I går var det födelsedagsfirande då bägge barnen fyllde år ....sonen slog till med 25 och dottern 23💫🎉🎊Tiden har verkligen sprungit iväg ...oavsett är jag så stolt över mina bägge barn ,allt som de kämpar med och allt vi gått igenom som familj( och för att bli en familj) ....de är fina människor och starka individer som gör sitt bästa trots sjukdomar och andra utmaningar ..... De ger inte upp !#williamssyndrome#diabetes1#fuckdiabetes#endo Hundarna var självklart med och gratulerade 😉#dalmatiner#bordercollie#doglife
Gorgeous, ethical Autumn and Winter kids clothing from Rusks and Rebels!! Check out our Personalised Flock Baby & Toddler Onesie online along with lots of other personalised classics!! Www.rusksandrebels.co.uk
WİLLİAMS SENDROMLU ÇOCUKLAR İÇİN ERKEN EĞİTİMİN ÖNEMİ NEDİR ?
Williams Sendromlu bir çocuğun doğumuyla beraber çocuklarda çeşitli sağlık problemleri görülebilmektedir. Bu tür sorunlar çocuğun gelişimini olumsuz etkileyebilir . Ayrıca bu çocukların yaşamlarında gelişim hızları yavaştır. Anne-babalar gerek doğumdan itibaren karşılaştıkları sağlık sorunları gerekse de gelişim hızlarındaki geriliklerinden dolayı da bir karamsarlık içine düşebilmektedirler. Ancak Williams Sendromlu çocuklar için özel eğitim çok önemlidir. Özel eğitim hizmetlerinin çocuğa erken yaşlarda verilmesi daha da önem taşımaktadır. Çünkü bu çocuklarda büyük kas becerilerinde, küçük kas becerilerinde, konuşma ve anlama becerilerinde, özbakım becerilerinde,bilişsel becerilerde yaşıtlarına oranla önemli gerilikler bulunabilmektedir. Bu çocukların tüm bu becerilerde göstermiş olduğu gerilikler ve yetersizlikler ancak özel eğitim ve küçük yaşlarda verilebilecek erken eğitim hizmetleri ile olacaktır. Bu çocuklarda eğitimlerinde amaç bir birey olarak bağımsız yaşayabilmelerini sağlamak olmalıdır. Ayrıca Williams Sendromlu çocuğa verilen özel eğitimin niteliği ve özel eğitimi veren eğitimcinin özellikleri de çok önem taşımaktadır. Williams Sendromlu çocuklara sağlanan özel eğitim çocuğun eğitim ihtiyaçlarına uygun nitelikte bir eğitim olmalıdır. Tüm özel eğitime ihtiyaç çocuklarda olduğu gibi Williams Sendromlu çocuklarda da en önemli olan şey zamanın eğitimler açısından doğru olarak kullanılabilmesidir. Ayrıca Williams Sendromlu çocuğa eğitim veren eğitimci de bu çocukların tüm özellikleri iyi bilmeli ve çocukların ihtiyaçlarına uygun bir eğitim programı hazırlamalı ve uygulamalıdır.
ERDİ KANBAŞ-ÖZEL EĞİTİM UZMANI
This time next week 👊🏽
Just to give you a bit more of an insight as to what this challenge actually means to Tyler. Tyler was a very poorly baby and as he grew we were told he would never walk (boy did they get that wrong!)
And eventually he did walk at 6 years old tho still now he has low muscle tone, problems with his joints, mobility and is completely flat footed!
Besides people with Williams syndrome being extremely overly friendly with outgoing, engaging personalities & an extreme interest in other people. they also share distinctive facial features.
Plus heart and blood vessel (cardiovascular) problems.
Along with learning difficulties.
Next week Tyler's holding his own charity event and will be doing 24 rounds of boxing to raise money for Williams syndrome and genes for jeans day.
Don't ever let someone tell you that you can't do something! That this is it, this is your outcome and you must live with it because most of the time it's simply just not true!! #24roundswithtyler
So so so proud of my little princess!! She may be a little too over loving to her baby brother but she is dealing with the whole change so well!
Her development is amazing me everyday at the moment. May not seem massive to others but earlier this week this clever little sausage threaded a bead at nursery by herself. So proud of her! And today she has just come over to Zach and said as clear as day "Hi Zach"
I think that he is going to help her in her development in so many ways it's amazing to see
Super proud of you Gracie.
Love my little people to the moon and back!! #proudmummy#bigsister#babybrother#love#williamssyndrome
Thomas has finished his first week in school and smashed it, our total super star. He's managed the new changes really well, he's taken everything in his stride and totally bowled me over with how well he's adjusted. He loves his teachers and is making lots of new friends #myhero#williamssyndrome#proud#luckymummy
During ABA this evening, we took a little trip to watch the deer in one of our favorite spots, and practiced safety awareness and use of language while I grabbed a few photos!-this is the kind of multi-tasking that I can handle, lol! Gorgeous hat and Peter Pan collar from our sweet friends @an.extra.blessing , beautiful suspended skirt from @thistle.and.thorn and adorable top from @fancylittlefox #williamssyndromeawareness#williamssyndrome#aba#specialneeds#specialneedsmomlife
A letter: "Dear Calub Ryan,
My sweet, sweet boy. Yesterday, after an especially difficult time with your reading homework, you said to me, "I can't read because I'm not a smart boy." My heart shattered into a million pieces. I pulled you close to me and cried. Maybe I shouldn't have cried because it made you cry, too, but it was all I could do in that moment. We talked about how amazing you are, and that you are so very smart. .
I'm still heartbroken today. I can still hear your sweet little voice telling me that you aren't smart, and I wish I could fix it somehow. Because here's the thing. You ARE smart. SO smart. You may take a little longer than others to grasp concepts. You might not be a fluent reader yet. You maybe still need some help with your writing. But, you. Are. Smart. You remember things that many other people would never remember. Once you get a concept, you get it, and it's like you've always done it. You can read other people's faces and know their feelings.
Here's the other thing. Being smart isn't the most important thing in the world. You're funny. And caring. And you're just about the kindest boy I've ever known. You know when Mama needs an extra hug or 2. You find the beauty in flowers and the magic in the moon. You stop to see the small, every day things that we often pass by. You are courageous. You have been through more in your short life than some people will go through in 80 years, and you still smile as if every day is magical. You have fought for the skills you have when most people would give up. You give your daddy and I strength that we never thought we'd have. And, you can fill a room with so much love and joy. Do you know how many people tell me they just love you and love being around you? Those things are far more important than being smart. .
You are a gift, Calub Ryan. I tell you all the time that you are the greatest gift I have ever been given, and I mean it. Your life is not without challenges, but I wouldn't trade those challenges for the world. .
Don't you ever believe that you're anything less than amazing, because you are just that- amazing. And, remember, <<
Pic one: "Cael, get back here, I forgot to get your picture" as he burns down the back alley. Welcome to grade 7.
Pic two: "Chase, say cheese. Chase, look at mom. Chase, over here" whatever, take the picture, it is what it is . Welcome to grade 4.
Pic three: "Carter, smile for your first day" as he questioned why he has to go to school but Molly the dog doesn't have to go to school. Welcome to the first day kindergarten.
Good morning everybody!
Fundraising starts in May 2018! We will be walking for Williams! Could you all please like and share our first post which contains my nephew Ben's story!
If you would like to join the fun or follow us and our story please like and share our Facebook page www.facebook.com/walk4williams
I hope everybody has a fantastic day! ☺️❤️ #williamssyndrome#williamssyndromeawareness#williamssyndromelove#fundraising
I'm so pleased that we finally have a release date for the new Williams Syndrome Foundation Charity Single - it's Friday 1st December!!
The single is called #talktome and I've co-written the track with the fantastic @danlauracurtis!
To celebrate its release, there will be a Launch Party hosted by the awesome little Harri Evans, a four year old boy who has Williams Syndrome!! The party will be held at Crumlin Rugby Club on 1st December, where The Kiltics will be performing live, we will also be exclusively releasing the charity single video too, along with a few other surprises thrown in, so make sure you all come along 🎶