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#vasovagalsyncope medias

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Thank you Gran and Grandad for my new bedspread and sheets! (Early birthday present.) I love them so much! 😍 Can’t wait to see you again!
Thank you Gran and Grandad for my new bedspread and sheets! (Early birthday present.) I love them so much! 😍 Can’t wait to see you again!
Me after a long day with first port access leading to vasovagal response which led to rehydration. It was not easy today. #cvidwarrior #mastocytosiswarrior #chestport #vasovagalsyncope #vagusnerve
My glasses were the other guy. And they definitely took out a bit on their way to very forced retirement. I'm stoked to see if I get a shiner in time for my double on Thanksgiving.

#faintingisfun #guessthisisathingnow #blindnow #vasovagalsyncope #liketotallyunabletofunction #somanyselfies
My best friend is the BEST! She bought me an early Christmas present, a brand new heated blanket!!! 💜💜💜💜 I have been really enjoying it on these cold nights....esp since my thyroid has made regulating my temperature even harder to do. #heatingblanket #winterisntmyfriend #alwaysfreezing #chronicillness #chronicpain #invisibleillness #spoonie #posturalorthostatictachycardiasyndrome #pots #dysautonomia #tos #thoracicoutletsyndrome #crps #complexregionalpainsyndrome #occipitalneuralgia #vasovagalsyncope #mitralvalveprolapse #raynauds #spinalstenosis #arthritis #anxiety #ptsd #degenerativediscdisease #bursitis #tmj #hypothyroidism #hashimotos #autoimmune #multichemicalsensitivitydisorder #chronicpainprincess
My best friend is the BEST! She bought me an early Christmas present, a brand new heated blanket!!! 💜💜💜💜 I have been really enjoying it on these cold nights....esp since my thyroid has made regulating my temperature even harder to do. #heatingblanket  #winterisntmyfriend  #alwaysfreezing  #chronicillness  #chronicpain  #invisibleillness  #spoonie  #posturalorthostatictachycardiasyndrome  #pots  #dysautonomia  #tos  #thoracicoutletsyndrome  #crps  #complexregionalpainsyndrome  #occipitalneuralgia  #vasovagalsyncope  #mitralvalveprolapse  #raynauds  #spinalstenosis  #arthritis  #anxiety  #ptsd  #degenerativediscdisease  #bursitis  #tmj  #hypothyroidism  #hashimotos  #autoimmune  #multichemicalsensitivitydisorder  #chronicpainprincess 
Mom says I'm not as photogenic as my sister. Can't help all I wanna do is give kisses 💋 we were on our way to the dog park! Had to leave in less than 30 mins. Moms pulse was 144 and rising. Also had a corgi try to attack me multiple times. On the way to the car her heart rate dropped to 40 and she felt super faint. Tachycardic and bradycardic minutes apart is taxing on my moms body. Now she needs to rest while Lilo takes care of her. #dogpark #carrides #yellowlabpuppy #servicedog #servicedogintraining #servicedoglife #tachycardia #bradycardia #vasovagalsyncope #PoTS 
Follow our pawtners: @ohana_the_service_dog
@service.dutchie.diederik
@seb4helping
@capone_myfurryangel @future_service_dog_aslan 
@raiventheshepherd
Mom says I'm not as photogenic as my sister. Can't help all I wanna do is give kisses 💋 we were on our way to the dog park! Had to leave in less than 30 mins. Moms pulse was 144 and rising. Also had a corgi try to attack me multiple times. On the way to the car her heart rate dropped to 40 and she felt super faint. Tachycardic and bradycardic minutes apart is taxing on my moms body. Now she needs to rest while Lilo takes care of her. #dogpark  #carrides  #yellowlabpuppy  #servicedog  #servicedogintraining  #servicedoglife  #tachycardia  #bradycardia  #vasovagalsyncope  #PoTS  Follow our pawtners: @ohana_the_service_dog @service.dutchie.diederik @seb4helping @capone_myfurryangel @future_service_dog_aslan @raiventheshepherd
At ✨Chronic Hope Jewelry✨ (@chronichopejewelry), I raise awareness for chronic pain/illness and mental illness through social media. I also donate a percentage of my profits to the Ehlers Danlos Society & NAMI. So each piece that you purchase makes a difference in the fight against chronic illness!🎗View my work at etsy.com/shop/chronichopejewelry. You won’t be disappointed! ♥️
At ✨Chronic Hope Jewelry✨ (@chronichopejewelry), I raise awareness for chronic pain/illness and mental illness through social media. I also donate a percentage of my profits to the Ehlers Danlos Society & NAMI. So each piece that you purchase makes a difference in the fight against chronic illness!🎗View my work at etsy.com/shop/chronichopejewelry. You won’t be disappointed! ♥️
Back home w/ a sleepy kitty on my lap❤️
Thank you to everyone who reached out to me yesterday. Love you guys💞
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Unfortunately the hospital couldn’t do anything to help. They did one ultrasound and said I was “fine” and “in good condition”, so they discharged me. Honestly, I don’t think I trust them anymore. They’ve falsified my records way too many times just to get me out of the hospital w/o admitting that they don’t know what’s wrong w/ me.. And the nurses for the most part are just plain ignorant.. they remind me of those trolls I get that try to tell me I can be cured w/ positivity or that I’m just plain faking it🙄.. anyway enough ranting.
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I will call my gastroenterologist first thing Monday morning and see what they can do🤞🏼
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Thanks again for all the love. It really does mean a lot to me.❤️
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#cat #cats #instacat #catsofinstagram #ragdollcat #ragdollsofinstagram #sleepycat #catlove #cattherapy #chronicpainwarrior #chronicillnesswarrior #invisibleillnesswarrior #spoonielife #spooniewarrior #spoonieproblems #giissues #gastrointestinal #gastrointestinalissues #sick #vasovagalsyncope
Back home w/ a sleepy kitty on my lap❤️ Thank you to everyone who reached out to me yesterday. Love you guys💞 . Unfortunately the hospital couldn’t do anything to help. They did one ultrasound and said I was “fine” and “in good condition”, so they discharged me. Honestly, I don’t think I trust them anymore. They’ve falsified my records way too many times just to get me out of the hospital w/o admitting that they don’t know what’s wrong w/ me.. And the nurses for the most part are just plain ignorant.. they remind me of those trolls I get that try to tell me I can be cured w/ positivity or that I’m just plain faking it🙄.. anyway enough ranting. . I will call my gastroenterologist first thing Monday morning and see what they can do🤞🏼 . Thanks again for all the love. It really does mean a lot to me.❤️ . #cat  #cats  #instacat  #catsofinstagram  #ragdollcat  #ragdollsofinstagram  #sleepycat  #catlove  #cattherapy  #chronicpainwarrior  #chronicillnesswarrior  #invisibleillnesswarrior  #spoonielife  #spooniewarrior  #spoonieproblems  #giissues  #gastrointestinal  #gastrointestinalissues  #sick  #vasovagalsyncope 
ED.. still passing out constantly and having serious worsening GI issues.
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I can’t figure out if it’s my stomach, pancreas, gallbladder, small intestine.. etc.. I just don’t know.. but eating and drinking enough is getting more and more difficult w/ each passing day.
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They brought my HR and blood pressure down w/ medicine and fluids, and I’ll be getting an abdominal ultrasound, but if they can’t figure it out I’ll have to get ahold of my gastroenterologist sooner than scheduled. I think I most likely need an endoscopy.
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Praying things subside, so I can hold on and at least get through thanksgiving w/ the family🙏🏼
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#hospital #hospitallife #er #ervisit #ed #emergencyroom #gastrointestinal #giissues #sick #vasovagalsyncope #chronicpainwarrior #chronicillnesswarrior #invisibleillnesswarrior #spoonielife #spooniewarrior
ED.. still passing out constantly and having serious worsening GI issues. . I can’t figure out if it’s my stomach, pancreas, gallbladder, small intestine.. etc.. I just don’t know.. but eating and drinking enough is getting more and more difficult w/ each passing day. . They brought my HR and blood pressure down w/ medicine and fluids, and I’ll be getting an abdominal ultrasound, but if they can’t figure it out I’ll have to get ahold of my gastroenterologist sooner than scheduled. I think I most likely need an endoscopy. . Praying things subside, so I can hold on and at least get through thanksgiving w/ the family🙏🏼 . #hospital  #hospitallife  #er  #ervisit  #ed  #emergencyroom  #gastrointestinal  #giissues  #sick  #vasovagalsyncope  #chronicpainwarrior  #chronicillnesswarrior  #invisibleillnesswarrior  #spoonielife  #spooniewarrior 
Trying to be pretty when you don’t feel good sucks. Thankfully I️ got @thekatvond backing me up: it’s a @katvondbeauty day for sureeee. 
#mua 
#makeupartist 
#warpaint 
#invisibleillness 
#vasovagalsyncope 
#posturalorthostatictachycardiasyndrome
#whatdoesntkillyou 
#katvond 
#katvondbeauty
Went for my tilt table test today. Basically I lie down on a table, they tilt me up and I have to stay like that for 40 minutes and they monitor my blood pressure and heart rate. I started to get my symptoms 16 minutes in so they had to lie me back down, turns out my blood pressure dropped quite a lot, which is why I suffer with #VasovagalSyncope - Whenever I walk or stand for too long, my blood pressure drops and causes me to feel dizzy and sometimes faint. Gotta wait to see what the doctor says now, and to see what the next step is.

I’m so fed up with having this condition. It literally stops me from doing anything, and also limits my job options as well, and just feeling like complete crap everyday, having to explain over and over again what’s wrong with me, and people probably thinking I’m making it up.
Went for my tilt table test today. Basically I lie down on a table, they tilt me up and I have to stay like that for 40 minutes and they monitor my blood pressure and heart rate. I started to get my symptoms 16 minutes in so they had to lie me back down, turns out my blood pressure dropped quite a lot, which is why I suffer with #VasovagalSyncope  - Whenever I walk or stand for too long, my blood pressure drops and causes me to feel dizzy and sometimes faint. Gotta wait to see what the doctor says now, and to see what the next step is. I’m so fed up with having this condition. It literally stops me from doing anything, and also limits my job options as well, and just feeling like complete crap everyday, having to explain over and over again what’s wrong with me, and people probably thinking I’m making it up.
You never know what someone is going through ♥️🎗🥄
You never know what someone is going through ♥️🎗🥄
WHY DID YOU STOP PETTING ME MOM. Also, on a side note, got a call from moms case manager. The doctor got her heart monitor test results back and it shows a ton of tachycardia moments and a good amount of bradycardia moments as well. It's looking like on top of her Vasovagal Syncope she will more than likely have POTS as well. Waiting for a tilt table confirmation for POTS. Fingers crossed for any kind of results. #ohgoodanotherfaintingdisorder #morediagnoses #servicedog #paindoctor  #blacklabmix #vasovagalsyncope #pots #fainting #posturalorthostatictachycardiasyndrome 
Follow our pawtners: @ohana_the_service_dog
@service.dutchie.diederik
@seb4helping
@capone_myfurryangel @future_service_dog_aslan
WHY DID YOU STOP PETTING ME MOM. Also, on a side note, got a call from moms case manager. The doctor got her heart monitor test results back and it shows a ton of tachycardia moments and a good amount of bradycardia moments as well. It's looking like on top of her Vasovagal Syncope she will more than likely have POTS as well. Waiting for a tilt table confirmation for POTS. Fingers crossed for any kind of results. #ohgoodanotherfaintingdisorder  #morediagnoses  #servicedog  #paindoctor  #blacklabmix  #vasovagalsyncope  #pots  #fainting  #posturalorthostatictachycardiasyndrome  Follow our pawtners: @ohana_the_service_dog @service.dutchie.diederik @seb4helping @capone_myfurryangel @future_service_dog_aslan
You never know what someone is going through. ♥️🎗🥄
You never know what someone is going through. ♥️🎗🥄
To all you chronic illness warriors out there - you got this ♥️🥄🥄🥄🥄🥄
To all you chronic illness warriors out there - you got this ♥️🥄🥄🥄🥄🥄
About 2 weeks ago I promised to share a few chronic illness books that I have read and have encouraged me.....then I forgot. 🤦🏼‍♀️🤦🏼‍♀️ For those of you who were asking for recommendations, sorry they are late...but better late than never right? 😅 Also, I should add that because of pain and brain fog and pain brain sometimes it takes me FOREVER to get through a book, while other times I can read it in one sitting. I enjoy reading the books that have small devotions or short chapters the most. 
My favorite is “Mosaic Moments” by Lisa Copen. She offers encouraging words and wise insight from herself and friends who have suffered with chronic illnesses. If you have any books please share with me! I enjoy reading how others cope and understand their own chronic pain journey. #bookworm #lovetoread #chronicpain #chronicillness #invisibleillness #spoonie #chronicpainjourney #posturalorthostatictachycardiasyndrome #pots #dysautonomia #tos #thoracicoutletsyndrome #crps #complexregionalpainsyndrome #occipitalneuralgia #vasovagalsyncope #mitralvalveprolapse #chronicpainprincess
About 2 weeks ago I promised to share a few chronic illness books that I have read and have encouraged me.....then I forgot. 🤦🏼‍♀️🤦🏼‍♀️ For those of you who were asking for recommendations, sorry they are late...but better late than never right? 😅 Also, I should add that because of pain and brain fog and pain brain sometimes it takes me FOREVER to get through a book, while other times I can read it in one sitting. I enjoy reading the books that have small devotions or short chapters the most. My favorite is “Mosaic Moments” by Lisa Copen. She offers encouraging words and wise insight from herself and friends who have suffered with chronic illnesses. If you have any books please share with me! I enjoy reading how others cope and understand their own chronic pain journey. #bookworm  #lovetoread  #chronicpain  #chronicillness  #invisibleillness  #spoonie  #chronicpainjourney  #posturalorthostatictachycardiasyndrome  #pots  #dysautonomia  #tos  #thoracicoutletsyndrome  #crps  #complexregionalpainsyndrome  #occipitalneuralgia  #vasovagalsyncope  #mitralvalveprolapse  #chronicpainprincess 
There are so many good charities to pick from. I want to donate some of my proceeds from Chronic Hope Jewelry to a charity but I don’t know which one. Here are the ones I’ve narrowed it down to. What do you think?

Ehlers danlos society
https://www.ehlers-danlos.com/

Dysautonomia international
http://www.dysautonomiainternational.org/

Fibromyalgia care center of America
http://fibro.org/

NAMI
https://www.nami.org/
There are so many good charities to pick from. I want to donate some of my proceeds from Chronic Hope Jewelry to a charity but I don’t know which one. Here are the ones I’ve narrowed it down to. What do you think? Ehlers danlos society https://www.ehlers-danlos.com/ Dysautonomia international http://www.dysautonomiainternational.org/ Fibromyalgia care center of America http://fibro.org/ NAMI https://www.nami.org/
One of my favorite quotes about physical/mental illness. Here at Chronic Hope Jewelry, my goal is to raise awareness for chronic illness, chronic pain, and mental illness. I️ am in the process of finding a charity to donate some of my proceeds to, so any suggestions are welcome! I️ personally have Ehlers-Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), Fibromyalgia, Vasovagal Syncope (VVS), Depression, Anxiety, Panic Disorder, and PTSD. It would be great if the charity I️ donate to is related to one or more of my conditions. Who else shares a diagnosis or two with me? Any suggestions for charities to donate to? Thanks for your help! ♥️🎗
PS - my personal account is @musicially_mary_
One of my favorite quotes about physical/mental illness. Here at Chronic Hope Jewelry, my goal is to raise awareness for chronic illness, chronic pain, and mental illness. I️ am in the process of finding a charity to donate some of my proceeds to, so any suggestions are welcome! I️ personally have Ehlers-Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), Fibromyalgia, Vasovagal Syncope (VVS), Depression, Anxiety, Panic Disorder, and PTSD. It would be great if the charity I️ donate to is related to one or more of my conditions. Who else shares a diagnosis or two with me? Any suggestions for charities to donate to? Thanks for your help! ♥️🎗 PS - my personal account is @musicially_mary_
Worked out for the first time since August!💪🏻 I followed a 20 minute video and felt amazing! I felt I could probably have done more but didn't want to push myself too hard on day one. Will probably cap off the night with some yoga. 
So I finally have my #dysautonomia under control. I have to go a little slower than I used to (paused the video three times today to catch up) and still get dizzy when I stand up too fast, but I refuse to be a slave to my illness! Plus exercise is SUPER important for everyone, but especially for those suffering with dysautonomia to help with circulation (my particular dysautonomias cause very low blood pressure for me so I need to strengthen my muscles and heart to make sure blood is getting to where it needs to go!). I'm pumped to continue exercising! My body was super thankful today to move!

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#chronicillness #orthostatichypotension #vasovagalsyncope #progress #fitness #exercise #nutrition #vegetarian #balance #rd2be #healthy #wellness #exercise #mondaymotivation #motivation #getfit #invisibleillness #strong #gettingthere #happymonday #happy #excited #thankful #motivated
Worked out for the first time since August!💪🏻 I followed a 20 minute video and felt amazing! I felt I could probably have done more but didn't want to push myself too hard on day one. Will probably cap off the night with some yoga. So I finally have my #dysautonomia  under control. I have to go a little slower than I used to (paused the video three times today to catch up) and still get dizzy when I stand up too fast, but I refuse to be a slave to my illness! Plus exercise is SUPER important for everyone, but especially for those suffering with dysautonomia to help with circulation (my particular dysautonomias cause very low blood pressure for me so I need to strengthen my muscles and heart to make sure blood is getting to where it needs to go!). I'm pumped to continue exercising! My body was super thankful today to move! ___ #chronicillness  #orthostatichypotension  #vasovagalsyncope  #progress  #fitness  #exercise  #nutrition  #vegetarian  #balance  #rd2be  #healthy  #wellness  #exercise  #mondaymotivation  #motivation  #getfit  #invisibleillness  #strong  #gettingthere  #happymonday  #happy  #excited  #thankful  #motivated 
Vasovagal Syncope is a condition that causes your body to overreact to certain triggers such as the sight of blood.  For me this includes being in hospitals or emergency rooms.😷It seems silly to act like this is a true ailment when there nothing actually physically hurting me, but my body IS physically reacting without my control. It causes my blood pressure to drop at which point I begin to get weak, dizzy, overheated and eventually pass out if I can’t pull it together by putting my head between my knees. ****************************************************
Isn’t that insane??!! All at the RECOGNITION of anything related to hospitals or surgery or blood. What in the world is wrong with me??!
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#vasovagalsyncope #surgerycenter #capemaycourthouse #squeamish #hospital #lifequestions #why #trustinthelord #keepmovingforward
Vasovagal Syncope is a condition that causes your body to overreact to certain triggers such as the sight of blood. For me this includes being in hospitals or emergency rooms.😷It seems silly to act like this is a true ailment when there nothing actually physically hurting me, but my body IS physically reacting without my control. It causes my blood pressure to drop at which point I begin to get weak, dizzy, overheated and eventually pass out if I can’t pull it together by putting my head between my knees. **************************************************** Isn’t that insane??!! All at the RECOGNITION of anything related to hospitals or surgery or blood. What in the world is wrong with me??! . . . #vasovagalsyncope  #surgerycenter  #capemaycourthouse  #squeamish  #hospital  #lifequestions  #why  #trustinthelord  #keepmovingforward 
This is #thefaceofperseverance
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Resting today after a really rough day yesterday.
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I’ve been dealing w/ a lot of stress and pain, which for someone with chronic pain and anxiety isn’t new, but I’ve started fainting quite suddenly and a lot lately, and found out that I’ve been having vaso vagal episodes.. I guess this means I may have another new diagnosis and might really need to decrease the amount of stress I’m under.
.. I know life for us spoonies and mental illness warriors is hard, but I also know we can persevere💪🏼
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#iamthefaceof #thefaceof #chronicpainwarrior #chronicillnesswarrior #invisibleillnesswarrior #spooniewarrior #spooniesmile #perseverance #overcome #endometriosis #interstitialcystitis #pudendalneuralgia #ibs #arthritis #phlebitis #fibromyalgia #sciatica #spondylosis #bipolardisorder #anxiety #ptsd #pnes #vasovagalsyncope
This is #thefaceofperseverance  . Resting today after a really rough day yesterday. . I’ve been dealing w/ a lot of stress and pain, which for someone with chronic pain and anxiety isn’t new, but I’ve started fainting quite suddenly and a lot lately, and found out that I’ve been having vaso vagal episodes.. I guess this means I may have another new diagnosis and might really need to decrease the amount of stress I’m under. .. I know life for us spoonies and mental illness warriors is hard, but I also know we can persevere💪🏼 . #iamthefaceof  #thefaceof  #chronicpainwarrior  #chronicillnesswarrior  #invisibleillnesswarrior  #spooniewarrior  #spooniesmile  #perseverance  #overcome  #endometriosis  #interstitialcystitis  #pudendalneuralgia  #ibs  #arthritis  #phlebitis  #fibromyalgia  #sciatica  #spondylosis  #bipolardisorder  #anxiety  #ptsd  #pnes  #vasovagalsyncope 
💗Each of the amethyst/magenta dyed shells in this necklace is unique, which makes for a gorgeous, stunning complete necklace. Strung on several strands of durable bead weaving thread, and finished with a nickel-free, easy to use lobster clasp.💗 Only $20 at Etsy.com/shop/chronichopejewelry. Link in bio! 💗🎗
💗Each of the amethyst/magenta dyed shells in this necklace is unique, which makes for a gorgeous, stunning complete necklace. Strung on several strands of durable bead weaving thread, and finished with a nickel-free, easy to use lobster clasp.💗 Only $20 at Etsy.com/shop/chronichopejewelry. Link in bio! 💗🎗
These cute little awareness ribbon charms hang perfectly on nickel-free, hypoallergenic earrings. They measure about half an inch in length. Earring backs included.

Only $8 at Etsy.com/shop/chronichopejewelry! ♥️🎗
These cute little awareness ribbon charms hang perfectly on nickel-free, hypoallergenic earrings. They measure about half an inch in length. Earring backs included. Only $8 at Etsy.com/shop/chronichopejewelry! ♥️🎗
Please, please help me out and go follow @chronichopejewelry ! Thank you so much for your help ♥️ Don’t forget to check out the shop: etsy.com/shop/chronichopejewelry 🎗
Please, please help me out and go follow @chronichopejewelry ! Thank you so much for your help ♥️ Don’t forget to check out the shop: etsy.com/shop/chronichopejewelry 🎗
Sixteen stunning, round African opal gemstone beads, with mixes of light tan and browns, are the highlight of this piece. Black seed beads complete the bracelet. Strung on several strands of extremely durable elastic cord.

Only $16 at Etsy.com/shop/chronichopejewelry ♥️
Sixteen stunning, round African opal gemstone beads, with mixes of light tan and browns, are the highlight of this piece. Black seed beads complete the bracelet. Strung on several strands of extremely durable elastic cord. Only $16 at Etsy.com/shop/chronichopejewelry ♥️
Living with EDS is so painful, but together we can get through it 💪🏼💜
Living with EDS is so painful, but together we can get through it 💪🏼💜
Chronic Hope Jewelry is BACK! Visit the shop for NEW beautiful and unique jewelry! Raising awareness for chronic pain and illness♥️🎗 Etsy.com/shop/chronichopejewelry
Chronic Hope Jewelry is BACK! Visit the shop for NEW beautiful and unique jewelry! Raising awareness for chronic pain and illness♥️🎗 Etsy.com/shop/chronichopejewelry
My little Meli has had two minor episodes today, so in an attempt to keep her happy she gets to eat her favorite food on the couch with Mama while watching Doc McStuffins. I blame her emerging molars. 
#KeepHerHappy #VasovagalSyncope #TeethingIsRough
My little Meli has had two minor episodes today, so in an attempt to keep her happy she gets to eat her favorite food on the couch with Mama while watching Doc McStuffins. I blame her emerging molars. #KeepHerHappy  #VasovagalSyncope  #TeethingIsRough 
How cute is this card my aunt sent me? So update with the GI issues - I’m currently waiting for a referral to see a gastroenterologist who has a special interest in Ehlers Danlos Syndrome. I think they have to offer you an appointment within 6-8 weeks so I’m not sure if I will get to see them this year or not 😖 things are still very much the same stomach-wise which suuucks. Also struggling so much with nausea which is stopping me from sleeping - I could really do without this because it’s causing my POTs to flare so much 😩 In other news, we’re currently having a shower with a seat installed to help with my POTs - This will reduce the risk of me fainting in the shower due to the heat which is one of my triggers (standing for long periods of time also triggers faints). Although, I could do without the disruption to my routine because of the workmen installing the shower 😕 it really throws me off and the noise is really getting to me. Hopefully they should be finished soon 🙏🏻Anyway, I hope you are all doing well with your health at the moment #chronicillness #chronicillnesswarrior #chronicillnesses #ehlersdanlossyndrome #eds #edstype3 #hypermobility #hypermobilitysyndrome #pots #posturalorthostatictachycardiasyndrome #vasovagalsyncope #vasodepressorsyncope #hiatushernia #aspergerssyndrome #aspie #chronicallyfabulous #illness #personal #post #gastrointestinalissues #card #cute #milk
How cute is this card my aunt sent me? So update with the GI issues - I’m currently waiting for a referral to see a gastroenterologist who has a special interest in Ehlers Danlos Syndrome. I think they have to offer you an appointment within 6-8 weeks so I’m not sure if I will get to see them this year or not 😖 things are still very much the same stomach-wise which suuucks. Also struggling so much with nausea which is stopping me from sleeping - I could really do without this because it’s causing my POTs to flare so much 😩 In other news, we’re currently having a shower with a seat installed to help with my POTs - This will reduce the risk of me fainting in the shower due to the heat which is one of my triggers (standing for long periods of time also triggers faints). Although, I could do without the disruption to my routine because of the workmen installing the shower 😕 it really throws me off and the noise is really getting to me. Hopefully they should be finished soon 🙏🏻Anyway, I hope you are all doing well with your health at the moment #chronicillness  #chronicillnesswarrior  #chronicillnesses  #ehlersdanlossyndrome  #eds  #edstype3  #hypermobility  #hypermobilitysyndrome  #pots  #posturalorthostatictachycardiasyndrome  #vasovagalsyncope  #vasodepressorsyncope  #hiatushernia  #aspergerssyndrome  #aspie  #chronicallyfabulous  #illness  #personal  #post  #gastrointestinalissues  #card  #cute  #milk 
Amy Bolin, I miss you so freaking much! 😫😭💔♈️💜🦊💛♐️💙🌈❤️☮️💚🥄🥄
Amy Bolin, I miss you so freaking much! 😫😭💔♈️💜🦊💛♐️💙🌈❤️☮️💚🥄🥄
Moms showering when all of a sudden I had to tell her to sit down before she sits down head first. Poked my head in the shower to check in. She had no idea her heart was racing. She sat down and I licked her face to keep her awake. And she finished her shower with flying colors. I'm super dog today. I laid in front of the bathroom with a watchful eye on her. #servicedog #servicedoglife #servicedogsofig  #servicedogteam #servicedoghandler #blacklabmix #mobilitydog #syncopealertdog #vasovagalsyncope #pots #tachycardia #shower 
Follow our pawtners: @ohana_the_service_dog
@service.dutchie.diederik
@seb4helping
@capone_myfurryangel @future_service_dog_aslan
Moms showering when all of a sudden I had to tell her to sit down before she sits down head first. Poked my head in the shower to check in. She had no idea her heart was racing. She sat down and I licked her face to keep her awake. And she finished her shower with flying colors. I'm super dog today. I laid in front of the bathroom with a watchful eye on her. #servicedog  #servicedoglife  #servicedogsofig  #servicedogteam  #servicedoghandler  #blacklabmix  #mobilitydog  #syncopealertdog  #vasovagalsyncope  #pots  #tachycardia  #shower  Follow our pawtners: @ohana_the_service_dog @service.dutchie.diederik @seb4helping @capone_myfurryangel @future_service_dog_aslan
Me and Tay ♥️
Me and Tay ♥️
(I am doing well now!) When you’re feeling ready for life and the events that your day will entail and you FAINT ON THE SKYTRAIN ON YOUR WAY TO SCHOOL. Today I got to spend my Wednesday in the ER, but you know what? Sometimes you just have to let your body do it’s own thing. Also, emotional stress about being ill can induce fainting spells? Who knew. #vasovagalsyncope #faintlyamusing #checkingin #takecareofyourbody
(I am doing well now!) When you’re feeling ready for life and the events that your day will entail and you FAINT ON THE SKYTRAIN ON YOUR WAY TO SCHOOL. Today I got to spend my Wednesday in the ER, but you know what? Sometimes you just have to let your body do it’s own thing. Also, emotional stress about being ill can induce fainting spells? Who knew. #vasovagalsyncope  #faintlyamusing  #checkingin  #takecareofyourbody 
Giving a whole new meaning to the term “fanny pack” one Holter Monitor at a time 💁🏼 I got my results back from the 48 monitor and for the most part it came back clear. To a normal person this would sound great and exciting, which I guess in some ways I am relieved. But mainly it just means I’m one step further away from finding out what is causing these symptoms. I know a clear / almost clear monitor reading doesn’t rule out a heart condition(s), but it just makes it harder to diagnose AND more difficult to get dr.s to hear me out. So frustrating, but I’m not really feeling down about it - just motivated to find answers. If I’ve learned anything from the EDS diagnosis it’s that improvements and breakthroughs do happen over time.. internally and externally 💪🏼
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#holtermonitor #pots #vasovagalsyncope #chronic #chronicillness #pain #chronicfatigue #chronicallyill #eds #classicaleds #heds #hypermobility #migraine #herniateddisc #pcos #lyme #lupus #crps #ddd #me #ibd #ibs #depression #anxiety #spoonies #dontstopgetitgetit #thrivingandsurviving #strongerthanyouraverage #sickerthanyouraverage #lifehacksforchronicillness
Giving a whole new meaning to the term “fanny pack” one Holter Monitor at a time 💁🏼 I got my results back from the 48 monitor and for the most part it came back clear. To a normal person this would sound great and exciting, which I guess in some ways I am relieved. But mainly it just means I’m one step further away from finding out what is causing these symptoms. I know a clear / almost clear monitor reading doesn’t rule out a heart condition(s), but it just makes it harder to diagnose AND more difficult to get dr.s to hear me out. So frustrating, but I’m not really feeling down about it - just motivated to find answers. If I’ve learned anything from the EDS diagnosis it’s that improvements and breakthroughs do happen over time.. internally and externally 💪🏼 . . #holtermonitor  #pots  #vasovagalsyncope  #chronic  #chronicillness  #pain  #chronicfatigue  #chronicallyill  #eds  #classicaleds  #heds  #hypermobility  #migraine  #herniateddisc  #pcos  #lyme  #lupus  #crps  #ddd  #me  #ibd  #ibs  #depression  #anxiety  #spoonies  #dontstopgetitgetit  #thrivingandsurviving  #strongerthanyouraverage  #sickerthanyouraverage  #lifehacksforchronicillness 
got to take some pictures with a few of my friends today! if anyone wants to talk, please dm me I am bored and lonely!!
#diabetes #diabetic #type1diabetes #typeonediabetic #typeone #typeonestrong #pcos #pcoslife #pcosawarenessmonth #gastritis #gastritisproblems #duodenitis #endoscopy #vasovagalsyncope #pots #syncope #hashimotos #hashimotosdisease #mythyroidsucks
*When you just want to stay in bed forever but you have to get up and try to be productive* 😭 .... 📈Update on the holter monitor📉: sleeping wasn’t as bad as I thought it would be! I took pain meds so maybe that’s why I slept (kind of) well, but I didn’t wake up too tangled in the wires. When they were first putting on the holter monitor they scrubbed my skin with something that looked like a napkin but felt like sandpaper. I tried telling the lady I have really sensitive skin *aka you’re legit going to rub it off of my body if you keep scrubbing so hard* but she didn’t stop lol. I totally get it - she was just doing her job and they have to scrub to make sure the monitor gets a good reading. I forgot I had it on a few times at work and got up from my desk and the monitor went flying across the room, whoops. Plus, I got it caught on my shirt and almost ripped one of the stickers off *ouch* so I’m glad someone told me to ask for an extra pad just in case (see the comments in my last post). (P.S. brain fog I can’t think of the actual name of the stickers/pads right now). I have to go to work later today but all I want to do it lay down and rest😴 plus, I feel a flare and a migraine coming on. ..But I guess it’s a good thing that I’m up and moving so the holter monitor gets an accurate reading. Thank you again to everyone who gave me advice!! I’ve used everything you guys suggested and it has helped so much 😘 #holtermonitor #pots #vasovagalsyncope #chronic #chronicillness #pain #chronicfatigue #chronicallyill #eds #classicaleds #heds #hypermobility #migraine #herniateddisc #pcos #lyme #lupus #crps #ddd #me #ibd #ibs #depression #anxiety #spoonies #dontstopgetitgetit #thrivingandsurviving #strongerthanyouraverage #sickerthanyouraverage #lifehacksforchronicillness
*When you just want to stay in bed forever but you have to get up and try to be productive* 😭 .... 📈Update on the holter monitor📉: sleeping wasn’t as bad as I thought it would be! I took pain meds so maybe that’s why I slept (kind of) well, but I didn’t wake up too tangled in the wires. When they were first putting on the holter monitor they scrubbed my skin with something that looked like a napkin but felt like sandpaper. I tried telling the lady I have really sensitive skin *aka you’re legit going to rub it off of my body if you keep scrubbing so hard* but she didn’t stop lol. I totally get it - she was just doing her job and they have to scrub to make sure the monitor gets a good reading. I forgot I had it on a few times at work and got up from my desk and the monitor went flying across the room, whoops. Plus, I got it caught on my shirt and almost ripped one of the stickers off *ouch* so I’m glad someone told me to ask for an extra pad just in case (see the comments in my last post). (P.S. brain fog I can’t think of the actual name of the stickers/pads right now). I have to go to work later today but all I want to do it lay down and rest😴 plus, I feel a flare and a migraine coming on. ..But I guess it’s a good thing that I’m up and moving so the holter monitor gets an accurate reading. Thank you again to everyone who gave me advice!! I’ve used everything you guys suggested and it has helped so much 😘 #holtermonitor  #pots  #vasovagalsyncope  #chronic  #chronicillness  #pain  #chronicfatigue  #chronicallyill  #eds  #classicaleds  #heds  #hypermobility  #migraine  #herniateddisc  #pcos  #lyme  #lupus  #crps  #ddd  #me  #ibd  #ibs  #depression  #anxiety  #spoonies  #dontstopgetitgetit  #thrivingandsurviving  #strongerthanyouraverage  #sickerthanyouraverage  #lifehacksforchronicillness 
I’m getting a 48 Holter Monitor tomorrow for the first time. Any suggestions or tips⁉️ I’d love to make the next 48 hours as easy as possible! Idk if they’ll give me one that hangs around my neck or clips on near my waist... I’m hoping I am given the choice bc I have a feeling hanging that monitor around my neck will cause major neck and clavicle pain/issues. The cardiologist thinks I either have POTS or Vasovagal Syncope, so I’m really hoping to get some answers. I don’t have extreme symptoms every day (just randomly) but hoping something shows up on the monitor. I’d love to hear about your experiences below!
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#holtermonitor #pots #vasovagalsyncope #chronic #chronicillness #pain #chronicfatigue #chronicallyill #eds #classicaleds #heds #hypermobility #migraine #herniateddisc #pcos #lyme #lupus #crps #ddd #me #ibd #ibs #depression #anxiety #spoonies #dontstopgetitgetit #thrivingandsurviving #strongerthanyouraverage #sickerthanyouraverage #lifehacksforchronicillness
I’m getting a 48 Holter Monitor tomorrow for the first time. Any suggestions or tips⁉️ I’d love to make the next 48 hours as easy as possible! Idk if they’ll give me one that hangs around my neck or clips on near my waist... I’m hoping I am given the choice bc I have a feeling hanging that monitor around my neck will cause major neck and clavicle pain/issues. The cardiologist thinks I either have POTS or Vasovagal Syncope, so I’m really hoping to get some answers. I don’t have extreme symptoms every day (just randomly) but hoping something shows up on the monitor. I’d love to hear about your experiences below! . . #holtermonitor  #pots  #vasovagalsyncope  #chronic  #chronicillness  #pain  #chronicfatigue  #chronicallyill  #eds  #classicaleds  #heds  #hypermobility  #migraine  #herniateddisc  #pcos  #lyme  #lupus  #crps  #ddd  #me  #ibd  #ibs  #depression  #anxiety  #spoonies  #dontstopgetitgetit  #thrivingandsurviving  #strongerthanyouraverage  #sickerthanyouraverage  #lifehacksforchronicillness 
When you match your makeup to your ankle boot, face wounds and swollen demon eye. #red #sickgirlsclub #brokenankle #vasovagalsyncope #strabismus
One thing I haven’t shared much about publicly is my struggle with Vasovagal Syncope. 
What the heck is that?!? Yeah, I didn’t know what it was either until about 15-20years ago when I was in my late teens. I would be sitting and then go to stand up and start walking, when my vision would completely blur. 
At first, I just thought it was the normal “I got up too fast” thing. But the symptoms progressed. My vision would completely blackout and I’d have to hold onto something. I would brace myself for 10 seconds, and breathe deeply. Eventually, the moment passed and I was fine. 
It wasn’t until my mom caught on to these episodes that she took me to get tested for heart problems. And what the doctors found was this. I had Vasovagal Syncope. 🤷🏻‍♀️ I share this because, aside from during testing, I’ve never really passed out from it completely. {which is suppose to happen}. I’ve always known my triggers and did that best possible to avoid them and be cautious of my movement. 
But this morning, I freaked myself out!!! Literally, blacked out vision, sat myself down, and so lightheaded I am shocked I didn’t go unconscious. I regained myself after about 30seconds. But man. Scary. 
So I am sitting here. Waiting a few minutes to make sure I’m good to go for my workout! 👊🏻 No “condition” is going to define me and give me an excuse to quit. I’m a fighter 💪🏼 Check out today’s moves in my stories at the 🔝
•••••••••••••••••••••
Get to know more about my condition:
https://www.mayoclinic.org/diseases-conditions/vasovagal-syncope/symptoms-causes/syc-20350527

#vasovagalsyncope #didyouknow #fitmomsofig #fitmommy #ukfitness #ukmums #momlifebelike #wellnessfitness #dontsufferalone #dontsufferinsilence #fighters #gethealthywithme #fitfunfamily #funfitness #funfitmom #funfitmummy #inspireothers #keepmoving #wellnessjourney #lifestylegoals #healthylifestyles #positivemindset #positivevibe #positiveattitude
One thing I haven’t shared much about publicly is my struggle with Vasovagal Syncope. What the heck is that?!? Yeah, I didn’t know what it was either until about 15-20years ago when I was in my late teens. I would be sitting and then go to stand up and start walking, when my vision would completely blur. At first, I just thought it was the normal “I got up too fast” thing. But the symptoms progressed. My vision would completely blackout and I’d have to hold onto something. I would brace myself for 10 seconds, and breathe deeply. Eventually, the moment passed and I was fine. It wasn’t until my mom caught on to these episodes that she took me to get tested for heart problems. And what the doctors found was this. I had Vasovagal Syncope. 🤷🏻‍♀️ I share this because, aside from during testing, I’ve never really passed out from it completely. {which is suppose to happen}. I’ve always known my triggers and did that best possible to avoid them and be cautious of my movement. But this morning, I freaked myself out!!! Literally, blacked out vision, sat myself down, and so lightheaded I am shocked I didn’t go unconscious. I regained myself after about 30seconds. But man. Scary. So I am sitting here. Waiting a few minutes to make sure I’m good to go for my workout! 👊🏻 No “condition” is going to define me and give me an excuse to quit. I’m a fighter 💪🏼 Check out today’s moves in my stories at the 🔝 ••••••••••••••••••••• Get to know more about my condition: https://www.mayoclinic.org/diseases-conditions/vasovagal-syncope/symptoms-causes/syc-20350527 #vasovagalsyncope  #didyouknow  #fitmomsofig  #fitmommy  #ukfitness  #ukmums  #momlifebelike  #wellnessfitness  #dontsufferalone  #dontsufferinsilence  #fighters  #gethealthywithme  #fitfunfamily  #funfitness  #funfitmom  #funfitmummy  #inspireothers  #keepmoving  #wellnessjourney  #lifestylegoals  #healthylifestyles  #positivemindset  #positivevibe  #positiveattitude 
Throwback! I wore this costume three years ago and at that time I was already 12 or so lbs down from my highest weight (left picture). Now I'm 25 lbs down from my highest weight and feeling pretty good!

Update on my illness: My doctor cleared (and even encouraged) me to start working out again so I'm stoked to get my muscles back and get back in shape after two months of almost a complete sedentary lifestyle.

If you didn't know I have #Dysautonomia, an autonomic nervous system disorder that causes lightheadedness, dizziness, fainting, head pressure and tightness, and weakness in my body. It started earlier this year then came on hard over the summer flipping my life upside down and scaring me away from the gym. But my neurologist said the gym is actually where I need to be to strengthen my heart and muscles to help my body regulate my blood pressure better. So it's super exciting she actually WANTS me to exercise! Very good news, it's just going to be much much much slower than before and doing very light weights and being ok if I need to sit down and take breaks more often. It sucks, but I won't let it rule my life anymore. 
Happy Halloween everyone! STAY SAFE!!!! ___

#transformation #beforeandafter #weightloss #vegetarian #balance #rd2be #healthy #wellness #nutrition #halloween #progress #deer #deermakeup #chronicillness #vasovagalsyncope #orthostatichypotension #lowbloodpressure #invisibleillness #motivation #workhard #costume #deergirl
Throwback! I wore this costume three years ago and at that time I was already 12 or so lbs down from my highest weight (left picture). Now I'm 25 lbs down from my highest weight and feeling pretty good! Update on my illness: My doctor cleared (and even encouraged) me to start working out again so I'm stoked to get my muscles back and get back in shape after two months of almost a complete sedentary lifestyle. If you didn't know I have #Dysautonomia , an autonomic nervous system disorder that causes lightheadedness, dizziness, fainting, head pressure and tightness, and weakness in my body. It started earlier this year then came on hard over the summer flipping my life upside down and scaring me away from the gym. But my neurologist said the gym is actually where I need to be to strengthen my heart and muscles to help my body regulate my blood pressure better. So it's super exciting she actually WANTS me to exercise! Very good news, it's just going to be much much much slower than before and doing very light weights and being ok if I need to sit down and take breaks more often. It sucks, but I won't let it rule my life anymore. Happy Halloween everyone! STAY SAFE!!!! ___ #transformation  #beforeandafter  #weightloss  #vegetarian  #balance  #rd2be  #healthy  #wellness  #nutrition  #halloween  #progress  #deer  #deermakeup  #chronicillness  #vasovagalsyncope  #orthostatichypotension  #lowbloodpressure  #invisibleillness  #motivation  #workhard  #costume  #deergirl 
Got feedback from medical about my blackout episodes during passing motion, intense coughing and intense laughing. It is confirmed that I have vasovagal nerve compression which is very common cause of blackout or fainting episodes. They said if tis episodes really bothers me, they can refer me to Serdang Hospital for tilt table test. 
I guess I cannot laugh too much now 😅😅😂
#vasovagalsyncope
Got feedback from medical about my blackout episodes during passing motion, intense coughing and intense laughing. It is confirmed that I have vasovagal nerve compression which is very common cause of blackout or fainting episodes. They said if tis episodes really bothers me, they can refer me to Serdang Hospital for tilt table test. I guess I cannot laugh too much now 😅😅😂 #vasovagalsyncope 
Arrow relaxes while Jinx meets Pluto and Goofy
Arrow relaxes while Jinx meets Pluto and Goofy
Animal kingdom type of morning.
Animal kingdom type of morning.
Animal Kingdom this morning! We saw some fantastic animals on #safari!
Animal Kingdom this morning! We saw some fantastic animals on #safari !
What? It’s time to wake up now?
What? It’s time to wake up now?
Arrow slept thru #fantasmic ...