This beautiful little hero of ours has just had a wee and poo on the toilet.... sorry for being graphic but this is an absolute achievement for Thomas, he's also been doing well at school with his toiletting and I couldn't be prouder. Having Williams Syndrome means that Thomas develops at a much slower rate than his peers, everything comes just like it does a typical (hate the word 'normal') child but it takes time. I have literally just jumped for joy, cheered so loud I'm sure the neighbours heard and danced in circles on the landing whilst Tom sat there and laughed at me. I am a mummy to a child with additional needs, i have been through things i never envisaged good and bad, hes taught me to never take anything for granted and hes made me the mother i am today and I love him to the moon and back always and forever #myhero#williamssyndrome#superstar
We are so excited! Not even a week into planning and we have already confirmed three return sponsors!!! So much thanks to Justin, Shelbi and Cecilia. We appreciate your continued support for the Canadian Association for Williams Syndrome 💙💚💜 These amazing folks are providing face painter, bouncy castle and tea and coffee. So much fun.
Do you want to be part of an amazing fun filled day? We are always searching for sponsors and donations. Nothing is too big or small. DM me to help support such an amazing "CAWS". #awareness#support#donate#CAWS#Walk for #williamssyndrome#sponsorship#novascotia#halifax#bedford#happiestwalk
This week my gorgeous little nephew freddie will be having a heart op in southampton due to having a narrowing of part of his aorta. This little man is the toughest and despite everything he is the happiest little boy, constantly beaming away every day. He has got this 💕🦊✨👊 #williamssyndrome#williamsawareness#chd
Jenny and I went out for a bowl this morning. Jenny told the guy at check in "I don't need no stinking bumpers" but they wouldn't let me get bumpers 😂 Anywho she killed me as always and then I owed her a slurpee.
I was invited to a press conference today to ride the new #BART trains. They were so cool. Acessible and comfortable. Even though the sound was quieter, I was still able to hear when I was approaching the stop before the announcement. Everyone at BART knows how to make a kid feel special. My friend Alicia Trost is the Department Manager and she invited me as her guest of honor to the event. My friend Tatiana was our tour guide again & she always takes care of us! Thanks for my new BART backpack!! The best part of my day was getting to bring my cousins and uncle along for the first ride. Today was another day I won’t forget 😎 #TeamGiosJourney#BayAreaTransit#BART#BayArea#NewTrains#BartBoy#WilliamsSyndrome#VisuallyImpaired#Accessibility#Transportation 🚈🚈
My names maddy I have Williams syndrome a lot of people don’t understand what it is I am missing my 7th chromosome and it’s very rare I was diagnosed when I was little I’ve had a lot of obstacles in life but William syndrome does not define me ❤️ #williamssyndrome#donotletitdefineyou
Aurora has a blanket that used to be my blanket as a child. It was made by my mother and its extremely soft (partially because of age) and comfy. It is has been well loved over the years and is not in the best shape any longer. My mother made her a new beautiful personalized blanket for Christmas which she loves and she told me to put away her "blankie", that she didn't need it anymore. I felt happy she was making this decision on her own but sad in a way; just another sign that my sweet baby girl is growing up. I sent her blankie through the wash one more time so I could pack it up with our keepsakes. It didn't make it there. Ari saw the blanket sitting there folded and snatched it up. "My pink blanket!" She pulled it close to her face, cuddled into bed, and shortly after fell asleep. I know she's growing up but it makes my heart smile that maybe it's not today. ❤
Of all the things I never thought I would do... Run a 5 week basketball 🏀 program for kiddos with special needs.
But, God has a way of growing and refining us in ways we never anticipated and quite frankly, never wanted.
But, today, we stood in a gym full of the most amazing creatures walking the earth. Some with #autism#brittlebonedisease#downsyndrome#SPD#ADHD#developmentaldelays#cognitivedelays , and of course I'm partial to the one you're looking at who was is our 1 in 10,000, born with #williamssyndrome . I became super grateful God doesn't keep me where I'm comfortable. That He takes something I once would have considered uncomfortable and turned it into a life long experience I feel honored to be gifted with🎁. I watched my daughters offer a hand without reservation to a girl, who was perfect, yet, awkward and drooling. And, I think to myself, thank you Lord for putting us here.
So, when there's no place for a boy to play ball, you create the experience for him. And when you do, you realize it wasn't just meant for him, it was meant for you too. #specialneedsparenting#enjoyingthejourney#basketball
These two are the funniest duo... a special thank you to Zoe and Caleb for being awesome, patient and for creating a safe space that allowed dude to push his boundaries knowing that crying babies and babies are one of his autistic triggers.... this is the first time in 18 years where dude has actually asked a baby over for a cuddle #dudesyearoffirsts#autism#williamssyndrome#kickinggoals