’m not sure how much longer I can keep this up before my next treatment. #alphamale #usmcvet #alkebulan #fitness #health #vibramfivefingers #runnersofinstagram #fitdad #applewatch #underarmour #gymselfie #aesthetics #blackmen  #ulcerativecolitis #gym #menshealthmagazine #ulcerativecolitisfighter #ebonyfitness #blackfitness #weightlossjourney #handsome #countryboy #mississippi #ocrtraining #spartanracetraining #marathontraining #weightlifting #applewatchfitness  #runnerscommunity #strongasoak
Got a little carried away in the gym earlier. I am SORE. Took a long relaxing shower before leaving the gym and enjoyed the walk home. Unfortunately it’s starting to feel like I might be going into another Ulcerative Colitis flare up. I’m not sure how much longer I can keep this up before my next treatment. #alphamale  #usmcvet  #alkebulan  #fitness  #health  #vibramfivefingers  #runnersofinstagram  #fitdad  #applewatch  #underarmour  #gymselfie  #aesthetics  #blackmen  #ulcerativecolitis  #gym  #menshealthmagazine  #ulcerativecolitisfighter  #ebonyfitness  #blackfitness  #weightlossjourney  #handsome  #countryboy  #mississippi  #ocrtraining  #spartanracetraining  #marathontraining  #weightlifting  #applewatchfitness  #runnerscommunity  #strongasoak 
Oh well, here we are again. Since the last weekend the 💩 was back (not too often though but with loads of blood) but the pain got even worse than the last time. This morning I couldn’t even get out of bed because it hurt so much. My CRP value is somewhat in the 💯 (normal is 5 or lower), I have a fever 🤒 and my blood pressure is beyond low. Hope the pain meds will work soon; next thing is 50 mg cortisone via IV #colitisulcerosa #ulcerativecolitis #ulcerativecolitiswarrior #ulcerativecolitisfighter #ulcerativecolitissucks #ibd #ced #fever #fieber #sick #ill #krank #hospital #krankenhaus #ziekenhuis #frankfurt #frankfurtnordend #frankfurtammain #mainhattan #hessen #deutschland #germany
Oh well, here we are again. Since the last weekend the 💩 was back (not too often though but with loads of blood) but the pain got even worse than the last time. This morning I couldn’t even get out of bed because it hurt so much. My CRP value is somewhat in the 💯 (normal is 5 or lower), I have a fever 🤒 and my blood pressure is beyond low. Hope the pain meds will work soon; next thing is 50 mg cortisone via IV #colitisulcerosa  #ulcerativecolitis  #ulcerativecolitiswarrior  #ulcerativecolitisfighter  #ulcerativecolitissucks  #ibd  #ced  #fever  #fieber  #sick  #ill  #krank  #hospital  #krankenhaus  #ziekenhuis  #frankfurt  #frankfurtnordend  #frankfurtammain  #mainhattan  #hessen  #deutschland  #germany 
Happy World Ostomy Day to each and every one of the brave men and women who live their lives with an ostomy. My ostomy saved my life and I will forever be thankful for my second chance at life 💜
Happy World Ostomy Day to each and every one of the brave men and women who live their lives with an ostomy. My ostomy saved my life and I will forever be thankful for my second chance at life 💜