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I thought we we were out of the woods but no such luck. Ryder caught what Joe has 💔.
I thought we we were out of the woods but no such luck. Ryder caught what Joe has 💔.
Two years ago today we got amazing news! Ryder's heart had almost fully healed by itself! He would not need heart surgery. I was so shocked and overjoyed that all of our major health problems were behind us. Little did I know in under 2 months I would be calling this Dr. on a day the office was closed for meetings crying while telling her "Ryder has cancer. We are jumping on a plane in 12 hours and I need heart clearance because he will have IAC." I had to explain what this chemo surgery was and how the wires would pass by his heart in order to get the chemo to his eye. Instead of saying "it looked good last time." She said "We are closed but come in any time you can. We will be here and I want to make sure we don't see any issues." We got the go ahead that day and jumped on a plane that night. 
Timehop hits me hardest when I see photos of him from newborn to 3 months old. The days I thought down syndrome was a really big deal and I wasn't sure what the future held. I'll never be happy he was diagnosed with cancer however, it brought prospective to my life. I no longer focus on what he can or can't do. I focus on the fact that he is here and he will do amazing things. I focus on his smile and all the smiles that follow from others and how much better life is with him. 
I'm so very grateful for seeing a FB post that saved my son's life. #knowtheglow #getitchecked #rb 
#theluckyfew #downsyndromelove #t21 #ryderstrong #Lifeisbetterwithyou
Two years ago today we got amazing news! Ryder's heart had almost fully healed by itself! He would not need heart surgery. I was so shocked and overjoyed that all of our major health problems were behind us. Little did I know in under 2 months I would be calling this Dr. on a day the office was closed for meetings crying while telling her "Ryder has cancer. We are jumping on a plane in 12 hours and I need heart clearance because he will have IAC." I had to explain what this chemo surgery was and how the wires would pass by his heart in order to get the chemo to his eye. Instead of saying "it looked good last time." She said "We are closed but come in any time you can. We will be here and I want to make sure we don't see any issues." We got the go ahead that day and jumped on a plane that night. Timehop hits me hardest when I see photos of him from newborn to 3 months old. The days I thought down syndrome was a really big deal and I wasn't sure what the future held. I'll never be happy he was diagnosed with cancer however, it brought prospective to my life. I no longer focus on what he can or can't do. I focus on the fact that he is here and he will do amazing things. I focus on his smile and all the smiles that follow from others and how much better life is with him. I'm so very grateful for seeing a FB post that saved my son's life. #knowtheglow  #getitchecked  #rb  #theluckyfew  #downsyndromelove  #t21  #ryderstrong  #Lifeisbetterwithyou 
Here we go again. Joey had to get Joe from school today because he had a fever of 101.6. He got out of the car, ran to me, hugged me, cried and threw up. He's been a mess ever since. Praying it doesn't hit all of us. On the plus side Joe is now off for 10 days! Excited to spent time with both of my boys. I just hope they are well and we can do fun things.
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#bugbegone #momofboys #getbetter #poorguy
Here we go again. Joey had to get Joe from school today because he had a fever of 101.6. He got out of the car, ran to me, hugged me, cried and threw up. He's been a mess ever since. Praying it doesn't hit all of us. On the plus side Joe is now off for 10 days! Excited to spent time with both of my boys. I just hope they are well and we can do fun things. . . . #bugbegone  #momofboys  #getbetter  #poorguy 
I love watching him run outside after therapy.  He lobed to watch the bikers on the green belt. He points and waves and yells so they see him ❤. Believe in your own magic!
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#downsyndromeawareness #downrightadorable #nothingdownaboutit #t21 #downsyndromelove #upsyndrome #igbabies #instababy #t21rocksss #theluckyfew #morealikethandifferent  #prayforryder #myhero #downsyndromerocks #babiesofig #downsyndrome #babiesofinstagram  #kidsgetcancertoo #lifewithds #trisomy21 #dsdn #photooftheday #changingthefaceofbeauty #happy #ryderstrong  #rockinit #rockthet21
I love watching him run outside after therapy. He lobed to watch the bikers on the green belt. He points and waves and yells so they see him ❤. Believe in your own magic! . . . #downsyndromeawareness  #downrightadorable  #nothingdownaboutit  #t21  #downsyndromelove  #upsyndrome  #igbabies  #instababy  #t21rocksss  #theluckyfew  #morealikethandifferent   #prayforryder  #myhero  #downsyndromerocks  #babiesofig  #downsyndrome  #babiesofinstagram   #kidsgetcancertoo  #lifewithds  #trisomy21  #dsdn  #photooftheday  #changingthefaceofbeauty  #happy  #ryderstrong   #rockinit  #rockthet21 
If you aren't following go do it! DM her and you will get a $5 credit. Tell her we sent you and we will get one too. How cool! We can all rock some really cute shirts!
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🖤 N E W  F O L L O W E R  G I V E A W A Y 🖤 Starting today any new follower to this page will get a $5 A Lil Something Extra gift certificate🎉 In addition, if they are referred by you (an existing follower), you too, will get a $5 gift certificate to A Lil Something Extra🎉 .
To enter:
1. follow @alilsomethingextra321
2. DM so I can send you your code
3. Mention if you heard about us from an existing follower--- we will send them one too!
4. Share this post!
Giveaway ends 11/17/17. This giveaway is not sponsored or endorsed by Instagram.
#giveaway #follow #free
If you aren't following go do it! DM her and you will get a $5 credit. Tell her we sent you and we will get one too. How cool! We can all rock some really cute shirts! . 🖤 N E W F O L L O W E R G I V E A W A Y 🖤 Starting today any new follower to this page will get a $5 A Lil Something Extra gift certificate🎉 In addition, if they are referred by you (an existing follower), you too, will get a $5 gift certificate to A Lil Something Extra🎉 . To enter: 1. follow @alilsomethingextra321 2. DM so I can send you your code 3. Mention if you heard about us from an existing follower--- we will send them one too! 4. Share this post! Giveaway ends 11/17/17. This giveaway is not sponsored or endorsed by Instagram. #giveaway  #follow  #free 
My big boy was so excited to go to @gigisplayhousephx again today. However he had to stop several times to love himself in the reflection lol. Scroll for more. 
Awesome shirt from @alilsomethingextra321
Use code Ryder20 for 20% off ❤..
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#downsyndromeawareness #downrightadorable #nothingdownaboutit #t21 #downsyndromelove #upsyndrome #igbabies #instababy #t21rocksss #theluckyfew #morealikethandifferent  #prayforryder #myhero #downsyndromerocks #babiesofig #downsyndrome #babiesofinstagram  #kidsgetcancertoo #lifewithds #trisomy21 #dsdn #photooftheday #changingthefaceofbeauty #happy #ryderstrong  #rockinit #rockthet21 #alilsomethingextra #downrightawesome
My big boy was so excited to go to @gigisplayhousephx again today. However he had to stop several times to love himself in the reflection lol. Scroll for more. Awesome shirt from @alilsomethingextra321 Use code Ryder20 for 20% off ❤.. . . #downsyndromeawareness  #downrightadorable  #nothingdownaboutit  #t21  #downsyndromelove  #upsyndrome  #igbabies  #instababy  #t21rocksss  #theluckyfew  #morealikethandifferent   #prayforryder  #myhero  #downsyndromerocks  #babiesofig  #downsyndrome  #babiesofinstagram   #kidsgetcancertoo  #lifewithds  #trisomy21  #dsdn  #photooftheday  #changingthefaceofbeauty  #happy  #ryderstrong   #rockinit  #rockthet21  #alilsomethingextra  #downrightawesome 
When the bartender is taking too long and you start to worry you've been cut off 🤣. Oh Joe.
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#drinkplease #bartender #cutoff #bar #wheresmydrink
Amazing wedding! Congratulations Dave and Janine ❤. Scroll to see the beautiful bride and our handsome little guys. .
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#theluckyfew #nothingdownaboutit #weddingbells #wedding #downrightadorable #downsyndromelove #ringbearer #arizona #downsyndrome #morealikethandifferent #changingthefaceofbeauty #inclusion
Ryder had an ENT appointment yesterday.  First one ever because his Dr felt he had fluid in his ears. The Dr said Ryder has no hearing issues! As you can see, he was over being stuck in this room lol. Today Ryder is going to be in his aunts wedding! I can't wait to see him in his little tux!
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#love #thelucky #weddingbells
Ryder had an ENT appointment yesterday. First one ever because his Dr felt he had fluid in his ears. The Dr said Ryder has no hearing issues! As you can see, he was over being stuck in this room lol. Today Ryder is going to be in his aunts wedding! I can't wait to see him in his little tux! . . . #love  #thelucky  #weddingbells 
Please stop what you are doing and say a prayer for our friend Addie as she heads to the hospital to start her leukemia fight.  @unexpectedh4ppy, we love you guys so much! She's got this and we are here if you need anything ❤. Today Addie is 2 and a half. She had her test and they got a call to head to the hospital right away. They will be there at least a month 💔.
#cancersucks #ihatecancer
Please stop what you are doing and say a prayer for our friend Addie as she heads to the hospital to start her leukemia fight. @unexpectedh4ppy, we love you guys so much! She's got this and we are here if you need anything ❤. Today Addie is 2 and a half. She had her test and they got a call to head to the hospital right away. They will be there at least a month 💔. #cancersucks  #ihatecancer 
More fun @gigisplayhousephx today! I'm So happy we get to to more now.  Ryder is using his hands more and more trying to sign ❤. Thank you for all you do.
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#downsyndromeawareness #downrightadorable #nothingdownaboutit #t21 #downsyndromelove #upsyndrome #igbabies #instababy #t21rocksss #theluckyfew #morealikethandifferent  #prayforryder #myhero #downsyndromerocks #babiesofig #downsyndrome #babiesofinstagram  #kidsgetcancertoo #lifewithds #trisomy21 #dsdn #photooftheday #changingthefaceofbeauty #happy #ryderstrong  #rockinit #rockthet21
More fun @gigisplayhousephx today! I'm So happy we get to to more now. Ryder is using his hands more and more trying to sign ❤. Thank you for all you do. . . . #downsyndromeawareness  #downrightadorable  #nothingdownaboutit  #t21  #downsyndromelove  #upsyndrome  #igbabies  #instababy  #t21rocksss  #theluckyfew  #morealikethandifferent   #prayforryder  #myhero  #downsyndromerocks  #babiesofig  #downsyndrome  #babiesofinstagram   #kidsgetcancertoo  #lifewithds  #trisomy21  #dsdn  #photooftheday  #changingthefaceofbeauty  #happy  #ryderstrong   #rockinit  #rockthet21 
We are still stuck in the house 😥. However the boys seem to be doing much better. Fevers on and off but energy like crazy. As for me it's been pretty rough. I can't remember the last time I had a bug hit me this hard for so long. I still can't eat and I missed my sister in laws bachelorette party tonight 😭. I had a good cry over it however it is important that we are all healthy 1 week from today. All 4 of us are in the wedding ❤. .
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#bugbegone #mamadown #weddingbells #soontobeuncledave #alwayswasuncledave
We are still stuck in the house 😥. However the boys seem to be doing much better. Fevers on and off but energy like crazy. As for me it's been pretty rough. I can't remember the last time I had a bug hit me this hard for so long. I still can't eat and I missed my sister in laws bachelorette party tonight 😭. I had a good cry over it however it is important that we are all healthy 1 week from today. All 4 of us are in the wedding ❤. . . . #bugbegone  #mamadown  #weddingbells  #soontobeuncledave  #alwayswasuncledave 
After a long night of both boys and myself vomiting we headed to the Dr.  Negative for strep and the flu so we have some other type of bug. Besides not wanting to be at the Dr, the boys are doing pretty good. However,  everything hurts on me. I can hardly pick Ryder up, haven't had anything to eat and I'm only drinking water. I sure hope this passes soon!
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#begonebug #thisstinks
After a long night of both boys and myself vomiting we headed to the Dr. Negative for strep and the flu so we have some other type of bug. Besides not wanting to be at the Dr, the boys are doing pretty good. However, everything hurts on me. I can hardly pick Ryder up, haven't had anything to eat and I'm only drinking water. I sure hope this passes soon! . . . #begonebug  #thisstinks 
Ryder's first time trick or treating ❤. He kept trying to go into everyone's house 😆. .
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#theluckyfew #scoobydoo #downsyndromelove #trickortreat
To my surprise Ryder seemed totally fine today. I hope it stays that way. Shaggy and Scooby! Neither wanted to stand still for a photo and Ryder was not a fan of the head piece so we didn't wear it. We had SO much fun ❤. #brotherlylove #brothers #halloween #scoobydoo #shaggy #theyneverstandstill #theluckyfew #downrightadorable #downsyndromeawareness
We got these adorable photos today from the AZ DSnetwork.  These were the photos they took for the calender.  I love them so much ❤. The last one is Ryder tonight.  Around 5pm he got super sick suoer fast. Am I the only mom that Cries and is afraid to go to sleep when their child is sick? I'm really hoping he is better tomorrow. I was looking forward to his first time trick or treating 😭😭😭.
We got these adorable photos today from the AZ DSnetwork. These were the photos they took for the calender. I love them so much ❤. The last one is Ryder tonight. Around 5pm he got super sick suoer fast. Am I the only mom that Cries and is afraid to go to sleep when their child is sick? I'm really hoping he is better tomorrow. I was looking forward to his first time trick or treating 😭😭😭.
Arizona Buddy Walk today! So thankful to all our friend and family that came out to join us. #lifeisbetterwithyou buddy!
Arizona Buddy Walk today! So thankful to all our friend and family that came out to join us. #lifeisbetterwithyou  buddy!