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We have decided to go ahead with the cochlear implant surgery for Kyle, and we have an operation date... 9th February... I’m still very scared for Kyle to have the procedure done :( #cochlearimplant #hearingloss #hearinglossawareness #deaf #deafcommunity #hardofhearing #deafsociety #hearingaids #needgoodvibes #scared #williamssyndrome #williamssyndromeawareness
This beautiful little hero of ours has just had a wee and poo on the toilet.... sorry for being graphic but this is an absolute achievement for Thomas, he's also been doing well at school with his toiletting and I couldn't be prouder. Having Williams Syndrome means that Thomas develops at a much slower rate than his peers, everything comes just like it does a typical (hate the word 'normal') child but it takes time. I have literally just jumped for joy, cheered so loud I'm sure the neighbours heard and danced in circles on the landing whilst Tom sat there and laughed at me. I am a mummy to a child with additional needs, i have been through things i never envisaged good and bad, hes taught me to never take anything for granted and hes made me the mother i am today and I love him to the moon and back always and forever #myhero #williamssyndrome #superstar
This beautiful little hero of ours has just had a wee and poo on the toilet.... sorry for being graphic but this is an absolute achievement for Thomas, he's also been doing well at school with his toiletting and I couldn't be prouder. Having Williams Syndrome means that Thomas develops at a much slower rate than his peers, everything comes just like it does a typical (hate the word 'normal') child but it takes time. I have literally just jumped for joy, cheered so loud I'm sure the neighbours heard and danced in circles on the landing whilst Tom sat there and laughed at me. I am a mummy to a child with additional needs, i have been through things i never envisaged good and bad, hes taught me to never take anything for granted and hes made me the mother i am today and I love him to the moon and back always and forever #myhero  #williamssyndrome  #superstar 
We are proud to announce that we are beginning our Drama 4 All programs tomorrow! We cannot wait to meet all of our participants! Stay tuned to see our program grow!
We are proud to announce that we are beginning our Drama 4 All programs tomorrow! We cannot wait to meet all of our participants! Stay tuned to see our program grow!
We are so excited! Not even a week into planning and we have already confirmed three return sponsors!!! So much thanks to Justin, Shelbi and Cecilia. We appreciate your continued support for the Canadian Association for Williams Syndrome 💙💚💜 These amazing folks are providing face painter, bouncy castle and tea and coffee. So much fun. 
Do you want to be part of an amazing fun filled day? We are always searching for sponsors and donations. Nothing is too big or small. DM me to help support such an amazing "CAWS". #awareness #support #donate #CAWS #Walk for #williamssyndrome #sponsorship #novascotia #halifax #bedford #happiestwalk
We are so excited! Not even a week into planning and we have already confirmed three return sponsors!!! So much thanks to Justin, Shelbi and Cecilia. We appreciate your continued support for the Canadian Association for Williams Syndrome 💙💚💜 These amazing folks are providing face painter, bouncy castle and tea and coffee. So much fun. Do you want to be part of an amazing fun filled day? We are always searching for sponsors and donations. Nothing is too big or small. DM me to help support such an amazing "CAWS". #awareness  #support  #donate  #CAWS  #Walk  for #williamssyndrome  #sponsorship  #novascotia  #halifax  #bedford  #happiestwalk 
Shout out to True Access' very own Nick Dorner who will be on The Undateables this evening on @channel4 ! He said he had a great time filming the show, but that we had to wait and see if his date went well! #finallyhere #mustwatch #trueaccess #learningdisabilty #williamssyndrome #undateables  #positivevibes
This week my gorgeous little nephew freddie will be having a heart op in southampton due to having a narrowing of part of his aorta. This little man is the toughest and despite everything he is the happiest little boy, constantly beaming away every day. He has got this 💕🦊✨👊 #williamssyndrome #williamsawareness #chd
This week my gorgeous little nephew freddie will be having a heart op in southampton due to having a narrowing of part of his aorta. This little man is the toughest and despite everything he is the happiest little boy, constantly beaming away every day. He has got this 💕🦊✨👊 #williamssyndrome  #williamsawareness  #chd 
Hurra fær gromgut’n vår Ragnar 😃 6 år i dag ❤️ #ragnar#6år#boksaspa#hurra#williamssyndrome#bursdagsgutt#storsjarmør
Special day today as it's the 1 year aniverisary of @wasps_community #playingadvantage rugby and what a brilliant year it's been!🐝 🏉⚫💚💛🏉
This guy @marcusgarratt
Is Ronan 's hero, even though he plays for the wrong midlands team. He should come more often as the boy was reasonably quiet and well behaved today!!😇 #loveshisrugby #wasps #rugby #rugbyfamily #disability #inclusion ##waspscommunity #coys #northamptonsaintsrugby #disability #disabilityawareness #williamssyndrome #grassrootsrugby #grassrootsrugby #family #lovingit #coventry #alwaysasaint
Special day today as it's the 1 year aniverisary of @wasps_community #playingadvantage  rugby and what a brilliant year it's been!🐝 🏉⚫💚💛🏉 This guy @marcusgarratt Is Ronan 's hero, even though he plays for the wrong midlands team. He should come more often as the boy was reasonably quiet and well behaved today!!😇 #loveshisrugby  #wasps  #rugby  #rugbyfamily  #disability  #inclusion  ##waspscommunity  #coys  #northamptonsaintsrugby  #disability  #disabilityawareness  #williamssyndrome  #grassrootsrugby  #grassrootsrugby  #family  #lovingit  #coventry  #alwaysasaint 
Don't ask me, What you know is true, Don't have to tell you, I love your precious heart, I was standing, You were there, Two worlds collided, And they could never tear us apart... #bff #absencemakestheheartgrowfonder #surprises #happyplace
The Prince is headed home ❤️❤️ #williamssyndrome #heartwarrior
Jenny and I went out for a bowl this morning. Jenny told the guy at check in "I don't need no stinking bumpers" but they wouldn't let me get bumpers 😂 Anywho she killed me as always and then I owed her a slurpee. 
#williamssyndrome
Jenny and I went out for a bowl this morning. Jenny told the guy at check in "I don't need no stinking bumpers" but they wouldn't let me get bumpers 😂 Anywho she killed me as always and then I owed her a slurpee. #williamssyndrome 
@iluminatedance you all have our hearts! We had the best time at your show!!! AMAZING #letsbehonest #sunnyjeweldobbs #iluminate #sunrisetheatre #williamssyndrome #love #celebrate #fun #dance
I was invited to a press conference today to ride the new #BART trains. They were so cool. Acessible and comfortable. Even though the sound was quieter, I was still able to hear when I was approaching the stop before the announcement. Everyone at BART knows how to make a kid feel special. My friend Alicia Trost is the Department Manager and she invited me as her guest of honor to the event. My friend Tatiana was our tour guide again & she always takes care of us! Thanks for my new BART backpack!! The best part of my day was getting to bring my cousins and uncle along for the first ride. Today was another day I won’t forget 😎 #TeamGiosJourney #BayAreaTransit #BART #BayArea #NewTrains #BartBoy #WilliamsSyndrome #VisuallyImpaired #Accessibility #Transportation 🚈🚈
I was invited to a press conference today to ride the new #BART  trains. They were so cool. Acessible and comfortable. Even though the sound was quieter, I was still able to hear when I was approaching the stop before the announcement. Everyone at BART knows how to make a kid feel special. My friend Alicia Trost is the Department Manager and she invited me as her guest of honor to the event. My friend Tatiana was our tour guide again & she always takes care of us! Thanks for my new BART backpack!! The best part of my day was getting to bring my cousins and uncle along for the first ride. Today was another day I won’t forget 😎 #TeamGiosJourney  #BayAreaTransit  #BART  #BayArea  #NewTrains  #BartBoy  #WilliamsSyndrome  #VisuallyImpaired  #Accessibility  #Transportation  🚈🚈
Checking out the new BART trains with @alexsavidgektvu and my cousins 🚈🚈 #TeamGiosJourney #BartBoy #BayAreaRapidTransit #KTVUNews #FullyAccesible #WilliamsSyndrome #Transportation #VisuallyImpaired #Fearless #GuestOfHonor
My Uncle Kevin drew a Llama 🤗... he’s sure getting creative #wsa #williamssyndrome #williamssyndromeawareness
Because 1 pic of #leothelion🦁 is never enough! This happy little man is everything to me! It’s interesting how hard life started with him, and now, I couldn’t imagine a moment without this perfect little guy! #williamssyndrome #notwhatweexpected #evenbetter ❤️
Because 1 pic of #leothelion ðŸ¦ is never enough! This happy little man is everything to me! It’s interesting how hard life started with him, and now, I couldn’t imagine a moment without this perfect little guy! #williamssyndrome  #notwhatweexpected  #evenbetter  ❤️
For those that didn’t know, there are oodles of kids belly dancing class videos on YouTube. I have no idea how she found them, but Alma has been preparing for Belly Dancing Class for months. I finally found a kids Belly Dancing class and here’s a little #boomerang from her first few moments wearing her “jingle skirt” for the first time. She feels she was born for this. So Belly Dancing 5 year old it is. #almstagram #inclusion #disability #dance #dancemom #bellydancemom #williamssyndrome #williamssyndromeawareness #parenting #toronto #lovetoronto #gowiththeflow
For those that didn’t know, there are oodles of kids belly dancing class videos on YouTube. I have no idea how she found them, but Alma has been preparing for Belly Dancing Class for months. I finally found a kids Belly Dancing class and here’s a little #boomerang  from her first few moments wearing her “jingle skirt” for the first time. She feels she was born for this. So Belly Dancing 5 year old it is. #almstagram  #inclusion  #disability  #dance  #dancemom  #bellydancemom  #williamssyndrome  #williamssyndromeawareness  #parenting  #toronto  #lovetoronto  #gowiththeflow 
Learn more about Adam on his @gofundme page! ❤️ link in profile ❤️ #allheartsforadam #gofundme #williamssyndrome
🎥 #TBT from @livewellcharlotte’s #BalanceYourBody program during @CampBlueSkies #WilliamsSyndrome session. 🙌 on those passes! 
Looking forward to seeing everyone @ #CampBlueSkies #WilliamSyndrome 3/19-23 @ @camptwinlakes in #Georgia. 🙌 to @williamssyndrome for their partnership.
#WorldsGreateast 🌎🏆💙💛
Looking forward to growing more veggies in our awesome garden this year.
Looking forward to growing more veggies in our awesome garden this year.
#littleabigtrouble is always asking me to snap a picture of her when she sees my camera, and with a smile like hers I’m always inclined to say yes! Messy food face and all ❤️ .
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#motherhoodsimplified #momtogs #messybeauty #williamssyndrome #williamssyndromeawareness #middlechild
Trying to adjust back to regular life after our Disneyland trip, but realizing our regular life is pretty magical, too.  And this smile, nothing is more magical than that 😍😍😍. #williamssyndrome #williamssyndromeawareness #specialneedsdisney
My names maddy I have Williams syndrome a lot of people don’t understand what it is I am missing my 7th chromosome and it’s very rare I was diagnosed when I was little I’ve had a lot of obstacles in life but William syndrome does not define me ❤️ #williamssyndrome #donotletitdefineyou
My names maddy I have Williams syndrome a lot of people don’t understand what it is I am missing my 7th chromosome and it’s very rare I was diagnosed when I was little I’ve had a lot of obstacles in life but William syndrome does not define me ❤️ #williamssyndrome  #donotletitdefineyou 
Aurora has a blanket that used to be my blanket as a child.  It was made by my mother and its extremely soft (partially because of age) and comfy. It is has been well loved over the years and is not in the best shape any longer. My mother made her a new beautiful personalized blanket for Christmas which she loves and she told me to put away her "blankie", that she didn't need it anymore. I felt happy she was making this decision on her own but sad in a way; just another sign that my sweet baby girl is growing up.  I sent her blankie through the wash one more time so I could pack it up with our keepsakes. It didn't make it there. Ari saw the blanket sitting there folded and snatched it up. "My pink blanket!" She pulled it close to her face,  cuddled into bed,  and shortly after fell asleep.  I know she's growing up but it makes my heart smile that maybe it's not today. ❤
#growingup #staymybaby #blankie #familykeepsake #alwaysbemybaby #shehasmyheart #williamssyndrome #wsweewarriors
Aurora has a blanket that used to be my blanket as a child. It was made by my mother and its extremely soft (partially because of age) and comfy. It is has been well loved over the years and is not in the best shape any longer. My mother made her a new beautiful personalized blanket for Christmas which she loves and she told me to put away her "blankie", that she didn't need it anymore. I felt happy she was making this decision on her own but sad in a way; just another sign that my sweet baby girl is growing up. I sent her blankie through the wash one more time so I could pack it up with our keepsakes. It didn't make it there. Ari saw the blanket sitting there folded and snatched it up. "My pink blanket!" She pulled it close to her face, cuddled into bed, and shortly after fell asleep. I know she's growing up but it makes my heart smile that maybe it's not today. ❤ #growingup  #staymybaby  #blankie  #familykeepsake  #alwaysbemybaby  #shehasmyheart  #williamssyndrome  #wsweewarriors 
We can’t believe our video has hit 1 MILLON views! Thank you to everyone who is supporting our journey! Today we are celebrating this milestone on a rare louisiana snow day ❄️💕
#sisters #1millionviews #1million #milestone #vlogger #sisterslove #fearless #snowday #williamssyndrome #williams #explore #learn #grow
Closed today due to the weather.  Stay safe. Stay warm.
#snowday #townsendhousegifts #staywarm #williamssyndrome #bestmodelever
No outdoor recess in the foreseeable future. 😨 Ugh.  #indianawinter Nolan, full of #energy and #life, along with the struggle to control #emotions and #behaviors, not being able to get #outside is HHHAAAARRRRDDD on him... Like really hard.  I truly don't think he was meant to live in a place where #weather ❄ prevents his #ourdoorplay (have you ever googled the benefits of getting outdoors even in the winter?). Alas, I can't control the weather, but I can let him "snow plow" before school, in the hopes he can hold it together for the day. #williamssyndromeawarenss #williamssyndrome #highenergy
No outdoor recess in the foreseeable future. 😨 Ugh. #indianawinter  Nolan, full of #energy  and #life , along with the struggle to control #emotions  and #behaviors , not being able to get #outside  is HHHAAAARRRRDDD on him... Like really hard. I truly don't think he was meant to live in a place where #weather  ❄ prevents his #ourdoorplay  (have you ever googled the benefits of getting outdoors even in the winter?). Alas, I can't control the weather, but I can let him "snow plow" before school, in the hopes he can hold it together for the day. #williamssyndromeawarenss  #williamssyndrome  #highenergy 
起きた!と思ったらまた寝てた。。
Go right back to sleep...
#gobacktosleep #williamssyndrome
起きた!と思ったらまた寝てた。。 Go right back to sleep... #gobacktosleep  #williamssyndrome 
First Australian Open Tennis day, dude: “I liked the girls the best” #dudesyearoffirsts #dudeandalex #australianopen #tennis
My beautiful girl just hanging out @werockthespectrumkidsgym #williamssyndrome #williamssyndromeawareness #monielove
Today life challenged you and you said “is that all you got!” My sweet little brave warrior child all I can promise you is that I will always be in your corner rooting for you no matter what. This earthly life can continue to take everything from you you never thought could be taken....but your momma is here to assure you that I will make up for everything it takes and more. Deaf in your left ear? Not the news I expected to hear but it could be worse. #theluckyfew 💕👂
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#sunnyjeweldobbs #williamssyndromelove #wsweewarriors #wegotthis #happygirl #loveyourself #namaste #freeyourmind #lifeisgood #lifeisajourney #ability #williamssyndrome #theluckyfew #unique #beautiful #williamssyndromeawareness #ws #love #strength #photooftheday #amazing #picoftheday #onlyupfromhere
Today life challenged you and you said “is that all you got!” My sweet little brave warrior child all I can promise you is that I will always be in your corner rooting for you no matter what. This earthly life can continue to take everything from you you never thought could be taken....but your momma is here to assure you that I will make up for everything it takes and more. Deaf in your left ear? Not the news I expected to hear but it could be worse. #theluckyfew  💕👂 . #sunnyjeweldobbs  #williamssyndromelove  #wsweewarriors  #wegotthis  #happygirl  #loveyourself  #namaste  #freeyourmind  #lifeisgood  #lifeisajourney  #ability  #williamssyndrome  #theluckyfew  #unique  #beautiful  #williamssyndromeawareness  #ws  #love  #strength  #photooftheday  #amazing  #picoftheday  #onlyupfromhere 
"Did you name your son 'William'  because he has Williams syndrome?' That's how Mary Chen first found out that her son has the syndrome.  William is socially uninhibited and musically inclined, two typical characteristics of those with Williams syndrome.
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#williamssyndrome (WS) is a  rare genetic developmental disorder which affects many parts of the body. .
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#williamssyndrome_malaysia
#iamrare
#thisability
#raredisorder_malaysia
#raredisorderawarenesscampaign
#raredisorderregistry
#FirstMalaysianRDConference
"Did you name your son 'William' because he has Williams syndrome?' That's how Mary Chen first found out that her son has the syndrome. William is socially uninhibited and musically inclined, two typical characteristics of those with Williams syndrome. . #williamssyndrome  (WS) is a rare genetic developmental disorder which affects many parts of the body. . . #williamssyndrome_malaysia  #iamrare  #thisability  #raredisorder_malaysia  #raredisorderawarenesscampaign  #raredisorderregistry  #FirstMalaysianRDConference 
After a long break we are back in the studio bursting with ideas!
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#williamssyndrome #abilitynotdisability #contemporaryart #pyramidofarts #d3mw #illustration #printmaking #abstract
Sunday vibes brought to you by constipation #williamssyndrome #issues #pleasemakeitstop
Of all the things I never thought I would do... Run a 5 week basketball 🏀 program for kiddos with special needs. 
But, God has a way of growing and refining us in ways we never anticipated and quite frankly, never wanted. 
But, today, we stood in a gym full of the most amazing creatures walking the earth.  Some with #autism #brittlebonedisease #downsyndrome #SPD #ADHD #developmentaldelays #cognitivedelays, and of course I'm partial to the one you're looking at who was is our 1 in 10,000, born with #williamssyndrome. I became super grateful God doesn't keep me where I'm comfortable.  That He takes something I once would have considered uncomfortable and turned it into a life long experience I feel honored to be gifted with🎁. I watched my daughters offer a hand without reservation to a girl, who was perfect, yet, awkward and drooling. And, I think to myself, thank you Lord for putting us here. 
So, when there's no place for a boy to play ball, you create the experience for him.  And when you do,  you realize it wasn't just meant for him, it was meant for you too. #specialneedsparenting #enjoyingthejourney #basketball
Of all the things I never thought I would do... Run a 5 week basketball 🏀 program for kiddos with special needs. But, God has a way of growing and refining us in ways we never anticipated and quite frankly, never wanted. But, today, we stood in a gym full of the most amazing creatures walking the earth. Some with #autism  #brittlebonedisease  #downsyndrome  #SPD  #ADHD  #developmentaldelays  #cognitivedelays , and of course I'm partial to the one you're looking at who was is our 1 in 10,000, born with #williamssyndrome . I became super grateful God doesn't keep me where I'm comfortable. That He takes something I once would have considered uncomfortable and turned it into a life long experience I feel honored to be gifted with🎁. I watched my daughters offer a hand without reservation to a girl, who was perfect, yet, awkward and drooling. And, I think to myself, thank you Lord for putting us here. So, when there's no place for a boy to play ball, you create the experience for him. And when you do, you realize it wasn't just meant for him, it was meant for you too. #specialneedsparenting  #enjoyingthejourney  #basketball 
#williamssyndrome my boy😍😍
Happy 10 months to the most sweet and adorable baby boy out there!!!
I love you with all my heart and soul Lucas!! Daddy and I will be with you every step of the way!!
Can’t believe he will be 1 in a couple months! 😭😭😭
I want another one! 😂😂😂💕💕💕 #10months #10monthsold #williamssyndrome #ilovemyson #cutenessoverload #cutebabies
Happy 10 months to the most sweet and adorable baby boy out there!!! I love you with all my heart and soul Lucas!! Daddy and I will be with you every step of the way!! Can’t believe he will be 1 in a couple months! 😭😭😭 I want another one! 😂😂😂💕💕💕 #10months  #10monthsold  #williamssyndrome  #ilovemyson  #cutenessoverload  #cutebabies 
When life gives you missing genes you give it so much more...
Look at that perfect beautiful face... Q. how is this dismorphic? A. There's no such thing as dismorphic. Every child is beautiful. Unique is beauty.
#handsomeboy #dickiebow #mickeymouse #cute #beautiful #williamssyndrome #lovedoesntcountgenes #notmissingbeauty
I can’t enough of this video. I love my babies their growing up way to fast. #throwback #myloves #mybabies #myboyandmygirl #proudmommy #proudmama #proudmom #theymakelifebetter #williamssyndrome #myladybug #mylilman
These two are the funniest duo... a special thank you to Zoe and Caleb for being awesome, patient and for creating a safe space that allowed dude to push his boundaries knowing that crying babies and babies are one of his autistic triggers.... this is the first time in 18 years where dude has actually asked a baby over for a cuddle #dudesyearoffirsts #autism #williamssyndrome #kickinggoals
These two are the funniest duo... a special thank you to Zoe and Caleb for being awesome, patient and for creating a safe space that allowed dude to push his boundaries knowing that crying babies and babies are one of his autistic triggers.... this is the first time in 18 years where dude has actually asked a baby over for a cuddle #dudesyearoffirsts  #autism  #williamssyndrome  #kickinggoals 
I was Zoe’s peer buddy in high school and now she is one of my closest friends. Zoe has Williams syndrome and is the most beautiful and pure soul I know ❤️ this weekend she dragged me around universal and was the thing one to my thing two 😂😘
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#williamssyndrome #peerbuddy #specialneeds #chronicillness #chronicpain #chronicfatigue #cfs #fatigue #fibromyalgia #foodallergies #foodsensitivity #sensoryprocessing #leakygut