Meet Bronci the bear.
So Sunday night I had my very first ride in the back of an ambulance (something makes me think it won't be my last) and also had my first experience of how our A&E give a teddy bear to every child who goes through there (what a sweet gesture) so to back track, Keldan had come down with a slight cold on Thursday and as the weekend progressed he just wasn't himself, I took him to the local walk in clinic (for me over an hour on the bus) on the Sunday day as he wasn't himself, it was there he was diagnosed with Bronchilitis, the doc prescribed Antibiotics and an inhaler, so came home and carried on, as the afternoon/eve progressed he was just getting worse, He cried non stop for hours and for someone who very rarely cries this was heart breaking, he also wasn't responding to anything I tried, by 9pm I was really starting to panic as to what I should do (don't drive and home alone with the 3 boys while hubby was away) messaged a friend and she came over so I called 111 our out of hours helpline, they decided after a series of questions that they needed to send an ambulance, que massive panic 😔 messaged another friend to see if they could come and watch my 2 other boys, so trip up to the hospital where he was also diagnosed with Croup and given a liquid steroid, we were then allowed to go home with 48hr access to the children's ward of things changed, needless to say the weekend has been incredibly stressful, why is it when your partner goes away (like rarely ever happens) that's when the s@#t hits the fan, all 3 boys have been unwell and needy and then Kel just wanted to take the crown lol. Hoping were coming out the other side now, just have a very sad little man very unsettled when awake, don't think I've ever felt so emotionally battered as I did these last few days, just want my happy healthy little man back and to see his beautiful smile again 💙💛 #DownSyndrome#downsyndromeawareness#upwithdowns#theluckyfew#warrior#blessing#downsyndromelove#downsyndromerocks#T21#trisomy21#nothingdownaboutit#morealikethandiffernt#baby#cute#luckymumma#blueeyes#instababies#instapicoftheday#followme#igbabies#childrenphoto#beautiful
💙💛💙💛 As Down Syndrome Awareness month comes to an end, I wanted to finish with this post and just THANK all of our friends and family for all of the sweet comments and support. I post about DS often because my goal is to educate and inspire others going through a similar situation. To let them know that at the time of diagnosis, it might be hard, you might be in denial and you might not understand God's plan. But just know that you are going to be the best parents to a child who just needs to be loved and it is all going to be okay!! THIS is Pierce. He is funny, adventurous, happy, smart, kind and curious. There is nothing down about him!!! .
When we received his diagnosis, it was HARD. We hadn't been around anyone with Down Syndrome. We were unsure what the future held. All throughout my pregnancy we envisioned who our little boy was going to be and what he was going to do. We had his future already planned and he wasn't even born yet!! As hard as it is to say now, when we thought of our future this little man is not the human we envisioned but clearly God had a different plan for us and I am SO GLAD he did.🙏🙏🙏
THIS boy is capable of so much and he has given us a new outlook on life by just being born. He has molded us to not stress over the little things, to care less of what other people think, to celebrate life as it is, to love unconditionally and to find joy in each moment. There is nothing quite like the love of such a sweet and pure spirit and we are so happy he is ours. 💙💛💙💛 #PerfectlyPierce#thisishappiness
She eats rainbows for breakfast! 🌈 My niece Quinn, was wearing her rainbow shirt when we noticed a light refraction coming through the windows and dancing all over her face. Some people chase rainbows; but rainbows chase Quinn! 💖
ps October is Down Syndrome awareness month. DS happens when a baby has an extra bit (or more) of chromosome 21, and it’s the most common chromosomal condition–one in 700 babies have it. That extra bit can often lead to an extra-loving personality, as in our Quinnie-baby’s case. #allthelove#chasetherainbow
Down Syndrome Awareness FACT:
Advancements in modern medicine can be an amazing thing. The fact that Down Syndrome can be detected in an unborn child by looking at just a single drop of the expectant mother’s blood is incredible! And for those who choose to do prenatal testing, these tests can provide important information very early in the pregnancy, giving the parents ample time to research and prepare for their precious new arrival. Unfortunately however, it is reported that, worldwide, about 90% of mothers who receive a prenatal diagnosis of Down Syndrome choose to terminate the pregnancy. In the U.S. that number has been reported at 67%. Something to remember---Prenatal testing can predict that your baby could have Down Syndrome. But it won’t tell you how incredibly amazing your child will be! It can’t tell you that your heart will feel like bursting out of your chest the first time you see them smile. And again at their first laugh, and over and over again with every milestone they achieve! It can’t tell you that your child will radiate pure joy that is infectious to everyone around them! That you’ll find a tribe in the Down Syndrome community that will offer you never-ending support, encouragement, and love. Friends who you may never meet in person, but will cry with you on your hard days, and celebrate with you on your best! These tests can’t tell you that your family will actually become closer than ever, and that siblings (if they have them) will develop an overwhelming sense of acceptance and pride that will be contagious to their peers. That a child with Down Syndrome is not a burden, but a blessing! And that their presence on this earth, will make it a better place. That your child is absolutely perfect, exactly the way they are!
My hope is that my posts and pictures, although maybe a bit excessive, can shed some positive light on what it means to raise a child with Down Syndrome. And maybe, this light will reach a mama who’s struggling with the fear of a prenatal diagnosis. And maybe, just maybe, it will save a life!
Yes, there have been way more emotional breakdowns preluded with and followed by uncertainty and fear of the unknown that I wish I could take back. I am so grateful to have had the time to go through the natural grieving processes before he arrived. He was welcomed with so much joy, support and love when he did, because we had heard all the scary statistics, odds and outcomes we may face. We had heard them, mourned the loss of a "normal" son and moved ahead and away from that doubt and fear by the time he arrived. We have been blessed with ECI and a fabulous pediatrician who have not sugar coated his diagnosis of DS in the slightest. They have guided us in parenting and teaching our son and offered hope and support. I honestly could have used this care and guidance with all 5 of mine! Teddy is almost 2 1/2. He is right on target physically, mentally, and cognitively with 84 out of 100 "normal" children his age. I offer this as hope to any who may be receiving the news that their baby has DS today. Our diagnosis was grim, I'm so grateful every day we were able to move from the darkness and see His light. Every life has a purpose. I love, love, love watching Teddy's unfold. #downsyndromeawarenessmonth#downsyndrome#upwithdowns @dsastx