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#williamssyndrome medias

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I'll be there for you,my boy.
#williamssyndrome #aortic valve stenosis#pulmonary valve stenosis
I have just awaked now.I wanna be free from convertible car seat!
#williamssyndrome#なで肩くん
Spooky things are  happening over at rusksandrebels.co.uk 👻 
Personalise this year's trick or treat outfit!!
Spooky things are happening over at rusksandrebels.co.uk 👻 Personalise this year's trick or treat outfit!!
Personalise your little ones Halloween party outfit with one of our ethical baby & Toddler t-shirts!! Halloween collection is now online 🎃 
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Personalise your little ones Halloween party outfit with one of our ethical baby & Toddler t-shirts!! Halloween collection is now online 🎃 Www.rusksandrebels.co.uk
Happy Monday! So happy we got to capture this sweet moment. Ryder hasn't wanted to sit up for a few days due to the soreness of his arms from the surgery Thursday. But today he sat up for about 25 minutes and stood for a few seconds he's relearning his balance again. This kid is the strongest willed kid I know. It's so amazing to see his demeanor change into such a happy spirit again. We saged our house today, I love feeling that change! I feel so much better knowing how much better Ryder is finally feeling. We start our programming for the deep brain stimulation on the 27th, two days before Ryder's 6th birthday! #williamssyndrome #oneinamillion #brainsurgery #postop #positivevibes #prayers #specialneedsmom #mommotivation #thatsdarling #kidsofig #miraclesdohappen #clickinmoms #childhood #warrior #momlife #motherhood #september #candidchildhood #thisisus #motherhoodrising #dailyparenting #nothingisordinary #mondaymotivation #inspired #deepbrainstimulation #blessings #motherandson #bondingtime
Happy Monday! So happy we got to capture this sweet moment. Ryder hasn't wanted to sit up for a few days due to the soreness of his arms from the surgery Thursday. But today he sat up for about 25 minutes and stood for a few seconds he's relearning his balance again. This kid is the strongest willed kid I know. It's so amazing to see his demeanor change into such a happy spirit again. We saged our house today, I love feeling that change! I feel so much better knowing how much better Ryder is finally feeling. We start our programming for the deep brain stimulation on the 27th, two days before Ryder's 6th birthday! #williamssyndrome  #oneinamillion  #brainsurgery  #postop  #positivevibes  #prayers  #specialneedsmom  #mommotivation  #thatsdarling  #kidsofig  #miraclesdohappen  #clickinmoms  #childhood  #warrior  #momlife  #motherhood  #september  #candidchildhood  #thisisus  #motherhoodrising  #dailyparenting  #nothingisordinary  #mondaymotivation  #inspired  #deepbrainstimulation  #blessings  #motherandson  #bondingtime 
It's always a happy morning with this one 😍 #MyLoveBug #Monday #MondayMorning #WilliamsSyndrome #ChiariMalformation
眠たい…限界や…
When I want to sleep,I rub my eyes.
After that looks like this...
#williamssyndrome
眠たい…限界や… When I want to sleep,I rub my eyes. After that looks like this... #williamssyndrome 
So this Saturday I will be stepping in the ring for 1 round of sparring with Tyler. Tyler is running his own charity evening for Jeans for genes towards Williams syndrome. If you can help donate or come along and support please do. Any further info please check out @2men1littlelady page and she will b more then happy to help. 
#williamssyndrome #williamssyndromeawareness #amazing #strength #strong  #24roundswithtyler #sparring #event #charity #sponsor #donate #community #getinvolved
So this Saturday I will be stepping in the ring for 1 round of sparring with Tyler. Tyler is running his own charity evening for Jeans for genes towards Williams syndrome. If you can help donate or come along and support please do. Any further info please check out @2men1littlelady page and she will b more then happy to help. #williamssyndrome  #williamssyndromeawareness  #amazing  #strength  #strong  #24roundswithtyler  #sparring  #event  #charity  #sponsor  #donate  #community  #getinvolved 
I går var det födelsedagsfirande då bägge barnen fyllde år ....sonen slog till med 25 och dottern 23💫🎉🎊Tiden har verkligen sprungit iväg ...oavsett är jag så stolt över mina bägge barn ,allt som de kämpar med och allt vi gått igenom som familj( och för att bli en familj) ....de är fina människor och starka individer som gör sitt bästa trots sjukdomar och andra utmaningar ..... De ger inte upp !#williamssyndrome #diabetes1 #fuckdiabetes #endo  Hundarna var självklart med och gratulerade 😉#dalmatiner #bordercollie #doglife
I går var det födelsedagsfirande då bägge barnen fyllde år ....sonen slog till med 25 och dottern 23💫🎉🎊Tiden har verkligen sprungit iväg ...oavsett är jag så stolt över mina bägge barn ,allt som de kämpar med och allt vi gått igenom som familj( och för att bli en familj) ....de är fina människor och starka individer som gör sitt bästa trots sjukdomar och andra utmaningar ..... De ger inte upp !#williamssyndrome  #diabetes1  #fuckdiabetes  #endo  Hundarna var självklart med och gratulerade 😉#dalmatiner  #bordercollie  #doglife 
Gorgeous, ethical Autumn and Winter kids clothing from Rusks and Rebels!! Check out our Personalised Flock Baby & Toddler Onesie online along with lots of other personalised classics!! Www.rusksandrebels.co.uk
Gorgeous, ethical Autumn and Winter kids clothing from Rusks and Rebels!! Check out our Personalised Flock Baby & Toddler Onesie online along with lots of other personalised classics!! Www.rusksandrebels.co.uk
WİLLİAMS SENDROMLU ÇOCUKLAR İÇİN ERKEN EĞİTİMİN ÖNEMİ NEDİR ?
 Williams Sendromlu bir çocuğun doğumuyla beraber çocuklarda çeşitli sağlık problemleri görülebilmektedir. Bu tür sorunlar çocuğun gelişimini olumsuz etkileyebilir . Ayrıca bu çocukların yaşamlarında gelişim hızları yavaştır. Anne-babalar gerek doğumdan itibaren karşılaştıkları sağlık sorunları gerekse de gelişim hızlarındaki geriliklerinden dolayı da bir karamsarlık içine düşebilmektedirler. Ancak Williams Sendromlu çocuklar için özel eğitim çok önemlidir. Özel eğitim hizmetlerinin çocuğa erken yaşlarda verilmesi daha da önem taşımaktadır. Çünkü bu çocuklarda büyük kas becerilerinde, küçük kas becerilerinde, konuşma ve anlama becerilerinde, özbakım becerilerinde,bilişsel becerilerde yaşıtlarına oranla önemli gerilikler bulunabilmektedir. Bu çocukların tüm bu becerilerde göstermiş olduğu gerilikler ve yetersizlikler ancak özel eğitim ve küçük yaşlarda verilebilecek erken eğitim hizmetleri ile olacaktır. Bu çocuklarda eğitimlerinde amaç bir birey olarak bağımsız yaşayabilmelerini sağlamak olmalıdır. Ayrıca Williams Sendromlu çocuğa verilen özel eğitimin niteliği ve özel eğitimi veren eğitimcinin özellikleri de çok önem taşımaktadır. Williams Sendromlu çocuklara sağlanan özel eğitim çocuğun eğitim ihtiyaçlarına uygun nitelikte bir eğitim olmalıdır. Tüm özel eğitime ihtiyaç çocuklarda olduğu gibi Williams Sendromlu çocuklarda da en önemli olan şey zamanın eğitimler açısından doğru olarak kullanılabilmesidir. Ayrıca Williams Sendromlu çocuğa eğitim veren eğitimci de bu çocukların tüm özellikleri iyi bilmeli ve çocukların ihtiyaçlarına uygun bir eğitim programı hazırlamalı ve uygulamalıdır.
ERDİ KANBAŞ-ÖZEL EĞİTİM UZMANI
#williamssendromu #williamssyndrome #vanipekyolurehabilitasyon #turkey
WİLLİAMS SENDROMLU ÇOCUKLAR İÇİN ERKEN EĞİTİMİN ÖNEMİ NEDİR ? Williams Sendromlu bir çocuğun doğumuyla beraber çocuklarda çeşitli sağlık problemleri görülebilmektedir. Bu tür sorunlar çocuğun gelişimini olumsuz etkileyebilir . Ayrıca bu çocukların yaşamlarında gelişim hızları yavaştır. Anne-babalar gerek doğumdan itibaren karşılaştıkları sağlık sorunları gerekse de gelişim hızlarındaki geriliklerinden dolayı da bir karamsarlık içine düşebilmektedirler. Ancak Williams Sendromlu çocuklar için özel eğitim çok önemlidir. Özel eğitim hizmetlerinin çocuğa erken yaşlarda verilmesi daha da önem taşımaktadır. Çünkü bu çocuklarda büyük kas becerilerinde, küçük kas becerilerinde, konuşma ve anlama becerilerinde, özbakım becerilerinde,bilişsel becerilerde yaşıtlarına oranla önemli gerilikler bulunabilmektedir. Bu çocukların tüm bu becerilerde göstermiş olduğu gerilikler ve yetersizlikler ancak özel eğitim ve küçük yaşlarda verilebilecek erken eğitim hizmetleri ile olacaktır. Bu çocuklarda eğitimlerinde amaç bir birey olarak bağımsız yaşayabilmelerini sağlamak olmalıdır. Ayrıca Williams Sendromlu çocuğa verilen özel eğitimin niteliği ve özel eğitimi veren eğitimcinin özellikleri de çok önem taşımaktadır. Williams Sendromlu çocuklara sağlanan özel eğitim çocuğun eğitim ihtiyaçlarına uygun nitelikte bir eğitim olmalıdır. Tüm özel eğitime ihtiyaç çocuklarda olduğu gibi Williams Sendromlu çocuklarda da en önemli olan şey zamanın eğitimler açısından doğru olarak kullanılabilmesidir. Ayrıca Williams Sendromlu çocuğa eğitim veren eğitimci de bu çocukların tüm özellikleri iyi bilmeli ve çocukların ihtiyaçlarına uygun bir eğitim programı hazırlamalı ve uygulamalıdır. ERDİ KANBAŞ-ÖZEL EĞİTİM UZMANI #williamssendromu  #williamssyndrome  #vanipekyolurehabilitasyon  #turkey 
💻
色々ご縁がありまして、
ウィリアムズ症候群のご家族に向けて、言語についてお話しさせていただきました。
同じ職種や職場内で発表する機会はあれど、
障害を持つお子さんのご家族にお話しする機会はなかなかなく。
何をどう伝えるか、とてもとてもとーっても悩んだ日々で
内容も試行錯誤の繰り返しでした。
台風でお足元の悪いなか、遠方からいらして下さったご家族の皆さんに
何か少しでも、来て良かったと思っていただけたなら幸いです。
お子さん達の笑顔やご家族の真剣なまなざしに、
言語聴覚士やってて良かったと思った1日でした。
緊張が解けて、気持ちはホッと一息💨
#williamssyndrome 
#ウィリアムズ症候群
#こんな機会を与えて下さって感謝
#祖父が闘病した北里大学にて
#ここで自分が話す日が来るとは
#ウィリアムズのことはもっと知って欲しい
#支援は知ることから
#言語聴覚士
#speechlanguagehearingtherapist
💻 色々ご縁がありまして、 ウィリアムズ症候群のご家族に向けて、言語についてお話しさせていただきました。 同じ職種や職場内で発表する機会はあれど、 障害を持つお子さんのご家族にお話しする機会はなかなかなく。 何をどう伝えるか、とてもとてもとーっても悩んだ日々で 内容も試行錯誤の繰り返しでした。 台風でお足元の悪いなか、遠方からいらして下さったご家族の皆さんに 何か少しでも、来て良かったと思っていただけたなら幸いです。 お子さん達の笑顔やご家族の真剣なまなざしに、 言語聴覚士やってて良かったと思った1日でした。 緊張が解けて、気持ちはホッと一息💨 #williamssyndrome  #ウィリアムズ症候群  #こんな機会を与えて下さって感謝  #祖父が闘病した北里大学にて  #ここで自分が話す日が来るとは  #ウィリアムズのことはもっと知って欲しい  #支援は知ることから  #言語聴覚士  #speechlanguagehearingtherapist 
It's ridiculously early on a Sunday but we're up and excited🙌 because @Wasps_Community #playingadvantage 🐝 is back 🏉⚫💚🏉#loveshisrugby #wasps #rugby #rugbyfamily #disability #inclusion ##waspscommunity #coys #northamptonsaintsrugby #disability #disabilityawareness #williamssyndrome #grassrootsrugby #grassrootsrugby #family
Ever wonder how a superhero sleeps?!?! #rudyjay #williamssyndrome #theluckyfew #ability #teamrudy #teamvalencia
何か違うなーと思いつつハイハイの練習。Something is off...But I crawl on  my hands and knees.I feel good.
#williamssyndrome #feelgood
何か違うなーと思いつつハイハイの練習。Something is off...But I crawl on my hands and knees.I feel good. #williamssyndrome  #feelgood 
Discours de Sylvie, Trésorière de l'association lors de la remise du trophée "Autour des Williams".
#williamssyndrome  #syndromewilliams  #genetique  #maisonslaffitte #hippodrome #equitation #cheval  #courses  #trophee  #prix  #autourdeswilliams  #solidarite
day 3 post operation. Definitely going to take some time to get used to these new battery packs and different ways of carrying him. So hard when he's 4 feet tall!! Overall today has been a little tricky, I'm having some issues figuring out charging these. I'm not going to worry to much since they are so low it's not draining them as they normally would be.  #williamssyndrome #oneinamillion #brainsurgery #postop #positivevibes #prayers #specialneedsmom #mommotivation #thatsdarling #kidsofig #miraclesdohappen #clickinmoms #childhood #warrior #momlife #motherhood #september #candidchildhood #thisisus #motherhoodrising #dailyparenting #nothingisordinary #saturdaymorning #inspired #deepbrainstimulation #blessings
day 3 post operation. Definitely going to take some time to get used to these new battery packs and different ways of carrying him. So hard when he's 4 feet tall!! Overall today has been a little tricky, I'm having some issues figuring out charging these. I'm not going to worry to much since they are so low it's not draining them as they normally would be. #williamssyndrome  #oneinamillion  #brainsurgery  #postop  #positivevibes  #prayers  #specialneedsmom  #mommotivation  #thatsdarling  #kidsofig  #miraclesdohappen  #clickinmoms  #childhood  #warrior  #momlife  #motherhood  #september  #candidchildhood  #thisisus  #motherhoodrising  #dailyparenting  #nothingisordinary  #saturdaymorning  #inspired  #deepbrainstimulation  #blessings 
This time next week 👊🏽
Just to give you a bit more of an insight as to what this challenge actually means to Tyler. Tyler was a very poorly baby and as he grew we were told he would never walk (boy did they get that wrong!)
And eventually he did walk at 6 years old tho still now he has low muscle tone, problems with his joints, mobility and is completely flat footed! 
Besides people with Williams syndrome being extremely overly friendly with outgoing, engaging personalities & an extreme interest in other people. they also share distinctive facial features. 
Plus heart and blood vessel (cardiovascular) problems.
Along with learning difficulties.
Next week Tyler's holding his own charity event and will be doing 24 rounds of boxing to raise money for Williams syndrome and genes for jeans day.
@wsf_uk @jeans_for_genes 
Don't ever let someone tell you that you can't do something! That this is it, this is your outcome and you must live with it because most of the time it's simply just not true!! #24roundswithtyler
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.
.
#williamssyndrome #genesforjeansday #boxing #charity #event #disability #provedthemwrong #myboy #son #gym #fitlife #insperation #workhard #raisemoney #doinghisbit #motivation #saturdaynight #challenge #goals #love
This time next week 👊🏽 Just to give you a bit more of an insight as to what this challenge actually means to Tyler. Tyler was a very poorly baby and as he grew we were told he would never walk (boy did they get that wrong!) And eventually he did walk at 6 years old tho still now he has low muscle tone, problems with his joints, mobility and is completely flat footed! Besides people with Williams syndrome being extremely overly friendly with outgoing, engaging personalities & an extreme interest in other people. they also share distinctive facial features. Plus heart and blood vessel (cardiovascular) problems. Along with learning difficulties. Next week Tyler's holding his own charity event and will be doing 24 rounds of boxing to raise money for Williams syndrome and genes for jeans day. @wsf_uk @jeans_for_genes Don't ever let someone tell you that you can't do something! That this is it, this is your outcome and you must live with it because most of the time it's simply just not true!! #24roundswithtyler  . . . #williamssyndrome  #genesforjeansday  #boxing  #charity  #event  #disability  #provedthemwrong  #myboy  #son  #gym  #fitlife  #insperation  #workhard  #raisemoney  #doinghisbit  #motivation  #saturdaynight  #challenge  #goals  #love 
So so so proud of my little princess!! She may be a little too over loving to her baby brother but she is dealing with the whole change so well! 
Her development is amazing me everyday at the moment. May not seem massive to others but earlier this week this clever little sausage threaded a bead at nursery by herself. So proud of her! And today she has just come over to Zach and said as clear as day "Hi Zach" 
I think that he is going to help her in her development in so many ways it's amazing to see 
Super proud of you Gracie.
Love my little people to the moon and back!! #proudmummy #bigsister #babybrother #love #williamssyndrome
So so so proud of my little princess!! She may be a little too over loving to her baby brother but she is dealing with the whole change so well! Her development is amazing me everyday at the moment. May not seem massive to others but earlier this week this clever little sausage threaded a bead at nursery by herself. So proud of her! And today she has just come over to Zach and said as clear as day "Hi Zach" I think that he is going to help her in her development in so many ways it's amazing to see Super proud of you Gracie. Love my little people to the moon and back!! #proudmummy  #bigsister  #babybrother  #love  #williamssyndrome 
I can't hear what you're saying.(I don't  want to change my diaper)#williamssyndrome
I can't hear what you're saying.(I don't want to change my diaper)#williamssyndrome 
Formal nights with my little adult ❤ #dude #myson #youngman #williamssyndrome #bigsmile
Since we've been home it's been a whirlwind. Ryder has been in pretty bad pain from the surgery. Also adding new devices and things to charge nightly into the mix hasn't been the easiest. I know soon it will become second nature just like everything else we've learned. Tonight we decided to wash Ryder up because he had that hospital smell lingering and I much rather prefer our essential oil blend. He wasn't very happy in the bath since he's so sore. The epsilon detox bath really helped relax him, as I'm currently typing this out he's sleeping! Can I get a hallelujah we got through our first day of recovery!! I believe ( fingers crossed ) we go into clinic next week and will be able to program the stimulation to its settings for day to day life. From my understanding we will have a couple different ones we will switch to during the day, like while he's eating, while he's doing his play time and then bedtime. #williamssyndrome #oneinamillion #brainsurgery #postop #positivevibes #prayers #specialneedsmom #mommotivation #thatsdarling #kidsofig #miraclesdohappen #clickinmoms #childhood #warrior #momlife #motherhood #september #candidchildhood #thisisus #motherhoodrising #dailyparenting #nothingisordinary #fridayfeeling #inspired
Since we've been home it's been a whirlwind. Ryder has been in pretty bad pain from the surgery. Also adding new devices and things to charge nightly into the mix hasn't been the easiest. I know soon it will become second nature just like everything else we've learned. Tonight we decided to wash Ryder up because he had that hospital smell lingering and I much rather prefer our essential oil blend. He wasn't very happy in the bath since he's so sore. The epsilon detox bath really helped relax him, as I'm currently typing this out he's sleeping! Can I get a hallelujah we got through our first day of recovery!! I believe ( fingers crossed ) we go into clinic next week and will be able to program the stimulation to its settings for day to day life. From my understanding we will have a couple different ones we will switch to during the day, like while he's eating, while he's doing his play time and then bedtime. #williamssyndrome  #oneinamillion  #brainsurgery  #postop  #positivevibes  #prayers  #specialneedsmom  #mommotivation  #thatsdarling  #kidsofig  #miraclesdohappen  #clickinmoms  #childhood  #warrior  #momlife  #motherhood  #september  #candidchildhood  #thisisus  #motherhoodrising  #dailyparenting  #nothingisordinary  #fridayfeeling  #inspired 
Really, really loves anyone in one of these giant costumes. We had to stand in line to meet the puppy twice 😂just love this kid! #williamssyndrome
Really, really loves anyone in one of these giant costumes. We had to stand in line to meet the puppy twice 😂just love this kid! #williamssyndrome 
Just over 6 years ago we had (for us) devastating news that Eva had #WilliamsSyndrome. Then #heartsurgery #openheartsurgery 
Would I change anything? 
No. 💙
Thomas has finished his first week in school and smashed it, our total super star. He's managed the new changes really well, he's taken everything in his stride and totally bowled me over with how well he's adjusted. He loves his teachers and is making lots of new friends #myhero #williamssyndrome #proud #luckymummy
Thomas has finished his first week in school and smashed it, our total super star. He's managed the new changes really well, he's taken everything in his stride and totally bowled me over with how well he's adjusted. He loves his teachers and is making lots of new friends #myhero  #williamssyndrome  #proud  #luckymummy 
Our Halloween Collection is now live on our site!! Www.rusksandrebels.co.uk 👻 
Go shop for personalised baby, toddler and children's clothing
Our Halloween Collection is now live on our site!! Www.rusksandrebels.co.uk 👻 Go shop for personalised baby, toddler and children's clothing
#Repost @williams_syndrome_rus 
Мудрость через века. #омархайям #синдромвильямса #williamssyndrome #афоризмывеликихлюдей #душа 💙💙💙💙💙💙💙
息子。メガネ
#my #son #williamssyndrome #williams
I have my toothbrush,but I don't use it.Just to see.My mother use it for me...But I hate that 
time.#williamssyndrome #VS toothbrush
I have my toothbrush,but I don't use it.Just to see.My mother use it for me...But I hate that time.#williamssyndrome  #VS  toothbrush
まず食べる
I eat and make sure...
#williamssyndrome
Surgery went perfect! Recovery was super super quick and painless this time. Guess what WE ARE HOME! Ryder is in a little bit of pain but he's managing very well so far. The next couple days will be rough since he has his new battery packs in. I learned how to charge them today with our new at home devices. Let's hope I can remember what they taught me. Feeling so many emotions so thankful to god. Im just overjoyed to be over this hump and literally so close to the light. I could cry thinking about all we've been through these past years and all the obstacles we've overcame even when the doctors doubted Ryder. I can not wait to share his progress with all of you. So grateful for all the comments, DMs, and texts full of support, love, and prayers! #williamssyndrome #oneinamillion #brainsurgery #postop #positivevibes #prayers #specialneedsmom #mommotivation #thatsdarling #kidsofig #miraclesdohappen #clickinmoms #childhood #warrior #momlife #motherhood #september #candidchildhood #thisisus #motherhoodrising #dailyparenting #nothingisordinary #sundayvibes #inspired
Surgery went perfect! Recovery was super super quick and painless this time. Guess what WE ARE HOME! Ryder is in a little bit of pain but he's managing very well so far. The next couple days will be rough since he has his new battery packs in. I learned how to charge them today with our new at home devices. Let's hope I can remember what they taught me. Feeling so many emotions so thankful to god. Im just overjoyed to be over this hump and literally so close to the light. I could cry thinking about all we've been through these past years and all the obstacles we've overcame even when the doctors doubted Ryder. I can not wait to share his progress with all of you. So grateful for all the comments, DMs, and texts full of support, love, and prayers! #williamssyndrome  #oneinamillion  #brainsurgery  #postop  #positivevibes  #prayers  #specialneedsmom  #mommotivation  #thatsdarling  #kidsofig  #miraclesdohappen  #clickinmoms  #childhood  #warrior  #momlife  #motherhood  #september  #candidchildhood  #thisisus  #motherhoodrising  #dailyparenting  #nothingisordinary  #sundayvibes  #inspired 
That lil cutie on my shoulder....😍
#respitecare #williamssyndrome
Rolling back to the OR sitting up today never have seen Ryder do this but I feel that this is the first of many times I will say this in our future! We finally get to turn these stimulators on for good!!! #prayers #brainsurgery  #williamssyndrome #oneinamillion #brainsurgery #postop #positivevibes #prayers #specialneedsmom #mommotivation #thatsdarling #kidsofig #miraclesdohappen #clickinmoms #childhood #warrior #momlife #motherhood #september #candidchildhood #thisisus #motherhoodrising #dailyparenting #nothingisordinary
Rolling back to the OR sitting up today never have seen Ryder do this but I feel that this is the first of many times I will say this in our future! We finally get to turn these stimulators on for good!!! #prayers  #brainsurgery  #williamssyndrome  #oneinamillion  #brainsurgery  #postop  #positivevibes  #prayers  #specialneedsmom  #mommotivation  #thatsdarling  #kidsofig  #miraclesdohappen  #clickinmoms  #childhood  #warrior  #momlife  #motherhood  #september  #candidchildhood  #thisisus  #motherhoodrising  #dailyparenting  #nothingisordinary 
There is no greater disability in society than the inability to see a person as more. -Robert Hensel  Absolutely in love with this beautiful hat and collar from @an.extra.blessing and suspended skirt from @thistle.and.thorn as well as perfect top from @fancylittlefox #williamssyndromeawareness #williamssyndrome #spd #aba #specialneeds #specialneedsmomlife #deerfollowing #fallvibes #fall #beautifulkids #runwildmychild #cameramama #candidportrait #freelensed #thefreelensed #projectfreelens #thefreelensedproject
There is no greater disability in society than the inability to see a person as more. -Robert Hensel Absolutely in love with this beautiful hat and collar from @an.extra.blessing and suspended skirt from @thistle.and.thorn as well as perfect top from @fancylittlefox #williamssyndromeawareness  #williamssyndrome  #spd  #aba  #specialneeds  #specialneedsmomlife  #deerfollowing  #fallvibes  #fall  #beautifulkids  #runwildmychild  #cameramama  #candidportrait  #freelensed  #thefreelensed  #projectfreelens  #thefreelensedproject 
Prepped and ready for surgery! Today is our last surgery 🙌🏼 overwhelmed with emotions. The 4th and final surgery for us! I'm so elated I could scream, but I'm also so freaking scared. This is a brand new life again. Brand new kid we get to learn all over. I'm going in alone since last time we brought our daughter and she was so worked up she barfed all over the hospital 🤣🤦🏼‍♀️ please send prayers, love, good vibes anything our way for this last one to go as smooth as possible and Ryder to not be in that much pain. They are placing two batteries under his chest muscle so I expect a lot of pain 😭  #williamssyndrome #oneinamillion #brainsurgery #postop #positivevibes #prayers #specialneedsmom #mommotivation #thatsdarling #kidsofig #miraclesdohappen #clickinmoms #childhood #warrior #momlife #motherhood #september #candidchildhood #thisisus #motherhoodrising #dailyparenting #nothingisordinary #thursdaymotivation
Prepped and ready for surgery! Today is our last surgery 🙌🏼 overwhelmed with emotions. The 4th and final surgery for us! I'm so elated I could scream, but I'm also so freaking scared. This is a brand new life again. Brand new kid we get to learn all over. I'm going in alone since last time we brought our daughter and she was so worked up she barfed all over the hospital 🤣🤦🏼‍♀️ please send prayers, love, good vibes anything our way for this last one to go as smooth as possible and Ryder to not be in that much pain. They are placing two batteries under his chest muscle so I expect a lot of pain 😭 #williamssyndrome  #oneinamillion  #brainsurgery  #postop  #positivevibes  #prayers  #specialneedsmom  #mommotivation  #thatsdarling  #kidsofig  #miraclesdohappen  #clickinmoms  #childhood  #warrior  #momlife  #motherhood  #september  #candidchildhood  #thisisus  #motherhoodrising  #dailyparenting  #nothingisordinary  #thursdaymotivation 
Thursday wisdom for you. Let's hear for all the kind kids!! #Avagirl #adenboy #bullyinghurts #bekind #beafriend #CAWS #williamssyndrome
Happy 1st week of dance classes! We are so excited to have all our dancers back and some new dancers too in our danceabilty movement class. #thedancefactory #the_dance_factory #glassboro #tdffamily #tdfdancers #downsyndrome #autism #glassboro #gloucestercounty #williamssyndrome
C'est un immense plaisir pour nous d'être soutenu pour la 11e année consécutive par le #DFCO. On grandit côte à côte🤝!
#williamssyndrome #ligue1 #foot #soutien #williamsfamily #syndromewilliams #dijon #ligue1conforama
During ABA this evening, we took a little trip to watch the deer in one of our favorite spots, and practiced safety awareness and use of language while I grabbed a few photos!-this is the kind of multi-tasking that I can handle, lol!  Gorgeous hat and Peter Pan collar from our sweet friends @an.extra.blessing , beautiful suspended skirt from @thistle.and.thorn and adorable top from @fancylittlefox #williamssyndromeawareness #williamssyndrome #aba #specialneeds #specialneedsmomlife
During ABA this evening, we took a little trip to watch the deer in one of our favorite spots, and practiced safety awareness and use of language while I grabbed a few photos!-this is the kind of multi-tasking that I can handle, lol! Gorgeous hat and Peter Pan collar from our sweet friends @an.extra.blessing , beautiful suspended skirt from @thistle.and.thorn and adorable top from @fancylittlefox #williamssyndromeawareness  #williamssyndrome  #aba  #specialneeds  #specialneedsmomlife 
A letter: "Dear Calub Ryan,
. 
My sweet, sweet boy. Yesterday, after an especially difficult time with your reading homework, you said to me, "I can't read because I'm not a smart boy." My heart shattered into a million pieces. I pulled you close to me and cried. Maybe I shouldn't have cried because it made you cry, too, but it was all I could do in that moment. We talked about how amazing you are, and that you are so very smart. .
.
I'm still heartbroken today. I can still hear your sweet little voice telling me that you aren't smart, and I wish I could fix it somehow. Because here's the thing. You ARE smart. SO smart. You may take a little longer than others to grasp concepts. You might not be a fluent reader yet. You maybe still need some help with your writing. But, you. Are. Smart. You remember things that many other people would never remember. Once you get a concept, you get it, and it's like you've always done it. You can read other people's faces and know their feelings.
.
.
Here's the other thing. Being smart isn't the most important thing in the world. You're funny. And caring. And you're just about the kindest boy I've ever known. You know when Mama needs an extra hug or 2. You find the beauty in flowers and the magic in the moon. You stop to see the small, every day things that we often pass by. You are courageous. You have been through more in your short life than some people will go through in 80 years, and you still smile as if every day is magical. You have fought for the skills you have when most people would give up. You give your daddy and I strength that we never thought we'd have. And, you can fill a room with so much love and joy. Do you know how many people tell me they just love you and love being around you? Those things are far more important than being smart. .
.
You are a gift, Calub Ryan. I tell you all the time that you are the greatest gift I have ever been given, and I mean it. Your life is not without challenges, but I wouldn't trade those challenges for the world. .
.
Don't you ever believe that you're anything less than amazing, because you are just that- amazing. And, remember, <<<continued in comments ⤵️
A letter: "Dear Calub Ryan, . My sweet, sweet boy. Yesterday, after an especially difficult time with your reading homework, you said to me, "I can't read because I'm not a smart boy." My heart shattered into a million pieces. I pulled you close to me and cried. Maybe I shouldn't have cried because it made you cry, too, but it was all I could do in that moment. We talked about how amazing you are, and that you are so very smart. . . I'm still heartbroken today. I can still hear your sweet little voice telling me that you aren't smart, and I wish I could fix it somehow. Because here's the thing. You ARE smart. SO smart. You may take a little longer than others to grasp concepts. You might not be a fluent reader yet. You maybe still need some help with your writing. But, you. Are. Smart. You remember things that many other people would never remember. Once you get a concept, you get it, and it's like you've always done it. You can read other people's faces and know their feelings. . . Here's the other thing. Being smart isn't the most important thing in the world. You're funny. And caring. And you're just about the kindest boy I've ever known. You know when Mama needs an extra hug or 2. You find the beauty in flowers and the magic in the moon. You stop to see the small, every day things that we often pass by. You are courageous. You have been through more in your short life than some people will go through in 80 years, and you still smile as if every day is magical. You have fought for the skills you have when most people would give up. You give your daddy and I strength that we never thought we'd have. And, you can fill a room with so much love and joy. Do you know how many people tell me they just love you and love being around you? Those things are far more important than being smart. . . You are a gift, Calub Ryan. I tell you all the time that you are the greatest gift I have ever been given, and I mean it. Your life is not without challenges, but I wouldn't trade those challenges for the world. . . Don't you ever believe that you're anything less than amazing, because you are just that- amazing. And, remember, <<
Pic one: "Cael, get back here, I forgot to get your picture" as he burns down the back alley. Welcome to grade 7.
Pic two: "Chase, say cheese. Chase, look at mom. Chase, over here" whatever, take the picture, it is what it is . Welcome to grade 4. 
Pic three: "Carter, smile for your first day" as he questioned why he has to go to school but Molly the dog doesn't have to go to school. Welcome to the first day kindergarten. 
#lifewithboys #crowefamilyoffive #williamssyndrome #firstdayofschool #hspaulschool
Pic one: "Cael, get back here, I forgot to get your picture" as he burns down the back alley. Welcome to grade 7. Pic two: "Chase, say cheese. Chase, look at mom. Chase, over here" whatever, take the picture, it is what it is . Welcome to grade 4. Pic three: "Carter, smile for your first day" as he questioned why he has to go to school but Molly the dog doesn't have to go to school. Welcome to the first day kindergarten. #lifewithboys  #crowefamilyoffive  #williamssyndrome  #firstdayofschool  #hspaulschool 
"I read Braille, what's your super power?" #BrailleShirt

Fun Fact - "People who are blind are just as likely as anyone else to experience vivid dreams while sleeping. The difference is that their dreams are dominated by sounds, smells and tastes. A study also suggests that people who are blind endure significantly more nightmares than sighted." #TeamsGiosJourney #VisuallyImpaired #Blind #SuperPowers #WilliamsSyndrome #BeastMode #Fearless
Good morning everybody! 
Fundraising starts in May 2018! We will be walking for Williams! Could you all please like and share our first post which contains my nephew Ben's story! 
If you would like to join the fun or follow us and our story please like and share our Facebook page www.facebook.com/walk4williams

I hope everybody has a fantastic day! ☺️❤️ #williamssyndrome  #williamssyndromeawareness #williamssyndromelove #fundraising
Good morning everybody! Fundraising starts in May 2018! We will be walking for Williams! Could you all please like and share our first post which contains my nephew Ben's story! If you would like to join the fun or follow us and our story please like and share our Facebook page www.facebook.com/walk4williams I hope everybody has a fantastic day! ☺️❤️ #williamssyndrome  #williamssyndromeawareness  #williamssyndromelove  #fundraising 
I'm so pleased that we finally have a release date for the new Williams Syndrome Foundation Charity Single - it's Friday 1st December!!
The single is called #talktome and I've co-written the track with the fantastic @danlauracurtis!
To celebrate its release, there will be a Launch Party hosted by the awesome little Harri Evans, a four year old boy who has Williams Syndrome!! The party will be held at Crumlin Rugby Club on 1st December, where The Kiltics will be performing live, we will also be exclusively releasing the charity single video too, along with a few other surprises thrown in, so make sure you all come along 🎶
#williamssyndrome #charitysingle #music #songwriters #launchparty #livemusic #singlerelease
I'm so pleased that we finally have a release date for the new Williams Syndrome Foundation Charity Single - it's Friday 1st December!! The single is called #talktome  and I've co-written the track with the fantastic @danlauracurtis! To celebrate its release, there will be a Launch Party hosted by the awesome little Harri Evans, a four year old boy who has Williams Syndrome!! The party will be held at Crumlin Rugby Club on 1st December, where The Kiltics will be performing live, we will also be exclusively releasing the charity single video too, along with a few other surprises thrown in, so make sure you all come along 🎶 #williamssyndrome  #charitysingle  #music  #songwriters  #launchparty  #livemusic  #singlerelease 
Wow she is a beaut.....she would make a great air hostess #thomascook #williamssyndrome #daughter #kindheart
Those sorting skills tho 😍#ability #williamssyndrome #sorting #development #amazing